Remind Me That I Love You

Mornings for Aaron are definitely the time of day that he struggles the most.  It can really be hard for him to get out of his warm bed and face the day.  Not every morning is difficult, but let’s just say that for Aaron the majority of mornings do not have a right side of the bed.  Both sides are wrong!

Aaron realizes this about himself.  Therefore, sometimes he will tell me to give him a morning reminder that will hopefully help him to be cheerful.  The reminders are about something that the day will hold…something that he is looking forward to and so will encourage him to get up happily. 

For instance, he loves going to Meals on Wheels on Thursday mornings but sometimes he knows on Wednesday night that he may be grouchy the next day.

“Mom,” he says, “tomorrow morning if I don’t want to get out of bed just say Buster.’’

Buster is the little dog at one of our homes that Aaron loves to see and to pet.  And Buster loves seeing Aaron. 

Or on Valentine’s Day, when we were going to pick up roses to take to his day group friends, he knew the night before that he might be irritated about getting up.

“Mom,” he told me, “if I start getting mad in the morning just say roses.”

I love Aaron’s plan of action.  I know he truly does want to be nice in the mornings.  Sometimes his plan works, and well, other times it doesn’t.

One recent evening we were watching a favorite show.  Aaron was all comfy and relaxed on the couch, legs covered in his ever-present blanket, and enjoying a yummy snack.  He was the picture of contentment.

Such was not the case hours earlier as we worked to get Aaron out of bed and on his way for the day.  That morning he was the picture of frustration and anger.

As we sat on the couch enjoying our program, Aaron was filled with happiness.  He finally looked over at me.

“I love you, Mom,” he said.

The moment was genuine and so sweet.

“I love you too, Aaron,” I replied. 

Then he seemed to remember our unhappy morning.

“Tell me I said that in the morning when you’re getting me up,” he added.

His words were a stop-me-in-my-tracks moment.

How many times in my life have I been filled with contentment as things are going well?  Then it’s easy to tell God that I love Him.  And I mean it when I say those words to Him. 

But sometimes the bottom falls out. 

Gary and I had been married for five years before Aaron was born.  That positive pregnancy test was SO huge to us!  How thankful we were!  How full of love for God and His sweet blessing in our lives!

Now here we are, 37 years later, in a place we never dreamed we would be with Aaron. 

Seizures.  Autism.  Behaviors. 

Can I still lift my eyes to God and tell Him that I love Him?

Those warm fuzzy ecstatic moments of my first pregnancy are long gone. 

In their place are many moments of worry, sadness, frustration, and bone-wearying exhaustion.

But here’s the thing.  I know God in a deeply personal way. 

And I know that often His ways in my life are filled with heartache and pain so that I will grow to be more like Jesus.

God hasn’t changed one little bit.

But He calls me to change, and His word tells me that this change toward likeness in Christ will involve the hard things. 

Sometimes I have to will myself to remember all the reasons I have told God that I love Him.

And those reasons cannot be based on my circumstances that are happy and fun.

The reasons I love God are based on WHO He is…His character and His attributes.

I cannot base my love for God on how comfortable I am.

So, like Aaron, there are times in my life when I need to look at God and ask Him to remind me that I said I love Him.

Through my tears, fears, anger, hurt…through all the questions I have about God’s reasons and logic in my life…I must not lose my love for God.

Oh God, tomorrow…when things aren’t going too well, and I feel upset…remind me that I said I love You. 

Remind me that You are the same yesterday, today, and forever.

And remind me of how very much You love me, too. 

Secret Things

If there is ever a time that it’s OK to keep secrets from each other, it’s now, at Christmas.  We buy gifts and then try to find the best hiding places around the house so that little…or big…snoops don’t find them.  We rush to grab that delivered box off the porch before our husband or child grabs it first.  It’s fun and exciting and perfectly allowed.

Then we must wrap the gift when prying eyes won’t see what it is.  I used to love stacking our children’s wrapped gifts in their individual piles and having them put their own gifts under the tree.  There was lots of shaking and guessing going on while they worked.  It was so much fun!  I knew the answers to their many questions, but I kept it to myself as I watched them wonder what was in each box. 

Last year, as Gary and I sat by our tree, Aaron joined us.  It wasn’t long before he was on his knees in front of the tree, taking out boxes to see which ones were for him.  He went through that ageless process of trying to guess the content of the gifts that bore his name.  And I went through the same ageless process of telling him that he must wait for the answer.

You know, God has secrets, too.  I just read about that fact this morning.  Deuteronomy 29:29 says, “The secret things belong to the Lord our God…”

There are things that God keeps to Himself, things about my life and about His doings in my life.  I don’t always understand why God orders my life in the ways that He does.  I don’t always know what’s in each box that ends up on the front porch of my life.  

And perhaps more importantly, I don’t often understand the “why” of some of the gifts that God gives.  In fact, there are things that I wouldn’t even classify as a gift in many ways.  A gift should be fun and wanted and needed, right?

I think of Aaron, of what a gift it was when after five years of marriage God allowed me to finally be pregnant.  Of the immense joy I felt as I held my little baby son 37 years ago, feeling like the most blessed woman in the history of the world.  Of watching him grow, smart as a whip and cute as a button.  Then the sudden huge seizure when he was in the first grade, the years of medicines and tests and doctors and still seizures.  The unexplained behaviors that manifested more and more as he got older, that set him apart from his siblings and his peers.  The diagnosis of autism, the challenges of his anger and his very particular way of conducting his life.  The forever care that he needs and the way that this impacts Gary and me now in our older years.  The questions about his future, and ours.

But on the hard days, in the sadness of seizures and the frustrations of autism, I have a choice to make about this gift that God has given me.  I can question it, I can resent it, I can let it make me bitter.

Or I can look beyond the gift into the heart of the Giver and know that He only has my good…and Aaron’s good…in His loving heart.  God has some secrets that only He knows about concerning Aaron and his life, and therefore mine.  I don’t need to know God’s reasons before I exercise trust in Him.  I just need to know Him.  Period.

When I grasp that concept…and so often I don’t…then I can experience some other gifts that God has given me. 

Peace.

Joy.

Contentment.

Those attitudes, those gifts, come and go with me. 

“What IS this, God?” I can imagine me asking Him as I shake the box.

“Go ahead and open it,” He responds.

“But I didn’t ask for this,” I tell Him as I see what’s inside.

“No,” he lovingly says.  “But I know that you need this very thing.”

“Why?!” I ask through my tears.

“Oh,” he answers, “that is a secret for only Me to know right now.  Someday I will let you in on the secret, but not today.”

“But…” I so often begin.

And God answers:

“Every good thing given and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shifting shadow.”  (James 1:17)

Like the old hymn writer said:

And we wonder why the test when we try to do our best, but we’ll understand it better by and by. 

By and by, when the morning comes,

When the saints of God are gathered home,

We’ll tell the story how we’ve overcome

For we’ll understand it better by and by.

My Times, Your Hand

One evening last week, I looked outside and saw a beautiful red glow on the horizon.  However, my view was hindered by trees.  Knowing there was more to this scene than I could see from my vantage point, I quietly snuck out of the house…so I could drive alone without Aaron…and headed west to see what I would find. 

It was hard to keep my eyes on the road as I drove past trees and power poles.  The sky was so beautiful that I wanted to only gaze on it.  Finally, a few miles away, I found the spot I sought.  Flat…open…unimpeded by trees or poles – there it was.  The perfect view.

Oh my!!  What a stunning sunset it was!

I’ve looked at this picture a lot and done some thinking about the path of life upon which God has placed me.  How much do I trust God’s decisions about me and my life?

I don’t know about you, but I tend to feel more trust in God during the harder and often unexpected situations of life…those times when I’m suddenly the recipient of bad news and I’m thrown into God’s arms. 

But it’s the daily disappointments…that drip, drip, drip of stress…that can really bog me down.  The dailiness of life’s burdens can hinder my view of God’s path and His purposes for me much as the trees hampered by full view of this gorgeous sunset.

Saturday morning, for instance, Aaron stood by Gary’s desk chair. 

“Dad?” he said, “my mouth is broken.”

I smiled from the other room at Aaron’s phrasing – and I know that Gary was secretly doing the same.

Aaron thought he had burned his mouth, but in looking at it we both knew that these were not burns.  He had a rash.  The next day, Mother’s Day, I took Aaron to Med Express to have it checked.  It was quite painful, and he was having trouble eating.

Gary offered to take Aaron, bless him, but I wanted to do it since I always take Aaron to his doctor visits.  So, here I was, on Mother’s Day…at the doctor with Aaron.  It was a bit of a downer, honestly…not the way that I envisioned my Mother’s Day. 

See what I mean?  A small example of a small thing that can play upon my heart to bring discouragement, self-pity, and then lead to multiple other thoughts of how this and this and this did not turn out the way I wanted…

And my path’s view of God’s goodness is lost in the jumble of negative thoughts and emotions.

God gave me what I needed this morning, as He always does!

In Luke 13:31, the Pharisees reminded Jesus that Herod wanted to kill Him.  Jesus responded to them that He would continue the journey that God had for Him, and that when the time was right then He would perish. 

In other words, Jesus was declaring the truth of Psalm 31:15.  My times are in Your hand!  Jesus was standing in the unfailing sovereignty of God.

When David in Psalm 31 speaks of times, “…he doesn’t mean merely his life-span but all the kaleidoscope of circumstances that meet him left and right.”  (Dale Davis)

Oh, those multi-colored burdens that pile on day after day!  The unresolved issues and concerns that grow larger on a special day like Mother’s Day can cloud my view of God’s path for me. 

Last night, very uncharacteristically, Aaron suddenly said, “Mom, I’m glad you cared for me and took me to the doctor.”

I was pretty much stopped in my tracks by that!  And so overwhelmed with thankfulness that our “downer” doctor visit prompted in Aaron such a response.

Oh God, may I too look at You and be thankful for your care of me in the rough spots of life.  May I look fully at the path you have me upon and see the beauty amid the stresses.  May I not miss the opportunity to give You thanks for being for me all that I need, and not just giving me all that I want.

For it is in my need that I most fully see Your beauty on the road of life.

A Setback…But God

Seizures have been a part of Aaron’s life…and ours…since he was in the first grade.  He had his first seizure at home on a Sunday afternoon, out of the blue and utterly terrifying.  God was so good to let me be standing right behind Aaron when it happened there in our military apartment in Germany.  I was able to catch him.  If not, he would have fallen onto the hard kitchen floor and received a serious hit to the back of his head.

His seizures have morphed over the years, as seizures do, seeming to eventually bypass all the medicines and treatments that can be provided.  The majority of his seizures occur in clusters during his sleep, most often at night.  These clusters carry their own dangers, one of which is SUDEP – Sudden Death by Epilepsy.  Those words from his epilepsy doctors over the years always send a chill down my spine.

Aaron has occasionally had drop seizures here and there.  A drop seizure happens when Aaron is fully awake.  They hit suddenly, with no warning to us.  Aaron will fall either forward or backward like a downed tree, not able to break his fall. 

A few years ago, he began having more and more of these drop seizures.  He sustained significant injuries.  Cuts, scrapes, bruising, stitches, a fractured tooth that had to be pulled, and very hard hits to his head. 

Finally, on March 9, 2019, Aaron had a drop seizure on our stairs.  He had walked up a couple steps, then fell backward, and hit his head on a metal file cabinet handle.  He ended up with 8 staples in his head.  It was awful!

When we got home from the emergency room and checked our mail, there was a letter from our insurance company approving Aaron for the new pharmaceutical CBD oil, Epidiolex.  We had experimented with over-the-counter oils from good sources but had no success.  His Epileptologist couldn’t provide any guidance for those OTC oils, legally.  As soon as the FDA approved Epidiolex, Dr. Lee put in our request for approval.  Now here it was, on the same day that Aaron had fallen…a visual and sad example of why we really wanted to try this new drug. 

Dr. Lee was able to oversee Epidiolex since it was FDA approved and obtained through a prescription.  Over the next few months, we adjusted Aaron’s dose and tweaked another medicine and waited to, hopefully, see positive results. 

And we did!  Aaron’s drop seizures totally stopped!  We were elated, and soon began to relax.  Our fear over those horrible and dangerous seizures slowly went away.

Until this past Thursday. 

Aaron and I delivered for Meals on Wheels in the morning.  We enjoyed lunch at a cute Mexican restaurant.  Then home, where Aaron took a nap…and had a seizure while he slept.  This is nothing uncommon.

Later, as I was getting supper on the table, Gary had just come into the kitchen.  He was standing right beside Aaron when suddenly Aaron lurched and went into a seizure.  But instead of Aaron falling into the table and a chair, and landing on the floor, Gary was able to catch him.  This was truly from God, that Gary was there beside Aaron instead of across the room.  We were so thankful!

We got Aaron safely on the floor.  Such disappointment filled us both! 

Almost two years since a drop seizure, and now this. 

We hurt so for Aaron.

And I felt that familiar fear.  It had come back. 

But I also felt something else.  I felt God’s peace pushing back on the fear.  I forced myself to focus on God…His love and His plan for Aaron, and for us.  That knowledge was the best push-back on the fear that threatened to fill me.

I also thought about Mary’s response to the angel when she learned of the very hard path that God had chosen for her…the path of unwed pregnancy in a time when she was no doubt shunned and gossiped about and disbelieved.

Mary said, “Behold, the bondslave of the Lord; may it be done to me according to your word.”  (Luke 1:38)

Total submission.

Like the writer of Hebrews said, “Now the God of peace…equip you in every good thing to do His will, working in us THAT WHICH IS PLEASING IN HIS SIGHT, through Jesus Christ, to Whom be the glory forever and ever, Amen.”  (Hebrews 13:20-21)

God has been working on me this past year about being willing to pray in submission…being willing to say, “God, whatever it takes…”

Just two days before this latest drop seizure, I had been reading about Mary and then this benediction in Hebrews. 

I don’t know what it is…what it will take…for me to please God. 

But I do know that I need to be willing to let God do in me…and in Aaron…that which is pleasing in HIS sight, even when it may not be pleasing in mine.

Even when it hurts, deeply.

“Submission is preferable to consolation, for consolation pleases us but submission pleases God.”  (Thomas Hog, 1692)

Who is it that I most want to please? 

It’s tough when my submission involves my child.  I love Aaron.  I love all our children. 

But a huge area of my close walk with God, which I truly desire, is to be able to submit “whatever it takes” concerning my children as well.

I humanly want the consolations of God…the closeness and assurance that I feel when He blesses me, and them, with wonderful things.

But true submission to God comes only when I am willing to relinquish all the warm fuzzies for the stark hardship that often comes when the deepest lessons…and blessings…are allowed to occur.

Allowed to occur because I am submitted to God. 

God won’t bully me into submission.  Submission happens when I open my hands and release my desires to Him, trusting Him to do what He knows is best.

Even drop seizures, if they do start again, are somehow being allowed by God in Aaron’s life and in ours. 

The sky just before Aaron’s seizure that evening was so beautiful.  I have only to look up and know that God is there for us. 

The heavens declare the glory of God…and I want to do the same, as well.

Barren

It happened to me again two nights ago.  I was sinking into sleep when I think, honestly, that I snorted and woke myself up.  😊

But then I couldn’t get back to sleep.  Instead, I lay there thinking of a picture I had seen just before bed.  Happy news for someone else created in me a longing for some things I don’t have. 

These are the moments that Satan loves.  He uses the tender areas of my heart’s desires to create in me an unsettled feeling.  The dark of the night is his perfect setting to speak words of doubt and unhappiness into my head. 

I’m a captive audience at that point.  The choice is mine. 

Whose voice will I listen to? 

So, I prayed and I thought of scripture.  I eventually went to sleep.  But I awoke the next morning feeling the weight of my burdens still lingering on my shoulders.

This morning I continued in a new study I just began yesterday in the book of Luke.  Right away we meet the priest, Zacharias, and his wife Elizabeth.  They were both righteous in the sight of God and walked in blameless obedience to God. 

They were old.

They were faithful to God.

And Elizabeth was barren.

In their culture, having children was everything. 

They had nothing, in a sense.

I think of Elizabeth beyond the stories we always hear and the ending that we know well.

I think of her hearing with sadness of the pregnancy of yet another friend.  Of probably faking joy when deep inside she is grieving over what she doesn’t have.  Of perhaps not feeling included in the years of family gatherings, celebrations, large happy holidays…

Of laying awake at night, bombarded with these realities, alone and with a broken heart.

And though we know the end of the story, that God gave her a child, she did not know that this blessing would be in her future.

“…there are those who are true servants of the Lord and yet some trial, some disappointment, that may be life-long, hangs over their lives.  ‘Righteous before God’ yet ‘they had no child’.  A very huge fact and a very deep sadness are pressed together.”   (Dale Ralph Davis)

Do you have a barren place?  An unfulfilled desire that eats away at you in the dark stillness of the night?

I do.

We all do.

What ARE we to do?

We are to live faithfully, in daily obedience to God.

We are to “Commit our way to the Lord…”  (Psalm 37:5)  That means to roll our burdens on the Lord’s strong shoulders.  Literally, that’s what it means.

“…God does His most impressive works in a context of impossibility.”  (Davis)

No BUTS…unless we say, “BUT God!!”

Will God give me what I want? 

I have no idea.

The real question should be:  Will I allow God to put HIS wants into my heart?

Will I want to walk with God so closely that His desires become my focus?

“God tends to begin His finest works in the face of human hopelessness and human weakness.”  (Davis)

Walking faithfully with God doesn’t mean we’ll never have our barren places.

But may we, in the barren, bear the fruit that only God can produce in us, to His glory.

Broken Lights

Aaron followed me into the dining room the other day.  I wasn’t paying attention to him behind me as I worked on our Christmas village. 

“Mom, look!” Aaron said.

I turned to see him staring intently at our little tree that is full of my Grandma Holly’s handmade ornaments, made with love so many years ago.  This was a pre-lit tree, but as so often happens, those bulbs had long since burned out.  I had replaced them with another strand of lights but left the unlit lights on the tree – hidden, so I thought, by the new lights. 

“This light bulb doesn’t work!” Aaron exclaimed.  And as his eyes roamed over the tree branches, he pointed out other broken small bulbs. 

“Here’s another one!” he said.  “And here…and here…and here,” he continued as he pointed to each one.

Aaron had gotten close enough to see the broken, while standing farther away, I could only see the soft lights of that new strand that worked.

I am studying through the book of Numbers.  Now that book doesn’t exactly stir excitement in one’s blood, but I have learned that in Bible books we usually consider to be dull there are amazing truths from God…golden nuggets that shine brightly!

The setting of Numbers is the wilderness of Sinai where Israel wandered for 40 years on their way to the promised land.  They should have gotten to the promised land much sooner than 40 years, but because of their sin God made them travel for 40 long years. 

They were a broken nation full of broken families.  Broken by sin…by their willful turning from God.

But look at the VERY first verse:

“Then the Lord spoke to Moses in the wilderness of Sinai in the tent of meeting…”

God did NOT give up!  God spoke to His people through Moses.  Again and again, God reached down to those stubborn people and spoke.

“Now when Moses went into the tent of meeting to speak with Him, he heard the voice speaking to him from above the mercy seat that was on the ark of the testimony, from between the two cherubim, so He spoke to him.”   (Numbers 7:89) 

“Moses had so much to talk to God about and, as the long journey progressed, each new day brought its fresh load of pastoral concerns, unreasonable complaints, arrogant accusations.  Yet, desperate as he was to talk about his problems, Moses was overwhelmed with a priority greater than speaking.  The Tent of Meeting became the place of attentive listening.  Moses heard the voice…And He spoke with him.”   (Raymond Brown, The Message of Numbers)

The place where God spoke was the mercy seat, the place of forgiveness of sin.  Sin blocks our communication with God, but at the place of forgiveness we are once again receptive to the voice of God.

Oh, how broken we are today! 

A broken nation…broken families…broken people.

No election, no Supreme Court, no political party can ever fix this mess we are in at this point in history.

Sin, national and personal, has blocked our ability to hear God speak.

But at this time of year, this Christmas season, we see hope for each of us.

Hope came in the form of a baby…God’s only Son…given to this old dark world to be the Light of the world!

“And the Word became flesh, and dwelt among us, and we saw His glory, glory as of the only begotten from the Father, full of grace and truth.”  (John 1:14)

The word “dwelt” means to pitch a tent.  God sent Jesus to live among the people…to pitch His tent much as the tent in the wilderness. 

This is how much God loves us and how much He wants to fix our broken.  We meet Him at the place of forgiveness where we confess our sin and trust His Son to be our Savior. 

Like Aaron, when we look closely we see all the brokenness of this world.  We see lights that don’t work.

But when we allow Jesus to forgive and to redeem, we step back and see that He is indeed the light of the world.

THIS is the message of Christmas! 

Jesus is our only hope today. 

He alone can fix our broken mess.  Please come to know Him today and listen to His voice in the place of forgiveness. 

My Lot in Life

Having Aaron still live at home with us can present challenges in various ways.  One issue that Gary and I face is, at times, trying to have a prolonged conversation with just the two of us.  It’s amazing how often we have the following scenario:

I walk down to Gary’s study and sit in the rocker.  Aaron is safely WAY up on the third floor, in his room, absorbed in a game or a movie.  But somehow, someway, it’s as if the tiniest sound of our voices reaches Aaron’s ears even through his earbuds.  Soon we hear the unmistakable THUMP THUMP THUMP of his heavy footsteps coming down first one set of stairs and then the second set of stairs.  Gary and I look at each other in resignation as Aaron charges into the study.  “MOM!!! (or DAD!!!),” Aaron bellows.  “Did you know that the core of the earth is HOT?!!  Why is the core of the earth hot?  Can we go to the core?  Would you like to go to the core of the earth??”  Aaron doesn’t notice the lack of interest on our faces or hear our sighs.  “No, Aaron,” I (or Gary) reply, “we don’t want to go the core of the earth.”  (Although that thought might be attractive at the moment in order to afford us some privacy!).  “Why not?!!” Aaron asks.  So we tell him that we will talk about this later and we tell him to go back to his room and ponder the core of the earth a bit more and we wait for him to leave before we try to resume our conversation.

I have been known to say, more than once, something to this effect: “You know, it seems to be our lot in life that we can hardly have a private conversation.”  Gary and I laugh as we both agree with this truth in our lives.

However, there are times that referring to my lot in life can take on a more serious tone and one that is defeating.  I may not even verbalize my thoughts.  That thought may be fleeting or if I’m not careful, may take root in my mind. 

My “lot in life” may be an ongoing situation, such as having our adult special needs son still living with us and facing all the challenges that brings. 

My “lot in life” may be a sudden situation that intrudes into my peaceful life.  We all have them.  Health, finances, children situations, jobs…

There is a truth that I must remember when my mind travels to considering my “lot in life.”  That phrase conjures up a roll of the dice…the hand I was given…good or bad luck.

Each of those concepts go totally against my walk with God.  As a follower of Christ my life is not controlled by luck or how my stars are aligned or any such nonsense. 

Here’s how David put it:

“The Lord is my chosen portion and my cup; You hold my lot.”   

(Psalm 16:5)

My life’s circumstances are not controlled by chance but are designed by God for me.

God is providentially ordering my life. 

And He is doing the same for yours if you are His child and are following Him.

Therefore, I can…I SHOULD…be content with God’s design of my life.  Even the very hard parts that bring tears and fears.

One more thing.  My “lot in life” is not your “lot in life.”  And your “lot in life” is not my “lot in life.”

When I go to comparing my life to yours then I will inevitably be either discouraged or boastful…and both of those attitudes are terribly wrong.

Again, David said it well:

“I have set the Lord always before me; because He is at my right hand, I shall not be shaken.”  (Psalm 16:8)

God is to be my point of reference.  He is the answer to all my questions.

God is the One Who has given me my “lot in life.”

THUMP, THUMP, THUMP

When is the Time to Trust?

A couple mornings ago I felt compelled to open my very old copy of the classic devotional book, Streams in the Desert.  This book was a gift from my home church when I graduated from high school way back in 1973.  But even though my graduation date makes the book old…of which I am all too aware more and more each day…the actual writings of Mrs. Charles Cowman were first published in 1925.  Her writing style may be old school, but the deep truths contained therein are timeless.

I was touched deeply by what I read that morning about faith and trust.  I jotted a few notes, tucked the truths away in my mind, and was soon about my busy day.  Aaron was staying home that day and we had fun plans!

Our plans were to meet some friends at All Star Sports for a morning of games.  My friend Joyce and I had decided to get our two sons together.  It would be the first time that Johannes and Aaron would be with each other for an outing, and we both wondered how it would go.

How it went was great!  I mean, there wasn’t tons of interaction between them, but the ice was broken, and plans were made for more time together.  Sweet Johannes held his hand out and with a prompt from me, Aaron shook his hand without squeezing it too hard, and Joyce and I laughed and were happy.  The boys had a good time and that’s what mattered!

 

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Aaron and I then went to eat some lunch and to drop off donations at Goodwill before heading home.  Soon after we got home, Aaron took a nap.  I had the monitor nearby, listening as I always do when he sleeps.  I really didn’t expect to hear a seizure, so I was surprised when I suddenly heard that unmistakable sound coming across the table where I sat.

It was a hard seizure, lasting close to 3 minutes.  And exactly one hour later, to the minute, he had another one.  It wasn’t as long as the first one but was still 2 minutes long.  Thankfully, he was done then and had no more the rest of the day.

It’s so surprising, even now after all these years, how quickly Aaron can go from being out and about, happy and fine, to having a seizure.  I don’t try to figure them out like I used to do, but I still find myself wondering why.

Even the next day on the way home from his day group, his speech was somewhat slurred, and he was very tired.  He fell asleep on the way home instead of his usual non-stop talking.  Was it the residual effects of yesterday’s seizure, I wondered?  Is his sodium low again?  Will he have another seizure when he gets home and takes a nap?

 

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So, even though this is Aaron’s life and our life, it’s still disconcerting.  Worrying.  Unsettling.

My mind was drawn back to the devotional I read earlier that morning.  I went back to it and was, as I always am, so amazed at how God has for me just what I need when I most need it.

Mrs. Cowman’s words were based on the story of Paul’s shipwreck in Acts 27.  The south wind blew gently as the sailor’s pulled anchor.  Paul had warned them not to take this trip, but they didn’t listen.  And that south wind was such a hopeful sign to them that they were right, and Paul was wrong.

But soon a terrible storm hit.  For days the ship was violently tossed on the waves.  During that horrible storm, with no sun or stars for days…with everything thrown off the ship that could possibly be tossed overboard…verse 20 says that all hope of being saved was abandoned.

But an angel of God stood before Paul to assure him there would be no loss of life.  Paul stood bravely before those battered and terrified seasoned sailors, and confidently said, “So take heart, men, FOR I HAVE FAITH IN GOD!!”

I thought about our life with Aaron…the ups and downs in so many areas…and the fear concerning his seizures.  How that day had been so much fun and so without fear, and then out of the blue came two hard seizures.  It was easy for fear to replace our fun.

My need to trust God is always there, right at the surface, even underneath all the normal and the fun and the hopeful.

But ACTUALLY trusting God is a must when suddenly the normal and the fun and the hopeful is yanked away.

That level of trust is a conscious decision that I must make.

That level of trust isn’t based on circumstances or on feelings but is rooted in God Himself…in Who I know Him to be.

This year for all of us has seen the rug pulled out in so many areas of our lives.  Things were going along pretty well for most of us.  Then…BAM!!

COVID…jobs…riots…anger…fear…disagreement.

I want to leave you with the hope that God is not taken aback or surprised by any of this.  He has a purpose and a plan.

Can you say, with Paul, that you have faith in God?

I want to leave you with a wonderful poem shared by Mrs. Cowman that I read that morning.  I hope it will mean as much to you as it did…and does…to me.

 

When is the time to trust?

                        Is it when all is calm,

                        When waves the victor’s palm,

                        And life is one glad Psalm

                        Of joy and praise?

            Nay!  But the time to trust

                        Is when the waves beat high,

                        When storm clouds fill the sky,

                        And prayer is one long cry,

                                    O help and save!

 

            When is the time to trust?

                        Is it when friends are true?

                        Is it when comforts woo,

                        And in all we say and do

                        We meet but praise?

            Nay!  But the time to trust

                        Is when we stand alone,

                        And summer birds have flown,

                        And every prop is gone,

                                    All else but God.

 

            What is the time to trust?

                        Is it some future day,

                        When you have tried your way,

                        And learned to trust and pray

                                    By bitter woe?

            Nay!  But the time to trust

                        Is in this moment’s need,

                        Poor, broken, bruised reed!

                        Poor, troubled soul, make speed

                                    To trust thy God.

 

            What is the time to trust?

                        Is it when hopes beat high,

                        When sunshine gilds the sky,

                        And joy and ecstasy

                                    Fill all the heart?

            Nay!  But the time to trust

                        Is when our joy is fled,

                        When sorrow bows the head,

                        And all is cold and dead,

                                    All else but God.

 

 

No Wallowing!

I am NOT where I thought I would be this week!

I am NOT where I planned, carefully planned, to be this week!

But I do believe that most of us are in the same boat and could say the same thing.  How many plans have been totally disrupted due to all this virus mess and stay-at-home orders?

Trust me, I know that there are some very heart-breaking situations in people’s lives right now – far worse than anything I’m going through.

So, where was I supposed to be this week?  Texas.  I was to be in Texas this week.

My husband and I were going to the Houston area this week.  Our daughter and her husband, Kyle and Andrea, live there.  And our son, Andrew, who lives near Indianapolis, was to be there as well.  Andrew works for an NHRA drag race team.  They have a big national race in Houston every April.

Gary had bought our tickets.  I had lined up caregivers for Aaron, who doesn’t attend these events with us.  He loves his own version of a vacation, which is to stay in his comfort zone of home and of eating out every night, loving the undivided attention from caregivers…and calling us multiple times every day, just because he always has something to tell us.

On Facebook this week, the memories from this time last year have been popping up on my page.  As if I need any help with memories of our fun time we should be having!

We should be doing this:

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Enjoying time together:

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And watching Andrew work:

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I was talking to my friend, Joyce, about it a couple weeks ago.  I told her it’s sad not to be going on our trip to see our kids.  How it’s OK to acknowledge that sadness, but that I can’t stop and wallow in it.  We laughed as we thought about that and laughed even more when Joyce mentioned being like a pig wallowing in the mud.

In the park where Aaron and I like to walk, Swanson Park, there is still a depressed area in the prairie grass where buffalo wallowed in the 1800’s.  In fact, there is a plaque there for us to read about it.  And it’s simply called a “buffalo wallow.”   I had to inwardly smile as he and I stood there looking at it once again the other day.

Then nearby, a short distance from the trail, is this muddy area.

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As we looked at it, I could imagine buffalo and wild pigs wallowing in the mud there.  I could see them with my mind’s eye rolling and relaxing in the goopy mud, in no hurry to move on.

Much like I am tempted to do as I think with regret about where I thought I would be this week.

Oh, I have reason to wallow.  Our kids live far from us and we see them so seldom.  In fact, for many reasons, we haven’t seen Andrea and Kyle since last July.  Their jobs, Andrew’s travels, Gary still working, the difficulty of finding caregivers for Aaron…all make it very hard for us to up and travel as we would so desire to do.

I could most definitely stop and wallow in my misery.  And with each roll in the mud, I could find plenty of reasons to condone and excuse my wallowing!

But there’s this verse that makes me stop my wallowing and listen to God instead.

“God is my allotted portion and my cup; You take charge of my lot.”  (Psalm 16:5)

Simply put, this means that God takes care of my circumstances.  Things around me may become shaky, but I can be unshaken as I stand firm IN my circumstances.

Why? Because I believe in God’s direction and providence in my life.  I love the note on this verse in my ESV Bible:   We can have “…contentment with the arrangements of one’s life, seeing them as providentially ordered.”

What a difference it makes to know and to trust God!  To know without a doubt that my interrupted plans are because of His plans for me that are far better than I can know or imagine.

Isn’t that what trust is all about anyway?

So, I acknowledge my sadness as I look at what might have been.

Then I move on.  I don’t jump in the mud and relish it.

“I have set the Lord continually before me.  Because He is at my right hand, I will not be shaken.”  (Psalm 16:8)

And I will not wallow!

 

 

Remember When?

Last summer, Aaron had a dentist appointment…and in his usual fashion, he plotted and planned where we could hopefully eat afterwards.

“Mom?” he asked.  “Tomorrow after my dentist appointment, can we eat at Jimmy’s Eggs?”

Yes, he calls Jimmy’s Egg – Jimmy’s Eggs.  I mean, who just eats one egg, right?!

The next day found us sitting at Jimmy’s Eggs enjoying a delicious lunch/breakfast.  And yes, Aaron did happily eat every bite of all this food!

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There was, though, another big reason why Aaron loved Jimmy’s Eggs.  Well, it was actually a very little reason that was quite big to Aaron.

Can you see it?

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An ant!

Aaron wasn’t alarmed at all by having an ant join us for lunch.  In fact, Aaron put a little piece of carrot from his salad on the table so the ant wouldn’t feel left out about not being allowed to order lunch.  Next, he added a piece of bacon.

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The server was embarrassed by the ant, but I told her not to worry.  Aaron loved having the ant company, and it made me happy to watch him trying to care for the little guy.

We haven’t been back to Jimmy’s Egg(s) since then.  It just hasn’t been on our dining list, but not because of the ant.

One day not long ago, when the closure of restaurants during this virus was hitting home with Aaron, he thought about Jimmy’s Egg(s).

“Mom?” he asked, “remember Jimmy’s Eggs and how we used to eat there before the virus?”

He said it so wistfully that it made me sad.  Like now he measures time as Before Virus (BV) and After Virus (AV).

All of us, though, are having similar thoughts.

Remember when?

Remember when I had a job…was planning that trip I had to cancel…was going to march in graduation…could be with my mother in her nursing home or hospital…was having a huge Easter celebration…could go to church…didn’t fear for my family’s life?

I certainly don’t understand everything that’s going on around us and why certain decisions are being made, but here we are.

What I CAN do is pray, a lot, for God’s wisdom and protection for all involved in this mess.  That’s basically the whole world, and for our nation in particular.

When I zoom down to my own life, or the lives of so many that I love, I do find myself at times remembering when…and if I’m not careful, fear and sadness can rule my thoughts.

That’s why yesterday morning, when I read these verses, I was so tremendously encouraged.

“But as for me, I trust in You, Oh Lord.  I say, ‘You are my God.’   My times are in Your hand.”  (Psalm 31:14-15a)

The word “times” here doesn’t just mean that my lifespan is in God’s hands.  David also meant “…all the kaleidoscope of circumstances that meet him left and right.  Calvin rightly draws attention to the plural form – ‘times’, and says that David uses it to ‘mark the variety of casualties by which the life of man is usually harassed.’  (Dale Ralph Davis, In the Presence of My Enemies)

Beside verses in my Bible, I often write a date and sometimes a note to remind me of when and how God especially spoke to me through that verse.  I call them my memorial stones.

Beside those two verses above, I had written “Nov., 1994.” I was going through a stressful time concerning a possible health issue and the death of my Grandma.  We lived in Leavenworth, Gary was deployed for training in the military, I had three little ones, Aaron’s special needs were getting more difficult, and I was far from home and family.  But God reached down in that chaos and stress, and He told me very sweetly and clearly that those times…MY times…were in His loving hand.

Now here I was yesterday, with COVID-19 and all its issues swirling around us and those we love, and I was remembering when…

Remembering when God spoke to me all those years ago in another stress.

Remembering when God filled me with peace.

Remembering when God proved His promise to be my God, then, and is doing the same now.

“How often the truth of this text has proven a bastion and bulwark for God’s servants.  Ulrich Zwingli, a reformer in Zurich, was visiting his people, trying to console sick and dying.  The plague had some to Zurich in August 1519.  By autumn Zwingli himself had succumbed to the disease.  Confined to bed and staring death in the face, Zwingli prayed:  ‘Do as you will, for I lack nothing.  I am your vessel to be restored or destroyed.’ Different words, to be sure, but actually just a paraphrase of ‘My times are in your hand.’  One can rest there even in the plague.”  (Dale Ralph Davis)

We can rest in God’s hands and in His times for us individually…for our families…for our friends…for our nation…for our world.

Now, beside these verses, I have added a new memorial note: “ COVID-19, April, 2020.”

May God’s promises and His faithfulness be what I remember when I’m “remembering when!”

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