Rising to the Occasion

Written three years ago, but not blogged…until today.  🙂

 

I had thumb surgery last week. It’s certainly not major surgery and I’m getting along very well. However, I’m wearing a bulky splint and I’m under strict instructions from the doctor about what I can and cannot do. I’m realizing how much I use my thumb in ways that I never even thought about. I can’t pick up small items very well with that hand; I can’t shuffle our Skip-Bo cards; can’t easily hold a Ziploc bag in order to open it with my good hand; can’t tie shoes; can’t keep from hitting the spacebar with that bulky thumb all wrapped up 🙂 – just to name a few.

 

Gary, as he has been so often in the past, is a wonderful help to me. For instance, just this morning he made sure to get ready for work a little early so that he had time to tape a plastic bag to my arm so that I could shower and still keep the splint dry. Gary rose to the occasion, as he always does for me.

 

Today I picked up some dog food for our big Jackson. The bag of food weighs over 27 pounds, far over the coffee cup weight limit I’m allowed to carry with that hand. Stacey, our vet’s wife and a dear friend, carried the bag of dog food to my van. Stacey rose to the occasion for me.

 

This morning I was reading Exodus 15, the deliverance song the Israelites sang after crossing the Red Sea on dry ground. The song begins with these words:

 

“I will sing to the Lord, for He is highly exalted. The horse and its rider He has hurled into the sea.”

 

The words “highly exalted” carry this meaning – that God rose to the occasion. I love that!!

 

I can point to so many times that God has risen to the occasion for me as I’ve faced some hard times, frustrating times (even today!), fearful times, and uncertain times. I know that many of you, my family and friends, are right now staring at very difficult and sometimes seemingly impossible situations. I’m praying for many of you!

 

So, I just wanted to share this little nugget of blessing with you today. God really will rise to the occasions in your life. He parted the sea for Israel. That mighty God of Israel is the same God we know today. His power hasn’t changed a bit. His desire for us is that we trust His timing to know just how to rise to the occasions that we face. Whether He dramatically hurls our problems into the sea, makes a way through them, or allows us to endure them as He gives us His peace and grace – we don’t know.

 

But we can know that He will rise to the occasion in the way that’s best for each of us. Then we can also sing with Israel: “This is my God, and I will praise Him!”

 

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Lens #1

Last week, I once again took Aaron to his yearly eye exam.  Doctor visits are always an adventure with Aaron.  Waiting for the doctor to come into the exam room is also a test of my patience.   Aaron stretches and wants to lay down.

 

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Or he eyes the tempting equipment and tools that the doctor uses, trying to pick them up and test them out before I tell him to stop.

 

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As I sat with Aaron last week and watched him during the exam, I was reminded of the following post from a couple years ago.  This was such a funny moment for me!   Here is what I wrote:

 

I took Aaron to his yearly eye exam today. God bless Aaron’s eye doctor. Next week I’ll be saying, “God bless Aaron’s dental hygienist,” but today all blessings go his eye doctor and to the staff. Oh, Aaron isn’t mean. He just has a very difficult time understanding what the doctor needs from him…..how to express what he is seeing or not seeing clearly…..opening his eyes wide…..not leaning back from every instrument that comes toward his eyes…..things like that. There was one very funny interchange, though, during the exam. You know how the doctor wants you to tell which lens helps you to see the letters on the wall the clearest.

 

Dr. Nelson: Aaron, is number one better? Or number two?

 

Aaron: Number one.

 

Dr. Nelson: OK. Now which is better? Number three, or number four?

 

Aaron: Number one.

 

Dr. Nelson: Let’s try again. Number three, or number four?

 

Aaron: The first one.

 

Dr. Nelson: You mean number three….here…..or number four…..here.

 

Aaron: Number one.

 

Dr. Nelson: Let’s try these. Number five, or number six.

 

Aaron: The first one.

 

Dr. Nelson: Let’s try number seven…..

 

Aaron: Number one.

 

Dr. Nelson: OK, let’s not do numbers anymore. Is this one better, or this one better?

 

Aaron: Number one.

 

HaHaHaHa!!!!!! How I wanted to belly laugh!! I do believe that number one was the winner, don’t you??!! 😎😵🤣

 

However accurate Lens #1 was, Aaron was sure that this was the lens he liked the best.  He didn’t waver one bit from that determination.

I’ve been thinking about this as I look at my own life, and the lives of many that I know and love.

Through what lens am I looking at my life?

I just ran upstairs to be with Aaron as he had another seizure today.  I’m thankful he was lying down, so there was no falling and no injuries.  But his seizures, especially after all these years, are serious and scary.  As we get older, and as Aaron gets older, Gary and I do wonder about our future and his future.

In the past days, I have communicated with family and friends who are enduring all kinds of trials.  Two with aggressive and serious forms of cancer, out of the blue.  Tragic family issues.  Separation.  Divorce.  Friends who just bought a house and now he lost his job, literally overnight with no warning.  Lots of chronic health issues with no end in sight.

So much suffering! And the way that I view suffering depends upon which lens I choose to look through.

I know the lens I NEED to be using.  I need to focus on the God that I know and on His word that He has given me.  I may be rattled and shaken, but my focus will be sharp if I’m looking to God.  My faith is in and on Him when I look to Him…not disrupted by all the suffering around me that I or others are enduring.

It’s like Aaron’s eye exam.  I need to realize that lens #2 or lens #3 are not right for me.

Fear is not a lens God wants me to use when viewing my circumstances, or the circumstances of those I love.  Neither is anger…or worry…or a host of other responses that are all too common for me.

I know that when I have my eyes off God, life becomes blurry.  I lose focus.  I lose peace.  I lose hope.

I need to go back to lens #1, for sure!!!

The best way for me to keep my focus is to go to my Bible…to read God’s promises and let His words soak into my mind and my heart.

My parent’s favorite Bible passage is perfect for me to use in keeping my focus:

 

God is our refuge and strength, a very present help in trouble.  Therefore

we will not fear, though the earth should change and though the mountains

slip into the heart of the sea; though its waters roar and foam, though the

mountains quake at its swelling pride.  (Psalm 46:1-3)

 

God told us we would have suffering and trouble on this earth. But He also has promised to be our very present help, our strength and our refuge, no matter what carnage is around us.  He is a loving Father who takes care of His children.

This is the focus I need.  God is the focus I need.

God is my lens #1.

I love the old hymn, The Solid Rock.  Look at verses 2 and 3:

 

When darkness veils His lovely face,

         I rest on His unchanging grace;

         In every high and stormy gale,

         My anchor holds within the veil.

 

         His oath, His covenant, His blood,

         Support me in the whelming flood;

         When all around my soul gives way,

         He then is all my hope and stay.

 

         On Christ the solid rock I stand;

         All other ground is sinking sand,

         All other ground is sinking sand.

 

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A Girlfriend

Tears stung my eyes one night last week as I listened to Aaron suddenly tell me about how much he loved his friend, N.  Oh, he’s talked about N for a long time.  Sometimes she’s his good friend…sometimes she’s his antagonist.  She is a fellow client at Paradigm, Aaron’s day program, and they have known each other for years.

Aaron’s developmental delays due to his autism and seizures have prohibited him from having some of the normal joys of life that our other two children have enjoyed.  He’s not able to drive.  Holding down a job would be very difficult for him.  Responsibilities that they have assumed as they have become independent have not been possible for Aaron.

Aaron has always had a pretty simple view of life.  He’s never seemed to really mind not moving on in life as Andrea and Andrew have.  It’s actually a blessing that he doesn’t have those desires.  He’s very happy to live as he does.

Yet when Andrea and Kyle started dating, we saw another side of Aaron beginning to show.  It was a combination of jealousy over Kyle’s relationship with Andrea, whom he dearly loves, and resentment.  But was there resentment over Kyle taking Andrea away?  Or resentment over Andrea and Kyle having something that he did not have?

Two years ago, Aaron went with Gary and me to see Andrea in Houston.  This trip had the different dynamic of Kyle now being in the family picture.  He and Andrea were not engaged yet, but we all knew that they would be someday.

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On one hot Texas afternoon, Kyle was showing us around Galveston.  We walked in the historic district, going into quaint shops and enjoying the sights before heading to dinner and the beach.

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Aaron, however, was in a very foul mood.  And when Aaron is in a foul mood, no one is in a good mood.

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Aaron didn’t want ice cream.  Aaron didn’t want candy.

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Aaron didn’t want to look at old architecture.

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Aaron didn’t want to have his picture taken.

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It was miserable.  WE were miserable!  He kept saying, “I just want to go out to eat and go to that lake!”  A really big lake, by the way.

In the parking garage, as we walked to our car, Aaron finally had enough.  With pent-up anger, as I tried to walk with him and cheer him up, he blurted out:  “Well, Andrea and Kyle are going to get married!!  Why can’t I get married??!!”

There it was…a glimpse into Aaron’s feelings and into his heart.  And there I was, with no words to console him.  What could I even have said to make him feel better?

In the following months, Aaron brought up the girlfriend and marriage subject more and more often.  He was putting two and two together, and there were some uncomfortable moments.

“Mom,” he said one day, “I want a girlfriend.”

“Oh, Aaron,” I answered.  “I understand that, but you don’t really need a girlfriend.  Just be happy to be friends.”

“But you were a girlfriend to Dad, right?” he asked.

Oh dear!  Busted!!

“Well, yes, I was,” I uncomfortably answered.

“What was it like?” he continued.

“Ummmm,” I struggled, “it was special.”

“I want to be special,” he said.

My heart!!  What does a parent do with this side of their special-needs child?!  No doctor or medicine or therapy can fill the normal void of my son wanting to be loved in the way that I had just described as being special!

As Andrea and Kyle became engaged and we planned their wedding, Aaron was resentful.  He didn’t even try to hide it.  And on the day that we told him about their engagement, he went outside and did his thing in the mulch, alone, as he crumbled mulch and I watched him out the window…my heart crumbling, as well.

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Gary and I have tried to be honest with him as he’s asked more than once about why he can’t get married.  I mean, could he marry one day?  But then we’re reminded of the very answers we give to Aaron when he brings up the subject.

We tell him he needs a job…that he would need to live somewhere else with his wife…be able to pay his bills…that there would be her medical issues and his medical issues…

And we feel mean to tell him these things.

Yet that IS the reality of Aaron’s life.  Reality can’t be sugar coated in an effort to make Aaron feel better.

Or in an effort to make us feel better, as well.  Letting Aaron marry would bring to our doorstep a host of issues that we do not even want to think about.

On that night last week, after Aaron and I had watched a rather emotional episode of the series we’re watching, instead of hurrying out of his chair he instead started talking.

“Mom,” he began.  “I love N, and she says she loves me.  When I come in Paradigm, she says hi to me.  She wants me to sit beside her, and she holds my hand.  That makes me happy.  It makes me feel good.”

The sincerity in his voice and his sudden cascade of words stopped me from moving off the couch.  His rushing words and his emotion also stopped me from brushing off what he was saying.  Instead, I sat there and looked at him as he talked.  He continued.

“Ever since first grade,” he said, “I wanted a girlfriend.  No one ever wanted to be my girlfriend until N.”

It was hard not to smile, and also hard not to cry.  In fact, my eyes did fill with tears, which Aaron really dislikes.

“Are you crying?!” he asked.  But when I told him I was, a little, he didn’t even get upset.  He just kept talking about N…about how he wanted her to be his girlfriend…and how no one else wanted to be her friend.

His relationship with N is complicated.  She is complicated and Aaron is complicated, and there are many issues.  N uses Aaron, trying to take his money and his food and all his time.  She gets angry, and sometimes makes Aaron cry.  Yet Aaron defends her most of the time, particularly when she talks him into giving her his money.

Aaron reminded me of the day that I had recently called Barb about N taking some of his money.  Aaron gets very angry when I do that.  He said the most amazing thing that night.

“Mom, when you called Barb about N taking my money, you messed up the boyfriend/girlfriend option!”

Where on earth did he come up with that?!  And how on earth did I not break down laughing?!

A few weeks ago, as I drove Aaron to Paradigm, this is what he said:

“Mom, N asked me to marry her.  On accident, I put it too far and I said yes!”

Again, I was laughing inside but knew that on the outside Aaron needed my understanding.  Thankfully, his “putting it too far” did not end up in a commitment of any kind.  But sometimes, in his heart, I know he wants to have this taste of a normal life even though he has no idea at all about what it would mean.

But Gary and I know what it would mean, and we know it can’t happen.  It makes me a little sadder for Aaron when he does talk about it.  Yet I think of the reality of what would happen if we said yes to this grand idea, and I’m jerked back to THAT reality and know that it can’t be a part of Aaron’s life.

God continues to give us grace and to soothe my heart when I hurt for Aaron.  And I’m very thankful that He gives us the strength to not “put it too far,” and say yes!!

I’m thankful, too, that God isn’t too far from us in any of this.  He knows and understands,  and His promise to be near the brokenhearted is always true!

Work, Work,Work!

I believe every family has sayings that have been passed down over the years – sayings made by family members and then repeated again and again.  Often these comments are funny, laughed at every time they are uttered as memories of the person and the situation surface once more.

One of our family favorites is a comment made by Aaron years ago when he was very frustrated by having to pitch in and do some work around the house.

“Work, work, work!!”  he exclaimed.  “All I do is WORK!!”

No one understands the humor of his statement like we do.  That’s because we all knew…and know…Aaron.  He worked the least but complained the most.  Now when one of us repeats that phrase with great emphasis, we all just laugh and shake our heads…just like we did when Aaron first said it.

I do believe we now have a new phrase, thanks once again to Aaron.  Another one of many he has left us over the years, trust me.

Two weeks ago, Gary and I were packing up our vehicle for our annual trip to Houston.  We travel there every April to see Andrea and Kyle, and with the added bonus of spending time with Andrew, who is there for an NHRA race.

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This year we were taking lots of Andrea’s “stuff.”  That’s because she and Kyle are married now, and have a house, so her “stuff” is hers once again.

We had many loads to carry out and put in our vehicle.  Aaron was in the middle of all of it, talking and hovering, hoping that none of this activity was going to eat into our normal evening routine of watching a DVD or show.  He seems to think that his presence will continually remind me that he is my priority.

So, we put him to work.  He was willing to do so, thankfully, and really was a huge help.  He helped lift the heavy electric piano into the van, as well as carrying box after box outside for us.  Eventually, though, as we were nearing the end, Aaron’s impatience started to surface.  He knew that I still had other things to do before we could watch a show.  Bedtime was looming.  His routine was already a mess, and his nerves were showing.  He was excited at our leaving, with thoughts of all the restaurant meals awaiting him and his caregiver during the week, but also anxious at our being gone and his normal life being a little unhinged.

Aaron never offers to sit and talk about his feelings.  Goodness, no!  He doesn’t even understand what’s going on in his head and heart.  But he does SHOW his feelings by usually hurting ours.  Or by being confrontational, rude, stubborn…you get the picture.

His happiness at helping had turned instead to blame.  He blamed his anger on us for making him work.  He and I worked through all that for the most part, watching our show as he calmed somewhat, but then as I tucked him into bed later, he erupted again.

“Mom!!” he said.  “You made me do servant work!!  I don’t like SERVANT work!!”

It was so hard not to laugh!  But believe me, all of us…minus Aaron…laughed a lot about what he said as we spent a few fun days together.

Servant work!  Indeed!

In the week since we’ve been home, I’ve seen the other side of Aaron…the side that enjoys helping us.  He wanted to help me cook supper one night, and then to send a picture to Andrea – who told me that it looked I was making Aaron do servant work again.  😊

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He also wanted to share his Sonic mint with Gary that evening, so he put it on Gary’s supper plate.

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This past Saturday, he asked if he could help me with some pruning.

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He often takes our recycling to the container; brings down his laundry; sets the table; and other chores around the house.

Aaron is usually happy to help when things are going the way he wants.  But when his version of normal is anything but, then helping becomes “servant work.”  Not fun…not to be expected…not to be done!

I look at myself and I see this attitude of Aaron’s in me more than I like to admit, especially when it comes to caring for him.  I’ll be honest.  Taking care of a special needs child, even your OWN special needs child, is not all halo moments where we feel or act like angels.

Oh, my compassion is through the roof many times.  Like when I sat in the ER with Aaron for five hours four days before our Houston trip, waiting for him to be admitted to the hospital for seizures the day before and very low sodium.  Thankfully, we were sent home when his sodium level increased.

Home, where Aaron had a very long and a very scary seizure that evening.

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His seizures, injuries, staples, stitches, missed fun days, so many meds, the look on his face as he held his Subway sandwich on our drive home…so many times my heart just breaks for him.

But then he has those behaviors, rigid routines, expectations of me, nonstop talking at times, anger…

Seizures that keep me home, having to change all my plans…and his.  Extra laundry, sadness, worries for now and for the future…

A life unlike most of our peers for me and for Gary.  Not able to up and go, to travel at will, to plan for a fun life of retirement trips.

Special needs parents weren’t given our children because WE’RE so special and God knew we could do this.  God wants us to see that HE is the special One that we need, and that in no way could we live this life without Him and His grace and His strength.  Goodness knows I have none of my own.

Many times, and many days, this life that God has given me can only seem like “servant work.”

But really, there are two kinds of servant work, and it’s my attitude that determines which I will experience each day…each moment.

When I think of how God wants me to serve in every situation, and when I do this servant work with that in mind, my attitude is one of inner joy and peace – even if outwardly things are crazy, and I am frustrated.  My goal then isn’t about ME.  It’s about Aaron, and to serve him in a way that pleases God.

But when I get in my own way and take my eyes off God…and like Aaron, things aren’t going the way I want…then I sometimes get angry and frustrated.  When I do this, all too often, then I’m doing “servant work” in the way Aaron meant.  Unpleasant, yucky, unhappy work that makes me bitter.

So, to all of us…and ESPECIALLY to my special needs parent friends…know that God understands.  Just talk to Him when you’re exhausted, when you blew it, when you yelled at the child you love so much, when you’re envious of other’s lives, when you’re out of money and patience and even hope – just talk to God, lean on Him, and then know that each day is a new day.

A new day to do servant work, the way God intended.  After all, we have the best example in Christ.

“Have this mind in you, which was in Christ Jesus, who, though he was in the form of God, did not count equality with God a thing to be grasped, but made Himself nothing, taking the form of a SERVANT, being born in the likeness of men.”  (Philippians 2:5-7)

Servant work is God’s work, really.  And He’ll give us what we need to do it the right way, every day.

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One Thing

I’m sitting here looking at my blank computer screen, wondering how on earth to write this post.  I write better when I can be totally up-front and honest about life.  But sometimes I can’t be that way because some matters are private, involving issues and people that prevent open sharing.

Was that catchy enough?  Do I have your attention now?  HaHa!

I really wasn’t trying to reel you in with my first few sentences.  I am, like I said, just being honest.

Recently, Gary and I had a “thing” happen.  It’s easy to say the typical phrases that we often here, such as what I just said.  “Things happen.”  Or here’s another one – “Life happens.”

Yet as a follower of Christ, I know better.  I don’t get upset when others, or when I, make those statements.

“You know, things just happen,” I have often said.

But again, I know better.  I know that God is the One Who is in charge of my life and who allows every single “thing” in my life to happen.  In reality, my “things” don’t just happen…they are permitted or ordained by God.  I am His child and He is in charge of all aspects of my life.

Most often, when we say that “things” happen, we’re not referring to happy “things.”  Usually, we are talking about stressful “things.”

Gary and I have had some recent stress.  Don’t we all?  We had to make the difficult decision to put our sweet Great Dane, Jackson, to sleep.  Not long after that, Aaron had a drop seizure on our stairs and ended up with eight staples in his head.  And then this “thing” intruded into our lives.  It’s not a happening that occurred, and then is over and done.  It’s more like a dark cloud of long-term wrong that will hover over us…well, forever, really.

All these “things”…all this stuff, plus many more daily stresses…can just be overwhelming and exhausting.  But two other “things” have taken place as well…in my heart, which is the best place for God to work HIS things.

One “thing” is that my mother’s favorite verse has been rolling around in my head for days now.  It’s Psalm 46:10: “Be still, and know that I am God.”

I love, though, the meaning of “be still.”  This is how I have been saying this verse recently: “Quit striving, and know that I am God.”

I can’t make “things” not happen.  I can’t always change situations.  And even if I try, the doors often remain closed.  The damage is done.

I have a mental image of being tied up with ropes.  Those ropes are the “things” that have or are happening in my life.  I twist and turn and pull and flex against those awful ropes, trying to be free.  But God wants me to stop that!  He wants me to relax and to simply trust Him…to rest, and to know that He is God.  And as God, He will handle all my “things.”

All this sounds so good, doesn’t it?  So spiritual and so right.  But how on earth…really, how on this old sinful stressful earth…do I quit striving?

God gave me a huge part of that answer over the past few days.  It’s found in the first few verses of Psalm 27.

David talks about his “things.”  He says that evildoers want to devour his flesh.  He is surrounded by enemies, adversaries, and whole armies…literally…who want to destroy him.  He was living in caves as he tried to survive.  His treatment by King Saul was totally unjust and evil.

It’s awful to be hated.  It’s awful to be the recipient of unjust treatment.  It’s awful to be on the run, either mentally or physically…running from the pain and the wrong and the hurt.

So, in verse 4, David says, “One thing I have asked from the Lord, that I shall seek…”

Let me stop to say that I can tell you what my one thing usually is when hard times come, especially injustice.  My one thing is to think that if I could only talk to this person or to these people, I’d tell them a thing or two!  Or on a nicer slant, my one thing may be to try to have a pleasant, open talk with them. Surely, they will listen!  Just give me one chance, Lord, to handle my situation…whatever it is…by doing that one thing that will make ME feel better.

But what was David’s one thing?  He asked God to let him behold His beauty in the tabernacle, to meditate and to dwell in the temple.

In other words, David’s one thing was to worship God.

And there is the answer to my question about how to quit striving against my “things.”

Worship.

David’s one thing that he asked of God when he was going through all of his awful “things” was the opportunity to once again worship God in the tabernacle.

“There is only one place where your heart can be healed, restored, satisfied, and protected.  It won’t be healed by winning human wars.  It won’t be satisfied in human acceptance.  It won’t be restored when you have meted out vengeance.  It will only be filled, satisfied, and at rest when it is filled with the beauty of the Lord.”  (Paul Tripp)

When I focus on God, I am not focusing on my “things.”  I am instead aware of God’s greatness in the middle of my “things.”  His power is what upholds me.  His plan, however vague and unknown it may be to me, is one which I can accept because in God’s beauty I see His love for me.  I experience His peace and His grace when my eyes are on Him, and not on my “things.”

We all have those hard “things.”  Some of you are enduring much more difficult “things” than mine.  May we all learn to worship God even when we are surrounded by our pain and fears and sadness.

Then to rest…quit striving…and let God be God in our lives.

“Quit striving, and KNOW that I am God!”

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Salads and Seizures

Aaron walked into the kitchen on Saturday morning a little over two weeks ago –  March 2nd, to be precise – and saw that I was boiling some eggs.  Ever hopeful that whatever I am cooking will be something he likes and something I am making for him, he stopped and watched for a few seconds.

“Mom, what are you making?” he asked.

I told him that I was making his favorite salad.  He stared blankly, as if he was utterly clueless about this favorite salad.

“You know, Aaron,” I continued.  “The salad you love so much.”

“The salad with Ranch?” he questioned.

“No,” I told him.  “You know, the salad with the eggs on top.”

Still blank.

“And the cheese and the bacon,” I explained.

“Oh yeah!” he finally said.

But he still gave no name to this mystery salad which really is his favorite salad!  Aaron has such a hard time with names of people and pets and, amazingly enough, food!

“You call it Egg Salad, Aaron,” I told him.  “But the real name is Seven Layer Salad.”

I knew he wouldn’t remember the name, but he knew it for now.  It was fun to watch his happy reaction to the thought of this salad for supper…whatever it’s called!

We were looking forward to our day and our weekend.  The day before, on Friday, Aaron had two seizures, and so he wasn’t able to go to his day group.  He missed movie day, which always makes me sad.  Thankfully, though, Aaron loves staying home and showed no regret at all.

On Friday evening, we all went to Wal-Mart to get Aaron’s weekend treats as well as some fun food for the weekend.  We were expecting a strong winter storm to hit on Saturday evening and into Sunday, so there was excitement mixed in with our fun.  We are snow lovers!  I had especially waited until Gary was home from work so he could go with us, just in case Aaron had a seizure in Wal-Mart.  We have learned that when Aaron has one or two seizures, he might have a drop seizure.  These seizures, drop seizures, are so dangerous and unpredictable.  This past year has seen Aaron have some serious injuries from falling.  Thankfully, our shopping trip was uneventful and was fun for all of us, Aaron especially.

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There were no more seizures during that night.  Aaron was happy as could be to think of his free day ahead…the anticipated snow…making chocolate chip cookies with me…steak for supper…AND his special salad!!  Whatever it’s called!  😊

Later that morning, before noon, Aaron was downstairs in Gary’s study.  Aaron was talking up a storm of his own with Gary, as usual.  I was in the kitchen, out of sight of the stairs.  Suddenly I heard a terrible crash…and then the noise that I definitely recognized.  A seizure!!

Gary was beside Aaron in an instant.  As I started down the stairs, Gary told me to get towels.  I was panicked and in tears as I ran for towels, hurrying them down to Gary.  There was blood all over Gary’s hands.  I knew this was serious.

As he started up the stairs, Aaron had fallen backward into a file cabinet, hitting the bottom metal handle with his head and actually bending it.  Aaron is usually not conscious for a period of time after a seizure, sleeping soundly, but not on this day.  He woke up, maybe because we were holding him and applying pressure to the gash on his head.  Or perhaps he awakened because of the pain.  He was combative and scared, something we’ve never seen.  He was fighting us, trying to get away and go up the stairs as we held him tightly.

Finally, Aaron calmed down.  He wanted to know why Gary’s hands were bloody, which of course was scary.  We explained what happened and told him we would need to take him to the ER.  Soon we were in the van, me sitting in the back with Aaron while Gary drove.   Aaron was coherent then.  The bleeding had stopped, but not his pain, of course.  Yet he was remarkably calm and understanding, a trait he often displays in these frightening times.  A gift from God, I’m sure.

I thought of other gifts from God as Gary drove.  We talked about how thankful we were that the sun was shining and there was no snow yet.  I was VERY thankful that it was a Saturday and Gary was home.  And we were thankful still that there is a good hospital and emergency room out here in the country not far from our house.

We continued to be grateful that Aaron was seen immediately and that the CAT Scan showed no damage to his head or neck.  Aaron was so compliant during the scan, even though it hurt his head and the bleeding began again, worse than ever.

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But oh, how my heart hurt for our son!  I couldn’t let him know that.  Gary and I stayed strong for Aaron and for each other.  I really wanted to curl up in a ball and cry, but God gave so much grace to be fully there for Aaron.

And there was Aaron, fully talking up a storm about nuclear bombs, of all things!  Talk, talk, talk he did in his typical Aaron fashion.  He knows a captive audience when he sees one, let me tell you!!

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God gave special strength to Aaron, especially, as he endured 8 staples being put in his head.  I knelt by his side, stroking his arm and face and talking to him during the ordeal.  With each staple, he would flinch…eyes closed…and mutter a soft “ow.”  I felt like my heart was being pierced each time.

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I tell you, our children with medical issues…and I know a lot!…are true heroes.  They endure more pain IN their lives, and disruption OF their lives, than I can fathom.  And yet they just keep on going.  One of our sweetest blessings is that Aaron doesn’t feel sorry for himself or complain about his lot.  He LOVES to talk about what happens to anyone who will listen, trust me, and even to perfect strangers…but he doesn’t act like he resents this life that he lives.

However, once in a while, he does give us a glimpse into his heart and his thoughts.  He did just that on Sunday as we made his cookies, lots of snow outside our windows, and his head still bandaged.

“Mom?” he began.  “Saturday, I thought, would have been a good day, but it wasn’t.”

I really wanted to wrap him in a hug…which he would have promptly pulled away from…and empathize with him about what a bad day it certainly was.  But I knew that I needed to point him to a principle that God points ME to, over and over.

Thankfulness.

“I know it was a hard day, Aaron, but it ended good,” I reminded him.  “What did you have for supper?”

“We had steak!” he answered with enthusiasm.

“And what else?” I prompted him.

He thought a few seconds.  I was hopeful that he just MIGHT remember the name of the salad.

“Triple egg salad!!!” he exclaimed.

Triple Egg Salad??!!

How on earth did Seven Layer Salad become Triple Egg Salad?!

Whatever.

So, for that moment, we were both thankful for Triple Egg Salad!

And in my heart, for so many other blessings as well!

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You Are With Me

One of our worst fears was realized on Saturday, March 2.  I mean, far worse things could have happened, I know that.  Yet it was a very scary day for us.

Aaron started up our stairs from Gary’s study, but had only taken a couple stairs – best we could tell – when he was hit by a drop seizure and fell backward.  The crash was startling!  Gary was nearby and I was in the kitchen at the top of the stairs.  We both immediately knew what had happened as we heard Aaron seizing.

It was a blur of blood, and panic (from me!), and fear and realization that Aaron was hurt.  He had hit a file cabinet, actually bending the bottom metal handle…with his head!  We got him to our nearby ER as soon as he could walk, which happened fairly quickly.  Aaron was coherent and I had finally calmed down, and Gary was his always strong presence – thank God!!

I’ll write more about that day later, but after our pastor’s Sunday morning message yesterday, my mind was drawn back to one of the scenes from that day in the ER with Aaron.  Poor Aaron had a huge gash in the back of his head.  We knew he would need staples.  Thankfully, the CAT scan showed no other head or neck damage.  Finally, it was time for the staples to go in.

Aaron had never had staples up to this point.  Aaron is one tough young man.  He’s endured so much over the years with his seizures.  But these staples scared him, for reasons I’m sure all of us can totally understand.

He rolled over on his side, face away from me.  So, I went around his bed and I knelt beside him, my face close to his.  I held his hand, and I rubbed his arm and face.  The first staple penetrated his scalp.  Aaron flinched and closed his eyes.

He kept his eyes closed for the rest of the procedure, grimacing with each staple.  I so much wished that I could trade places with him!

“What more must he go through?” I thought.

“Ow,” he softly said a few times.  But Aaron was calm, strong, and so brave…despite the pain that I’m sure radiated through his head, not only from the staples but from the hard hit.

Later, as Aaron talked to various people and at various times about his experience, I noticed that he talked about me being beside him.  Even though his eyes were closed, and he couldn’t see me, he knew that I was there as I talked to him and patted him and assured him that everything would be fine.  It meant more to Aaron than I realized.

Pastor Bob’s message yesterday at church was on Psalm 23.  We all know this Psalm, including verse 4:

“Even though I walk through the valley of the shadow of death, I fear no evil, for You are with me…”

As we walk with God, through whatever valley He leads us, He is with us.

As I walk with God, through whatever valley He leads ME, He is with ME.

God is with me.

He is kneeling beside me…He is holding my hand…He is leading me…He is walking beside me.

Whatever my valley.  My sadness.  My fear.  My uncertainty.  My questions.  My anger.

You.  Are. With. Me.

Four simple yet profound words.

I can imagine God stroking my face as my eyes are clinched tight, trying to block out the pain of my situation.

I can see Him holding my hand as He leads me on an unwelcome path.

I can feel His arm around my shoulder as He leans into my world, urging me to lean into Him and His strength.

Even though I can’t physically see Him…even though I can’t actually feel the touch of His hand on mine…and even though I don’t understand at all what He is allowing in my life…this I do know.

You are with me.

And I am not alone.

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