Category: Adult Autism

Being Aaron’s Mother

I was awake early this morning, looking forward to coffee and quiet time before the busy start of the day began.

But just as I was climbing out of bed, so was You-Know-Who.

I thought maybe he would just go to the bathroom and back to bed.  But that hope was dashed when I heard him turn on his lamp that sits on his nightstand.  Turning that lamp on usually means he’s up to stay.

No sooner was I downstairs with my cup of coffee than I heard his familiar thump-thump-thump down the stairs. There he stood beside the table, staring at me.

I smiled and wondered if he could tell my heart wasn’t in it.

“Hey Aaron,” I said.  “It’s early and you could still sleep some.  Do you want to go back to bed?”

“No,” he replied.  “I want my coffee.”

“Are you sure?” I asked. 

“Yes,” he repeated. 

I gave him a playful look along with a little laugh.

“Don’t laugh at me!” he angrily said.  “I don’t like to be laughed at!”

And we were off and running. 

I tried to explain the difference in teasing and being rude for what I’m sure must be the millionth- something time.

And for the millionth-something time Aaron didn’t get it.

He proceeded then to come downstairs repeatedly to talk…about anything and everything.

How we didn’t pay him his allowance last night.  How barracuda live in the deep ocean and why do unmanned submersibles have to go down deep?  How long will it rain?  Can you show me on the radar?  I think I need to change clothes because it’s cold so can you pick out new ones for me?  I’m hungry.  Can I have some sausage?  Can you fix my stuffed animals in my bed?  We can’t go see Sheep Detectives at the theater since it might be crowded today so when will it be a day that’s not Mother’s Day that we can go see it.  And so forth and so on and on and on and on….

I sighed and rubbed my eyes.

“What’s wrong?” Aaron asked.

“Oh, nothing,” I answered.  “I’m just tired.”

“Well, I wish it wasn’t Mother’s Day and we could go see Sheep Detectives,” was his response.

Dear dear Aaron.  So oblivious to other’s feelings much of the time.

I was finally able to slip out on the patio after he was settled in his room.  It was nice to listen to the softly falling rain and the birds. 

But I thought about how many family’s plans might be disrupted on this wet beginning to Mother’s Day.

Yet we need the rain.  Feelings for many were mixed this morning, I was sure.

Mixed feelings much like I was having with Aaron on this Mother’s Day, of all days!

I love Aaron so much but on mornings like this when he interrupts my plans with his talking and his attitude, I feel frustration mounting.  He was raining on my morning!

But just like we need the rain despite the inconvenience, I often need Aaron to remind me that being his mother is a calling that God placed on my life. 

Living with Aaron isn’t all funny sayings that he comes out with that make us laugh.  It’s also repetition that gets very old…anger that tries us to the core…demands that frustrate us…worries about his health and his future that keep us awake at night….

And when despair rains down on me, though I often fail in mothering him with total grace and kindness, God doesn’t fail me.

He is always there to pick up the pieces when I break, to forgive me as I often must forgive Aaron, and to remind me of how much love He has for me and for this unique Aaron that He gave to us. 

To all of you who mother special needs children…really, children of any kind…know that God has sent the rain to grow you to be more like Him.

It’s not that he gives special children to very special parents.

It’s that He shows us very common and weak parents what a special God He is.

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Another Unkie Aaron Update

It’s been a minute since I wrote an update on Unkie Aaron and his “boy nephew,” as he calls Ryker.  And now we happily include his “girl niece.” 

And “Unkie” is still what Ryker calls Aaron…adorably so.

But first I want to begin with an object lesson from this morning.  Aaron asked me to help him straighten his stuffed animals after he got out of bed, and while I was at it to also help him get his covers in order. 

Aaron loves his Christmas blankets and wants to still have them on his bed.  He and I got his layers of sheets and blankets all straightened up just so.  He is very particular about their placement and careful to get as many wrinkles out as possible.  If I ignore this importance in Aaron’s life, I will pay with his frustration that often turns into full-blown anger.  But if I show him that I value his emphasis on what to me seems minor, his contentment is well worth the interruption that helping him has caused me. 

Sometimes this aspect of autism is very hard to remember and to value.  After all these years I still find myself rolling my eyes, sighing, and expecting Aaron to think as I think. 

Silly me.

We have had our precious grandchildren over to our house more often lately due to our son-in-law’s work schedule.  Initially, this arrangement did not go well with Aaron. 

It’s easy for us to want to say, “For crying out loud, what’s not to like?!”

Until we take a deep breath and think like Aaron thinks…or at least try to think like Aaron.

Aaron doesn’t like his routine and schedule to be disrupted any more than he likes his sheets and blankets to be jumbled and wrinkled.  A three-year-old and a one-year-old are, to Aaron, major wrinkles in his otherwise (mostly smooth) life at home.

Aaron doesn’t understand that they don’t understand what he wants and likes and needs.  It’s an enormous leap for Aaron to comprehend that Ryker thinks like a three-year-old.  Aaron has no idea what that even means. 

We can’t pick and choose what areas of Aaron’s life are affected by his autistic mind.  Every single corner of Aaron’s world is colored by how he thinks and feels and reacts, as is all of ours.

We’ve had bursts of anger from Aaron and some very trying situations. 

But we have also recently had a long stretch of Aaron looking forward to their visits. 

Aaron has been a fun buddy to Ryker more than he has been a grumpy Unkie. 

They have played fun games.

Eaten fun food.

Shot nerf guns together.

And Aaron loves for Ryker to join him in his nighttime routine of listening to sounds and watching videos of his “animal of the day.”

Aaron still examines Cora as if she is an unusual little creature to watch and learn about.

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And little Cora looks at him the same way.  We got such a kick out of her trying to mimic some of Aaron’s hand gestures.

Aaron loves to give her toys to play with, including some of our little garden creatures.

Our home is certainly not typical in many ways but in many other ways the uniqueness that Aaron brings, I do believe, will grow and shape Ryker and Cora into people who will have an innate understanding of special persons like Unkie Aaron.

They may someday be straightening Aaron’s sheets and covers while not being one bit surprised at how important this is to their Unkie Aaron.

And this ability taught to them by their Unkie Aaron will be a very rare and precious gift.

The Thanks I Get?

Yesterday Aaron and I delivered roses to his day group friends at Paradigm.  Our local Dillon’s store and our sweet friend Jody organize this special treat every year. The smiles and excitement are so much fun to see.  

Last night Aaron was cleaning out the bag he takes to Paradigm.  He came running into the kitchen holding…something.

“MOM!” he excitedly said, “this is for you!”

He held out…this.

“Victoria wanted me to give you this to say thanks for the rose today!” he explained.

It was so hard not to laugh.  

This…was an old, mangled, broken candy cane, complete with food crumbs stuck in the open spots.

Now, I know Aaron and I know with a fair degree of certainty that Victoria did NOT send me that worn out candy cane.  Aaron found it in the bottom of his messy bag and impulsively came up with what he thought was a solid story whereupon he could gift me with…this. 

Aaron’s love language is giving gifts.  

He just needs a little work sometimes on the choice of gifts he gives.

We’ve been having some rough times with Aaron.  He’s been struggling with some things that make him respond with anger toward us.  

A trait of autism is a focus on oneself because they want their world to operate in the order that gives them peace.  Interruptions to that order can cause lots of anger, taken out on me and Gary at home.

Then there’s the care that Aaron requires on so many levels, care that often ties us down and intrudes upon the way we sometimes want OUR world to go.

I’m not complaining and I hope I don’t sound selfish.  These are just the facts.  Parents of children are caregivers, and having our adult Aaron still with us is like having a child still at home.  Special needs then compound the situation a lot!

It’s easy to get mired down in the daily and to feel like all I do for Aaron is unrecognized by him, which is often true.  

Like I’m left holding onto more broken when I’ve had enough, thank you.

But one morning I was especially encouraged when I read the words of Nehemiah 5:19:

“Remember me with favor, O my God, for all that I have done for this people.”

Caregiving is so often self-sacrificing, but it’s a walk of life that honors God.  I don’t always have the right attitude, and I have anger issues sometimes, too.  

Yet so many times, during the mundane or dirty work, when I am tired and feeling very unappreciated, I remember that I am remembered. 

I am remembered by God.  He sees me.  

And everything I do, I really am to do for Him.

There are many of us working day after day after day to care for someone in our lives.  We are not on a public stage, sought after and held in high esteem.

But we are noticed by God, whom Hebrews tells us will not forget our work and labor of love we have shown for Him by helping His people.

And this…this is a promise I can hold on to when the serving is hard.  

It’s like the biggest and best thanks ever!

It’s A Matter of Time

On a recent Saturday afternoon, Gary and I were getting ready to attend an anniversary celebration for some dear friends.  Aaron was not one bit happy that we were leaving.  Who knows why?  Autistic Aaron is all about his schedule, his established routine, his expectations…

And his timing.

We were leaving the house just after 2:00.

“Mom!”  Aaron said, “can you be back by 3:00?”

“We’ll try, Aaron,” I answered.

“Or 2:59?” he added.

We smiled as we got in the car.  One minute to Aaron is a huge deal!

Later, as we walked in the house, I looked at my phone.

It was 2:57!  Yay for us!!!  

Or not.

The fact that we were two minutes early did not impress Aaron like I hoped it would.

He was instead still stewing and brewing over the fact that we left him in the first place.  

Aaron teaches me a lot about my relationship to God.  This incident was no exception.

I thought about this time issue as I read Psalm 31:14 this week.

            “My times are in Your hand.”

Short and simple, but so profound.

Aaron wanted our times to be in his hand on that Saturday.  He wanted to be in control of our coming and going.

All too often I’m that way with my life, and especially with the lives of those I love.  I say I trust God but sometimes, deep down, I want to control the timing of things I want to see happen.  

Like I’m looking at God and saying, “How about 2:59?”

Dale Davis wrote, “When he (David) speaks of ‘times’, he doesn’t mean merely his life span but all the kaleidoscope of circumstances that meet him left and right.  Calvin rightly draws attention to the plural form – “times,’ and says that David uses it to mark the variety of casualties by which the life of man is usually harassed.”

We all know that life is full of things we wish hadn’t happened, weren’t happening now, or weren’t on our horizon.

But for the follower of God…for those who can truthfully say like David did: “You are my God.” – we can follow those words with the ones that David said: “My times are in Your hand.”

And then leave it there.

“But I trust in the Lord, I will rejoice and be glad in Your lovingkindness, because You have seen my affliction; You have known the troubles of my soul, and You have not given me over into the hand of the enemy; You have set my feet in a large place.”

Notice The Flowers

I hurried into the house one afternoon with my sister-in-law.  We had been running pre-Christmas errands.  My mind was on many things that needed to be done as I hurried around the kitchen putting items away, planning which to-do item on my list to do next, talking, hanging up my coat…and then I saw them.  There in the middle of the kitchen table was a vase of beautiful flowers.  I had been scurrying all over that area but was so occupied in my busy that I didn’t even see the beauty and the love right there in front of me.

I was embarrassed.  My husband had bought those for me for no other reason than to show his love for me and I hadn’t even seen them for quite a long time.  I thanked him profusely and he just laughed.  He knows how I am at Christmas.

We’ve had some sweet ups and some rough downs with Aaron lately.  It’s a struggle for him to share his home and change his routine during Christmas.  He has had times of deep anger and strong words.  Sadly, we have in some moments reacted in the same way to him.  

We are not always the poster children for patience.

Remember the old hymn, Count Your Many Blessings?  I love the last verse.

So, amid the conflict whether great or small,
Do not be disheartened, God is over all;
Count your many blessings, angels will attend,
Help and comfort give you to your journey’s end.

Sometimes I’m slow to notice God’s blessings when I’m in the middle of stress and worry.  But with Aaron in particular it’s easy to get caught up in wondering when the next shoe will drop or rolling our eyes at his demand for sameness in his life at the expense of what we are doing during a very busy time.  

But really, instead of rolling my eyes so easily I need to stop and see the flowers right there in front of me…to see the progress he made during all the upheaval of Christmas.  

He happily unwrapped candy for our cookies.  See the flowers?

He loved a walk with Ryker.

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He and Ryker played games.

I don’t have pictures of other blessings.  How he shared with Ryker and Cora some of his fun toys along with as many snacks as he could.  He gave unexpected hugs and I love you’s before bed several times.  

And he was able to wait for our Christmas celebration to come later when more family could be here.  Well, mostly wait.  He did open two presents on Dec. 25 because Christmas IS ON DECEMBER 25, PEOPLE!!  

But he was all smiles on the day we did celebrate Christmas.  

All this and so much more across the board have reminded me of Psalm 103:2:

         “Bless the Lord, oh my soul, and forget not all His benefits.”

At night when I pray with Aaron, I have started asking him to tell me one thing for which he is thankful.  It’s a good lesson for me as well as for him.

I hope these simple words today will remind you to stop and see the flowers right in front of you.  God’s benefits and blessings are around us even when all we might be seeing and feeling are the burdens.

Aaron’s Joy to The World

Today after I picked Aaron up from his day group, we went to our vision center to get Aaron’s bent glasses un-bent.  This will not be the last time we do this.

Aaron was super excited to show me the Christmas antler headband he had gotten at his day group.  Of course, he grabbed it as we left the car and put it on his head as we walked in the door to the vision center.

I saw three other people sitting in the glasses area and thought our wait would be too long so I told Aaron we should just try again tomorrow.

This Plan B of mine was not acceptable to Aaron.

The poor new-to-us receptionist that was headed around the corner to the waiting area was suddenly waylaid by Aaron before I could even grab one of his antlers.  

“HEY!” he loudly exclaimed to her.  “Can I stay and get my glasses adjusted?”

She stammered as I began to tug on Aaron’s coat while explaining to her that we would come back tomorrow because the wait might be too long.

“No,” Aaron said, “can I get my glasses fixed now?  They’re bent!”

“Well, sure,” she kindly responded, “you can get them fixed today.”

“But I think we should come tomorrow,” I began.

But Aaron was taking off his glasses and reached out to hand them to her.

“Here!!” he said, “can you fix them?”

I had to explain that she was not the glasses fixer as she went back to her chair and signed Aaron in and my fate was sealed.

“Wait!” Aaron blurted out as we sat down.  “Since we might have to wait, I need to get my sticker book out of the car.”

He was gone in a flash while I watched him from the window and hit the unlock button on my app.

The car would not unlock.

I tried again.  Aaron stood there staring at me in the window and shaking his head no.

So out the door I went, got the door unlocked, and Aaron grabbed his book before walking briskly back to the waiting room.

Just as we walked in, the technician who knows us smiled broadly as she called Aaron’s name.  

Actually, everyone knows us if I have Aaron with me.

This lady is the kindest person and she loves Aaron.  She complimented his green sparkly reindeer antlers and then asked to see his latest sticker book.  She took all the time in the world to talk to him, all the while with a huge grin on her face and true delight.  

He was already busily filling his sticker book page as she got up to go in the back and work on his glasses.  The page wouldn’t stay open, so he took the mirror on the table beside him and put it on the page to hold it open.  He acted perfectly at home to do that.  

I just relaxed in my chair.  It felt good to take a breath after our very hectic and loud entrance.  It was a big relief to be with someone who knows Aaron and who loves to talk to him.  

Aaron didn’t see anything at all amiss about his loudness.  He was totally unaware that all eyes were on him.

But me…even after all these years I still feel the eyes of the people around us and I struggle sometimes with embarrassment.

Yet I looked at Aaron sitting there, green antlers and all, with the mirror holding his book open and his eyes intent on each sticker being placed just right…

And I thought how to Aaron, everything in that moment was just right, too.  He was getting his glasses adjusted and he was talking to someone who truly was interested in his every word, and he finished the picture he had started.

I looked around and saw the other technicians smiling at Aaron and at me.  His comments were delighting them.

Aaron moved the mirror and gathered his book up after we were done.  He was up and off without even a goodbye as our friend just laughed with…joy.

That was it, I thought.  Joy.

I saw other patients smiling at us as we walked out, Aaron’s green antlers shining as he led the way to the door and the car.

There it was again as we passed them.  Joy.

It was on their faces.  I wondered what was on my face when we first came in the waiting room.  I can tell you it wasn’t joy.

There are plenty of times that Aaron exasperates me but today it did me lots of good to pause and see that Aaron does have his unique and uninhibited way of spreading his own brand of joy to others.  

I want to remember this day.

Green antlers and all.

You’re Looking for Reindeer WHAT?!

Our sweet (and funny!) friends got Aaron this exploding reindeer poop for his birthday.

He LOVES it and has had so much fun sharing it with Ryker. Recently he and I went to Walmart to buy more of the poop (REINDEER poop!).

Of course, Aaron, who loves to accost every Walmart employee within sight to ask them where something is, was on a mission.

We couldn’t locate the poop (REINDEER poop). As we walked up an aisle, Aaron began veering toward a woman in the unmistakable blue Walmart vest.

Me: AARON! Do NOT ask anyone where the reindeer poop is. We can find it ourselves.

We had already looked in one section of Christmas supplies without success. Soon I saw an employee walking our way.

Me: Excuse me, I have a question…..

Aaron: We’re looking for the reindeer poop! Can you tell us where it is?

Me: Aaron, HUSH!

Me (trying again): Is there another section of Christmas decor and so forth?

He was able to answer my question despite his confusion and on our way we went, with me ordering Aaron in no uncertain terms to NOT ask any other poor innocent employees for help finding reindeer poop.

Soon we were in the garden section, scouring the Christmas aisles for reindeer poop, when there stood an unsuspecting blue-vested Walmart employee with a smile on her face. A smile which Aaron took for an open invitation to ask the dreaded question.

Aaron: HEY! Do you know where the reindeer poop is?

Me: AARON!

Aaron: I’m just trying to help us find the reindeer poop.

So I felt the urgent need to do some explaining about reindeer poop while she told us where it might be and I continued with my explanation more fully while Aaron briskly walked toward, hopefully, reindeer poop.

I hurried to catch up with him.

Me: AARON! I will find the reindeer poop!!

We did locate it, finally. Aaron was super excited and rubbed his hands together furiously while I carried the poop prize to self-checkout.

Hey, if any of you want to buy some exploding reindeer poop I can lend Aaron to you. He’ll help you find it or find who will.

I dare you. 🤣💩🦌

Aaron’s Lost Order

One day last week our exterminator was coming.  Aaron’s favorite storage place is his bedroom floor, so I had reminded him to clear his floor before we left the house.  

Soon a very upset Aaron came bounding up to me.

“Mom!!” he angrily said, “I lost the order of books!!”

When I walked into his room, I saw this.

His large stack of books had taken a tumble, ruining the careful order that Aaron had put them in.

I knew not to dismiss what to us would be no big deal.  To Aaron, this mayhem was a HUGE deal.

We got the books put on his bed as I assured him that he could restore the order when he came home later that day.

This is a perfect picture of our life with Aaron, more so lately than perhaps ever before.

Aaron has a rhythm to his life that he creates.  His routines and methods are vital to his happiness.  

We know better than to discount his routines.

There is always a balance in our life with Aaron as we seek to help him manage disruptions while at the same time validating his concerns…concerns of his that can lead to serious anger outbursts from him, which in turn lead to disruptions in our life.

Sadly, Aaron isn’t concerned about the effects he has on us.  Autism often manifests itself as narcissism in Aaron and in most others that I know who struggle with this condition. 

I have always said that physical disabilities are much easier understood than behavioral ones.

For instance, we have sadness and sympathy for Aaron when he has seizures.  The interruptions in our life that seizures might cause when we must change plans are clearly understood.

But when Aaron loses the order in his life that he has created he reacts with anger that sometimes becomes rage.  Nothing we say or do at that point has much if any effect.

I know when Aaron has a seizure that I can’t tell him to just wake up and come take a walk with me.  He understandably is unable to do that.

But I must also know that when Aaron has an emotional meltdown over something that has upset him, I can’t tell him to just get over it and stop being ridiculous.  He understandably is unable to do that either.

Except most of the time, at least on paper, his behaviors at those times are not understandable to most people.

My husband and I understand what is upsetting Aaron, most of the time, better than anybody.  

But again, those behaviors of his…goodness, they take a toll on us some days.

Autism surely is full of puzzle pieces, but we don’t have a picture on the box to tell us what the finished puzzle will look like.

And the pieces keep getting rearranged as Aaron’s order from day to day gets lost in one way or another.

Sometimes, though, a sweet picture starts taking shape from all those random pieces that we’re trying to fit together.

Despite lots of anger lately about having to fit his precious nephew and niece into his life and how their being here at our house causes his order to be mostly lost, he does often pull it together and shows his caring side.

Saturday evening, I watched Ryker climb up on Aaron’s bed and hand Aaron his current favorite Golden Book.

Aaron took the book and started reading Goldilocks and The Three Bears.  

When I read that book to Ryker, I use all the voices.  Papa Bear has a deep voice.  Mama Bear has a medium voice.  Baby bear has a little baby voice.  Ryker does the same when he “reads” it to us.  

When I read it to Ryker, though, we don’t make it through the whole book in one sitting because Ryker is soon off and running to his next adventure.

So, there was Aaron propped up in bed with Ryker kneeling on the bed nearby staring at him.  Aaron began to read Goldilocks and The Three Bears.

Except Aaron read the story with no inflection in his voice…no deep voice or medium voice or baby voice.  

No excitement.  No change in his voice when he read a question.  

Just a monotone monologue.  It was really hilarious.

And Ryker didn’t move a muscle.

Maybe he was in shock.  I have no idea.

But for the first time that I have seen at our house, Ryker let Aaron read the whole book.

I think Ryker senses a difference in Aaron but in his innocence, he accepts his Unkie Aaron just the way he is.

Oh, that we could all do the same!

Especially when Aaron’s life, like his stack of books, has lost its order and we think we might lose our minds.

Ryker let Aaron finish reading his book.

Sometimes we need to let Aaron finish his book with us, too…to try to understand him as we listen to his anger and his words.

To accept Aaron as he is while still trying to teach him and show him that there are other ways to manage life when he loses his order of books.

You Never Do That To Me!

One of Aaron’s biggest struggles is with jealousy.  And sadly, he is often the most jealous of the attention that we pay to our grandchildren.

Being Uncie Aaron is not always the joy to him that we hoped it would be.

On Saturday, Gary took Ryker for a ride around our yard on his riding lawn mower.   (No worries – the blades were up).  Sure enough, Aaron took note and soon said the all too familiar, “You never do that to me!”

So, Gary looked at Aaron and said, “Hop on!”

It was hilarious to look at Aaron sitting on Gary’s lap.  Aaron was really too big to fit and it was very awkward.  But good for Gary to give it a go!  And he could only go in reverse, which made it even funnier.  

How many times we have talked to Aaron about his place in our family as we assure him of our love!  

I was thinking about this as I continued my study in Nehemiah today.  Those that worked to restore the walls of Jerusalem, the temple, and the worship shared many various duties and positions.

Some were in high positions of leadership while others carried wood or cleaned up the many messes that were made.  Yet each person was appointed by God to the job he had for them.

Do you ever wonder about your place in life?  

Maybe you once held a position that is now gone.  

Or you never had a chance to prove that you could do what that other person is doing.  

Perhaps life has radically changed for you because of your health issues or age or finances or…you fill in the blank.

It’s so tempting to look at God and say, like Aaron, “God, you never do that for me!”

Comparison to others is the robber of joy.

Social media can be a real problem in this area.  I can be just fine and out of the blue see a post that makes me wish for something I don’t have.  

It can be any number of things, but the result is the same.

Ugly jealousy.

Discontent.

And if I don’t nip it in the bud, I might begin questioning God.

When we started our married life, Gary and I never dreamed that we would have a child with special needs.

Caregiving is not a life of leisure and does not allow for spontaneity in our lives.  Caring for Aaron is our life.  

We must consider him first in everything we do.

Your struggles are probably different from mine, but each of us do have those areas of raw questions that we may not share with anyone else but God.

Oh, but God!

He has given me that visual of Aaron riding on Gary’s lap to remind me that what I may desire is not His place for me.

I wouldn’t fit there.

God has put me here, where I am.  

If I don’t believe that then I am not living in obedience and trust to the God Who really does love me.

The God Who has put me in this place in His family for a specific reason.

So Lord, help me to get off that tractor where I sometimes want to be. 

Change my “You never do that to me!” to “Thank you for what you do FOR me in this place where you have put me!”

Uncie Aaron…His Buddy and His Burden

Time waits on no man, Chaucer said.  Time waits on no child, either.  We see this clearly as we watch Ryker growing.  Pictures from a few months ago compared to now show his physical growth.  New words and speaking in sentences show his intellectual growth.  

It brings joy mixed with a dose of sadness as all parents and grandparents know very well.

Ryker and Aaron’s relationship is also growing with time.  We have seen great strides on Aaron’s part in his friendship with his little nephew.  

Sometimes Aaron sees Ryker as his buddy.

Aaron still loves giving Ryker snacks.

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He didn’t even mind Ryker taking his favorite chair one day.

They play funny make-believe games.

Wear goofy hats of Aaron’s.

Watch cars zoom down the track.

Do chalk drawings.

Laugh at silly cartoons.

Thoroughly enjoy water balloons.

Blow dandelions.

Play music.

Occasionally share the playset.

Fly a plane.

And one of the best is when they watched our fireworks on the Fourth.

It’s just the cutest thing to see Aaron look at Ryker and say, “Ryker!  Come on!”  Then to see Ryker bolt as fast as he can on his little legs to run with Aaron up the stairs to Aaron’s room where all sorts of fun and unique gadgets await his exploration.  

And snacks that are new to Ryker!  Dots!  Red Hots!  Pistachios! 

And gum!  

So, you can see that we must monitor things closely, sometimes much to Aaron and Ryker’s frustration.

But for all the positive steps forward, Aaron still carries the burden of his autistic way of processing his world and how others impact it.

Aaron sends mixed signals to Ryker.  One minute he might be happily allowing Ryker to play with one of his cool toys and the next he might yell no to Ryker for touching another treasured item.  

Aaron can be hurtful with his words during those times, and inappropriate.  

Therefore, we must also monitor those moments as we try to foresee certain triggers that might upset Aaron.  We’re just never totally in the clear and probably never will be.

Yet, again, the progress Aaron has made truly gives us much for which to thank the Lord.  

The challenges cause us to seek God’s patience and wisdom as well.

Speaking of prayer, this has been one of the sweetest and funniest areas of Uncie Aaron and Ryker’s relationship.  

Aaron has never forgotten a silly prayer that he heard in an old Don Knott’s movie when he was a child.  He sometimes yells it out when we get ready to ask the blessing before eating.

“Rub-a-dub-dub!!  Thanks for the grub!!” 

No amount of correction on our part has kept Aaron from blurting that out sometimes.  So, you guessed it.  One day as we all sat at the table and joined hands, Aaron gleefully yelled, “Rub-a-dub-dub!”

And Ryker, without missing a beat, chirped “Rub-a-dub-dub!!”

Let’s close our eyes to pray now…and let the adults grin real big!

Every night as part of Aaron’s bedtime routine, we join hands and pray.  Ryker has joined us before.  One night I asked Ryker if he wanted to pray with us, so he scurried up on the bed, took our hands, and immediately launched into his own prayer.  We didn’t understand much of what he said, but it was precious in God’s eyes, I know, and certainly in ours.  

Andrea shared with us Ryker’s prayer one night at their house.  I had come over to help with the baby.  Laying in his bed before he went to sleep, Ryker prayed:

“Dear Jesus, dank you Gramoo.  Dank you Uncie Aaron.  Dank you donuts.”

Out of the mouths of babes.

Dear Jesus, dank you Uncie Aaron.  Even in the frustrations…the continual training that sometimes never seems to take hold…the corrections…the monitoring…

May we see the joy he also brings…the laughter…the delight at the simplest things that we often overlook.

And the huge progress he’s made in his role as Uncie Aaron.

Let’s not forget donuts!

Rub-a-dub-dub!!