Category: Disappointments

The UNhappy Uncle Aaron

Well, it’s time for another Uncle Aaron update.  This is one that I have not wanted to make.  You can probably tell why from the title.

Before I begin, let me say once again that the reason I write this blog is not to just tell funny or heartwarming Aaron stories.  I began this blog years ago as an effort to educate people about special needs, autism and epilepsy in particular.  Especially the autism part that makes Aaron so very amazing and unique.

But there is another side as well…a side of Aaron that has a hugely difficult if not impossible time adapting to change.  Add to that issue the reality that Aaron is the center of Aaron’s world.  He gauges almost everything in his life on how it will affect him.  He has a heart as big as all outdoors in one moment, but in the next he might be having anxiety or a meltdown over something that isn’t going as he wants.

Our little grandson, Ryker, was born on December 21.  Now Aaron was Uncle Aaron for REAL!  But when we showed Aaron pictures, he backed away as if Ryker might reach out and slap him.  Aaron was nervous and acted like he really didn’t care about our new family member.  We knew then we needed to tread lightly as Aaron adjusted.

But look at Aaron’s smile when he opened this Christmas gift.  We were hopeful.

I flew to meet Ryker a couple weeks after he was born. 

Five days later, Gary and Aaron were flying in for a couple days.  But the morning they were to leave, Aaron had a full-blown meltdown.  The day before had also been rough. 

To top it off, the flight was delayed that morning.  Making the connection in Denver was doubtful.  A very upset Aaron having to wait a long time for an uncertain flight in a strange airport far from home…ummm, I don’t think so. 

Gary and I knew we needed to cancel the trip.  The relief in Gary’s voice was palpable and I totally understood. 

Aaron’s voice over the phone was thick with emotion and tears.  After Gary cancelled the flight, Aaron was filled with guilt over what he had caused.  He also worried about our reactions, and knew he should apologize.  He was pretty pathetic.  Here are Gary’s words in a text:

“He is 180 the other way now.  Walking him back from his sorrow is almost as difficult as getting him out of his anger.  Constant sniffles, watery eyes and suggestions in addition to the ‘I’ll go…I promised Mom and I promised Andrea’ there is ‘Can we get another airplane…can we drive, can we go tomorrow…dad, I’ll go.’  I feel like I just took a long trip!”

Gary continued:  “He has said several times, ‘But I promised Andrea,’ and ‘I need to say I’m sorry.’  So I’ve said that we’ll call her and apologize.  He walks to the phone and pauses, then says he can’t.  It’s too emotional for him, I think.”

Down in Texas, I was full of both anger toward Aaron and sorrow for Gary, whom I knew should be there to meet his first grandchild.  This picture should have included Gary.

It was good to talk to Gary, to Andrea and Kyle, and to have wise input from family and friends.

But most of all, the turmoil I felt was relieved by stepping back in the quietness two mornings later and reading scripture as I held precious Ryker.  I read Psalm 62:  “With You is unfailing love.” 

How can I not love Aaron since God loves me in my stubbornness? 

How can I not extend to Aaron the grace that God has extended to me?  It’s honestly easier to accept God’s grace to me than to give that same grace to Aaron at times like this. 

And like Gary also said:  “I often wonder what God sees when He looks down at me?  When I do not do what He would have me do or I don’t do what I should do, does He look at me like I look at Aaron?”

So, here we are.  I wish I could report that Aaron has turned around and has decided to love and accept Ryker.  But that hasn’t happened yet. 

My second night home, this past Saturday, we had a particularly rough night with Aaron.  There he was, sitting up in his bed, crying with brokenness and saying that he was afraid we would only love Ryker and not him.  Gary and I assuring Aaron of our forever love for him while fighting our exhaustion and frustration. 

Andrea is right when she said the next day that Aaron is just like a little sibling when a new baby comes into the home and the older child expresses jealousy.  Aaron has no filters and makes no attempt to hide his feelings. 

But here’s the thing and it goes back to autism. 

Aaron CAN’T filter or hide what is going on with him right now.  He is literally unable to do that. 

Out it all comes and we are left to deal with it.

Sorry this is so long.  Trust me, I could say a lot more but I’ll hush now and say thank you to each of you who have read this volume.

And a special thank you to those of you who have been praying for Aaron and for us.  Please don’t stop.  We need much wisdom and love.

Before I go, I just HAVE to share one more picture of our precious little grandson.   It’s what a Gramoo does, right?  😊   

Aaron’s Tears

Let me say right from the beginning of this blog post that I am sorry for writing another sad Aaron story.  As if The Flip Side – my previous blog – wasn’t enough, here I go again.  But I promise to have happy stories and huge Aaron smiles coming up.  After all, Halloween is right around the corner and Aaron is nothing short of over-the-moon excited about all things Halloween and pumpkins and…for the first time ever (really!)…a costume that he cannot WAIT to wear!!

In my last blog I tried to explain the impact that Aaron’s obsessions have on his everyday life.  In true autistic fashion, he will become hyper-focused on something that soon controls his decisions and his emotions. 

Water, as in the drinking of water, is another of Aaron’s obsessions.  Years ago, our daughter told him that there was such a thing as drinking too much water.  She was right.  In 2015, Aaron ended up in the hospital.  He was incoherent and unable to walk.  His sodium was dangerously low.

Over the years we have attempted to control his water urges but it’s very difficult to do so with a grown man who is able to get his own water…and is very sneaky about hiding water bottles, especially at bedtime. 

Three weeks ago, after routine bloodwork, I got a call from his doctor informing us that Aaron’s sodium was low again.  Aaron did a great job of reducing his fluid intake and in only one week his levels were normal again.  We praised Aaron for the good work, and he was quite thrilled.

But water obsessions are like an addiction.  The urges for lots of water returned, along with our removing bottles from his room and threatening to lock the garage refrigerator with all the water bottles inside.  Gary and I hadn’t figured out what to do about the faucets or the fridge water dispenser.  Ugh!!

Aaron has been doing better the past few days, though, and so we can only hope that he is learning to control himself.  But this past Monday at his day group was rough.

Aaron got some coffee at QuikTrip, and it accidentally was kicked over by a friend.  It spilled all over the floor.  He had taken water with him that day, but decided he wanted a bottle of water that was inadvertently offered to him.  A staff reminded him that he couldn’t have more water.  All of this was just too much, and the tears came.

He was totally dejected.  A staff took this picture of him in her office.

At first I smiled, but then I zoomed in, and the look on his face…

Well, it broke my heart.  And then I was crying.

If there was ever a picture of Aaron’s deep frustrations, this is it.

But why do I share this? 

Because I want others to know that these fixations of Aaron’s…and of so many others with autism or other issues…are life changing for them and are not to be flippantly brushed aside with a, “Oh, just get over it, Aaron.”

He can’t “just get over it.”

He is so deeply affected by his own fixations.

My blogging friend, Nancy, commented on The Flip Side that I wrote last week. 

“Dear Aaron,” she wrote, “it must be SO frustrating to deal with uncontrollable urges.”

Her comment touched me so much because she acknowledged that Aaron’s urges…his obsessions…are truly uncontrollable.  And she expressed empathy for that side of Aaron because of how deeply impacting it is in his life. 

How frustrating it is for him.

And I know that if I can look at Aaron through eyes of understanding and compassion, then hopefully he will see and feel the fact that he is understood and loved. 

Easy?  No.  Especially in the heat of the moment, or late at night when I am carrying three water bottles out of his room while he loudly protests.

Yet again, though, Aaron has shown me how much I am this way with my heavenly Father.  How I let my obsessions for things that aren’t good for me control my thoughts and my actions.

The mercy and grace that God gives to me is exactly what I need to show to Aaron. 

I goof up and God is there to forgive and to instruct, and to patiently love me through the repercussions of my repeated actions.

 I must do the same for Aaron…forgiving and instructing and most importantly, loving him through the repercussions he might face.

And maybe look into a water sniffing dog, as well?  😊

I Can’t Wait!

Waiting patiently for anything is not a strong suit of Aaron’s.  Whether he is waiting for me to get off the phone or waiting on a huge surprise, it doesn’t matter.  Patient waiting is a foreign concept to him.

This is why we often don’t tell Aaron of an upcoming event until shortly before it actually occurs.  Too bad he knows when his birthday is because he is in planning mode for months before the big day. 

Earlier this year, a big dinosaur exhibit was coming to town.  Gary and I decided to take Aaron and to make it a surprise, more for our sake than anything.  The big day came…tickets were bought…plans were in place…and finally I told Aaron that we were taking him on a surprise adventure. 

It wasn’t THAT long before we were leaving that I broke the exciting news to him, but oh my goodness!  I quickly realized that I should have waited until we were in the van and on our way before uttering a word about our surprise trip.

Aaron can hover better than any hummingbird or helicopter.  He hovered outside my door as I got ready.  He knocked and knocked on the door, asking if it was time to go yet.  He lingered outside the bathroom door as I dried my hair.  He stood right beside me as I brushed my teeth, asking questions and wanting me to answer even with a mouthful of toothpaste. 

“Aaron!!” I finally said, “quit being so impatient!!  Leave me alone and let me get ready.”

I enjoyed a few moments of blissful quiet…until he once again knocked loudly on my door.

“But MOM!!”  he exclaimed, “I don’t have anything to DO while I’m being impatient!!”

Let me say, I am so much like Aaron when God has me wait for something, especially something that I have prayed about for a long time.

Look at Isaac and Rebekah.  Isaac married Rebekah when he was 40 years old.  No children came, however, because Rebekah was barren.  In Genesis 25 we read that Isaac prayed on behalf of Rebekah and she conceived.

But guess how long it was before that happened?

20 years!

YEARS!!

Can you imagine the disappointment, over and over and over?

The sadness?

The comparing themselves to others who had HOW many children during the time that they waited…and waited…and waited on God to keep His promise.

As Dale Davis points out in God’s Rascal, The Jacob Narrative, Isaac’s non-chosen brother Ishmael had 12 sons.  What’s up with that?!

But Isaac didn’t just idly or impatiently wait.  We’re told that he prayed on behalf of his wife. 

The Hebrew term used there means that Isaac didn’t just pray FOR his wife.  It indicated that he prayed in front of her…in her presence.

I found Isaac’s action in prayer to not only be very encouraging but also very precious.  He led Rebekah and he joined her in her pain…in their pain…as they waited for God’s answer.

Sometimes things seem so hopeless.  We don’t see answers coming.  It’s so easy to lose heart, especially when we have prayed and prayed and prayed.

I love this verse.

Right now, Aaron is laying on our couch downstairs.  He had three seizures this morning.  He is almost 38 years old and has had seizures since he was 7 years old.

I look at him as he ages, and I see the effect of all these years of seizures…of the toll they have taken on his body and on his mental abilities. 

But I know that as much as I love Aaron, God loves him even more.  And God loves me. 

He loves us and He has a reason that I will probably never know on this earth for all that Aaron has suffered.

So, I cry out to God.

And I know that God’s inclination is to lean down and hear my cry. 

Isn’t that a precious picture?

He joins me in my pain and in my waiting.

Am I always patient as I wait on God?

No!

But unlike Aaron, there IS something I can do while I’m being impatient and that is to pray.

And to praise, as David continues in Psalm 40.  Sing a new song of praise, which will be a testimony to others.

After all, “How blessed is the man (or woman) who has made the Lord his trust.”  (Psalm 40:4)

Gotta run.  Aaron is awake now and is planning our evening already.  😊 

Yesterday’s Leading

Aaron doesn’t always like to be awakened from his sleep, either in the morning or after an afternoon nap.  Yet when it’s time to get out of bed, it’s time to get out of bed!  And I am often met with his anger during those times. 

One day not long ago he wanted to take a nap.  I asked him if he would get out of bed when I told him it was time.  He promised that he would.  I know Aaron, so I gave him the mom look as we stood there. 

“Mom!” he asked, “do you trust my promise?”

I was honest with him and told him that sometimes he had a hard time keeping his promises when it came to getting out of bed. 

Aaron’s question is one that I feel God is often asking me.

Sometimes the prayers I prayed in the past and the way that God answered leads to a place that is far from perfect.

If my trust is on my circumstances instead of on my heavenly Father, then I will most certainly begin to doubt His leading.

I know better than to live that way.  I know the verses and I know the principles, but life’s realities sure can cloud that knowledge and turn it quickly into doubt and defeat.

God’s promises are not negated because of my feelings.

But my peace can be destroyed because of my feelings.

The trust I had in His leading yesterday is the same trust I need to have in Him when the path He led me to is not necessarily fun and joyful all the time.

Job felt abandoned by God as he endured horrific testing…testing that took place even as Job lived faithfully for God. 

Job expressed his thoughts very honestly in Job 23.  He said that he went forward, and God was not there.  He went backward and did not perceive God.  God did not seem to reveal Himself to Job on the right or on the left. 

BUT!!!

        “BUT He knows the way I take,” Job said.  (Job 23:10)

Ah!  The important thing for me to know is that GOD knows the way I take.  Job was walking God’s path, treasuring God’s words, keeping God’s ways…and still lived with very hard situations in his life.

God knows my path, too…and yours.  As you follow Him and ask for His guidance, then trust Him to do the best in your life.

Yet sometimes the best is tough.

“I’m living my BEST life!” we hear people say.

But then the pictures are usually beautiful and fun and happy.

Mine don’t always look like that.

“Patty?” God says, “do you trust My promise?”

“Yes,” I answer, “but why did You lead me here and now look at how it’s turned out?”

“Because I love you,” God answers.  “I know what’s best for you.”

“I do believe that, of course,” I reply, “but…

“But DO you trust Me?” God asks again.

And I come full circle once again, forced to make a conscious decision about God…to firmly believe that He performs what is appointed for me, as Job said.

“Do you trust my promise?” God repeats.

“I do,” I reply, sometimes through tears, “because I trust YOU.”

Yesterday’s leading is still today’s place for me. 

And that’s because of God…only God.

Remind Me That I Love You

Mornings for Aaron are definitely the time of day that he struggles the most.  It can really be hard for him to get out of his warm bed and face the day.  Not every morning is difficult, but let’s just say that for Aaron the majority of mornings do not have a right side of the bed.  Both sides are wrong!

Aaron realizes this about himself.  Therefore, sometimes he will tell me to give him a morning reminder that will hopefully help him to be cheerful.  The reminders are about something that the day will hold…something that he is looking forward to and so will encourage him to get up happily. 

For instance, he loves going to Meals on Wheels on Thursday mornings but sometimes he knows on Wednesday night that he may be grouchy the next day.

“Mom,” he says, “tomorrow morning if I don’t want to get out of bed just say Buster.’’

Buster is the little dog at one of our homes that Aaron loves to see and to pet.  And Buster loves seeing Aaron. 

Or on Valentine’s Day, when we were going to pick up roses to take to his day group friends, he knew the night before that he might be irritated about getting up.

“Mom,” he told me, “if I start getting mad in the morning just say roses.”

I love Aaron’s plan of action.  I know he truly does want to be nice in the mornings.  Sometimes his plan works, and well, other times it doesn’t.

One recent evening we were watching a favorite show.  Aaron was all comfy and relaxed on the couch, legs covered in his ever-present blanket, and enjoying a yummy snack.  He was the picture of contentment.

Such was not the case hours earlier as we worked to get Aaron out of bed and on his way for the day.  That morning he was the picture of frustration and anger.

As we sat on the couch enjoying our program, Aaron was filled with happiness.  He finally looked over at me.

“I love you, Mom,” he said.

The moment was genuine and so sweet.

“I love you too, Aaron,” I replied. 

Then he seemed to remember our unhappy morning.

“Tell me I said that in the morning when you’re getting me up,” he added.

His words were a stop-me-in-my-tracks moment.

How many times in my life have I been filled with contentment as things are going well?  Then it’s easy to tell God that I love Him.  And I mean it when I say those words to Him. 

But sometimes the bottom falls out. 

Gary and I had been married for five years before Aaron was born.  That positive pregnancy test was SO huge to us!  How thankful we were!  How full of love for God and His sweet blessing in our lives!

Now here we are, 37 years later, in a place we never dreamed we would be with Aaron. 

Seizures.  Autism.  Behaviors. 

Can I still lift my eyes to God and tell Him that I love Him?

Those warm fuzzy ecstatic moments of my first pregnancy are long gone. 

In their place are many moments of worry, sadness, frustration, and bone-wearying exhaustion.

But here’s the thing.  I know God in a deeply personal way. 

And I know that often His ways in my life are filled with heartache and pain so that I will grow to be more like Jesus.

God hasn’t changed one little bit.

But He calls me to change, and His word tells me that this change toward likeness in Christ will involve the hard things. 

Sometimes I have to will myself to remember all the reasons I have told God that I love Him.

And those reasons cannot be based on my circumstances that are happy and fun.

The reasons I love God are based on WHO He is…His character and His attributes.

I cannot base my love for God on how comfortable I am.

So, like Aaron, there are times in my life when I need to look at God and ask Him to remind me that I said I love Him.

Through my tears, fears, anger, hurt…through all the questions I have about God’s reasons and logic in my life…I must not lose my love for God.

Oh God, tomorrow…when things aren’t going too well, and I feel upset…remind me that I said I love You. 

Remind me that You are the same yesterday, today, and forever.

And remind me of how very much You love me, too. 

Secret Things

If there is ever a time that it’s OK to keep secrets from each other, it’s now, at Christmas.  We buy gifts and then try to find the best hiding places around the house so that little…or big…snoops don’t find them.  We rush to grab that delivered box off the porch before our husband or child grabs it first.  It’s fun and exciting and perfectly allowed.

Then we must wrap the gift when prying eyes won’t see what it is.  I used to love stacking our children’s wrapped gifts in their individual piles and having them put their own gifts under the tree.  There was lots of shaking and guessing going on while they worked.  It was so much fun!  I knew the answers to their many questions, but I kept it to myself as I watched them wonder what was in each box. 

Last year, as Gary and I sat by our tree, Aaron joined us.  It wasn’t long before he was on his knees in front of the tree, taking out boxes to see which ones were for him.  He went through that ageless process of trying to guess the content of the gifts that bore his name.  And I went through the same ageless process of telling him that he must wait for the answer.

You know, God has secrets, too.  I just read about that fact this morning.  Deuteronomy 29:29 says, “The secret things belong to the Lord our God…”

There are things that God keeps to Himself, things about my life and about His doings in my life.  I don’t always understand why God orders my life in the ways that He does.  I don’t always know what’s in each box that ends up on the front porch of my life.  

And perhaps more importantly, I don’t often understand the “why” of some of the gifts that God gives.  In fact, there are things that I wouldn’t even classify as a gift in many ways.  A gift should be fun and wanted and needed, right?

I think of Aaron, of what a gift it was when after five years of marriage God allowed me to finally be pregnant.  Of the immense joy I felt as I held my little baby son 37 years ago, feeling like the most blessed woman in the history of the world.  Of watching him grow, smart as a whip and cute as a button.  Then the sudden huge seizure when he was in the first grade, the years of medicines and tests and doctors and still seizures.  The unexplained behaviors that manifested more and more as he got older, that set him apart from his siblings and his peers.  The diagnosis of autism, the challenges of his anger and his very particular way of conducting his life.  The forever care that he needs and the way that this impacts Gary and me now in our older years.  The questions about his future, and ours.

But on the hard days, in the sadness of seizures and the frustrations of autism, I have a choice to make about this gift that God has given me.  I can question it, I can resent it, I can let it make me bitter.

Or I can look beyond the gift into the heart of the Giver and know that He only has my good…and Aaron’s good…in His loving heart.  God has some secrets that only He knows about concerning Aaron and his life, and therefore mine.  I don’t need to know God’s reasons before I exercise trust in Him.  I just need to know Him.  Period.

When I grasp that concept…and so often I don’t…then I can experience some other gifts that God has given me. 

Peace.

Joy.

Contentment.

Those attitudes, those gifts, come and go with me. 

“What IS this, God?” I can imagine me asking Him as I shake the box.

“Go ahead and open it,” He responds.

“But I didn’t ask for this,” I tell Him as I see what’s inside.

“No,” he lovingly says.  “But I know that you need this very thing.”

“Why?!” I ask through my tears.

“Oh,” he answers, “that is a secret for only Me to know right now.  Someday I will let you in on the secret, but not today.”

“But…” I so often begin.

And God answers:

“Every good thing given and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shifting shadow.”  (James 1:17)

Like the old hymn writer said:

And we wonder why the test when we try to do our best, but we’ll understand it better by and by. 

By and by, when the morning comes,

When the saints of God are gathered home,

We’ll tell the story how we’ve overcome

For we’ll understand it better by and by.

My Times, Your Hand

One evening last week, I looked outside and saw a beautiful red glow on the horizon.  However, my view was hindered by trees.  Knowing there was more to this scene than I could see from my vantage point, I quietly snuck out of the house…so I could drive alone without Aaron…and headed west to see what I would find. 

It was hard to keep my eyes on the road as I drove past trees and power poles.  The sky was so beautiful that I wanted to only gaze on it.  Finally, a few miles away, I found the spot I sought.  Flat…open…unimpeded by trees or poles – there it was.  The perfect view.

Oh my!!  What a stunning sunset it was!

I’ve looked at this picture a lot and done some thinking about the path of life upon which God has placed me.  How much do I trust God’s decisions about me and my life?

I don’t know about you, but I tend to feel more trust in God during the harder and often unexpected situations of life…those times when I’m suddenly the recipient of bad news and I’m thrown into God’s arms. 

But it’s the daily disappointments…that drip, drip, drip of stress…that can really bog me down.  The dailiness of life’s burdens can hinder my view of God’s path and His purposes for me much as the trees hampered by full view of this gorgeous sunset.

Saturday morning, for instance, Aaron stood by Gary’s desk chair. 

“Dad?” he said, “my mouth is broken.”

I smiled from the other room at Aaron’s phrasing – and I know that Gary was secretly doing the same.

Aaron thought he had burned his mouth, but in looking at it we both knew that these were not burns.  He had a rash.  The next day, Mother’s Day, I took Aaron to Med Express to have it checked.  It was quite painful, and he was having trouble eating.

Gary offered to take Aaron, bless him, but I wanted to do it since I always take Aaron to his doctor visits.  So, here I was, on Mother’s Day…at the doctor with Aaron.  It was a bit of a downer, honestly…not the way that I envisioned my Mother’s Day. 

See what I mean?  A small example of a small thing that can play upon my heart to bring discouragement, self-pity, and then lead to multiple other thoughts of how this and this and this did not turn out the way I wanted…

And my path’s view of God’s goodness is lost in the jumble of negative thoughts and emotions.

God gave me what I needed this morning, as He always does!

In Luke 13:31, the Pharisees reminded Jesus that Herod wanted to kill Him.  Jesus responded to them that He would continue the journey that God had for Him, and that when the time was right then He would perish. 

In other words, Jesus was declaring the truth of Psalm 31:15.  My times are in Your hand!  Jesus was standing in the unfailing sovereignty of God.

When David in Psalm 31 speaks of times, “…he doesn’t mean merely his life-span but all the kaleidoscope of circumstances that meet him left and right.”  (Dale Davis)

Oh, those multi-colored burdens that pile on day after day!  The unresolved issues and concerns that grow larger on a special day like Mother’s Day can cloud my view of God’s path for me. 

Last night, very uncharacteristically, Aaron suddenly said, “Mom, I’m glad you cared for me and took me to the doctor.”

I was pretty much stopped in my tracks by that!  And so overwhelmed with thankfulness that our “downer” doctor visit prompted in Aaron such a response.

Oh God, may I too look at You and be thankful for your care of me in the rough spots of life.  May I look fully at the path you have me upon and see the beauty amid the stresses.  May I not miss the opportunity to give You thanks for being for me all that I need, and not just giving me all that I want.

For it is in my need that I most fully see Your beauty on the road of life.

A Setback…But God

Seizures have been a part of Aaron’s life…and ours…since he was in the first grade.  He had his first seizure at home on a Sunday afternoon, out of the blue and utterly terrifying.  God was so good to let me be standing right behind Aaron when it happened there in our military apartment in Germany.  I was able to catch him.  If not, he would have fallen onto the hard kitchen floor and received a serious hit to the back of his head.

His seizures have morphed over the years, as seizures do, seeming to eventually bypass all the medicines and treatments that can be provided.  The majority of his seizures occur in clusters during his sleep, most often at night.  These clusters carry their own dangers, one of which is SUDEP – Sudden Death by Epilepsy.  Those words from his epilepsy doctors over the years always send a chill down my spine.

Aaron has occasionally had drop seizures here and there.  A drop seizure happens when Aaron is fully awake.  They hit suddenly, with no warning to us.  Aaron will fall either forward or backward like a downed tree, not able to break his fall. 

A few years ago, he began having more and more of these drop seizures.  He sustained significant injuries.  Cuts, scrapes, bruising, stitches, a fractured tooth that had to be pulled, and very hard hits to his head. 

Finally, on March 9, 2019, Aaron had a drop seizure on our stairs.  He had walked up a couple steps, then fell backward, and hit his head on a metal file cabinet handle.  He ended up with 8 staples in his head.  It was awful!

When we got home from the emergency room and checked our mail, there was a letter from our insurance company approving Aaron for the new pharmaceutical CBD oil, Epidiolex.  We had experimented with over-the-counter oils from good sources but had no success.  His Epileptologist couldn’t provide any guidance for those OTC oils, legally.  As soon as the FDA approved Epidiolex, Dr. Lee put in our request for approval.  Now here it was, on the same day that Aaron had fallen…a visual and sad example of why we really wanted to try this new drug. 

Dr. Lee was able to oversee Epidiolex since it was FDA approved and obtained through a prescription.  Over the next few months, we adjusted Aaron’s dose and tweaked another medicine and waited to, hopefully, see positive results. 

And we did!  Aaron’s drop seizures totally stopped!  We were elated, and soon began to relax.  Our fear over those horrible and dangerous seizures slowly went away.

Until this past Thursday. 

Aaron and I delivered for Meals on Wheels in the morning.  We enjoyed lunch at a cute Mexican restaurant.  Then home, where Aaron took a nap…and had a seizure while he slept.  This is nothing uncommon.

Later, as I was getting supper on the table, Gary had just come into the kitchen.  He was standing right beside Aaron when suddenly Aaron lurched and went into a seizure.  But instead of Aaron falling into the table and a chair, and landing on the floor, Gary was able to catch him.  This was truly from God, that Gary was there beside Aaron instead of across the room.  We were so thankful!

We got Aaron safely on the floor.  Such disappointment filled us both! 

Almost two years since a drop seizure, and now this. 

We hurt so for Aaron.

And I felt that familiar fear.  It had come back. 

But I also felt something else.  I felt God’s peace pushing back on the fear.  I forced myself to focus on God…His love and His plan for Aaron, and for us.  That knowledge was the best push-back on the fear that threatened to fill me.

I also thought about Mary’s response to the angel when she learned of the very hard path that God had chosen for her…the path of unwed pregnancy in a time when she was no doubt shunned and gossiped about and disbelieved.

Mary said, “Behold, the bondslave of the Lord; may it be done to me according to your word.”  (Luke 1:38)

Total submission.

Like the writer of Hebrews said, “Now the God of peace…equip you in every good thing to do His will, working in us THAT WHICH IS PLEASING IN HIS SIGHT, through Jesus Christ, to Whom be the glory forever and ever, Amen.”  (Hebrews 13:20-21)

God has been working on me this past year about being willing to pray in submission…being willing to say, “God, whatever it takes…”

Just two days before this latest drop seizure, I had been reading about Mary and then this benediction in Hebrews. 

I don’t know what it is…what it will take…for me to please God. 

But I do know that I need to be willing to let God do in me…and in Aaron…that which is pleasing in HIS sight, even when it may not be pleasing in mine.

Even when it hurts, deeply.

“Submission is preferable to consolation, for consolation pleases us but submission pleases God.”  (Thomas Hog, 1692)

Who is it that I most want to please? 

It’s tough when my submission involves my child.  I love Aaron.  I love all our children. 

But a huge area of my close walk with God, which I truly desire, is to be able to submit “whatever it takes” concerning my children as well.

I humanly want the consolations of God…the closeness and assurance that I feel when He blesses me, and them, with wonderful things.

But true submission to God comes only when I am willing to relinquish all the warm fuzzies for the stark hardship that often comes when the deepest lessons…and blessings…are allowed to occur.

Allowed to occur because I am submitted to God. 

God won’t bully me into submission.  Submission happens when I open my hands and release my desires to Him, trusting Him to do what He knows is best.

Even drop seizures, if they do start again, are somehow being allowed by God in Aaron’s life and in ours. 

The sky just before Aaron’s seizure that evening was so beautiful.  I have only to look up and know that God is there for us. 

The heavens declare the glory of God…and I want to do the same, as well.

Barren

It happened to me again two nights ago.  I was sinking into sleep when I think, honestly, that I snorted and woke myself up.  😊

But then I couldn’t get back to sleep.  Instead, I lay there thinking of a picture I had seen just before bed.  Happy news for someone else created in me a longing for some things I don’t have. 

These are the moments that Satan loves.  He uses the tender areas of my heart’s desires to create in me an unsettled feeling.  The dark of the night is his perfect setting to speak words of doubt and unhappiness into my head. 

I’m a captive audience at that point.  The choice is mine. 

Whose voice will I listen to? 

So, I prayed and I thought of scripture.  I eventually went to sleep.  But I awoke the next morning feeling the weight of my burdens still lingering on my shoulders.

This morning I continued in a new study I just began yesterday in the book of Luke.  Right away we meet the priest, Zacharias, and his wife Elizabeth.  They were both righteous in the sight of God and walked in blameless obedience to God. 

They were old.

They were faithful to God.

And Elizabeth was barren.

In their culture, having children was everything. 

They had nothing, in a sense.

I think of Elizabeth beyond the stories we always hear and the ending that we know well.

I think of her hearing with sadness of the pregnancy of yet another friend.  Of probably faking joy when deep inside she is grieving over what she doesn’t have.  Of perhaps not feeling included in the years of family gatherings, celebrations, large happy holidays…

Of laying awake at night, bombarded with these realities, alone and with a broken heart.

And though we know the end of the story, that God gave her a child, she did not know that this blessing would be in her future.

“…there are those who are true servants of the Lord and yet some trial, some disappointment, that may be life-long, hangs over their lives.  ‘Righteous before God’ yet ‘they had no child’.  A very huge fact and a very deep sadness are pressed together.”   (Dale Ralph Davis)

Do you have a barren place?  An unfulfilled desire that eats away at you in the dark stillness of the night?

I do.

We all do.

What ARE we to do?

We are to live faithfully, in daily obedience to God.

We are to “Commit our way to the Lord…”  (Psalm 37:5)  That means to roll our burdens on the Lord’s strong shoulders.  Literally, that’s what it means.

“…God does His most impressive works in a context of impossibility.”  (Davis)

No BUTS…unless we say, “BUT God!!”

Will God give me what I want? 

I have no idea.

The real question should be:  Will I allow God to put HIS wants into my heart?

Will I want to walk with God so closely that His desires become my focus?

“God tends to begin His finest works in the face of human hopelessness and human weakness.”  (Davis)

Walking faithfully with God doesn’t mean we’ll never have our barren places.

But may we, in the barren, bear the fruit that only God can produce in us, to His glory.

Broken Lights

Aaron followed me into the dining room the other day.  I wasn’t paying attention to him behind me as I worked on our Christmas village. 

“Mom, look!” Aaron said.

I turned to see him staring intently at our little tree that is full of my Grandma Holly’s handmade ornaments, made with love so many years ago.  This was a pre-lit tree, but as so often happens, those bulbs had long since burned out.  I had replaced them with another strand of lights but left the unlit lights on the tree – hidden, so I thought, by the new lights. 

“This light bulb doesn’t work!” Aaron exclaimed.  And as his eyes roamed over the tree branches, he pointed out other broken small bulbs. 

“Here’s another one!” he said.  “And here…and here…and here,” he continued as he pointed to each one.

Aaron had gotten close enough to see the broken, while standing farther away, I could only see the soft lights of that new strand that worked.

I am studying through the book of Numbers.  Now that book doesn’t exactly stir excitement in one’s blood, but I have learned that in Bible books we usually consider to be dull there are amazing truths from God…golden nuggets that shine brightly!

The setting of Numbers is the wilderness of Sinai where Israel wandered for 40 years on their way to the promised land.  They should have gotten to the promised land much sooner than 40 years, but because of their sin God made them travel for 40 long years. 

They were a broken nation full of broken families.  Broken by sin…by their willful turning from God.

But look at the VERY first verse:

“Then the Lord spoke to Moses in the wilderness of Sinai in the tent of meeting…”

God did NOT give up!  God spoke to His people through Moses.  Again and again, God reached down to those stubborn people and spoke.

“Now when Moses went into the tent of meeting to speak with Him, he heard the voice speaking to him from above the mercy seat that was on the ark of the testimony, from between the two cherubim, so He spoke to him.”   (Numbers 7:89) 

“Moses had so much to talk to God about and, as the long journey progressed, each new day brought its fresh load of pastoral concerns, unreasonable complaints, arrogant accusations.  Yet, desperate as he was to talk about his problems, Moses was overwhelmed with a priority greater than speaking.  The Tent of Meeting became the place of attentive listening.  Moses heard the voice…And He spoke with him.”   (Raymond Brown, The Message of Numbers)

The place where God spoke was the mercy seat, the place of forgiveness of sin.  Sin blocks our communication with God, but at the place of forgiveness we are once again receptive to the voice of God.

Oh, how broken we are today! 

A broken nation…broken families…broken people.

No election, no Supreme Court, no political party can ever fix this mess we are in at this point in history.

Sin, national and personal, has blocked our ability to hear God speak.

But at this time of year, this Christmas season, we see hope for each of us.

Hope came in the form of a baby…God’s only Son…given to this old dark world to be the Light of the world!

“And the Word became flesh, and dwelt among us, and we saw His glory, glory as of the only begotten from the Father, full of grace and truth.”  (John 1:14)

The word “dwelt” means to pitch a tent.  God sent Jesus to live among the people…to pitch His tent much as the tent in the wilderness. 

This is how much God loves us and how much He wants to fix our broken.  We meet Him at the place of forgiveness where we confess our sin and trust His Son to be our Savior. 

Like Aaron, when we look closely we see all the brokenness of this world.  We see lights that don’t work.

But when we allow Jesus to forgive and to redeem, we step back and see that He is indeed the light of the world.

THIS is the message of Christmas! 

Jesus is our only hope today. 

He alone can fix our broken mess.  Please come to know Him today and listen to His voice in the place of forgiveness.