Category: Faithfulness

The Yo-Yo Life

Aaron had some seizures last night.  We think he only had two.  At least that’s all we heard.  But boy, is he ever out of it today!  It’s amazing how sometimes he bounces back quickly after seizures, and at other times he’s totally wiped out for a day or two.  I can only imagine what they do to his brain……physically, mentally, emotionally.

Throw in a dash of autism, stir the pot, and BOOM!!

Poor Aaron! 

It’s amazing, too, when you look at it in pictures.  Here is Aaron on Friday when I picked him up from his day group.   

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He had seen Spiderman, but even more important to him at that moment were the Sycamore seed pods he had found and couldn’t wait to show me……and later to show Gary.  Leave it to Aaron to find what to him is most unusual, but to us is very usual, and then to make sure that we see that object through his eyes.  He’s pretty cool that way.  Just look at the delight on his face!

He makes us stop and see things his way.  Sometimes it’s great fun…..and other times, it’s greatly frustrating. 

Anyway, compare Friday to today.  He got up late this morning, dreary and slow from the seizures.  He seems to have pulled a muscle in his right arm, which was hurting him.  But he saw the Sunday morning coupons and so readied his usual coupon area for the job he always does, seizures or not.

Except this morning his body just wouldn’t cooperate.  This is how he ended up, coupons and coffee untouched.

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A couple hours later we heard him getting off the couch.  He decided to cut the coupons and drink his coffee.  I checked on him shortly and here is what I found.

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It wasn’t another seizure.  He’s just very tired today from the ones last night.

He woke up again awhile later, ready once more to try clipping coupons.  I heated his very cold coffee, which he drank while he read the Sunday comics.  Then he asked for his fuzzy blanket and his fuzzy pillow, and wondered if he could lay on the big couch.  He was only down for a few minutes before realizing that he just wasn’t sleepy anymore, so he got up and began the coupons that had been waiting all this time. 

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I tell you all of this so you can catch a glimpse into how seizures affect both Aaron and us.  Our day revolves around Aaron’s needs when things are normal, but when he is having a rough day physically then we must stop what we have planned and be here for him.  Gary and I can tag team on a weekend like this, but when it happens during the week then I must often change my plans in order to be with Aaron.  And sometimes Aaron has missed fun days, like movie days at Paradigm or other events, because of his seizures.

These days and these pictures are also an example of how Aaron’s life is full of ups and of downs, as all of us have, but which he cannot control, be it from seizures or from behaviors.  We saw it very clearly while on vacation last week, which I hope to write more about later. 

Happy moments…..angry moments……sad moments……fun moments, are all wrapped up in Aaron.  This is why I think of myself, and so many others with similar issues, as Yo-Yo Parents.  We get jerked around a lot, that’s for sure, but must always remember that God is the one in control even when we feel like things are out of control.  He orders our steps, including the ups and even the downs. 

And God comforts our hearts when we see the child we love having so many issues to overcome. 

I have so many reasons for which to be thankful, but none more than the fact that the God I know and love also knows and loves me, and Gary, and most definitely our Aaron. 

 

The Plans I Have For You

I think most of the nation has had a milder than usual winter.  Here in Kansas, we really haven’t had a winter to speak of.  Trees were budding, bushes were bearing leaves, and perennials were poking out of the ground in February!

I shouldn’t have been surprised…..but I was surprised……to walk past my front flower bed one day in February and look down to see that my Salvia had made an appearance.  There were fresh little green leaves sticking up through the ground, unaware that the month was only February.  Salvia don’t look at calendars.  They only respond to the warmth of the sun and the mildness of the nights.

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Something occurs deep underground, in their roots, that awakens them and urges them to respond.  It’s God’s miracle of growth, not tied to the month of the year but to the environment around them.  And even though that environment can at times be harsh still at this time of year……at any time of year, really……their roots stir under the right conditions and so they grow.

I was tempted on that February day to lean over and clear off all the dead leaves that looked like a hindrance to the Salvia’s growth.  But I left the leaves for insulation against the cold nights, and the snow that I knew could still come.

I’ve watched the progress of my Salvia over the past few weeks.  The picture from this morning shows how much growth has occurred.  The dead leaves, old mulch, and other clutter hasn’t prohibited my Salvia’s growth at all.  The perennial nature of this flower is alive and well as those new leaves push through all the mess around them.  It just faithfully grows and grows, quietly but strongly flourishing.

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This morning in my quiet time with the Lord I read some verses that are very familiar to many of us.  They are words spoken by God to the nation of Israel, recorded by the prophet Jeremiah.

“For I know the plans that I have for you, declares the Lord, plans for welfare and not for calamity, to give you a future and a hope.  Then you will call upon Me and come and pray to Me, and I will listen to you.  You will seek Me and find Me when you search for Me with all your heart.”   Jeremiah 29:11-13

These are verses of such encouragement and hope for all believers, not just for the nation of Israel during the time of Jeremiah.  But do you know where Israel was when God spoke these words to them?  They were being held captive in Babylon.  They were not in their home country, living freely, but were held as captive slaves in a harsh land far from all they knew and loved.

In the ten verses preceding these verses above, God had given some instructions to His chosen people through a letter written by Jeremiah and delivered to the exiles in Babylon.  God told the people to settle in to their new life in Babylon.  He told them to build houses and live in them; to plant gardens and eat their produce; to take wives and bear children; to increase and not decrease; and even to seek the welfare of their new city, praying to the Lord on its behalf.

You know how long God told them to be faithful in their captivity?  Seventy years.  SEVENTY years.

So when God then said that He knew the plans that He had for them……plans to give them a future and a hope……He also knew that this promise wasn’t coming to pass tomorrow.  He laid it out there for them.   He told them to live as He commanded and to be obedient to Him, even in their dire situation, for seventy long years.

God’s promise was given to them in the middle of less than ideal circumstances.   It wasn’t to be fulfilled immediately.  But while they waited, God wanted them to live their lives fully and faithfully to Him.

In fact, many of those Israelites would never see the promise come to pass.  They would die in Babylon.  Yet God still commanded them to be obedient and live the way He wanted.

How about us?  How does God want us to live every day?

He wants us to follow the example that He continually sets out there in His Word for us to see.  He wants us to be faithful to Him, to obey Him, and to grow no matter what is going on in our lives.

We may be going through awful times so full of grief and stress that we wonder how we can get out of bed every day.  God knows.  He understands.  He loves us.  He provides what we need.  He promises us a future and a hope.

But relief may not come today.  It may not come tomorrow.  Or the next day, or the next.  But like He told His people in Babylon, He says to you and to me today.  “Call upon Me.  Pray to Me, and I will listen.  For you will seek Me and you will find Me when you search for me with all your heart.”

It’s simple, really, but so difficult to do sometimes when our surroundings are bitter and hard and scary.  Call upon Him.  Pray.  Seek Him with all your heart.

Read His Word with an open heart to hear what He has to say to you.  Ask Him to lead your steps.  Obey what you know He tells you to do in His Word.

God will speak to you.  He will lead you to Himself.

And in the middle of your pain and your stress, you will grow.  Just like my Salvia in the middle of deadness all around it and the coldness of some nights…..still pushing through and growing, as God intended.

God loves you.  He truly does have a future and a hope for you as you follow Him, but not always…..in fact, seldom……without the suffering and sadness of this life.

But what a beautiful work He is doing in you and in me as we faithfully respond to His love and to His word in our lives!

So grow!  Grow where God has put you!

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New Year, Old Ways

A new year is upon us!!  Welcome, 2017!

A fresh start can be so nice.  New everything.  Out with the old, right?  Well, not always, as I have seen on the past two days.  We all know that to be true.

I ended my old year on a most familiar note…..playing SkipBo with Aaron right before bed.  I guess that’s our version of a party, which suits Aaron perfectly as he really does NOT like parties.  Parties have too much noise and emotion for him, thank you very much.  But SkipBo with Mom is orderly, predictable, with nice piles of sequential numbers, and plenty of opportunity to cheat.  Yes, cheat, of which Aaron is a master if not watched closely.

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The next morning, our New Year morning, saw Aaron blandly staring at me as I very happily wished him a Happy New Year!!  His lack of expression at these moments is often hilarious, but I can’t always laugh because he finds that emotional expression irritating or he thinks I am laughing at him.  Which at times I am, but in a good way that he just wouldn’t understand.

Anyway, Aaron’s main concerns on our New Year morning were:

1)      Can I have FOUR cups of coffee?  (Don’t worry.  The cups are half full).

2)      Are there coupons in the newspaper for me to cut?

3)      What time are we going to Chili’s for lunch?

Aaron had opened a gift during our family Christmas Bingo game.  The gift was a Chili’s gift card that was burning a hole in…..well, in my wallet because I don’t dare give Aaron gift cards to keep.  They won’t keep with him.  They will be lost or given away.

I told Aaron that we would go to Chili’s after church.  He wanted to know the exact time, so I gave him my usual ball park figure and he was happy.  He was not so happy with the coupons in the paper for some reason.  Still slow from his cluster of seizures on Friday night, the coupons did not make him show his usual sense of purpose.  However, he settled in on the floor with his coupon trash cans as he sat on his coupon pillow with his coupon scissors…..and his FOUR cups of coffee on the bench nearby…..and he began to clip the coupons, very slowly.

I was in the bathroom later when Aaron came to the door.  “Mom,” he slowly began.  “I was cutting coupons but there were too much.”

Pause.

“OK,” I responded.

Pause.

“There were too much,” he repeated.

“Yes, there were a lot today,” I replied.

Pause.

“There were too much coupons,” he said again.

Pause.

“There were too much,” he once again asserted when he got no Mom reply.

Pause.  Sigh from me.

“Aaron, just take a break.  You can finish them later,” foolish Mom said.

Pause.

“I ripped them,” Aaron flatly replied.

Pause.  Another sigh from me.

I was following Aaron’s train of thought, one all too familiar.  He didn’t want me to cut those coupons.

“Because you don’t do them right,” he continued.  “You don’t cut them straight on the line like I do.”

He made his exit on that note.  No surprise from me.  It might be a New Year, but we are still living in our old ways…..always, always.

And sure enough, there on the family room floor lay his unfinished little stack of coupons……ripped, just like he said.  Aaron’s thinking has always been this…..that if he can’t cut the coupons, NO ONE will cut the coupons.  Especially Mom, who is a dismal failure at coupon cutting.

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Those ripped coupons were a stark reminder to me that just under the surface with Aaron there is always that issue of how he handles stress in his life.  He reacts, and often his reactions are very inappropriate.  His behaviors are a huge concern to us.  So I stood there being reminded that we were on our first day of a brand New Year, brand new beginnings, brand new opportunities……and here we were, being slapped into our old reality of life with Aaron.

Some things just never change.  We know that.

But there were other reminders of wonderful things that never change, either.  Gary and I finally got to church on time.  Yes, we were one of THOSE people who totally didn’t see the memo on the changed time for church……one of THOSE people who didn’t give New Year’s Day a second thought…..and so on this New Year’s morning we drove to church TWICE.  And we laughed at ourselves.  We’re HOW old?!

Anyway, we walked into church to the hugs and handshakes of sweet friends.  And there was Joyce, who handed me a bag containing a huge bag full of Tootsie Rolls…..for Aaron, because of my recent Tootsie Roll blog.  How unexpected and sweet, in more ways than one!  Later, Aaron was also surprised and full of smiles at this kind gift.

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The care of friends is unchanging in our lives.  Such a blessing!

The worship and the message on our New Year’s morning was encouraging and challenging.  And we sang one of my most favorite songs – Great is Thy Faithfulness.  What a wonderful reminder of God’s unchanging faithfulness in our lives!

And later, as we sat with Aaron at Chili’s, Gary and I watched him ever so slowly eat his enchilada lunch and his salad.  His joy at eating out was very evident.  Never changing, his love of restaurant food!  And seeing that joy is always fun for us, despite our constant reminders to him that he doesn’t need to take 17 toothpicks…..don’t stare at the other people and their food……don’t make noises…..don’t clap…..please don’t loudly stretch when you get out of the booth.

Never changing.

I was able to salvage a few coupons later from the ripped pages.  I didn’t let Aaron see me as I quickly cut them out behind his back.  And I know that we will continue to try to salvage good out of the bad days that Aaron will surely have this year.  It’s our reality with Aaron, New Year or not.

But through it all I know, like that favorite old hymn says, that God will remain the same, too.  Faithful to us, as always.

 

            Great is Thy faithfulness, O God my Father,

            There is no shadow of turning with Thee;

            Thou changest not, Thy compassions they fail not;

            As Thou hast been, Thou forever wilt be.

 

            Great is Thy faithfulness!  Great is Thy faithfulness!

            Morning by morning new mercies I see.

            All I have needed, Thy hand hath provided.

            Great is Thy faithfulness, Lord unto me.

 

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Dad’s Bible

Eight years ago today we got the news that my Dad had stepped into heaven.  And for eight years before that, Dad had fought a hard fight against the cancer that eventually took his life.  So many stories of that time in our family…..so many memories of the month I spent with him and Mom before he died.  I’ve written much about it in the past.

This past Thanksgiving our family gathered in West Virginia, in our hometown.  Some still live there in Princeton.  Others had far to travel.  It was an epic gathering, really, and the first time many of us had seen each other in years.  Mom and Dad would have loved it, we all found ourselves saying over and over.  Wouldn’t they have been so happy that we did this?!

And look how we have grown.  This picture was taken in the mid-90’s.

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The below picture was taken this Thanksgiving.  Yes, we have multiplied!  And we were missing a few who weren’t able to come!

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We had a wonderful time, all too short, of hugs and laughter and lots of talking as we tried to catch up with each other.  The day was over all too quickly.  As nice as it was, though, I felt like something was missing.  It just didn’t feel the same.  I realized, as I thought about it, that the something missing was actually someone who was missing……Mom and Dad.

In the past they were the center of everything.  Stories…..laughter……teasing……singing.  So much of that revolved around them, and now for the first time this very important part of all our lives was gone.  That was the huge difference that I felt.  It just wasn’t the same, and I guess it just couldn’t be without Mom and Dad there as our focus.

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I’ve been thinking today about Dad on this anniversary of his death.  And remembering the very poignant part of our recent Thanksgiving meal when my brother, John, read to us out of Dad’s Bible.  He told us this story before he read Psalm 145.  In John’s own words:

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Regarding Dad’s Bible, it started on Thanksgiving of ’15, when I reached up to a shelf at home to get a Bible to read Psa 145 for our family.  I knew it was Dad’s Bible, but didn’t remember that he had carefully marked his daily readings with the dates on which he read each section (including the introductory notes and the 500 pages or so of study notes at the end).  When I looked at Psa 145, I noticed he had read it on Nov 26, 2000, exactly 15 years to the day before I was set to read it to my family.  There was something about that divine intervention that touched me very deeply.  When I got ready to read the same chapter to our family this year, the thought hit me to check his detailed medical journals to see what he was experiencing at the same time he was reading those passages of praise in Psalms.  He was right in the middle of his radiation treatments from his first bout with cancer.  He had already had the surgery to remove two-thirds of his right lung, and had already finished the grueling chemo treatments.  Now as he took radiation, he was circling verses like Psa 116:6, 116:15, 121:7, 126:3, 127:3-5, 131:2a. 138:8, and 139:16.  What a window into his soul to see the verses that God was using to comfort him, giving him hope and trust in the greatest challenge of his life.  And so characteristic of Dad, he was not talking with everyone about this.  It was a very intimate journey with his Lord that bolstered his soul as his body suffered.  I found myself thanking God for the man he was, and wishing I could talk with him about that journey.  I probably missed him more then than at any time since he had died.  What a treasure, though, to have that record of his triumphant faith in the midst of adversity.

 

Isn’t that amazing?  I’m so glad John shared that with us.  Dad’s “triumphant faith in the midst of adversity” never wavered as his body wavered and finally succumbed to this disease that we all hate.  Dad remained true to the Lord, to Mom, and to his family.

And now today we five children carry with us his heritage of faith, as do many of our children and grandchildren.  I’m so very thankful for that!  Of all the many things to be thankful for this past Thanksgiving Day, that would be one of the biggest.

We miss you, Dad, but we know we’ll see you and Mom again.  Thanks for showing us the importance of following Christ, and for living out your own faith so beautifully and consistently.

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Be A Ladybug!

Every year, Gary and I enjoy our little garden.  No two years are exactly the same.  Last year, for instance, I was hauling buckets of summer squash out of there every few days.  This year, so far, we have had four squash.  Not four buckets.  Just four squash.  Pathetic, I know.

But we have had buckets of cucumbers this year, so that makes me happy.  A couple tomatoes here and there as they slowly ripen; one lone spaghetti squash that has survived so far; some peppers; and always, thankfully, lots of okra.  Okra seems to do very well in our hot Kansas summers, no matter where in the garden we place it or how hot our weather is.  Okra is certainly a hardy crop for the conditions in which we live. 

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There are other reasons that I could say our okra does so well.  One is the tilling that Gary does, such as you see in this picture I took one Saturday after he had worked hard tilling the garden.  I also hand weeded the areas where the tiller couldn’t go, so the garden looked all clean and beautiful for awhile.

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Then there’s the ingenious sprinkler system that Gary designed.  There are three sprinkler heads placed on poles in the front of the garden, and three in the back.  Gary measured for all the pipes that were needed, glued, dug trenches, rigged up the hose and the timer…..it’s really pretty amazing, if you ask me.  And I love it because it turns on twice a day and I don’t have to lift a finger! 

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We also had our soil tested last year, and it showed that our soil is healthy.  That was nice to hear.  I bought bedding plants at a nursery that I trust, and we added some fertilizer into the holes as we planted each one.  With all of these things that we did, our okra have thrived and we’re enjoying every bite of fresh okra from our garden.

But I left out one part of their success……..a very important part, though it comes in a very tiny form.  These:

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Yes, ladybugs.  Every time I cut okra off the plants that are getting taller and taller all the time, I see my little miniature friends.  I call them friends because they work very hard as they help insure the success of our okra.  Ladybugs eat aphids, and so without the help of these little spotted bugs, our okra just might not live.  And if they did live, they might not thrive.  I can’t really see aphids, but I know they are there, sucking the life out of the healthy plants.  So our ladybugs quietly go about their business, eating the dangerous aphids and tremendously helping to insure that we have lots of delicious okra to enjoy. 

Ladybugs are cute, but they’re not really visible from far away.  We see the sprinkler system doing its watering.

We see and hear the tiller digging up weeds, giving us the results of almost weedless soil.

 But ladybugs?  They’re unobtrusive and very little and hardly seen at all, unless you get right down there in the midst of the leaves and really look.

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I had a sweet little Grandma that I think of when I see these ladybugs doing their quiet but valuable work.  She was little in stature…..I definitely get my shortness from her!  Grandma Hollandsworth….whom we later affectionately called Grandma Holly, or just Holly…..lived with my parents for 14 years.  Therefore, I spent lots of time with her and knew her very well.

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One of the most precious memories that all of us have of Grandma, I know, is the picture in our minds of what we sometimes saw when we passed by her bedroom in the mornings.  She would be sitting at the long built-in desk that lined her bedroom windows, her Bible open before her.  Her head covered in beautiful white hair would be bowed, and she would be praying.  She told us that she prayed for all of her six children every day……their spouses…..their children…..their children’s children…..and on it went.  It was quite a long list, believe me!  She would also pray for many others who were not family, faithfully and persistently.

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When Grandma would be taken to see the doctor, she would sometimes have to wait to be seen.  The doctor would come into the exam room, apologizing for making her wait, and Grandma would just smile and tell him that it was all right.  She told him that she used that time to pray for her family.  She had such a sweet testimony of being a praying Grandma.

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Grandma died when she was 99 years old.  She was actually praying when she died.  She was, at that point, in a care home. Her roommate heard Grandma asking the Lord to take her home.  Then there was a sharp breath and Grandma Holly was gone to heaven, just like that……while she prayed.  How perfect! 

We have always said that the thing we would miss the most about Grandma was her prayers for all of us.  We won’t know this side of heaven just how impacting her prayers were in our lives, nor the impact that her prayers are still having in our lives and the lives of family members that she never even knew. 

Grandma didn’t make a big show about her faithful prayer life.  She definitely never bragged about it or tried to draw attention to herself through her prayers.  She just quietly went about doing what she knew God wanted her to do.  And she prayed because she loved Him and she loved all of us. 

Scan0005Grandma was like my little garden ladybugs, just daily doing what she knew was right.  I wonder what difference her prayers have made in so many lives……what fruit her faithfulness is still producing today.

The prophet Zechariah, whose name means ‘Yahweh remembers,’ was one of the prophets who encouraged the returning exiles in Jerusalem to complete the temple.  The people were discouraged as they compared the smaller, simpler temple they built to the grandeur of the former temple.  But Zechariah told the people in Zechariah 4:10 to not “despise the day of small things.”

“Not by might, nor by power, but by My Spirit,” God said in verse 6. 

We tend to notice and value the big and the bright and the noisy.  But let’s not despise the small things……things like little ladybugs doing their work……things like a Grandma’s quiet but fervent prayers.

The smallest acts can produce the most beautiful fruit.

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God, Are You Listening?

Gary and I are far beyond the baby years, and we have no grandchildren yet, but we still sleep with a baby monitor beside us every night.  It sits on my nightstand as we listen for Aaron’s nocturnal seizures.  It sure is a handy tool to have!  Most of Aaron’s seizures are at night, in his sleep, so the monitor enables us to hear him and to go help him. 

Aaron never remembers his seizures, which is a blessing.  But he has seen others have seizures at his day group, so he has seen what they can be like.  And he is well aware of how he feels afterward, with a terrible headache or nausea or waking up in a wet bed.  Sometimes he loses his sense of taste for a day or two.    It’s a reality of his life that he accepts remarkably well……probably much better than I do.

In the last couple years, though, Aaron has shown a degree of fear concerning his seizures.  He’s not one to sit down with me or Gary and verbally express his fears.  But every single night as we go through his bedtime routine, he asks me two questions.

First:  “Mom, is it going to rain tonight?”  He just must know if it’s going to rain.

Second:  “Mom, are you turning the monitor on?” 

Sometimes I beat him to it and after our goodnight hug I answer those two questions before he can ask them. 

“Good night, Aaron.  Sleep good.  I’ll see you in the morning.  Love you!  And it’s not going to rain, and I will turn the monitor on.”

But if I’m going downstairs to fix the coffee pot or whatever, Aaron always says, “Do you want me to bring the monitor down to you?”

And on many nights, just for extra measure, we will hear Aaron walking up the hall and barging into our bedroom if the door isn’t locked.

“Mom, is the monitor on?  Is it on right now?” he asks.

Sometimes when I’m extra tired I get impatient with this routine, and then I feel guilty about it.  That’s because I know why Aaron is so concerned about that monitor.  I asked him about it once, knowing that my questions can put thoughts into his head, but still wanting to hear what he had to say.  So I asked him if he was scared of having a seizure, and he told me that he was.  We didn’t talk deeply about it, but his answer was enough to pull at my heart and make me think as I often do about how I would feel if I was in his shoes.  Seizures are definitely scary, and Aaron most definitely wants me or Gary there with him if he has one.  Of course he does.  I would feel the same way.

So every single night, and also for every single nap on days that he is home, I make sure he knows that the monitor is on and that I am listening.

The monitor did its job last night…..three times, actually.  Aaron’s first seizure was a little after 11:30, and then two more followed during the early morning hours.  He’s sleeping on the couch now – has been for a few hours since he woke up before 6:30 to discover his condition, change pajamas, and make his way downstairs.  He took his morning meds and went right back to sleep, waking up awhile ago to ask for his cups of coffee, and then back to sleep again.  Seizures take such a toll on his body.  They take a toll on my heart.

But this morning…….as God always, always does…….my heart was comforted by reading from the book of Psalms. 

“He who keeps you will not slumber.  Behold, He who keeps Israel will neither slumber nor sleep.”

I can hear me now. 

“God, do You have your monitor on?  Are you listening in case I need you?”

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And God, Who is always patient with me, tells me once again that He doesn’t slumber or sleep.  Did you know that “slumber” means “nodding off?”  Like I do sometimes while Aaron and I are watching Wheel of Fortune…….and then Aaron yells, “MOM!!!  You’re not watching!!!” 

But I don’t have to do that with God…..and neither does Aaron.  God won’t sleep deeply and He also won’t even nod off.  He’s standing by Aaron’s bed with me during every seizure.  Then He stands by my bed when I lay back down and try to go back to sleep, which is often hard to do.  He knows my fears for Aaron and He understands my hurt for him, but He also reminds me that His plan is sovereign……His plan is best……even if His plan isn’t understandable to me. 

It’s just really comforting to me to know that God never sleeps, even at night, and that He is beside me as I stand beside Aaron.  And when I feel uncertain and ask Him once again if He’s really there……if He’s really listening…….He just gently reminds me that He is always there and He is always listening.  

God’s just a very good Father to me and to Aaron, and to each of us who know Him.  Even if our view of Him is through our tears and our fears, we know that God is right there with us through it all.   

All I Need to Know

He threw the glass across the kitchen this morning.  At least it was a plastic glass……and at least it was empty.  So began our morning.  Aaron got up just in time to go out to Gary’s truck in the driveway and hug him goodbye.  He was happy and I was hopeful.  Yesterday was up and down with Aaron.  He didn’t like me for awhile but then settled down and we had a nice evening.  We watched Wheel of Fortune, and played Skip-Bo later while eating strawberries.

Simple pleasures, but not always such a simple life with Aaron. 

This morning as we walked back into the house after his goodbye hug for dad, he decided that Mom was the bad guy again.  He told me he wasn’t going to go to Paradigm today, and on and on. 

Oh, the complexities of his mind!  The challenges of autism!  Physical issues I can handle so much easier because the flesh and blood of those special needs is right there to see and somehow grasp.  But the workings of the autistic mind are sometimes anyone’s guess, and this morning I was in no guessing mood.

So I launched back after his verbal barrage got to a certain point.  I pointed my finger at Aaron and I very firmly put him in his place.  But Aaron rarely stays in the place I put him.  I may feel better for a few seconds, but then he opens his mouth and his resolve is more set than ever……his resolve to win the war, even if he loses a few battles in the process.  I know this about Aaron, but I sometimes act despite what I know.  I act on my feelings, and I often regret it. 

The rest of the morning was filled with Aaron telling me he wasn’t going to talk to me anymore, all the while talking to me to tell me that he wasn’t going to talk to me.  Over and over and over.  He also didn’t want me to talk, so I mostly remained silent, which actually drives him crazy.  There was no winning for either of us at that point.

Aaron went to Paradigm, wanting me to come in with him so I could tell Barb to be sure he was nice……and Barb told him the same thing I had said earlier, that he was the only one who could be sure he was nice.  I don’t know for sure how his day has been.  I don’t know for sure that I want to know.

We’ve had lots of storms in Kansas lately.  On our way back from Topeka recently, Gary and I drove through the beautiful Flint Hills.  There on the horizon were storm clouds, and we were headed straight into them.  There was no avoiding the storm.  No matter what road we took, the drive home led into the storm. 

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And again yesterday, driving Aaron to his day group, we were facing storm clouds.  There they were, dark and threatening. 

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Driving into a storm reminds me of living with Aaron.  It also reminds me of Moses.  I’m reading the book of Exodus, and in chapter 3 God spoke to Moses in the burning bush.  He told Moses of the job He wanted him to do…..to lead the children of Israel out of Egypt.  And Moses said, “Who am I, that I should go to Pharaoh and bring the children of Israel out of Egypt?” 

The first part of God’s answer was simply this: “But I will be with you…..”

God didn’t say, “Oh come on Moses, you’re the man!  You’re so great!  I know you can do it!”

Moses’ sufficiency rested only in those six words that God first spoke: “But I will be with you…..”

Moses’ sufficiency rested only in God.  Not in himself…..not in his family…..not in his royal connections from years past.  No.  The strength and wisdom and courage that Moses needed rested only in God.

I’m not proud of the times I blow it with Aaron.  I’m not proud of Aaron’s behaviors on the bad days.  I often feel like Moses.

“Who am I, that I can parent Aaron?  Who am I, that I can have patience enough on the bad days to tolerate the behaviors?”

And God’s answer for me is just the answer He gave to Moses: “But I will be with you…..”

It’s no mistake that I am Aaron’s mother.  God put me on this road because of His sovereign plan for me and also for Aaron.  I may feel on some days that I can’t do this correctly, or do it at all, but this is where God has put me.  God doesn’t make mistakes.

So here I am, driving on this life road and headed into yet another storm.  I know I’m not alone in this.  I know of others who are feeling the pressure of the dark clouds on their horizons, and are soon overcome with rain and lightning and thunder.  But if you’re God’s child, He is with you.  He promises you strength, wisdom for the asking, peace in your inner being, and joy deep down.  Whatever your situation…..your worry……your pain…..your secret turmoil……your fear…..your failures, God’s word to Moses is God’s word for you…..for me…. “But I will be with you….”

I don’t always feel this fact.  But I know this fact to be true, this fact of God being with me, and so I can rest in that knowledge even when I don’t feel it.

After I dropped Aaron off and drove home yesterday, this was my view.  All the time I was driving into the storm, just behind me was the lifting of the clouds. 

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It’s true of my life, too.  God will relieve the burden, even if the situation remains.  He relieves my burden by reminding me of Who He is, like He did to Moses.  And reminding me that He is with me, always. 

Even when I say, “Are you sure, God?  Did I take a wrong turn somewhere?  And look how I’ve messed up!!”  And He answers once again, “But I will be with you…..”

Dark clouds, or bright sky.  Angry Aaron, or happy Aaron.  God is with me.

On some days, that’s all I know.  But on every day, that’s all I need to know. 

 

The Signature

It was last December 13, a Sunday afternoon, when I heard my text notification buzz.  Reaching for my phone, I saw that the message was from our friend Dona in Texas.  My first thought was that maybe she and her husband Steve were coming up our way and wanted to stop in for a visit.  But I gasped when I read her text.  Then I read it again to be sure that I had understood it correctly while hurrying downstairs to tell Gary the news. 

“Please pray,” Dona texted.  “Steve has had a major stroke and is being airlifted to a hospital in Dallas.” 

How could this possibly be happening?  Steve is our age, healthy and very active.  He had recently completed his Master’s; taught in the aviation department at LeTourneau University; and was a Colonel in the Texas Civil Air Patrol. 

All that day, Gary and I prayed as we waited for more news.  And my mind went back over the years of our friendship.  Dona and I went to college together at Piedmont Bible College, where Gary later joined our ranks as a student and Steve came as an aviation instructor at the Missionary Aviation Institute there.  Steve and Dona fell in love at the same time that Gary and I were doing the same.  And on May 26, 1979, Gary and I were married……and so were Steve and Dona.  We even married at exactly the same time in the evening, though in different towns.

Our friendship grew during the time that Gary completed college, Steve continued to instruct missionary pilots, and Dona and I worked.  Life was simple and sweet.  One day Steve told Gary that he wanted to teach missionary pilots how to fly helicopters, but one thing needed to happen first……..Steve needed to learn how to fly them.  Steve decided to try to join the army, learn to fly the choppers, and then go back to training missionary pilots when his time was up.  Gary had been in the army during Vietnam, so Steve asked Gary to go with him to the recruiter’s office in order to keep an ear out for anything that wasn’t quite kosher. 

Gary and Steve went to several appointments together.  Some people would say as luck would have it, but the four of us knew that it was as the Lord would have it that Steve did not go into the military, but Gary did.  Steve and Dona ended up living in Tennessee, where Steve was an air traffic controller.  Gary and I lived in six different places during his time as a military pilot. 

Steve and Dona remained dear friends over those years.  We visited each other when we could, with Steve and Dona coming to see us at several places where we lived, including here in Wichita.  They moved to Texas several years ago, and Steve remained active in aviation both as an ATC instructor at LeTourneau University, and as a commander and pilot in the Civil Air Patrol. 

Then came December 13.  It was a cold, rainy Sunday in Texas.  Dona had stayed home from church with a cold.  And Steve was found after church, lying beside his vehicle in the rain, mostly unresponsive.  A major stroke.  Airlifted to Dallas, where he spent weeks in the hospital and in a rehab hospital.  Home now, facing continued extensive rehab.  God has been so gracious to Steve.  Much of his function has returned, though he is still profoundly affected by the stroke. 

His life has dramatically changed, as has Dona’s, in ways that most of us never consider until we are faced with the reality of something like this……something completely life changing.  Dona writes about their life and about their Lord, and sends it out as emails.  She’s written these devotional and inspirational pieces for years.  What a treasure they are!  And especially now, as she has allowed us to walk with her as she walks with Steve on this path full of twists and turns.  She and Steve have always been examples to us of steadfast faith, but never more so than now, when their faith has been tested as never before.

In November of last year, Steve and Dona sent Aaron a birthday card.  There at the bottom was their signature.  Steve signed his name.  Dona signed her name.  That’s how they always did it.

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Then in April another card came from Steve and Dona.  My dear friend, Atha, had died and I was still reeling from her unexpected death.  Dona knew how my heart was hurting, so she pushed aside her own pain and she sat down to write some very encouraging words to me and Gary.  And then as she ended her note, there it was.  The signatures.  Steve…..and Dona.  But look at Steve’s, written with his left hand when he is right handed……and written after having to learn how to write again. 

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I burst into tears when I saw it.  Dona’s words were uplifting and so sweet, but Steve’s signature is what really got me, because it showed volumes to me of where Steve was now.  What a difference from November to April!  What life changes he is having to adjust to! 

And so is Dona, who is with him every step of the way.  How her life has changed!  Steve walked out the door that Sunday morning, and their world as they knew it collapsed.  But I know they don’t really think of it that way.  They see God’s hand in it all……they trust Him completely……and they are putting into practice the rock solid faith that they have cultivated in our loving God all these years.  But it’s still hard.  It’s not without frustrations and fears and tears.

Back on May 26, 1979, Steve and Dona promised to be faithful to each other, too….for better or worse, richer or poorer, and in sickness or health.  So did Gary and I.  Steve and Dona’s promise has been put to the test, and they are passing…..with God’s grace…..with flying colors. 

Gary and I are very, very thankful that we have another year to celebrate our joint wedding anniversaries.  We are very, very thankful for the enduring friendship that we have shared with these dear friends.  We are very, very thankful for their example to us of steadfast love in the life changing hard times. 

And I’m very, very thankful for Steve’s signature that is so telling on many levels.  It tells of sadness, of strength, of progress, and of grace. 

Which means that Steve and Dona’s life really has God’s signature all over it. 

Happy Number 37, Steve and Dona!  Here’s to many more!

 

The Coupon Box

One of Aaron’s Sunday routines is to clip the coupons that are almost always in the Sunday morning newspaper.  I’ve blogged before about his coupon cutting process.  Believe me, it’s just that……a process.  A precise process that he is 100% convinced only he can do.  I, especially, have no business cutting out coupons because I am a dismal failure at that task.  Those are Aaron’s thoughts, not mine.  Aaron cuts as closely on the dotted line as he possibly can.  He then takes any little strips of paper that are left over and he clips them over a certain trash can, snipping each strip into tiny pieces and watching them fall down to join the other tiny pieces that fill the tiny snipped pieces trash can.  It’s an art.  Other odd sized pieces of left over coupon paper fill another trash can.  The finished coupon sheets of paper, full of gaps where once were coupons, are placed neatly in a stack to Aaron’s left side.  And the finished coupons are placed in precise order in the coupon box with the red lid.  It truly is fascinating to watch him cut coupons. 

Sometimes I don’t get the coupon box with the red lid emptied and sorted before the next round of coupons appear the following Sunday.  Such was the case a few weeks ago.  Aaron had completed his coupon cutting set-up in the family room.  His three cups of coffee were waiting for him on the bench beside where he sits on the floor, along with his pillow that he sits on, his scissors, his two trash cans, and the television turned to The Animal Planet.  He came to retrieve the coupon box with the red lid, opened it, and found last week’s coupons still inside.  So without further ado, he promptly dumped the week old coupons onto the table and turned to walk into the family room and complete his coupon cutting mission.

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“Wait,” I said.  “Can’t you still keep the old coupons in the box?”

“No,” he simply answered. 

“Because you can’t mix them up, right?” I asked, knowing full well the answer.

“Yeah,” he again simply answered as he sat on his pillow and started his mission.

Yeah is right.  Aaron can’t stand to mix the old coupons with the new coupons.  He does it on occasion, but not often.  So he clipped that day’s coupons and later I found the coupon box with the red lid on the kitchen table…..every coupon placed in just the right place and in the right order.  Aaron’s way, which to him is the only right way.

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Aaron’s life, and living with Aaron, is so much like his coupon clipping process.  He wants everything in its place…….the details of his life in a certain order.  This goes here…..that goes there…..and if I’m done with it or it’s old or messed up, out of place or frustrating, I just dump it and we start over.  Neat and tidy, with Aaron in control of the set-up and the tools and the timing and the process.  Except life’s not like that, not for Aaron and not for any of us.  You and I can adapt to these changes for the most part pretty easily, but not so Aaron.  Even the simplest change, the most minute little snag in an otherwise orderly process, can easily put Aaron over the edge.

Gary and I just returned from a short trip to Topeka, where we watched Andrew work on his NHRA race team.  Aaron knew that his two caregivers were coming to take care of him.  He was excited for us to leave, as he always is, because our leaving means more eating out and more movies and hopefully less bossiness from those in charge and more of him pulling the wool over unsuspecting eyes…..so he hopes. 

“I can’t wait for you to leave!” he said on Thursday as I was getting ready to go.  “NO parents!!” he added as he rubbed his hands together and laughed loudly.  He is at least very honest.

“What time are you leaving?” he asked, though he had been told how many times before? 

“We’re leaving at 3:00,” I answered.

“Can’t you leave early?” he asked.  “Like 2:59?”

He was completely serious about that.  So I smiled when I hugged him goodbye later, and told him that it was 2:52.  He just nodded his head and went on his way, and I stifled my laughter until Gary and I drove down the road.

Aaron calls repeatedly while Gary and I are away from home.  Every day, several times a day, he calls.  So much for his “NO parents!” comment!   Therefore, it was no surprise on Monday morning when he called, and also no surprise to me that he was most unhappy.  After his busy weekend, and after NO parents, he was ready to settle into his normal……but not ready to go to his day group.  He wanted to stay at home, which is common for him, and he wanted to be there when we arrived.  I always question what to do in that case.  Let him just stay home…..but is that giving in?  Make him go…..and maybe pay the consequences of that decision.  Mainly, his caregiver and day group have to pay the price of Aaron’s grouchiness.

As Aaron and I talked on the phone and he finally agreed, unhappily, to go to Paradigm, he asked me if I would pick him up early at the end of the day.  I said that I would. 

“Mom!” he said.  “I mean to pick me up before 4:00.  I want you to pick me up at 3:59!”

Again, he was entirely serious.  “3:59?” I asked him.

“Yes!” he answered.  “Don’t wait until 4:00!  Will you pick me up at 3:59?” 

So I agreed to pick him up at 3:59 and he went reluctantly to Paradigm.  However, he had a miserable day.  The other clients had a miserable day.  The staff had a miserable day.  Thankfully they are so understanding and forgiving.

It was around 1:30 when my phone rang.  I heard Aaron on the other end, voice thick with tears.  I’ve lived this scene so many times that I didn’t even need to hear what Aaron had to say. 

“Mom,” he started……and I just told him that I was coming to get him. 

“No!” he said strongly.  “I want you to come at 3:59!!”

“But Aaron,” I countered.  “You’re very upset now so let me come and pick you up.”

“No!!” he forcefully repeated.  “I want you to come at 3:59!!”

He handed the phone to Barb, and she said that he was very firm about me coming at 3:59, but then for some reason he changed his mind and said that I could come on to get him. 

A short time later, he and I sat in Freddy’s.  I figured a Freddy’s burger and fries would be the best medicine for him.  He was relaxed and very happy as he ate his burger, but his eyes were still red and bleary from all the tears.  As I asked him why he was so upset that day, he couldn’t tell me why.  I kind of know why, but he really has a very hard time verbalizing outwardly what goes on inwardly in his mind and emotions.

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So many diseases or syndromes show up in a person’s bloodwork when it’s tested, but what Aaron is missing doesn’t show up firmly in lab work or on a piece of paper.  The connections in our brains that allow us to process and filter our environment, and our responses to life’s occurrences in our environment, are missing in Aaron’s brain.  He cannot just simply deal with issues like I can.  So he reacts, often in great frustration, and getting to the root of that frustration and his reaction to it is what we continually try to do. 

However, we are often very frustrated ourselves……frustrated by Aaron’s behaviors and his reactions and all that goes along with it……that it’s hard to pause, take a breath, and try to figure it out ourselves before we can even begin to help Aaron figure it out.  Add to that our embarrassment at times……our tiredness…….our feelings of failure or ineptness…..and it’s like my box of coupons.

I just want to dump the whole thing and start over!!

Start over with an empty box……new coupons…..all in precise order!

But life’s not like my coupon box with the red lid.  I can’t just dump days or events out on the table, and arrange the new day the way I want.  And neither can Aaron.

But we can start each day with a clean slate, and try again.  We can build on the old experiences and the lessons they taught us.  Clipping here……cutting there…..arranging our thoughts and our responses in the right way.  We do it through prayer, through seeking God’s wisdom, and through loving each other through not only the good, but also the bad and the ugly.  And we have plenty of those last two, believe me. 

And through always keeping in mind that Aaron’s most impacting special need is the one we can’t see in that amazing brain of his.  We don’t understand how he thinks at times, or how he acts, but we do understand that he really wants to do better and that the frustrations for him are far greater than any that we as his parents and caregivers will ever feel.    

There’s one more thing about starting each day anew.  God has promised that His mercies are new every morning.  They’re not based on yesterday and on yesterday’s failures.  His mercies are new and fresh every morning, as is His longsuffering and forgiveness and kindness.

Can I be any less for Aaron? 

I don’t think so.  And I can put that promise on the very top of my daily coupon box.

Heading Into the Fog

I set out on Monday morning for the last day of the Bible study that I have been taking this winter. It was a very foggy morning. As I turned down 151st street, near my home, this is what I saw ahead.

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Later, as I sat with several other precious women around a table in a beautiful conference room, we shared with each other what we feel that God is laying on our hearts as our divine burden. It was a sweet time as we bared our hearts to each other, many times with tears, of what God has impressed upon us to be or to do. A common element among us was the fact that we have a burden…..perhaps a calling…..but we don’t know where it will lead.

“I don’t know what God will do with this.”

“I don’t know how God will use this.”

“I don’t know where to begin.”

Make no mistake about it, when God calls a person to a task, He will lead the way. But He doesn’t often, if at all, open every door all at once. Our job is to obey, step by step and day by day. Just obey.

To obey when the way ahead is murky and uncertain.

Like Abraham…..called from Ur of the Chaldeas, of all places. Called because he was faithful to God. Not called because He was so amazing or gifted, but called because he was a man of faithful obedience to God. “You found his heart faithful before you,” Nehemiah said of Abraham.

So there we have our first directive. Be faithful in obedience to God.

That’s a big step in the right direction.

Finding God’s will for your life isn’t some huge, mysterious undertaking. It’s not getting up every day hoping that you do something that will somehow reveal God’s will for you.

“Finding” God’s will is simply doing God’s will for you, which means faithful obedience to the directives given to us in His Word, day by day.

So that’s what Abraham did, too. He set out to follow God from Ur to…..he had no idea where. He just knew that God said, “Come.” And so he did. He went with God, not knowing where.

Humanly speaking, that’s pretty scary stuff. We want to know where we’re going…..how we’re getting there….how long it will take…..will I be taken care of……what happens after I get there.

We set out on the path of obedience and we watch God open doors….shut doors….redirect…..

And sometimes it’s painful. Sometimes it’s pure joy and peace. Sometimes it’s fearful and full of questions. But in the end we can be just like Abraham, who by the way wasn’t perfect and had tons of failures along this journey that God led him. Nehemiah also said, speaking of God calling Abraham, “And You have fulfilled Your promise, for You are righteous.”

God didn’t fulfill His promise to Abraham because of anything worthy that Abraham had done. God fulfilled His promise because HE is faithful to do what He has promised.

Often, God’s calling in our lives is to endure very hard trials. It’s not to be something or do something that will command great respect and attention. Instead, God may want me to endure suffering that will point me and hopefully others to Christ.

Whatever God wants me to do doesn’t depend on me at all, except for my obedience. I don’t need to feel worthy enough or important enough or smart enough or capable enough. God will be all those things for me.

As I head into the fog of the unknown, in obedience, I will begin to see some things clearly. One step at a time the way will be made known. And one day my view will be the same as my view on that road near my home later that afternoon.

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“But the path of the righteous is like the light of dawn, that shines brighter and brighter until the full day.” (Proverbs 4:18)

 

My Faith Looks Up to Thee

 

While life’s dark maze I tread,

And griefs around me spread,

Be Thou my guide.

Bid darkness turn to day,

Wipe sorrow’s tears away,

Nor let me ever stray,

From Thee aside.