See My Hurt?

Aaron recently had a tooth that was hurting him so much that he asked me to hurry and call our dentist so he could look at it.  For Aaron to want to go to the dentist showed me that he was truly in pain.  Our dentist referred Aaron to our endodontist, who confirmed what the dentist thought…that Aaron’s tooth was probably cracked way down in the root, infected, and would need to be pulled. 

Aaron was fascinated to look at the x-ray that the endodontist showed him.  You could see all the dark areas of infection very clearly.  Dr. Turner explained to Aaron that this was why his tooth hurt so much. 

Our next appointment was with an oral surgeon, the same one who had removed Aaron’s back molar near this infected tooth.  That molar had fractured during a drop seizure when Aaron’s face had hit a cement floor.

At first Aaron was pensive and tired:

Then he became silly as we waited for the doctor (look at his watch! 😊):

Dr. Cole finally arrived and examined Aaron’s hurting tooth.  He put up the x-rays that were taken in his office a few minutes earlier.

Aaron’s eyes darted to the x-rays.  He studied them for a few seconds.

“Can you see my hurt?” he asked.

Dr. Cole was a little confused.  He said that he couldn’t exactly see the crack but that they knew it was there.

“But can you see my hurt?” Aaron asked again.

I knew what Aaron meant.  He wondered if Dr. Cole could see the dark area of infection that was visible on his other x-rays.  These looked different and Aaron was concerned that Dr. Cole couldn’t see his hurt. 

I explained to the doctor what Aaron meant and then he understood. 

But Aaron’s way of asking about his tooth…his hurt…was SO Aaron and so touching, somehow.

I’ve thought a lot about seeing hurt, not only as it relates to Aaron but to others all around us as well. 

One day last week when I picked him up at his day group, he had just had a seizure before I got there.  He was laying on a booth seat when he had the seizure and so he fell off the seat, onto the floor.  I went in and there he lay on the cement floor.  One of the very kind supervisors actually got on the floor with Aaron as we tried to wake him up.  It took awhile before Aaron was awake enough to get off the floor, but it took some doing to get out of that tight area.  Later that night, Aaron showed us a couple scuffed places on his back.  Thankfully that was the only evidence we saw of his seizure…that, and his bitten tongue.

That was a hurt I could see.  Him lying on the floor, having a difficult time communicating when he woke up, and then the areas on his back that hurt, were all visible to us.

But how many times does Aaron, or any of us, have hurts which others can’t see?

For me, I hurt when Aaron has seizures.  I hurt when he talks about wanting a girlfriend or wanting to get married. 

Or when his meds make him very sleepy, and I wish he wasn’t so drugged:

Yet those hurts are ones I don’t want Aaron to see and so I hide them as best I can from him, and even from others.

How about you?  Do you have hurts you hide from the world, or even from those closest to you?

I think we all do.  I know I do. 

Why do we hide our hurts?  Maybe we don’t want others to feel sorry for us.  Maybe we feel we must be strong in front of everyone.  Maybe we’re embarrassed.  Maybe we can’t bear to share the pain and hurt we feel so we try to bury it.

But there is One Who sees every hurt we carry…Who understands every pain we feel…Who is wanting us to turn to Him and let Him take and carry our burdens. 

“Come to Me, all who are weary and heavy-laden, and I will give you rest.”  (Matthew 11:28)

Here is another way to say it:

“Come to Me, all who are beaten down and burdened down, and I will give you rest.”  (Matthew 11:28)

 I think of the old hymn, Tell It To Jesus:

Are you weary, are you heavy hearted?

Tell it to Jesus, tell it to Jesus.

Are you grieving over joys departed?

Tell it to Jesus alone.

Tell it to Jesus, tell it to Jesus,

He is a Friend that’s well known.

You’ve no other such a friend or brother,

Tell it to Jesus alone.

Do the tears flow down your cheeks unbidden?

Tell it to Jesus, tell it to Jesus.

Have you sins that to men’s eyes are hidden?

Tell it to Jesus alone.

Do you fear the gathering clouds of sorrow?

Tell it to Jesus, tell it to Jesus.

Are you anxious what shall be tomorrow?

Tell it to Jesus alone.

Are you troubled at the thought of dying?

Tell it to Jesus, tell it to Jesus.

For Christ’s coming kingdom are you sighing?

Tell it to Jesus alone.

If we can’t share our hurt and burden with anyone else, we can still share it with Jesus.  But sharing our hurts with those we trust, those who will pray for and with us, is also a huge help in relieving our pain. 

There is way too much hurt today in this crazy world…way too many beaten and burdened down people.  I pray that I will look at everyone around me and wonder if they are saying, “Do you see my hurt?”

And even if I can’t see it, that I will be kind and loving to everyone, knowing that they may be carrying a huge hurt that I know nothing about.

May I see and love through the eyes of Jesus. 

And may I let that same Jesus carry my unseen hurts. 

Let’s Talk (And Talk and Talk) About Lettuce!

Aaron had an appointment with his autism doctor this past Monday morning.  Dr. Ogden, a psychiatrist, oversees the aspects of autism that are not very much fun.  This means that she wants to talk about Aaron’s feelings and behaviors.

However, Aaron does NOT want to talk about his feelings or behaviors.  Years ago, we tried counseling sessions and it was a royal failure…not because of the therapist but because Aaron wanted to control the conversation and make it all about his movies and games and things like showing her the bump on his chest. 

Aaron would rather be poked and prodded and stuck with needles than to sit on a couch with mom and Dr. Ogden while explaining why he gets angry at home or his day group…why he reacts to people and situations with hitting or verbal insults…and what the solutions may be to said behaviors.

Aaron woke up that morning angry and frustrated, which is not the best way to go see the doctor who wants to talk about his anger and frustration.  Rarely is Dr. Ogden treated to Aaron’s humor or brightness.  Rarely am I treated to such fun Aaron attributes either on Dr. Ogden days until the visit is over and done…and we go to lunch. 

Lunch is the ONLY reason Aaron endures these talking doctor visits.

Aaron went from livid to lively as we drove to BJ’s for lunch.

You might say that Aaron can surely control his moods if he does so in a situation such as this.

But with autism, things are flipped.  Aaron’s moods control him.  You and I can perhaps overcome the heavy mood that weighs us down on certain days, but Aaron’s heavy mood puts him on a track from which he cannot jump.  He is stuck until something else redirects him.

And on Monday, part of his mood changer was in the form of lettuce.

When Aaron finished his French fries and scooted his chicken tenders around, there on his plate lay a nice piece of leaf lettuce.

Aaron tenderly picked it up, as if he was slightly scared of it.

Look at his face!  😊

Then he set it on the table.

“I’ve never seen this lettuce,” he calmly remarked.

“What do you mean, you’ve never seen that lettuce?” I asked.

“Well, it’s green!” he answered.

“Green?” I questioned.

“Well,” he explained, “some is black and some is green and some is white.  You usually get white.”

Oh, the intrigue of mixing autism with being color blind!

I can totally see that he sees all those interesting colors of lettuce.  Once again, Aaron caused me to pause and consider concepts that I would ordinarily never think about.

Aaron then held up the lettuce as if he was displaying a prized conquest.

Then he stared at it as he placed it on his plate again, studying it in such a serious way that I had a very hard time not laughing out loud.

“I didn’t order lettuce with my chicken strips,” he observed.

I explained that the green lettuce was there more for decoration than anything, which he thought was rather odd.

“What flavor is the green?” he wondered.

 I had to laugh at that one.

“Ummm, lettuce just tastes like lettuce, Aaron,” I tried to explain.  “Why don’t you eat it?”

So, Aaron very bravely took a small bite.

Which led to more bites as he looked postitively scared.

And finally, the lettuce was gone. 

Aaron survived!

I thought we had exhausted everything lettuce related there at BJ’s.

But the next night, Aaron’s sharp eyes spotted lettuce in a commercial.  Of all the food items on the screen, Aaron saw a piece of LETTUCE!!

“MOM!!” he yelled.  “There’s the lettuce I had in BJ’s!!  The brown one!!”

BROWN!!??

Now we’re on to BROWN!?

NOOOOOO!!!

I’m making an appointment with Dr. Odgen…for ME!!!

Skeletal Staff…or Clients?!

This picture was so funny that I just have to share it in a quick blog.  I should really do more of these.

In a meeting at Aaron’s day group this week, he wanted me to take a picture of him and Piper, the resident therapy dog. Actually, I think Piper must be the one who needs therapy after some of his days with Aaron, but that’s another story.

Aaron kept leaving the table during the meeting and returning with Halloween decorations. I realized after seeing the picture I took that it looks like we’re in a forensics crime lab…or that Aaron attends a really sketchy day group. 🤣🤣

The Fruit of Forgetfulness

Aaron and I walked into our Dillon’s store one day this week.  He had happily agreed to my idea of getting him a Cheddar Pasta Salad for supper.  As we walked in the door, he quickly took off in the opposite direction from me. 

“Aaron,” I said to his back as he briskly walked away, “you need to come and find me when you’re done!”

I quickly got the salad.  No Aaron.

As I walked to the meat section, looking up each aisle…no Aaron.

I bought some meat.  No Aaron.

I looked up each aisle that I passed again.  No Aaron.

Finally, I went back to my original location. 

“MOM!!”

There he was, amid the flowers on one side and the boxed bakery treats on the other.  He had seen me.  He took off toward me in a run, holding two jars of peanuts, his face covered in a huge smile of relief.

“MOM!” he repeated.

“Don’t run, Aaron,” I admonished. 

But afraid of losing me again, he ran anyway.

“I thought you had left me!” he dramatically stated as he dumped his jars of peanuts in the cart. 

“I would never leave you,” I replied.  “You’re the one who left me.”

“But I thought you had gone, so I told a lady who works here to page you,” he excitedly answered.

“Oh, Aaron!  Did you really?!” I asked.

“YES!!” he said.  “I told her I couldn’t find my mom and I thought you had left and would she page you.”

I was actually pretty impressed that he had thought about paging me.  He saw the employee in self-checkout that he had spoken to.

“Is this your mom?” she asked.

“YES!!” Aaron told her.  “She didn’t leave me!”

We laughed…and there I stood, feeling like the mom who routinely abandons her son, being eyed by the customers who would never do such a thing.  😊

As I scanned the groceries, and kept reminding Aaron to calm down, I was also reminding him of all our past history.

“Aaron, have I ever, ever left you anywhere?” I asked him.

He said no, but…

“No, Aaron, just remember that I have never left you and I would never leave you,” I continued.

This past January I chose a word for the year.  I’ve never done that before but this year I felt impressed to choose the word “Remember” for my word of the year.

I’m reading and studying through the book of Deuteronomy.  Moses was preparing the children of Israel to enter the Promised Land.  It was a land of “milk and honey,” full of good ground and many resources.

But it was also full of danger from inhabitants who hated the God of Israel and who fully intended to kill all the Israelites. 

So, there were the weary travelers who had just spent 40 years wandering through the desert, and God wanted them to conquer this land.

“Really, God?” they questioned.  “And just how are we supposed to do THAT?!”

And Moses said, “REMEMBER!!”

“…you shall not be afraid of them; you shall well REMEMBER what the Lord your God did to Pharaoh and to all Egypt.”  (Deut. 7:18)

How easy it is for us to forget God when we are surrounded by the stresses and bad news in our lives! 

Or we don’t really forget God, but we forget all the many ways that He has shown Himself faithful to us over the years.

Sometimes we simply forget WHO God is. 

And when we do that, we focus on our situations and not on God.

This quote jumped out at me this week and planted itself firmly in my heart:

            “FEAR IS THE FRUIT OF FORGETFULNESS.”  (Raymond Brown)

Over and over, Moses told Israel to remember all the works of God and all the ways He had led them.  And the only fear they were to have?

“You shall fear only the Lord your God; and you shall worship Him…”  (Deut. 6:13)

This fear means to have reverential trust in God. 

There is plenty to fear today in our personal lives; in the lives of our families; in our nation and in our world.

I don’t know about you, but I have had – even just this week – several opportunities to practice fearing (trusting) God instead of fearing my circumstances.

You see, trust and a lack of fear does not involve understanding my circumstances.

Trust and a lack of fear involves knowing and understanding God.

There is so much I don’t understand today.

But I DO know and understand this:

“Know therefore that the Lord your God, He is God, the faithful God Who keeps His covenant and His lovingkindness to a thousandth generation with those who love Him and keep His commandments.”  (Deut. 7:9)

I affirmed to Aaron that I would never leave him.

And may I never forget that God affirms to me the same.

My Body, My Choice…and Aaron

This past week, the Supreme Court voted not to block Texas’ heartbeat bill.  This, in effect, has made abortion in Texas illegal after the first heartbeat of the baby in the womb is heard…usually around the 6th week of pregnancy.

Against the backdrop of yelling protestors –

I was looking at my own backdrop at home, which consisted of all Aaron’s bedding after his seizures earlier Friday morning.

And dear Aaron recovering from those seizures as he slept on the couch.

My mother’s heart was drawn to Aaron in his struggles.

But my mother’s heart was also drawn to all the many babies who have not had the chance to live, no matter how difficult their lives may have been.

There is a choice that is seldom addressed when most people talk about “choice” as it is defined today.

It’s the choice that Joshua talked about when Israel was going into the land that God had given them.  He told Israel to choose that day whom they would serve – the one true God, or one of the false gods worshipped by the peoples in the land around them.

Either way, they would choose a deity to worship.  They would worship God, or they would worship a non-god…a pagan god. 

“Joshua calls Israel to ‘serve Yahweh’ (Joshua 24:14).  But if Israel will not serve Yahweh, they must at least serve some god(s).  He presses Israel to the wall; they must come down somewhere.  If not Yahweh, the real historical God, then they must choose either the ancestral Mesopotamian gods or the contemporary Amorite ones.  The conservatives who were fond of tradition, of what had stood the test of time, who yearned for the ‘faith of our fathers’, might vote for Mesopotamia.  The liberals with their yen for relevance, for being in step with the times, might prefer to identify (as an act of goodwill) with the current social milieu and enter into dialogue and worship with the Amorites.  But you must choose; if not Yahweh, then take your pick from ‘these dunghill deities’ (Matthew Henry).”   (Dale Ralph Davis)

Do you see the issue here? 

Do you see the issue for our culture today?

My choice!

My choice which god I will serve.

For in making the choice to reject Jehovah God, you ARE making a choice to serve whatever pagan god fits your lifestyle.

We all serve and worship someone or something.

My choice to worship God will then dictate my other choices in life.

My choices FOR life.

For no matter how many silly arguments are made condoning abortion, we all know that something inside that woman is alive and growing.

And if nothing else, modern technology has shown us that what is growing in her womb is a human baby with a functioning heart at only several weeks old. 

Psalm 139 tells us that God has woven that baby together in his mother’s womb.  She is fearfully – reverently – and wonderfully made by God Himself!

So how do I explain our Aaron, born with special needs? 

I can’t.

But I can explain that as for me and Gary, we have chosen to serve the Lord. 

With all my body and soul and heart, I have chosen to trust almighty God to make the right decisions for me and for my son.

My body is not mine.

My choice is not mine.

I belong to God and His choice is all that matters.

And because I know Him and trust Him, I know that our Aaron whom he created is made just the way that God allowed and designed.

I walk in peace.  I don’t need all the answers to do that.

I only need to choose…GOD!

Photo taken by Karlea Tanner

What Aaron Shares

Recently, my husband and I went to an NHRA race in Topeka.  Our son, Andrew, works for one of the teams.  It’s fun to go to the races but it means even more to us to get to spend some time with Andrew. 

“MOM!!” Aaron said to me the day before we left, “take this state quarter to Andrew!”

You see, Aaron collects state quarters.  He keeps every state quarter that he finds and stashes them away in a tin box in his desk drawer.  He loves his state quarters!  So, to offer one to someone else is indeed a gift from his heart.  He sent one to his sister for her birthday in June, and now wanted us to take one to his brother.

The quarter he chose was dingy, but to Aaron it was a gift of gold.

Then to top it off, he brought me another gift to give Andrew.  He chose this gift from his new bag of bubble gum, bought just a few days earlier. 

On our first night in Topeka, as we waited on our dinner, I gave Andrew his special gifts from Aaron.  Such a sweet moment, and the look on Andrew’s face was priceless.

Aaron loves to share…to give things to people. 

Sometimes when he and I are watching a show at night, and he’s snacking on nuts or something else, I’ll suddenly have a piece of whatever he’s eating land on my lap.  He throws me pieces of his food like I’m an animal at the zoo that he’s feeding!  😊 😊

Let me share with you some of Aaron’s sharing with us.  I think your heart will be as touched as ours is.

Aaron laid these on my leg one day.  It was better than having them thrown at me! 

Another time, I found these on the coaster where he knows I put my drink at night.

And he left two of his very special rocks on my pillow one night.

Distance is no deterrent to Aaron.  He wanted to share some of his new Jolly Ranchers with Andrea and Kyle in Texas, and with Andrew in Indiana.  We bagged and boxed them up, and in the mail they went.  The postage cost more than the whole bag of candy, yet Aaron’s joy was well worth the money.

But Aaron shares more than just items like candy and quarters and rocks. 

Aaron shares huge smiles.

He shares his amazing discoveries.

Aaron shares joy in the simplest things.

Thanks for the picture, Karlea!

Aaron also shares words and actions and attitudes that can aggravate and anger us.  It’s all a part of the intricate way that his brain is wired. 

It’s up to me and to Gary to keep instructing Aaron…keep loving Aaron…and keep our emotions in check during the rough times.

We don’t always do it well or with grace.

But every day is a new day.

Every day, God’s mercies are new.

Every day, we all have some hard times. 

Every day, we have opportunities to focus on the blessings.

And every day is full of new discoveries and adventures for our son who is still, in so many ways, a child.  💙💙

Footprints

 

For the past two days we had a small and gentle snow that fell to the ground and blanketed our brown earth with a fresh coat of white.  Besides needing the moisture, it was a relief to look outside and see the drab brown grass and trees transformed into the beauty of a soft winter wonderland…new and sparkling white.
 
Andrea is still here with us as she enjoys the last day or two of her Christmas break.  Along with her, we have her adorable dog – Darcy.  Darcy is so small compared to our huge Great Dane, Jackson.  The difference in their sizes was very evident yesterday as I looked down at their footprints in the snow.  I had no trouble being able to distinguish which print was Jackson’s and which was Darcy’s.  The impressions that each dog made in the snow was undeniable…big for Jackson and small for Darcy. 
 
 
I’ve been thinking about footprints and pondering the significance of those footprints that we cannot see…the footprints that we leave in the lives of people that cross our paths.  I have specifically been thinking of Aaron – of some of the people that have left a footprint in his life and therefore have impacted mine.  The footprints don’t have to be huge or to be many in order to leave an impact.
 
Years ago we had a dinner after the morning service at our church.  By this time,  Aaron was in his teens and his differences were very pronounced.  Most of his peers did not know what to do with Aaron…how to talk to him or relate to him.  They weren’t unkind but most simply handled the situation of Aaron by ignoring him, or by speaking briefly and then walking uncomfortably away from this person who was so unusual.  As I went through the serving line and filled my plate, I looked around for Aaron in order to direct him to the table where we would be sitting.  But there was no Aaron to be found as my eyes scanned the room.
 
Then I saw him sitting at a table full of teenaged boys.  I wondered if Aaron had just seated himself there and  my heart fell as I feared that he might be ignored.  It was then that Gary told me that one of the young men at that table, Tyler Ellis, had asked Aaron if he wanted to sit with them.  I was shocked…and I was also so very happy.  What to Tyler probably seemed like a very small thing to do was instead a huge blessing to Gary and me.  That incident left a footprint in my heart that remains today…a footprint of kindness that still warms me and makes me smile.
 
I have another footprint involving a young man that had his own struggles yet had a heart of gold.  Paul Gilbow came over to our house to swim with Aaron.  What was routine for our other children was rare for Aaron…to have someone purposely come over to swim with him and spend time with him.  I remember the joy that filled my heart as I looked out the window and watched Paul and Aaron swim.  Paul was unaffected by Aaron’s unusual behaviors or speech or appearance.  He gave Aaron a day of normalcy and fun, and he gave me a footprint in my life that will stay forever.  Paul has left this earth but his sweet footprint remains with me.
 
We each leave footprints in the lives of others.  Some of those prints are with intent as we purposely reach out to touch others and to help them along the way…or sadly as we may reach out to inflict verbal pain or to ignore those that we dislike.  Other prints we may never see or realize as we affect people in ways of which we are unaware.  I often wonder that if the footprints of our attitudes and our deeds were visible, like Jackson’s and Darcy’s, then what would mine look like?  When I leave a footprint in some one’s life, what kind will it be?  Will someone look at the footprints in their life and recognize mine?  And if they do, will it be because of a smile or an act of love and caring?  Or will they see anger or frustration or neglect? 
 
I want this New Year to be a year of making the right kinds of footprints in the lives of others…and to remember that even the very smallest of prints can leave a lifelong, profound effect on those whose lives I somehow touch.  

Our Utopia

One recent night, after Aaron and I had watched an episode of The Waltons, I had a brilliant idea.  Now you must understand that after the program we are watching is over, Aaron wants the television off.  No watching ANYTHING else when our show is over.

Don’t ask me why.  Don’t ask me to explain many of Aaron’s quirks.  He has his own rules in his own way, and he expects us to abide by those rules.  If we don’t…well, it’s not utopia around here.

Back to my brilliant idea.  During our last visit to see our daughter and son-in-law, Andrea had shared a fun song with us.  She played it on YouTube, on their big screen TV, and I LOVED it.  The song is Sea Shanty Medley by Home Free. 

Fast forward to our house on this particular night as Aaron and I finished watching The Waltons.  I wisely decided that while Aaron cleaned up the multiple snacks he carries to the family room to tide him over during our show, and while I finished my before-bed chores, that I would turn to YouTube on our new big television and listen to Sea Shanty Medley.

So, I did just that. 

And Aaron became unglued. 

Watching something…ANYTHING…after our show is not allowed. 

“MOM!!!  Turn that OFF!!” he exclaimed.

And I…being the kind mother that I am…turned the volume up a tad.

Aaron also turned his volume up more than a tad.

So I…remember my kindness…played the song a second time.

Let’s just say that it was quite a relief when Aaron finally fell asleep later.

The next night, after watching the next Waltons episode, Aaron’s head jerked around to me as soon as the last Walton’s goodnight and musical note was over.  He was checking to see if I clicked on YouTube again.

“MOM!!” he loudly said, “don’t listen to that UTOPIA music like you did last night!!”

Oh my goodness, how he can make me want to laugh in the middle of my frustration!

I wanted to correct him.

“It’s YouTube, Aaron, NOT utopia!!  Believe me, this is not utopia around here!”

But I didn’t. 

However, his comment has made me think a lot about our version of utopia.

Utopia – defined as a place of ideal perfection especially in laws, government, and social conditions.

Aaron’s version of utopia centers around his desire to have his life ordered in those rather eccentric ways that matter to him.  We do it this way every time, people!  If we cooperate, then his life is a place of ideal perfection.  Never mind that ours is not.

But life doesn’t work that way and therefore Aaron’s utopia gets all jumbled up…as does ours.

Yet even more important is our attitude concerning this utopia idea.  Gary and I do get tired of Aaron’s ups and downs…of how verbal he can be when he is angry…of how tiring it can be to try to meet his utopia demands while keeping our own in mind. 

One evening, Gary and I were particularly spent.  We snuck out to our front porch and sat in our rocking chairs, breathing at last without Aaron’s interruptions.

But then this happened.

It was another moment when our attitude was tested.  And we have learned that it’s best to adapt to each of these moments with as much kindness and laughter as we possibly can.  Easier said than done some days.

Back to our utopia.  We have changed our own personal definition of utopia as we have parented Aaron over the years.  Our satisfaction and joy must be centered in trusting God.  In knowing that where He has placed us is where He will give us what we need. 

Let me share with you some beautiful pictures of our utopia.

The pure delight of bubbles:

The sweetness of sharing a beetle with Mollie next door:

The delight he finds in animals:

The fun he creates out of the mundane:

The happiness found in a simple game:

The rapture of all that cheese on his pizza:

Our attitude is of utmost importance.  Our attitude determines our joy.  We can always be looking at that other definition of utopia…an imaginary and remote place of perfection.

Or we can resolve to look at our utopia in the face of our special son.

Tough Trust

Yesterday as I ate my lunch, I saw a picture on my computer that started my mind turning toward some issues that make me sad.  As I wrote in my last blog (Listening Carefully), I know better than to let my thoughts stay on certain matters that will pull me down.  I am consciously practicing, more and more, immediately turning my heart to God and affirming to Him…and to me…that I trust Him totally.

As I sat at my table, thinking on these things and praying, these words came to me.  I shared them right away on Facebook.

It was around 1:30, and soon I was to go pick Aaron up at his day group.  He had a seizure early that morning, around 4:30, but felt fine and so was able to go on and spend the day with his friends. 

When we got home, as we talked about many things…because with Aaron there are always many things that he wants to talk about…I mentioned to him that I saw his empty deodorant in his bathroom trash can. 

“Yes!” he said, “I put some on this one but not on this one!”

I turned to see him holding up one arm at a time as he showed me which arm pit had gotten deodorant and which one had not.  😊

I left him in his bathroom to remedy the arm pit situation.  I had just sat at my desk in my bedroom nearby when I heard the awful crash and the sounds of a big seizure. 

I yelled for Gary and ran in the bathroom to see Aaron laying in the tub.  He had fallen backward into the tub, taking with him the shower curtain and rod.  He was entangled in all that, plus in his shirt that he had been removing.  The first thing to do was to hold his head to keep him from continually banging it on the hard tub as he seized.  Gary had run upstairs, grabbing one of Aaron’s small pillows to put under Aaron’s head. 

These sudden and very dangerous seizures are just awful on many levels.  It’s a terrible feeling to hear that crash and then the seizure sounds…to run to him not knowing what you will find…to wonder how hard he hit his head or if there are other injuries.

We had untangled him from the shower curtain and from his twisted shirt that was all around both his arms and hands.  Gary put a sweater over him and then we just had to let him lay there in the tub until he was awake enough to be moved to his bed. 

I went back to my desk, still shaken, and cried.  I cried out of fear, yes, but mostly I cried because it makes me so incredibly sad to see my son go through all these physical hurts. 

But as I sat there, God softly spoke into my hurting heart…and He reminded me of those words that He had given me two hours earlier.  God gave me words I needed before I knew just how much I would soon need them.

Yes, my heart is so tender when I think of Aaron and all the years of his physical suffering.  But God really does take that mama hurt I feel and uses it to show me how to toughly trust in Him.

I have to be tough for Aaron, and really, I can only do that because of my trust in God.  Sometimes that sort of trust doesn’t come naturally.  It would be more natural for me to be mad at God for letting this happen to Aaron, over and over and over. 

But I know my heavenly Father, and I know that He has reasons far beyond what I will ever know on this earth for why He lets Aaron suffer. 

It’s a tough place for me to be and it calls for a tough trust.  If my life was only smooth and simple, no tough trust would be needed.  But then I would not know God as deeply.  I would not experience His peace and comfort.  My faith would stay simple and small. 

A verse also came to my mind as I sat there thinking of all these matters.  I want to leave that verse with you…that simple but profound word from God. 

There it is again…trust.  Even when it’s tough.

ESPECIALLY when it’s tough.

Messy Grace

Last Friday when I went into Aaron’s room to wake him up and get him going for the day, I knew that something was off.  Sure enough, Aaron’s bed was soaked.  He had a seizure the day before, but I hadn’t heard one that previous night, so maybe he just drank too much water before bed.  Thoughts of that continuing issue with the amount of water he drinks made me a little irritated.

So did the fact that because of so many other things going on…and now tons of laundry to do…I had to cancel lunch plans with a friend I hadn’t seen in forever.  This was our second time to cancel.  GRRRR!

But I’ve learned to look at the positives at times like that.  I have a washer and dryer, and they work.  I have the time and freedom to change my day around.  And now Aaron’s bedding would be totally clean and fresh.  Every single bit of it…from the mattress pad up!  Oh, and I am ALWAYS very thankful for a super heavy duty and trustworthy waterproof mattress pad!  Am I ever!

The rest of our day went as planned.  I picked Aaron up from his day group, we went to Wal-Mart, got subs for supper, watched a qualifying run of NHRA racing, and had a nice time with all of it.

Later, not long before I was going to get Aaron from his room so we could watch a Walton’s episode, I heard a thump.  I was sure it was from his room.  I heard him walking so I knew it wasn’t him.  Soon he was in the family room, looking at me with some hesitation on his face.

“Mom?” he asked in a measured tone.  “Can you come to my room?  I need to show you something.”

I was comfortable on the couch.  It was nearing 8:30. I was winding down physically and mentally.  I was in no mood to go to his room and probably look at something on his computer that he just HAD to show me.

“Aaron, I don’t want to go up to your room right now.  Let’s just watch The Waltons,” I countered.

“No, Mom!” he insisted, “I need you to come up to my room now!”

Then I remembered the thump.

“Aaron,” I began with more calm than I felt.  “Did you break something?”

“Yes!!” he answered.  “It was my lava lamp!”

Now, you must understand that this was not just any lava lamp.  This was a GLITTER lava lamp. 

I was such a good mom at that moment.

“OH AARON!!!  YOU DIDN’T!!!!” I not-so-calmly replied.

I did not want to walk up those stairs.

I did not want to walk in his room.

I did not want to see what I soon saw.

There, on the floor beside his bed and under his bed was thick blue oozing goo. 

And not just any goo.

It was thick blue oozing GLITTERY goo!!

Let me tell you, I groaned and I huffed and I puffed and I complained the whole entire time I was cleaning up that awful mess. 

Poor Aaron wanted to help but there wasn’t much he could do.  I knew that there wasn’t room for both me and Gary to be in there working so I didn’t even tell him what was going on.  I just continued to bluster and blow as I sopped up the thick mess with a couple of old beach towels.  I even told Aaron to just throw them away.  I didn’t want eternal glitter in my washing machine!!

My washing machine, which had been running a good part of the day already as I cleaned up Aaron’s OTHER big mess!!

Oh, how my mind was working!  Poor me!!  My life is all about overseeing and cleaning up one thing after another!  Boo-hoo-hoo!! 

But I looked up from where I was kneeling on the floor trying to shine a flashlight under the bed so I could see sparkly goopy glitter hiding out…and there was Aaron sitting cross legged on the bed, telling me over and over that he was sorry.

Wanting more than anything to DO anything to help me.

My heart kinda broke for him and I felt such empathy for him.

That’s grace…not the kind that I can create, but the kind that God puts in my heart for this special son who can surely push my buttons but pull my heart strings at the same time. 

Later, after all the clean up and after the Walton’s was watched…as we got Aaron’s bedtime routine completed…a storm rolled in.  If there is one thing that Aaron absolutely loves, it’s a storm.

“Mom!!  Do you think I should keep my blinds open?”

I told him yes and to enjoy the lightning.  I was going to bed, finally, and that is all I wanted to do. 

But that’s not all that Aaron wanted me to do.

“MOM!  Come look at the lightning!  It’s BRIGHT!!”

Soooo, I stifled my huge sigh and walked once more into the room that twice already that day held so much frustration for me.

I stood at Aaron’s windows for a minute and soon there it was…FLASH!!  Bright lightning, followed by Aaron exclaiming, “Did you see that, Mom??!!”

I sat on the end of Aaron’s bed and immediately he threw back his covers.  In another flash, he was right beside me, and there we sat watching the impressive light show, brought to us by God.

And I was ever so thankful for God’s grace in that moment.  Grace from Him to me and Aaron in the form of such bright beauty out that window.

Grace to have my tired mind and body refreshed as I sat there enjoying all the sights and sounds of a good Kansas thunderstorm.

Grace to forget the messy day and to focus on happy Aaron.

Messy grace.

God extends that kind of grace to me every single day.

How can I not also extend it to Aaron in the midst of dirty bedding and glittery lava lamp mess?

Thank you for Your grace in all my messy places, God. 

And thank You for giving me the grace to show Your grace to Aaron.

However, I do not believe I will be buying another glitter lava lamp. 😁😁