Choosing My Focus

A blog from three years ago that I needed to read again today. My early Saturday wake-up from Aaron today wasn’t because of seizures but because he drank too much water before bed last night, I guess. And I needed to remind myself to be thankful instead of frustrated as I carted his bedding downstairs on a morning when sleeping in was far preferred!

He Said What?!

I had my day all planned today, my to-do list made, and the order of that list firmly in my head.  Take Aaron to Paradigm, then the post office, return an item to Gordman’s, stop at the Vintage store to ask about milk paint, run quickly into Dillon’s, probably get gas, home for a quick lunch and indoor straightening, and then outside into this upcoming warm afternoon where I was looking forward to some leaf raking out of our drainage ditches and picking up branches and maybe pine cones and cleaning off the front porch and vacuuming out the van……whew!…..and pick up Aaron and home to make supper and then Wheel of Fortune and ironing and then bedtime before I know it. 

There.

What I wanted to get done today is based on what I need to get done tomorrow, and the next day, and the next. 

View original post 931 more words

She Took It All

One of Aaron’s favorite things to eat is a Cheddar Pasta Salad from the deli at Dillon’s.  The name has actually changed to Cheese Pasta Salad, but to Aaron and to me it’s still Cheddar Pasta Salad.  Aaron always gets a large size, watching carefully to see that the container is filled to the brim.  We go so often that we’ve gotten to know some of the deli workers, who can always guess what we want when we walk up to the counter.

Yesterday afternoon Aaron asked me if he could have a Cheddar Pasta Salad, so off we went to run an errand before the Chiefs – Titans football game, and then end at the Dillon’s deli.  Things were going smoothly, and I was happy that we would make it home in time for the game.

It doesn’t ever seem to matter how carefully I plan our entrance into Dillon’s.  Aaron always seems to somehow get ahead of me as we make our way to the deli counter.  He is definitely on a mission!

The problem is that he will often push in front of people if there are others standing at the counter.  Therefore, he and I are in a foot race as I try to head him off at the draw, before he offends the others who were there before us.  Aaron doesn’t care one bit about waiting his turn when it comes to his Cheddar Pasta Salad.  He doesn’t notice if people are staring or are angry, if they sigh or if they edge closer to the counter.  He only has eyes for the food behind the counter window, looking quickly to see if there is any Cheddar Pasta Salad.

Yesterday there was a mom there with her very cute little girl who was maybe four years old.  I made it to the counter just a few steps behind fast Aaron, just in time to touch his arm and remind him that someone was before us in line.

Aaron was very happy to see that there was some Cheddar Pasta Salad in the tray.  “Look, Mom,” he said.  “They have Cheddar Pasta Salad!”

“That’s what we’re getting, too!” said the friendly mom.  “It’s her favorite!” she added as she looked down at her smiling little daughter.

In an instant, I knew that we were in a dilemma.

In an instant, Aaron had figured out that there was NOT enough Cheddar Pasta Salad for both him and the little girl.

And in that instant, Aaron’s face fell.

“Oh boy,” I thought to myself.

The mother was telling me that her little girl just loved the pasta…that she never ate the broccoli…that the mom ate the broccoli…

“There won’t be enough for me!!” Aaron blurted out.

“Yes, Aaron, there will be some for you,” I assured him, while I felt dread creeping up my spine.  How far would Aaron go in his disappointment?  Would he become angry?

The mother also told Aaron that they weren’t taking all the salad, but Aaron could see that there would not be enough for his large container.

He stared down toward the floor, not making eye contact, as he tried to process the fact that these interlopers were taking HIS Cheddar Pasta Salad!

Their transaction done, the mother told us to have a good day and told Aaron to enjoy his salad.

“Shut up,” Aaron softly replied as he continued looking down at the ground.

I was horrified!!!!

The mother and cute daughter were walking away as I sternly told Aaron to say thank you to them.

He refused.

I told him through firm lips that he would NOT get his salad if he didn’t say thank you.

The girl behind the counter, new to us, was waiting on my order.  I fumbled out that we would take the rest of the Cheddar Pasta Salad.

“She took it all,” Aaron flatly said.

My face was flaming.

The mother and little girl were a short distance from us.  The container…the medium size and not the large…was being filled with the last of the Cheddar Pasta Salad.

“THANKS!!!” Aaron suddenly bellowed.

And the mother turned and smiled at us.  I wondered if she could see the distress on my face, and on Aaron’s as he processed taking home a medium container.

Not a LARGE!!

Then the mom and her daughter turned and walked right behind us.  I touched her arm and whispered to her.

“I don’t know if you heard what he said, but I’m so sorry,” I told her.

She said she didn’t hear anything.  I softly told her that Aaron has autism, but I could tell she knew.

“Don’t even worry,” she kindly said.  “My older daughter works at Open Doors with autism all the time, so I totally understand.”

Relief washed over me…partly because they hadn’t heard Aaron’s comment and largely because she was so kind.

I thanked her, turned back to Aaron…who was staring dejectedly at his medium container…and then she said to me:

“You’re a very good woman.”

I was so surprised!  I thanked her.

And I blinked back tears and swallowed the growing lump in my throat.

I was so happy that now Aaron was holding a jar of Chili Fig Spread, excited about his new find, moving on to the next thing as he always does.

He is so oblivious to other’s emotions.  So clueless as to the stress he inadvertently creates.

SO unaware of how embarrassing and wrong it is to tell someone to shut up!

But he did just that.

And he will do it again.

So, we give the lectures and we live the example, but none of that can permanently re-wire his brain.

I picked myself up off the floor, figuratively speaking, as I gathered my wits about me and picked up the pieces of my shattered motherly pride.

Yes, my son is the one who told you to shut up.

But this is our life with Aaron.

Aaron, who wants life to fall into place his way and when it doesn’t, is hardly able to do anything but to tell the offender to shut up.

But he DID say thanks!!  I’m so thankful for that!!

I DID give him his Cheddar Pasta Salad.  Look at his sad face, though.

 

img_1923

 

His medium…not large…Cheddar Pasta Salad.

“She took it all,” he said over and over as we walked through Dillon’s.

“She did NOT take it all!” I reminded him over and over.

We actually got a lot in return at that deli counter.

A large serving of kindness goes a long way!

 

The Nightie……..Retold

 

While in Wal-Mart the other day, I noticed that they are in full Valentine’s Day mode.  Candy, cards, flowers, clothing………..which sends a little shiver up my spine.  Not because I’m so wild about all the Valentine’s Day commercialism, but because of what happened when I was in Wal-Mart with Aaron several years ago.  I decided to share this story again because I realize that many of you haven’t read about that little incident.  Plus it’s good therapy for me to write about it……to let it out.  I’m actually not in therapy, but after reading this story you may think that I should be.

 

Aaron and I did our typical entrance into Wal-Mart on that particular day…….which means that Aaron stopped dead in his tracks in the middle of the crossing as we headed to the entrance.  He then held out both arms, like a policeman stopping traffic, which garnered all sorts of attention and stares.  I told him to stop like I always did, and he told me that he just wanted to be sure the cars stopped, like he always did.

 

Once in the store entrance, while I got a cart, I looked over and saw Aaron staring up at the security camera.  He had a huge smile on his face and was flashing the peace sign with both hands, while I’m sure the security personnel were busily trying to ascertain Aaron’s threat level.  Oh brother.  I whisked him on into the store, where I gave him the list of do’s and don’ts as he decided to head by himself to the video section.  It was mostly don’ts.

 

Aaron, don’t make the passing gas sound.  And you know why.  People think it’s you passing gas for real, or worse yet, when I’m with you they think it’s ME.  No, it’s not funny.

 

And no fox whistles.  That could get you in some trouble with boyfriends and husbands.

 

And lastly, as he took off down the aisle, I told him not to run.  There he went, walking briskly with both arms swinging furiously and his rear end swaying back and forth.  Quite a sight.

 

I picked up a few things and then headed over to electronics to pick up Aaron.  He was going with me to the grocery section.  I saw him looking at videos, and after a brief look at whatever new movie he wanted, I took off down the center aisle with Aaron close behind.   I wasn’t paying much attention to what was displayed beside us as we walked………right there on the side of that main aisle.

 

Valentine nighties.  Lots and lots of little nighties.  Red ones……black ones…….animal print ones.  Some with feathers, even, and others with sequins.  My internal alarms should have gone off.  You see, Aaron is attracted to the unusual……..and these tiny nighties were most unusual to him.  But no, I was focusing on peanut butter and tea bags and frozen mixed vegetables…….not on little, very interesting Valentine nighties.

 

But Aaron noticed them.  Oh yes, he did!  Something else I didn’t notice was that Aaron had lagged behind me……..quite a ways behind me.  Suddenly I heard his unmistakable loud voice saying, “MOM!”

 

I turned around in the middle of that very wide aisle full of very many people…….and there stood Aaron, a huge smile on his face……..and holding up a little tiger print nightie.  A very tiny tiger print nightie.  Things seemed in slow motion from that point forward.

 

“MOM!” he repeated.  “YOU NEED THIS!!!!”

 

I just stood there, sure that most of the people passing me were thinking, “No, young man.  Your mom does NOT need that.”

 

I wished that I was Korah.  You remember Korah, of Old Testament fame, who sinned against God and was swallowed up by the earth as punishment.  I would have welcomed that.

 

But there was no escaping my large, very happy Aaron standing there holding this unique very tiny tiger nightie way up high for me and all the other hundreds of people there to see.  OK, there weren’t hundreds but I sure felt like there were.  What could I do but tell him to hang it up, and turn and walk once again toward the groceries?  I couldn’t wait to stick my head in amongst the frozen vegetables to cool my flaming face.

 

Aaron couldn’t understand my embarrassment at all.  He thought that this was a very funny moment but not awkward.  Why wouldn’t mom want to look at this cool tiger print little thing?  I just told him to trust me on this, and I was very thankful when we were headed home.

 

No way was I going to tell him that I liked the red one with the feathers better.

 

MERCY!! AARON!!

I’m a southern girl.  Well, from southern West Virginia – born and bred – so no matter what the Civil War folks say about my home state, I still consider myself to be from the south.

I guess that’s why sometimes I just want to look at Aaron when he’s being a particular form of disagreeable and just say, “MERCY!!  AARON!!”

And then tell him that he just needs to hush!!

When I talk to Andrea or Andrew on the phone, Aaron invariably barges in the room and wants to talk.  This happened on Saturday evening as Andrea and I were gabbing away.  I knew Aaron would persist until I caved, so I finally put the phone on speaker and off Aaron went.

He was particularly fixated on Luigi’s Mansion 3 – his newest Nintendo Switch game.  And he was even more fixated on going over Luigi and Gooigi.  I think I spelled that right.

He wanted Andrea to know who Gooigi is.  What Gooigi is made of.  What color Gooigi is.  What Gooigi looks like.  What Gooigi does.

Andrea, ever patient with her brother, commented on everything Aaron said.  She even asked questions…good questions…which fanned Aaron’s flames and off he blazed.

Talk, talk, talk, talk, talk.

It took me awhile to put out the flames.  I usually have to end the talking by telling Aaron to say goodbye, after he has pushed me away several times from taking back the phone.

Never once does he ask about Andrea or Kyle, or Darcy or Oakley or Aries or Siggy…all dogs, by the way.  😊

For some reason on Sunday evening, Aaron kept referring to that phone call.  He declared that I only wanted to talk to Andrea…that I never talk to him (REALLY??!!)…that I would hardly let him talk to her…and so forth and so on.

Everything is bad to Aaron when he gets like this, including the fact that I am a bad mom.  I eventually shut down when this happens, meaning that I do not fan the flames of Aaron’s anger by things I say.  Even my eyes – “Don’t squint your eyes, MOM!!”…or my voice inflections, can increase his anger.

Nothing that I say helps.  Nothing that Gary says helps.

Aaron’s lack of empathy and his inability to connect the dots like we do is a most frustrating part of his autism.

The next morning, weary and bothered, I thought of how my friend – a manager at Aaron’s day group – deals with these issues on the day after they occur.  Aaron often doesn’t want to go to Paradigm on that “next day” after he has blown it, but Barb always reminds him of an important truth.

“It’s a new day, Aaron,” she says.  “We just start all over and don’t let yesterday bother us.”

Thinking of that…of a new day…reminded me also of the wonderful promise in Lamentations 3:22-23:

The steadfast love of the Lord never ceases; His mercies never come to an end; they are new every morning; great is Your faithfulness.”

God’s love and mercy to me, no matter how much I sin, is new every morning.  And I know that I must also face every new morning with Aaron in the light of God’s loving-kindness to me.

If God is so loving and kind to me, how can I be any less to Aaron?

That next morning was still a little rough on Aaron’s part.  And then when I picked him up in the afternoon, as I watched him approach the van, I saw him stop and turn, running back into the building.

He returned, holding a paper that blew in the wind as he ran toward me again, his face all smiles.

IMG_1900 (002)

 

IMG_1901

 

“MOM!!” he said as he got in the van.  “I colored this for you!”

With great delight he handed me this picture:

IMG_1905

 

I was so touched.  So amazed.

Amazed that Aaron sat still long enough to color.

Touched that he wanted to mend our fences in such a sweet way.

And both amazed and touched that it was a cross he colored for me.

You see, it’s because of the cross that I can even begin to love Aaron as I should, especially when he is at times so unlovable.

It’s because Jesus died for me, and because He is my Savior, that I AM loved and that I CAN love.

And I love how the old King James Version says that verse I wrote earlier.  “It is because of the Lord’s mercies that we are not consumed, because His compassions fail not.”

I am not consumed by hatred and sin or God’s judgment, but only because of God’s love and mercy.

Love and mercies that are new every morning.

Like I said, how can I love Aaron any less when I am so loved by God?

One more thing.  The cross is also the reason that I can bear the sadness and fear of Aaron’s 3:00 a.m. seizure today, and another one later.  The reason I can see him sleeping again now and know he may likely seize again.

The reason I can bear up under the disappointment of our doctor day being canceled…because doctor day means, to Aaron, eating out day.  And he does LOVE eating out!  It’s always a fun and happy day, but not today.

Aaron goes through these disappointments and rough days often, which means I do as well.

But like the verses above said, great is God’s faithfulness.  He doesn’t leave me to handle it all alone.  He is right beside me, my best friend, with His mercies and love that give me His peace that passes understanding.

Speaking of understanding, I won’t even go into all the detail of having to wash Aaron’s favorite fuzzy blanket today because he spilled coffee on it…and how it’s the only blanket that he wants to use on his lap when he’s at his desk…or on the couch.

About trying other blankets.

Rejecting those blankets.

Checking his blanket in the wash.

Observing me putting it in the dryer.

Following me around the house because without a blanket he can’t sit or lay.

MERCY!!!   AARON!!!

Hanging Off – Or On?

Aaron has a way of repeating what we say but changing just one word or even just one letter, and so making us laugh or pause in thought.   He has a uniquely Aaron way of expressing himself.

That is, after all, the reason I started this blog and the reason I named it He Said What?!

For instance, yesterday we had some rough weather move through our neck of these Kansas woods.  Aaron was concerned, asking about the storms and wondering if he should turn off his computer.

I’ve often shown him the radar and pointed out some storms headed in our direction. I sometimes refer to them as a clump of storms coming our way.

So, as he followed me around the house and fretted over his computer being hit by lightning, he said, “Mom! Is that lump of storms going to hit us?!”

Two words, so similar, yet somehow the difference was enough to make me laugh.

Aaron has become a fan of the television show Chicago Fire.  In December the fall finale had the typical…and very unrealistic…cliffhanger.  Aaron has talked and talked and talked and talked about those canisters in that basement, surrounded by fire, and whether they would blow up or not!!!

I told him that this was a cliffhanger.  Aaron, who is very literal, saw no cliff in that fall finale.  He also saw no one hanging from a cliff in that basement.

I therefore…and not for the first time…explained that a cliffhanger is when the show’s producers leave you hanging on after the last show of the season in order to make you come back and watch the first show of the new season.

Hanging ON.

But here is Aaron’s take:

“MOM!!  I can’t wait till January 8th!!

Then he waits for me to ask why he can’t wait till January 8th.

“Because that’s when Chicago Fire comes back on!!”

Then he waits for me to show excitement.  I am a good actress.

“Remember how they left us hanging OFF??!!”

Then I laugh.  He thinks my laughter is an expression of my excitement over Chicago Fire resuming.

But my laughter is really about the way he changed my original phrase.

Are we hanging ON…or hanging OFF?

His change-up of that one little word has had me pondering over the past few days.

Hanging OFF a cliff is a scary situation, to put it mildly.

Hanging ON, to me, conveys hope.

In life, when I am hanging off a cliff of fear or dread or disappointment…or any number of other scenarios…I must remind myself to hang ON.

I hang ON to God and to the hope that He gives me.

How often our life with Aaron changes!  We can so quickly go from enjoying life:

IMG_1850

 

To the suddenness of seizures:

IMG_1815

 

The above picture was right after Aaron’s third seizure on Christmas Eve, just as we were getting ready to play Christmas Bingo as we Skyped with Kyle and Andrea from Houston.

It’s a stretch for Aaron to want to play games.  My first heart reaction was to wonder why.  Why must he have a seizure when he was actually willing to sit with us and play a game?

Sometimes his seizures keep him from participating in something that he really wanted to do.  That makes me sad for him.  Disappointed.

He did arouse enough to play Bingo, but I played his card because he was uncoordinated and shaky…and grouchy, which is typical when he plays Bingo.

Every day…every situation…can be a cliffhanger with Aaron.  Will we have seizures to manage?  Behaviors to handle?

I do feel like I’m sometimes hanging off a cliff, holding on for dear life, afraid of what’s next and afraid of falling…of failing.

But then I must remind myself that I’m not alone.  I know and trust God.

And I hold ON to Him.

I don’t understand everything.

I don’t even like everything.

But I love God, and I know He loves me.

So whatever cliff it is, I do know that I’m not just hanging off.

I reach up and I hang ON to God.

He lifts me up and He rescues me…not from the situation, necessarily…but from the danger of despair and hopelessness that can so easily overwhelm me.

After all, look at what God says about Himself in Psalm 91:15:

 

“He will call upon Me, and I will answer him;

 I will be with him in trouble;

 I will rescue him and honor him.”

 

May I remember, every day and in every cliffhanger, that I don’t need to just hang off.

I can hang ON…to the God Who rescues me.

 

 

Four or Forty Tops?

Last night Aaron heard The Four Tops song “Sugar Pie, Honey Bunch” on a commercial.

“MOM!! I know who that is!! It’s the TEN TOPS!!”

He can’t seem to decide just how many FOUR Tops there are! Which reminded me of this blog from several years ago. 😅

He Said What?!

Individuals with Asperger’s Syndrome often become fixated on certain areas of interest.  This is also called “perseverating.”  When Aaron demonstrates this behavior, we call it:  “Oh good grief!  What’s Aaron stuck on now?!”

On our recent trip back east, he took his CD player with him along with some favorite CDs as well as some CDs he hadn’t listened to often or ever.  He loves oldies music and so when he started listening to The Four Tops CD he was captivated.  Over and over he played certain songs, and over and over he stared at their picture inside the front cover.  I had to look at it; Gary had to look at it – and we had to listen to Aaron talk and talk about The Four Tops.  At one point he said, “I love The Forty Tops!”  I told him that if they were The Forty Tops then they…

View original post 458 more words

Changes Ahead

If you know me, and especially if you are a Facebook friend of mine, then you know that I love sky pictures.  I have taken hundreds of sky pictures from our upstairs bedroom windows that face the western sky.

Sunsets:

 

IMG_0230

 

Storms moving in:

 

IMG_0927

 

Sunrise reflections:

IMG_1377

 

Even a Great Horned Owl that used to perch on the top of our big pine tree (sorry for the fuzzy picture):

WP_20161210_17_30_01_Pro

 

The view changes depending on so many factors.  Weather, the time of year, the time of day, trees that have been cut down due to disease, and so much more.

On a recent morning, as I finished my quiet time, I looked out the window and was drawn to the pretty sky outside.  But as I prepared to snap some shots of the sky, my eyes also saw this.

IMG_1857

 

Can you see it?  Where we once had a farmer’s field across the road from us, we now have a future housing development being built.

Civilization is encroaching upon us.  Some call it progress, but we are not exactly happy with how the building of 300 homes will change not only our view, but our traffic and so many other things as well.

But do you know what won’t change?  The sky itself won’t change.

I can still relish our beautiful sky, no matter what’s happening on the ground below.

Change is a fact of life.  Some changes are exciting and wonderful, while others are sad and fearful.

What’s looming in your view today?  Are changes possibly coming in your life that leave you unsettled and scared?

Our focus in those times is vital to our peace.  I can choose to be filled with apprehension or to be filled with peace.

Just like I can choose to look at the houses being built, or I can choose to gaze at the sky above…so I can choose to center my attention on my problems ahead or to center my thoughts on God above.

I control my eyes…my thoughts…my focus.

Psalm 123 states this fact perfectly.

 

To You I lift up my eyes,

O You who are enthroned in the heavens! 

Behold, as the eyes of servants look to the hand of their master,

 As the eyes of a maid to the hand of her mistress,

So our eyes look to the Lord our God,

Until He shall be gracious to us.

 

God is sovereign over our circumstances.

God is also sufficient for us, whatever is our present or our future.

One more thing.  The word “gracious” carries the meaning of someone stooping down in kindness to an inferior.

Just like God stoops down in His mercy to me, time after time, to hold my hand and show me His kindness, so He will do over and over as I walk this path of life.

This is my prayer for myself, to keep my eyes on God and not on what is around me or ahead of me.

I control my eyes.

I am so thankful that it is God Who controls my life.

 

IMG_0969