Life is Like a Coupon Box

I walked into the kitchen on a recent Sunday, after Aaron had completed his usual Sunday coupon clipping chore.  There on the counter lay a Dillon’s coupon, one that I had put into my coupon box several days earlier.  I knew right away what this lone coupon on the counter meant.  It spoke volumes to me as it silently stared up at me…..volumes about our Aaron.

You see, this coupon…

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Does NOT belong among these coupons.

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The Dillon’s coupon is not a regular coupon to Aaron, and only regular Sunday coupons are to be placed…precisely…in the coupon box.

Silly mom for thinking otherwise.

Aaron’s life is like that coupon box.

Aaron wants most things in his world to be done in a certain order…..words said in a particular way…with order and sequence and expected results.  But life doesn’t operate that way, no matter how much Aaron tries to orchestrate it to do so.

I saw a small example of this the other night in our family room.  Aaron was looking forward to watching one of our favorite television shows.  He wanted to know what time it was coming on, so I told him what the television guide said.  BUT…I had to add…the football game that was on earlier would no doubt disrupt even the best planned TV schedule.

The TV guide said our show would air at 8:30, but at 8:30 another program was still on.  Aaron was not happy about this development.  I explained the situation, multiple times, as Aaron sat in his favorite chair with his legs covered by his favorite blanket and with his favorite snack-of-choice on the ottoman in front of him. 

He sat there in misery, staring at his jar of cashews, and not-so-patiently waiting for his program to start.  Football games are the epitome of a messed- up world, in Aaron’s orderly world.  A 15 minute quarter may last 47 minutes, for crying out loud, and THIS IS UNACCEPTABLE!! 

So there Aaron sat in his chair, waiting for the other boring show to end so that his anticipated show could start.  But that wasn’t all that wasn’t right in Aaron’s world.  It was the cashews.

You see, he will only eat his snack-of-choice during the actual television program.  Not during the offending show that was still playing.  Not during the commercials.  ONLY during the actual program that is to be seen will he eat his actual snack that is to be eaten.  So he sat there, staring at his open jar of cashews in front of him, but forbidden because of the dumb show that was still on…because of the dumb football game that was before that…on this day that was getting dumber by the minute. 

We made it through that cascading torrent of dumbness…barely…without a meltdown or without Aaron giving up on it all and returning to his room like he threatened to do.  And on the very second that his program appeared on the screen, Aaron’s hand dipped into the jar of cashews and his world was set upright on its axis, as it should be. 

The coupon box once again only held the correct coupons.

Last night, as I waited for Aaron to get his bedtime routine completed, I watched him write down his time-to-bed in his special notebook…a new notebook, by the way.  His other is year’s full of the times he went to bed and the times he got up in the morning.  Aaron wrote down the time…10:14.  He was preparing to close his notebook, but paused and then gave a little sigh as he scribbled something out in his Went-To-Bed column.   

“What happened?” I asked.

“It went to five,” he flatly answered. 

Yes, the time changed the second he finished writing 10:14.  It became 10:15, so he HAD to correct the time in his notebook.  Scribbled-out numbers are unsightly, but far preferred over having the WRONG time recorded. 

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The coupon box was once again correct.

Aaron is slowly working his way through watching the complete old Star Trek television series from the 1960’s.  In the opening monologue before each show, Captain Kirk is referred to as Captain James T. Kirk.  Therefore, Aaron NEVER calls Captain Kirk just Captain Kirk.  Captain Kirk is Captain JAMES T. KIRK, people!!

So this conversation happened the other day:

“Mom, who’s your favorite Star Trek character?” Aaron asked.

“Hmmm…” I pondered.  “I guess it would be Captain Kirk.”

Aaron looked at me blankly, as if I had mentioned a foreign character from another show and another time and another planet and another galaxy.

“Who?!” he questioned.

“Captain Kirk,” I repeated.

He continued to stare at me.

Finally…

“You mean, Captain James T. Kirk?” he queried.

Oh, how I wanted to double over in a total belly laugh!!!

But doing so would have highly offended Aaron, so I had to just answer him as seriously as if I was agreeing to the outcome of a very serious discussion about a profound world event.

“Yes,” I sincerely replied.  “Captain James T. Kirk.”

Aaron was very relieved to have this issue settled, and so his Star Trek discussion was continued.

The coupon box was aright once more.

It’s vital that those who live and work with Aaron understand how very profoundly his life and his happiness is tied to the order that he alone sets for himself…and expects everyone else to understand and follow.  Sometimes his desired order can’t be followed, but we must know how to guide Aaron through those times.  Those times when the wrong coupon is in his box, and Aaron most definitely will react, are times that demand great patience on our part. 

When Aaron is deeply frustrated, angry, defiant, or confused is very often a time when the wrong coupon is in the box.  We can’t always see it and we don’t always expect his strong reactions, but we…and everybody else who works with Aaron…had just best realize that there is more going on inside that brain of his than we will probably ever know or even remotely understand. 

It can be so hard and challenging and maddening to us at times…and we know Aaron better than anybody on the planet.  We love him more than anyone, too.  Imagine how very difficult it can be for others to achieve this level of understanding!  And how very impacting in our lives it can be for this lack of understanding to affect us, and Aaron, in a very negative way! 

We have been very blessed with some amazing, kind, understanding people in Aaron’s life.  We have also seen the damage that can come from those who don’t get it.  We have watched this damaging impact in the lives of others whom we know and love, as well, who have special children that have their own coupon box.

Let’s give grace to our children…to the parents of these special ones…and try to comprehend just what each one’s coupon box is really all about. 

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SEXY!!!

I posted this little piece on my Facebook page this morning, and decided…..in keeping with this blog title of He Said WHAT?!…..that I should post it here as well.  Enjoy!  And welcome to my world, daily my world, thanks to Aaron!  🙂

Aaron could have slept in today, but NOOOO…..he was up before the light of dawn!  He’s raring to go to his yearly meeting at Carlos O’Kelly’s.  A lunch meeting, which is hours away.  Sigh.  He just came bounding in the kitchen.

Aaron:  MOM!! People kiss on Star Trek!

Me:  OK.  (I figured that was a safe response)

Aaron:  Is it OK to kiss?

Me:  It depends on who you kiss.  (Now I’m worried).

Aaron:  So who can you kiss?

Me:  (I almost said, “Lots of people,” but my coffee kicked in and I thought better of it). You can kiss your husband or your wife.

Aaron:  Well, on Star Trek a woman came from another planet and she kissed Captain James T. Kirk!!

Me:  OK. (Another safe response, I hope) (Although I could have told him that he could kiss someone from another planet. That’s pretty safe.)

Aaron:  When they kissed, I said, “SEXY!!” (No surprise.  He says, “SEXY!!” when Pat Sajak hugs a contestant on Wheel of Fortune!)

Me:  (No response) (Hoping he will go take his shower)

Aaron:  Is it OK to say, “SEXY?!”

Me:  (searching for wisdom) Yes, it’s OK to say sexy, but you don’t need to go around saying it to everybody.

Aaron:  Well, the next time you and Dad kiss, I’m saying, “SEXY!!”

Me:  That’s fine. (Please let this be the end!)

Aaron:  SEXY!! (Finally walking away!)

I guess I should inform Gary that we will now have our own cheering section when we kiss.

 

The Church Visit

He Said What?!

As a person with Asperger’s, Aaron often demonstrates the social impairments that accompany this form of autism.  The social protocols that most of us possess are foreign to Aaron, no matter how many hundreds of times Gary and I have tried to drill these niceties into his brain.  When these social impairments are combined with his interest in the unusual, it can be a sure recipe for embarrassment…………not his…………but mine and Gary’s, or Andrea and Andrew’s.

When we made our many military moves, we would visit churches as we tried to find the “home” church that God would want us to join and be a part of during our stay in that area.  We visited a church one Sunday morning when Aaron was a teenager.  Arriving a little later than we had planned to, we found that all the back rows were already full.  Trust me, a back row for…

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Lessons From the Long Root

He Said What?!

I spent many hours outside last summer as I struggled to keep our flowers, bushes, and vegetables alive in our severe heat and drought. With no sprinkler system, I would spend lots of time standing and spraying our plants with water – or propping the hose up while I busied myself with something else and then would hurry back in order to rearrange the hose once more. During these times of watering was when I noticed the little weed in the flower bed that surrounds the light pole in our front yard. This small area was where I usually began my morning watering. I would prop the hose up just so and then I would take that time to pull more of the hose out of the hose box, get the pruning shears out of the cabinet in the garage, or put on my garden shoes before moving the hose…

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The Unknown Path

Aaron woke up yesterday morning in a bad mood.  He was obstinate, and so I was trying hard to just leave him alone.  I know that he often comes around to “the good side” if I give him some space and some time.  He banged his fist on his desk, making me jump even though I wasn’t in the same room with him.  Still I kept quiet.  But when he came downstairs later as I waited on him to leave for his day group, he was carrying a bag full of his Star Wars DVD’s.  He told me that he was going to give them to a friend because he didn’t want them anymore…..and I told him that he was NOT giving them to his friend.  He then slammed the bag on the kitchen table….and I lost my composure.  Big time lost my composure.

Lots happened after that.  Aaron got in the van, was quiet for awhile, and then he began to tell me that he loved Dad more than me…..that Dad was nicer than me…..that he wasn’t going to watch television with me that night…..and on and on.  I was still angry and not soft toward Aaron at all.  And soon he was crying, which is a sure sign of total frustration on Aaron’s part.

My heart was sad and broken.  I was mad at myself, and mad at Aaron, but also I was hurt for him and just so tired.  I knew that there was more to my anger than Aaron’s belligerent behavior.  Sure, I do get tired of dealing with Aaron’s inability to sometimes control his emotions and his actions.   But there are times that I also struggle with controlling my own emotions and actions.

Without getting too specific, I was already bothered by some thoughts I was having that had nothing to do with Aaron at that moment.  I was having a little pity party of my own.  It was one of those times when I was already looking at Gary’s and my life with Aaron, and giving in to the reality of some things that can really get me down.

Sometimes Gary and I would just like to pick up and go.  Many of our former responsibilities are gone.  But with Aaron, we always need to find caregivers, which is extremely hard to do.  It’s also expensive.  So at a time when couples our age are empty nesters, retiring, enjoying life…..Gary and I are stuck.  I feel terrible saying that, but it’s the truth.  I usually don’t get mired in those thoughts.  I often look at Gary and say, “We have no problems.  God has been so good to us.”  And Gary is careful to thank the Lord for our many blessings when we pray.

But yesterday morning, I was not feeling so blessed.  And therein is much of the problem I was facing.  I let my feelings dictate my response to Aaron, and it was not pretty.  It was not helpful or kind to Aaron.  And I was not pleasing God, for sure.

I know better than to compare myself to others.  But I also know better than to stay in that frame of mind, or to heap guilt upon myself and live in defeat after I blow it.  God forgave me, and Aaron did, too.  I pulled over in a Quik Trip parking lot near Aaron’s day group so that he and I could talk.  It was difficult.  Aaron was crying and I was very frustrated at myself and at him.  Finally, though, we sifted through our hurt feelings.  I told Aaron that I was sorry for the way I acted.  We went to Paradigm, where Aaron walked around talking to some of the staff and some of his friends, but eventually leaving with me.

And as we drove toward home……..in the middle of Aaron talking about Protocol Droids and Darth Nihilus and star maps and HK47 and Revin and Malak and endless other outer space things that are only important to him……he said, “Do you know it’s hard for me to say I’m sorry?”

Wow!!  That was amazing!

I smiled, patted his leg, and assured him that I understood.   We later went to Chili’s for lunch, where we blew our straw wrappers on each other like we always do and where Aaron asked the blessing – “Lord, thank you for this food and please help me to be good today.”  And THAT was a blessing!

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Yes, my day was totally rearranged and very different from what I had planned, which was to be a nice rainy day at home to get some extra things done and not have anywhere extra to go.  But God had rearranged my attitude along with my day, and that is always the best help ever.

God wasn’t through with me yet, though.  This morning I read this verse in Psalm 77:19.  The Psalmist was recalling what God had done for Israel when they left Egypt.

“Your road led through the sea; Your pathway through the mighty waters – a pathway no one knew was there!”

Israel wasn’t happy when they got to the Red Sea.  God rescued them from slavery in Egypt and they were thrilled…..until they saw where God brought them.  The path led to an impossible situation.  The Red Sea!  Now what?!

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But God had a path planned for them…..a path no one knew was there.  But God knew!!  He showed Israel His power as He rescued them there.  He taught them lessons they would never have learned had their path remained easy and secure.

God led them through the impossibility on the path He knew was there.  So God has put each of us who follow Him on a certain path in life.  We don’t always get the green pastures or the still waters of Psalm 23.  In fact, all of us are going to come upon a Red Sea in our lives…..an impossible situation that will end up showing us the possibilities that God has in store for us.

His power is made perfect in our weakness, He has told us, and in His power we take one step at a time…..step by step…..on the pathway that we never knew was there.  But He knew it was there!

He may lead us TO a Red Sea, but He has promised to also lead us THROUGH the Red Sea.  I may not even see the other side of my Red Sea on this side of heaven, but I do know that God will shepherd me through each day on this particular path.

I love the old hymn, He Leadeth Me.

He leadeth me!  O blessed thought!  O words with heavenly comfort fraught!  Whate’er I do, where’er I be, still ‘tis God’s hand that leadeth me.

Sometimes mid scenes of deepest gloom, sometimes where Eden’s bowers bloom.  By waters still, o’er troubled sea, still ‘tis His hand that leadeth me.

He leadeth me, He leadeth me, by His Own hand He leadeth me;

His faithful follower I would be, for by His hand He leadeth me. 

 

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