Oddballs

I want to start this blog by sharing with you a picture I took recently. 

OK.  You might be wondering what on earth these little balls are and why they are worthy of a picture.

Let me begin to explain by showing you another picture.

Many of you might recognize that this second picture is a bowl of Good and Plenty candies.  Aaron loves Good and Plentys.  He always pours his treats into a bowl and eats them one by one, usually while he sits in his favorite chair as we watch a show at night.

One recent morning I walked through the family room and saw little balls on the shelf of the end table beside Aaron’s chair.  I knew right away what they were.  Those little balls in that first picture are Good and Plenty candies.

BUT those little round candies are not oblong shaped as good Good and Plenty candy should be.  Therefore, to Aaron, they are unacceptable. 

They are oddballs.

And oddball candy is not to be eaten, at least not by Aaron.

Same candy…different shape…not allowed.

I absolutely love seeing such tangible pictures of the fascinating way that Aaron’s mind works.  This is classic evidence of the structured world that Aaron desires. 

Classic autistic behavior.

Look how he even set the pink candy in its own place, not in the row with the white ones.  Again, order is important.

Aaron can usually control the structure in his world when it involves food, silverware, blankets on his bed, when to turn the television off at precisely the correct moment, watching the credits at the end of a show, and on and on.

Unfortunately, Aaron’s desire that his world be carefully monitored for his own personal satisfaction runs into a problem.  The problem is that living breathing people with feelings don’t always fit into Aaron’s normal.

In other words, people can be like those defective candies. 

Oddballs.

But Aaron cannot set human beings aside into neat little rows when they don’t fit into his definition of acceptable.

He also cannot always keep his thoughts and frustrations about oddballs to himself.

Like the day years ago that he and I were eating lunch with someone Aaron didn’t remember, but she knew Aaron and was so excited to see him.  So excited that she kept leaning toward him to talk very happily with her exuberant voice and with her eyes very big. 

He finally leaned toward her from across the booth, opened his eyes as wide as he could, and exclaimed, “DON’T DO THIS!!!”

Oh dear.  I was so embarrassed.  This person works with special needs, and she understood, though she was taken aback.  But I knew that Aaron was getting very uncomfortable, so it was like watching a train building up steam before a wreck.

Then there was the time that we went with Aaron to parent night at his school.  He was to introduce us to each of his teachers.  At the last classroom, while waiting in the hall, we wondered why Aaron was beyond excited for us to meet this teacher.  We soon found out why.  She had a very pronounced spiked hairstyle, which Aaron found to be extremely interesting…odd, you might say.

“MOM!!  DAD!!  This is ______.  She looks like a HEDGEHOG, doesn’t she?!”

Well, well.

Gary and I were humiliated (although Aaron had a point 😊).  We immediately corrected him, and the teacher was immediately angry with Aaron…and it was not the finest of our parenting moments.

We have our times here at home, too, when Aaron sees us for the oddballs we are to him and he lets us know it. 

When one of us is talking to Aaron about something more serious and we change the shape of our eyes: “DON’T SQUINT YOUR EYES!!”

When I was talking to him one day and made a stirring motion with my hand, which upset him.  I asked why.  “I just see things you do are weird.”

When I was singing funny and could tell he didn’t like it, so I told him I was just having some fun: “I don’t like your fun.”

When I sniff and he is afraid that I’m upset: “ARE YOU CRYING???”  He really can’t handle crying from other people, especially me.

There are many more examples that I could include, but you get the idea. 

And if you hang around Aaron long enough you have a very decent chance of becoming an oddball, too.

But don’t worry.  You will be in good company.

Aaron, after seeing a picture of Shakespeare: “Shakespeare didn’t dress perfectly.  He dressed weird!”

As for Einstein in another picture seen by Aaron: “He has WEIRD hair!”

Maybe being an oddball isn’t such a bad thing after all, right?

God Sees When I Cannot

Here was Aaron yesterday morning:

No, he didn’t have a seizure.  He was just having a very hard time waking up to start his day.  It takes patience and wisdom on my part to deal with him when he wants to sleep late.  Sleepy Aaron is almost always grouchy Aaron.

A scenario like this isn’t life changing.  But lately, Aaron has been unsettled and extra-easily upset.  Is it the new little member of our family that he is struggling to accept?  Is he trying to establish his place of importance at home and at his day group?  Side effects of the meds he takes?  Or just the way his autistic brain functions in our world which is not always his world?

Probably some of all the above.

It’s been wearing on Gary and me lately.  Tiring.

I walked back to my desk after several treks into Aaron’s room. 

It hit me how crazy it is that at my age I am still actively parenting our son.  This is not at all how I ever imagined my life would be.

Don’t get me wrong.  I realize how very blessed I am in so many ways. 

But some days I wonder…

It’s easy to get mired down in the stress and frustrations, to the point that I lose sight of the path.

I feel much like Job, which I just read that morning.

          “Behold, I go forward but He is not there,

          And backward, but I cannot perceive Him;

          When He acts on the left, I cannot behold Him;

          He turns on the right, I cannot see Him.”  (Job 23:8-9)

It’s not just the path that I lose sight of.  Sometimes it’s God Himself that I cannot see.

Our emotions have a way of doing that to us. 

Our disappointments can blind us to God in our everyday lives.

BUT!!!

          “BUT He knows the way that I take…”  (Job 23:10)

I may lose sight of God in front of me or behind me…to my left or to my right.

BUT…God knows the way I take!

God hasn’t lost sight of me!

That word “knows” in Hebrew means “designates.”

The word “way” means the “course of life.”

God has designated the course of my life. 

God IS love and I know deep in my heart that His every plan for me is designed and wrapped in His love for me.

God also knows that I am but human…weak…questioning…fearful…sometimes angry.

Questions come easily when I am vulnerable.

Why does Aaron have to suffer?

Could You not have found another way to grow me, Lord?

If I allow myself to keep going down those paths, though, I will soon be off the path that God has for me.

That’s never a good place to be.

I need to be like Job, who in all his terrible suffering still said:

          “My foot has held fast to His path;

          I have kept His way and have not turned aside.

          I have not departed from the command of His lips;

          I have treasured the words of His mouth more than my

          necessary food.”   (Job 23:11-12)

Some days and many moments I don’t FEEL like I am holding fast to God or treasuring the words of His mouth.

But deep, deep in my heart I know that I do desire God’s will and God’s way.

We all go through the tough times, don’t we?  Some are brief.  Too many are prolonged…lifelong.

Oh God, show us every day that even when we can’t see You…You see us!

You appoint our path, hard as it often is.

Because in the hard is where we do more clearly see Your hand.

We feel your breath upon our faces as we wait before You, drying our tears and strengthening our failing hearts.

Then may we be able to say with Job:

          “When He has tried me, I shall come forth as gold.”