My Times, Your Hand

One evening last week, I looked outside and saw a beautiful red glow on the horizon.  However, my view was hindered by trees.  Knowing there was more to this scene than I could see from my vantage point, I quietly snuck out of the house…so I could drive alone without Aaron…and headed west to see what I would find. 

It was hard to keep my eyes on the road as I drove past trees and power poles.  The sky was so beautiful that I wanted to only gaze on it.  Finally, a few miles away, I found the spot I sought.  Flat…open…unimpeded by trees or poles – there it was.  The perfect view.

Oh my!!  What a stunning sunset it was!

I’ve looked at this picture a lot and done some thinking about the path of life upon which God has placed me.  How much do I trust God’s decisions about me and my life?

I don’t know about you, but I tend to feel more trust in God during the harder and often unexpected situations of life…those times when I’m suddenly the recipient of bad news and I’m thrown into God’s arms. 

But it’s the daily disappointments…that drip, drip, drip of stress…that can really bog me down.  The dailiness of life’s burdens can hinder my view of God’s path and His purposes for me much as the trees hampered by full view of this gorgeous sunset.

Saturday morning, for instance, Aaron stood by Gary’s desk chair. 

“Dad?” he said, “my mouth is broken.”

I smiled from the other room at Aaron’s phrasing – and I know that Gary was secretly doing the same.

Aaron thought he had burned his mouth, but in looking at it we both knew that these were not burns.  He had a rash.  The next day, Mother’s Day, I took Aaron to Med Express to have it checked.  It was quite painful, and he was having trouble eating.

Gary offered to take Aaron, bless him, but I wanted to do it since I always take Aaron to his doctor visits.  So, here I was, on Mother’s Day…at the doctor with Aaron.  It was a bit of a downer, honestly…not the way that I envisioned my Mother’s Day. 

See what I mean?  A small example of a small thing that can play upon my heart to bring discouragement, self-pity, and then lead to multiple other thoughts of how this and this and this did not turn out the way I wanted…

And my path’s view of God’s goodness is lost in the jumble of negative thoughts and emotions.

God gave me what I needed this morning, as He always does!

In Luke 13:31, the Pharisees reminded Jesus that Herod wanted to kill Him.  Jesus responded to them that He would continue the journey that God had for Him, and that when the time was right then He would perish. 

In other words, Jesus was declaring the truth of Psalm 31:15.  My times are in Your hand!  Jesus was standing in the unfailing sovereignty of God.

When David in Psalm 31 speaks of times, “…he doesn’t mean merely his life-span but all the kaleidoscope of circumstances that meet him left and right.”  (Dale Davis)

Oh, those multi-colored burdens that pile on day after day!  The unresolved issues and concerns that grow larger on a special day like Mother’s Day can cloud my view of God’s path for me. 

Last night, very uncharacteristically, Aaron suddenly said, “Mom, I’m glad you cared for me and took me to the doctor.”

I was pretty much stopped in my tracks by that!  And so overwhelmed with thankfulness that our “downer” doctor visit prompted in Aaron such a response.

Oh God, may I too look at You and be thankful for your care of me in the rough spots of life.  May I look fully at the path you have me upon and see the beauty amid the stresses.  May I not miss the opportunity to give You thanks for being for me all that I need, and not just giving me all that I want.

For it is in my need that I most fully see Your beauty on the road of life.

What Does It Profit?

I have a story to share.  It’s a true story that has impacted my husband and I greatly over the past few years.  I trust it will do the same for you.

Years ago, we met a woman who should have been a part of my husband’s life for all of his life but was not – through no fault of either of them.  That all changed a couple years ago.  I will call her Mary. 

Mary had lived a difficult life before we ever knew her.  Many of her problems were due to her own bad decisions, we came to learn.  But in recent years, Mary came to know Christ personally.  As her faith grew, her life changed.  The consequences of her past decisions could not be erased but her life took on new meaning, new purpose, and was full of new peace.

Our lives became more personally entwined with Mary’s due to the death of a dad and later the death of his wife.  What was to have been Mary’s from the estate was wrongfully taken away.  Mary, now suffering from metastatic breast cancer and still trying to work to make ends meet, was devastated.

Gary and I, though, did what we could to encourage Mary from a distance.  However, we watched with grateful amazement as she turned to the One Who really loved her the most and from Whom she gained the greatest strength. 

Her conversations with us centered on that relationship with God that was growing in her life through her extreme difficulties, her hurt, and her declining health.  Mary turned her back on being bitter and instead turned her heart to God’s forgiveness of her, and thus her forgiveness of those who had done so much wrong in her life.  She had counted on some earthly financial help to come her way but when it did not, she learned the value of counting on God instead…and from that experience, she grew so much.

On what was to be her last holiday season on earth, Mary sent us this message.  I will simply let you read her exact words:

“I’m at the cancer clinic right now getting my blood drawn and waiting to see my oncologist for my usual follow up. On the way here this morning I passed the mall and stores with their crowded parking lots full of Black Friday shoppers. It really caused me to think about what’s most important in this life. It’s God, our Salvation, family and friends. Even if I never ever had another present under the Christmas tree, it wouldn’t matter. Because I’ve already been so richly blessed, and you all are a part of that blessing!  I have so much to be grateful for.”

We commented to her about how thankful we were to have been given the opportunity to know her better over the previous months.  Our relationship probably would not have happened had it not been for the wrong that was done.  But we were sorry for her advancing cancer and for her hardships.  Again, Mary’s words:

“That’s one of the many good things that’s come out of a bad situation. My cancer journey has brought me into a much closer and deeper walk with God, which I am grateful for.

It’s strengthened my faith, and brought about peace, joy, and a sense of assurance, much stronger than I had before. It’s had a positive impact on all areas of my life. It’s truly amazing how our God moves and works His will in our lives.”

What a beautiful example she was of how God makes beauty from ashes!  Her testimony continued to shine with us until her death seven months later. 

Another person recently died, too…a person who was largely responsible for the wrong done in Mary’s life.  He had everything of earthly value that anyone could want, some not rightfully his, but when I think of him, I think of what Jesus said:

“What does it profit a man if he gains the whole world but loses his own soul?”

A real-life lesson from two people who made choices, one choosing the narrow path and one the wide. 

Two lives…two choices…two eternities.

Which one are you, my friend?

A Setback…But God

Seizures have been a part of Aaron’s life…and ours…since he was in the first grade.  He had his first seizure at home on a Sunday afternoon, out of the blue and utterly terrifying.  God was so good to let me be standing right behind Aaron when it happened there in our military apartment in Germany.  I was able to catch him.  If not, he would have fallen onto the hard kitchen floor and received a serious hit to the back of his head.

His seizures have morphed over the years, as seizures do, seeming to eventually bypass all the medicines and treatments that can be provided.  The majority of his seizures occur in clusters during his sleep, most often at night.  These clusters carry their own dangers, one of which is SUDEP – Sudden Death by Epilepsy.  Those words from his epilepsy doctors over the years always send a chill down my spine.

Aaron has occasionally had drop seizures here and there.  A drop seizure happens when Aaron is fully awake.  They hit suddenly, with no warning to us.  Aaron will fall either forward or backward like a downed tree, not able to break his fall. 

A few years ago, he began having more and more of these drop seizures.  He sustained significant injuries.  Cuts, scrapes, bruising, stitches, a fractured tooth that had to be pulled, and very hard hits to his head. 

Finally, on March 9, 2019, Aaron had a drop seizure on our stairs.  He had walked up a couple steps, then fell backward, and hit his head on a metal file cabinet handle.  He ended up with 8 staples in his head.  It was awful!

When we got home from the emergency room and checked our mail, there was a letter from our insurance company approving Aaron for the new pharmaceutical CBD oil, Epidiolex.  We had experimented with over-the-counter oils from good sources but had no success.  His Epileptologist couldn’t provide any guidance for those OTC oils, legally.  As soon as the FDA approved Epidiolex, Dr. Lee put in our request for approval.  Now here it was, on the same day that Aaron had fallen…a visual and sad example of why we really wanted to try this new drug. 

Dr. Lee was able to oversee Epidiolex since it was FDA approved and obtained through a prescription.  Over the next few months, we adjusted Aaron’s dose and tweaked another medicine and waited to, hopefully, see positive results. 

And we did!  Aaron’s drop seizures totally stopped!  We were elated, and soon began to relax.  Our fear over those horrible and dangerous seizures slowly went away.

Until this past Thursday. 

Aaron and I delivered for Meals on Wheels in the morning.  We enjoyed lunch at a cute Mexican restaurant.  Then home, where Aaron took a nap…and had a seizure while he slept.  This is nothing uncommon.

Later, as I was getting supper on the table, Gary had just come into the kitchen.  He was standing right beside Aaron when suddenly Aaron lurched and went into a seizure.  But instead of Aaron falling into the table and a chair, and landing on the floor, Gary was able to catch him.  This was truly from God, that Gary was there beside Aaron instead of across the room.  We were so thankful!

We got Aaron safely on the floor.  Such disappointment filled us both! 

Almost two years since a drop seizure, and now this. 

We hurt so for Aaron.

And I felt that familiar fear.  It had come back. 

But I also felt something else.  I felt God’s peace pushing back on the fear.  I forced myself to focus on God…His love and His plan for Aaron, and for us.  That knowledge was the best push-back on the fear that threatened to fill me.

I also thought about Mary’s response to the angel when she learned of the very hard path that God had chosen for her…the path of unwed pregnancy in a time when she was no doubt shunned and gossiped about and disbelieved.

Mary said, “Behold, the bondslave of the Lord; may it be done to me according to your word.”  (Luke 1:38)

Total submission.

Like the writer of Hebrews said, “Now the God of peace…equip you in every good thing to do His will, working in us THAT WHICH IS PLEASING IN HIS SIGHT, through Jesus Christ, to Whom be the glory forever and ever, Amen.”  (Hebrews 13:20-21)

God has been working on me this past year about being willing to pray in submission…being willing to say, “God, whatever it takes…”

Just two days before this latest drop seizure, I had been reading about Mary and then this benediction in Hebrews. 

I don’t know what it is…what it will take…for me to please God. 

But I do know that I need to be willing to let God do in me…and in Aaron…that which is pleasing in HIS sight, even when it may not be pleasing in mine.

Even when it hurts, deeply.

“Submission is preferable to consolation, for consolation pleases us but submission pleases God.”  (Thomas Hog, 1692)

Who is it that I most want to please? 

It’s tough when my submission involves my child.  I love Aaron.  I love all our children. 

But a huge area of my close walk with God, which I truly desire, is to be able to submit “whatever it takes” concerning my children as well.

I humanly want the consolations of God…the closeness and assurance that I feel when He blesses me, and them, with wonderful things.

But true submission to God comes only when I am willing to relinquish all the warm fuzzies for the stark hardship that often comes when the deepest lessons…and blessings…are allowed to occur.

Allowed to occur because I am submitted to God. 

God won’t bully me into submission.  Submission happens when I open my hands and release my desires to Him, trusting Him to do what He knows is best.

Even drop seizures, if they do start again, are somehow being allowed by God in Aaron’s life and in ours. 

The sky just before Aaron’s seizure that evening was so beautiful.  I have only to look up and know that God is there for us. 

The heavens declare the glory of God…and I want to do the same, as well.

Barren

It happened to me again two nights ago.  I was sinking into sleep when I think, honestly, that I snorted and woke myself up.  😊

But then I couldn’t get back to sleep.  Instead, I lay there thinking of a picture I had seen just before bed.  Happy news for someone else created in me a longing for some things I don’t have. 

These are the moments that Satan loves.  He uses the tender areas of my heart’s desires to create in me an unsettled feeling.  The dark of the night is his perfect setting to speak words of doubt and unhappiness into my head. 

I’m a captive audience at that point.  The choice is mine. 

Whose voice will I listen to? 

So, I prayed and I thought of scripture.  I eventually went to sleep.  But I awoke the next morning feeling the weight of my burdens still lingering on my shoulders.

This morning I continued in a new study I just began yesterday in the book of Luke.  Right away we meet the priest, Zacharias, and his wife Elizabeth.  They were both righteous in the sight of God and walked in blameless obedience to God. 

They were old.

They were faithful to God.

And Elizabeth was barren.

In their culture, having children was everything. 

They had nothing, in a sense.

I think of Elizabeth beyond the stories we always hear and the ending that we know well.

I think of her hearing with sadness of the pregnancy of yet another friend.  Of probably faking joy when deep inside she is grieving over what she doesn’t have.  Of perhaps not feeling included in the years of family gatherings, celebrations, large happy holidays…

Of laying awake at night, bombarded with these realities, alone and with a broken heart.

And though we know the end of the story, that God gave her a child, she did not know that this blessing would be in her future.

“…there are those who are true servants of the Lord and yet some trial, some disappointment, that may be life-long, hangs over their lives.  ‘Righteous before God’ yet ‘they had no child’.  A very huge fact and a very deep sadness are pressed together.”   (Dale Ralph Davis)

Do you have a barren place?  An unfulfilled desire that eats away at you in the dark stillness of the night?

I do.

We all do.

What ARE we to do?

We are to live faithfully, in daily obedience to God.

We are to “Commit our way to the Lord…”  (Psalm 37:5)  That means to roll our burdens on the Lord’s strong shoulders.  Literally, that’s what it means.

“…God does His most impressive works in a context of impossibility.”  (Davis)

No BUTS…unless we say, “BUT God!!”

Will God give me what I want? 

I have no idea.

The real question should be:  Will I allow God to put HIS wants into my heart?

Will I want to walk with God so closely that His desires become my focus?

“God tends to begin His finest works in the face of human hopelessness and human weakness.”  (Davis)

Walking faithfully with God doesn’t mean we’ll never have our barren places.

But may we, in the barren, bear the fruit that only God can produce in us, to His glory.

Is God Gone?

The heaviness in my soul these past few weeks has been palpable.  As a Christian it’s been very difficult to see Biblical principles pushed aside in our country while rank sin is legislated with the stroke of a powerful pen.  Then if we don’t jump on board with this agenda, we are haters and racists and out of touch.  The changes just in two weeks are almost too much to comprehend. 

As I continue reading through the book of Numbers, I came to chapter 20.  Moses, Aaron, and Eleazar climbed Mount Hor while the children of Israel, full of foreboding, waited down below.  On the mountain, Aaron’s priestly garments were removed and given to his son, Eleazar.  Then Aaron died there on the mountain. 

The people’s priest was gone.  Yet God had provided His man, Eleazar, to continue His work.  God’s pledge to stay with His people and to accomplish His plan was being perpetuated. 

God did not forget His promise.  His sovereign purpose for His people would be carried out, even though Aaron had now died.

This simple phrase written by Raymond Brown jumped off the page to me in the early morning as I read this story in Numbers: 

“ONLY AARON HAD LEFT THEM, NOT GOD.”

What an amazingly simple yet profound comfort this truth has been to me during these sad and hard days.  We feel bereft and abandoned, scared of what the future holds for us as believers in this culture, and angry at the sin that we see being promoted by our leaders. 

There were many true followers of Christ in the past administration.  Open Bibles were commonly seen on their desks.  Prayer, hymn singing, and Bible studies were routine in the White House.  Now that is all gone, and our spirits are stirred within us at the open endorsement of sin that we are witnessing every day…some of which we will be paying for with our tax dollars.  Open sin instead of open Bibles.

BUT…God is NOT gone.  God is still accomplishing His perfect plan.  He is with His people, each of us, as we wake up each day and seek to live godly lives in a most ungodly culture. 

Let’s take each day and each moment with that thought in our minds and hearts.  God is not gone!  He is here with His people just like always, in our homes and our work and with His Church. 

God is not gone!  He is with us in our disappointments and our pain, our sickness and our fear, our good news and our bad news.

God continues His work, no matter our circumstances. 

So let’s be encouraged to be about His work…to be strong and courageous…to be voices of love and conviction…to share the gospel…and to be bright lights in this dark world.

Set It Aside

One morning shortly before Christmas, Gary and I sat down to eat breakfast with Aaron.  We were enjoying our eggs, sausage, and biscuits while listening to Aaron talk…always Aaron is talking! 

Aaron pushed back his chair and got up to get something from the kitchen – probably more napkins or silverware since one napkin and one set of silverware is never adequate in Aaron’s book.  I looked up then to see that Aaron had put his biscuit off his plate.  He had set it aside in order to keep his plate from being crowded and to keep the food from touching. 

We just left it there, choosing not to make that action an issue on this pleasant morning.  Aaron has his particular ways.  And Gary and I have learned to choose our battles carefully because disrupting Aaron’s ways can leave a trail of anger and frustration for all of us…and many times, it’s just not worth it.

Such is our life with autism, this matter of what to set aside and what to put back on the plate.

I had a full plate of Aaron issues last week.  We had unaccounted money gone from Aaron’s wallet, which means he probably gave some away at his day group.  He knows better, but he has a very hard time resisting the urge to share his money with his friends.  Therefore, he has become quite adept at not telling the truth, which was another issue we had to handle with Aaron.

Aaron became so frustrated that on Wednesday, he erupted in anger and tears at his day group.  He called me on the phone several times…he threw his shoe and his glasses…he yelled…and all in all was just extremely unhappy. 

His coat also got torn on both sides.  Aaron said that was done in fun as he and another client chased each other.  Either way, Wednesday was a rough day in more ways than one.

On Friday night, shortly after midnight, Aaron had the first of four seizures…the last one being at 6:40 Saturday morning.  I was fixing his favorite salad that morning, hoping he could enjoy it for supper as I hauled his wet bedding down the stairs and then helped him get settled on the couch for more sleep…and hopefully no more seizures. 

Bless his heart.  He can’t help his behaviors any more than he can help his seizures.  Yet while his seizures touch my heart, sometimes his behaviors do quite the opposite.

I thought about his biscuit as I was processing all that happened last week.  What do I set aside, and what do I keep on my plate?

I need to set aside resentment and anger, which is not always easily done.  Living full time with Aaron can take a toll on me and on Gary.  But God has led us to this life, and we know that He will keep us where we need to be if we just focus our eyes on Him and not on our circumstances. 

I must set aside selfishness.  Mending Aaron’s coat…taking him to have his bent glasses adjusted…washing his bedding and clothes…listening to his explanations over and over and over…  All these are actions that take my time and energy.  As any caregiver knows…as any parent knows…selfishness and service do not mix.  One must go off the plate.

Fear is another thing that needs to go.  Aaron’s seizures make my heart leap with fright for an instant.  I don’t think one ever gets used to them.  His future, too, can cause my heart to fear.  But again, I know that this path we walk is not alone.  God is with us each step and He has not given us the spirit of fear, but of power and love and a sound mind. 

Now what do I keep on my plate?  I keep the reminder of God’s great faithfulness.  I keep His Word in my heart.  I am mindful of His grace for each day and each moment.

I keep humor nearby, always.  A cheerful heart is the best medicine, like God said, for me and for Aaron, even when Aaron gives me a blank look when I think I’m very funny.  😊 

 I also count my blessings!  My plate overflows with blessings if I but look around me.  For instance, on Saturday I was very thankful for the blessing of a washer and dryer instead of a bucket and a clothesline.  Thankful for a warm house, food to eat and to fix for Aaron, and thankful that Aaron could eat some bacon and eggs later that morning.   And Aaron, who loves using multiple napkins, decided that the grease on his fingers could not wait for his napkin.  His eyes shot over to me as he wondered if I saw what he just did. 

“I was wiping a grease of bacon on my pants,” he seriously informed me.”

There’s the humor!!  😊 

Thankfulness, too, for Aaron’s amazing way with words.  After all, that’s a big reason I started writing this blog and named it He Said WHAT?!

And there is yet another blessing!  All my readers mean more to me than I can express. 

See how it goes?  My plate is filling up with good stuff, none of which I want to set aside. 

Time to taste and see that the Lord is good!

Hovering God

A good word for this year, and especially for the upcoming days of uncertainty for believers politically.  This is from the book I am reading as I study the book of Numbers.  God appeared to Israel as He hovered over the tent of meeting as a cloud by day and fire by night.  When the cloud or fire moved, they moved.  It required a great deal of trust, especially when God didn’t move for long periods.  Like Israel, we want to see God move and when it appears He isn’t, then it’s easy to become discouraged and to lose hope. 

“There were days when they could see that they were making progress, but at other times they may have been puzzled because nothing was happening.  Why the tiresome delay?  For most of us, at some time or another, life has its bewildering waiting times.  The evidence of God’s continuing care appears limited, even absent.  The Puritans spoke about ‘the soul’s winter times’, when everything appears cold, bleak, and barren.  We wish God would speak to us more clearly about why we are going through such dark days, when it is hard to hold on.  BUT WAITING TIMES ARE NOT WASTED TIMES.  When the guidance we look for is just not there, we must calmly renew our confidence in God; ‘such a resolution can never go to hell with thee’, said Thomas Goodwin.  There is some wise purpose in life’s bleak experiences.  GOD IS STILL PRESENT.  ‘Moses approached the thick darkness where God was.’  In the desolate years of late-seventeenth-century persecution, John Flavel urged his contemporaries to ‘exercise the faith of adherence when you have lost the faith of evidence.’  (Raymond Brown)

God knows what He is doing…and if our road ahead is hard, God still knows what He is doing. 

In our personal lives…in our lives in God’s kingdom…in our family lives – we must trust God and obey Him and leave all the rest up to Him.  I believe hard days are ahead for Christians.  But I would by far rather be following God today than to follow any other person or cause. 

Thank you, God, for reminding us at this time of year that You are Immanuel…GOD WITH US.  We really have nothing to fear.

My Lot in Life

Having Aaron still live at home with us can present challenges in various ways.  One issue that Gary and I face is, at times, trying to have a prolonged conversation with just the two of us.  It’s amazing how often we have the following scenario:

I walk down to Gary’s study and sit in the rocker.  Aaron is safely WAY up on the third floor, in his room, absorbed in a game or a movie.  But somehow, someway, it’s as if the tiniest sound of our voices reaches Aaron’s ears even through his earbuds.  Soon we hear the unmistakable THUMP THUMP THUMP of his heavy footsteps coming down first one set of stairs and then the second set of stairs.  Gary and I look at each other in resignation as Aaron charges into the study.  “MOM!!! (or DAD!!!),” Aaron bellows.  “Did you know that the core of the earth is HOT?!!  Why is the core of the earth hot?  Can we go to the core?  Would you like to go to the core of the earth??”  Aaron doesn’t notice the lack of interest on our faces or hear our sighs.  “No, Aaron,” I (or Gary) reply, “we don’t want to go the core of the earth.”  (Although that thought might be attractive at the moment in order to afford us some privacy!).  “Why not?!!” Aaron asks.  So we tell him that we will talk about this later and we tell him to go back to his room and ponder the core of the earth a bit more and we wait for him to leave before we try to resume our conversation.

I have been known to say, more than once, something to this effect: “You know, it seems to be our lot in life that we can hardly have a private conversation.”  Gary and I laugh as we both agree with this truth in our lives.

However, there are times that referring to my lot in life can take on a more serious tone and one that is defeating.  I may not even verbalize my thoughts.  That thought may be fleeting or if I’m not careful, may take root in my mind. 

My “lot in life” may be an ongoing situation, such as having our adult special needs son still living with us and facing all the challenges that brings. 

My “lot in life” may be a sudden situation that intrudes into my peaceful life.  We all have them.  Health, finances, children situations, jobs…

There is a truth that I must remember when my mind travels to considering my “lot in life.”  That phrase conjures up a roll of the dice…the hand I was given…good or bad luck.

Each of those concepts go totally against my walk with God.  As a follower of Christ my life is not controlled by luck or how my stars are aligned or any such nonsense. 

Here’s how David put it:

“The Lord is my chosen portion and my cup; You hold my lot.”   

(Psalm 16:5)

My life’s circumstances are not controlled by chance but are designed by God for me.

God is providentially ordering my life. 

And He is doing the same for yours if you are His child and are following Him.

Therefore, I can…I SHOULD…be content with God’s design of my life.  Even the very hard parts that bring tears and fears.

One more thing.  My “lot in life” is not your “lot in life.”  And your “lot in life” is not my “lot in life.”

When I go to comparing my life to yours then I will inevitably be either discouraged or boastful…and both of those attitudes are terribly wrong.

Again, David said it well:

“I have set the Lord always before me; because He is at my right hand, I shall not be shaken.”  (Psalm 16:8)

God is to be my point of reference.  He is the answer to all my questions.

God is the One Who has given me my “lot in life.”

THUMP, THUMP, THUMP

When is the Time to Trust?

A couple mornings ago I felt compelled to open my very old copy of the classic devotional book, Streams in the Desert.  This book was a gift from my home church when I graduated from high school way back in 1973.  But even though my graduation date makes the book old…of which I am all too aware more and more each day…the actual writings of Mrs. Charles Cowman were first published in 1925.  Her writing style may be old school, but the deep truths contained therein are timeless.

I was touched deeply by what I read that morning about faith and trust.  I jotted a few notes, tucked the truths away in my mind, and was soon about my busy day.  Aaron was staying home that day and we had fun plans!

Our plans were to meet some friends at All Star Sports for a morning of games.  My friend Joyce and I had decided to get our two sons together.  It would be the first time that Johannes and Aaron would be with each other for an outing, and we both wondered how it would go.

How it went was great!  I mean, there wasn’t tons of interaction between them, but the ice was broken, and plans were made for more time together.  Sweet Johannes held his hand out and with a prompt from me, Aaron shook his hand without squeezing it too hard, and Joyce and I laughed and were happy.  The boys had a good time and that’s what mattered!

 

IMG_3014IMG_3016

 

Aaron and I then went to eat some lunch and to drop off donations at Goodwill before heading home.  Soon after we got home, Aaron took a nap.  I had the monitor nearby, listening as I always do when he sleeps.  I really didn’t expect to hear a seizure, so I was surprised when I suddenly heard that unmistakable sound coming across the table where I sat.

It was a hard seizure, lasting close to 3 minutes.  And exactly one hour later, to the minute, he had another one.  It wasn’t as long as the first one but was still 2 minutes long.  Thankfully, he was done then and had no more the rest of the day.

It’s so surprising, even now after all these years, how quickly Aaron can go from being out and about, happy and fine, to having a seizure.  I don’t try to figure them out like I used to do, but I still find myself wondering why.

Even the next day on the way home from his day group, his speech was somewhat slurred, and he was very tired.  He fell asleep on the way home instead of his usual non-stop talking.  Was it the residual effects of yesterday’s seizure, I wondered?  Is his sodium low again?  Will he have another seizure when he gets home and takes a nap?

 

IMG_3026

 

So, even though this is Aaron’s life and our life, it’s still disconcerting.  Worrying.  Unsettling.

My mind was drawn back to the devotional I read earlier that morning.  I went back to it and was, as I always am, so amazed at how God has for me just what I need when I most need it.

Mrs. Cowman’s words were based on the story of Paul’s shipwreck in Acts 27.  The south wind blew gently as the sailor’s pulled anchor.  Paul had warned them not to take this trip, but they didn’t listen.  And that south wind was such a hopeful sign to them that they were right, and Paul was wrong.

But soon a terrible storm hit.  For days the ship was violently tossed on the waves.  During that horrible storm, with no sun or stars for days…with everything thrown off the ship that could possibly be tossed overboard…verse 20 says that all hope of being saved was abandoned.

But an angel of God stood before Paul to assure him there would be no loss of life.  Paul stood bravely before those battered and terrified seasoned sailors, and confidently said, “So take heart, men, FOR I HAVE FAITH IN GOD!!”

I thought about our life with Aaron…the ups and downs in so many areas…and the fear concerning his seizures.  How that day had been so much fun and so without fear, and then out of the blue came two hard seizures.  It was easy for fear to replace our fun.

My need to trust God is always there, right at the surface, even underneath all the normal and the fun and the hopeful.

But ACTUALLY trusting God is a must when suddenly the normal and the fun and the hopeful is yanked away.

That level of trust is a conscious decision that I must make.

That level of trust isn’t based on circumstances or on feelings but is rooted in God Himself…in Who I know Him to be.

This year for all of us has seen the rug pulled out in so many areas of our lives.  Things were going along pretty well for most of us.  Then…BAM!!

COVID…jobs…riots…anger…fear…disagreement.

I want to leave you with the hope that God is not taken aback or surprised by any of this.  He has a purpose and a plan.

Can you say, with Paul, that you have faith in God?

I want to leave you with a wonderful poem shared by Mrs. Cowman that I read that morning.  I hope it will mean as much to you as it did…and does…to me.

 

When is the time to trust?

                        Is it when all is calm,

                        When waves the victor’s palm,

                        And life is one glad Psalm

                        Of joy and praise?

            Nay!  But the time to trust

                        Is when the waves beat high,

                        When storm clouds fill the sky,

                        And prayer is one long cry,

                                    O help and save!

 

            When is the time to trust?

                        Is it when friends are true?

                        Is it when comforts woo,

                        And in all we say and do

                        We meet but praise?

            Nay!  But the time to trust

                        Is when we stand alone,

                        And summer birds have flown,

                        And every prop is gone,

                                    All else but God.

 

            What is the time to trust?

                        Is it some future day,

                        When you have tried your way,

                        And learned to trust and pray

                                    By bitter woe?

            Nay!  But the time to trust

                        Is in this moment’s need,

                        Poor, broken, bruised reed!

                        Poor, troubled soul, make speed

                                    To trust thy God.

 

            What is the time to trust?

                        Is it when hopes beat high,

                        When sunshine gilds the sky,

                        And joy and ecstasy

                                    Fill all the heart?

            Nay!  But the time to trust

                        Is when our joy is fled,

                        When sorrow bows the head,

                        And all is cold and dead,

                                    All else but God.

 

 

To Ignore Aaron

Anyone who has been exposed to Aaron will no doubt agree on this:  Aaron is very hard to ignore!

Aaron is going to do what Aaron is going to do.  He is mostly unaware and uncaring of the reactions he generates from others.

Whether he is sitting in our front yard relaxing as he breaks apart the mulch:

IMG_2113

 

Or dressing in this hilarious “fashion” for all to see:

IMG_0690

 

Or deciding to pet Moe, our neighbor’s cat, on Moe’s level:

IMG_2586

 

There is generally no stopping Aaron from forging ahead with his version of living life to the fullest!

Aaron struggles with waiting on me to do an activity with him.  I often don’t tell him that we’re going somewhere, for instance, until shortly before we leave.  If I tell him that we’re going out, then he hovers and gets very impatient with me.  Best to just dash out the door quickly than to endure the anger that his impatience causes.

But some activities are set in stone, for the most part, and Aaron will begin his hovering when HE is ready for whatever that event is.  Every night we watch a program together.  Most often it’s a series that we are going through.  Right now we’re watching Little House on The Prairie.  Nearly every night Aaron will begin his impatient waiting for me to be ready to watch our next episode.  He will stand outside my bedroom or bathroom door, talking and questioning and getting angry if I don’t hurry.  One recent evening, I told him to NOT wait outside my door.  I was pleased that he obeyed, and I could get ready in peace and quiet.

But when I rounded the corner to go downstairs, here is what I saw:

IMG_2600

 

Oh Aaron!!  😊  😊

“I’m waiting on you to get ready!!!” he informed me.

And once again, Aaron was impossible to ignore.

When Aaron has crossed the line with his behaviors, though, one way to get my point across to him about his disobedience is to ignore him.  I become quiet and I barely answer his questions, if at all.  It’s hard for me to do that but I have learned that being ignored by me speaks more profoundly to Aaron than all the words in the world that I could use.  He knows he has really done wrong and that he must make it right.

Last week Aaron and I were in a store.  We were checking ourselves out when I ran into a problem and needed help.  When the attendant stepped around the corner to help me, I saw that it was someone I have come to know there.  Aaron knows her, as well.  This person has a hard life, and sometimes she is very down.  She doesn’t hide it, and when she approached me, I knew that she was having a bad day.  She didn’t engage me at all when I spoke to her.  I can handle that – no problem.

But Aaron doesn’t get those cues from people that you and I see.  He noticed that her hair was different and so when she walked away from me, he followed her.  When she stopped a short distance away, with Aaron at her back, he rubbed his hands together as he happily spoke to her.

“Your hair is short!!” he declared.

No response from her as she kept her back to Aaron.

“Your hair is short!!” he tried again.

Still no response.

I called Aaron back to me, telling him that she was busy, and he didn’t need to bother her today.  I knew he was confused, though, because typically she engages him with interest and kindness.

As for me…I was so angry.  For someone to dismiss and ignore Aaron has always been a very hard thing for me to handle.

I stayed pretty riled up about it for the rest of that day.  I talked to my husband and to my daughter about it later.  I stewed and brewed for quite some time.

But God, as He always does if I but listen, told me that I should not only pray about my reaction but that I should definitely pray for this sad person.

And that I should remember a verse from Psalm 37 that I had recently studied:

Cease from anger and forsake wrath; do not fret; it only leads to evildoing.”  (Psalm 37:8)

Do you know what the word “fret” means?  It means “to get burned up.”

And that’s exactly how I felt!  It burned me up to see Aaron being so blatantly ignored!

Yet what I needed to carry away from this situation wasn’t my load of anger, or my justification for it.  I needed to release my feelings to God and just put a stop to my desire to get even…to report her…to make a point.

Getting steamed about our hurts often leads to evildoing, as that verse says.  We certainly are seeing that in our country today!

How much better it is to talk to God about it, and to follow the example of Jesus…who, though reviled, did not strike back.

It’s a choice I am allowed by God to make.

Do I choose peace?  Or do I choose conflict?

It’s best to follow Aaron’s example, too.  He does bounce back quickly from his anger and hurt, most of the time, settling in to the next thing that captures his attention.

So, like Aaron, I’ll find and choose the joy…in whatever shape it takes.

IMG_2579