Don’t Try to Change Me!

The word “change” is not a welcome word to many who deal with the issues of autism. 

You can phrase that concept any way you want.

“Come on, just roll with the flow.”

“Be flexible!”

“Try it.  You’ll like it!”

I have told you how Aaron won’t eat his popcorn at the theater until the actual movie begins.  The commercials before the movie are NOT the movie.  Neither are the sometimes endless trailers that are then shown.  Trailers are NOT the movie!  Aaron will continually look down at his big tub of popcorn that he has placed on the floor beside his feet, waiting expectantly to dig in when finally THE movie begins.  Then he will pick up his popcorn and visibly relax as he begins to eat. 

Aaron does the same thing at home.  When we sit down to watch a show, he will lay his snack close to him, but he will not begin to eat it until the show actually begins.  He will sit through opening credits.  He will sit through a long intro such as Blue Bloods has.  You’re not going to fool Aaron.  He knows that these programs are tricky and that they have opening music that hasn’t played yet, so don’t EVEN try to get him to eat until all the preliminaries are over and done.  Ice cream may even start melting, but Aaron doesn’t care. 

Aaron has carried this “waiting for the actual event to start” idea over to his music that he listens to in the van.  This past Thursday we started on our way to pick up our food delivery for Meals on Wheels.  We had been listening to Brad Paisley.  I pushed the button to start the music.

Aaron pushed the button off.

I pushed the button back on.

“MOM!  I don’t want to listen to music right now!”

“I know you don’t, but I do,” I replied.

He pushed the button off.

I pushed the button back on.

“MOM!!” he protested, “I said I don’t want to listen to music!”

“It’s not just about you, Aaron,” I responded with more patience than I felt.  “I do want to listen to music.”

Aaron was still and quiet for a few seconds.  Then off went the button again. 

I sighed a very deep sigh.  My lungs are in such great shape, living with Aaron.

“Aaron,” I began, “you want to wait until we actually start delivering our meals before you turn on the music, right?”

“Yes,” he replied.

“But we can listen to music now.  It won’t hurt anything to do that,” I told him.

I pushed the button back on.

I could feel the pressure building in Aaron, just like my pressure cooker at home.

He pushed the button off.

“Mom,” he began, “uh…you know…uh…”

And thus began Aaron’s attempts to start a conversation under the guise of wanting to talk instead of listening to music.  I just decided to let it go.  Hey, that’s a song!  It should be my theme song!

Bless Aaron.  I know he can’t help it, but really…!

Later that afternoon, Aaron was very happy that Gary was going with us to Nellie’s Pond for a walk.  But there was that issue of Aaron wanting to sit in the front seat of the van because that’s where Aaron sits when I drive and he and I are usually in the van by ourselves so the front seat is his and that’s the way he likes it and that’s the way it should always be…..

“Mom!” he began as he was processing his plan, “I know.  Dad can ride in his truck and you and I can take the van!”

“No, no Aaron,” I said with a laugh, “that’s not the way it’s going to be.”

But Gary, in order to give Aaron a perfectly happy experience, sat in the back seat while I drove, and Aaron sat in his front seat.

Just the way it should be, in Aaron’s world.

And sometimes we do put ourselves into his world…actually, lots of times…so that he can relax and have total fun.

Walking through life with Aaron…balancing discipline with the rigidity of autism…is certainly an exercise in patience and wisdom. 

Gary and I do not possess either of those qualities in the abundance that is usually needed but I am so thankful that God gives and also forgives.

So often, too, I find that it is me who needs to do the most changing.  God knows that all too well!

I wonder how often I am the Aaron in God’s life.   😊

Here’s A Rose!

Once again, this year our friend Jody at our local Dillon’s store made sure that Aaron had a box of beautiful red roses to take to his day group on Valentine’s Day.  And this year, unlike last year, Aaron did stay at Paradigm (his day group) all day.  Special days are hard for Aaron – too many expectations on a day full of a party atmosphere.  It all drives Aaron a little crazy. 

My favorite picture of the morning was Aaron’s sheer delight after giving a rose to Antoine, one of his favorite staff. 

Antoine takes Aaron to QuikTrip on most days.  He is so very patient and understanding with Aaron, even when Aaron’s exuberance is a bit much. 

I captured pictures of Aaron giving a rose to Barb, our dear friend in so many ways.

And to Victoria, his very special friend.

Last week Jody saw to it that Aaron and I also had roses to hand out to our Meals on Wheels clients.  Look at the loveliness!

Aaron enjoyed taking a rose to each door and handing one to each of our sweet clients. 

I relish seeing the way Aaron loves giving those roses away.  These are memories tucked happily into my heart. 

Thank you to Jody and to Dillon’s for making those two fun days possible.  The kindness shown and the memories made are truly priceless!

The Special Quarter

I had taken Aaron in for his physical at the air base, which in itself is full of interesting Aaron moments. 

Here’s one:  He was very worried that he would need to give a urine sample, which he completely does not want to do.  We walked up to the counter at the Immunization Clinic to sign him in for a TB test.  I always try hard to be the first one at these windows in order to spare the poor airmen from Aaron’s loudly blurted and random comments or questions.  I indeed was in front of Aaron but this in no way deters Aaron.  As I signed him in and explained what we needed, Aaron pushed his head around the side of the window.

“DO I NEED TO PEE HERE??!!” he loudly and nervously asked.

I have to say that the look on the faces of the two airmen in the clinic was priceless.  I have no idea about the look on my face, but on Aaron’s was a look of panic.  I explained to the airmen as best I could while I tried to calm Aaron and sign him in on the clipboard.  And Aaron continued to ask his question over and over, bless him. 

Most people who encounter Aaron are treated to an impromptu lesson in special needs.  Like the lady yesterday at Wal-Mart in the produce section…the one that Aaron followed as he asked her if she liked cabbage because we were buying cabbage and he just HAD to know if she liked cabbage and why did she like cabbage…  All while I was calling to Aaron to come with me and trying to distract him from his quest to discover if this woman liked cabbage like we like cabbage.

And the dear cashier, who had to answer lots of questions from Aaron and listen to his commentary.  Do you like chocolate cake?  Do you like chocolate icing on your chocolate cake?  Guess what we’re having for supper?  Steak!  Do you like steak?  What kind of steak do you like?  I like boneless.  Do you like boneless?  Mom, what kind of steak are we having…….

Outings with Aaron, of whatever kind, often leave me with a variety of emotions.  Humor.  Embarrassment.  Frustration.  Joy.  Relief…when it’s over!  But mostly, I really do love my times with Aaron, stressful as some situations are. 

After his physical, we went to Jose’ Pepper’s to eat.  His favorite thing to do in all the world is to eat out.  And when he has gotten to know a server, like Emily at Jose’ Pepper’s, then his fun is doubled.  He walked in the door laughing and rubbing his hands together, oblivious to any stares from others.  He immediately spied Emily and he was off, trying to talk to her as the hostess was trying to figure all this out and get us seated, and I was trying to calm and quieten Aaron, and Emily was smiling broadly. 

We do make an entrance.

We were nearly through with our meals when Aaron spied something on the floor beside us.  I followed his gaze as he leaned out of our booth for a closer look.  There on the cement floor was a quarter.  Aaron was out of the booth in a flash!  He picked up his great find and proceeded to examine it closely.

“MOM!!” he very excitedly said, “it’s a state quarter!!  It’s HAWAII!!”

He was beyond happy at this treasure that had been laying right there on the floor for who knows how long.  Look at his wonderful smile.

He did not have a Hawaii quarter.  It is now safely in its place in his state quarter folder. 

For that day, for that moment, Aaron had found a priceless gem.

And I thought, as I watched him so full of delight at something that would be less than impressive to most of us, how this moment is so like my life with Aaron.

Do I focus on the routine life we have?  Do I see him through eyes of frustration or embarrassment?  Yes, I often do.

But I CAN make the choice to view him as a real gem, full of his uniqueness and spontaneity.  Sure, he can be aggravating and especially embarrassing in public, but how funny he is!  How refreshing…sometimes.  😊 

How full of lessons for Gary and for me, and hopefully for many others who encounter him. 

So, when we are walking to our car after our excursions, and I take a deep breath in order to settle my mind and calm my nerves, may I also use that same breath to thank God for the special treasure that He has given me right beside me in this life. 

And may others who bump into Aaron in the produce aisle, the check-in counter, the check-out lane, the restaurant…wherever we are…realize that there are many walking among us who are very special indeed!

What a gift it is to find them!

Tearing Our House Down

We had a very busy last few weeks of 2021, and an exciting beginning of 2022.

After several months of planning with our contractor and prepping the house…and ourselves…our big main level renovation is well underway.  We just finished up week number three!

Aaron is not a fan of upheaval of any kind.  I would say that having our kitchen, family room, living room, and dining room torn apart at the same time qualifies as upheaval, right?

Two days before the work started, there stood Aaron staring at a wall in our kitchen.  I just stared at him, waiting for him to tell me what he was doing. 

Aaron:  Look!  There’s a crack in this wall.

Me:  Well, I think it’s just the paint but anyway, this wall will be coming down soon.  We’re going to see some very interesting things in the next few weeks.

Aaron:  Not me.

Me:  What do you mean?

Aaron:  I don’t like this. 

Me:  Why not?

Aaron:  Because Luke might turn off the electricity while I’m on my computer!

Luke, whom we’ve known since he was a teenager, has done our other remodeling.  He finished our entire upstairs last year.  So he knows Aaron well and is as prepared as one can be for the comments that Aaron will inevitably make. 

Gary and I decided to stay in the house during this renovation.  We put together a makeshift kitchen in one of our upstairs bedrooms.  I told a friend that if I couldn’t cook with all the gadgets I have then I’m pretty pathetic.  😊

Three days into our first week, this friend laughingly said she would like to know what I had been cooking that week.  Here is my answer:

Monday – leftovers.  I felt invincible

Tuesday – I decided to unbox my new air fryer and learn how to use it because I thought I needed some extra stress in my life.  I cooked Aaron’s brats in it.  I was fixing Gary and I some precooked Angus patties in the microwave and then some steamed cauliflower in the microwave.  And salad for all of us.

The microwave shut off because it won’t work at the same time the air fryer is on.  Too much electricity being used in our upstairs at the same time.  😝😝

I had enough Olive Garden dressing in our little frig we bought for our makeshift kitchen, but I was determined to find the extra bottle that I knew was in one of these food boxes, but I could NOT find it and I was so FRUSTRATED by that point!  Aaron loves that dressing!  I did not want to run out!  Then it became an issue over me saying to myself, I WILL find that dressing!! 

I found it today in the box with the baggies and foil.  😂😂

And the steamed cauliflower last night was slightly – largely – on the crunchy side.  We sounded like we were eating Doritos.

Tonight:  I wisely used my well-known crock pot and rice cooker to make Taco Chicken Bowls.  Took me awhile to find the rice.  WHERE IS THAT TUPPERWARE CONTAINER OF RICE???  I JUST saw it yesterday!!!

I found it, finally, under a bunch of cans.

Thursday:  We are eating at Outback.  😅😅

But things got much better after that first week.  We are truly thankful to be at home and so blessed that we have plenty of room upstairs, and then a whole downstairs where Aaron and I can watch our shows at night while Gary reads. 

Aaron still wishes that Luke would just stop all this nonsense.  He has told Luke multiple times that he wishes he would quit tearing our house down!  And yesterday, with two new workers here, Aaron walked up to them and nicely said, “I wish you would go home and quit tearing our house down.” 

I told them that Aaron was our welcoming committee and to just carry on.  😊

It is not a small project!

Aaron wishes it was small…and fast.

One night, before bed:

Aaron:  Mom, is Luke almost done?

Me:  Oh no, Aaron.  This remodel will take awhile (without defining “awhile.”)

Aaron:  Well, I wish it was done right away ALL the way because I don’t like that sound they make!!    😂😂

Aaron really does have a lot to get used to, like finding an empty can of black beans on the bathroom counter.  I needed to drain them in our bathroom sink as I was putting supper in the crock-pot in our Makeshift Bedroom Kitchen.

Aaron walked in the bathroom and immediately spied the empty can of black beans on the counter.

Aaron:  MOM!!  Why do you have black beans in the bathroom?!

Me:  I had to drain them, so I used my bathroom sink.

Aaron:  Oh.  I thought maybe you were using them on your hair!!

Hmmmm…he may be on to something there.  On many days I would try ANYTHING to help my hair!! 

Black Bean Bouffant!!   😂😂

I’ll let you know if it works – may even post some pictures!

But for now, here a few more shots of our work-in-progress.

And, as you can see, Luke and his team really are making progress! 

If we could only convince Aaron of that. 🙂

Stuff or Kindness?

Every Thursday, Aaron and I deliver meals for Meals on Wheels.  This has been such a beneficial activity for both Aaron and me.  I didn’t really expect to see the relationships that have developed between us and the dear people that we briefly visit every week.  Relationships or not, helping others is always a joy but getting to know our older ones on our route has been an extra blessing.

One of those men, Carl, has taken a real liking to Aaron.  Every week now, Carl gives Aaron some special items that he has set aside especially for “my buddy,” as he likes to call Aaron.  Aaron bends over laughing and rubbing his hands together when he sees Carl coming to the door with a little bucket full of shells and special rocks and pictures and all sorts of other random goodies…even a small lantern last week that Aaron has carried all over the house. 

A day or two after our delivery last week, Aaron asked if he could write a thank you note to Carl.  I was very happy that this was Aaron’s idea.  Soon Aaron was hunched over my desk, writing his thanks in his own words.  I smiled when I saw what Aaron wrote.

Well, that was short and to the point, right?

Aaron and I have had some discussions this week about showing kindness.  We always try to instill in Aaron the desire to be kind, no matter his feelings that sometimes overtake him and cause him to be too blunt or unfeeling.

This morning as we were getting ready to leave for our deliveries, Aaron asked about the thank you note.  I told him that it was on my desk.

He stood there looking at the card he had written.

“Mom,” he said, “I don’t want to give Carl the stuff one.  I want to write another one.”

I gave Aaron another blank card and he quickly wrote his note.  I was so touched when I saw his words.

I was blown away to see that Aaron got it.  He realized that kindness is what matters most, not stuff.  The stuff was a sign of Carl’s kindness, but kindness was the greater gift. 

Never ever underestimate the impact that kindness can have upon every single person that God puts into your life, whether for a moment or for a season or for a lifetime. 

Glamorless Glory

“Mom,” Aaron quietly said as he was getting ready for bed, “my toilet is stopped up.”

Aaron dreaded telling me this.  It was the third time in a few days that he had managed to stop up one of our toilets.

And this third time was NOT a charm, but instead was a huge mess.  I could have gotten Gary to do the dirty clean-up. 

“No,” I thought, “I can do this…yet again.”

I did think a few times that I really should have called Gary.  UGH!!

This was an opportunity for me to practice the patience that God is trying to teach me.  And to…once again…school Aaron on the proper treatment of our toilets. 

Why do these things happen so often at night when I am most tired?!

You know, being a caregiver of any sort can be exhausting.  Being a mom…a homemaker…the one responsible for the needs of whomever is under our care…has its many moments of humbling work.

Special needs or other health issues certainly add to the mix a new level of care.

And a new level of seemingly lowly service. 

Because face it, cleaning stopped-up toilets or throw up or wet bedding is not exactly something to write home about.

Even as Christ followers, we envision that the far-away mission field is more glorious and honoring than the dirty work we often do within the walls of our own home.

Not long after this third toilet episode, as I lay in bed reading, I felt compelled to check the FB page of my favorite author, Dale Davis.

His son had posted this piece.  I hope you will read it slowly and fully.

“When Mary was not nursing her son, she placed Him in an unused feeding trough (of wood or stone) right next to her…But a feeding trough! Let us never be surprised at the humility of God. The Westminster Shorter Catechism asks (Question 27) Wherein did Christ’s humiliation consist? Its answer begins: ‘Christ’s humiliation consisted in his being born, and that in a low condition…’ Its scriptural proof text for that ‘low condition’ is Luke 2:7. In a feeding trough, needing a mother’s breast and a change of diaper. How very incarnate the incarnation is! And yet what encouragement is here. For if Christ stoops so low, to such a ‘common’ level, does this not sanctify all that seems common and ordinary and unimpressive in the lives of His people? To be quaint and go back a few years–the weaver laboring at his loom, the farmer putting up hay, the mother cleaning her oven, or the teacher tutoring her ‘slower’ student in reading, the accountant preparing tax returns, the pastor reading in his study, the doctor diagnosing a perplexed patient. Jesus’ feeding trough suffuses all the glamorlessness of our callings with a touch of His humble glory.” (Dale Ralph Davis, “Luke 1-13: The Year of the Lord’s Favor”, pp. 46-47)

Tears slid down my cheeks.  For Christ, who stooped so low to be born in a dirty animal cave, and laid in a feeding trough, does sanctify and will honor the grimy and the mundane work that I do…even if I do not see the results of it.

God has always chosen to use the less than exciting places and people and moments in order to draw attention to His glory.

Jesus’ mother, Mary, was a very young teenager in a town that was looked down upon by everyone.  She and Joseph were poor and unknown.  They were no doubt the subject of malicious gossip because of Mary’s pregnancy.  Then Jesus was born in the humblest of places with no great fanfare.  Mary and Joseph had to escape to Egypt in order to survive Herod’s wrath. 

And all through Jesus’ ministry we see Him using the most common people in the simplest of places in order to proclaim His message.

How can I wonder if He is doing the same with and through me? 

I have no doubt that many of you are feeling like me so many times – like I am in a rut of caregiving and for WHAT?

But may we not allow the allure of the world’s values concerning glamor to be ours.

May the touch of God’s humble glory turn our glamorless callings into moments of praise and joy.

And may we be grateful for every stopped-up toilet as we see it through God’s eyes…an opportunity to share in His humility and to give Him glory. 

Choosing to See

I was sitting on our couch near our Christmas tree a few days before our kids were going to arrive when I suddenly saw that one strand of the lights had gone out. 

“Oh bother!” I thought as I got up to look closer.  “How does that even happen?”

I decided to just let it go.  It was so close to Christmas and the last thing I wanted to do was remove that string of lights and try to place a new one amid all the other decorations. 

Yet every time I walked into the living room, where the tree prominently stood, this is what I saw.

I saw the missing lights.  I saw the dark space. 

This is what I wanted to see. 

But no, my eyes were inevitably drawn to the area where the lights were missing.  Every.  Time.

Things with Aaron have been a little tough lately.  Actually, a lot tough.

Aaron has shown more than his average share of anger.  He can put a whole new spin on the concept of being angry. 

Many of his seizure meds list anger and other behaviors as possible side effects.  One of those med dosages was recently increased.  So, there’s that.

Then there is his autism, with or without the interference of his medicines.  His structured life was becoming more unstructured as the holidays loomed on his horizon. 

And years of seizures have done untold damage to his brain and to his ability to function in our world.

Gary and I know all this but living with his outbursts of anger is at times more than difficult.  His shattered supper plate full of lasagna, or the hole in his wall, are just two examples that can attest to the stress we have been under.

This morning, as I am slowly finishing my study of the book of Deuteronomy, I was reading Moses’ blessing to the tribe of Joseph in chapter 33.  God promised, through Moses, to give the people of Joseph “choice things…best things.”  The Hebrew word here means things of highest quality.

Then in verse 16, God said, “…and the favor of Him who dwelt in the bush.”

Remember Moses and the burning bush in Exodus 3?  God spoke to Moses in the bush that was burning…the bush that had attracted the attention of Moses as he shepherded his father-in-law’s sheep in the desert wilderness. 

There was God, burning bright in that bush, and telling Moses that this was holy ground.  Telling Moses that He had seen the affliction of Israel, and of His plan to use Moses to rescue the people out of Egypt.

But what impressed me about all of this was the fact that Moses was in a wilderness place, a place of severe hardship, when God spoke to him out of the bright burning bush. 

Moses had been banished from all he knew in Egypt.  He was running for his life when he ended up in the desolate wilderness.  Now he was a lowly shepherd of sheep that weren’t even his.

How easy it would have been for Moses to look at all the darkness in his life…to have his eyes drawn away from God’s glory in the burning bush to focus once again on his dismal circumstances. 

But God, despite the early reluctance of Moses, promised to go with and before and all around Moses.  He urged Moses to look at His glory, the glory that shone in the burning bush, and not at his dark and scary surroundings. 

It’s tough to live with and care for a child with special needs of any kind.  To live with Aaron, a very verbal adult, when he is angry is exhausting at times.  It’s not something I like to display or talk a lot about, but this part of Aaron is a very real part of our lives. 

I think many of us have those areas of our lives that we want to keep more or less hidden.  I’m very thankful for family and friends that I can confide in…those that I know pray for us.  There are ways that I know I need to be more open.  Maybe that will give others the courage to do the same.

Life is just hard right now on so many levels for all of us.  Satan really wants to discourage and defeat us in whatever way he can. 

But I want to look at this life we live and see God’s glory, His hand, His light over every bit of it.  I don’t want to focus on that dark part. 

I want to live under the knowledge that as God’s child, I am living in “the favor of Him who dwelt in the bush.”

THAT God of Moses is also MY God.

I can focus on His promises to me, and even in the darker times I can make the choice to see His light…the light that shines brighter than my dark.

Secret Things

If there is ever a time that it’s OK to keep secrets from each other, it’s now, at Christmas.  We buy gifts and then try to find the best hiding places around the house so that little…or big…snoops don’t find them.  We rush to grab that delivered box off the porch before our husband or child grabs it first.  It’s fun and exciting and perfectly allowed.

Then we must wrap the gift when prying eyes won’t see what it is.  I used to love stacking our children’s wrapped gifts in their individual piles and having them put their own gifts under the tree.  There was lots of shaking and guessing going on while they worked.  It was so much fun!  I knew the answers to their many questions, but I kept it to myself as I watched them wonder what was in each box. 

Last year, as Gary and I sat by our tree, Aaron joined us.  It wasn’t long before he was on his knees in front of the tree, taking out boxes to see which ones were for him.  He went through that ageless process of trying to guess the content of the gifts that bore his name.  And I went through the same ageless process of telling him that he must wait for the answer.

You know, God has secrets, too.  I just read about that fact this morning.  Deuteronomy 29:29 says, “The secret things belong to the Lord our God…”

There are things that God keeps to Himself, things about my life and about His doings in my life.  I don’t always understand why God orders my life in the ways that He does.  I don’t always know what’s in each box that ends up on the front porch of my life.  

And perhaps more importantly, I don’t often understand the “why” of some of the gifts that God gives.  In fact, there are things that I wouldn’t even classify as a gift in many ways.  A gift should be fun and wanted and needed, right?

I think of Aaron, of what a gift it was when after five years of marriage God allowed me to finally be pregnant.  Of the immense joy I felt as I held my little baby son 37 years ago, feeling like the most blessed woman in the history of the world.  Of watching him grow, smart as a whip and cute as a button.  Then the sudden huge seizure when he was in the first grade, the years of medicines and tests and doctors and still seizures.  The unexplained behaviors that manifested more and more as he got older, that set him apart from his siblings and his peers.  The diagnosis of autism, the challenges of his anger and his very particular way of conducting his life.  The forever care that he needs and the way that this impacts Gary and me now in our older years.  The questions about his future, and ours.

But on the hard days, in the sadness of seizures and the frustrations of autism, I have a choice to make about this gift that God has given me.  I can question it, I can resent it, I can let it make me bitter.

Or I can look beyond the gift into the heart of the Giver and know that He only has my good…and Aaron’s good…in His loving heart.  God has some secrets that only He knows about concerning Aaron and his life, and therefore mine.  I don’t need to know God’s reasons before I exercise trust in Him.  I just need to know Him.  Period.

When I grasp that concept…and so often I don’t…then I can experience some other gifts that God has given me. 

Peace.

Joy.

Contentment.

Those attitudes, those gifts, come and go with me. 

“What IS this, God?” I can imagine me asking Him as I shake the box.

“Go ahead and open it,” He responds.

“But I didn’t ask for this,” I tell Him as I see what’s inside.

“No,” he lovingly says.  “But I know that you need this very thing.”

“Why?!” I ask through my tears.

“Oh,” he answers, “that is a secret for only Me to know right now.  Someday I will let you in on the secret, but not today.”

“But…” I so often begin.

And God answers:

“Every good thing given and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shifting shadow.”  (James 1:17)

Like the old hymn writer said:

And we wonder why the test when we try to do our best, but we’ll understand it better by and by. 

By and by, when the morning comes,

When the saints of God are gathered home,

We’ll tell the story how we’ve overcome

For we’ll understand it better by and by.

The Other Side

 Aaron recently had a tooth pulled and an implant inserted.  He’s really done well with the whole procedure and with healing, as far as we can tell.  But as is the case in every single tiny part of Aaron’s life, autism rules. 

I mean, come on, this is the guy who won’t get up from a program until he watches the credits.  Who, if he has multiple music CD’s from the same artist, will only play them in the order of their production date.  Who will not start eating his popcorn at the theater until the movie we came to watch has actually started.   Who lays his special greeting cards on the bed at night while he reads, just like this.

Who keeps a log book of the time he goes to bed every night and the time he gets up in the morning. 

And who…get this…will only chew on one side of his mouth.  And you can probably guess which side that is.  The side which had the extraction and implant, OF COURSE!!!

This was a huge reason that my stress level was so high as I thought about his recovery.  Gary and I have coached Aaron and encouraged Aaron and demonstrated to Aaron and pled with Aaron to please…just PLEASE…chew on the OTHER side of his mouth.

“I don’t LIKE chewing on that other side,” he asserted over and over.

“So start early and get used to it!” we declared.

“But I can’t TASTE on that other side,” he told us over and over.

Silly parents.

Thinking we could even remotely win this battle was as crazy as…well, as expecting Aaron to chew on the other side of his mouth.

For Aaron…for anyone with autism…there is basically no other side to any matter.  There is one side…one way…to do and to see everything. 

Things came to a head last Wednesday night.  I had fixed Chicken Fajita Soup.  Aaron had eaten and enjoyed this soup in the past, but that was before he was being tormented with all this tooth business.  He was unhappy with the soup.  He was unhappy with me for fixing the soup and for insisting that he eat some soup.  Aaron’s unhappy led to my unhappy. 

That was one side of the matter.  The other side is that Aaron was looking forward to going on our Meals on Wheels route the next day and finally getting to eat out.  We were going to his favorite Mexican restaurant to see his favorite server and eat some soft enchiladas and of course to scarf down a side salad with no croutons and with TWO ranch dressings!

But instead, he had two seizures in the early morning hours.  He stayed home with Gary while I went on our route.  I felt sad for Aaron, but honestly, I needed that alone time.  The previous night had been rough.  I had not gone through Aaron’s normal bedtime routine because I was just so tired on every level.  Instead, we simply said a quick goodnight and I sat at my desk reading some Psalms and praying. 

Those are the times that I do not feel the joy of being Aaron’s mother but instead feel overwhelmed with the burden of caregiving.

I could feel my burden being lightened as I delivered the meals to my elderly clients that morning.  I pulled up to a new client’s house.  It was only my second time to take R. a meal.  She slowly came to the door with her walker.  We talked for a minute and then she began to tell me about her husband who had died a few years earlier.  She had been his caregiver for years before his death.  I was able to share with her some things about Aaron, whom she remembered from the week before.  I felt a bond with her, this new little friend who smiled when I told her that she didn’t look like she was 91 years old.   But then she talked about how lonely she was, and how she felt like she had no purpose…that she just existed.  And I told her that she did have a purpose in God’s eyes and how she had just encouraged me.

I had to run on and deliver more meals.  When I went to C’s house, he immediately asked about Aaron.  He had some things to give to Aaron.  He handed me a plastic pumpkin that was loaded with stickers and rocks that he had painted with Aaron’s name, along with several other items.  I thanked him over and over, and he told me that this was his ministry now since he couldn’t get out like he used to do. 

I told him that his words reminded me of my visit with R…of how she felt useless and with no purpose, but how we all have a purpose in God’s eyes. 

“What’s her name?” he asked.  “I’ll paint her a rock!”

I told him her name and he spelled it to be sure he had it right.  Then he said that his aunt had that first name, and how she lived a few blocks over…that she was alone and was 91 years old.

“That sounds like my new client,” I told him.

He gave me his aunt’s last name. 

And wouldn’t you know it?  His aunt is the new client that I had just talked to, who is so lonely and sad.  He said he would call her and visit with her.

This was a sweet gift to me from God, this reaching down and orchestrating the encouragement that our three hearts needed. 

For R and C were not the only ones who needed that touch from God on that morning.  I needed it, too. 

Yes, I could walk and drive and later go out to eat with Aaron.  I got to go home to a loving husband and live in the purpose that God has given me at this point in my life.

But sometimes God’s purpose for me is not easy, yet it IS all too easy to chafe under the yoke instead of remembering that God has said His yoke is easy when I wear it for Him. 

That’s the other side of God.  He teaches us so much under the stresses and burdens of the lives we live. 

He equips us for the life He has planned for us.

And He surprises us with sweet blessings when, and how, we least expect it. 

See My Hurt?

Aaron recently had a tooth that was hurting him so much that he asked me to hurry and call our dentist so he could look at it.  For Aaron to want to go to the dentist showed me that he was truly in pain.  Our dentist referred Aaron to our endodontist, who confirmed what the dentist thought…that Aaron’s tooth was probably cracked way down in the root, infected, and would need to be pulled. 

Aaron was fascinated to look at the x-ray that the endodontist showed him.  You could see all the dark areas of infection very clearly.  Dr. Turner explained to Aaron that this was why his tooth hurt so much. 

Our next appointment was with an oral surgeon, the same one who had removed Aaron’s back molar near this infected tooth.  That molar had fractured during a drop seizure when Aaron’s face had hit a cement floor.

At first Aaron was pensive and tired:

Then he became silly as we waited for the doctor (look at his watch! 😊):

Dr. Cole finally arrived and examined Aaron’s hurting tooth.  He put up the x-rays that were taken in his office a few minutes earlier.

Aaron’s eyes darted to the x-rays.  He studied them for a few seconds.

“Can you see my hurt?” he asked.

Dr. Cole was a little confused.  He said that he couldn’t exactly see the crack but that they knew it was there.

“But can you see my hurt?” Aaron asked again.

I knew what Aaron meant.  He wondered if Dr. Cole could see the dark area of infection that was visible on his other x-rays.  These looked different and Aaron was concerned that Dr. Cole couldn’t see his hurt. 

I explained to the doctor what Aaron meant and then he understood. 

But Aaron’s way of asking about his tooth…his hurt…was SO Aaron and so touching, somehow.

I’ve thought a lot about seeing hurt, not only as it relates to Aaron but to others all around us as well. 

One day last week when I picked him up at his day group, he had just had a seizure before I got there.  He was laying on a booth seat when he had the seizure and so he fell off the seat, onto the floor.  I went in and there he lay on the cement floor.  One of the very kind supervisors actually got on the floor with Aaron as we tried to wake him up.  It took awhile before Aaron was awake enough to get off the floor, but it took some doing to get out of that tight area.  Later that night, Aaron showed us a couple scuffed places on his back.  Thankfully that was the only evidence we saw of his seizure…that, and his bitten tongue.

That was a hurt I could see.  Him lying on the floor, having a difficult time communicating when he woke up, and then the areas on his back that hurt, were all visible to us.

But how many times does Aaron, or any of us, have hurts which others can’t see?

For me, I hurt when Aaron has seizures.  I hurt when he talks about wanting a girlfriend or wanting to get married. 

Or when his meds make him very sleepy, and I wish he wasn’t so drugged:

Yet those hurts are ones I don’t want Aaron to see and so I hide them as best I can from him, and even from others.

How about you?  Do you have hurts you hide from the world, or even from those closest to you?

I think we all do.  I know I do. 

Why do we hide our hurts?  Maybe we don’t want others to feel sorry for us.  Maybe we feel we must be strong in front of everyone.  Maybe we’re embarrassed.  Maybe we can’t bear to share the pain and hurt we feel so we try to bury it.

But there is One Who sees every hurt we carry…Who understands every pain we feel…Who is wanting us to turn to Him and let Him take and carry our burdens. 

“Come to Me, all who are weary and heavy-laden, and I will give you rest.”  (Matthew 11:28)

Here is another way to say it:

“Come to Me, all who are beaten down and burdened down, and I will give you rest.”  (Matthew 11:28)

 I think of the old hymn, Tell It To Jesus:

Are you weary, are you heavy hearted?

Tell it to Jesus, tell it to Jesus.

Are you grieving over joys departed?

Tell it to Jesus alone.

Tell it to Jesus, tell it to Jesus,

He is a Friend that’s well known.

You’ve no other such a friend or brother,

Tell it to Jesus alone.

Do the tears flow down your cheeks unbidden?

Tell it to Jesus, tell it to Jesus.

Have you sins that to men’s eyes are hidden?

Tell it to Jesus alone.

Do you fear the gathering clouds of sorrow?

Tell it to Jesus, tell it to Jesus.

Are you anxious what shall be tomorrow?

Tell it to Jesus alone.

Are you troubled at the thought of dying?

Tell it to Jesus, tell it to Jesus.

For Christ’s coming kingdom are you sighing?

Tell it to Jesus alone.

If we can’t share our hurt and burden with anyone else, we can still share it with Jesus.  But sharing our hurts with those we trust, those who will pray for and with us, is also a huge help in relieving our pain. 

There is way too much hurt today in this crazy world…way too many beaten and burdened down people.  I pray that I will look at everyone around me and wonder if they are saying, “Do you see my hurt?”

And even if I can’t see it, that I will be kind and loving to everyone, knowing that they may be carrying a huge hurt that I know nothing about.

May I see and love through the eyes of Jesus. 

And may I let that same Jesus carry my unseen hurts.