The other night, Aaron kept coming in our bedroom after we had gone through his bedtime routine and said our goodnights. Gary was already trying to go to sleep, and I wanted to do the same. But Aaron kept opening our bedroom door and then softly knocking on our closed bathroom door……as softly as Aaron knocks, which is about as softly as he whispers……which is not much.
“AARON!!” I hissed. “Why are you in our room?”
“I just wondered if you’re gonna have the monitor on,” he said.
“I’ve already told you I’ll have the monitor on,” I replied. “Now go to bed!”
Not long after, it happened again. Just repeat the above scenario, but this time Aaron said, “I just wondered if it’s going to rain tonight.”
I told him it was not going to rain…..and to go to bed, as I escorted him to our door, which I soundly closed.
Same thing, except now he stood in the bathroom with me saying, “I just thought I could talk to you while you get ready for bed.”
The Mom look I gave him was all he needed, but still he just had to ask one more question.
“Are you SURE you want me gone?”
I assured him that I was sure as I yet again walked him to the bedroom door, closed it with one last goodnight……and locked it!
It’s been a rough couple of weeks with Aaron. Both his seizures and his behaviors have escalated…..seizures at home, behaviors at his day group, Paradigm. Another bad report this past Monday just took all the wind out of me. Gary and I feel like nothing is working, but something has to make a difference. We saw his caregiver at the Epilepsy Center this week, had labs drawn, will see his autism doctor before long, talked to friends who travel this road, are researching some options……and praying. Praying a lot.
I was so thankful for the verse that God gave me this week. The portion that meant so much to me was this phrase:
“DO NOT HIDE YOUR EAR FROM MY PRAYER FOR RELIEF.” (Lamentations 3:56)
It’s like that old story of the guy up in the tree with a coon, telling his friend on the ground, “Just shoot up her amongst us! One of us gotta have some relief!!”
It’s funny to hear that story…..not so funny to live with Aaron when he has so many behavior struggles that are severely impacting his happiness. But all of us need some relief, Aaron included.
When he and I got home on Monday, after such a dismal report from his day group staff, Aaron went to his room. Soon he walked up to me and handed me one of his sticky notes. Here is what he had written:
Bless his heart. He really wants to do better, but finding that better is very difficult for him in certain circumstances. Really impossible at times, as his Epilepsy nurse and practitioner discussed with me on Wednesday.
That verse God gave me early in the week was perfect. We need relief, as many believers through the ages have expressed, and as many of my friends are experiencing now in their lives in very serious ways. The book of Lamentations is all about God’s faithfulness throughout the stresses and calamities of life on this earth. In fact, the following verse after the author begs God to not hide His ear, says, “You came near when I called on You; You said, Do not fear!”
Good advice…..great promises!!
The day after these verses spoke so much to me….the day after Aaron’s bad day at Paradigm…..this happened. I was out with my little elderly friend, Nora, when I got a text. This text was from my friend in Texas, Dona, whose husband had a terrible stroke 11 months ago. Dona and I rarely text, so I was surprised and a little alarmed to see her name appear. I instantly thought it might be about her husband, Steve.
But all Dona said was, “Are you doing OK?”
She had totally, absolutely no way of knowing what I was dealing with. We briefly texted, with her telling me that I had just been on her heart and mind. God at work, without a doubt.
I could hardly wait to get home and call her. We talked for quite awhile. She told me again that she kept thinking about me and so she prayed. I love it when God does these things! He shows His love and His care in these amazing, wonderful ways, blessing all of us in the process.
A day or two later, Aaron and I were in Dillon’s. We bought our few items, and then the cashier pointed to a large container of roses at the end of the conveyer belt.
“Would you like a free rose?” she asked.
And Aaron jumped on that like a flea on a dog!! He took a rose and then handed it to me, his face nothing but a huge grin.
“Here, MOM!” he boomed. “I want to give you a rose!! Because I love you!!”
And with that, he gave me the biggest hug! I thought my heart would explode!
The love note…..the rose……the hug.
Mixed this week with the behaviors…..some scary seizures…..doctor visits…..decisions looming.
It’s like Aaron bounding in our room at bedtime, just when we think that he’s settling in for the night. BAM!! There he is again, full of talk and excitement, no matter how tired we are.
“Are you sure you want me gone?” he asks. No, Aaron, not gone…..but resting. Go rest, and let us do the same.
His behaviors can be so very tiring. This past week has been emotionally exhausting for us, as well as physically. We could use some relief.
But we don’t want Aaron gone…..his personality and his take on life’s events to be gone. We just want him to be happy, and to know how to behave in a way that makes others happy, too. We have to keep working on that, and to keep trying to enable him to achieve that.
We’re praying for God to give us wisdom, and to not hide His ear from our cry for relief. I know He’s listening…..I know He cares……I know He’ll answer. He’s already impressed others to pray for us. That’s such an encouragement!
And when I look at my lone little rose in its vase, I’m reminded of Aaron’s love and of God’s love, entwined in many ways in my life. One so often shows me the other.
I just have to be making an effort to look sometimes.