Unknown Ground

I wrote last Thursday about my mostly happy, musical day with Aaron.                    Singing We Go

But there was also the issue of his wet bed, which I thought was due to him drinking too much water before bed.  Pretty sure I was wrong.

Aaron’s new seizure pattern and the hard end to our mostly happy day certainly pointed to that reality.

I was cleaning the kitchen after we ate a late supper.  Aaron walked through the kitchen and then I heard a noise.  I looked over and saw him face-planted on the kitchen table.  What on earth?  I thought he had stumbled and fallen on the table.

“Aaron,” I asked as I headed toward him.  “Are you OK?”

That’s when I saw him falling over and I knew that he was seizing.  I yelled for Gary as I ran to Aaron, catching him somewhat as he hit the chair and then went down on the floor.  Gary helped break the fall, too, and then got a pillow for Aaron’s head as the seizure continued for awhile and then eased.

I knew, as I watched him, that Aaron must have had a seizure during the night…a seizure I didn’t hear.  This is his new pattern.  A low front with storms came through during the night.  Every seizure in the past 2+ months have come during low fronts, with one seizure at night and then one or more seizures the next day while he’s up and about, out of nowhere.

All this academic stuff, though, did nothing for my racing heart and the feeling that I had been punched in the gut.  Just looking at Aaron as he lay on the floor was heart-breaking, to say the least, and was a very unwelcome confirmation to us of this new chapter in his seizure journey.

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“What are we going to do?” I asked rhetorically to Gary as we stood in the kitchen.

“I don’t know,” he answered, wearily.  “This is unknown ground to us.”

And as quickly as Gary said those words, God spoke to me.  I don’t say that lightly.  But I know that it was God speaking His words of hope to me…to us…as surely as I know Gary’s voice.

“It may be unknown ground,” God said.  “But I have told you that I know the path that you take.”

Such comfort washed over me at that moment!  I mean, I still felt the physical effects in my stomach from the fear of seeing Aaron fall.  I felt weak and teary-eyed and worried.  But really, the “peace that passes understanding” kept rolling over me as I thought of those words: “I know the path that you take.”

This is hope.  This is true, biblical, God-focused hope that the world does not offer or understand.  Haven’t we seen that recently in the spate of suicides of very successful people?

There are two kinds of hope.  When I relate them to our situation with Aaron, I see that we have the first kind of hope quite often.  Gary and I hope that Aaron will improve.  We hope that he’ll be safe.  We hope that something we try will help his seizures to decrease.  We hope that we can find caregivers for Aaron, especially during our daughter’s wedding in Texas.

This kind of hope is a feeling, not based on any certainty, but just…well…a hope.  We hope for the best, but aren’t sure if it will happen.

But there’s another hope, one that comes from knowing God personally through our relationship with Jesus.  This is the hope that Paul, for instance, talks about in Romans 5.

This hope is one directed toward God’s promise, and CERTAIN of it’s realization.

This hope is IN God…in His character…in His Word…in His promises to me…in WHO He is!!

And this hope is why I was instantly filled with God’s peace as Gary and I talked about our new and unknown ground upon which we are walking.

This certain trust born from my relationship with my known Savior is what this world needs, and doesn’t have.  Nothing in this world can manufacture this kind of purpose and peace and comfort.

Nothing!

No amount of fame or money or success or promotion or self esteem or anything else that we strive for can bring us this certain hope.

Only a personal relationship with God will result in such hope.

Our problems may not go away, but that desire is not on what I am to place my hope.  Hoping in a desired outcome is normal, but does not bring me any lasting assurance at all.  I’ve learned that much in my life.

My only assurance is in knowing that God is sovereign.  He is in charge of my life.  He loves me.  He knows what’s best for me…for Gary…and for Aaron.

Sometimes His best is hard, but it’s always best.

So God’s best…God Himself…is my only hope.  And it’s enough, because God is enough.

Edward Mote says it perfectly in the old hymn, The Solid Rock:

 

My hope is built on nothing less

Than Jesus’ blood and righteousness;

I dare not trust the sweetest frame 

But wholly lean on Jesus’ name.

 

When darkness veils His lovely face,

I rest on His unchanging grace;

In every high and stormy gale

My anchor holds within the veil.

          

On Christ the solid rock I stand;

All other ground is sinking sand,

All other ground is sinking sand.

 

To end our evening, as I stood in Aaron’s room and looked out his window, God seemed to smile at me as He gave me this little touch of beauty from heaven.

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God knows the path we take.  All is well.

 

 

 

What Went Wrong?

Today is National Purple Day for Epilepsy awareness.  We are well aware of Epilepsy in our home because of our son, Aaron.  Aaron is 33 years old and has had uncontrolled seizures since he was in the first grade.  We were a military family living in Germany when Aaron unexpectedly had his first Generalized Grand Mal seizure.

It was a Sunday afternoon when Aaron fell back into my arms, thankfully, and began seizing on our kitchen floor.  I had no idea what was happening.  I remember seeing blood coming from his mouth…later learning that it was because he had bitten his tongue…and I remember yelling for Gary, who rushed into the kitchen and began trying to help Aaron while I called an ambulance.

The ambulance ride to the nearby military clinic…then another ambulance ride to the German Kinder Clinic, which is what we called the children’s hospital…was all a blur.  Aaron spent several days in the hospital, where the German care was good but the language barrier and the differing medical methods and practices were very difficult.  But the thing we did understand was the diagnosis of Epilepsy.

Over the years we’ve tried lots of drugs and other treatments, including hospital stays for video EEGs and surgery to have a VNS implanted, but the diagnosis is the same…Intractable Generalized Seizures.

Intractable – meaning not easily controlled or managed.

Generalized – meaning that the seizures quickly involve the entire brain instead of one small part of the brain.

OK, lesson over.

Because what I really want to do is to share with you the incredible strength and resilience of our Aaron…and of many others I know who struggle with seizures due to Epilepsy or other causes.  And to also share the incredible strength of God that He gives when needed the most.

This past Thursday night, Aaron had a seizure shortly before midnight.  I heard it on the baby monitor that sits on our nightstand beside our bed.  He had another just after 2:20 a.m.  And yet another seizure at 6:45 Friday morning.

He got out of bed not too long after that, heading to the bathroom and turning on the shower right away.  He cleaned up while I stripped his bedding and started the laundry process.  Soon Aaron was in the kitchen, telling me of his bad headache and asking if he could have his coffee.

He spent most of the morning here, as is so usual after these clusters of seizures.

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When he was more awake and feeling better, and after eating a little, he wanted to go with me to pick up a few groceries.  He was happy to come home with ice cream and cashews and sparkling water, and happy to have supervised Mom in buying what she needed to make for his supper request…Lasagna!!

Aaron went right back to bed when we got home, in his for-real bed now since part of his bedding was back on.  And at 3:33 – since Aaron appreciates such precision…he had the hardest of his four seizures.  Yet amazingly enough, within 15 minutes, he was out of bed…though slowly…and was happy for me to finish putting on all of his sheets and blankets.

Aaron always helps me change his sheets, but I certainly didn’t expect him to do that this time.  I told him to sit in his chair, but he didn’t acknowledge me at all as he stood by his bed, ready to help.

This is what I find so amazing about Aaron.  If I had been the one just finished with my fourth seizure, I imagine that the last thing I would want to do would be to help put sheets on my bed.  It was so heartbreaking for me to watch him stand there, part of the time with one hand on his wall and the other on the headboard of his bed, completely out of it.  Then he turned and bent over, just staring at nothing.  He couldn’t talk well at all, but when he saw a wrinkle in his cover, he reached out to correct it as quickly as he could.  I smiled as I saw his autism come out even through his very fuzzy brain.

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He stood there by his bed during the whole bed making process.  He tried so hard to function…to think…to speak…to move.  All of it was such a demonstration of how impacting seizures are on the brain.

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And it was also a commanding demonstration of how tough and brave Aaron is.  How he fights to keep going!  How much he wants his world to be his version of normal, even though it is anything but that.

He only had one piece of lasagna for supper.  That’s because he couldn’t taste food…another sad side effect of seizures.  His hand and mouth tremored, too…yet another side effect.   Then there’s the drooling.  And on the next day, extreme dizziness and needing help to walk because his legs didn’t work right for a while.  Even on Sunday, his sense of taste hadn’t fully returned.

Medicines that help seizures have side effects.  What is what, we don’t always know.  But decrease or stop the meds, and the seizures increase.  It’s a complicated situation.

It’s a reality for far too many people…far too many families.

But I want to answer the question that Aaron asked me on Saturday as he talked about his seizures.  He sometimes verbalizes his thoughts in profound ways, especially when he is thinking about being born to live a life with seizures.

“Mom?” he asked.  “What went wrong with me?”

A heart-piercing question from my son.

So to Aaron I said simply, and say here as best I can:

            Dear Aaron, nothing went wrong with you at all.  God made you wonderfully, as He tells us in Psalm 139.  You are fearfully and wonderfully made.  You were crafted by God.  I don’t know why you have Epilepsy, but I do know that God loves you and He has allowed this for a reason…one that we don’t understand right now.  But God loves you, and so does Dad and so do I.  We think you’re strong and amazing.  Even on our most frustrating days, and yours, we know that we can trust God because we know Who He is.  He is Sovereign, which means He is in charge and He knows best.  We’re glad you’re our son, and we will always be thankful for our Aaron.

“And we know that ALL things work together for good to them who love God, who are called according to His purpose.”  (Romans 8:28)

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A Heritage Worth Leaving

We hated to do it, but the time had come.  Our last two remaining pine trees had, or were, succumbing to Pine Wilt disease. 

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The destructive nematode had done its dirty job and now it was time for the tree service to come in and do theirs.  It’s always sad to see once beautiful trees that have stood for years come crashing down in a matter of minutes, then chopped up and hauled away like so much trash.

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In our front yard lay the biggest heartbreak, though.  Our one remaining evergreen…we called it our Gumdrop Tree…that we had decorated every Christmas for many years was dying as well, so down it came and off it went. 

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Just like that.

Gone.

No evidence remains of our once gorgeous trees.  Every piece was cut down, cut up, and driven away in huge trucks. 

Even the stumps were ground down.  Gary finished the clean-up in the following days, planted grass, and that was the end.

I thought of these scenes the following week when I was reading in my One Year Bible.  This phrase jumped out at me in Jeremiah 16:19:  “…our ancestors left us a foolish heritage, for they worshiped worthless idols.”  (NLT)

I instantly thought of my role as a parent, and have pondered since then the sad prospect of a foolish heritage.  My role as mom and Gary’s role as dad has drastically changed over the years. 

We have gone from this:

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To this:

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And it all seems to have happened so very quickly!

Plus…we are planning a wedding this year!!  Yes, Andrea and Kyle are to marry in October!! 

So I see with my own eyes the passage of time…how true is the scripture that says all flesh is grass that withers away.  Like a flower that fades, God tells us.

That’s quite a reminder that life passes quickly.  The picture of our fallen trees was a stark example to me of that truth.  Once stately and strong, they are now gone. 

But I am not that tree.  Though my life may fly by quickly, I have the opportunity to leave a heritage behind, especially to my children. 

To young moms and dads beginning on this journey of parenting, I would encourage you to be intentional as you set out to raise your children.  Live with the end result always in mind, as my friend Jill loves to remind young mommas. 

What will matter most when your children say that dreadful goodbye and leave your nest?  I can tell you that it isn’t whether they have mastered a sport or a musical instrument.  It isn’t whether they have excelled at school and have college scholarships awaiting.  It isn’t that they have tons of friends and a super active social life. 

What matters most is their personal relationship to Jesus Christ.  What matters most is their mastery of God’s Word.  What matters most is that they have owned their faith. 

We leave our children a worthless heritage when we focus our time…our energy…our money…our every effort…on things that will not matter one whit to their eternal souls.  Sports, music, grades, friends, a social life…these have their place, but they are not to take THE first place in our child’s life.  And it’s up to us as parents to guide their focus to what holds true value in their lives, even when they don’t see it that way. 

What useless idols do we worship as we raise our children? 

Fame?  Money?  Popularity?  Technology? 

It’s so easy to get sucked into the mold of this world, thinking that these issues are all important while we ignore the eternal and the spiritual. 

Foolish heritage.  What a tragedy! 

Don’t let that be said of you, dear young parents.  Start now to look ahead to the end result…to think of where each activity and each focus of your child’s life will lead them. 

Remember that God also said:  “The grass withers, the flower fades, BUT the Word of our God stands forever.”  (Isaiah 40:8)

Now that’s a heritage worth leaving!

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The Raging Waves

I remember so clearly the first time I saw the ocean.  There I was, a little West Virginia mountain girl, on our family’s first beach vacation trip.  We had driven from southern West Virginia down to South Carolina’s Myrtle Beach, where we stayed for one week.  I don’t recall how old I was.  I do know that I ran down to the sandy beach and was just awestruck by what I saw and heard.  The ocean went on forever!  And the noise of the waves was both intimidating and amazing.

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I felt small in front of such unending power!  And I definitely felt small when later, either on that trip or another family vacation to the beach, an undertow pulled me out into the water.  I was terrified and helpless!  And ever so thankful when my brother-in-law swam out to me and pulled me to shore!

I’ve never forgotten the power of that ocean.  That experience gave me a healthy respect for deep water and the danger that it can carry.

I recently wrote about Israel’s deliverance by God from Egypt, and how God brought them to the brink of the Dead Sea.  How terrified and angry they were as they stood there, helplessly, in front of this impossible situation!  And God had LED them to it!  Of course, we know that God also led them THROUGH it.

This morning I read in Joshua 3 about the children of Israel finally reaching the promised land of Israel.  And sure enough, there in front of them lay another watery obstacle…..the Jordan River.  And the Jordan wasn’t just any old small, crossable river at this time of year.  Instead, God brought them to the Jordan during it’s annual flood stage.  The river was a huge, raging torrent – very wide and full of masses of swirling vegetation underneath the impossible current.

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We, once again, know the story.  God gave instructions to Joshua and to the people about crossing the scary waters of the Jordan River.  “By this you shall know that the living God is among you,” Joshua told the frightened people.  “God WILL deliver the enemies from before you!”

So God instructed the Ark of the Covenant to go first, and for the people to follow.  God going first.  As soon as the priest’s feet hit the Jordan’s torrent, the waters parted and all the people crossed over on dry ground.

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We sometimes wonder why God leads us the way He does.  Why not just lead Israel around to the promised land on the “dry way?”  Why does God seem to want to do things the hard way?

Well, if we never experienced the terrifying power of the waves in our lives, we would also never experience the redeeming power of our God.  We all at times feel like the Psalmist in Psalm 93:

“The floods have risen up, O Lord.  The floods have roared like thunder; the floods have lifted their pounding waves.  BUT mightier than the violent raging of the seas, mightier than the breakers on the shore – the Lord above is mightier than these!”

As a child of God, you can know that God has a purpose for everything in your life…even the awful junk that seems so unfair and hurtful and wrong.  Sometimes He allows some things to happen that we don’t understand…things that even make us question where He is, or why He let it happen.

We must cling to the fact that God is sovereign, even when we’re hurting and angry and doubting.

Look at Psalm 92:1-2:

“It is good to give thanks to the Lord, to sing praises to the Most High.  It is good to proclaim your unfailing love in the morning, your faithfulness in the evening.”

So we wake up in the morning, thanking God for loving us.  And at the end of the day, no matter what rivers and oceans we encounter, we can say that God is faithful.  He is faithful to lead us, to keep us, and to eventually deliver us.  He is faithful when we don’t feel it, see it, or understand it.  We KNOW He is, and we at times have to cling to what we know even if it’s not what we feel.

Remember that God went first into the water and told Israel to follow.  And likewise, God goes first before us into the turmoil that we face, leading our way and wanting us to trust and follow Him.

God is mightier than any raging waves of life that threaten to pull us under.  Never doubt that for a minute!

Never doubt HIM for a minute!

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God’s Backing

Last Wednesday night, Aaron and I were watching a DVD.  I heard a sound coming from him as he sat in his favorite chair.  I looked over to see his head arched back in that all too familiar way, his arms raised above his head, and his face starting to contort into a seizure.  Surprise seizures like that are always a shock, no matter how many times we see them.

I jumped up and removed his glasses, grabbed some paper towels, and noted the time for our log book.  Gary was upstairs by then, so we just stood beside Aaron to be sure that he was all right.  A two minute seizure is typical for him, but sometimes it seems to take forever as we wait for it to be over.

Aaron’s seizures are most often at night, though more and more are occurring at other times.  Night seizures are actually more dangerous, other than the risk of falls during day seizures.  And nocturnal seizures prevent us from seeing the postictal stage, which is the time after a seizure when Aaron is recovering from the effects of it.  During the night Aaron just sleeps, but during a seizure when he is awake we are there to see him coming back, so to speak……becoming aware of his surroundings and of us again.

It was between 10 and 15 minutes after this seizure that Aaron’s eyes opened and he lifted his head from the back of the chair.  It takes some time then for Aaron to register anything.  He still can’t talk for awhile after his eyes open, and he doesn’t respond to things we might tell him to do.  He’s just really out of it for some time.

On Wednesday night I sat on the ottoman where Aaron’s legs and feet were resting.  I rubbed his legs and talked to him.  His eyes were huge as he just stared at me.  He kept those big eyes glued on my eyes, and I just looked back at him as I softly talked to him.  He didn’t respond……only stared with that blank gaze.

I decided to move my head from side to side.  I moved to the right, and Aaron’s eyes moved to the right.  I moved to the left, and again his eyes followed me.  I repeated the moves, and so did Aaron.  I smiled, but he just continued staring.

I sat there looking back at Aaron, assuring him that he was fine.  But I was thinking of how I would hold little baby Aaron in my arms as he fed, or as I rocked him and sang to him, or we just snuggled.  I remembered how he would follow my eyes and my face with his precious little baby eyes, fully trusting me as his mama.

My fully grown man of a child…..still my Aaron……was following my eyes in much the same way that he would follow my eyes as a little baby in my arms.  Just as he trusted me as an infant, he was still looking to me and trusting me in those moments following his seizure.

I tried to blink my tears away before Aaron became alert enough to notice them.  I didn’t want to scare him……plus Aaron has no appreciation for tears.  He would call me a cry baby when he could finally talk, of that I was certain.

But I couldn’t blink away the memories of Aaron as a baby as we continued to sit there in a kind of stare down.  I was like any excited mother after the birth of her firstborn.  I felt that no woman ever, past or present, had ever felt as blessed as I felt when I held and examined my perfect baby son.  I was so thankful and so full of joy at this precious gift Gary and I had been given!

Never ever even once did I dream that I would be sitting on an ottoman staring still into the eyes of my son, but this time my adult son who had just had one of many hundreds of seizures he has had over the years.  Why would I have ever looked down at my baby boy and thought, “I wonder if someday Aaron will have Epilepsy or autism?”

We all wonder if our children are going to be healthy, but a healthy baby like I had lends itself to a confidence that health will continue.  So when Aaron was older and we started noticing some differences in him……and definitely after his first seizure……our reality changed, big time!

But what didn’t change was our trust in the God we know.  Gary and I knew the character of God.  We had walked with Him long enough to know Him well.  And that knowing led to instant trust……trust that our Father knew what He was doing, even if we didn’t.  It doesn’t mean we didn’t cry, especially me.  It doesn’t mean that over the years we haven’t been very tired, very discouraged, very worried, very sad.

But God always, always, always reaches out to us with a personal touch from Scripture…..a still, soft voice in our hearts……a comfort that can only come from the Holy Spirit…..a peace that truly passes understanding……a promise that we have read a zillion times but suddenly is just for us at that moment.

Just the day before that latest seizure, listen to what I read in Psalm 138:2.  I love the New Living Translation of this verse:

“I praise Your name for Your unfailing love and faithfulness; for Your promises are backed by all the honor of Your name.”

God doesn’t make groundless promises.  His promises are backed by ALL the honor of His name.  And that’s all we need.  We don’t need explanations or answers or reasons or guarantees.  The honor of His name is enough, totally enough.  He is sovereign, in charge, and full of love for Aaron and for me and for Gary.

So I thought of all this while Aaron was staring at me and I stared back.  I had a little prayer meeting there, with some praise for His unfailing love and faithfulness…..and for His dependable promises.

God and His promises are there for all of His children, just when we need Him.  I’m so thankful for Him and for His certain plan in my life and in Aaron’s.  He has proven Himself more than enough for us more times than I can count.

I got up from the ottoman finally, and began to get things ready for us to head up to bed.  Aaron still stared at me.  Finally I could tell that he was coming around…..was more alert.

And of course, many of you would be able to guess the first word out of his mouth when he could talk again.

“Mom?” he said.

Why was I NOT surprised at that?!

The Plans I Have For You

I think most of the nation has had a milder than usual winter.  Here in Kansas, we really haven’t had a winter to speak of.  Trees were budding, bushes were bearing leaves, and perennials were poking out of the ground in February!

I shouldn’t have been surprised…..but I was surprised……to walk past my front flower bed one day in February and look down to see that my Salvia had made an appearance.  There were fresh little green leaves sticking up through the ground, unaware that the month was only February.  Salvia don’t look at calendars.  They only respond to the warmth of the sun and the mildness of the nights.

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Something occurs deep underground, in their roots, that awakens them and urges them to respond.  It’s God’s miracle of growth, not tied to the month of the year but to the environment around them.  And even though that environment can at times be harsh still at this time of year……at any time of year, really……their roots stir under the right conditions and so they grow.

I was tempted on that February day to lean over and clear off all the dead leaves that looked like a hindrance to the Salvia’s growth.  But I left the leaves for insulation against the cold nights, and the snow that I knew could still come.

I’ve watched the progress of my Salvia over the past few weeks.  The picture from this morning shows how much growth has occurred.  The dead leaves, old mulch, and other clutter hasn’t prohibited my Salvia’s growth at all.  The perennial nature of this flower is alive and well as those new leaves push through all the mess around them.  It just faithfully grows and grows, quietly but strongly flourishing.

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This morning in my quiet time with the Lord I read some verses that are very familiar to many of us.  They are words spoken by God to the nation of Israel, recorded by the prophet Jeremiah.

“For I know the plans that I have for you, declares the Lord, plans for welfare and not for calamity, to give you a future and a hope.  Then you will call upon Me and come and pray to Me, and I will listen to you.  You will seek Me and find Me when you search for Me with all your heart.”   Jeremiah 29:11-13

These are verses of such encouragement and hope for all believers, not just for the nation of Israel during the time of Jeremiah.  But do you know where Israel was when God spoke these words to them?  They were being held captive in Babylon.  They were not in their home country, living freely, but were held as captive slaves in a harsh land far from all they knew and loved.

In the ten verses preceding these verses above, God had given some instructions to His chosen people through a letter written by Jeremiah and delivered to the exiles in Babylon.  God told the people to settle in to their new life in Babylon.  He told them to build houses and live in them; to plant gardens and eat their produce; to take wives and bear children; to increase and not decrease; and even to seek the welfare of their new city, praying to the Lord on its behalf.

You know how long God told them to be faithful in their captivity?  Seventy years.  SEVENTY years.

So when God then said that He knew the plans that He had for them……plans to give them a future and a hope……He also knew that this promise wasn’t coming to pass tomorrow.  He laid it out there for them.   He told them to live as He commanded and to be obedient to Him, even in their dire situation, for seventy long years.

God’s promise was given to them in the middle of less than ideal circumstances.   It wasn’t to be fulfilled immediately.  But while they waited, God wanted them to live their lives fully and faithfully to Him.

In fact, many of those Israelites would never see the promise come to pass.  They would die in Babylon.  Yet God still commanded them to be obedient and live the way He wanted.

How about us?  How does God want us to live every day?

He wants us to follow the example that He continually sets out there in His Word for us to see.  He wants us to be faithful to Him, to obey Him, and to grow no matter what is going on in our lives.

We may be going through awful times so full of grief and stress that we wonder how we can get out of bed every day.  God knows.  He understands.  He loves us.  He provides what we need.  He promises us a future and a hope.

But relief may not come today.  It may not come tomorrow.  Or the next day, or the next.  But like He told His people in Babylon, He says to you and to me today.  “Call upon Me.  Pray to Me, and I will listen.  For you will seek Me and you will find Me when you search for me with all your heart.”

It’s simple, really, but so difficult to do sometimes when our surroundings are bitter and hard and scary.  Call upon Him.  Pray.  Seek Him with all your heart.

Read His Word with an open heart to hear what He has to say to you.  Ask Him to lead your steps.  Obey what you know He tells you to do in His Word.

God will speak to you.  He will lead you to Himself.

And in the middle of your pain and your stress, you will grow.  Just like my Salvia in the middle of deadness all around it and the coldness of some nights…..still pushing through and growing, as God intended.

God loves you.  He truly does have a future and a hope for you as you follow Him, but not always…..in fact, seldom……without the suffering and sadness of this life.

But what a beautiful work He is doing in you and in me as we faithfully respond to His love and to His word in our lives!

So grow!  Grow where God has put you!

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Choosing My Focus

I had my day all planned today, my to-do list made, and the order of that list firmly in my head.  Take Aaron to Paradigm, then the post office, return an item to Gordman’s, stop at the Vintage store to ask about milk paint, run quickly into Dillon’s, probably get gas, home for a quick lunch and indoor straightening, and then outside into this upcoming warm afternoon where I was looking forward to some leaf raking out of our drainage ditches and picking up branches and maybe pine cones and cleaning off the front porch and vacuuming out the van……whew!…..and pick up Aaron and home to make supper and then Wheel of Fortune and ironing and then bedtime before I know it. 

There.

What I wanted to get done today is based on what I need to get done tomorrow, and the next day, and the next.  We all know how that is.  None of these errands is life changing, by any means, so if they don’t get done today it’s really not a huge deal. 

And they won’t get done today, at least most of them won’t.  Poor Aaron had a night of hard seizures, so he’s having a day today of sleep along with a terrible headache……and the possibility of more seizures, so I won’t stray too far from him today.  My to-do list pales in comparison to what he endures, and to how I hurt for him. 

I’m extremely blessed in many ways and I recognize that.  Gary’s job allows me to stay at home with Aaron.  Gary is a faithful, hard worker.  Aaron’s seizure clusters don’t happen daily, so he has many days where he feels good and is able to participate in life.   And my greatest blessing?  That I know God and I know that He is in control of our lives, including Aaron’s life. 

Aaron came downstairs this morning, took his morning pills and some Ibuprofen for his terrible headache, and then lay back down on the couch with his soft pillow and his favorite fuzzy blanket and a trash can close by in case he needs to throw up.  And as I listened to him breathing in sleep, I thought that this…..

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This hard thing…..is what has continually over time drawn me ever closer to God.

If all I see, though, is Aaron and this sadness, then my faith will falter.  But I have learned to look beyond the seizures…..the sadness for my son…..the pain…..and to look at God. 

God….Who has a plan.  I read in Psalm 25 this morning, and was so filled with joy.  “O Lord, I give my life to You.  I trust in You, my God!  The Lord is good and does what is right.”  And other verses this morning that confirmed to me that the very thing that causes me the most heartache is the thing that also deepens my walk with God.  God does what is right, even when to me it seems far less than right.

It’s all in where I choose to put my focus.

Then my friend, Jill, posted an article on Desiring God…..an article on intimacy with God, written by Jon Bloom.  It was excellent!  And this statement in the last paragraph says it perfectly:  “Intimacy with God often occurs in the places where we must trust Him most.”

Yes!!  Lying on my couch is my son whom I dearly love, and whom I dearly wish could live a normal life, but God has not willed that to be the case.  But in that pain of my mother heart has grown a deep trust in God, learned over time and in the hard, broken places.

I’m reading “Faith of Our Father” by Dale Ralph Davis, and is it ever good!  Today I read about Abraham and his faith, but how faith isn’t always a piece of cake in the long term.  Our faith can waver, so that’s why we need to keep our eyes on the One in Whom our faith rests.  Davis says, “….if the object of faith is what matters, then don’t be overly worried about faith itself, wondering how much you have, anxious about the ‘amount’ of faith.” 

I’ve heard people say, “Well, God didn’t answer my prayers.  Was my faith not strong enough?”  No, no!  The strength of our faith has nothing to do with us but everything to do with the God that we trust.  He is the strong one!  And He DOES always answer prayer.  It’s just that sometimes the answer isn’t what we wanted, so we tend to think that He hasn’t answered.  In reality, what we’re thinking is that we just didn’t get our way.

I love Davis’ prayer at the end of this chapter I read today:  “We give thanks, O Lord, for the trouble you take to help us go on believing.  Teach us not to fret over the intensity of our faith, but convince us that even a weak faith may lay hold of a strong Christ.  Amen.”

Amen, indeed!

My faith can on some days be weak.  If I just look at Aaron…..his seizures……his autism and behaviors……his here and now…..and his future – then I can most definitely falter.  But like Davis said, may my weak faith lay hold of a strong Christ!! 

I’m not a super parent, but I do have a super God!

And the more I trust Him, the more my faith grows. 

The impossibly hard times are times rich with learning, if we but let go of our pain and place our focus on God, Who loves us more than we can know.  When I open my hand and place it in God’s hand, then I have also let go of the pain that I sometimes hold too close. 

“Bible faith looks away from itself to the One Who promises and finds rest there.”  (Davis)

I can be thankful that God took my to-do list and added the most important thing to be done, at the very top of the list. 

Trust Him and rest in Him. 

And to be here for my Aaron…..this son that has taught me so much, even when he doesn’t know it. 

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