Of No Use?

Our neighbors across the street from us had a yard sale a couple weeks ago.  Aaron loves yard sales!  He REALLY loved the fact that there was a yard sale right across the street!  He asked if we could go over and check it out to see if there was something he could buy.  I agreed, knowing that he would end up over there anyway talking to Derek and Gina until I came to the rescue and escorted him home.

Before we left, I remembered that in my wallet was an envelope that held Aaron’s remaining Christmas gift money.  I was always forgetting it was there!  I looked inside and pulled out the cash.  Aaron had $5.00 to spend, and he was happy.

It didn’t take Aaron long to spy exactly what he wanted.  A lava lamp!!  Aaron LOVES lava lamps and has been through several over the years.  He has a glitter lava lamp in his room now, but this was a good old normal lava lamp.   Aaron knew he had found his yard sale prize!

We looked at the sticker and guess what?  It was priced at $5.00!  Could it be any more perfect?  We crossed the street with the “new to Aaron” lava lamp, carried it up to his room, placed it on his already crowded nightstand, plugged it in, and went about our day.

Aaron was waiting, though, for the level gunk in the lamp to begin bubbling.  As he went about the remainder of the day and evening, he kept glancing at his lit lava lamp.  There was no motion, however.  The gunk was still.

“Mom!” Aaron finally said.  “Do you think I bought something that is of no use?!”

I turned my head away so I could smile at his phrasing.  He’s just so funny sometimes…so precise.

“No, not at all,” I responded.  “The lamp just takes some time to heat up the goo inside.”

Gary got home and Aaron happily showed him his new lava lamp…his still not-moving lava lamp.  Supper came and went, as did evening chores and Wheel of Fortune and watching our DVD show just before bed.

As Aaron got into his bed, he sighed with exasperation as he looked at his boring lit but not bubbling lava lamp.

“I think I bought something that is of no use!” he sadly repeated as he pulled his covers up.  I was beginning to wonder myself if the lamp would work even as I told Aaron that it just needed more time.

No one was happier than me to walk in Aaron’s room the next morning, his coffee in hand, and see the lava lamp bubbling in all its globby glory!!  YAY!!!  Yay for Aaron…yay for me…and a special yay for Derek and Gina, whom I was afraid would have certainly heard all about the lava lamp that was of no use!!

Aaron was happy, happy!  And every day since then, when he returns from his day group, he plugs in the lava lamp, totally enjoying the goopy bubbles in all their various shapes and sizes!

Last night, Aaron went to bed talking about how he was going out to eat lunch the next day with a group from Paradigm – his day group.  There is nothing Aaron loves any more than eating out.  So, this morning I wasn’t too surprised to hear him stirring early.  How early?  Aaron keeps a logbook like this:

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This morning’s time was:

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He had so much to look forward to today!  He was ready to get this show on the road!  He supervised me as I poured his coffee and carried it to his room, then told me he would shower and dress.  I went back to my quiet time desk, but it wasn’t quiet for long.

Aaron was soon standing behind my chair, his shower completed and his impatience growing.

“Mom,” he ordered.  “Take your shower and put your make-up on so it will become 9:00!”

I soon realized that Aaron’s hurried mood wasn’t going to improve until he saw me making some headway concerning my shower and make-up.  But I also realized that Aaron’s eyes were very droopy, and his mood was changing even further from excitement to not feeling so well.  He told me his head hurt, his stomach hurt, and that he felt like he was having a dream.  We’ve learned that this often means a seizure is coming.  Aaron was ready to go back to bed, and sure enough I soon heard on the baby monitor the unmistakable sound of a seizure.

I never like Aaron’s seizures, of course, but I especially detest them when they keep him from doing something that he’s looking forward to so much.  No eating lunch out today for Aaron, I thought.  Bless his heart!

And my heart?  My mama heart takes a beating every time I watch Aaron going through this hard part of his life.  He handles all this much better than I do, thankfully.  But as I looked down at Aaron when I checked on him later, look what was in the background.

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The lava lamp.  Aaron’s lava lamp, that he worried was of no use, was performing perfectly there beside Aaron in his bed.

And it hit me.  How easy it would be for me to wonder about all the why’s of Aaron’s seizures and autism…to even feel like it was all sadness and of no use.  But never, never have I felt such hopeless thoughts.  Even in the changed path of Aaron’s life…changed from what we thought our firstborn son’s life would be…there is the sure hope that only God can give.

You see, knowing and following Christ gives to me and to Gary and to Aaron the same hope that God gave to Jeremiah to share with the Jewish nation centuries ago.

“I know the plans I have for you,” declared the Lord, “plans to prosper you and not to harm you, plans to give you a hope and a future.”  (Jeremiah 29:11)

I can claim that promise for us and for Aaron today because we know that God!  We know that He has told us in Romans 8:28 that “ALL things work together for good to those that love God, who are the called according to His purpose.”

God doesn’t plan to hurt us!  He plans to work for our good in order to conform us to Christ!  We have a hope in Him and a future beyond anything we can imagine!

So you see, all the tough times and the sadness and the unanswered questions we may have do NOT mean that this life is of no use.  Absolutely not!!  This life is working perfectly, just how God intended, and in that knowledge – in God Himself – I can trust, and I can rest.

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What Am I Cultivating?

I sat on our patio one recent morning, enjoying coffee while watching birds and dragonflies flitting all around.  The mowed yard, the green trees, the blue sky…it was all so pretty and pleasant.  But then my eyes wandered over to our garden plot.  UGH!!  So much for looking at beauty!

Why?  Because for the second year in a row, Gary and I did not plant a vegetable garden.  Rain…two out-of-town trips…schedules – it all added up to once again, no garden.

Now our  small garden area is a huge mess, full of overgrown weeds and sad neglected old tomato cages.  What a difference to have gone from this:

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To this:

 

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Same ground, but different cultivating.

I read this verse around the time I was thinking about the comparison in our little piece of land from one year to the next.

 

“Trust in the Lord and do good; dwell in the land and cultivate faithfulness.”  (Psalm 37:3)

 

God’s desire for Israel was for them to dwell in the land He had promised to them.  He told them over and over that dwelling in the land successfully and fully would require their total obedience to Him.  In Deuteronomy 30:15-20, God told Israel very clearly what their choice was:

 

“See, I have set before you today life and prosperity, and death and adversity; in that I command you today to love the Lord your God, to walk in His ways and to keep His commandments and His statutes and His judgments, that you may live and multiply, and that the Lord your God may bless you in the land where you are entering to possess it.”  (v. 15-16)

 

God told them that disobedience would bring death and a curse.  He urged them to choose life by loving the Lord, obeying His voice, and holding fast to Him.  And not just life but life AND prosperity.

In other words, to cultivate faithfulness.

This same principle is very true for me today.  I have a choice to make.  God won’t force me to make the right one, but He has told me what the right choice is and how to make that choice.

It’s simple, really.  Choose to love God, choose to obey Him, and hold fast to Him.  Hold fast by hanging onto Him when life is crazy and tiring and disappointing.

I get really tired sometimes.  I know we all do.  Just as I began this blog, Aaron called me from his day group.  I knew he had been having a hard day, and his voice and manner on the phone confirmed it.  I ended up just picking him up early today to avoid any further meltdowns at his day group.  This change in my day was not in my plan.  His attitude today makes me angry and tired.

And guess what I saw before all this happened?  Beautiful beach vacation pictures.  When I hung up from talking to Aaron, I was wanting to just hang up this life with him too, quite honestly.  For a fleeting minute, I wanted to give in to my beach thoughts…have a pity party…and allow myself the “luxury” of wallowing in the wishes for a life I don’t have.

I just HAD to be writing a blog today on faithfulness, right?!

You see, God has put me right here where I am.  This life with Aaron is not what I had planned, but I must see and trust that this life with Aaron is what God planned…for me.

And in this life that He planned for me, I really do want to live it in victory and joy. I want to cultivate this:

 

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And not this:

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It truly is up to me which picture will be the picture of my life.  I choose what to cultivate by choosing whether to love God…obey Him…and hold fast to Him.

I love Him by praising Him even when I don’t like what’s going on around me.

I obey Him by reading His word and finding out what exactly it is He wants me to do each day…and then DO it!

And I hold fast to Him by not allowing my thoughts to digress into selfish wishful thinking and all those “what if’s?” and asking Him to give me grace to love and handle Aaron correctly.

I should know that when God burdens me with a blog, then He’s going to hammer it home to me in a very personal way!  😊

So, wherever you are today…on a public stage or stuck at home…reeling from an unexpected diagnosis…planning a funeral…facing life alone as a single…hurting from unfaithfulness…starting all over in a new life or new church or new friends…losing your job or needing a new one…raising your grandchildren…raising special needs children…

Whatever is your situation, just remember:

CULTIVATE FAITHFULNESS!

And just watch what God will grow in your life!

 

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Lens #1

Last week, I once again took Aaron to his yearly eye exam.  Doctor visits are always an adventure with Aaron.  Waiting for the doctor to come into the exam room is also a test of my patience.   Aaron stretches and wants to lay down.

 

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Or he eyes the tempting equipment and tools that the doctor uses, trying to pick them up and test them out before I tell him to stop.

 

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As I sat with Aaron last week and watched him during the exam, I was reminded of the following post from a couple years ago.  This was such a funny moment for me!   Here is what I wrote:

 

I took Aaron to his yearly eye exam today. God bless Aaron’s eye doctor. Next week I’ll be saying, “God bless Aaron’s dental hygienist,” but today all blessings go his eye doctor and to the staff. Oh, Aaron isn’t mean. He just has a very difficult time understanding what the doctor needs from him…..how to express what he is seeing or not seeing clearly…..opening his eyes wide…..not leaning back from every instrument that comes toward his eyes…..things like that. There was one very funny interchange, though, during the exam. You know how the doctor wants you to tell which lens helps you to see the letters on the wall the clearest.

 

Dr. Nelson: Aaron, is number one better? Or number two?

 

Aaron: Number one.

 

Dr. Nelson: OK. Now which is better? Number three, or number four?

 

Aaron: Number one.

 

Dr. Nelson: Let’s try again. Number three, or number four?

 

Aaron: The first one.

 

Dr. Nelson: You mean number three….here…..or number four…..here.

 

Aaron: Number one.

 

Dr. Nelson: Let’s try these. Number five, or number six.

 

Aaron: The first one.

 

Dr. Nelson: Let’s try number seven…..

 

Aaron: Number one.

 

Dr. Nelson: OK, let’s not do numbers anymore. Is this one better, or this one better?

 

Aaron: Number one.

 

HaHaHaHa!!!!!! How I wanted to belly laugh!! I do believe that number one was the winner, don’t you??!! 😎😵🤣

 

However accurate Lens #1 was, Aaron was sure that this was the lens he liked the best.  He didn’t waver one bit from that determination.

I’ve been thinking about this as I look at my own life, and the lives of many that I know and love.

Through what lens am I looking at my life?

I just ran upstairs to be with Aaron as he had another seizure today.  I’m thankful he was lying down, so there was no falling and no injuries.  But his seizures, especially after all these years, are serious and scary.  As we get older, and as Aaron gets older, Gary and I do wonder about our future and his future.

In the past days, I have communicated with family and friends who are enduring all kinds of trials.  Two with aggressive and serious forms of cancer, out of the blue.  Tragic family issues.  Separation.  Divorce.  Friends who just bought a house and now he lost his job, literally overnight with no warning.  Lots of chronic health issues with no end in sight.

So much suffering! And the way that I view suffering depends upon which lens I choose to look through.

I know the lens I NEED to be using.  I need to focus on the God that I know and on His word that He has given me.  I may be rattled and shaken, but my focus will be sharp if I’m looking to God.  My faith is in and on Him when I look to Him…not disrupted by all the suffering around me that I or others are enduring.

It’s like Aaron’s eye exam.  I need to realize that lens #2 or lens #3 are not right for me.

Fear is not a lens God wants me to use when viewing my circumstances, or the circumstances of those I love.  Neither is anger…or worry…or a host of other responses that are all too common for me.

I know that when I have my eyes off God, life becomes blurry.  I lose focus.  I lose peace.  I lose hope.

I need to go back to lens #1, for sure!!!

The best way for me to keep my focus is to go to my Bible…to read God’s promises and let His words soak into my mind and my heart.

My parent’s favorite Bible passage is perfect for me to use in keeping my focus:

 

God is our refuge and strength, a very present help in trouble.  Therefore

we will not fear, though the earth should change and though the mountains

slip into the heart of the sea; though its waters roar and foam, though the

mountains quake at its swelling pride.  (Psalm 46:1-3)

 

God told us we would have suffering and trouble on this earth. But He also has promised to be our very present help, our strength and our refuge, no matter what carnage is around us.  He is a loving Father who takes care of His children.

This is the focus I need.  God is the focus I need.

God is my lens #1.

I love the old hymn, The Solid Rock.  Look at verses 2 and 3:

 

When darkness veils His lovely face,

         I rest on His unchanging grace;

         In every high and stormy gale,

         My anchor holds within the veil.

 

         His oath, His covenant, His blood,

         Support me in the whelming flood;

         When all around my soul gives way,

         He then is all my hope and stay.

 

         On Christ the solid rock I stand;

         All other ground is sinking sand,

         All other ground is sinking sand.

 

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Work, Work,Work!

I believe every family has sayings that have been passed down over the years – sayings made by family members and then repeated again and again.  Often these comments are funny, laughed at every time they are uttered as memories of the person and the situation surface once more.

One of our family favorites is a comment made by Aaron years ago when he was very frustrated by having to pitch in and do some work around the house.

“Work, work, work!!”  he exclaimed.  “All I do is WORK!!”

No one understands the humor of his statement like we do.  That’s because we all knew…and know…Aaron.  He worked the least but complained the most.  Now when one of us repeats that phrase with great emphasis, we all just laugh and shake our heads…just like we did when Aaron first said it.

I do believe we now have a new phrase, thanks once again to Aaron.  Another one of many he has left us over the years, trust me.

Two weeks ago, Gary and I were packing up our vehicle for our annual trip to Houston.  We travel there every April to see Andrea and Kyle, and with the added bonus of spending time with Andrew, who is there for an NHRA race.

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This year we were taking lots of Andrea’s “stuff.”  That’s because she and Kyle are married now, and have a house, so her “stuff” is hers once again.

We had many loads to carry out and put in our vehicle.  Aaron was in the middle of all of it, talking and hovering, hoping that none of this activity was going to eat into our normal evening routine of watching a DVD or show.  He seems to think that his presence will continually remind me that he is my priority.

So, we put him to work.  He was willing to do so, thankfully, and really was a huge help.  He helped lift the heavy electric piano into the van, as well as carrying box after box outside for us.  Eventually, though, as we were nearing the end, Aaron’s impatience started to surface.  He knew that I still had other things to do before we could watch a show.  Bedtime was looming.  His routine was already a mess, and his nerves were showing.  He was excited at our leaving, with thoughts of all the restaurant meals awaiting him and his caregiver during the week, but also anxious at our being gone and his normal life being a little unhinged.

Aaron never offers to sit and talk about his feelings.  Goodness, no!  He doesn’t even understand what’s going on in his head and heart.  But he does SHOW his feelings by usually hurting ours.  Or by being confrontational, rude, stubborn…you get the picture.

His happiness at helping had turned instead to blame.  He blamed his anger on us for making him work.  He and I worked through all that for the most part, watching our show as he calmed somewhat, but then as I tucked him into bed later, he erupted again.

“Mom!!” he said.  “You made me do servant work!!  I don’t like SERVANT work!!”

It was so hard not to laugh!  But believe me, all of us…minus Aaron…laughed a lot about what he said as we spent a few fun days together.

Servant work!  Indeed!

In the week since we’ve been home, I’ve seen the other side of Aaron…the side that enjoys helping us.  He wanted to help me cook supper one night, and then to send a picture to Andrea – who told me that it looked I was making Aaron do servant work again.  😊

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He also wanted to share his Sonic mint with Gary that evening, so he put it on Gary’s supper plate.

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This past Saturday, he asked if he could help me with some pruning.

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He often takes our recycling to the container; brings down his laundry; sets the table; and other chores around the house.

Aaron is usually happy to help when things are going the way he wants.  But when his version of normal is anything but, then helping becomes “servant work.”  Not fun…not to be expected…not to be done!

I look at myself and I see this attitude of Aaron’s in me more than I like to admit, especially when it comes to caring for him.  I’ll be honest.  Taking care of a special needs child, even your OWN special needs child, is not all halo moments where we feel or act like angels.

Oh, my compassion is through the roof many times.  Like when I sat in the ER with Aaron for five hours four days before our Houston trip, waiting for him to be admitted to the hospital for seizures the day before and very low sodium.  Thankfully, we were sent home when his sodium level increased.

Home, where Aaron had a very long and a very scary seizure that evening.

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His seizures, injuries, staples, stitches, missed fun days, so many meds, the look on his face as he held his Subway sandwich on our drive home…so many times my heart just breaks for him.

But then he has those behaviors, rigid routines, expectations of me, nonstop talking at times, anger…

Seizures that keep me home, having to change all my plans…and his.  Extra laundry, sadness, worries for now and for the future…

A life unlike most of our peers for me and for Gary.  Not able to up and go, to travel at will, to plan for a fun life of retirement trips.

Special needs parents weren’t given our children because WE’RE so special and God knew we could do this.  God wants us to see that HE is the special One that we need, and that in no way could we live this life without Him and His grace and His strength.  Goodness knows I have none of my own.

Many times, and many days, this life that God has given me can only seem like “servant work.”

But really, there are two kinds of servant work, and it’s my attitude that determines which I will experience each day…each moment.

When I think of how God wants me to serve in every situation, and when I do this servant work with that in mind, my attitude is one of inner joy and peace – even if outwardly things are crazy, and I am frustrated.  My goal then isn’t about ME.  It’s about Aaron, and to serve him in a way that pleases God.

But when I get in my own way and take my eyes off God…and like Aaron, things aren’t going the way I want…then I sometimes get angry and frustrated.  When I do this, all too often, then I’m doing “servant work” in the way Aaron meant.  Unpleasant, yucky, unhappy work that makes me bitter.

So, to all of us…and ESPECIALLY to my special needs parent friends…know that God understands.  Just talk to Him when you’re exhausted, when you blew it, when you yelled at the child you love so much, when you’re envious of other’s lives, when you’re out of money and patience and even hope – just talk to God, lean on Him, and then know that each day is a new day.

A new day to do servant work, the way God intended.  After all, we have the best example in Christ.

“Have this mind in you, which was in Christ Jesus, who, though he was in the form of God, did not count equality with God a thing to be grasped, but made Himself nothing, taking the form of a SERVANT, being born in the likeness of men.”  (Philippians 2:5-7)

Servant work is God’s work, really.  And He’ll give us what we need to do it the right way, every day.

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One Thing

I’m sitting here looking at my blank computer screen, wondering how on earth to write this post.  I write better when I can be totally up-front and honest about life.  But sometimes I can’t be that way because some matters are private, involving issues and people that prevent open sharing.

Was that catchy enough?  Do I have your attention now?  HaHa!

I really wasn’t trying to reel you in with my first few sentences.  I am, like I said, just being honest.

Recently, Gary and I had a “thing” happen.  It’s easy to say the typical phrases that we often here, such as what I just said.  “Things happen.”  Or here’s another one – “Life happens.”

Yet as a follower of Christ, I know better.  I don’t get upset when others, or when I, make those statements.

“You know, things just happen,” I have often said.

But again, I know better.  I know that God is the One Who is in charge of my life and who allows every single “thing” in my life to happen.  In reality, my “things” don’t just happen…they are permitted or ordained by God.  I am His child and He is in charge of all aspects of my life.

Most often, when we say that “things” happen, we’re not referring to happy “things.”  Usually, we are talking about stressful “things.”

Gary and I have had some recent stress.  Don’t we all?  We had to make the difficult decision to put our sweet Great Dane, Jackson, to sleep.  Not long after that, Aaron had a drop seizure on our stairs and ended up with eight staples in his head.  And then this “thing” intruded into our lives.  It’s not a happening that occurred, and then is over and done.  It’s more like a dark cloud of long-term wrong that will hover over us…well, forever, really.

All these “things”…all this stuff, plus many more daily stresses…can just be overwhelming and exhausting.  But two other “things” have taken place as well…in my heart, which is the best place for God to work HIS things.

One “thing” is that my mother’s favorite verse has been rolling around in my head for days now.  It’s Psalm 46:10: “Be still, and know that I am God.”

I love, though, the meaning of “be still.”  This is how I have been saying this verse recently: “Quit striving, and know that I am God.”

I can’t make “things” not happen.  I can’t always change situations.  And even if I try, the doors often remain closed.  The damage is done.

I have a mental image of being tied up with ropes.  Those ropes are the “things” that have or are happening in my life.  I twist and turn and pull and flex against those awful ropes, trying to be free.  But God wants me to stop that!  He wants me to relax and to simply trust Him…to rest, and to know that He is God.  And as God, He will handle all my “things.”

All this sounds so good, doesn’t it?  So spiritual and so right.  But how on earth…really, how on this old sinful stressful earth…do I quit striving?

God gave me a huge part of that answer over the past few days.  It’s found in the first few verses of Psalm 27.

David talks about his “things.”  He says that evildoers want to devour his flesh.  He is surrounded by enemies, adversaries, and whole armies…literally…who want to destroy him.  He was living in caves as he tried to survive.  His treatment by King Saul was totally unjust and evil.

It’s awful to be hated.  It’s awful to be the recipient of unjust treatment.  It’s awful to be on the run, either mentally or physically…running from the pain and the wrong and the hurt.

So, in verse 4, David says, “One thing I have asked from the Lord, that I shall seek…”

Let me stop to say that I can tell you what my one thing usually is when hard times come, especially injustice.  My one thing is to think that if I could only talk to this person or to these people, I’d tell them a thing or two!  Or on a nicer slant, my one thing may be to try to have a pleasant, open talk with them. Surely, they will listen!  Just give me one chance, Lord, to handle my situation…whatever it is…by doing that one thing that will make ME feel better.

But what was David’s one thing?  He asked God to let him behold His beauty in the tabernacle, to meditate and to dwell in the temple.

In other words, David’s one thing was to worship God.

And there is the answer to my question about how to quit striving against my “things.”

Worship.

David’s one thing that he asked of God when he was going through all of his awful “things” was the opportunity to once again worship God in the tabernacle.

“There is only one place where your heart can be healed, restored, satisfied, and protected.  It won’t be healed by winning human wars.  It won’t be satisfied in human acceptance.  It won’t be restored when you have meted out vengeance.  It will only be filled, satisfied, and at rest when it is filled with the beauty of the Lord.”  (Paul Tripp)

When I focus on God, I am not focusing on my “things.”  I am instead aware of God’s greatness in the middle of my “things.”  His power is what upholds me.  His plan, however vague and unknown it may be to me, is one which I can accept because in God’s beauty I see His love for me.  I experience His peace and His grace when my eyes are on Him, and not on my “things.”

We all have those hard “things.”  Some of you are enduring much more difficult “things” than mine.  May we all learn to worship God even when we are surrounded by our pain and fears and sadness.

Then to rest…quit striving…and let God be God in our lives.

“Quit striving, and KNOW that I am God!”

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You Are With Me

One of our worst fears was realized on Saturday, March 2.  I mean, far worse things could have happened, I know that.  Yet it was a very scary day for us.

Aaron started up our stairs from Gary’s study, but had only taken a couple stairs – best we could tell – when he was hit by a drop seizure and fell backward.  The crash was startling!  Gary was nearby and I was in the kitchen at the top of the stairs.  We both immediately knew what had happened as we heard Aaron seizing.

It was a blur of blood, and panic (from me!), and fear and realization that Aaron was hurt.  He had hit a file cabinet, actually bending the bottom metal handle…with his head!  We got him to our nearby ER as soon as he could walk, which happened fairly quickly.  Aaron was coherent and I had finally calmed down, and Gary was his always strong presence – thank God!!

I’ll write more about that day later, but after our pastor’s Sunday morning message yesterday, my mind was drawn back to one of the scenes from that day in the ER with Aaron.  Poor Aaron had a huge gash in the back of his head.  We knew he would need staples.  Thankfully, the CAT scan showed no other head or neck damage.  Finally, it was time for the staples to go in.

Aaron had never had staples up to this point.  Aaron is one tough young man.  He’s endured so much over the years with his seizures.  But these staples scared him, for reasons I’m sure all of us can totally understand.

He rolled over on his side, face away from me.  So, I went around his bed and I knelt beside him, my face close to his.  I held his hand, and I rubbed his arm and face.  The first staple penetrated his scalp.  Aaron flinched and closed his eyes.

He kept his eyes closed for the rest of the procedure, grimacing with each staple.  I so much wished that I could trade places with him!

“What more must he go through?” I thought.

“Ow,” he softly said a few times.  But Aaron was calm, strong, and so brave…despite the pain that I’m sure radiated through his head, not only from the staples but from the hard hit.

Later, as Aaron talked to various people and at various times about his experience, I noticed that he talked about me being beside him.  Even though his eyes were closed, and he couldn’t see me, he knew that I was there as I talked to him and patted him and assured him that everything would be fine.  It meant more to Aaron than I realized.

Pastor Bob’s message yesterday at church was on Psalm 23.  We all know this Psalm, including verse 4:

“Even though I walk through the valley of the shadow of death, I fear no evil, for You are with me…”

As we walk with God, through whatever valley He leads us, He is with us.

As I walk with God, through whatever valley He leads ME, He is with ME.

God is with me.

He is kneeling beside me…He is holding my hand…He is leading me…He is walking beside me.

Whatever my valley.  My sadness.  My fear.  My uncertainty.  My questions.  My anger.

You.  Are. With. Me.

Four simple yet profound words.

I can imagine God stroking my face as my eyes are clinched tight, trying to block out the pain of my situation.

I can see Him holding my hand as He leads me on an unwelcome path.

I can feel His arm around my shoulder as He leans into my world, urging me to lean into Him and His strength.

Even though I can’t physically see Him…even though I can’t actually feel the touch of His hand on mine…and even though I don’t understand at all what He is allowing in my life…this I do know.

You are with me.

And I am not alone.

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Special Aaron

 

No mother can ever forget the birth of their babies, each one so unique and completely amazing.  That first baby, though, holds a very tender place in a mother’s heart.  Our first baby was Aaron.  He wasn’t loved more than our other two children, but that first birthing experience was one of a mixture of fear and uncertainty that culminated in total wonder at the little squalling miracle lying in my arms.

A son!!  I remember a feeling washing over me that I had never experienced before.  Total love.  I knew that certainly no other woman could have ever felt as blessed and…well…as special as I did in those new moments of motherhood.  I know now that this wasn’t true, but you could never have convinced me otherwise during those first fresh days of holding my little son.

I examined him from the top of his fuzzy head to the very bottom of his wrinkled toes.  Every detail was so perfect.  He was so tiny and complete…wispy eyelashes, button nose, tee tiny little fingernails and toenails…just every single part was truly a work of art from God.

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Lots of years have passed since my first introduction to motherhood in that old wooden WWII hospital at Fort Carson, Colorado.  So many details of Aaron’s future, unknown to us back in 1984, have woven themselves into our own future now.  Never, ever did we dream that our Aaron would continue to be defined as “special,” but now in the sense that we often call “Special Needs.”

Sometimes I still shake my head in disbelief at that title.

Yet there is no denying the reality of this path upon which God set our steps.  Aaron’s first seizure in Germany at the age of seven led us to a diagnosis of Epilepsy.  Seizures have never been out of the picture since that time other than for brief periods of reprieve.

Then later, at the age of 14, came the surprising diagnosis of autism…Asperger’s Syndrome.  This wasn’t a common condition at that time.  I didn’t even know what Asperger’s was.  But we’ve all learned along with Aaron just what it means to live with what we call “Special Needs.”

It’s very interesting to look up this word “special.”  It’s a word that we so routinely use that we don’t give it much thought.  So, I did just that…I looked up this special word in the dictionary…and I was touched by just what it means to be special.  Especially what it means to Aaron, and so to us as well.

 

SPECIAL:  Distinguished by some unusual quality.

Our family would laugh at this one, not because we’re cruel but because Aaron has LOTS of unusual qualities.  Many days I wish it was only one.  Some are funny; some are annoying; some he repeats over and over; some are loud; some are very embarrassing….

 

SPECIAL:  Readily distinguishable from others of the same category.

Well, that’s one way to put it.  He’s very readily distinguishable when he stops in the crosswalk at Wal-Mart and holds his arms up just to be sure that traffic knows to stop!  He’s totally distinguishable when I remind him to look UP as we leave the store and enter said crosswalk again so that he looks for traffic and not at his feet…and he stops in the middle of the crosswalk and looks up at the SKY!!

He’s also very likely to hover at the door of the nail salon like a stalker, watching the women getting their manis and pedis…fascinated by the smells and the sounds…but a little alarming as he curiously stares.

He whistles…he claps…he sings.  Or he stands in the little restaurant in the Wal-Mart entrance and delights in the fact that the attendant thinks he wants to order.

 

SPECIAL:  Being other than the usual.

Usual is so boring to Aaron.  Some days I wish for boring.  But Aaron does add a spark to life on most days.  Sometimes a raging fire, honestly.  Like Gary and I envisioned Friday evening in Cracker Barrel when Aaron decided to take the globe off the oil lamp…that was lit…with real fire.  All was well.  Nothing to see here, people at the table beside us.  Move on.

 

But there is also one more meaning to this word…this special word.  And this meaning is by far my very favorite.

 

SPECIAL:  Designed for a particular purpose.

You see, Aaron was indeed designed by God, just as much as all the other babies ever conceived.  He was designed for a particular purpose.  I don’t always live in that reality, especially on the hard days.  But I know deep in my heart that God made no mistakes with Aaron.  God’s sovereign hand made Aaron just the way he is.  It’s up to me to live in that knowledge, especially when I’m tired or upset or discouraged or embarrassed.

Honestly, one of the huge purposes that I’ve seen Aaron have in my life is to remind me of how much I need God.  How much I need His love and forgiveness and patience and strength.  How when I am weak, then God is strong FOR me and IN me.

 

Aaron reminds me to give:

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Aaron reminds me to love:

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Aaron reminds me to laugh:

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Aaron reminds me to enjoy life:

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Aaron reminds me to keep going when things are tough:

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And God reminds me of these truths:

 

For You formed my inward parts; You wove me in my mother’s womb.

I will give thanks to You, for I am fearfully and wonderfully made.

Wonderful are Your works, and my soul knows it very well.

My frame was not hidden from You, when I was made in secret;

And skillfully wrought in the depths of the earth;

Your eyes have seen my unformed substance;

And in Your book were all written the days that were ordained for me,

When as yet there was not one of them.    (Psalm 139:13-16)

 

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