Category: Special Needs Adults

A Good Place with Each Other

Aaron has a very special friend at his day group, Paradigm.  Her name is Victoria.  From the time Victoria first started attending Paradigm, she and Aaron just hit it off.  They became fast friends. 

Developing and maintaining relationships can be very tricky and difficult for Aaron.  We understand Aaron better than anyone does but even with us he can be full of relational surprises.  The tone of our voice…a particular hand motion…not following in his rigid demands…   There are so many ways that Aaron can suddenly become upset and angry with those of us who know him best.  Imagine the pitfalls of combining all the special needs and personalities in his day group!

But there is something very real and incredibly sweet about his relationship with Victoria.  She squeals and jumps with delight when he walks into Paradigm.  She misses him terribly when he isn’t there. 

And Aaron…well, Aaron (as far as we know!) tolerates her noises because he sees how much she cares for him.  He even shows empathy when a storm comes and Victoria is very scared, or when she is sad about something. 

Who can explain love? 

One thing I do know is that all of us, on whatever level we operate, want and need to be loved.

Aaron is an open book as he attempts to analyze and understand his feelings for Victoria.

One day, after an altercation with someone at Paradigm, Aaron was pondering Victoria’s reaction to that person.

“Mom, Victoria told N not to bother her boyfriend.  Am I the boyfriend?”

Another time, as he talked to me about Victoria, he revealed more of his thoughts.

“Mom, would she be happy for me to tell her I think she’s a girlfriend?”

Gary and I have tried over the years to stress the relationship of friendship rather than boyfriend/girlfriend.  But no attempts on our part to redirect his thinking on this can squelch the feelings in his heart. 

“Mom,” he commented one day, “Victoria and I seem to match each other.”

Who can argue with that? 

Then one day came this nugget of hilarious wisdom.

“Mom, every time I burp, Victoria laughs at me.  And when I make the farting noise like this, Victoria makes it too.  I think we’re right for each other!”

Love is a many splendored thing, right?  😊

Recently, our friend Barb from Paradigm sent some pictures she took as she walked with Aaron and Victoria to the popcorn shop nearby.  As Barb said, this was so genuine and sweet.

I cried when I looked at them. 

And I thought of another comment that Aaron had made about their relationship.

“Mom, can you tell that Victoria and I have a good place with each other?”

Yes, Aaron. 

And I think it’s a very good place to be.

A Donut With a Side of Autism

Yesterday our friend, Karlea, tagged me in a FB post from our nearby donut shop.  Paradise Donuts was reminding all their customers that it was National Donut Day, and that they were giving everyone a FREE donut.  Karlea just knew that Aaron would love stopping in for a donut.  Soon I was explaining National Donut Day to Aaron, asking him if he wanted to stop on our way to his day group for a donut.  YAY!!

NOT yay.

I must backtrack a bit to explain.  Nearly every day at Paradigm (Aaron’s day group), Antoine or another staff will take Aaron to the nearby QuikTrip.  I send money with Aaron, and he is able to buy something to eat and drink.  He absolutely loves this small outing.  His QuikTrip visit is ingrained into his routine now.

Back to yesterday.

Me:  Aaron, today is National Donut Day.  Paradise Donuts is giving away a free donut to everyone that comes in.  Would you like to stop there on our way to Paradigm?  We can get a free donut!

Aaron:  No.

Me:  What?  You don’t want a donut?  A FREE donut?!

Aaron (a little more emphatically):  No!

Me:  Why don’t you want a donut?

Aaron:  I want to go to QuikTrip.

Me:  I’m still sending money and you can still go to QuikTrip.

Aaron:  I like Antoine taking me to QuikTrip for food.

Me:  Antoine will still take you to QuikTrip for food. 

Aaron:  I like QuikTrip food, NOT a donut!

Me:  But you like donuts.  Just a few days ago you were happy that we stopped to get donuts.

Aaron:  I like Antoine taking me to QuikTrip more than you taking me for a donut!

These conversations usually lead to personal insults as Aaron attempts to drive home the fact that on Paradigm days…almost always…QuikTrip is what he does and where he goes for food and fun. 

Nothing will deter him from his routine. 

Not even a donut.

Not with Mom.

I dropped it like a hot donut and took Aaron to Paradigm.

Later, when I picked Aaron up, he told me about his day.

Aaron:  Mom, they had donuts at Paradigm for donut day.

Me:  Oh, that’s fun!  Did you eat one?

Aaron:  No.

Me:  You didn’t eat a donut?!

Aaron:  No.

Me:  Why not?!

Aaron:  I didn’t want one.  I wanted to go to QuikTrip.

I decided to just drop it.  Aaron didn’t see me shaking my head.

After a few moments of silence:

Aaron:  Antoine took me to QuikTrip!

Me:  Good!  What did you buy today?

Aaron:  I bought two donuts.

There are not enough letter combinations in the English alphabet for me to form enough words to voice what I was thinking and feeling and wanting to say at that moment.

Just as well.

Laughter is far better than lectures during these times.

BUT I WANT A DONUT!!!!!

UNCLE Aaron!!

We got the BEST news on Sunday night. I had been talking to our daughter, Andrea, for over two hours. We were winding things down when she asked if I would go get Gary…that she and Kyle had something to show him on Facetime…and I just assumed it was something they wanted him to see about the big door installation they had worked on when we were there last month.

We were soon chatting when Andrea said they had a picture to show us, which she then texted to me and Gary. Here is the totally adorable picture she sent:

And oh my goodness, the surprise was real! I whooped and hollered, and we laughed and I cried and it was so wonderful!! Our first grandchild!!

We got our son, Andrew, on Facetime and his reaction was equally fun.

We wondered about when to tell Aaron. For the longest time he has asked Andrea when she is going to have a baby. I have told him not to ask that question because it’s personal, but none of that matters to Aaron one bit. He has continued to ask anyway, and she always handles it with humor and patience.

Soon we heard him coming loudly down the stairs. He was surprised to see everyone on the phone screen. I knew this would be the time to tell him.

“Aaron,” I said, “guess what? Andrea is going to have a baby!”

He grinned a huge grin. Then he bent over at his waist and rubbed his hands quickly together while he laughed and laughed. He was thrilled! His reaction tickled us all to pieces.

“You’re going to be Uncle Aaron!!” we told him.

He laughed again as he absorbed that news.

“Andrea!!” he exclaimed, “does that mean you’re going to be fat?”

Andrea was her gracious self while I reminded Aaron for the umpteenth time that you do NOT say a pregnant woman is fat…that she is pregnant, not fat.

Can you tell this isn’t the first time he has made that comment?

Yesterday, Aaron and I were at our neighbor’s house. Suddenly Aaron leaned in to say something to Amanda while he softly rubbed his hands together.

“My sister has a baby in her stomach,” he slowly began, as if in awe. “And the baby is too little to tell if it’s a boy or a girl.”

He spoke softly, not with the exuberance of the night before. It was as if he was sharing the most amazing fact…which it really is.

It was so precious and sweet. Amanda’s face was beaming, as was mine, and Aaron knew that he had shared something very special as he saw our reactions.

And we knew, as we saw his look of wonder and heard the same in his soft voice, that Aaron was getting it.

“Aaron,” Amanda said, “you’re going to be an uncle!”

“I’ll be an uncle!!” he repeated.

Uncle Aaron!

I like the ring of it…and I think Aaron does, too.

Aaron’s Note

I have another funny note story to share.

When we were in Houston last month with our daughter and son-in-law, we also got to see our other son, Andrew.  He was in town because there was an NHRA drag race there, and he works on one of the teams.  

Andrew was able to come over to Kyle and Andrea’s one evening for supper.  While he was there, Aaron ran inside and came back with something for Andrew.  It was a pack of Juicy Fruit gum.  Random, I know, but Aaron loves giving things away and this is what he grabbed for his brother. 

This past Monday morning we got a text from Andrew.  He was getting ready to leave for the track in Richmond.  He sent this picture:

“Tell Aaron I’ve been chewing his Juicy Fruit every morning when I leave for the track.  I’m almost out.  Guess he needs to send more.”  😊

Aaron jumped on that in a flash.  He pulled out his three-pack of unopened Juicy Fruit gum and said he wanted to send that to Andrew.

“Mom,” he directed, “you put it in a box, and I’ll sign a note.”

The plan was made!

I got the box, placed the gum inside, and gave Aaron a piece of paper for him to write his note. 

This is what I later found. 

How I laughed!  But not in front of Aaron. 

Remember my last blog about the note he wrote to Cody?  Here was another note, this one to his brother, and this one also flat and factual with nothing personal added.  Nothing endearing.  Not even a “Love, Aaron” to be found.

Yet this note IS very endearing because it is so very Aaron.  I could have dictated to Aaron what to say, but then it wouldn’t be Aaron’s words from Aaron’s heart and Aaron’s unique ways. 

And those unique ways are what make Aaron endearing in his own right. 

Believe me, there are plenty of times that Aaron’s words and ways are anything but endearing.  But these moments that are totally Aaron are moments that make us smile and make us thankful that we can share in his very special ways.   

What’s In Your Shoe?

Aaron has developed a special relationship with the nurse practitioner at his day group.  Megan is gentle and kind with Aaron.  She listens to his endless talking and shows interest in his latest interest…interests that are more like obsessions on Aaron’s part.

Right now, Aaron is all about space and planets and galaxies and moons and stars and the sun and YouTube videos about all of these and more.

Megan has told her son, Cody, about Aaron and shares with him some of the space “facts” that Aaron so happily shares.  Cody has written Aaron three notes, thanking Aaron for sharing what he’s learned and for telling him about the YouTube videos he should watch.  It’s really very sweet.

Aaron LOVES these personal notes.  The first note made it home with Aaron, and he happily shared it with us. 

The second note, however, was somehow lost.  Aaron thinks it must have fallen out of his pocket.  He was very sad to have lost that note.

Two days ago, after I picked Aaron up from his day group, our van started over-heating.  Gary met us and took the van to the shop while I followed in his truck.  In all the excitement, Aaron forgot to mention that he had another note from Cody.

 Aaron and I sat in the waiting room at the shop while Gary talked to the manager.  Suddenly, Aaron took off his shoe.

“Aaron,” I said, “don’t take off your shoes in here.  Wait until we get home.”

“But Mom,” he answered, “I wanted to show you this.”

He reached into his shoe and then handed me a damp folded piece of paper, which I wanted to hand back.  Yuck!  😊

“Cody wrote me another note, so I put it in my shoe because I didn’t want to lose it!” Aaron explained.

I read the note while Aaron broadly grinned.  Once again, Cody was thanking Aaron for sharing info about Saturn and the beautiful rings.  I finished reading, and then Aaron refolded the note before putting it back in his shoe for the ride home. 

Aaron talked and talked about that note as we went about our evening.  So, I finally told Aaron that he should write a note back to Cody.  He thought about this for awhile and then went to his room.  Before long, he handed me his note that he had written.  Now it was my turn to grin broadly.

Look at the first planet.  Mercenary!  😊 😊

But even funnier is the fact that his note is just full of facts.  Nothing personal at all. 

This is SO Aaron! 

When he talks to his brother or sister on the phone, this is exactly what he does.  He never ever asks them how they are doing or what is going on in their lives.  He instantly launches into his latest book or game or movie.  He loves facts and information and trivia.

It’s why he loves reading his Handy Answer Books on different subjects but has never liked stories that involve dialogue and relationships.

This element of autism is exhibited in every area of Aaron’s life.  When he and I went to pick up our van yesterday, Aaron immediately started telling the employee there all about Saturn.  I finished paying just as Aaron decided to move on to Venus, but I ushered him out the door as I told him that on our next visit he could give the Venus lecture.  I noticed the huge grin on the face of the waiting customer as we left. 

Tomorrow Aaron will take Cody’s note to Megan.  We are putting the note in an envelope.  I don’t think an envelope will fit into Aaron’s shoe.  I hope not, for Cody’s sake.

I’m sure his mom has a pair of latex gloves he can wear, though.  😊

Little Huge Gifts For Mom

Last night Aaron and I were headed downstairs to watch a couple shows before bed.  This is our nighttime ritual.  He gathered his blanket, his drink, his new bag of cheese cubes, and his empty bowl in which his cheese cubes would soon be poured. 

Speaking of ritual, Aaron’s life is full of those.  Something as simple as putting his blanket over his outstretched legs requires the ottoman to be just right, his legs on the ottoman while still wearing his slippers AND slipper socks, and then the blanket shaken several times to get out as many wrinkles as possible and to be in just the perfect position to then be pulled up over his legs and onto his lap.  I always cringe when he realizes he has forgotten something because the blanket is thrown back, and the process must be repeated. All of this must occur before we start watching our program. 

Sigh.

After he was sufficiently settled last night, he opened his bag of sharp cheddar cheese cubes and poured them into his bowl.  Aaron will not eat out of the bag.  He must have a bowl for everything, including a bowl for chip crumbs…croissant flakes, as he calls them…the crackers he doesn’t like in his Chex Mix…his Red Hots…peanut shells…  The list is endless. 

Soon our show was on and Aaron was allowed, in his mind, to begin eating his cheese cubes…but only after the opening song was finished.  One does not actually start eating, my friends, until the program has actually begun. 

The store only had sharp cheddar cheese cubes when we went to buy them.  Aaron usually gets mild cheddar.

“So do you like those sharp cheddar cheese cubes, Aaron?” I asked.

“YEAH!!” he declared happily.  “They’re GOOD!”

Soon, without saying a word, he reached over and placed this lone cheese cube beside me.  It was his gift to me.

I’ll be honest.  Sometimes eating food that Aaron has handled can be a challenge for me.  I know where those hands of his may have been.  I see how he puts food into his mouth with those same fingers that are now on the food he wants to give me. 

But how could I say no to this little gift that came straight from his heart?

To Aaron, this little cheese cube comprised a huge gift for Mom.

“Awwww, Aaron, thank you!” I told him as I looked down at the little cheese cube. 

“Oh, Lord, please protect me,” I also added silently as I ate the cheese.   😊

Aaron rubbed his hands together and gave his guttural chuckle as I ate the cheese. 

He was even happier to give me that gift than I was to receive it.

What a small little thing a cube of cheese is!  But what a huge deal it was to Aaron to give it and to watch me receive it with thankfulness.

This long-term mothering of Aaron is full of those sorts of gifts, but often if I’m not careful I don’t see them as such.

I never planned to be actively mothering at this age.  I read that I am considered “elderly” now, though I don’t feel that way.  Yet numbers on paper say that I am.

How can I be this age and still going from morning to night mothering my grown child? 

But here I am, by God’s doing…and may I not ever forget that.  God has led me to this path, and I must trust Him as I walk each step. 

On this Mother’s Day I want to give to each of you who are still fully mothering in your older years a word of love and encouragement.  Whether you are mothering your own child or children, or your grandchildren, please know that your work is not unnoticed by God.  We honor Him by caring for the ones He has given us.

May we see each small milestone…each smile…every hug…and so many other small huge gifts as what they really are.

Gifts from God. 

Through our tears, our fears, our frustrations, our exhaustion, our envy of other’s lives…whatever we are going through – may we not miss those beautiful and small huge gifts around us from our children every day.

Go buy a bag of cheese cubes and have a very Happy Mother’s Day!

Another Trip to Texas

Two weeks ago today we were travelling down to Texas to see our kids.  Our “kid” Aaron went with us, somewhat compliantly until the morning we left.  The reality of actually leaving the house and his room and all his things was too much for him to handle gracefully. 

All during the packing process I encouraged him to downsize what he took.  For instance, I told him to take the one Handy Answer book he was reading…not five.  He won’t read five books in the next three years.  That’s because he will ONLY read at night before bed, a few pages, and nothing so far has ever changed that reality for him.  He agreed to this deal, but as I was putting something in one of his bags, I uncovered two extra Handy Answer books that he had hidden from me under some clothes.  I removed them, saying nothing.  He put them back, saying nothing.  HaHa!  We finally agreed on taking one extra book, which of course was never opened. 

We also let him use his money to buy a Nintendo game he had wanted.  He bought it two days before we left, but the game was in our possession until he walked into Kyle and Andrea’s house in Texas.  Call it bribery if you want, but we call it another of our clever survival tips for traveling with an autistic child.  Survival for us even more than Aaron.

Other than dragging Aaron kicking and screaming out of the house on the morning we left…not literally, but almost…he did great on this trip.  I’ll start my photo dump now. 

Happy Aaron blowing his straw wrapper on me at Quik Trip. 

Spending Easter morning at church with Kyle and Andrea.  A huge blessing!

Then giving Aaron the basket that Andrea made for him.  Sweet sister!

He helped Kyle gather sticks before their new fence was installed the next day.  Kyle is great about getting Aaron involved with activities. 

He fed the dogs every chance he got!

Our big outing was to NASA.  He was having a slow day physically and mentally, but he loves telling everyone about that day.

Our son, Andrew, was in town for an NHRA race.  He got to come over for dinner one night.  What a joy to have us all together, even briefly.

Gary, Andrea, and I went to the race on Saturday while Kyle stayed home with Aaron.

And on Sunday, their Monster Energy team won!!  Sadly, we were unable to be there that day.  ☹

I love the love that Andrea, Kyle, and Andrew show to Aaron.  I wish I had a picture of Kyle trying to teach Aaron to do push-ups while we were at the track. Or one of him the night we arrived giving Aaron the special game he bought him.  😊

The week was packed with much more, but I’ll end this now with a funny story:

Background:  For years my family has had fun with my association with cows, as in cow Patty.  I also go by Moo as much as Mom.  😂

On our way to Houston, we stopped at our favorite tourist center/rest stop in Oklahoma City.  Aaron was ecstatic that Gary told him he could buy me a little stuffed cow.

Aaron decided to explain his purchase to the clerk at the cash register.

Loudly.

“I’m buying this for my mom because she’s a COW!!”

I explained as best I could.

Then she pointed me to a bag of candy.

Cow Patties.  😂😂😂

Thanks for reading!  Have a wonderful weekend!

Feeding on Faithfulness

One of Aaron’s favorite things to do in all the world is to eat out at a restaurant.  The promise of eating out makes every doctor visit or dental procedure totally worth his time. 

Aaron might vary a little in what he will eat at the different restaurants that we visit, but always…if possible…he will order a side salad with “no croutons and two ranches.” 

And often he will order another of his favorites…French fries!

Not long ago, while he munched on his fries at lunch, he had an idea.

“Mom?” he asked, “can we make French fries?”

“I kind of made them last night in the air fryer,” I answered as I reminded him of the potato wedges that we had eaten.

“I didn’t see them that way,” he responded.

I smiled at Aaron’s response. 

He has, yet again, given me something to ponder.

A couple blogging friends mentioned Psalm 37 last week.  I decided to read slowly through that wonderful Psalm in the mornings after my regular Bible study.

Verse 3 jumped out at me.

“Trust in the Lord and do good; dwell in the land and cultivate faithfulness.”

Guess what the word ‘cultivate’ means?  It means to ‘feed on.’

Dwell in the land and feed on faithfulness.

‘Dwell’ can also mean ‘rest.’

The land is wherever God has put me. 

So, I am to rest where God has put me and feed on faithfulness.

That sounds pleasant at first glance.  But what if the place God has put me is less than ideal? 

What if it’s just downright hard?

Fact is, God didn’t say that I am to be faithful when my pasture is lush and green…when my place in life is fun and easy and fulfilling.

He just said to dwell there in the pasture where He has placed me…stay…rest.

And while there, feed on faithfulness.

Here I am, approaching the age that I used to think was REALLY old, and I am still in a large sense raising a child.  This time of my life was what I used to hear being referred to as having the time of my life. 

Empty nest and all that.

Hasn’t quite worked out that way for us.

But I can’t deny the fact that God didn’t qualify the type of land He would ordain for me.  He just told me to rest there.

And to feed on faithfulness.

You see, we can all be faithful where we are.  The form it takes is what sometimes trips us up.

Caring for Aaron, in all the shapes that caring takes, is me feeding on faithfulness.

But many times, I’m like Aaron as he compared the air fryer potato wedges to French fries.

I don’t see it that way.

I don’t see managing Aaron’s medicines, doctor visits, tons of paperwork, or driving him everywhere as having a lot to do with my faithfulness to God.

I most definitely get tangled up in tiredness and complaining as I work to keep him fed, active, happy, encouraged, and clean.

Sadness at seizures and frustration during behaviors jerk my emotions in all directions.

And as the days turn into weeks and the weeks into months and the months into years, it sure is easy to lose the sense of living in faithfulness to God.

Seems like I often compare my grass to others, and usually theirs is so much greener than mine.

Their feeding on faithfulness seems exciting and fun.

Mine?  Pretty dull and daily.

And often dirty. 

But something I’m learning…ever so slowly…is to look up to God when I feel like looking over to someone else’s land.  Keep my focus on my Shepherd and on the land He has given to me.

To see every tiring moment as an opportunity to trust Him, to do good, to rest in this place, and to feed on faithfulness.

To remind myself, at the end of another tiring day, that God smiles on my faithfulness. 

“I didn’t see it that way, God,” I often think.

“Oh, but I did, my dear,” God whispers. 

And I rest.

Remind Me That I Love You

Mornings for Aaron are definitely the time of day that he struggles the most.  It can really be hard for him to get out of his warm bed and face the day.  Not every morning is difficult, but let’s just say that for Aaron the majority of mornings do not have a right side of the bed.  Both sides are wrong!

Aaron realizes this about himself.  Therefore, sometimes he will tell me to give him a morning reminder that will hopefully help him to be cheerful.  The reminders are about something that the day will hold…something that he is looking forward to and so will encourage him to get up happily. 

For instance, he loves going to Meals on Wheels on Thursday mornings but sometimes he knows on Wednesday night that he may be grouchy the next day.

“Mom,” he says, “tomorrow morning if I don’t want to get out of bed just say Buster.’’

Buster is the little dog at one of our homes that Aaron loves to see and to pet.  And Buster loves seeing Aaron. 

Or on Valentine’s Day, when we were going to pick up roses to take to his day group friends, he knew the night before that he might be irritated about getting up.

“Mom,” he told me, “if I start getting mad in the morning just say roses.”

I love Aaron’s plan of action.  I know he truly does want to be nice in the mornings.  Sometimes his plan works, and well, other times it doesn’t.

One recent evening we were watching a favorite show.  Aaron was all comfy and relaxed on the couch, legs covered in his ever-present blanket, and enjoying a yummy snack.  He was the picture of contentment.

Such was not the case hours earlier as we worked to get Aaron out of bed and on his way for the day.  That morning he was the picture of frustration and anger.

As we sat on the couch enjoying our program, Aaron was filled with happiness.  He finally looked over at me.

“I love you, Mom,” he said.

The moment was genuine and so sweet.

“I love you too, Aaron,” I replied. 

Then he seemed to remember our unhappy morning.

“Tell me I said that in the morning when you’re getting me up,” he added.

His words were a stop-me-in-my-tracks moment.

How many times in my life have I been filled with contentment as things are going well?  Then it’s easy to tell God that I love Him.  And I mean it when I say those words to Him. 

But sometimes the bottom falls out. 

Gary and I had been married for five years before Aaron was born.  That positive pregnancy test was SO huge to us!  How thankful we were!  How full of love for God and His sweet blessing in our lives!

Now here we are, 37 years later, in a place we never dreamed we would be with Aaron. 

Seizures.  Autism.  Behaviors. 

Can I still lift my eyes to God and tell Him that I love Him?

Those warm fuzzy ecstatic moments of my first pregnancy are long gone. 

In their place are many moments of worry, sadness, frustration, and bone-wearying exhaustion.

But here’s the thing.  I know God in a deeply personal way. 

And I know that often His ways in my life are filled with heartache and pain so that I will grow to be more like Jesus.

God hasn’t changed one little bit.

But He calls me to change, and His word tells me that this change toward likeness in Christ will involve the hard things. 

Sometimes I have to will myself to remember all the reasons I have told God that I love Him.

And those reasons cannot be based on my circumstances that are happy and fun.

The reasons I love God are based on WHO He is…His character and His attributes.

I cannot base my love for God on how comfortable I am.

So, like Aaron, there are times in my life when I need to look at God and ask Him to remind me that I said I love Him.

Through my tears, fears, anger, hurt…through all the questions I have about God’s reasons and logic in my life…I must not lose my love for God.

Oh God, tomorrow…when things aren’t going too well, and I feel upset…remind me that I said I love You. 

Remind me that You are the same yesterday, today, and forever.

And remind me of how very much You love me, too. 

Don’t Try to Change Me!

The word “change” is not a welcome word to many who deal with the issues of autism. 

You can phrase that concept any way you want.

“Come on, just roll with the flow.”

“Be flexible!”

“Try it.  You’ll like it!”

I have told you how Aaron won’t eat his popcorn at the theater until the actual movie begins.  The commercials before the movie are NOT the movie.  Neither are the sometimes endless trailers that are then shown.  Trailers are NOT the movie!  Aaron will continually look down at his big tub of popcorn that he has placed on the floor beside his feet, waiting expectantly to dig in when finally THE movie begins.  Then he will pick up his popcorn and visibly relax as he begins to eat. 

Aaron does the same thing at home.  When we sit down to watch a show, he will lay his snack close to him, but he will not begin to eat it until the show actually begins.  He will sit through opening credits.  He will sit through a long intro such as Blue Bloods has.  You’re not going to fool Aaron.  He knows that these programs are tricky and that they have opening music that hasn’t played yet, so don’t EVEN try to get him to eat until all the preliminaries are over and done.  Ice cream may even start melting, but Aaron doesn’t care. 

Aaron has carried this “waiting for the actual event to start” idea over to his music that he listens to in the van.  This past Thursday we started on our way to pick up our food delivery for Meals on Wheels.  We had been listening to Brad Paisley.  I pushed the button to start the music.

Aaron pushed the button off.

I pushed the button back on.

“MOM!  I don’t want to listen to music right now!”

“I know you don’t, but I do,” I replied.

He pushed the button off.

I pushed the button back on.

“MOM!!” he protested, “I said I don’t want to listen to music!”

“It’s not just about you, Aaron,” I responded with more patience than I felt.  “I do want to listen to music.”

Aaron was still and quiet for a few seconds.  Then off went the button again. 

I sighed a very deep sigh.  My lungs are in such great shape, living with Aaron.

“Aaron,” I began, “you want to wait until we actually start delivering our meals before you turn on the music, right?”

“Yes,” he replied.

“But we can listen to music now.  It won’t hurt anything to do that,” I told him.

I pushed the button back on.

I could feel the pressure building in Aaron, just like my pressure cooker at home.

He pushed the button off.

“Mom,” he began, “uh…you know…uh…”

And thus began Aaron’s attempts to start a conversation under the guise of wanting to talk instead of listening to music.  I just decided to let it go.  Hey, that’s a song!  It should be my theme song!

Bless Aaron.  I know he can’t help it, but really…!

Later that afternoon, Aaron was very happy that Gary was going with us to Nellie’s Pond for a walk.  But there was that issue of Aaron wanting to sit in the front seat of the van because that’s where Aaron sits when I drive and he and I are usually in the van by ourselves so the front seat is his and that’s the way he likes it and that’s the way it should always be…..

“Mom!” he began as he was processing his plan, “I know.  Dad can ride in his truck and you and I can take the van!”

“No, no Aaron,” I said with a laugh, “that’s not the way it’s going to be.”

But Gary, in order to give Aaron a perfectly happy experience, sat in the back seat while I drove, and Aaron sat in his front seat.

Just the way it should be, in Aaron’s world.

And sometimes we do put ourselves into his world…actually, lots of times…so that he can relax and have total fun.

Walking through life with Aaron…balancing discipline with the rigidity of autism…is certainly an exercise in patience and wisdom. 

Gary and I do not possess either of those qualities in the abundance that is usually needed but I am so thankful that God gives and also forgives.

So often, too, I find that it is me who needs to do the most changing.  God knows that all too well!

I wonder how often I am the Aaron in God’s life.   😊