These Words

Last night I was helping Aaron turn down his covers as he got ready for bed.  Sometimes there is a moment that is especially poignant with Aaron.  A moment that hits me in a profound way…..in a way that causes me to remember where we were and what we were doing when the moment occurred.  The night before, Aaron….for whatever reason…..was very groggy and dizzy, with slurred speech and unsteady legs.  He was still trying to talk, but with great effort.

Last night, though, Aaron was his usual chipper self.   We were going through his bedtime routine as he talked and talked and talked.  He brushed his teeth, swished his mouthwash, helped me set up our diffuser – which means he poured in the water, checked the name of the oil, and took a little tentative sniff – watched as I turned on the baby monitor we use to listen for seizures, made sure I picked out his clothes for the next day and that they were on the back of his desk chair, put his back scratcher and hand towel on the seat of his chair, blinds lowered, desk clock turned around so the light doesn’t bother him, glasses put just where they belong, wrist watch put right beside his glasses, shoes in front of the closet, stuffed animals precisely in place in his bed, covers pulled up, and animal print blanket put on top of the bed exactly right and with no wrinkles.  It’s a process…..done precisely….or we must re-do the process until precision is reached.

It was when we were standing beside his bed, me on one side and Aaron on the other….pulling up his covers…..that Aaron said this:

“Mom, guess what Shauna is getting?”

Shauna is one of his friends at his day group, Paradigm.

“I don’t know,” I replied.  “What is Shauna getting?”

“She’s getting a NEW wheelchair!” Aaron answered.

Aaron had no idea of the impact of his simple answer to my question, and of the many thoughts that cascaded through my mind in a split second.  He just kept talking.

“I told her she should get a PINK one!!” he exclaimed, and then laughed at the thought of a pink wheelchair.

We smoothed his animal print blanket then.  He was finished with pink wheelchairs and had moved on to his bedtime log book…..his notebook in which he writes down the exact time he gets in bed and the exact time the next morning that he gets out of bed.

10:22.

That’s the time he wrote.

So was it 10:22 when Aaron spoke of Shauna’s wheelchair?  Or 10:21?  That fact would be important to Aaron.

But all I knew, after our goodnight hug and after I had turned out his light, is that my 33 year old son was happy about his friend’s new wheelchair.  That was nice of him.  But…..

Aaron wasn’t talking about his friend’s new car.  Or new job.  Or new house.

He was talking with pleasure about her new wheelchair……because his friends have special needs, like he does…..and a new wheelchair is indeed a big deal.

But as Aaron’s mother, this comment from him somehow yanked open that little door in my heart that I try to keep closed.  I try to keep it closed because I don’t want to hurt for him or for his friends.  I want to see his life as a wonderful thing, and it truly is!

But the reality of his life…..and the lives of his day group friends…..is far different from your typical 33 year old young man. Most young men Aaron’s age would be talking about new cars.  Aaron was talking about new wheelchairs.

I’m so happy that he was happy for Shauna.  But my momma heart got a deeper little crack in it last night.

I haven’t been writing lately.  I’ve just been very burdened about lots of issues.  Life goes in cycles like that, you know.  As a Christ follower, I know to be careful during those down seasons.  It’s very easy to be consumed with the here and now, and with all my own worries…..not to mention the serious concerns for some in my family and some of my friends…..and even our great country.

So I’ve asked God to do what I have often in the past asked Him to do, and that is to give me some extra special assurance from His Word.  And God did just that a few days ago.  He gave me a sweet message from His Word, ABOUT His Word.

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It’s from Isaiah 8.  Israel was facing dark times, and so God told them lots of truths about how they were to behave, how they were to act, Whom they were to obey and to fear, and even warned them about seeking answers from mediums and fortune tellers.

And then in verse 20, God said to Israel:  “To the teaching!  And to the testimony!”

That’s it?

Yes, that’s it!

That’s EVERYTHING!

Where do I need to go when I’m overwhelmed with burdens…..with darkness…..with struggles…..?

Where do I go when the reality of Aaron’s life makes my heart sad?

To a book?  To a person?  To an activity?  To food?  To entertainment?

NO!

To the teaching!  To the testimony!

In other words, to God’s Word.  Staying in my Bible.  Reading it with purpose, asking God to open His Word to me and give me direction….this is where I need to go.

Dale Ralph Davis, in his book Stump Kingdom, says it so well:

“Only the light of the written word will carry us through the darkness of our times.  This holds true whether the ‘times’ are dark historical times, dark personal times, or even the end of our present time.”

Davis then told about Robert Bruce, an old minister in the Kirk of Edinburgh, who on the day he died asked his daughter to set his finger on the last two verses of Romans 8:  “I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.”

“These words – that is always the Christian’s slogan.  Only in the teaching and the testimony is there light and help and anchorage.  The Christian is the man or woman who wades through the affairs of life always saying: ‘Set my finger on these words.’”

Wades through the affairs of life……the unexplainable, the sad, the hard, the heavy.

I must wade through it all with my finger on God’s Word.  No other substitute will give me the peace and the comfort that I will find as I read what God says to me in His Word.

I can’t tell you why Aaron has special needs.  I won’t say it doesn’t hurt, sometimes more than others.

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But let me tell you about God.  Let me tell you about His love.  Let me tell you that He is sovereign.  Let me tell you what He has written.

“To the teaching!  And to the testimony!”

 

 

 

 

The Surprise

I was walking through our vegetable garden one day in early summer, looking at the pretty little plants growing so nicely where Gary and I had placed them.  There was the summer squash on the front row, along with some zucchini.  The tomatoes were already inside their tomato cages that Gary had put up, and behind them were our okra plants.  Cucumbers were on the side of the garden near the tall oak tree.  We have a simple garden this year, not as full as it sometimes is, but enough for us and hopefully some to share with others.

Everything was where it should be, growing as we had hoped at this point, with no visible bugs or other problems that I could see. Weeds hadn’t started taking over yet, either, so I felt content as I turned to leave the garden.

But wait.  What was this?

I stopped between the tomatoes and okra as I noticed a plant growing in a place where we had not put a seedling.  It wasn’t a weed.  It looked for all the world like……a cucumber?  But what would a cucumber be doing here, when the rest of the cucumbers were all the way over on the other side of the garden?

I hadn’t planted it there.  Gary hadn’t planted it there.  Hmmmmm…….

I stood looking at it, wondering what to do.  There are any number of ways that a cucumber seed from last year ended up under the soil and then growing again this year.  I’ll never know for sure.

But what I did know was that I would not have planted that cucumber in the spot where I found it.  It was too near the edge of the garden, for one thing.  It might get all tangled up in the okra or try to climb the tomato cages.  It might want to grow out into the yard where Gary mows.  It might not flourish under the sunflowers that were soon to be planted right there where its leaves had sprouted.

Bottom line……that volunteer cucumber was just not at all where I would have put it.  I didn’t want it there.  I could think of all the reasons mentioned above that I didn’t want it growing where it had sprouted.

It hadn’t been in our garden plan at all.  Now here it was, intruding in a place and at a time that I hadn’t intended for it to be.  I hated to uproot a growing vegetable plant, however.

“Well, OK,” I thought.  “I guess I’ll leave you here while I decide what to do.  You’ll probably die anyway and then I won’t have a decision to make after all.”

And with that, I turned and walked out of the garden……my garden that now held a stray cucumber plant.  A plant that messed up my plan.  One that, honestly, I didn’t want.

I watched that vagabond cucumber plant over the next days…..days that became weeks.  I left it where it was, more curious as time went on to see how it would fare.  And guess what?  My stray cucumber plant grew beautifully!  In fact, it grew better than the other cucumbers that I had so carefully planned and planted on the other side of the garden.

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It wasn’t long before I saw the first tiny little spiny cucumbers growing under its leaves.  I tended it carefully, pulling its curly tendrils away from the tomato cages…..guiding the growing vine out of the yard and back to the garden…..watching another of its vines growing up a tall sunflower stalk.

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The fruit of that unwelcome cucumber has been beautiful and sweet.  We’ve benefited from it very much, and so have others with whom I’ve shared.  I’m so thankful that I didn’t follow my first response and pull the cucumber from the soil!  I’m thankful that I stepped back, gave it time, let it grow, and then enjoyed the sweet fruit…..and the lessons it has taught me.

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One thing we all know, if we live long enough, is that life is full of surprises.  We can be going along just fine, things working out the way we had planned, when BAM!!  We hit the proverbial wall.  Suddenly, things are NOT going as planned.  Now what?

As followers of Christ, we’re certainly not exempt from those detours in life.  In fact, God does put situations and events and people into our lives for a purpose that sometimes only He knows.  Maybe He’ll share it with us and maybe He won’t.  So again, what do we do?

Do we try to fix it?  Get rid of it?  Ignore it?  And if we can’t do any of those, do we argue with God?  Get angry?  Get bitter?

I mean, admit it, there are things that happen to us that that we just can’t see any reason for.  Really, God?  I would NOT have done that.  I would NOT have put that situation in that place in my life at all.  I mean, maybe another time…..another place…..or better yet, not at all!!

So, God, this wasn’t in my plan.  I had my life pretty well mapped out, you know.  Grow up….college….job….husband….kids…..family…..

I didn’t plan on Aaron falling back into my arms that Sunday afternoon 25 years ago, seizing and bleeding and unconscious.  That was most unwelcome.  I didn’t plan on being given his further diagnosis of autism 7 years after that.  I mean, isn’t Epilepsy enough?  I didn’t plan on still being his caregiver when he’s almost 33 years old.  Don’t You know about empty nest?  How welcome, on many days, THAT would be?

So…..this plant that You have placed in my life?  Why did You put it there?  I might agree to it in some form…..over there, in another area, to a different degree.  Here….just let me decide where it goes and how big it grows, OK?  Really, I would never have put it there in the first place…..in case You want to know.

But oh my goodness, what God has taught me over the years from that little unwanted seedling that popped up where I didn’t plan it!

What I’ve learned can be summed up with one verse in one of my very favorite Bible passages.  Psalm 18:30:

“But as for God, His way is perfect.”

There you have it.  Eight little words that speak incredible volumes about God and His sovereignty.

It doesn’t say that His way is easy…..fun…..pretty…..popular…..understandable.

Or fast.  Gary and I are in this life with Aaron for the long haul.

We each have our own situations that God has put, just so, in our lives.  As we stand and look at whatever that is, we must choose whether to accept God’s placement in our garden or to spend our life hating it.

But let me tell you, when you accept that God’s way is perfect and you let Him be that Master Gardener in your life, you’re going to one day see fruit.  You’re going to see growth in your life that you never thought possible.  You’re going to see beautiful fruit like peace, joy, thankfulness, wisdom.

And best of all, that fruit is what you’ll be able to share with others…..especially others who are suffering.  Comforting as you have been comforted…..blessing as you have been blessed.

God does know what He’s doing, after all.  His way IS perfect, and perfectly placed, in each of our lives.

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The Plans I Have For You

I think most of the nation has had a milder than usual winter.  Here in Kansas, we really haven’t had a winter to speak of.  Trees were budding, bushes were bearing leaves, and perennials were poking out of the ground in February!

I shouldn’t have been surprised…..but I was surprised……to walk past my front flower bed one day in February and look down to see that my Salvia had made an appearance.  There were fresh little green leaves sticking up through the ground, unaware that the month was only February.  Salvia don’t look at calendars.  They only respond to the warmth of the sun and the mildness of the nights.

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Something occurs deep underground, in their roots, that awakens them and urges them to respond.  It’s God’s miracle of growth, not tied to the month of the year but to the environment around them.  And even though that environment can at times be harsh still at this time of year……at any time of year, really……their roots stir under the right conditions and so they grow.

I was tempted on that February day to lean over and clear off all the dead leaves that looked like a hindrance to the Salvia’s growth.  But I left the leaves for insulation against the cold nights, and the snow that I knew could still come.

I’ve watched the progress of my Salvia over the past few weeks.  The picture from this morning shows how much growth has occurred.  The dead leaves, old mulch, and other clutter hasn’t prohibited my Salvia’s growth at all.  The perennial nature of this flower is alive and well as those new leaves push through all the mess around them.  It just faithfully grows and grows, quietly but strongly flourishing.

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This morning in my quiet time with the Lord I read some verses that are very familiar to many of us.  They are words spoken by God to the nation of Israel, recorded by the prophet Jeremiah.

“For I know the plans that I have for you, declares the Lord, plans for welfare and not for calamity, to give you a future and a hope.  Then you will call upon Me and come and pray to Me, and I will listen to you.  You will seek Me and find Me when you search for Me with all your heart.”   Jeremiah 29:11-13

These are verses of such encouragement and hope for all believers, not just for the nation of Israel during the time of Jeremiah.  But do you know where Israel was when God spoke these words to them?  They were being held captive in Babylon.  They were not in their home country, living freely, but were held as captive slaves in a harsh land far from all they knew and loved.

In the ten verses preceding these verses above, God had given some instructions to His chosen people through a letter written by Jeremiah and delivered to the exiles in Babylon.  God told the people to settle in to their new life in Babylon.  He told them to build houses and live in them; to plant gardens and eat their produce; to take wives and bear children; to increase and not decrease; and even to seek the welfare of their new city, praying to the Lord on its behalf.

You know how long God told them to be faithful in their captivity?  Seventy years.  SEVENTY years.

So when God then said that He knew the plans that He had for them……plans to give them a future and a hope……He also knew that this promise wasn’t coming to pass tomorrow.  He laid it out there for them.   He told them to live as He commanded and to be obedient to Him, even in their dire situation, for seventy long years.

God’s promise was given to them in the middle of less than ideal circumstances.   It wasn’t to be fulfilled immediately.  But while they waited, God wanted them to live their lives fully and faithfully to Him.

In fact, many of those Israelites would never see the promise come to pass.  They would die in Babylon.  Yet God still commanded them to be obedient and live the way He wanted.

How about us?  How does God want us to live every day?

He wants us to follow the example that He continually sets out there in His Word for us to see.  He wants us to be faithful to Him, to obey Him, and to grow no matter what is going on in our lives.

We may be going through awful times so full of grief and stress that we wonder how we can get out of bed every day.  God knows.  He understands.  He loves us.  He provides what we need.  He promises us a future and a hope.

But relief may not come today.  It may not come tomorrow.  Or the next day, or the next.  But like He told His people in Babylon, He says to you and to me today.  “Call upon Me.  Pray to Me, and I will listen.  For you will seek Me and you will find Me when you search for me with all your heart.”

It’s simple, really, but so difficult to do sometimes when our surroundings are bitter and hard and scary.  Call upon Him.  Pray.  Seek Him with all your heart.

Read His Word with an open heart to hear what He has to say to you.  Ask Him to lead your steps.  Obey what you know He tells you to do in His Word.

God will speak to you.  He will lead you to Himself.

And in the middle of your pain and your stress, you will grow.  Just like my Salvia in the middle of deadness all around it and the coldness of some nights…..still pushing through and growing, as God intended.

God loves you.  He truly does have a future and a hope for you as you follow Him, but not always…..in fact, seldom……without the suffering and sadness of this life.

But what a beautiful work He is doing in you and in me as we faithfully respond to His love and to His word in our lives!

So grow!  Grow where God has put you!

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You Want Me Gone?

The other night, Aaron kept coming in our bedroom after we had gone through his bedtime routine and said our goodnights.  Gary was already trying to go to sleep, and I wanted to do the same.  But Aaron kept opening our bedroom door and then softly knocking on our closed bathroom door……as softly as Aaron knocks, which is about as softly as he whispers……which is not much. 

“AARON!!” I hissed.  “Why are you in our room?” 

“I just wondered if you’re gonna have the monitor on,” he said.

“I’ve already told you I’ll have the monitor on,” I replied.   “Now go to bed!”

Not long after, it happened again.  Just repeat the above scenario, but this time Aaron said, “I just wondered if it’s going to rain tonight.”

I told him it was not going to rain…..and to go to bed, as I escorted him to our door, which I soundly closed.

Take three.

Same thing, except now he stood in the bathroom with me saying, “I just thought I could talk to you while you get ready for bed.”

The Mom look I gave him was all he needed, but still he just had to ask one more question.

“Are you SURE you want me gone?”

I assured him that I was sure as I yet again walked him to the bedroom door, closed it with one last goodnight……and locked it!

It’s been a rough couple of weeks with Aaron.  Both his seizures and his behaviors have escalated…..seizures at home, behaviors at his day group, Paradigm.  Another bad report this past Monday just took all the wind out of me.  Gary and I feel like nothing is working, but something has to make a difference.  We saw his caregiver at the Epilepsy Center this week, had labs drawn, will see his autism doctor before long, talked to friends who travel this road, are researching some options……and praying.  Praying a lot.

I was so thankful for the verse that God gave me this week.  The portion that meant so much to me was this phrase: 

“DO NOT HIDE YOUR EAR FROM MY PRAYER FOR RELIEF.”  (Lamentations 3:56)

It’s like that old story of the guy up in the tree with a coon, telling his friend on the ground, “Just shoot up her amongst us!  One of us gotta have some relief!!” 

It’s funny to hear that story…..not so funny to live with Aaron when he has so many behavior struggles that are severely impacting his happiness.  But all of us need some relief, Aaron included.

When he and I got home on Monday, after such a dismal report from his day group staff, Aaron went to his room.  Soon he walked up to me and handed me one of his sticky notes.  Here is what he had written:

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Bless his heart.  He really wants to do better, but finding that better is very difficult for him in certain circumstances.  Really impossible at times, as his Epilepsy nurse and practitioner discussed with me on Wednesday. 

That verse God gave me early in the week was perfect.  We need relief, as many believers through the ages have expressed, and as many of my friends are experiencing now in their lives in very serious ways.  The book of Lamentations is all about God’s faithfulness throughout the stresses and calamities of life on this earth.  In fact, the following verse after the author begs God to not hide His ear, says, “You came near when I called on You; You said, Do not fear!”

Good advice…..great promises!!

The day after these verses spoke so much to me….the day after Aaron’s bad day at Paradigm…..this happened.  I was out with my little elderly friend, Nora, when I got a text.  This text was from my friend in Texas, Dona, whose husband had a terrible stroke 11 months ago.  Dona and I rarely text, so I was surprised and a little alarmed to see her name appear.  I instantly thought it might be about her husband, Steve.

But all Dona said was, “Are you doing OK?”

Wow!!

She had totally, absolutely no way of knowing what I was dealing with.  We briefly texted, with her telling me that I had just been on her heart and mind.  God at work, without a doubt.

I could hardly wait to get home and call her.  We talked for quite awhile.  She told me again that she kept thinking about me and so she prayed.  I love it when God does these things!  He shows His love and His care in these amazing, wonderful ways, blessing all of us in the process.

A day or two later, Aaron and I were in Dillon’s.  We bought our few items, and then the cashier pointed to a large container of roses at the end of the conveyer belt. 

“Would you like a free rose?” she asked.

And Aaron jumped on that like a flea on a dog!!  He took a rose and then handed it to me, his face nothing but a huge grin.

“Here, MOM!”  he boomed.  “I want to give you a rose!!  Because I love you!!”

And with that, he gave me the biggest hug!  I thought my heart would explode!

The love note…..the rose……the hug. 

Mixed this week with the behaviors…..some scary seizures…..doctor visits…..decisions looming.

It’s like Aaron bounding in our room at bedtime, just when we think that he’s settling in for the night.  BAM!!  There he is again, full of talk and excitement, no matter how tired we are. 

“Are you sure you want me gone?” he asks.  No, Aaron, not gone…..but resting.  Go rest, and let us do the same.

His behaviors can be so very tiring.  This past week has been emotionally exhausting for us, as well as physically.  We could use some relief.

But we don’t want Aaron gone…..his personality and his take on life’s events to be gone.  We just want him to be happy, and to know how to behave in a way that makes others happy, too.  We have to keep working on that, and to keep trying to enable him to achieve that.

We’re praying for God to give us wisdom, and to not hide His ear from our cry for relief.  I know He’s listening…..I know He cares……I know He’ll answer.  He’s already impressed others to pray for us.  That’s such an encouragement!

And when I look at my lone little rose in its vase, I’m reminded of Aaron’s love and of God’s love, entwined in many ways in my life.  One so often shows me the other. 

I just have to be making an effort to look sometimes. 

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My View

I was in TJ Maxx with my elderly friend, Nora, last Wednesday when I got a call from Paradigm, Aaron’s day group.  I was tempted not to answer it, figuring it was Aaron just wanting to tell me about his day.  That could wait.  But I wasn’t sure, so I did answer and I immediately knew that the news was not good.  Aaron was on the other end, his voice thick and choked with anger and tears.  Here we go, yet again, I thought.  How I wish that Aaron could stay happy!

I picked him up as soon as I got Nora settled back at her apartment.  Aaron was asleep, so I had time to talk to the staff, all of us scratching our heads as to what caused his angry outburst that morning……and what the solution could be.  I found out from Aaron later what happened.  He tried to give his good friend two McDonald’s coupons and she didn’t want them.  She wasn’t being mean to Aaron, just honest, but Aaron felt rejected and very hurt, so he just had a total meltdown. 

Thursday was a better day for Aaron.  Then came Friday…..

I told Aaron that we would go out to eat when I picked him up at the end of his day.  His choice.  So he chose Denny’s, of course.  He does love Denny’s.  On the way to Paradigm, I talked to him about being nice…..being kind with both his words and his hands.  About talking to someone if he was angry or hurt.  He agreed with everything I said……until he walked into Paradigm.

I was waiting in the van after I dropped him off, waiting for him to come and tell me if they were going to a movie.  But instead, out the door came one of his staff.  She told me that Aaron had become verbal instantly with another client when he walked in the door.  Then out came Aaron, yelling at this staff as he stood on the sidewalk.  He eventually got in the van and off we drove.  My anger and disappointment and great frustration spilled out in harsh words as we drove toward home.  I was so mad at Aaron and mad at myself for being mad, and it just all boiled over. 

I pulled into Denny’s, deciding that it might do us both good to be in a neutral place.  Aaron sat on the curb before going in, saying that maybe he just shouldn’t go in to eat.  I told him to come on and he did, but for most of the meal I just sat silent.  I was exhausted and defeated and still battling my anger.  Aaron was scared……scared because of all the people from whom he fears rejection, he fears it the most from me.  He kept telling me that he loved me……kept trying to share his salad with me…..his crackers, French fries, chicken strips……even reached over, took my hand, and kissed the back of my hand.  Yes, he really did that.  I wonder who saw it, and what they thought of my lack of emotion? 

We ran into WalMart after our meal, where I picked up food for Thanksgiving bags for church, and Aaron tried to help.  I still felt numb, tired.  After I checked out, I looked toward the bench where Aaron was sitting, and this is what I saw.

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Then my heart did stir with sorrow for Aaron as this picture of him was a picture of dejection, and his own tiredness.  Oh Aaron, how I wish your life wasn’t so difficult and hard!  And how I wish you could understand that you so often make it that way, and yet so often you can’t control the impulses you have that make you make it that way.  It’s so complicated!

Aaron went right to bed when we got home.  I went to the patio, baby monitor and my Bible in hand.  I could listen for seizures while I spent some time unwinding and processing……reading my Bible and praying.  I could hear Aaron’s steady breathing on the monitor as I breathed out my prayer to God, asking Him for wisdom to know how to deal with these constant ups and downs from Aaron. 

I called my friend, Wendy, who walks this road that I walk.  She understands and doesn’t judge.  She offers counsel and advice, empathy and understanding.  And I know that she prays for us, for Aaron……prays with love and care.

Aaron was awake then, coming outside to test the waters……to see if Mom was still distant and angry.  He relaxed some when he could tell that I was better.  He smiled when I said that we could take Jackson for a walk around the yard.

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We walked down to the back of our yard, around the huge evergreens that hide the very back loop of our property.  It’s an area that is hidden from view as you stand on our patio or look out our windows.  You would never know it’s there until you walk behind the thick trees that keep it hidden.

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I stood looking at the eerie sight.  Branches of the old trees there hang low, gnarled together as they bend toward the ground.  A finger of the neighborhood lake curls around under the limbs, still holding water since we’ve had such a wet summer.  It’s a shadowy and dark place, a little creepy even.  It’s interesting, but not warm and welcoming……not a place I want to linger for long. 

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As we stood there, Aaron talking and Jackson sniffing the bushes and tall grass, it hit me that this is so much like our life with Aaron.  Anyone who lives with a person who has autism…..or multiple seizures…..and takes tons of meds to help them…..knows what I mean. 

Aaron is funny and smart and often kind.  But he is also prone to angry outbursts where he is hurtful and unreasonable.  For days we may mostly see the pleasant side of Aaron, but we know that hidden inside him is still the anger and the frustration that he feels, and sometimes releases.  It is not a fun place, and it is not a place where we desire to linger.  Yet sometimes Aaron makes us linger there as his brain is going through whatever his brain goes through at those times. 

I know that mentally and emotionally I must walk away from the shadows that threaten to engulf me when I am overwhelmed by Aaron’s behaviors.  He needs me, for one thing.  And I need to stay whole and strong, loving and forgiving.  It’s not easy, but I must.  Friends and family help.  A good staff at Paradigm helps.  Gary is my biggest help, taking over when I can’t.  And definitely, crying out to God helps the most. 

Aaron and I turned from that scene, finally, and went back out into the open yard…..to the sunshine and grass……to the full view of our welcoming house.  Likewise, given a little time, he and I returned to our normal relationship.  I love him dearly.  I know he needs me.  He needed me when he had three hard seizures during the night on Friday.  But he also needed me even more when he was out of control emotionally that day.  He needed me to believe in him…..to discipline him……to try to help him even when he pushes me away……to care for him and to love him.

Behaviors are perhaps the hardest part of Aaron’s disability.  They are frustrating, embarrassing, and exhausting at times.  Families who deal with this need extra love and prayer.  Staff who deal with this need the same, as well as frequent thank-you’s for what they endure. 

Aaron’s behaviors hold him back in many ways…..and could easily hold us hostage in many ways, as well.  But Gary and I know that we can’t let the dark times be our focus.  Like the staff at Paradigm says, today is a new day and we start all over.

We don’t always get to choose our view on any given day, but we don’t have to stay forever where the view is scary and dark.

“Today is the day that the Lord has made!  Let us rejoice and be glad in it!”  (Psalm 118:24)

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How Quickly Things Can Change!

This past Saturday, I took advantage of the beautiful weather and spent some time in the garden.  I ended up with a large bucket full of tomatoes.  Our tomato plants have produced beautifully this year!  It’s certainly the best tomato year we’ve ever had.  I’ve canned quite a few quarts, and as I looked at my overflowing bucket I knew that there would be more canning soon to come. 

Aaron was in a very happy mood over the weekend.  One of his favorite staff from his day group came over for pizza on Friday evening.  When he left, Aaron got to spend some time petting our neighbor’s cat, Dallas.

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There was a favorite television show to watch that night, too.  And the next day there was time outside, time playing Skip-Bo, and tacos for supper that night.  It doesn’t get much better than that!  Simple joys are sometimes the best joys.

Aaron was in such a helpful mood on Saturday, too.  He helped me cook the tacos and set the table.  And then he offered to help me wash the tomatoes from the garden after supper.  We got them all cleaned up, with Aaron stacking them higher and higher on the counter.  We laughed when four of them fell on floor and we had to reposition the tomato tower. 

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On Sunday afternoon, Gary and I had hoped to take Aaron to a corn maze.  However, Aaron started complaining of a sore throat.  We could also tell that he was getting a cold.  We’ve learned not to tell him in advance that we might go somewhere, just in case it doesn’t work out, so he was none the wiser when Gary and I cancelled the corn maze idea.

On Sunday night…..actually, early in dark morning hours on Monday……Aaron had a seizure at 1:20.  Then another and another, until finally he ended up having five very hard seizures in five hours.  He was already struggling with all the head congestion, so the seizures were a little scarier than usual.  He bit his tongue and wet his bed – all the bad stuff that points to hard seizures. 

He slept all day yesterday, Monday, on the couch while I washed all of his bedding.  When he did awaken, he sounded terrible because of his congestion and his swollen throat.  He was running a fever.  He was terribly weak, the seizures having taken quite a toll and then his illness making matters worse. 

He very slowly made it up the stairs in the late afternoon, on all fours like a monkey because when he’s weak he feels safer that way.  He climbed in bed and immediately fell back to sleep.  He got out of bed for an hour, later in the evening, and then slept all night last night. 

I took him to the doctor this morning.  Aaron had pneumonia last year and was in the hospital for a week.  That was my fear now, but thankfully he doesn’t have pneumonia.  In fact, we’re treating this as a virus and waiting to see what happens.  Too many antibiotics last year was really hard on his body for months afterward, so we want to avoid those drugs if at all possible. 

Aaron ate a little lunch when we got home.  Now he is sleeping, again.  Poor guy. 

And I’ve been thinking how quickly things can change.  Sickness with Aaron is more serious than it usually is with most of us.  Sickness on top of five hard seizures has just done a number on him.  He is very slow and wobbly, and extremely tired.

It’s amazing how we could go from this:

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To this:

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To this.

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Hopefully, what Aaron has right now is nothing terribly serious.  But the stark change that he has gone through, literally overnight, is a reminder to me that we just never know what a day……what an hour……might hold for us. 

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In James 1:2, James told us to consider it joy when we encounter various trials.  That word “consider” means to make a judgment.  It’s up to me to decide how I’m going to view my hard times.  It’s my call.  And various trials really mean “multi-colored trials.”  I think we all would agree that trials come in all different colors.  God uses a wide variety of situations in my life to grow me and to teach me. 

But again, it’s what I do with my trials that can make all the difference.  It’s like Aaron’s pile of tomatoes, stacked up on the kitchen counter.  I could have left them there, where eventually they would rot and be no good for us or anyone.

Or I could do what I did Monday while Aaron slept nearby on the couch.  I could use the tomatoes for something good……for something that will benefit us during the cold winter that’s coming.

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It was my decision what I did with those tomatoes.

And it’s my decision what I do with the trials in my life, so often unexpected and unwelcome.  God is waiting to grow me through the troubles I have.  I don’t have to understand them, but I do have to make the choice to let God use them in my life for something good…..and in the lives of others as well, I hope. 

Not to become bitter, but better.  And then in future cold days that may come, I will benefit from the lessons learned…..learned in the hard times. 

 

 

 

 

 

 

The Shriveling Sunflowers

Aaron had been wanting us to plant some sunflowers for quite some time.  This year I finally bought some sunflower seeds…..giant sunflowers, no less…..and while I was off to Houston to see Andrea in June, Gary and Aaron planted the sunflower seeds.  They rim our garden on two sides and have grown, and grown, and grown some more.  It’s been fun to watch them as they have progressed from little seedlings to what they are now.  They are indeed giant sunflowers, living up to their name as we hoped they would.

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One day, though, Gary announced that he would need to move two of the sunflowers.  That’s because those two thriving plants were in the way of the sprinkler head that Gary had installed in that front part of the garden.  I was tempted to say that we should just throw them away.  We had enough sunflowers and wouldn’t even miss those two, I thought.  But something stopped me from making that suggestion.  I also admire Gary’s care of our plants and animals, sunflowers included; so I just watched one day as he carefully dug two new holes, gently took those two intruding sunflowers, and placed them in their new locations. 

It didn’t take long, though, to see that this move had taken a severe toll on both the sunflower plants.  They were no longer standing straight and tall, but instead had drooped dramatically.  “They won’t make it,” I thought one day as I went to the garden to pick some produce.  “The change and the move was too much for them.  We really should have just thrown them out.”  You can see how pathetic they looked.

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I could have pulled them up right then and tossed them in one of our trash cans outside.  But again, something stopped me……and I’m so glad it did. 

I’m glad because in only six days from when I took those pictures of our very sad sunflowers, I again went out to the garden and was amazed at what I saw!  Look at this!

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Both sunflowers had grown!  They had not only grown, but they were each producing the beginnings of a sunflower BLOOM!!

Sure, they still looked a little worse for wear.  They still carried some scars from being transplanted.  Some of their large leaves were still wilted, and many of the damaged leaves had died, shriveling and brown.  But if I looked up above the evidences of their past stress, I could see life……new leaves, new growth, and definitely a sunflower bloom.

A couple days later the bloom on the sunflower at the end of the front row, the one that had looked the most hopeless to me, had opened even more.  Other sunflowers in that front row were now blooming as well, but this one had beat them to it and was holding its own among the taller, less damaged plants.  My miracle sunflower!

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Have you ever felt like life was going along just fine?  You enjoyed where you were…..what you were doing…..who was surrounding you?  But one day things changed.  Maybe it was over a matter of time, long or short, or maybe it was sudden.  But you found yourself transplanted, in a sense, from what you loved…..from what was comfortable…..even perhaps from people that you enjoyed being around.

When life changes like that and we are put into the unfamiliar or the unwelcome or the uncomfortable places, then it’s natural to shrivel up as we react to the shock of such changes.  We don’t have the strength on most days, we think, to continue on like others around us seem to do so easily.  Don’t they see our pain?  Don’t they feel our sorrow?  And even if they do, they really don’t……totally. 

But the real issue is our own adjustment to our new normal, trusting the One Who transplanted us in the first place.  Why did God think it was OK to yank us out of our growing place and put us somewhere else……somewhere that we never asked to be?  Yes, we said we trust the Lord and we trust His plan and all that, but we never dreamed that His plan would be so difficult.

Those sagging sunflowers had two things that I had not counted on nearly enough.  Roots under the soil, and sunshine up above.  The roots took hold, and the sunshine gave strength and growth, despite the trauma of being uprooted and replanted.   Those sunflowers had elements fighting for them that enabled them to eventually perk up and once again grow like they were meant to grow!

Moses looked at the children of Israel in the desert after they had just crossed the Red Sea.  They didn’t like being slaves, but this freedom business wasn’t all it was cracked up to be, either.  They had just seen God open the waters of the sea so they could cross over.  Moses then reminded them of a valuable, life changing truth.

“The Lord will fight for you, while you keep silent.”  (Exodus 14:14)

Oh, how many times I have doubted God and His plan in my life!  Or if I haven’t exactly doubted, I have deep down wondered about why I am where I am.  I liked where I was before.  I liked how things were going.  But this business of having God yank me out of my place I loved……even the place He had at one time PUT me……is not all it’s cracked up to be in all the sweet devotional books I have read.  It’s just hard sometimes…..and exhausting.

I have felt like my two sunflower plants sometimes.  Shocked……tired…..unhappy…..positively wilted. 

But what God told Israel……what He tells me……what He tells you……is still true, every single day.

He will fight for me.  There’s something to be said for being rooted in Him, and for feeling the warmth of His Word in my heart even while I’m trying to adjust to this new place.

And God doesn’t need me to do anything while He’s fighting.  Just keep silent.  “Be still and know that I am God,” David said in Psalm 46. 

My keeping silent is sometimes the hardest part of all.  I want to complain…..to question…..and most assuredly to suggest to Him a better plan.  A better place in the garden.  A better will for my life.

But He just wants me to zip my lips and watch Him take care of every issue and every concern and every worry and every frustrating moment and every sadness.  I think that about covers it.

And God will cover it, too.  He will fight for me while I am silent, watching and waiting for Him to take care of the battle.

Then one day I’ll notice something.  A bloom.  And some new leaves.  I still might feel some scars and see some not-so-pretty leaves, but I will see that I AM growing.  I AM still alive after all the stress.  Not because I am so strong, but because God is so able.

He did the fighting for me while I just did the lip zipping and the trusting.  I may never understand the reasons for all the upheaval, but I don’t need to understand.

I just need to obey, and then to enjoy the new life that God gives me.  New blooms…..new chances to thrive again……new experiences. 

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An opportunity every day to look past the stress and into the face of the One Who is fighting for me with everything He has……and that’s more than enough.