Our Texas Trip – Part 2

In my previous blog, I shared with you some of the difficulties Aaron had as we went to Texas to see our other children.  Kyle and Andrea live just east of Houston, and our son Andrew was going to be in town there for an NHRA race – he works for one of the teams.

Aaron loves talking to his siblings on the phone.  He could go on for hours, literally, talking about all his interests.  But suddenly the idea of actually being with them was not so appealing.  It’s the traveling and leaving his comfort zone that he simply cannot handle. 

We all know Aaron very well and have come to expect his anger when his world is upended.  During Christmas, we refer to Aaron’s Annual Christmas Meltdown as we know it will inevitably occur.  So on this week of vacation and visiting, we were fully expecting Aaron’s Annual Vacation Meltdown.

We started our week off in a safe mode, doing something Aaron loves – shopping!  He was happy to go to Sam’s with me and Andrea, carting home extra goodies that he chose.  He was more relaxed and happy that day, until we told him that the next day we were going to the Aquarium Pyramid in Galveston. 

His discomfort level rose as he contemplated tackling one more unfamiliar place.  But when we showed him a video of some of the displays there, his interest overcame his doubt.  And oh my goodness, what a day we had!

The building itself is beautiful:

And once inside, Aaron was beside himself excited!  He loved every single minute.  Everyone nearby heard and saw his joy as he laughed and pointed and talked up a storm.  The day was truly delightful.  Here are some pictures.

Near the entrance, with Gary and Andrea:

He LOVED the penguins: 🙂 🙂

The tunnel was amazing:

He got to pet the Manta Rays, but the first time he bent over in a deeper area he started to fall in the water!  He would have totally fallen in had Gary and I not grabbed him.  His soaking wet shirt and shorts didn’t bother him in the least.  We went up to a safer place and he carried on while Gary and I held on…to HIM!

A visit to the gift shop ended with us buying Aaron a stuffed penguin he wanted.  On the way out of the aquarium, we passed one more penguin display, where Aaron showed the live penguins his stuffed penguin.  The reaction of the one of the penguins, and of Aaron, was priceless.

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We ate lunch at Jimmy’s On The Pier.  It was very windy outside but so beautiful!

What a very fun and wonderful day for all of us, full of happy memories!  I’ll share more in my next Texas blog.  Thanks for reading!

Our Texas Trip – Part 1

I heard an old George Strait song yesterday that could have been Aaron’s theme song leading up to our trip to Texas.  The song is titled “I Hate Everything.”  And oh boy, did Aaron ever!

The night before we left saw us reeling under all Aaron’s verbal blows.  He was livid at having to go with us, far preferring that we hire a caregiver to watch him while Gary and I went alone.  We were definitely with him on that as the evening wore on and we were worn out. 

The next morning was no better.  Aaron didn’t like us, the trip, the car, the snacks we took, Texas, Andrea, Kyle, their dogs…nothing.  The only thing he liked was his idea of staying home and that was NOT going to happen, so we were stuck with lots of “not likes” and plenty of anger. 

“I hate this vacation!!” he declared as we drove down the interstate. 

Aaron does not enjoy leaving his room, his house, his routine, his bed…his normal.  These things are such a part of what makes Aaron function in his normal that the process of uprooting, even for just a week, is nearly more than he can bear. 

Aaron accepted his inevitable doom as we drove farther away from normal.  Gary and I left him to his games, his music, and his movies as we quietly recovered.  How draining it all was!  I texted and messaged friends and family to please pray.  What a comfort it was to know that we were being brought before the Lord!  I know that many of my fellow bloggers were also praying, and I thank you so much for that. 

We stopped a few hours down the road at our favorite Oklahoma City rest area.  And there Aaron found a cute little stuffed owl that we let him buy.  He rubbed his hands together in his happy way as we paid, and Gary and I felt like doing the same as we saw a lifting of Aaron’s anger.  A chocolate milkshake and onion rings from the nearby Sonic gave him further reason to smile. 

It’s a very long drive to Houston, and then even farther to Andrea and Kyle’s house in League City.  Aaron had lots of time to think about the upcoming week of change and uncertainty that he felt waited for him there.  We saw occasional outbursts from him about how he still didn’t like this vacation. 

Finally, there it was…the Houston skyline.

And not too long after, we were pulling into Kyle and Andrea’s driveway.  We could hear their 3 adorable dogs barking as we got out of the car.  Soon we were sharing hugs and doggie pats, settling our things in our rooms, and sitting down to the pizza that was waiting for us.

What a relief it was to see that Aaron was relaxed!  He had immediately given the dogs their treats and toys we had brought to them.  As we sat around the table, I was so touched to see the total attention that Kyle and Andrea paid to Aaron as he talked non-stop. 

That attention to whatever Aaron is saying is one of his major love languages.  The things he talks about can be mind-numbing to us but not to him.  Listening, commenting, answering his many questions…that means more to Aaron than we often stop to recognize.  But Kyle and Andrea know Aaron, and they love him, and they showed it by listening with great interest to his talk of…whatever it was he was saying.  😊

Later, as we were getting ready for bed, Aaron had me fill his water bottle that he keeps by his bed to drink while he reads a book before he goes to sleep.  Got that?  Because that little fact is very important.

I gave Aaron his pills while he was getting in bed.  Not having any other water, I told Aaron to just drink some of the water from that water bottle. 

“No!” Aaron told me.  “I can’t drink that water to take my pills.  That’s the water I drink while I’m reading in bed!”

I was so tired.  I sighed, and Aaron heard me.

“You don’t understand,” he said, with some anger returning.  “No one understands me!”

It was like some of that water splashed me in the face as I was hit with a fresh look into Aaron’s heart.  Try as we might, sometimes it truly is very hard to understand Aaron. 

Or maybe we understand on paper, when things are calm, but in the middle of the moment when we’re stressed it can be very hard to slow down, take a breath, step back, and see the world through Aaron’s eyes.  Feel it with his senses. 

This whole trip was like going to Mars for him in many ways. 

“Please, Mom,” it was like he was saying.  “Don’t also make me use my bedtime water bottle for taking my pills.  Don’t you understand?!”

My rising frustration was immediately replaced with empathy for this son of ours who didn’t ever ask to have autism.  But he does ask that we try to understand him as he lives with the rigidity that autism causes. 

Just understand.

Push aside my exhaustion, my frustration, my expectations – and simply give him a separate glass of water for pill taking.

What a gift that was to Aaron!

And to me as I once again saw him relax.  I knew that I, too, had spoken Aaron’s love language.

I have so much to tell you about our time in Texas.  It was the best trip ever for all of us!  I’ll share more later, hopefully soon, in my upcoming blogs.

Bless all of you for reading and for caring!  Good night and sweet dreams.

Whose Sickness or Health?

Today is our anniversary!  Gary and I have been married 42 years.  I don’t even know how that’s possible, but somehow it is. 

There we stood in my beautiful home church in West Virginia, young and in love, pledging our vows to each other. 

Now we’re old, although I really don’t feel like it most days…and we’re still in love.  Our love is deeper and more settled than those early years, rooted in all the ups and downs of life that we have weathered together.

On my mind today are those familiar vows that are so often spoken at weddings.  We promised to stay true to each other “in sickness and in health.”

Never ever even once did I think of the sickness and health part as being anyone other than Gary or me.  Having a child with lifelong health issues was not anywhere on our radar when we spoke those words to each other and before God.

Today our plans were simple.  We would eat lunch out together while Aaron was at his day group.  Time alone while Aaron was happily occupied was a perfect plan.

Just before 8:00 this morning I heard Aaron having a seizure.  This is not unexpected.  I knew at that moment that our anniversary day plans would be changed. 

Later, when Aaron was awake and hungry, here was our view for a late breakfast on our patio.

And it’s OK, truly.  Gary and I are very used to these sorts of changed plans in our life.  And I am not trying in any way to garner sympathy. 

What has been on my mind this morning is that when Gary and I spoke those vows about sickness, we in reality were referring to our life with Aaron as much as anything – though we had no idea of our future.

Aaron’s life of special needs has been very trying at times.  Yet through it all, Gary has stood right by my side.  He has never wavered due to the stress of it all.  The demands of our many years in the military, his own career decisions, our moves, so many doctors, hospital stays…well, I could go on for a long time about how Aaron’s life has impacted Gary’s in particular.

But Gary never bailed on me or Aaron.  He has led and sacrificed and given of himself to both me and Aaron over and over and over.

So our vows, as I ponder them this morning, have taken on an even sweeter meaning to me. 

Staying true in our son’s sickness and health is indeed the greatest gift of love that I have been given by my husband…my husband of 42 years!! 

Happy Anniversary, Gary!   I love you so much. 

We’ll do a rain check on our lunch.  ♥️♥️

My Times, Your Hand

One evening last week, I looked outside and saw a beautiful red glow on the horizon.  However, my view was hindered by trees.  Knowing there was more to this scene than I could see from my vantage point, I quietly snuck out of the house…so I could drive alone without Aaron…and headed west to see what I would find. 

It was hard to keep my eyes on the road as I drove past trees and power poles.  The sky was so beautiful that I wanted to only gaze on it.  Finally, a few miles away, I found the spot I sought.  Flat…open…unimpeded by trees or poles – there it was.  The perfect view.

Oh my!!  What a stunning sunset it was!

I’ve looked at this picture a lot and done some thinking about the path of life upon which God has placed me.  How much do I trust God’s decisions about me and my life?

I don’t know about you, but I tend to feel more trust in God during the harder and often unexpected situations of life…those times when I’m suddenly the recipient of bad news and I’m thrown into God’s arms. 

But it’s the daily disappointments…that drip, drip, drip of stress…that can really bog me down.  The dailiness of life’s burdens can hinder my view of God’s path and His purposes for me much as the trees hampered by full view of this gorgeous sunset.

Saturday morning, for instance, Aaron stood by Gary’s desk chair. 

“Dad?” he said, “my mouth is broken.”

I smiled from the other room at Aaron’s phrasing – and I know that Gary was secretly doing the same.

Aaron thought he had burned his mouth, but in looking at it we both knew that these were not burns.  He had a rash.  The next day, Mother’s Day, I took Aaron to Med Express to have it checked.  It was quite painful, and he was having trouble eating.

Gary offered to take Aaron, bless him, but I wanted to do it since I always take Aaron to his doctor visits.  So, here I was, on Mother’s Day…at the doctor with Aaron.  It was a bit of a downer, honestly…not the way that I envisioned my Mother’s Day. 

See what I mean?  A small example of a small thing that can play upon my heart to bring discouragement, self-pity, and then lead to multiple other thoughts of how this and this and this did not turn out the way I wanted…

And my path’s view of God’s goodness is lost in the jumble of negative thoughts and emotions.

God gave me what I needed this morning, as He always does!

In Luke 13:31, the Pharisees reminded Jesus that Herod wanted to kill Him.  Jesus responded to them that He would continue the journey that God had for Him, and that when the time was right then He would perish. 

In other words, Jesus was declaring the truth of Psalm 31:15.  My times are in Your hand!  Jesus was standing in the unfailing sovereignty of God.

When David in Psalm 31 speaks of times, “…he doesn’t mean merely his life-span but all the kaleidoscope of circumstances that meet him left and right.”  (Dale Davis)

Oh, those multi-colored burdens that pile on day after day!  The unresolved issues and concerns that grow larger on a special day like Mother’s Day can cloud my view of God’s path for me. 

Last night, very uncharacteristically, Aaron suddenly said, “Mom, I’m glad you cared for me and took me to the doctor.”

I was pretty much stopped in my tracks by that!  And so overwhelmed with thankfulness that our “downer” doctor visit prompted in Aaron such a response.

Oh God, may I too look at You and be thankful for your care of me in the rough spots of life.  May I look fully at the path you have me upon and see the beauty amid the stresses.  May I not miss the opportunity to give You thanks for being for me all that I need, and not just giving me all that I want.

For it is in my need that I most fully see Your beauty on the road of life.

Quilted With Love

Our mother passed away six years ago, just before Mother’s Day.  I wrote this blog a few years before her death and so today wanted to post it again in honor and remembrance of this amazing woman that we were blessed to call Mom. 
Some of my earliest memories of my mother revolve around her amazing skills as a seamstress.   I remember being very young and seeing Mom sitting at her sewing machine, turning out something beautiful and seemingly perfect from all sorts of fabrics.  She kept us girls busy in those early years while she sewed by giving us pieces of felt in various colors.  From this soft felt we fashioned  clothes for our little troll dolls, cutting and fitting each ugly troll as if it was a priceless and beautiful doll.  Mom provided glitter and sequins and odd buttons for us to glue onto our awkward handiwork.  We stayed busy for hours laboring over our important creations.  I don’t remember all the mess we must have made, but I do remember laboring over our little troll dolls while Mom labored over her more important sewing jobs.   Mom made small, meticulous Barbie doll ensembles which she sold in a local craft store, and also made some for us to keep.  Yet her most loving works of art were the countless pieces of clothing she made for her girls to wear.
 
Every Easter we had new Easter dresses.  I especially remember the Easter that she made all of us girls pink gingham dresses – and then made one for herself, as well.  I thought it was wonderful to not only match my sisters, but to also be dressed like my mother!   I remember the trips to Penny’s in Bluefield, the bigger town that was near our hometown of Princeton.  I loved the escalator ride down to the bottom floor, where we would choose patterns and fabrics and buttons for our new clothes.  Never did we go to the ready-made clothes upstairs or enter a dressing room.  Our clothing was there amongst the bolts of fabric, waiting to be matched to patterns and later sewn into pretty dresses and jackets and blouses.  I do believe that I took the longest to select the fabric to match the patterns as I had such a difficult time seeing the finished product in my head.  I would stand there, rubbing the fabric between my fingers, trying to visualize a finished product that somehow wasn’t materializing in my mind.  I can imagine Mom’s frustration as I lingered there trying to make this important decision………..as well as the rolling eyes of my sisters who had finished this process long before I did.
 
Mom worked full-time after we were all in school, yet still managed to sew all of our clothes.  She was a natural at this art, yes, but it still took lots of time.  She would sew late into the night, her dedication undeterred by her tiredness.  I never gave enough thought to how tiring this effort must have been to her until I had children of my own.  How did she do it all?  I have no idea, really, but she did.  Her work was not only beautiful with matching plaids and perfect zippers and flawless fit, but each stitch was filled with a love that wasn’t recognized by us until years later. 
 
One of my most special memories was of the year when we were teenagers, and Mom made us skirts for Christmas.  I don’t know how many skirts she made, but there were quite a few.  Then she not only began looking for matching sweaters to wear with each skirt, but matching knee socks as well.  She did not give up this quest for the correct colors of sweaters and socks until each skirt had what it needed to make it a perfect ensemble.  We learned about this later, from Dad, who accompanied her on many of these trips.
 
Dad, who was color blind and absolutely no help when it came to matching colors of anything, would patiently take Mom on many of these shopping trips.  I can still see him standing silently on the sidelines in the fabric stores, hands behind his back and a sweet smile on his face.  He never rushed Mom or any of us, but stood there until we had come to the point of methodically selecting every button and every spool of thread.  I can still hear him say, “Did you know that there are 53 light bulbs in this ceiling?”  Or, “Did you know that there are 271 zippers in that display?”  Dear, sweet Dad!
 
John and Jeanie’s Quilt

When Mom and Dad both retired, Mom only continued her sewing.  She had sewn for her children, for grandchildren, for friends, for the Crisis Pregnancy Center, and who knows what else.  Upon retirement, she decided to take up quilting.  Of course, she was a natural at this skill.  She practiced by making her and Dad a lovely quilt, and then took up the goal of making each of us five children and spouses a quilt.  These gorgeous works of art were each sewn entirely by hand with no sewing machine used.  She had us each pick our pattern and our colors – there I went again, having to make this difficult visual choice!  Mom never wasted a minute in any day, and before long she was completing our individual, personal, gorgeous quilts.  Dad took her to countless stores and quilt shops, patiently waiting over and over again as she selected just the right fabrics.  Each stitch was a labor of love……….each completed quilt a perfect picture of her devotion to her children.  I keep my quilt hanging in our kitchen area so that we can see it every day and enjoy its beauty, and bask in the warm memories that it evokes. 

 
Mom made many, many quilts during the next few years.  She made quilts for missionaries; she made a special quilt for a dear friend who had no mother of her own to make her one; she made a quilt for the Prophet’s Chamber at church where missionaries 
stayed when visiting; and she made a memory quilt that has special fabrics and mementos from each of us children and our children.
 
 
Bob and Jan’s Quilt
Jimmy and Kathryn’s Quilt

Mom has Alzheimer’s now and lives in an assisted living center.  Tomorrow she will celebrate her 86th birthday.  Dad knew that Mom was showing distressing signs of forgetfulness before he passed away nearly four years ago, and he worried so about her.  He would be happy with her living arrangement now and with how well cared for she is.  She doesn’t sew at all now.  She’s even forgotten how to put her jigsaw puzzles together that she loved so much.  Sometimes she doesn’t remember all of our names, and definitely not the names of all the grandchildren and great-grands.   But she is sweet and she is happy and she still seeks to serve others.

Bob and Mary Beth’s Quilt
Gary and Patty’s Quilt

And just as our keepsake quilts will always be an heirloom to pass down to our children, even more so are the pieces of our lives that she shaped and fashioned together with her tireless love and effort.  She took care of us, providing the atmosphere of a happy and warm home to treasure as she sewed and cooked and played and laughed.  She made sure that we had family devotions every morning before school because Dad was at work and so it was up to her.  She took us to church when Dad was working late, and didn’t just drop us off – she was there, too, worshipping and serving.  She  showed us how to love and how to work and how to pray and how to laugh and how to persevere through hard times.  She exemplified great care in how she took care of her mother for 14 years, as well as her mother-in-law for part of that time.  And she loved Dad, totally.  She never left his side, especially for the eight years that he fought cancer.  Even when they no longer could share their bed they had slept in together for 59 years, she slept right beside his hospital bed, her arm and hand resting on him between the bed rails. 

These traits of our mother are the stitches that are sewn into our very being.  The pieces of our lives were begun by her, thought-out and cut, measured and pieced, day by day.  As the years marched on, the shapes of our lives began to unfold.  The beauty of the various patterns began to be seen.  These are the treasures that are eternal.  These are the heirlooms that have more value than any quilt will ever possess.  And while our mother may not remember much anymore about the details of the past or the present, we have the evidence in our lives of her love and her faith…………a beautiful quilt of a life well lived.

Thanks for Praying!

I knew that some of you who were praying about Aaron’s MRI last Friday might wonder if he was able to have it done.  Days are so busy and get away from me, but I wanted to give a quick update.

He had no seizures the night before the appointment, so he was able to go and complete the test.  All went well and I’m not expecting to get results until his next doctor visit. 

Thank you so much for praying! 

He even went to his day group after the MRI.  He had said he wanted to just come home so going to Paradigm made me happy.  It made him happy, too, to be with his friends.  Victoria had saved him a cupcake, which pleased him greatly. 

And that reminds me that I wanted to share this sweet picture that our friend Barb sent me of Aaron and Victoria.  Aaron was tying her shoe.  Isn’t that the sweetest?!

On Saturday, Aaron and I joined our good friends for a birthday lunch.  Rosa and Aaron used to be in Paradigm together and became special friends.  Every year Louise and I get together for Rosa’s birthday in the spring, and Aaron’s birthday in the fall.  We didn’t get to do it last year due to COVID.  They hadn’t seen each other since November of 2019!  It was so much fun to see them enjoying time together again!

And with Mother’s Day coming up, I’ll share a picture of Rosa and her mom, Louise.

And me with Aaron.

In case I’m not able to post again before Sunday, let me wish each of you dear moms a very wonderful and sweet Mother’s Day!

God bless each of you dear readers!

Smiles and Joy and Prayer

I ended my last blog by saying that we were taking Aaron to the zoo.  I wish you could have seen his excitement and joy at being there with me and Gary.  He has a way of jerking his leg when he’s excited, like a little kick, and he did that multiple times.  He laughed so loud that we had to tell him to tone it down several times.  But his joy gave us such joy, especially after the sadness of the day before. https://hesaidwhatks.blog/2021/04/27/the-autism-two-step/

This was my favorite picture of the day.  He and the gorilla had a moment, and how I wish I knew what that gorilla was thinking!

I sent the picture to our kids and told them that Aaron was the one in the white shirt.  Just kidding, just kidding!! 

Then Andrea said, “That gorilla looks a little miffed.”

“I think he’s been around Aaron,” I told her.  “I’ve seen that look on all our faces.” 😊 😊

On Wednesday, when I picked Aaron up from his day group, he came to the car carrying these.

His friend, Victoria, celebrated her birthday the day before when Aaron was at the zoo, so she saved some balloons for her buddy.  Now Gary has a balloon by his desk, and I have two in our bedroom.  Aaron does love to share.

Like today, after Meals on Wheels, he decided he would save this for Gary.

One French Fry. 

But that one French Fry was very important to Aaron, there among his chicken tenders he brought home.  He immediately gave it to Gary when we walked in the garage, to eat right away, want to or not! 

Aaron can bounce from one thing to another, and one mood to another.  Gary and I are along for the ride on most days.  I sure am thankful to know that God is our driver, though, in the long run. 

Aaron has an MRI of his brain in the morning, just to double check that nothing is going on.  It’s been a long time since he’s had one and his seizures have been a little weird lately, so it’s best to be safe.

I’m praying for no seizures tonight so we can go tomorrow.  Praying for good results.  I would really appreciate your prayers as well, for which I thank all of you VERY much! 

Like I said, how good it is to know that God is in the driver’s seat!

And Aaron is in the front seat, too, if he has his way because he is ALWAYS in the front seat and he must listen to his current music CD and if there is more than one of that group it must be played in the right yearly order and he must control when it comes on and when it goes off and keep track of which song is playing and what number it is and what the title is and……..

The Autism Two-Step

Gary and I are planning a trip to Houston next month.  We’ll stay with our daughter and son-in-law (Kyle and Andrea), and then get to see our other son (Andrew) who will be there for an NHRA race. 

Happy, happy fun times are ahead!  YAY, YAY!!

Wait.  I forgot to mention that we plan to take Aaron. 

Angry, angry times are ahead!  YUCK, YUCK!

That was Aaron speaking.

As many of you know, getting Aaron to travel happily is a stretch.  We want to include him for the obvious reasons, especially the fact that he IS family and should be a part of family times. 

We’ve been making the hard sell and thought we were well on our way to traveling success.  But yesterday morning…

Aaron stood behind me early as I sat at my quiet time desk. 

“I am NOT going to Andrea’s!!” he angrily spoke.

First words out of his mouth did not bode well.

None of my soft words softened him at all. 

I ended up on our patio, coffee in hand, where Aaron soon found me and exposited further on the reasons that he will NOT make this fun, fun trip.

I escaped in the house for a few minutes.  When I looked out at the patio, Aaron was gone.  I didn’t see him anywhere.  Where could he have gone?!

Soon I saw him, across the yard sitting all dejected on our bench.  Sorry for the grainy picture.

He soon moved to the front porch, sadness all over his posture and face. 

When he rejoined me on the patio, he was crying.  When Aaron cries, he is truly and deeply upset. 

“I don’t want to leave this house!” he exclaimed, as if we were forcing him out forever instead of just taking a trip.

But to Aaron, home and the familiarity it brings is of upmost importance to him.  It’s a huge stretch to ask him to go someplace else and just “be happy.”

Aaron reacts to all the stimulation outside of himself in a far greater way than you and I do.  A long trip, another house, an unfamiliar bed, more people around, a different bathroom…just everything about traveling is huge and very uncomfortable to him. 

And if Aaron is uncomfortable, then everyone within range of his voice will be most uncomfortable, too.

It’s so easy to say he should just go and have a good time.

SO, SO hard for Aaron to do that very thing, starting with the “just go.”

Later in the morning, like a light went on, Aaron calmed down and became happy.  It wasn’t because finally, he came to his senses!

It was because he remembered the Indonesian submarine that sank.  Really.  Not that the sinking and all the death makes him happy, but all the facts of that incident have filled his fact-loving cup to the brim.

He talked about the submarine incessantly on Sunday.  He talked about it until the moment he turned his light off that night and went to sleep.  So yesterday morning, when he paused from his travel grief long enough to think of something else, his mind went back to the submarine that had so consumed him yesterday.

Ahhhhh, a subject that pleased him, odd as that sounds! 

Autistic persons are often brought back to their comfort zones by slipping into whatever groove is safe to them and meets their unusual interests.  As strange as it seems to us, Aaron was able to lay aside his angst about our upcoming trip by finding that groove, which on this day was the sunken submarine…

And then Trandoshians…clones…launch codes…Republic Assault Ship…Wookies…

It’s just the most fascinating and often frustrating thing!

Yet Gary and I must lay aside our desire to lecture as we slip with Aaron into his groove, talk about the very unique subjects that permeate his mind, and be ready for the next onslaught of travel anger.

It’s a delicate dance that we know all too well, accompanied by the music of Aaron’s world.  The band isn’t always in tune, at least not to us, but Gary and I had best just dance along and let Aaron lead.

It’s the Texas Two-Step!  Except for us it’s two steps forward…on a good day…and at least one step back.  Often more.

Last night, as Aaron still processed all things travel related, his face lit up.

“MOM!!  Can Kyle tell me all about the submarine?  Because if he can then I’ll go to Houston!”

So Kyle, who has a degree in maritime studies but has never worked on a submarine, has been given an assignment for which to prep before we come.  And his dad, Kent…who served in the Navy on a sub…will no doubt be invaluable.  Andrea said we should just have Kent waiting in the driveway when we pull in.  😊  😊

It’s good that we can all laugh. 

All of us except Aaron, who takes every bit of this very seriously. 

Time for me to get our day going.  Gary and I are taking Aaron to the zoo, which is close and does not require travel but also does not…to my knowledge…have a submarine.  Too bad!

Looks like it will be a beautiful day for a dance. 

What Does It Profit?

I have a story to share.  It’s a true story that has impacted my husband and I greatly over the past few years.  I trust it will do the same for you.

Years ago, we met a woman who should have been a part of my husband’s life for all of his life but was not – through no fault of either of them.  That all changed a couple years ago.  I will call her Mary. 

Mary had lived a difficult life before we ever knew her.  Many of her problems were due to her own bad decisions, we came to learn.  But in recent years, Mary came to know Christ personally.  As her faith grew, her life changed.  The consequences of her past decisions could not be erased but her life took on new meaning, new purpose, and was full of new peace.

Our lives became more personally entwined with Mary’s due to the death of a dad and later the death of his wife.  What was to have been Mary’s from the estate was wrongfully taken away.  Mary, now suffering from metastatic breast cancer and still trying to work to make ends meet, was devastated.

Gary and I, though, did what we could to encourage Mary from a distance.  However, we watched with grateful amazement as she turned to the One Who really loved her the most and from Whom she gained the greatest strength. 

Her conversations with us centered on that relationship with God that was growing in her life through her extreme difficulties, her hurt, and her declining health.  Mary turned her back on being bitter and instead turned her heart to God’s forgiveness of her, and thus her forgiveness of those who had done so much wrong in her life.  She had counted on some earthly financial help to come her way but when it did not, she learned the value of counting on God instead…and from that experience, she grew so much.

On what was to be her last holiday season on earth, Mary sent us this message.  I will simply let you read her exact words:

“I’m at the cancer clinic right now getting my blood drawn and waiting to see my oncologist for my usual follow up. On the way here this morning I passed the mall and stores with their crowded parking lots full of Black Friday shoppers. It really caused me to think about what’s most important in this life. It’s God, our Salvation, family and friends. Even if I never ever had another present under the Christmas tree, it wouldn’t matter. Because I’ve already been so richly blessed, and you all are a part of that blessing!  I have so much to be grateful for.”

We commented to her about how thankful we were to have been given the opportunity to know her better over the previous months.  Our relationship probably would not have happened had it not been for the wrong that was done.  But we were sorry for her advancing cancer and for her hardships.  Again, Mary’s words:

“That’s one of the many good things that’s come out of a bad situation. My cancer journey has brought me into a much closer and deeper walk with God, which I am grateful for.

It’s strengthened my faith, and brought about peace, joy, and a sense of assurance, much stronger than I had before. It’s had a positive impact on all areas of my life. It’s truly amazing how our God moves and works His will in our lives.”

What a beautiful example she was of how God makes beauty from ashes!  Her testimony continued to shine with us until her death seven months later. 

Another person recently died, too…a person who was largely responsible for the wrong done in Mary’s life.  He had everything of earthly value that anyone could want, some not rightfully his, but when I think of him, I think of what Jesus said:

“What does it profit a man if he gains the whole world but loses his own soul?”

A real-life lesson from two people who made choices, one choosing the narrow path and one the wide. 

Two lives…two choices…two eternities.

Which one are you, my friend?

Just Being Here

I was having my quiet time this morning, and it was just that…nice and quiet.

I stepped out of the room for a few minutes and when I came back, this is what I saw.

“Aaron,” I asked, “what are you doing on the bed?”

“I’m just being right here,” he flatly answered.

I had to smile.  He certainly was just being right there.  He didn’t care one bit that he was messing up the bed that I try to keep all tidy and neat and unwrinkled.  He didn’t care one bit that he was interrupting my quiet time. 

Aaron is right here in our lives every day.  He is right here because God has placed him here. 

No matter where we go, with or without Aaron, he is right here in our lives and in our thoughts…in our planning…in our EVERYTHING.

Yesterday he was right here, in the Wal-Mart aisle as I turned the corner, happily oblivious to any thought that he was most unusual as he knelt on the floor to retrieve his favorite candy.

He was right here recently after a night of seizures, waiting for me to pray before he ate his fried eggs, and we watched an episode of The Waltons.

And more often than I enjoy, Aaron is also right here in his autistic frustrations that interrupt our life and often dictate our routines. 

Just like that crumpled bedding that once was smooth, Aaron can most definitely cause lots of wrinkles in what was at one point a smooth and happy day.

How I handle my emotions during those many moments is up to me, which is why I was SO excited to find this picture recently that I instantly knew MUST go above my quiet time desk.

Today I choose joy!

Not because I have some super perfect power to do so.

But because I know the One Who does have the power to give me joy.

Oh, trust me, I lose my temper and I get very frustrated and all the other “stuff” that comes with being human.

But Jesus is right beside me with His forgiveness and with His nudging toward joy.

How about you?  What is right here in your life that is hard?  Make a conscious effort to choose joy and just see what God will do for you.

“And do not be grieved, for the joy of the Lord is your strength.”

(Nehemiah 8:10)