Peace – He Said What?!

When is the Time to Trust?

A couple mornings ago I felt compelled to open my very old copy of the classic devotional book, Streams in the Desert. This book was a gift from my home church when I graduated from high school way back in 1973. But even though my graduation date makes the book old…of which I am all too aware more and more each day…the actual writings of Mrs. Charles Cowman were first published in 1925. Her writing style may be old school, but the deep truths contained therein are timeless.

I was touched deeply by what I read that morning about faith and trust. I jotted a few notes, tucked the truths away in my mind, and was soon about my busy day. Aaron was staying home that day and we had fun plans!

Our plans were to meet some friends at All Star Sports for a morning of games. My friend Joyce and I had decided to get our two sons together. It would be the first time that Johannes and Aaron would be with each other for an outing, and we both wondered how it would go.

How it went was great! I mean, there wasn’t tons of interaction between them, but the ice was broken, and plans were made for more time together. Sweet Johannes held his hand out and with a prompt from me, Aaron shook his hand without squeezing it too hard, and Joyce and I laughed and were happy. The boys had a good time and that’s what mattered!

Aaron and I then went to eat some lunch and to drop off donations at Goodwill before heading home. Soon after we got home, Aaron took a nap. I had the monitor nearby, listening as I always do when he sleeps. I really didn’t expect to hear a seizure, so I was surprised when I suddenly heard that unmistakable sound coming across the table where I sat.

It was a hard seizure, lasting close to 3 minutes. And exactly one hour later, to the minute, he had another one. It wasn’t as long as the first one but was still 2 minutes long. Thankfully, he was done then and had no more the rest of the day.

It’s so surprising, even now after all these years, how quickly Aaron can go from being out and about, happy and fine, to having a seizure. I don’t try to figure them out like I used to do, but I still find myself wondering why.

Even the next day on the way home from his day group, his speech was somewhat slurred, and he was very tired. He fell asleep on the way home instead of his usual non-stop talking. Was it the residual effects of yesterday’s seizure, I wondered? Is his sodium low again? Will he have another seizure when he gets home and takes a nap?

So, even though this is Aaron’s life and our life, it’s still disconcerting. Worrying. Unsettling.

My mind was drawn back to the devotional I read earlier that morning. I went back to it and was, as I always am, so amazed at how God has for me just what I need when I most need it.

Mrs. Cowman’s words were based on the story of Paul’s shipwreck in Acts 27. The south wind blew gently as the sailor’s pulled anchor. Paul had warned them not to take this trip, but they didn’t listen. And that south wind was such a hopeful sign to them that they were right, and Paul was wrong.

But soon a terrible storm hit. For days the ship was violently tossed on the waves. During that horrible storm, with no sun or stars for days…with everything thrown off the ship that could possibly be tossed overboard…verse 20 says that all hope of being saved was abandoned.

But an angel of God stood before Paul to assure him there would be no loss of life. Paul stood bravely before those battered and terrified seasoned sailors, and confidently said, “So take heart, men, FOR I HAVE FAITH IN GOD!!”

I thought about our life with Aaron…the ups and downs in so many areas…and the fear concerning his seizures. How that day had been so much fun and so without fear, and then out of the blue came two hard seizures. It was easy for fear to replace our fun.

My need to trust God is always there, right at the surface, even underneath all the normal and the fun and the hopeful.

But ACTUALLY trusting God is a must when suddenly the normal and the fun and the hopeful is yanked away.

That level of trust is a conscious decision that I must make.

That level of trust isn’t based on circumstances or on feelings but is rooted in God Himself…in Who I know Him to be.

This year for all of us has seen the rug pulled out in so many areas of our lives. Things were going along pretty well for most of us. Then…BAM!!

COVID…jobs…riots…anger…fear…disagreement.

I want to leave you with the hope that God is not taken aback or surprised by any of this. He has a purpose and a plan.

Can you say, with Paul, that you have faith in God?

I want to leave you with a wonderful poem shared by Mrs. Cowman that I read that morning. I hope it will mean as much to you as it did…and does…to me.

When is the time to trust?

Is it when all is calm,

When waves the victor’s palm,

And life is one glad Psalm

Of joy and praise?

Nay! But the time to trust

Is when the waves beat high,

When storm clouds fill the sky,

And prayer is one long cry,

O help and save!

When is the time to trust?

Is it when friends are true?

Is it when comforts woo,

And in all we say and do

We meet but praise?

Nay! But the time to trust

Is when we stand alone,

And summer birds have flown,

And every prop is gone,

All else but God.

What is the time to trust?

Is it some future day,

When you have tried your way,

And learned to trust and pray

By bitter woe?

Nay! But the time to trust

Is in this moment’s need,

Poor, broken, bruised reed!

Poor, troubled soul, make speed

To trust thy God.

What is the time to trust?

Is it when hopes beat high,

When sunshine gilds the sky,

And joy and ecstasy

Fill all the heart?

Nay! But the time to trust

Is when our joy is fled,

When sorrow bows the head,

And all is cold and dead,

All else but God.

To Ignore Aaron

Anyone who has been exposed to Aaron will no doubt agree on this: Aaron is very hard to ignore!

Aaron is going to do what Aaron is going to do. He is mostly unaware and uncaring of the reactions he generates from others.

Whether he is sitting in our front yard relaxing as he breaks apart the mulch:

Or dressing in this hilarious “fashion” for all to see:

Or deciding to pet Moe, our neighbor’s cat, on Moe’s level:

There is generally no stopping Aaron from forging ahead with his version of living life to the fullest!

Aaron struggles with waiting on me to do an activity with him. I often don’t tell him that we’re going somewhere, for instance, until shortly before we leave. If I tell him that we’re going out, then he hovers and gets very impatient with me. Best to just dash out the door quickly than to endure the anger that his impatience causes.

But some activities are set in stone, for the most part, and Aaron will begin his hovering when HE is ready for whatever that event is. Every night we watch a program together. Most often it’s a series that we are going through. Right now we’re watching Little House on The Prairie. Nearly every night Aaron will begin his impatient waiting for me to be ready to watch our next episode. He will stand outside my bedroom or bathroom door, talking and questioning and getting angry if I don’t hurry. One recent evening, I told him to NOT wait outside my door. I was pleased that he obeyed, and I could get ready in peace and quiet.

But when I rounded the corner to go downstairs, here is what I saw:

Oh Aaron!! 😊 😊

“I’m waiting on you to get ready!!!” he informed me.

And once again, Aaron was impossible to ignore.

When Aaron has crossed the line with his behaviors, though, one way to get my point across to him about his disobedience is to ignore him. I become quiet and I barely answer his questions, if at all. It’s hard for me to do that but I have learned that being ignored by me speaks more profoundly to Aaron than all the words in the world that I could use. He knows he has really done wrong and that he must make it right.

Last week Aaron and I were in a store. We were checking ourselves out when I ran into a problem and needed help. When the attendant stepped around the corner to help me, I saw that it was someone I have come to know there. Aaron knows her, as well. This person has a hard life, and sometimes she is very down. She doesn’t hide it, and when she approached me, I knew that she was having a bad day. She didn’t engage me at all when I spoke to her. I can handle that – no problem.

But Aaron doesn’t get those cues from people that you and I see. He noticed that her hair was different and so when she walked away from me, he followed her. When she stopped a short distance away, with Aaron at her back, he rubbed his hands together as he happily spoke to her.

“Your hair is short!!” he declared.

No response from her as she kept her back to Aaron.

“Your hair is short!!” he tried again.

Still no response.

I called Aaron back to me, telling him that she was busy, and he didn’t need to bother her today. I knew he was confused, though, because typically she engages him with interest and kindness.

As for me…I was so angry. For someone to dismiss and ignore Aaron has always been a very hard thing for me to handle.

I stayed pretty riled up about it for the rest of that day. I talked to my husband and to my daughter about it later. I stewed and brewed for quite some time.

But God, as He always does if I but listen, told me that I should not only pray about my reaction but that I should definitely pray for this sad person.

And that I should remember a verse from Psalm 37 that I had recently studied:

“Cease from anger and forsake wrath; do not fret; it only leads to evildoing.” (Psalm 37:8)

Do you know what the word “fret” means? It means “to get burned up.”

And that’s exactly how I felt! It burned me up to see Aaron being so blatantly ignored!

Yet what I needed to carry away from this situation wasn’t my load of anger, or my justification for it. I needed to release my feelings to God and just put a stop to my desire to get even…to report her…to make a point.

Getting steamed about our hurts often leads to evildoing, as that verse says. We certainly are seeing that in our country today!

How much better it is to talk to God about it, and to follow the example of Jesus…who, though reviled, did not strike back.

It’s a choice I am allowed by God to make.

Do I choose peace? Or do I choose conflict?

It’s best to follow Aaron’s example, too. He does bounce back quickly from his anger and hurt, most of the time, settling in to the next thing that captures his attention.

So, like Aaron, I’ll find and choose the joy…in whatever shape it takes.

What Do I See?

Aaron and I were coming out of the grocery store recently. Suddenly he veered sharply to his left, leaned over, and proudly held up his prize find. A penny! He was so happy to have snatched this treasure! He proudly held it up for me to see before stashing it safely in his pant’s pocket.

This is so routine with Aaron. Everywhere we go, he spies items on the ground that most people don’t even see. Or if seen, most of us wouldn’t think they are worth our time or attention. But not Aaron!

We’ve had to teach him over the years that some things he sees are not treasures and are not even safe. Things like cigarette butts…yuck! Or random hair bands, bobby pins, or combs.

Last week, he and I walked out onto our driveway after a rain. Before I knew it, there he was, leaning over to look at what had caught his eye this time.

“MOM!! LOOK!!” he exclaimed. “It’s a worm!!”

A worm. Aaron just had to look closer at this worm and touch it. Again, to me it was just another worm, if I even did see it. But not to Aaron. To Aaron, this worm was a find worth investigating…worth stopping for…worth his notice.

This is such a strange and difficult time we are in right now. There is so much to absorb…to hear…to try to understand about this virus and about its dangers. We are besieged with so many changes and challenges.

What do we see when we look around us?

Fear?

Hardship?

Loss?

Stress?

Certainly, most of us can say yes, to one degree or another, to all the above.

But there’s something else we really must keep sight of. David said it perfectly in Psalm 26:3: “For Your lovingkindness is before my eyes…”

When my eyes dart here and there in such unusual times as we have right now, may I see…above all else…the lovingkindness of God.

Another version says: “Indeed, Your covenant love stands right before my eyes…”

God’s love for us is right before our eyes, every day and every moment of this scary and trying time.

Sometimes I just don’t see it, though. I don’t see God’s love because I’m too focused on looking way ahead at what is yet to come, usually with trepidation instead of trust.

This verse continues this way: “Indeed, Your covenant love stands right before my eyes…and I have walked along in Your faithfulness.”

It’s not MY faithfulness that is being talked about here. It’s GOD’S faithfulness to me that matters!

We say God is love. We know God is love. But sometimes when life is overwhelming, we don’t see His love through eyes of faith.

We don’t understand why we’re being besieged by COVID-19. Why is God allowing this to happen?

We can’t say for sure, but what we do know for sure is that God loves all of us, and He wants each of us to know Him and to walk along in His faithfulness.

Sometimes I just need to stop, like Aaron so often does, and bend over before God as I look at His love.

When I observe His love and think of His deep love, I know peace that passes understanding.

Peace even in the middle of panic all around.

Then I can stand up again, sure of God’s love right before my eyes, and take off walking again.

Walking in God’s promised faithfulness through the uncertainty.

God’s love for each of us is worth our time and worth our notice. God makes THE biggest and best difference to me when I’m stressed.

It’s great to stop at some point each day right now, and just ponder the treasure I see right before me.

Thank you, God, that Your covenant love stands right before my eyes!

The Cold Snap

We have a little bush in our front flower bed, a perennial that we planted probably 17 years ago. In fact, I can’t even remember the name of this little bush, so I just call it that – Little Bush. This hardy bush keeps its leaves on all year long, which is part of its charm. In the summer the leaves are green with some maroon mixed in, and in the fall and winter the leaves are mostly maroon. Small berries also grow among the leaves in the fall, so by Christmas it seems to be all decorated for the season. I really like my Little Bush!

Last year, though, probably starting in March, I noticed that Little Bush didn’t look so healthy. Its leaves that always stay were falling off, until finally only stark, naked branches were there.

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This was quite unusual, and I was worried. Was I finally going to lose my long lasting little bush? Was there something that I could do to save it?

I kept looking at Little Bush, wondering what had happened. Then one day an article in the newspaper caught my attention. The headline said something about how certain trees and bushes in Wichita were losing their leaves. I read the information with interest because of my little bush. The writer explained that earlier in the winter we had experienced several nights when temperatures had dipped to -10 degrees or lower. These frigid temperatures had damaged some trees and bushes that normally held their leaves all winter.

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There was my explanation, I thought. This cold snap had damaged Little Bush. Then the article went on to assure gardeners not to worry but to be patient…that most trees and bushes would begin to grow again in the warmth of spring because their roots were not damaged by the extreme cold.

So I waited and I observed. I checked my little bush routinely and sure enough one day I saw tiny new leaves emerging on the empty twigs.

As time went on and the days passed, the warm spring sun and the rains did their restorative work. Little Bush grew…

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And grew…

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Until finally Little Bush was back, as pretty as ever!

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I’ve had some cold snaps in my life, too…times and events that came unexpectedly and with little or no warning. Everyone has.

Cold snaps hurt. And they take many various forms.

An illness. A diagnosis. Sudden death. Lingering death. Rejection. Accusation. Betrayal. Job loss. Divorce. A prodigal. Regret. Guilt.

I remember my dad’s victory over lung cancer…how relieved and thankful we were when treatments were complete and he was in remission. But before the five-year mark came the blood work and the testing and the phone call…liver cancer…inoperable…four more years of chemo…hospice…

Cold snap. Recovery. Then another cold snap.

But through it all, our family verse brought us each the warmth and the hope that we needed: “God is our refuge and strength; a very present help in trouble.” (Psalm 46:1)

Sometimes our hard times…our cold snaps…make us feel like David when he said, “My tears have been my food day and night, while they say to me all day long – “Where is your God?” (Psalm 42:3)

Where is God in our pain? Oh, He hasn’t gone anywhere! He’s a very PRESENT help in our trouble, remember? He’s right here with us.

Right after David said his tears were his food, he said, “Why are you in despair, oh my soul? And why have you become disturbed within me? Hope in God, for I shall again praise Him for the help of His PRESENCE.” (Psalm 42:5)

My little bush had hope because its roots were secure, and so do we who know and follow Christ. We have hope in our despair because we know that God is sovereign…He is in control…He has a plan…He is present…and He has a purpose for the cold snaps that rock our world.

“I called on Your name, O Lord, out of the lowest pit. You have heard my voice. Do not hide Your ear from my prayer for relief, from my cry for help. You drew near when I called on You. You said – “Do not fear!” (Lamentations 3:55-57)

God is near in our pain…near in our pondering…near in our praise that arises even out of hurt and unanswered questions.

I love these lyrics of Jeremy Camp’s song, He Knows:

All the bitter weary ways

Endless striving day by day

You barely have the strength to pray

In the valley low.

And how hard your fight has been

How deep the pain within

Wounds that no one else has seen

Hurts too much to show.

All the doubt you’re standing in between

And all the weight that brings you to your knees.

He knows

Every hurt and every sting

He has walked the suffering.

He knows

Let your burdens come undone

Lift your eyes up to the one

Who knows

He knows.

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Hanging Off – Or On?

Aaron has a way of repeating what we say but changing just one word or even just one letter, and so making us laugh or pause in thought. He has a uniquely Aaron way of expressing himself.

That is, after all, the reason I started this blog and the reason I named it He Said What?!

For instance, yesterday we had some rough weather move through our neck of these Kansas woods. Aaron was concerned, asking about the storms and wondering if he should turn off his computer.

I’ve often shown him the radar and pointed out some storms headed in our direction. I sometimes refer to them as a clump of storms coming our way.

So, as he followed me around the house and fretted over his computer being hit by lightning, he said, “Mom! Is that lump of storms going to hit us?!”

Two words, so similar, yet somehow the difference was enough to make me laugh.

Aaron has become a fan of the television show Chicago Fire. In December the fall finale had the typical…and very unrealistic…cliffhanger. Aaron has talked and talked and talked and talked about those canisters in that basement, surrounded by fire, and whether they would blow up or not!!!

I told him that this was a cliffhanger. Aaron, who is very literal, saw no cliff in that fall finale. He also saw no one hanging from a cliff in that basement.

I therefore…and not for the first time…explained that a cliffhanger is when the show’s producers leave you hanging on after the last show of the season in order to make you come back and watch the first show of the new season.

Hanging ON.

But here is Aaron’s take:

“MOM!! I can’t wait till January 8^th!!

Then he waits for me to ask why he can’t wait till January 8^th.

“Because that’s when Chicago Fire comes back on!!”

Then he waits for me to show excitement. I am a good actress.

“Remember how they left us hanging OFF??!!”

Then I laugh. He thinks my laughter is an expression of my excitement over Chicago Fire resuming.

But my laughter is really about the way he changed my original phrase.

Are we hanging ON…or hanging OFF?

His change-up of that one little word has had me pondering over the past few days.

Hanging OFF a cliff is a scary situation, to put it mildly.

Hanging ON, to me, conveys hope.

In life, when I am hanging off a cliff of fear or dread or disappointment…or any number of other scenarios…I must remind myself to hang ON.

I hang ON to God and to the hope that He gives me.

How often our life with Aaron changes! We can so quickly go from enjoying life:

To the suddenness of seizures:

The above picture was right after Aaron’s third seizure on Christmas Eve, just as we were getting ready to play Christmas Bingo as we Skyped with Kyle and Andrea from Houston.

It’s a stretch for Aaron to want to play games. My first heart reaction was to wonder why. Why must he have a seizure when he was actually willing to sit with us and play a game?

Sometimes his seizures keep him from participating in something that he really wanted to do. That makes me sad for him. Disappointed.

He did arouse enough to play Bingo, but I played his card because he was uncoordinated and shaky…and grouchy, which is typical when he plays Bingo.

Every day…every situation…can be a cliffhanger with Aaron. Will we have seizures to manage? Behaviors to handle?

I do feel like I’m sometimes hanging off a cliff, holding on for dear life, afraid of what’s next and afraid of falling…of failing.

But then I must remind myself that I’m not alone. I know and trust God.

And I hold ON to Him.

I don’t understand everything.

I don’t even like everything.

But I love God, and I know He loves me.

So whatever cliff it is, I do know that I’m not just hanging off.

I reach up and I hang ON to God.

He lifts me up and He rescues me…not from the situation, necessarily…but from the danger of despair and hopelessness that can so easily overwhelm me.

After all, look at what God says about Himself in Psalm 91:15:

“He will call upon Me, and I will answer him;

I will be with him in trouble;

I will rescue him and honor him.”

May I remember, every day and in every cliffhanger, that I don’t need to just hang off.

I can hang ON…to the God Who rescues me.

The Skies From My Window

Many of you know that I love taking pictures of our pretty Kansas sky. My favorite place to take those pictures is from the window in one of our upstairs bedrooms. This bedroom will always be, to us, Andrea’s room – even though she moved from home several years ago. When I see a particularly pretty sky I will run upstairs, open the window and lift the screen, and fire away with my phone camera.

As I look back on these pictures, I find that no two are the same. Absolutely every shot of our sky, on every day that I took those shots, is entirely different……if there are clouds involved, that is. I don’t usually take pictures of a totally blue sky, though blue skies are nice. But after a while, completely blue skies would be a little boring.

Sometimes the pictures are simply beautiful, like the one I snapped last night. Isn’t this just breathtaking?

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Some inspire awe, like this one.

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Sometimes I see life.

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Other times the seasons show themselves.

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This one view, from the same windows…..the same vantage point……is anything from being the same, day by day.

It’s a lot like my circumstances in life……like yours, too, I’m sure. Our circumstances change, sometimes often and other times less frequently. At times the changes are dramatic. Other times the changes come subtly, but they come regardless.

Our circumstances may be pleasant, and some of the changes we go through can be happy and pleasant as well.

But other circumstances are painful or shocking, involving deep hurt……fear……dread.

Last week I found out about two friends who were just diagnosed with cancer. And I took another friend for some testing after an X-Ray showed something suspicious. We are still awaiting her results. Some have already received disturbing news…..others are still waiting, with dread, on what may be.

My circumstances……my surroundings……can on one day fill me with peace and on the next day fill me with worry. It’s like my view of our sky from the upstairs windows. Sometimes peaceful…..

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Sometimes stormy……

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I’ve been reading through the book of Exodus. Moses certainly experienced a variety of circumstances in his life……plenty of high’s and low’s. From a basket in the bulrushes to the palace. From the palace to the desert. From shepherding sheep to leading a nation. From the parting of the Red Sea to the grumbling of that unhappy nation. From speaking to God on the mountain to confronting idol worship at the foot of the mountain. From obedience to anger.

After the Israelites had given up on Moses and turned to worshipping the golden calf, Moses and God both were pretty angry. Moses went back to God after things settled down a bit and he prayed. He said, “God, let me know your ways that I may know you….”

God’s answer? “And He said, My presence shall go with you, and I will give you rest.”

God’s presence is all that His people needed……and it’s all that you and I need. He’s promised to be with us, and He’s promised to give His children rest.

Two things I’ve learned in the years that I have lived. First, don’t look to my surroundings for rest…..even in the good times. When life is going well, with sunny skies and soothing views ahead, those things should not be the source of my rest and peace. I’m thankful when life is pleasant, but pleasantness is not the source of rest. Only God is to be my strength and my peace. Knowing Him and depending on Him, following Him and trusting Him, is still the number one thing I need to do when the skies are sunny and beautiful.

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Second, I’ve learned to also not let my surroundings…..my circumstances……pull me down and rob me of rest. This happens so easily when skies are stormy and life is stressful. Bad news…..stressful relationships……more bills than we have money……wayward children…… We all know what it’s like. Life is full of the hard times, unfortunately, and they often happen suddenly. At other times we live under the stresses day after day as they gradually take their toll. But still, the rough times are to be a time of rest……..and they can be if we know the same God that Moses knew.

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For God’s promise to Moses is our promise as well: “My presence shall go with you and I will give you rest.” (Exodus 33:14)

Remember I said that pictures of blue skies would get boring? I love blue skies, but honestly the best pictures occur when clouds are present.

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So it is with us. I believe the best lessons are learned when we have some clouds in our lives. Deeper trust and greater joy have been my experience during the stormier times of life.

Those clouds also bring a more intimate walk with God, full of so much beauty. Hopefully I can reflect Him more as I walk closer beside Him.

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And I can rest. I don’t know today how God will give me rest, but He has said He will and I believe Him.

Rest, and enjoy the view, because with God life is stunning.

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What Am I Cultivating?

I sat on our patio one recent morning, enjoying coffee while watching birds and dragonflies flitting all around. The mowed yard, the green trees, the blue sky…it was all so pretty and pleasant. But then my eyes wandered over to our garden plot. UGH!! So much for looking at beauty!

Why? Because for the second year in a row, Gary and I did not plant a vegetable garden. Rain…two out-of-town trips…schedules – it all added up to once again, no garden.

Now our small garden area is a huge mess, full of overgrown weeds and sad neglected old tomato cages. What a difference to have gone from this:

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To this:

Same ground, but different cultivating.

I read this verse around the time I was thinking about the comparison in our little piece of land from one year to the next.

“Trust in the Lord and do good; dwell in the land and cultivate faithfulness.” (Psalm 37:3)

God’s desire for Israel was for them to dwell in the land He had promised to them. He told them over and over that dwelling in the land successfully and fully would require their total obedience to Him. In Deuteronomy 30:15-20, God told Israel very clearly what their choice was:

“See, I have set before you today life and prosperity, and death and adversity; in that I command you today to love the Lord your God, to walk in His ways and to keep His commandments and His statutes and His judgments, that you may live and multiply, and that the Lord your God may bless you in the land where you are entering to possess it.” (v. 15-16)

God told them that disobedience would bring death and a curse. He urged them to choose life by loving the Lord, obeying His voice, and holding fast to Him. And not just life but life AND prosperity.

In other words, to cultivate faithfulness.

This same principle is very true for me today. I have a choice to make. God won’t force me to make the right one, but He has told me what the right choice is and how to make that choice.

It’s simple, really. Choose to love God, choose to obey Him, and hold fast to Him. Hold fast by hanging onto Him when life is crazy and tiring and disappointing.

I get really tired sometimes. I know we all do. Just as I began this blog, Aaron called me from his day group. I knew he had been having a hard day, and his voice and manner on the phone confirmed it. I ended up just picking him up early today to avoid any further meltdowns at his day group. This change in my day was not in my plan. His attitude today makes me angry and tired.

And guess what I saw before all this happened? Beautiful beach vacation pictures. When I hung up from talking to Aaron, I was wanting to just hang up this life with him too, quite honestly. For a fleeting minute, I wanted to give in to my beach thoughts…have a pity party…and allow myself the “luxury” of wallowing in the wishes for a life I don’t have.

I just HAD to be writing a blog today on faithfulness, right?!

You see, God has put me right here where I am. This life with Aaron is not what I had planned, but I must see and trust that this life with Aaron is what God planned…for me.

And in this life that He planned for me, I really do want to live it in victory and joy. I want to cultivate this:

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And not this:

It truly is up to me which picture will be the picture of my life. I choose what to cultivate by choosing whether to love God…obey Him…and hold fast to Him.

I love Him by praising Him even when I don’t like what’s going on around me.

I obey Him by reading His word and finding out what exactly it is He wants me to do each day…and then DO it!

And I hold fast to Him by not allowing my thoughts to digress into selfish wishful thinking and all those “what if’s?” and asking Him to give me grace to love and handle Aaron correctly.

I should know that when God burdens me with a blog, then He’s going to hammer it home to me in a very personal way! 😊

So, wherever you are today…on a public stage or stuck at home…reeling from an unexpected diagnosis…planning a funeral…facing life alone as a single…hurting from unfaithfulness…starting all over in a new life or new church or new friends…losing your job or needing a new one…raising your grandchildren…raising special needs children…

Whatever is your situation, just remember:

CULTIVATE FAITHFULNESS!

And just watch what God will grow in your life!

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Lens #1

Last week, I once again took Aaron to his yearly eye exam. Doctor visits are always an adventure with Aaron. Waiting for the doctor to come into the exam room is also a test of my patience. Aaron stretches and wants to lay down.

Or he eyes the tempting equipment and tools that the doctor uses, trying to pick them up and test them out before I tell him to stop.

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As I sat with Aaron last week and watched him during the exam, I was reminded of the following post from a couple years ago. This was such a funny moment for me! Here is what I wrote:

I took Aaron to his yearly eye exam today. God bless Aaron’s eye doctor. Next week I’ll be saying, “God bless Aaron’s dental hygienist,” but today all blessings go his eye doctor and to the staff. Oh, Aaron isn’t mean. He just has a very difficult time understanding what the doctor needs from him…..how to express what he is seeing or not seeing clearly…..opening his eyes wide…..not leaning back from every instrument that comes toward his eyes…..things like that. There was one very funny interchange, though, during the exam. You know how the doctor wants you to tell which lens helps you to see the letters on the wall the clearest.

Dr. Nelson: Aaron, is number one better? Or number two?

Aaron: Number one.

Dr. Nelson: OK. Now which is better? Number three, or number four?

Aaron: Number one.

Dr. Nelson: Let’s try again. Number three, or number four?

Aaron: The first one.

Dr. Nelson: You mean number three….here…..or number four…..here.

Aaron: Number one.

Dr. Nelson: Let’s try these. Number five, or number six.

Aaron: The first one.

Dr. Nelson: Let’s try number seven…..

Aaron: Number one.

Dr. Nelson: OK, let’s not do numbers anymore. Is this one better, or this one better?

Aaron: Number one.

HaHaHaHa!!!!!! How I wanted to belly laugh!! I do believe that number one was the winner, don’t you??!! 😎😵🤣

However accurate Lens #1 was, Aaron was sure that this was the lens he liked the best. He didn’t waver one bit from that determination.

I’ve been thinking about this as I look at my own life, and the lives of many that I know and love.

Through what lens am I looking at my life?

I just ran upstairs to be with Aaron as he had another seizure today. I’m thankful he was lying down, so there was no falling and no injuries. But his seizures, especially after all these years, are serious and scary. As we get older, and as Aaron gets older, Gary and I do wonder about our future and his future.

In the past days, I have communicated with family and friends who are enduring all kinds of trials. Two with aggressive and serious forms of cancer, out of the blue. Tragic family issues. Separation. Divorce. Friends who just bought a house and now he lost his job, literally overnight with no warning. Lots of chronic health issues with no end in sight.

So much suffering! And the way that I view suffering depends upon which lens I choose to look through.

I know the lens I NEED to be using. I need to focus on the God that I know and on His word that He has given me. I may be rattled and shaken, but my focus will be sharp if I’m looking to God. My faith is in and on Him when I look to Him…not disrupted by all the suffering around me that I or others are enduring.

It’s like Aaron’s eye exam. I need to realize that lens #2 or lens #3 are not right for me.

Fear is not a lens God wants me to use when viewing my circumstances, or the circumstances of those I love. Neither is anger…or worry…or a host of other responses that are all too common for me.

I know that when I have my eyes off God, life becomes blurry. I lose focus. I lose peace. I lose hope.

I need to go back to lens #1, for sure!!!

The best way for me to keep my focus is to go to my Bible…to read God’s promises and let His words soak into my mind and my heart.

My parent’s favorite Bible passage is perfect for me to use in keeping my focus:

God is our refuge and strength, a very present help in trouble. Therefore

we will not fear, though the earth should change and though the mountains

slip into the heart of the sea; though its waters roar and foam, though the

mountains quake at its swelling pride. (Psalm 46:1-3)

God told us we would have suffering and trouble on this earth. But He also has promised to be our very present help, our strength and our refuge, no matter what carnage is around us. He is a loving Father who takes care of His children.

This is the focus I need. God is the focus I need.

God is my lens #1.

I love the old hymn, The Solid Rock. Look at verses 2 and 3:

When darkness veils His lovely face,

I rest on His unchanging grace;

In every high and stormy gale,

My anchor holds within the veil.

His oath, His covenant, His blood,

Support me in the whelming flood;

When all around my soul gives way,

He then is all my hope and stay.

On Christ the solid rock I stand;

All other ground is sinking sand,

All other ground is sinking sand.

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The Hard Parts

Tuesday was my birthday, and an early gift for me that morning was that Aaron got out of bed much earlier than the day before. Why is that a gift? It’s a gift because having to wake Aaron up to get his day going often brings anger from him, but if he gets out of bed on his own it usually comes with a far improved mood…from BOTH of us!

Aaron’s bedtime logbook that he faithfully fills out every day shows that he got out of bed at 7:16. Not 7:15. 7:16. I just wanted to be sure that I was clear on that point, since Aaron is forever and always very clear and precise about his times.

My memory logbook in this brain of mine has recorded that on Monday, Aaron did not get out of bed at 7:16. He was sleeping soundly on that morning, so I had to wake him up, which can be very tricky. Being awakened by Mom is not on Aaron’s list of Happy Ways to Start My Morning. It’s not on my happy list, either. That’s because there is almost no way for me to get Aaron to wake up that suits him. Monday was a rather angry morning for Aaron, but he did go to his day group and I was thankful for the reprieve.

So, Tuesday was wonderful! Aaron was happy, not at all because it was my birthday but because I did not have to talk to him in my weird voice…or shake his leg…or look at him with squinty eyes…or any of the other very irritating manners that he thinks I demonstrate when I’m working to get him out of bed.

I offered to fix Aaron some French toast since we had time and since he loves French toast. He readily agreed, so while he showered…in whatever form that process took that morning because we’re never quite sure…I began the French toast. Later, as Aaron sat down to eat, I saw him immediately place something from his plate onto the table beside him. Can you see the little dark spot there on the table near his plate?

I knew what it was. The small glob was a piece of the toast that had cooked harder than he likes. Aaron always places hard parts of food off his plate because he will not eat them, and he doesn’t want them near his food that he IS eating.

Later, when we were both done with our breakfast, I saw that on his plate was one more bite of French toast. I told him he had one more bite to go as he got up from the table, but he told me that he didn’t want it.

“It has those hard parts, Mom,” he explained. I didn’t push the issue or make a big deal about it. After all, why ruin our good morning over one bite left on his plate?

But as I looked at his plate, I thought of how much like life those hard parts are. Hard parts are most definitely a real part of all our lives. I wish I could just have all the plump, juicy pieces that are easy to swallow. But no, it doesn’t work that way. Life, all too often, seems to have way too many of those hard parts.

I remembered those set-aside pieces the next day as I took Aaron to his Epilepsy doctor appointment. It was time for more blood work for Aaron, so after his doctor visit, we walked over to the building next door and went up to the lab. We’ve been very blessed that Aaron, from the beginning of his seizures at a young age, has always liked watching the needle go in his arm. Even when it hurts, Aaron wants to watch each time.

I looked at him sitting there, taking it all in, and I suddenly wanted to cry. I wanted to cry because he looked so vulnerable. We get used to all these doctor visits and needles and medicines and tests, but today it was like I was seeing it all fresh and new. He was my little boy again, with his life ahead of him…all of us unaware of all the hard parts that were ahead.

Soon we were waiting on the elevator, Aaron more than ready for lunch at Applebee’s. The door of the elevator opened. I hesitated to get on because there was a woman in a wheelchair inside, plus the nurse who was pushing her, plus another woman, plus a man. That’s a lot of pluses! The woman in the wheelchair saw our hesitation.

“Come on in!” she cheerily said. “I won’t bite!”

I laughed, told Aaron to follow me, and we stepped inside. I stood in front of the woman in the chair, facing her. I saw then that she was on oxygen. She was wearing a hat to cover her bald head, and her skin had the unmistakable chalky look of advanced cancer. I thanked her for letting us crowd in, and then I asked her how she was doing.

“Oh,” she said now with weariness, “I’ve been better.”

“I’m so sorry,” I told her. I wanted again to cry, and I hoped she knew that I cared.

As the elevator stopped and we all went out into the hall, I saw that the man from the elevator was walking with a badly deformed leg, or maybe a prosthesis under his pants. His walk looked so painful. And there outside the front door was a van from a hospice group, waiting to take the sweet cancer patient to her destination.

Hard parts. All around me were hard parts.

Still fresh in my heart was the message from a friend about her impending divorce, received that very morning. Other concerns for family and friends weighed on my mind…death, loneliness, health issues, fears, financial problems, job concerns.

Do I sound depressing and dreary? I don’t want to leave it there, because for those who know God and follow Him, these hard parts are also precious parts of growing closer to our Savior. Jesus suffered, and so shall we suffer. But we have hope because we know that God is in control of every part of our lives…the easy and the hard.

This hope isn’t like saying, “Oh, I hope that works out.”

NO! This hope is a certain expectation that all WILL work out according to God’s will, for our good and for His glory. The outcome may not work out exactly as I want, but my wants are not nearly as important as God’s will.

Is Aaron cured of his Epilepsy? No.

Is Aaron cured of his autism? No.

So, how do I handle those “no” answers? I handle them by fully embracing that a “no” answer is still God’s answer to me. I trust Him to know best.

And I don’t try to push those hard parts out of my life and out of my heart. I accept their reality with God’s grace.

Of all the Aaron issues that we deal with, his behaviors are by far the hardest to handle with love and wisdom. Gary and I get tired…frustrated…overwhelmed…angry. But Aaron is the whole package, the easy and the hard. The sad and the hilarious.

We wrap our arms around Aaron and love the whole person, seizures and autism mixed in with all the rest.

Like Jeremiah said:

“Blessed is the man who trusts in the Lord, and whose trust IS the Lord!”

“You are my refuge in the day of disaster.”

And so must each of us see every part of our lives as just the right mixture that God intended, and not try to remove the parts that are hard as being too hard to handle. Go in God’s strength and trust Him.

Work, Work,Work!

I believe every family has sayings that have been passed down over the years – sayings made by family members and then repeated again and again. Often these comments are funny, laughed at every time they are uttered as memories of the person and the situation surface once more.

One of our family favorites is a comment made by Aaron years ago when he was very frustrated by having to pitch in and do some work around the house.

“Work, work, work!!” he exclaimed. “All I do is WORK!!”

No one understands the humor of his statement like we do. That’s because we all knew…and know…Aaron. He worked the least but complained the most. Now when one of us repeats that phrase with great emphasis, we all just laugh and shake our heads…just like we did when Aaron first said it.

I do believe we now have a new phrase, thanks once again to Aaron. Another one of many he has left us over the years, trust me.

Two weeks ago, Gary and I were packing up our vehicle for our annual trip to Houston. We travel there every April to see Andrea and Kyle, and with the added bonus of spending time with Andrew, who is there for an NHRA race.

This year we were taking lots of Andrea’s “stuff.” That’s because she and Kyle are married now, and have a house, so her “stuff” is hers once again.

We had many loads to carry out and put in our vehicle. Aaron was in the middle of all of it, talking and hovering, hoping that none of this activity was going to eat into our normal evening routine of watching a DVD or show. He seems to think that his presence will continually remind me that he is my priority.

So, we put him to work. He was willing to do so, thankfully, and really was a huge help. He helped lift the heavy electric piano into the van, as well as carrying box after box outside for us. Eventually, though, as we were nearing the end, Aaron’s impatience started to surface. He knew that I still had other things to do before we could watch a show. Bedtime was looming. His routine was already a mess, and his nerves were showing. He was excited at our leaving, with thoughts of all the restaurant meals awaiting him and his caregiver during the week, but also anxious at our being gone and his normal life being a little unhinged.

Aaron never offers to sit and talk about his feelings. Goodness, no! He doesn’t even understand what’s going on in his head and heart. But he does SHOW his feelings by usually hurting ours. Or by being confrontational, rude, stubborn…you get the picture.

His happiness at helping had turned instead to blame. He blamed his anger on us for making him work. He and I worked through all that for the most part, watching our show as he calmed somewhat, but then as I tucked him into bed later, he erupted again.

“Mom!!” he said. “You made me do servant work!! I don’t like SERVANT work!!”

It was so hard not to laugh! But believe me, all of us…minus Aaron…laughed a lot about what he said as we spent a few fun days together.

Servant work! Indeed!

In the week since we’ve been home, I’ve seen the other side of Aaron…the side that enjoys helping us. He wanted to help me cook supper one night, and then to send a picture to Andrea – who told me that it looked I was making Aaron do servant work again. 😊

He also wanted to share his Sonic mint with Gary that evening, so he put it on Gary’s supper plate.

This past Saturday, he asked if he could help me with some pruning.

He often takes our recycling to the container; brings down his laundry; sets the table; and other chores around the house.

Aaron is usually happy to help when things are going the way he wants. But when his version of normal is anything but, then helping becomes “servant work.” Not fun…not to be expected…not to be done!

I look at myself and I see this attitude of Aaron’s in me more than I like to admit, especially when it comes to caring for him. I’ll be honest. Taking care of a special needs child, even your OWN special needs child, is not all halo moments where we feel or act like angels.

Oh, my compassion is through the roof many times. Like when I sat in the ER with Aaron for five hours four days before our Houston trip, waiting for him to be admitted to the hospital for seizures the day before and very low sodium. Thankfully, we were sent home when his sodium level increased.

Home, where Aaron had a very long and a very scary seizure that evening.

His seizures, injuries, staples, stitches, missed fun days, so many meds, the look on his face as he held his Subway sandwich on our drive home…so many times my heart just breaks for him.

But then he has those behaviors, rigid routines, expectations of me, nonstop talking at times, anger…

Seizures that keep me home, having to change all my plans…and his. Extra laundry, sadness, worries for now and for the future…

A life unlike most of our peers for me and for Gary. Not able to up and go, to travel at will, to plan for a fun life of retirement trips.

Special needs parents weren’t given our children because WE’RE so special and God knew we could do this. God wants us to see that HE is the special One that we need, and that in no way could we live this life without Him and His grace and His strength. Goodness knows I have none of my own.

Many times, and many days, this life that God has given me can only seem like “servant work.”

But really, there are two kinds of servant work, and it’s my attitude that determines which I will experience each day…each moment.

When I think of how God wants me to serve in every situation, and when I do this servant work with that in mind, my attitude is one of inner joy and peace – even if outwardly things are crazy, and I am frustrated. My goal then isn’t about ME. It’s about Aaron, and to serve him in a way that pleases God.

But when I get in my own way and take my eyes off God…and like Aaron, things aren’t going the way I want…then I sometimes get angry and frustrated. When I do this, all too often, then I’m doing “servant work” in the way Aaron meant. Unpleasant, yucky, unhappy work that makes me bitter.

So, to all of us…and ESPECIALLY to my special needs parent friends…know that God understands. Just talk to Him when you’re exhausted, when you blew it, when you yelled at the child you love so much, when you’re envious of other’s lives, when you’re out of money and patience and even hope – just talk to God, lean on Him, and then know that each day is a new day.

A new day to do servant work, the way God intended. After all, we have the best example in Christ.

“Have this mind in you, which was in Christ Jesus, who, though he was in the form of God, did not count equality with God a thing to be grasped, but made Himself nothing, taking the form of a SERVANT, being born in the likeness of men.” (Philippians 2:5-7)

Servant work is God’s work, really. And He’ll give us what we need to do it the right way, every day.

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