Month: April 2021

Smiles and Joy and Prayer

I ended my last blog by saying that we were taking Aaron to the zoo.  I wish you could have seen his excitement and joy at being there with me and Gary.  He has a way of jerking his leg when he’s excited, like a little kick, and he did that multiple times.  He laughed so loud that we had to tell him to tone it down several times.  But his joy gave us such joy, especially after the sadness of the day before. https://hesaidwhatks.blog/2021/04/27/the-autism-two-step/

This was my favorite picture of the day.  He and the gorilla had a moment, and how I wish I knew what that gorilla was thinking!

I sent the picture to our kids and told them that Aaron was the one in the white shirt.  Just kidding, just kidding!! 

Then Andrea said, “That gorilla looks a little miffed.”

“I think he’s been around Aaron,” I told her.  “I’ve seen that look on all our faces.” 😊 😊

On Wednesday, when I picked Aaron up from his day group, he came to the car carrying these.

His friend, Victoria, celebrated her birthday the day before when Aaron was at the zoo, so she saved some balloons for her buddy.  Now Gary has a balloon by his desk, and I have two in our bedroom.  Aaron does love to share.

Like today, after Meals on Wheels, he decided he would save this for Gary.

One French Fry. 

But that one French Fry was very important to Aaron, there among his chicken tenders he brought home.  He immediately gave it to Gary when we walked in the garage, to eat right away, want to or not! 

Aaron can bounce from one thing to another, and one mood to another.  Gary and I are along for the ride on most days.  I sure am thankful to know that God is our driver, though, in the long run. 

Aaron has an MRI of his brain in the morning, just to double check that nothing is going on.  It’s been a long time since he’s had one and his seizures have been a little weird lately, so it’s best to be safe.

I’m praying for no seizures tonight so we can go tomorrow.  Praying for good results.  I would really appreciate your prayers as well, for which I thank all of you VERY much! 

Like I said, how good it is to know that God is in the driver’s seat!

And Aaron is in the front seat, too, if he has his way because he is ALWAYS in the front seat and he must listen to his current music CD and if there is more than one of that group it must be played in the right yearly order and he must control when it comes on and when it goes off and keep track of which song is playing and what number it is and what the title is and……..

The Autism Two-Step

Gary and I are planning a trip to Houston next month.  We’ll stay with our daughter and son-in-law (Kyle and Andrea), and then get to see our other son (Andrew) who will be there for an NHRA race. 

Happy, happy fun times are ahead!  YAY, YAY!!

Wait.  I forgot to mention that we plan to take Aaron. 

Angry, angry times are ahead!  YUCK, YUCK!

That was Aaron speaking.

As many of you know, getting Aaron to travel happily is a stretch.  We want to include him for the obvious reasons, especially the fact that he IS family and should be a part of family times. 

We’ve been making the hard sell and thought we were well on our way to traveling success.  But yesterday morning…

Aaron stood behind me early as I sat at my quiet time desk. 

“I am NOT going to Andrea’s!!” he angrily spoke.

First words out of his mouth did not bode well.

None of my soft words softened him at all. 

I ended up on our patio, coffee in hand, where Aaron soon found me and exposited further on the reasons that he will NOT make this fun, fun trip.

I escaped in the house for a few minutes.  When I looked out at the patio, Aaron was gone.  I didn’t see him anywhere.  Where could he have gone?!

Soon I saw him, across the yard sitting all dejected on our bench.  Sorry for the grainy picture.

He soon moved to the front porch, sadness all over his posture and face. 

When he rejoined me on the patio, he was crying.  When Aaron cries, he is truly and deeply upset. 

“I don’t want to leave this house!” he exclaimed, as if we were forcing him out forever instead of just taking a trip.

But to Aaron, home and the familiarity it brings is of upmost importance to him.  It’s a huge stretch to ask him to go someplace else and just “be happy.”

Aaron reacts to all the stimulation outside of himself in a far greater way than you and I do.  A long trip, another house, an unfamiliar bed, more people around, a different bathroom…just everything about traveling is huge and very uncomfortable to him. 

And if Aaron is uncomfortable, then everyone within range of his voice will be most uncomfortable, too.

It’s so easy to say he should just go and have a good time.

SO, SO hard for Aaron to do that very thing, starting with the “just go.”

Later in the morning, like a light went on, Aaron calmed down and became happy.  It wasn’t because finally, he came to his senses!

It was because he remembered the Indonesian submarine that sank.  Really.  Not that the sinking and all the death makes him happy, but all the facts of that incident have filled his fact-loving cup to the brim.

He talked about the submarine incessantly on Sunday.  He talked about it until the moment he turned his light off that night and went to sleep.  So yesterday morning, when he paused from his travel grief long enough to think of something else, his mind went back to the submarine that had so consumed him yesterday.

Ahhhhh, a subject that pleased him, odd as that sounds! 

Autistic persons are often brought back to their comfort zones by slipping into whatever groove is safe to them and meets their unusual interests.  As strange as it seems to us, Aaron was able to lay aside his angst about our upcoming trip by finding that groove, which on this day was the sunken submarine…

And then Trandoshians…clones…launch codes…Republic Assault Ship…Wookies…

It’s just the most fascinating and often frustrating thing!

Yet Gary and I must lay aside our desire to lecture as we slip with Aaron into his groove, talk about the very unique subjects that permeate his mind, and be ready for the next onslaught of travel anger.

It’s a delicate dance that we know all too well, accompanied by the music of Aaron’s world.  The band isn’t always in tune, at least not to us, but Gary and I had best just dance along and let Aaron lead.

It’s the Texas Two-Step!  Except for us it’s two steps forward…on a good day…and at least one step back.  Often more.

Last night, as Aaron still processed all things travel related, his face lit up.

“MOM!!  Can Kyle tell me all about the submarine?  Because if he can then I’ll go to Houston!”

So Kyle, who has a degree in maritime studies but has never worked on a submarine, has been given an assignment for which to prep before we come.  And his dad, Kent…who served in the Navy on a sub…will no doubt be invaluable.  Andrea said we should just have Kent waiting in the driveway when we pull in.  😊  😊

It’s good that we can all laugh. 

All of us except Aaron, who takes every bit of this very seriously. 

Time for me to get our day going.  Gary and I are taking Aaron to the zoo, which is close and does not require travel but also does not…to my knowledge…have a submarine.  Too bad!

Looks like it will be a beautiful day for a dance. 

What Does It Profit?

I have a story to share.  It’s a true story that has impacted my husband and I greatly over the past few years.  I trust it will do the same for you.

Years ago, we met a woman who should have been a part of my husband’s life for all of his life but was not – through no fault of either of them.  That all changed a couple years ago.  I will call her Mary. 

Mary had lived a difficult life before we ever knew her.  Many of her problems were due to her own bad decisions, we came to learn.  But in recent years, Mary came to know Christ personally.  As her faith grew, her life changed.  The consequences of her past decisions could not be erased but her life took on new meaning, new purpose, and was full of new peace.

Our lives became more personally entwined with Mary’s due to the death of a dad and later the death of his wife.  What was to have been Mary’s from the estate was wrongfully taken away.  Mary, now suffering from metastatic breast cancer and still trying to work to make ends meet, was devastated.

Gary and I, though, did what we could to encourage Mary from a distance.  However, we watched with grateful amazement as she turned to the One Who really loved her the most and from Whom she gained the greatest strength. 

Her conversations with us centered on that relationship with God that was growing in her life through her extreme difficulties, her hurt, and her declining health.  Mary turned her back on being bitter and instead turned her heart to God’s forgiveness of her, and thus her forgiveness of those who had done so much wrong in her life.  She had counted on some earthly financial help to come her way but when it did not, she learned the value of counting on God instead…and from that experience, she grew so much.

On what was to be her last holiday season on earth, Mary sent us this message.  I will simply let you read her exact words:

“I’m at the cancer clinic right now getting my blood drawn and waiting to see my oncologist for my usual follow up. On the way here this morning I passed the mall and stores with their crowded parking lots full of Black Friday shoppers. It really caused me to think about what’s most important in this life. It’s God, our Salvation, family and friends. Even if I never ever had another present under the Christmas tree, it wouldn’t matter. Because I’ve already been so richly blessed, and you all are a part of that blessing!  I have so much to be grateful for.”

We commented to her about how thankful we were to have been given the opportunity to know her better over the previous months.  Our relationship probably would not have happened had it not been for the wrong that was done.  But we were sorry for her advancing cancer and for her hardships.  Again, Mary’s words:

“That’s one of the many good things that’s come out of a bad situation. My cancer journey has brought me into a much closer and deeper walk with God, which I am grateful for.

It’s strengthened my faith, and brought about peace, joy, and a sense of assurance, much stronger than I had before. It’s had a positive impact on all areas of my life. It’s truly amazing how our God moves and works His will in our lives.”

What a beautiful example she was of how God makes beauty from ashes!  Her testimony continued to shine with us until her death seven months later. 

Another person recently died, too…a person who was largely responsible for the wrong done in Mary’s life.  He had everything of earthly value that anyone could want, some not rightfully his, but when I think of him, I think of what Jesus said:

“What does it profit a man if he gains the whole world but loses his own soul?”

A real-life lesson from two people who made choices, one choosing the narrow path and one the wide. 

Two lives…two choices…two eternities.

Which one are you, my friend?

Just Being Here

I was having my quiet time this morning, and it was just that…nice and quiet.

I stepped out of the room for a few minutes and when I came back, this is what I saw.

“Aaron,” I asked, “what are you doing on the bed?”

“I’m just being right here,” he flatly answered.

I had to smile.  He certainly was just being right there.  He didn’t care one bit that he was messing up the bed that I try to keep all tidy and neat and unwrinkled.  He didn’t care one bit that he was interrupting my quiet time. 

Aaron is right here in our lives every day.  He is right here because God has placed him here. 

No matter where we go, with or without Aaron, he is right here in our lives and in our thoughts…in our planning…in our EVERYTHING.

Yesterday he was right here, in the Wal-Mart aisle as I turned the corner, happily oblivious to any thought that he was most unusual as he knelt on the floor to retrieve his favorite candy.

He was right here recently after a night of seizures, waiting for me to pray before he ate his fried eggs, and we watched an episode of The Waltons.

And more often than I enjoy, Aaron is also right here in his autistic frustrations that interrupt our life and often dictate our routines. 

Just like that crumpled bedding that once was smooth, Aaron can most definitely cause lots of wrinkles in what was at one point a smooth and happy day.

How I handle my emotions during those many moments is up to me, which is why I was SO excited to find this picture recently that I instantly knew MUST go above my quiet time desk.

Today I choose joy!

Not because I have some super perfect power to do so.

But because I know the One Who does have the power to give me joy.

Oh, trust me, I lose my temper and I get very frustrated and all the other “stuff” that comes with being human.

But Jesus is right beside me with His forgiveness and with His nudging toward joy.

How about you?  What is right here in your life that is hard?  Make a conscious effort to choose joy and just see what God will do for you.

“And do not be grieved, for the joy of the Lord is your strength.”

(Nehemiah 8:10)

Aaron’s Prayer

Last week Aaron was extra grouchy every morning when it came time to get out of bed.  Nothing I said or did made a difference.  Nothing Gary said or did made a difference, either.  So, it seemed we were stuck in perpetual morning grouchiness.

Believe me, Aaron can re-define what it means to display said grouchiness.  Can he ever! 

I have many AAAAAHHHHHH moments when he is on that level of refusal to get out of bed.  Aaron can be very verbal, and not in a nice way, when he is tired and sleepy at the beginning of his day.

Therefore, I sometimes tell him that I am done and then I disengage.  I don’t respond to his words or his demands, and I tell him that the decision about his day is his to make.  He eventually settles down and all is well.

Last Thursday, our Meals on Wheels delivery day, saw Aaron once again very angry about getting out of bed.  I quickly decided to get off that path, telling him that I would go without him and proceeding to get ready to leave.

Aaron could not bear that thought.  As we drove to the senior center a while later, Aaron’s mood improved.  His music made him happy as did the thought of eating lunch at a restaurant after our deliveries.

Aaron was very helpful and he enjoyed seeing our clients, as well as the various dogs and other animals that we have come to know. 

“Mom, did I do good today?” he asked as we finished at our last house.

I assured him that he did just fine, and he smiled happily as he rubbed his hands together.

Soon we were at Jose Pepper’s being pampered by Emily, our server that we have come to know.  She loves Aaron and is excellent with him.

We were munching on chips and salsa, along with a free espinaca, when Aaron’s salad arrived. 

“OK,” Aaron said, “let’s pray.”

I love it when the praying part is his suggestion.  I also love it when he agrees to ask the blessing, which he did on this day.

Now Aaron’s prayers are always two sentences, and they are always thanking God for things.  He might say, “Thank You for the food and thank You that we got to go to Meals on Wheels.”

But on this day, as we bowed our heads, Aaron got completely off script in a very wonderful way.

“Dear Lord,” he said, “next time on Thursday will You help me do better about going to Meals on Wheels?”

I seriously cannot remember Aaron praying like that in a very very long time.  Maybe ever. My heart was so touched and warmed by his simple yet heartfelt prayer.

Aaron does feel things much more deeply than we usually know.  It’s hard for him to process his feelings and thoughts in a controlled way when he’s frustrated.  Hard for him to let us know what it is he is feeling without hurting OUR feelings.

We enjoyed our lunch so much, even if Aaron wasn’t totally sure what he was eating.

“Mom?  What’s this green stuff?!” 

Being color blind makes Aaron’s life even MORE interesting…and ours as well. 

Green food and a great prayer. 

Thank you, Lord, for those blessings. 

Where Is Your Faith?

Jesus and His disciples had gotten into a boat on the Sea of Galilee.  Jesus told them to go over to the other side of the lake.  As they were sailing along, Jesus fell asleep.  Soon a huge wind arose, and their boat was in real danger of capsizing.  The disciples awakened Jesus and with terror told Him they were perishing.   But Jesus rebuked the winds and the surging waves, and soon there was calmness.

Jesus looked at His disciples and said, “Where is your faith?”

Jesus is still asking us that question today in our storms.

Aaron collapsed with a drop seizure last month after going for two years without one of those dangerous seizures.  Where was my faith?

Our daughter called us from Texas two weeks ago.  She was in the ER with a pulmonary embolism.  Where was my faith?

Old hurts and unresolved issues about a situation from years ago started spilling out as I talked to a sweet friend the other night.  Where is my faith?

A friend with a daughter going into drug rehab.  A friend recently diagnosed with cancer.  Another whose daughter is fighting a recurrence of her cancer.  A job lay-off of one’s husband shortly before he could have retired.  A friend whose son is having sudden and very serious seizures that are escalating.  A friend betrayed and now divorced.  Some are grieving prodigal children.

Where is their faith?

Jesus hung on the cross.  “It is finished,” He cried.  His battered body was lowered, and He was buried.  His disciples were crushed, full of terror far worse than the terror on that boat.  Where was their faith?

Satan was jubilant, thinking he had won.  Jesus was dead!

“Now where is your faith?” he probably hissed to all who followed Jesus.

Not so fast, Satan! 

This happened!!

The tomb was empty on that Sunday morning.  Jesus lives today!  We serve a risen Savior! 

Where is my faith?

My faith, in every circumstance and storm and trial, is in a Savior Who has defeated death!

Jesus is with me in my boat today, very much alive and in control of every wave…every toss…every fear…every hurt.

We serve a RISEN Savior!

Hallelujah!