Category: Burdens

A Light In the Dark

It had been a dark day here.  Clouds were thick with not one peek of sunshine all day.  The outline of the bare trees was stark against the grey sky.  The big oak tree out back looked dull, even though its leaves were still clinging to its branches.  It was just a heavy day in the way that often happens at this time of year.

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And then suddenly everything changed.  I’m glad that I looked out the window when I did.  The change, though stunning, was very brief.

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Somehow the sun did shine through that thick layer of clouds.  And what a difference its appearance made.  Color returned to the world outside my window!  Greens, golds, rusts, and even blacks were so beautiful in those few moments.  And those moments showed me that the sun was there behind the clouds, still shining even when the clouds hid its brightness again.

I don’t know why sometimes God allows His children to endure prolonged periods of heavy, dark days.  I do know that suffering makes us more like Christ.  Suffering is the tool that God uses to form us into His likeness……to show us Who He is……to bring Him glory.  Sometimes it just doesn’t make much sense, though.  And it hurts, deeply hurts.

There is hope.  God hasn’t gone anywhere, even when we can’t see His light.  These few words that I read recently say it very well:

“Light arises in the darkness for the upright….”  (Psalm 112:4a)

This is so much more than our human wisdom.  This promise isn’t, “Just look at the bright side!”  Sometimes there is totally no bright side to see anyway.  Please don’t tell me to try to find one.

The light that arises in our darkness is the Light of the World.  The baby that we celebrate this time of year is that Light.  John called Him the true Light.  But baby Jesus was born into a dark world in a dark manger.  His life was hardship and ended in horrific pain….all because He was the Light.

His light shines into all my dark places today, not only to expose sin, but also to show me the way and to show me that He is there in the darkness.  He is there to comfort……He is there to provide…….He is there to love.

I don’t have to “find” Him.  He shows Himself to me in sudden ways, sometimes even brief ways, like my burst of sunshine on that heavy day.  He brings sweet answers to prayer.  He fills my heart with peace.  He brings a friend to cheer me.  He reminds me of my many blessings.

The dark days grow my trust.

The light that arises in that darkness reminds me of the One in whom I trust…..that He is there and He is faithful.

The light shines best in the dark.  May I remember that truth on every dark day.

You Want Me Gone?

The other night, Aaron kept coming in our bedroom after we had gone through his bedtime routine and said our goodnights.  Gary was already trying to go to sleep, and I wanted to do the same.  But Aaron kept opening our bedroom door and then softly knocking on our closed bathroom door……as softly as Aaron knocks, which is about as softly as he whispers……which is not much. 

“AARON!!” I hissed.  “Why are you in our room?” 

“I just wondered if you’re gonna have the monitor on,” he said.

“I’ve already told you I’ll have the monitor on,” I replied.   “Now go to bed!”

Not long after, it happened again.  Just repeat the above scenario, but this time Aaron said, “I just wondered if it’s going to rain tonight.”

I told him it was not going to rain…..and to go to bed, as I escorted him to our door, which I soundly closed.

Take three.

Same thing, except now he stood in the bathroom with me saying, “I just thought I could talk to you while you get ready for bed.”

The Mom look I gave him was all he needed, but still he just had to ask one more question.

“Are you SURE you want me gone?”

I assured him that I was sure as I yet again walked him to the bedroom door, closed it with one last goodnight……and locked it!

It’s been a rough couple of weeks with Aaron.  Both his seizures and his behaviors have escalated…..seizures at home, behaviors at his day group, Paradigm.  Another bad report this past Monday just took all the wind out of me.  Gary and I feel like nothing is working, but something has to make a difference.  We saw his caregiver at the Epilepsy Center this week, had labs drawn, will see his autism doctor before long, talked to friends who travel this road, are researching some options……and praying.  Praying a lot.

I was so thankful for the verse that God gave me this week.  The portion that meant so much to me was this phrase: 

“DO NOT HIDE YOUR EAR FROM MY PRAYER FOR RELIEF.”  (Lamentations 3:56)

It’s like that old story of the guy up in the tree with a coon, telling his friend on the ground, “Just shoot up her amongst us!  One of us gotta have some relief!!” 

It’s funny to hear that story…..not so funny to live with Aaron when he has so many behavior struggles that are severely impacting his happiness.  But all of us need some relief, Aaron included.

When he and I got home on Monday, after such a dismal report from his day group staff, Aaron went to his room.  Soon he walked up to me and handed me one of his sticky notes.  Here is what he had written:

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Bless his heart.  He really wants to do better, but finding that better is very difficult for him in certain circumstances.  Really impossible at times, as his Epilepsy nurse and practitioner discussed with me on Wednesday. 

That verse God gave me early in the week was perfect.  We need relief, as many believers through the ages have expressed, and as many of my friends are experiencing now in their lives in very serious ways.  The book of Lamentations is all about God’s faithfulness throughout the stresses and calamities of life on this earth.  In fact, the following verse after the author begs God to not hide His ear, says, “You came near when I called on You; You said, Do not fear!”

Good advice…..great promises!!

The day after these verses spoke so much to me….the day after Aaron’s bad day at Paradigm…..this happened.  I was out with my little elderly friend, Nora, when I got a text.  This text was from my friend in Texas, Dona, whose husband had a terrible stroke 11 months ago.  Dona and I rarely text, so I was surprised and a little alarmed to see her name appear.  I instantly thought it might be about her husband, Steve.

But all Dona said was, “Are you doing OK?”

Wow!!

She had totally, absolutely no way of knowing what I was dealing with.  We briefly texted, with her telling me that I had just been on her heart and mind.  God at work, without a doubt.

I could hardly wait to get home and call her.  We talked for quite awhile.  She told me again that she kept thinking about me and so she prayed.  I love it when God does these things!  He shows His love and His care in these amazing, wonderful ways, blessing all of us in the process.

A day or two later, Aaron and I were in Dillon’s.  We bought our few items, and then the cashier pointed to a large container of roses at the end of the conveyer belt. 

“Would you like a free rose?” she asked.

And Aaron jumped on that like a flea on a dog!!  He took a rose and then handed it to me, his face nothing but a huge grin.

“Here, MOM!”  he boomed.  “I want to give you a rose!!  Because I love you!!”

And with that, he gave me the biggest hug!  I thought my heart would explode!

The love note…..the rose……the hug. 

Mixed this week with the behaviors…..some scary seizures…..doctor visits…..decisions looming.

It’s like Aaron bounding in our room at bedtime, just when we think that he’s settling in for the night.  BAM!!  There he is again, full of talk and excitement, no matter how tired we are. 

“Are you sure you want me gone?” he asks.  No, Aaron, not gone…..but resting.  Go rest, and let us do the same.

His behaviors can be so very tiring.  This past week has been emotionally exhausting for us, as well as physically.  We could use some relief.

But we don’t want Aaron gone…..his personality and his take on life’s events to be gone.  We just want him to be happy, and to know how to behave in a way that makes others happy, too.  We have to keep working on that, and to keep trying to enable him to achieve that.

We’re praying for God to give us wisdom, and to not hide His ear from our cry for relief.  I know He’s listening…..I know He cares……I know He’ll answer.  He’s already impressed others to pray for us.  That’s such an encouragement!

And when I look at my lone little rose in its vase, I’m reminded of Aaron’s love and of God’s love, entwined in many ways in my life.  One so often shows me the other. 

I just have to be making an effort to look sometimes. 

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My View

I was in TJ Maxx with my elderly friend, Nora, last Wednesday when I got a call from Paradigm, Aaron’s day group.  I was tempted not to answer it, figuring it was Aaron just wanting to tell me about his day.  That could wait.  But I wasn’t sure, so I did answer and I immediately knew that the news was not good.  Aaron was on the other end, his voice thick and choked with anger and tears.  Here we go, yet again, I thought.  How I wish that Aaron could stay happy!

I picked him up as soon as I got Nora settled back at her apartment.  Aaron was asleep, so I had time to talk to the staff, all of us scratching our heads as to what caused his angry outburst that morning……and what the solution could be.  I found out from Aaron later what happened.  He tried to give his good friend two McDonald’s coupons and she didn’t want them.  She wasn’t being mean to Aaron, just honest, but Aaron felt rejected and very hurt, so he just had a total meltdown. 

Thursday was a better day for Aaron.  Then came Friday…..

I told Aaron that we would go out to eat when I picked him up at the end of his day.  His choice.  So he chose Denny’s, of course.  He does love Denny’s.  On the way to Paradigm, I talked to him about being nice…..being kind with both his words and his hands.  About talking to someone if he was angry or hurt.  He agreed with everything I said……until he walked into Paradigm.

I was waiting in the van after I dropped him off, waiting for him to come and tell me if they were going to a movie.  But instead, out the door came one of his staff.  She told me that Aaron had become verbal instantly with another client when he walked in the door.  Then out came Aaron, yelling at this staff as he stood on the sidewalk.  He eventually got in the van and off we drove.  My anger and disappointment and great frustration spilled out in harsh words as we drove toward home.  I was so mad at Aaron and mad at myself for being mad, and it just all boiled over. 

I pulled into Denny’s, deciding that it might do us both good to be in a neutral place.  Aaron sat on the curb before going in, saying that maybe he just shouldn’t go in to eat.  I told him to come on and he did, but for most of the meal I just sat silent.  I was exhausted and defeated and still battling my anger.  Aaron was scared……scared because of all the people from whom he fears rejection, he fears it the most from me.  He kept telling me that he loved me……kept trying to share his salad with me…..his crackers, French fries, chicken strips……even reached over, took my hand, and kissed the back of my hand.  Yes, he really did that.  I wonder who saw it, and what they thought of my lack of emotion? 

We ran into WalMart after our meal, where I picked up food for Thanksgiving bags for church, and Aaron tried to help.  I still felt numb, tired.  After I checked out, I looked toward the bench where Aaron was sitting, and this is what I saw.

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Then my heart did stir with sorrow for Aaron as this picture of him was a picture of dejection, and his own tiredness.  Oh Aaron, how I wish your life wasn’t so difficult and hard!  And how I wish you could understand that you so often make it that way, and yet so often you can’t control the impulses you have that make you make it that way.  It’s so complicated!

Aaron went right to bed when we got home.  I went to the patio, baby monitor and my Bible in hand.  I could listen for seizures while I spent some time unwinding and processing……reading my Bible and praying.  I could hear Aaron’s steady breathing on the monitor as I breathed out my prayer to God, asking Him for wisdom to know how to deal with these constant ups and downs from Aaron. 

I called my friend, Wendy, who walks this road that I walk.  She understands and doesn’t judge.  She offers counsel and advice, empathy and understanding.  And I know that she prays for us, for Aaron……prays with love and care.

Aaron was awake then, coming outside to test the waters……to see if Mom was still distant and angry.  He relaxed some when he could tell that I was better.  He smiled when I said that we could take Jackson for a walk around the yard.

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We walked down to the back of our yard, around the huge evergreens that hide the very back loop of our property.  It’s an area that is hidden from view as you stand on our patio or look out our windows.  You would never know it’s there until you walk behind the thick trees that keep it hidden.

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I stood looking at the eerie sight.  Branches of the old trees there hang low, gnarled together as they bend toward the ground.  A finger of the neighborhood lake curls around under the limbs, still holding water since we’ve had such a wet summer.  It’s a shadowy and dark place, a little creepy even.  It’s interesting, but not warm and welcoming……not a place I want to linger for long. 

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As we stood there, Aaron talking and Jackson sniffing the bushes and tall grass, it hit me that this is so much like our life with Aaron.  Anyone who lives with a person who has autism…..or multiple seizures…..and takes tons of meds to help them…..knows what I mean. 

Aaron is funny and smart and often kind.  But he is also prone to angry outbursts where he is hurtful and unreasonable.  For days we may mostly see the pleasant side of Aaron, but we know that hidden inside him is still the anger and the frustration that he feels, and sometimes releases.  It is not a fun place, and it is not a place where we desire to linger.  Yet sometimes Aaron makes us linger there as his brain is going through whatever his brain goes through at those times. 

I know that mentally and emotionally I must walk away from the shadows that threaten to engulf me when I am overwhelmed by Aaron’s behaviors.  He needs me, for one thing.  And I need to stay whole and strong, loving and forgiving.  It’s not easy, but I must.  Friends and family help.  A good staff at Paradigm helps.  Gary is my biggest help, taking over when I can’t.  And definitely, crying out to God helps the most. 

Aaron and I turned from that scene, finally, and went back out into the open yard…..to the sunshine and grass……to the full view of our welcoming house.  Likewise, given a little time, he and I returned to our normal relationship.  I love him dearly.  I know he needs me.  He needed me when he had three hard seizures during the night on Friday.  But he also needed me even more when he was out of control emotionally that day.  He needed me to believe in him…..to discipline him……to try to help him even when he pushes me away……to care for him and to love him.

Behaviors are perhaps the hardest part of Aaron’s disability.  They are frustrating, embarrassing, and exhausting at times.  Families who deal with this need extra love and prayer.  Staff who deal with this need the same, as well as frequent thank-you’s for what they endure. 

Aaron’s behaviors hold him back in many ways…..and could easily hold us hostage in many ways, as well.  But Gary and I know that we can’t let the dark times be our focus.  Like the staff at Paradigm says, today is a new day and we start all over.

We don’t always get to choose our view on any given day, but we don’t have to stay forever where the view is scary and dark.

“Today is the day that the Lord has made!  Let us rejoice and be glad in it!”  (Psalm 118:24)

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How Quickly Things Can Change!

This past Saturday, I took advantage of the beautiful weather and spent some time in the garden.  I ended up with a large bucket full of tomatoes.  Our tomato plants have produced beautifully this year!  It’s certainly the best tomato year we’ve ever had.  I’ve canned quite a few quarts, and as I looked at my overflowing bucket I knew that there would be more canning soon to come. 

Aaron was in a very happy mood over the weekend.  One of his favorite staff from his day group came over for pizza on Friday evening.  When he left, Aaron got to spend some time petting our neighbor’s cat, Dallas.

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There was a favorite television show to watch that night, too.  And the next day there was time outside, time playing Skip-Bo, and tacos for supper that night.  It doesn’t get much better than that!  Simple joys are sometimes the best joys.

Aaron was in such a helpful mood on Saturday, too.  He helped me cook the tacos and set the table.  And then he offered to help me wash the tomatoes from the garden after supper.  We got them all cleaned up, with Aaron stacking them higher and higher on the counter.  We laughed when four of them fell on floor and we had to reposition the tomato tower. 

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On Sunday afternoon, Gary and I had hoped to take Aaron to a corn maze.  However, Aaron started complaining of a sore throat.  We could also tell that he was getting a cold.  We’ve learned not to tell him in advance that we might go somewhere, just in case it doesn’t work out, so he was none the wiser when Gary and I cancelled the corn maze idea.

On Sunday night…..actually, early in dark morning hours on Monday……Aaron had a seizure at 1:20.  Then another and another, until finally he ended up having five very hard seizures in five hours.  He was already struggling with all the head congestion, so the seizures were a little scarier than usual.  He bit his tongue and wet his bed – all the bad stuff that points to hard seizures. 

He slept all day yesterday, Monday, on the couch while I washed all of his bedding.  When he did awaken, he sounded terrible because of his congestion and his swollen throat.  He was running a fever.  He was terribly weak, the seizures having taken quite a toll and then his illness making matters worse. 

He very slowly made it up the stairs in the late afternoon, on all fours like a monkey because when he’s weak he feels safer that way.  He climbed in bed and immediately fell back to sleep.  He got out of bed for an hour, later in the evening, and then slept all night last night. 

I took him to the doctor this morning.  Aaron had pneumonia last year and was in the hospital for a week.  That was my fear now, but thankfully he doesn’t have pneumonia.  In fact, we’re treating this as a virus and waiting to see what happens.  Too many antibiotics last year was really hard on his body for months afterward, so we want to avoid those drugs if at all possible. 

Aaron ate a little lunch when we got home.  Now he is sleeping, again.  Poor guy. 

And I’ve been thinking how quickly things can change.  Sickness with Aaron is more serious than it usually is with most of us.  Sickness on top of five hard seizures has just done a number on him.  He is very slow and wobbly, and extremely tired.

It’s amazing how we could go from this:

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To this:

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To this.

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Hopefully, what Aaron has right now is nothing terribly serious.  But the stark change that he has gone through, literally overnight, is a reminder to me that we just never know what a day……what an hour……might hold for us. 

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In James 1:2, James told us to consider it joy when we encounter various trials.  That word “consider” means to make a judgment.  It’s up to me to decide how I’m going to view my hard times.  It’s my call.  And various trials really mean “multi-colored trials.”  I think we all would agree that trials come in all different colors.  God uses a wide variety of situations in my life to grow me and to teach me. 

But again, it’s what I do with my trials that can make all the difference.  It’s like Aaron’s pile of tomatoes, stacked up on the kitchen counter.  I could have left them there, where eventually they would rot and be no good for us or anyone.

Or I could do what I did Monday while Aaron slept nearby on the couch.  I could use the tomatoes for something good……for something that will benefit us during the cold winter that’s coming.

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It was my decision what I did with those tomatoes.

And it’s my decision what I do with the trials in my life, so often unexpected and unwelcome.  God is waiting to grow me through the troubles I have.  I don’t have to understand them, but I do have to make the choice to let God use them in my life for something good…..and in the lives of others as well, I hope. 

Not to become bitter, but better.  And then in future cold days that may come, I will benefit from the lessons learned…..learned in the hard times. 

 

 

 

 

 

 

Wilted

I have some container plants on our front porch.  They need routine watering, of course, but definitely need plenty of water during our very hot Kansas summer.  A few weeks ago, I was guilty of neglecting those plants for longer than I should have.  You know how it is.  I just got busy with many other things.  I would remember the plants and tell myself I needed to check on them, but then once again I would forget to do so in the midst of running here and there.

I had noticed my pretty Impatiens in the corner drooping a little one day, so I gave myself a mental note to water the plants that evening.  But I yet again got distracted and didn’t water them like I promised myself I would do.

When I finally went to check on the plants some time later, I was sad to see that my Impatiens was completely wilted.  “Beyond wilted,” I thought.  “This poor plant is dead……gone.”

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I very nearly just tossed the pitiful thing in the trash can, but something made me stop.  I decided to go ahead and water it.  What could it possibly hurt?  So I filled my watering can, gave all my plants a much needed drink, and waited to see the result.

The first time I looked at the dead Impatiens after being watered, it didn’t look any different.  This just confirmed to me that it was beyond hope.  But still I waited.

And wouldn’t you know, by the next day I was amazed at what I saw!!

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My once dried up plant was now thriving once again!  It had sprung to new life because of simply being watered.  It soaked up what it needed once that life giving need was provided.

I have gone through times in my life where the bad news and the burdens are overwhelming.  Sometimes it’s been hard to handle the stress, and so I have bowed low under the pressure.

It’s during these heated times in my life that I must not let myself neglect the one important element of what sustains me…..God.  He knows my situation and has even planned my path for a purpose.  But it sure is easy to become distracted from Him as I feel the weight of my fears and burdens.  Someone else felt this way, too, and wrote about it beautifully in Psalm 42:

“Why are you in despair, O my soul?  And why have you become disturbed within me?  Hope in God, for I shall again praise Him for the help of His presence.”

When we know God, it doesn’t mean we won’t suffer.  It doesn’t mean we won’t feel despair.  But knowing God does mean that we have hope.  Hope in God is hope well placed.  It’s a hope that brings us to praise…….praise for His help and His presence.

“The Lord will command His lovingkindness in the daytime; And His song will be with me in the night, a prayer to the God of my life.”

God loves us throughout each day and even gives us a song during the awful dark hours of the long nights.  That song is our prayer as we lay in the stillness of night, when everything seems darker and bigger and more awful than in the light of day.  Our prayer to God…..our deep groanings……our praise…..turn into a song, even when we don’t really hear a beautiful tune at that moment.  But God hears and He is pleased, and He is the One Who turns our prayers into a song.

Just in the past few days I have a dear friend who found out that she has breast cancer.  She will soon begin chemo and then face surgery.  My brother-in-law went in for a heart cath and was told that he will need bypass surgery.  A friend said goodbye to her wayward son as he moves very far away, and she feels she may not ever see him again.  Another friend is watching her son’s seizures dangerously increase as she awaits a visit with their specialist in Memphis.   I could keep going.  It just seems like there is so much suffering and personal attack right now.

This past Monday I sat in a friend’s back yard, at her picnic table, and we along with another friend were sharing some of the ongoing situations that one friend especially is dealing with.  This wonderful mother and wife, my sweet friend, suggested that we pray.  She bowed her head and started speaking very comfortably with God.  We all prayed, just as if God was sitting right there with us and we were including Him in our conversation……which is really the case.  It was so sweet, and each of us was so encouraged in just the way that we needed.

Just like my wilted plant.  We all felt like this at first –

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But after praying, we were encouraged and refreshed…..just like my plant that finally received water.

“Why are you in despair, O my soul?  And why have you become disturbed within me?  Hope in God, for I shall yet praise Him, the help of my countenance and my God.”

The more I wilt, the more I can count on God to give me just what I need as I hope in Him, praise Him, and rest in His arms.  He will refresh me and He will revive me, even in the heat of the trials that I may be encountering.

He’s a good God and an amazing caregiver for us.

And He never forgets us when we need watering!

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The Skies From My Window

Many of you know that I love taking pictures of our pretty Kansas sky.  My favorite place to take those pictures is from the window in one of our upstairs bedrooms.  This bedroom will always be, to us, Andrea’s room – even though she moved from home several years ago.  When I see a particularly pretty sky I will run upstairs, open the window and lift the screen, and fire away with my phone camera.   

As I look back on these pictures, I find that no two are the same.  Absolutely every shot of our sky, on every day that I took those shots, is entirely different……if there are clouds involved, that is.  I don’t usually take pictures of a totally blue sky, though blue skies are nice.  But after a while, completely blue skies would be a little boring. 

Sometimes the pictures are simply beautiful, like the one I snapped last night.  Isn’t this just breathtaking?

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Some inspire awe, like this one.

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Sometimes I see life.

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Other times the seasons show themselves.

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This one view, from the same windows…..the same vantage point……is anything from being the same, day by day. 

It’s a lot like my circumstances in life……like yours, too, I’m sure.  Our circumstances change, sometimes often and other times less frequently.  At times the changes are dramatic.  Other times the changes come subtly, but they come regardless.

Our circumstances may be pleasant, and some of the changes we go through can be happy and pleasant as well.

But other circumstances are painful or shocking, involving deep hurt……fear……dread. 

Last week I found out about two friends who were just diagnosed with cancer.  And I took another friend for some testing after an X-Ray showed something suspicious.  We are still awaiting her results.  Some have already received disturbing news…..others are still waiting, with dread, on what may be.

My circumstances……my surroundings……can on one day fill me with peace and on the next day fill me with worry.  It’s like my view of our sky from the upstairs windows.  Sometimes peaceful…..

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Sometimes stormy……

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I’ve been reading through the book of Exodus.  Moses certainly experienced a variety of circumstances in his life……plenty of high’s and low’s.  From a basket in the bulrushes to the palace.  From the palace to the desert.  From shepherding sheep to leading a nation.  From the parting of the Red Sea to the grumbling of that unhappy nation.  From speaking to God on the mountain to confronting idol worship at the foot of the mountain.  From obedience to anger. 

After the Israelites had given up on Moses and turned to worshipping the golden calf, Moses and God both were pretty angry.  Moses went back to God after things settled down a bit and he prayed.  He said, “God, let me know your ways that I may know you….” 

God’s answer? “And He said, My presence shall go with you, and I will give you rest.” 

God’s presence is all that His people needed……and it’s all that you and I need.  He’s promised to be with us, and He’s promised to give His children rest. 

Two things I’ve learned in the years that I have lived.  First, don’t look to my surroundings for rest…..even in the good times.  When life is going well, with sunny skies and soothing views ahead, those things should not be the source of my rest and peace.  I’m thankful when life is pleasant, but pleasantness is not the source of rest.  Only God is to be my strength and my peace.  Knowing Him and depending on Him, following Him and trusting Him, is still the number one thing I need to do when the skies are sunny and beautiful.

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Second, I’ve learned to also not let my surroundings…..my circumstances……pull me down and rob me of rest.  This happens so easily when skies are stormy and life is stressful.  Bad news…..stressful relationships……more bills than we have money……wayward children……    We all know what it’s like.  Life is full of the hard times, unfortunately, and they often happen suddenly.  At other times we live under the stresses day after day as they gradually take their toll.  But still, the rough times are to be a time of rest……..and they can be if we know the same God that Moses knew. 

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For God’s promise to Moses is our promise as well:  “My presence shall go with you and I will give you rest.”  (Exodus 33:14)

Remember I said that pictures of blue skies would get boring?  I love blue skies, but honestly the best pictures occur when clouds are present. 

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So it is with us.  I believe the best lessons are learned when we have some clouds in our lives.  Deeper trust and greater joy have been my experience during the stormier times of life. 

Those clouds also bring a more intimate walk with God, full of so much beauty.  Hopefully I can reflect Him more as I walk closer beside Him. 

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And I can rest.  I don’t know today how God will give me rest, but He has said He will and I believe Him. 

Rest, and enjoy the view, because with God life is stunning.

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The Hanging Sunflowers

It’s a little hard to believe that after 17……..yes, that’s 17!!!…….years of living in Kansas, this is the first year that we have planted sunflowers.  I have no idea why we waited so long, but maybe that long wait is one reason that I am enjoying them so much.  And as always, I’m learning more from our sunflowers than just the mechanics of how they grow.  God speaks to me through my growing things, including through my own growing…..which is often a little painful, I’ll admit.

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Did you know that sunflowers follow the sun?  Maybe that’s a “duh” comment to most of you, but I noticed how our sunflowers………while they were beginning to bloom and before the big flowers opened…….were leaning one way in the morning and then leaning another way in the evening.  In my reading about sunflowers, I discovered that they literally do follow the sun during this “beginning to bloom” phase.  It’s called the Sunflower Dance.  They are the only flower, from what I read, that engage in this dance.  How amazing!

I was super excited when our first sunflower actually bloomed.  And boy, it was a huge one!!  We really planted these sunflowers for Aaron, but he didn’t really get nearly as animated about that first flower as I did.  Of course, Aaron rarely gets as animated about everyday things as most of us do.  Now, if it was an alien standing in our garden……

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Anyway, this huge first sunflower was just gorgeous.  So tall…..so erect……so bright!!!

But after a period of time, I noticed that the stunning head of our sunflower was drooping.  Being the sunflower novice that I am, I wasn’t quite sure what was happening.  I WAS quite sure, though, that as our sunflower head hung lower and lower, I was very disappointed.

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I thought sunflowers were supposed to be all tall and amazing for their whole blooming life.  I surmised, in all my “wisdom,” that this particular sunflower must have just been too large for its own good.  The stalk must not have been able to support that weight, and so it just could bear it no longer and it sank down in defeat.

But if you look at this recent picture I took of Aaron with the sunflowers, you’ll see that nearly ALL of them are now bending over.  And now I understand why!

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The sunflower hangs its head when it’s producing fruit!  Sunflower seeds are now ripening in each of those gorgeous blooms, and soon can be harvested.  On the actual sunflower, there are many individual flowers……and behind each flower, there is a seed.  But the seed doesn’t ripen until the head is lowered.

This was a very meaningful discovery to me, and it’s for more reason than just no longer being worried about my droopy sunflowers.  It’s meaningful to me because of ME.  I’ve been a little droopy lately……weighed down by this and by that, as all of us are sometimes prone to be in this life.  I haven’t been sleeping well, and not sleeping at night is when my concerns escalate into giants……giants that like to follow me around all day.

Have you ever been there?  Bothered by both small and large issues in life?  Questioning why things are what they are?  Sad?  Lonely?  Exhausted?  Just weighed down, like my sunflowers……bending low under the weight of stress and worry.

Yesterday morning, I did what I often do when I am feeling overwhelmed……I asked God to meet with me.  Not that He needs an invitation, but there are times that I really know I need to reach out to Him and ask Him to have a talk with me.  I opened my Bible, looked down, and found myself staring at Psalm 77.  Wow!!!  How perfect!!!  Read a few portions of this Psalm:

“In the day of my trouble I sought the Lord; In the night my hand was stretched out without weariness; my soul refused to be comforted. When I remember God, then I am disturbed; When I sigh, then my spirit grows faint.  You have held my eyelids open; I am so troubled that I cannot speak.”

Sounds a little depressing, doesn’t it?  That’s why this Psalm is called a Psalm of Lament.  But that’s pretty much how I’ve been feeling.  Keep reading:

“I will meditate with my heart, and my spirit ponders.  Will the Lord reject forever?  And will He never be favorable again?  Has His lovingkindness ceased forever?  Has His promise come to an end forever?  Has God forgotten to be gracious, or has He in anger withdrawn His compassion?”

We wonder sometimes, don’t we, if God has just quit caring….or if maybe we don’t feel Him so much anymore because the deeper we hang low, the farther away He becomes?  Which then means that I’m responsible for God pulling away, and that’s really depressing!  But listen to what comes next:

“I will appeal to this, to the years of the right hand of the Most High.  I shall remember the deeds of the Lord; surely I will remember Your wonders of old.  I will meditate on all Your work, and muse on Your deeds.  Your way, O God, is holy; what god is great like our God?  You are the God Who works wonders; You have made known Your strength among the peoples.”

It’s what I think about that can make a huge difference in my emotional well being.  Using my mind to remember God’s past goodness, His sovereignty, His Word, His hand in my life……all these things are what I need to ponder in the darkness of the night and in the light of my busy days.  God has, and He does, make His strength known to me when I need it most.  And sometimes His plan does include the burdens that pile on to me and bend me low.

BUT……and this a huge “but”……..when I am burdened and bending low is when God is producing fruit in my life.  Just like my hanging sunflowers out in the garden producing their fruit, God uses the low times in my life……if I LET Him……to produce some needed fruit.

And so my thoughts turn to Romans 5 and I am once again reminded that:

“……we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.”

Delicious seeds are growing out in my garden among my once dancing and then erect blooming sunflowers.  Birds…..and maybe Gary, Aaron, and me……will one day enjoy those mature seeds.  But right now, the sunflowers look a little weary as they sag and droop.  Yet if I kept the tall, bright sunflowers all the time, there would be no fruit.

And so it is with me.  If things were always fun and wonderful, I would miss so much that God wants to teach me.  I wouldn’t be a partaker in the fellowship of His sufferings that He tells us is the only way to grow and learn and be more like Him.  I would have no substantial fruit…….only outward beauty that matters nothing.

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My little issues are really just that……small and not such a big deal.  But they are a big deal to me in many ways, and it’s what God seems to want to use at this point in my life to draw me to Him.  And that pull toward God is best accomplished when I am bowed down, hanging low, and thus producing the fruit that He best grows in the drooping times.

So may I patiently let God do His growing work in my life, praying that I produce the fruit He desires.  And maybe…..just maybe, if I obey……that fruit will also be used to honor God, and bless and encourage others.

It can be your story, too, this time of hanging low and producing fruit.  May we all remember the hanging sunflowers!

 

 

 

The Shriveling Sunflowers

Aaron had been wanting us to plant some sunflowers for quite some time.  This year I finally bought some sunflower seeds…..giant sunflowers, no less…..and while I was off to Houston to see Andrea in June, Gary and Aaron planted the sunflower seeds.  They rim our garden on two sides and have grown, and grown, and grown some more.  It’s been fun to watch them as they have progressed from little seedlings to what they are now.  They are indeed giant sunflowers, living up to their name as we hoped they would.

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One day, though, Gary announced that he would need to move two of the sunflowers.  That’s because those two thriving plants were in the way of the sprinkler head that Gary had installed in that front part of the garden.  I was tempted to say that we should just throw them away.  We had enough sunflowers and wouldn’t even miss those two, I thought.  But something stopped me from making that suggestion.  I also admire Gary’s care of our plants and animals, sunflowers included; so I just watched one day as he carefully dug two new holes, gently took those two intruding sunflowers, and placed them in their new locations. 

It didn’t take long, though, to see that this move had taken a severe toll on both the sunflower plants.  They were no longer standing straight and tall, but instead had drooped dramatically.  “They won’t make it,” I thought one day as I went to the garden to pick some produce.  “The change and the move was too much for them.  We really should have just thrown them out.”  You can see how pathetic they looked.

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I could have pulled them up right then and tossed them in one of our trash cans outside.  But again, something stopped me……and I’m so glad it did. 

I’m glad because in only six days from when I took those pictures of our very sad sunflowers, I again went out to the garden and was amazed at what I saw!  Look at this!

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Both sunflowers had grown!  They had not only grown, but they were each producing the beginnings of a sunflower BLOOM!!

Sure, they still looked a little worse for wear.  They still carried some scars from being transplanted.  Some of their large leaves were still wilted, and many of the damaged leaves had died, shriveling and brown.  But if I looked up above the evidences of their past stress, I could see life……new leaves, new growth, and definitely a sunflower bloom.

A couple days later the bloom on the sunflower at the end of the front row, the one that had looked the most hopeless to me, had opened even more.  Other sunflowers in that front row were now blooming as well, but this one had beat them to it and was holding its own among the taller, less damaged plants.  My miracle sunflower!

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Have you ever felt like life was going along just fine?  You enjoyed where you were…..what you were doing…..who was surrounding you?  But one day things changed.  Maybe it was over a matter of time, long or short, or maybe it was sudden.  But you found yourself transplanted, in a sense, from what you loved…..from what was comfortable…..even perhaps from people that you enjoyed being around.

When life changes like that and we are put into the unfamiliar or the unwelcome or the uncomfortable places, then it’s natural to shrivel up as we react to the shock of such changes.  We don’t have the strength on most days, we think, to continue on like others around us seem to do so easily.  Don’t they see our pain?  Don’t they feel our sorrow?  And even if they do, they really don’t……totally. 

But the real issue is our own adjustment to our new normal, trusting the One Who transplanted us in the first place.  Why did God think it was OK to yank us out of our growing place and put us somewhere else……somewhere that we never asked to be?  Yes, we said we trust the Lord and we trust His plan and all that, but we never dreamed that His plan would be so difficult.

Those sagging sunflowers had two things that I had not counted on nearly enough.  Roots under the soil, and sunshine up above.  The roots took hold, and the sunshine gave strength and growth, despite the trauma of being uprooted and replanted.   Those sunflowers had elements fighting for them that enabled them to eventually perk up and once again grow like they were meant to grow!

Moses looked at the children of Israel in the desert after they had just crossed the Red Sea.  They didn’t like being slaves, but this freedom business wasn’t all it was cracked up to be, either.  They had just seen God open the waters of the sea so they could cross over.  Moses then reminded them of a valuable, life changing truth.

“The Lord will fight for you, while you keep silent.”  (Exodus 14:14)

Oh, how many times I have doubted God and His plan in my life!  Or if I haven’t exactly doubted, I have deep down wondered about why I am where I am.  I liked where I was before.  I liked how things were going.  But this business of having God yank me out of my place I loved……even the place He had at one time PUT me……is not all it’s cracked up to be in all the sweet devotional books I have read.  It’s just hard sometimes…..and exhausting.

I have felt like my two sunflower plants sometimes.  Shocked……tired…..unhappy…..positively wilted. 

But what God told Israel……what He tells me……what He tells you……is still true, every single day.

He will fight for me.  There’s something to be said for being rooted in Him, and for feeling the warmth of His Word in my heart even while I’m trying to adjust to this new place.

And God doesn’t need me to do anything while He’s fighting.  Just keep silent.  “Be still and know that I am God,” David said in Psalm 46. 

My keeping silent is sometimes the hardest part of all.  I want to complain…..to question…..and most assuredly to suggest to Him a better plan.  A better place in the garden.  A better will for my life.

But He just wants me to zip my lips and watch Him take care of every issue and every concern and every worry and every frustrating moment and every sadness.  I think that about covers it.

And God will cover it, too.  He will fight for me while I am silent, watching and waiting for Him to take care of the battle.

Then one day I’ll notice something.  A bloom.  And some new leaves.  I still might feel some scars and see some not-so-pretty leaves, but I will see that I AM growing.  I AM still alive after all the stress.  Not because I am so strong, but because God is so able.

He did the fighting for me while I just did the lip zipping and the trusting.  I may never understand the reasons for all the upheaval, but I don’t need to understand.

I just need to obey, and then to enjoy the new life that God gives me.  New blooms…..new chances to thrive again……new experiences. 

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An opportunity every day to look past the stress and into the face of the One Who is fighting for me with everything He has……and that’s more than enough. 

 

 

 

God, Are You Listening?

Gary and I are far beyond the baby years, and we have no grandchildren yet, but we still sleep with a baby monitor beside us every night.  It sits on my nightstand as we listen for Aaron’s nocturnal seizures.  It sure is a handy tool to have!  Most of Aaron’s seizures are at night, in his sleep, so the monitor enables us to hear him and to go help him. 

Aaron never remembers his seizures, which is a blessing.  But he has seen others have seizures at his day group, so he has seen what they can be like.  And he is well aware of how he feels afterward, with a terrible headache or nausea or waking up in a wet bed.  Sometimes he loses his sense of taste for a day or two.    It’s a reality of his life that he accepts remarkably well……probably much better than I do.

In the last couple years, though, Aaron has shown a degree of fear concerning his seizures.  He’s not one to sit down with me or Gary and verbally express his fears.  But every single night as we go through his bedtime routine, he asks me two questions.

First:  “Mom, is it going to rain tonight?”  He just must know if it’s going to rain.

Second:  “Mom, are you turning the monitor on?” 

Sometimes I beat him to it and after our goodnight hug I answer those two questions before he can ask them. 

“Good night, Aaron.  Sleep good.  I’ll see you in the morning.  Love you!  And it’s not going to rain, and I will turn the monitor on.”

But if I’m going downstairs to fix the coffee pot or whatever, Aaron always says, “Do you want me to bring the monitor down to you?”

And on many nights, just for extra measure, we will hear Aaron walking up the hall and barging into our bedroom if the door isn’t locked.

“Mom, is the monitor on?  Is it on right now?” he asks.

Sometimes when I’m extra tired I get impatient with this routine, and then I feel guilty about it.  That’s because I know why Aaron is so concerned about that monitor.  I asked him about it once, knowing that my questions can put thoughts into his head, but still wanting to hear what he had to say.  So I asked him if he was scared of having a seizure, and he told me that he was.  We didn’t talk deeply about it, but his answer was enough to pull at my heart and make me think as I often do about how I would feel if I was in his shoes.  Seizures are definitely scary, and Aaron most definitely wants me or Gary there with him if he has one.  Of course he does.  I would feel the same way.

So every single night, and also for every single nap on days that he is home, I make sure he knows that the monitor is on and that I am listening.

The monitor did its job last night…..three times, actually.  Aaron’s first seizure was a little after 11:30, and then two more followed during the early morning hours.  He’s sleeping on the couch now – has been for a few hours since he woke up before 6:30 to discover his condition, change pajamas, and make his way downstairs.  He took his morning meds and went right back to sleep, waking up awhile ago to ask for his cups of coffee, and then back to sleep again.  Seizures take such a toll on his body.  They take a toll on my heart.

But this morning…….as God always, always does…….my heart was comforted by reading from the book of Psalms. 

“He who keeps you will not slumber.  Behold, He who keeps Israel will neither slumber nor sleep.”

I can hear me now. 

“God, do You have your monitor on?  Are you listening in case I need you?”

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And God, Who is always patient with me, tells me once again that He doesn’t slumber or sleep.  Did you know that “slumber” means “nodding off?”  Like I do sometimes while Aaron and I are watching Wheel of Fortune…….and then Aaron yells, “MOM!!!  You’re not watching!!!” 

But I don’t have to do that with God…..and neither does Aaron.  God won’t sleep deeply and He also won’t even nod off.  He’s standing by Aaron’s bed with me during every seizure.  Then He stands by my bed when I lay back down and try to go back to sleep, which is often hard to do.  He knows my fears for Aaron and He understands my hurt for him, but He also reminds me that His plan is sovereign……His plan is best……even if His plan isn’t understandable to me. 

It’s just really comforting to me to know that God never sleeps, even at night, and that He is beside me as I stand beside Aaron.  And when I feel uncertain and ask Him once again if He’s really there……if He’s really listening…….He just gently reminds me that He is always there and He is always listening.  

God’s just a very good Father to me and to Aaron, and to each of us who know Him.  Even if our view of Him is through our tears and our fears, we know that God is right there with us through it all.   

Do You Wanna?

I hear it all day long.  I’m not exaggerating.  Honest.  At least all the part of the days that Aaron is home I hear it over and over.

He walks into the kitchen or wherever I am in the morning.  Most days he begins his first of many words during the day with these words.  Or if they are not the first words out of his mouth, they will be close to first.

“Mom, do you wanna…….?”

And then he often stops.  He just stands there, thinking of how to fill in the blank after “wanna.”  I used to ask what it was that he wanted, but I’ve learned to just wait.  And many times, really, he doesn’t even complete the sentence.  Sometimes it’s because this question is just a habit with Aaron.  Sometimes he just asks it in order to get my attention.  He asks without even a plan in mind as to how to finish the sentence.  Other times, he does have a motive.

“Mom, do you wanna play Skip-Bo tonight?”

“Mom, do you wanna watch The Incredible Hulk tonight?”

“Mom, do you wanna take Jackson on a walk?”

“Mom, do you wanna take me to Dillon’s?”

“Mom, do you wanna give me extra money?”

I could continue for a long time filling in the blanks to “Mom, do you wanna……?”  Just like Aaron does.

But really, a majority of the time Aaron never finishes his question.  It’s like the unfinished conversation cloud hanging over his head in a comic strip, waiting to be completed but never is.

All parents know that repetitive questions from young children can be tiring.  So it is with me and the “Mom, do you wanna……?”  But it’s not just that it’s tiring to hear it all the time.

I’ll admit that I sometimes get weary of being the usual object of his question.  I know however he fills in the blank….the long pause….it will somehow involve me.  I can no more than pull my chair up to my computer after a tiring day and I soon hear Aaron’s loud thumping down the stairs from his room.  Thump, thump, thump down the first flight of stairs.  Is he going to stop in the kitchen for a snack and go back to his room?

Nope!  Thump, thump, thump down the second flight of stairs……where he then stands behind me and stares at my computer screen, maybe loudly chewing gum.  And I wait, usually not very long.

“Mom, do you wanna…….?”

So honestly, at that point, I feel a little put upon.  No, Aaron, I do not wanna…….

I might be tired physically at the end of the day.  But there are many times that I’m tired in spirit.  Like I said, tired of being the one that Aaron comes to as he fills in the blank after “do you wanna……”

It’s a normal parent emotion, that conflict between loving your child totally yet needing some space.  But when your child is a grown man and he has special needs, the emotions of spirit tiredness can cause great guilt.  I have nice breaks from the responsibility of Aaron while he’s at his day group.  I’m very thankful for that.  Yet there are times at home that Gary and I both feel the weight of being caregiver and companion to our Aaron.

My friend, Wendy, recently wrote about this on her Care Page that she has for their son, Elijah.  Elijah, who prefers to be known as Mr. Speedy, has significant special needs.  We’ve been friends with their family for a long time.  Dan, Wendy, Jeremiah, and Elijah even came to the NHRA race at Topeka to see us and Andrew.

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So read what Wendy said:

As I read my text back to myself, ” E and Me…” I think how I often I write those words. I smirk to myself with a light heart; yet heavy sigh and realize this is my life, my calling, my journey. As the rest of the kids move on and become more independent, E and me are the constant. You can be sure you never have to wonder where E is for where you find (mom) me, you find E.

 How could I ever feel lonely? I have Jesus and my super hero, Speedy, making every day a story to reread. Something about the days with my Super Speedy give me a reason to giggle and reflect on how wonderful life is with my special E. His world is heavenly; childlike and simple; the way the Lord wants mine to be.

Wendy’s sweet, powerful words did me good.  Really good.  Often, seeing life through another’s similar eyes is just what I need in order to see my life more clearly.  As Wendy said, sometimes our lives are very childlike and simple, kept that way by the lives of our boys.  I may at times sigh and wish it wasn’t so, but it is.  And there is joy in that simplicity, even on the hard days.

Maybe I need to fill in the blanks to Aaron’s constant question more often. “Mom, do you wanna…….?”

Aaron, I wanna see you healthy and safe.

Aaron, I wanna see you enjoy life.

Aaron, I wanna see you as happy as you are when you find your favorite “croysants,” as you call them.

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Or as happy as you are when you always, always stand in the back corner of the elevator at the doctor’s office……so you can feel the movement better.

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Aaron, I wanna capture your ability to experience life’s simple joys with great delight, just as much as if you were looking at the Eifel Tower or the Taj Mahal.  A lady bug, a dandelion, a frog, a song……they still tickle you to pieces.  That’s a gift!

Aaron, I wanna continue to be your favorite Skip-Bo partner……even when you cheat, and you laugh when I say, “Cheater, cheater – Pumpkin eater!!”

Aaron, I wanna count my blessings with you instead of numbering some things as burdens.

And when I feel burdened, I wanna take it to my Heavenly Father before I unload on you.

I wanna count it all joy, and know that when I don’t, God understands and He has new mercies every morning…..new yet unchanging.

Just like something else that’s unchanging.

“Mom, do you wanna…….?