Patty hesaidwhatks

My Airport Glory Story

In March of last year, 2018, I flew to Houston for a very happy trip. Our daughter, Andrea, was getting married in the fall and so this weekend in March was to be full of trying on wedding dresses and making wedding plans.

Of course, I had a layover in Dallas. There I sat in the terminal, catching up on social media and emails, when a fast movement caught my eye. I looked up to see a little bird flying among the ceiling beams. He would sit up there staring down at all the waiting passengers, though our area was people sparse at that time. He would observe for a minute, then fly down and land on the carpet, where a few passengers would toss him bites of bread or crackers. He was a cute little thing and broke the dull monotony of the usual airport terminal happenings.

I noticed a woman sitting not too far from me, within talking range, who was also enjoying the little bird. Our eyes met and we both smiled. We began talking about the bird. One thing led to another and we realized that we had much in common. The military…where we had lived…daughters in Texas…shared names. She introduced herself as Johnnie Latham and had soon moved closer to where I sat so we could talk even more.

The best and brightest thing we quickly knew about each other is that we were sisters in Christ. Believers understand this connection that is very evident, even when you meet a stranger. It’s the Holy Spirit, and the communion that two people have due to that indwelling is very real and very obvious.

Johnnie and I talked up a storm as we sat there. Gone were our phones as we talked and talked, enjoying every minute. Gone was the terminal drudgery of the airport as we crammed as much conversation as we could into the now short time we had before boarding the plane.

All too soon, it was time to board. We said our goodbyes and it was so nice to meet you as we got in line, with Johnnie several people behind me. Before long, I had taken my seat near the back of the plane. No one was in the seat beside me and it appeared, as passengers boarded, that my next-door seat would remain empty.

As I settled in and looked up, I saw Johnnie headed my way. We hadn’t compared seat numbers. Why would we? But closer and closer she came, looking at her boarding pass for her row and seat number. Then there she stood, confirming her assigned seat…and you guessed it! Her seat was the one beside me!!

We squealed and laughed and exclaimed our disbelief! Other passengers, I’m sure, were curious at this loud display of happiness over an airline seat!

“God wanted us to sit together!” Johnnie exclaimed as I fully agreed.

We just THOUGHT we had talked in the terminal. Now we were on full-speed motor-mouthed conversation! We spent the entire flight from Dallas to Houston sharing with each other as fast as we could. And I’m sure we shared with everyone around us because we had a hard time talking softly! We had stories to tell! We had examples of God’s goodness to talk about. We laughed. We praised God. We cried. The whole time was really sweet and amazing and so very special.

“Let’s take a selfie!” Johnnie said through her laughter.

So, she snapped this quick picture of the two of us.

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And just like that, before we were ready, we landed in Houston. Our fellowship was over all too soon. I had never regretted finishing a flight like I did that one.

We hugged, said our goodbyes, friended each other on Facebook, and waved goodbye once more across the Houston terminal as we parted ways.

We kept in touch over Facebook through the next year. And one day earlier this year, her life changed. Johnnie was diagnosed with cancer. Now she became a fighter as she endured all the tests, the chemo, the hospital stays…struggles that I can’t fathom. Struggles for her and for her dear husband, daughters, and grandchildren.

But never turning her back on God. Never giving up hope, even knowing that her final healing might come in heaven instead of earth.

And so it seems that this will be the case. Her cancer has spread in her brain and there is nothing more to be done on earth. She is home now, on Hospice care.

Her husband, Jack, said this in a post I read: “She will win because she will be with our savior and she is looking forward to that day.”

Victory!! Johnnie and I shared victory stories on that plane…me about my dad and Johnnie about her sister. Now Johnnie will have the most powerful victory story of all!

What an impact this woman made on me in such a short time! I can only imagine the huge impact she’s had on her family and friends who have relished life with her for years.

And I was thinking about how we both thought we didn’t have enough time on that day to share and talk and laugh and cry. It wasn’t enough time.

But oh, we WILL have enough time one day!

We’ll have all of eternity to talk and share and laugh and worship God together. In person!!

But we won’t cry. No tears in heaven!

So, Johnnie, you hold my seat this time and I’ll join you in heaven one day.

I can hardly wait to hear you laugh on that day!

In the Crosswalk

What is it with Aaron and crosswalks??!!

I was asking myself this question yet again yesterday as Aaron and I exited Wal-Mart.

I could also ask the question, “What is it with Aaron and Wal-Mart??!!”

Oh, the stories!

As we got out of the van yesterday, while we were still rather obscurely hidden in the parking lot, I reminded Aaron to pull up his jeans. He did that while tucking in his shirt, but for some reason yesterday his shirt tucking had a rather dramatic and unsettling beginning. It involved Aaron fully sticking his arm down the FRONT of his pants, getting his shirt settled down there, and then working his way around the remaining waistband.

I told you it was unsettling.

“Aaron, good grief, you don’t need to make such a production of tucking your shirt in,” I instructed him as we walked through the store and he decided that his jeans and shirt needed repositioning several times.

Several times in the same manner mentioned above.

When will I ever learn to quit walking ahead of Aaron in Wal-Mart?

You would think after the nightie story and the falling cereal display story and the singing story…that I would know better.

I was in full “ hurry-to-the-van-while-mentally-checking-off-my-to-do-list-and-plan-my-next-stop-for-that-one-missing-item” mode as Aaron and I exited Wal-Mart. Which means I wasn’t paying attention to lagging Aaron.

Instinct kicked in, I guess, because I turned around IN the crosswalk, with cars and staring drivers on either side of us, just in time to see Aaron pulling up his jeans and tucking in his shirt.

And doing it in that same disturbing manner!!!

IN THE MIDDLE OF THE CROSSWALK!!!!!

“AARON!!!” I calmly insisted, “STOP IT!!”

I said this while continuing to walk as if nothing was amiss at all.

Aaron knew then that he had erred, so he scurried up beside me as we left the embarrassing crosswalk.

“Well, I had to pull my pants up!” Aaron explained.

“In the middle of the crosswalk?!” I asked.

“What’s wrong with that?” Aaron questioned.

I just took a deep breath, reminded myself not to shame Aaron, and proceeded to once again remind him of how some things are best done in a less public setting.

Trust me, many of Aaron’s actions are best done in a MUCH less public setting!!

But Aaron truly doesn’t have a concept of social norms like you and I do. No amount of proper parenting, wise advice, careful instruction, and repeated modeling of acceptable behaviors has…or ever will…change him.

I mean, he does show some improvements in some areas. He hasn’t made his loud farting noise with his mouth in the middle of Wal-Mart in some time, come to think of it.

He can be so funny, but he can also be so exhausting. The exhaustion is mostly mental for me and Gary with some emotional thrown in as well.

A big part of it is Aaron’s talking. He loves to follow us around the house, sometimes a LOT, and talk…always a LOT!!

Our son, Andrew, drove home from Indianapolis for Thanksgiving. Aaron had fresh ears to listen to all his talking, but he also had competition. The competition comes into play for Aaron because now he must share our attention. He is not the only person in the house, and he must share his podium with his brother.

This is difficult for Aaron, try as he might to be patient. Another issue is the topic of our conversations. Aaron’s topics are typically about aliens, Star Wars or Transformers or Terminators or whatever else he is watching, relational issues at his day group, and more about aliens and outer space and droids and what-do-we-think about aliens and outer space and droids, etc., etc., etc.

All of us are like the drivers in the crosswalk, where Aaron has the right-of-way and we must wait for him to cross. No amount of confirmation from us toward Aaron can change the fact that his mind-numbing conversations dull our responses to him…and he senses this.

He also truly wants to be the ONLY one talking, and this is where we must step in and remind him to take his turn. This creates anger on his part and resentment toward the person who has pushed him off his podium, albeit unwittingly, but done none-the-less. We all understand this about Aaron, and even expect it, but still it’s tiring.

On the day before Thanksgiving, Gary got home early from work so we along with Andrew picked Aaron up from his day group and went out to eat in Old Town. Aaron had a seizure early that morning, and another one about an hour before we picked him up, but it didn’t dull his tongue. Not one bit. 😊

But my favorite picture of our Thanksgiving was when Aaron waddled into the kitchen wearing his shark blanket – a gift from Andrea and Kyle for his birthday – and proceeded to continue talking. It was just hilarious to see him standing there, oblivious to how he looked, and still talking up a storm.

Again, we were trapped in the crosswalk…all of us with hidden smiles on our faces…and Aaron unaware of how comical he looked.

Living with Aaron isn’t always easy, especially when we’re already stressed about other life events and concerns. Having to stop on a busy day for people in the crosswalk isn’t always fun, either. So, when we’re rushing to get ready for the holidays in the midst of having some remodeling done, with lots of furniture to move around and mess to clean up – thanks for your awesome help, Andrew!! – and Gary is having foot surgery on Monday and will be incapacitated for a long time in a house full of stairs!! – and there’s decorating and shopping and surgery prep and just LIFE!!…

Those crosswalks can be very, very irritating and draining.

It helps to be able to smile and sometimes laugh and to think of Aaron in his shark outfit, not to be derailed from talking!

The pulling up his pants thing, though. Some things are best forgotten.

My apologies to all the drivers at that crosswalk.

It was memorable, I’m sure. 😊 😊

Aaron usually is.

Joy and Crescent Rolls

My phone rang yesterday while I was working in the kitchen. Of course, it was Aaron making one of his several calls from his day group…calls in which he updates me on his doings, reports good times or bad times with friends there, asks me when I’m coming to pick him up, and stresses that he wants me to come EARLY!!

Since this day was Friday, and since Friday is the day we usually have a special meal of Aaron’s choosing, this phone call greatly concerned food. He also wanted to know if we were going on our Friday Wal-Mart trip to buy him his “end-of-week and beginning-of-weekend” snacks.

“MOM!!” he began. “Are we going to Wal-Mart after you pick me up?!”

I assured him that we were.

“MOM!!” he continued. “Can I get some Pillsbury Crescent Rolls to have for our supper?”

I assured him that we could.

“MOM!!” he added. “Not the kind in the box but the kind that you bake in the oven. Pillsbury Crescent Rolls!”

I assured him I understood.

And then he chuckled…his deep-throated chuckle of pure delight.

Pillsbury Crescent Rolls filled him with the greatest joy at that moment, a contagious joy that was passed on to me as I joined him with a laugh of my own.

One thing about Aaron that continues to teach me so much about handling life is his joy in the simplest of things…things that I often take for granted.

I typically don’t play Christmas music until after Thanksgiving, but for the past few years I have caved somewhat on that standard. Two days ago, while cooking supper, I turned Pandora to a Christmas station. Music has always, from my childhood, been a huge part of my life. I listened as I prepared our meal, waiting for that illusive “Christmas spirit” to wash over me.

Instead, though, I was soon brushing away tears. Silent Night was playing, and that song above all Christmas songs, reminds me of times past and of my parents and of how I miss them and of so many other memories. Sweet memories, but memories now…people and events of the past, not the present.

And the present…the now…is where I wish they still were.

This Thanksgiving and Christmas season, above all other seasons…with its music and traditions and memories…is so very full of emotion and expectations.

Expectations that often don’t materialize and so leave us with sadness.

In November of 2004, my parents called with the unexpected news that dad’s cancer was no longer in remission. Doctors had found inoperable cancer in his liver. All our close family was devastated at this news. Gary and I decided to quickly change our Christmas plans that year. We loaded up our van the next month just before Christmas and traveled the long distance home to West Virginia. All of us wondered if this would be Dad’s last Christmas.

This long, sad trip was very hard for Aaron in all the ways that change and travel have always been hard for Aaron. The most stressful aspect for Aaron, though…for all of us…was the raw emotion that we couldn’t hide. Aaron doesn’t like crying and on this visit we couldn’t successfully hide all our tears from him. The early morning that we left Mom and Dad’s to return to Kansas, we all stood in a circle as we held hands and prayed. And we all cried.

Except for Aaron, who sat off to the side rocking in a recliner and saying over and over, “Crybabies!! Crybabies!! Crybabies!!”

To borrow an Aaron phrase, it was half sad and half funny!

Yet a very sweet moment with Aaron happened during that trip. As Mom and Dad opened their Christmas presents, they unwrapped a framed poem of sorts that someone had given them. Aaron saw it and he held it carefully as he began to read. We all sat still and listened to him read every word in his monotone voice. It was good that he was looking down and didn’t see my parent’s tears, and ours as well.

I have this precious piece now and was looking at it the other day as I did some sorting. I thought of it as I listened to Silent Night and my heart filled with emotions about what used to be and what isn’t now.

I know that I have a choice to make. I also know what God has told me to do.

“Give thanks in all circumstances, for this is the will of God in Christ Jesus for you.” (I Thessalonians 5:18)

As the poem said, happiness is all around us. I like to substitute the more meaningful word “joy” for happiness, for joy is a fruit of the Spirit in my life and is possible no matter my circumstances. But whichever word you use, know truly that there is joy and happiness all around us, every day, in sometimes the smallest of ways. Yet small things are huge when we look at them through the lens of thankfulness.

Over the years, life changes…a lot…but joy with a thankful heart should be a constant for us.

Aaron has seizures, but we are thankful for good doctors:

Thankful for yummy and very cheesy chicken enchiladas:

Thankful for God’s amazing creatures in our own yard:

And thankful for Pillsbury Crescent Rolls!

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Hey, It’s My Birthday!!

We just finished celebrating Aaron’s 35^th birthday. We had three days of birthday events, full of fun and loaded with Aaron’s exuberance. There aren’t many 35 year old’s who would embrace their birthday with as much joy and pure excitement as Aaron did. His birthday is one of those times that we fully see how unencumbered Aaron is with adult responsibilities and burdens. 35 doesn’t seem old or worrisome to him at all. He’s all about HIS day and all the fun it holds! He’s very much like a kid, and everyone around him smiles at his delight.

Aaron begins planning his birthday months before the actual date. I’m not exaggerating. He talks and talks about his plans. Can we go here? Can we do that? And often, he doesn’t ask us before he starts inviting people to come to our house or to eat out. It’s easy to be exhausted long before the birthday celebration even occurs as we try to keep up with him and his grand plans.

His birthday was this past Friday. On Thursday, he stayed home from his day group. He helped me make lots of cupcakes for his day group to share the next day.

We also made lasagna for some of his friends to have on Thursday night. We loaded up the van with lasagna, garlic bread, cupcakes and drinks before driving across town to the residential home of some of his day group friends. All girls, by the way! 😊

On Friday, Aaron carried his cupcakes into his day group…chocolate cupcakes with chocolate icing and sprinkles, per Aaron’s wishes. At the end of his day, Barb…dear friend, second mom, and Paradigm manager…brought Aaron to meet Gary and me at Texas Roadhouse for his birthday “eating out” supper – Aaron’s choice once again, of course!

Oh my goodness, his excitement was almost palpable! He could hardly stop laughing and talking, and rubbing his hands together, in complete happiness.

“It’s my birthday today!!” he immediately told our server. “Can you sing to me?!”

Our sweet server laughed as well and said of course. She mentioned the saddle, which we had to explain to Aaron, and which he agreed to our surprise to do…but later he backed out on that saddle business. He wanted the largest sirloin, but we insisted on the next size down. He barely quit talking and eating. He was large and loud and very, very happy!

His gift bags from Barb, and from Casady – Barb’s daughter and another very good friend – were perfect for Aaron because they know him so well. And they love him, which he fully knows.

At home later, he opened more gifts and he talked to family…and he loved the shark cuddle blanket from Andrea and Kyle!

Then on Sunday evening, we met his special friend Rosa for their traditional birthday dinner at Chili’s. Again, Aaron announced his birthday to our server and asked if they would sing to him and bring him ice cream with chocolate syrup. Look at Aaron’s happy face when after dinner several of the staff sang and clapped and made Aaron’s final birthday celebration complete.

Rosa ran to their car as we left, bringing out her doll head that she loves so much, while Louise and I laughed and laughed. We love Aaron and Rosa’s friendship!

My heart was warmed later when Louise told me about how she and Rosa were looking at calendars to buy for Aaron. Aaron loves animal calendars, so Rosa eyed each of the three that Louise showed her. Rosa instantly chose the buddy calendar that shows dog and cat buddies for each month. Isn’t that so sweet?

I’m very thankful for each of Aaron’s friends and family that love him. Every text, Facebook message, phone call, and gift to Aaron was also a very deep gift to me, as well. I loved seeing Aaron so happy, and I love seeing Aaron BE loved by so many precious people in his life.

Sometimes it’s easy to feel alone when you raise a child with special needs, especially when they are fully adults yet, as in Aaron’s case, still so fully dependent on the help he needs from the family and staff that surround him.

Easy to look at others who are Aaron’s age, or much younger, who are finishing school and getting jobs and raising a family.

Those thoughts for me are fleeting, though, because I know the danger they carry. Aaron is Aaron, created by God, and my responsibility is to love and care for him – not to regret that he isn’t someone else.

Barb’s daughter, Casady, a kind soul who loves Aaron to pieces, wrote this in Aaron’s card:

“Happy birthday, buddy! Thanks for making me see all the sides of life. Love you so much.”

Those words seem to just go over Aaron’s head, but not mine. Her words go straight to my heart and come out from my eyes in tears that I don’t let Aaron see…or he would call me a crybaby.

But oh, life really is so much more than our routine and our version of “normal.” Trust me, Aaron shows us sides of life that we never even thought of! And other sides that we would like to forget!

Yet Aaron also shows us how much fun it is to relish routine and special days and music and warm blankets and coffee and cows and horses and bugs and steak and movies and shopping and dogs and cats and milkshakes and sharing and pennies he finds on the ground.

I sometimes stop and look at Aaron when he’s doing an Aaron thing, and my heart swells ‘til it almost hurts. He is so unique, complicated, hilarious, maddening, and upsetting. All the sides of Aaron are also the sides that all of us have, but Aaron doesn’t often have the ability to hide them like we can. They’re out there for all to see…and to hear!

And this morning, I heard a seizure a little after 5:00, and another just before 8:00. Then one that he’s only had once before, back in April – long and strange and scary. This is the side of Aaron’s life I dislike the most, but it’s a side we must handle and manage as best we can. I handle it by being thankful in the many ways that God brings to my mind, and by knowing as well that God is there for us and for Aaron with His sovereign protection and grace.

The sides of Aaron’s life…the good, the bad, and the sad…are all wrapped up like a birthday gift that God gave to us the day that Aaron was born. It’s up to us to relish all of who Aaron is, even the hard sides of Aaron; to thank God for our special gift; and to care for him in all the ways he needs.

Every side of Aaron…every day.

Hey, it was Aaron’s birthday!!

And I’m happy about that!!

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Matters of the Heart

Aaron is now 35 years old. I know that he is a man, a grown man, and that fact is very hard to imagine. 35 years ago Gary and I were anxiously awaiting the birth of our first child. I had made all the yellow gingham nursery curtains, bumper pads, changing table covers, and decorated with yellow, fluffy duck decorations. Everything was as I wanted it. And even though I went into labor 3 weeks early and Gary had just changed out of his flight suit when he rushed me to the hospital, we were really ready – for the most part – or so we thought. What new parents can ever be really ready for the responsibility that awaits them? And what new parents can ever comprehend the depth of love that washes over you when you first hold that little part of both of you? Aaron was so little and perfect and beautiful. And my radar screen was still showing sunny weather with not a storm in sight.

When Aaron had his first seizure and was diagnosed with Epilepsy, and then years later was diagnosed with Autism, we were completely unprepared. We never, ever expected such a thing to happen to us. To someone else, yes. Someone we would read about in a magazine, or hear about from a friend, or receive a prayer request for at church. The reality of this event in our lives with our Aaron was just so unexpected and unwelcome. And as I said earlier, when I got home from the hospital after his Epilepsy diagnosis, I cried my heart out with tears for Aaron, for us, and with pleas to God for His grace and strength.

I had a choice to make and I chose to focus on what I KNOW. And what I know is that God is sovereign. God is in control and none of these events surprised Him or confused Him. God loves me and God loves Gary, and God certainly loves Aaron. I cannot and will not ever try to explain the ways of God. There is no unfairness with God, I do know that. So instead of wasting time and energy trying to explain the why of our situation, my choice was to trust the Who in our lives. And that would be God. I know from my walk with Him for all these years and from reading His Word, Who He is. I know that His sovereign plan is best even when He doesn’t choose to reveal it all to me. I trust Him and I love Him and I have found Him always faithful. Those things I know.

While in Leavenworth, God gave me Psalm 18:29: “For by You I can run upon a troop; And by my God I can leap over a wall.” I just love this verse! It’s my theme verse in so many ways. Oh, the walls that I’ve run into in our life with Aaron! I’ve shared many of them in the past few posts. So many times I’ve run into walls, beat my head against walls, beat my fists on the walls, tried to climb walls with my own strength – but by my God, I can LEAP over the walls. What a promise, fulfilled in so many different ways in so many different situations. So I also know that with God, I’m a wall leaper!

But there are also some things I feel, and feel deeply. These feelings come from within my mother heart. I think of my heart as having various doors that open when needed. Doors of love, of wisdom, of encouragement, of laughter, and on and on. But there is a door that I rarely open because it is too painful. That is the door of my regrets and wishes for Aaron. I do not live in regret or in unfulfilled wishes for Aaron, but occasionally those thoughts slip in or that reality hits me in my heart. Once after Aaron started going to the job skills school, he came home one day and said, “Mom, I’ve noticed something. All the kids at that school have problems. What are my problems?” I struggled not to cry as I tried to talk to him about Epilepsy and Autism. He was satisfied and seemingly unconcerned, but I knew he was pondering these issues very personally now. And it broke my heart. I remember when Andrew got his license and later came home with his used truck. We had purposely not made this a big deal because Aaron was often jealous of Andrew’s life. But Aaron looked outside and saw the truck, so he asked if that was Andrew’s. I said yes and Aaron said, “I wish I could drive.” Little glimpses like that into his heart made that door of my heart start coming open. There are times for tears, but not time to wonder about what could have been or might have been. Living in defeat is not God’s plan for me or for Aaron.

And there are so many reasons to be thankful. Gary led Aaron to the Lord when he was 6 years old. Aaron has that understanding. He can walk, and run, and see, and talk (can he ever!). Things could be so much worse. He can read and understand, and even though he can be sooooooo irritating sometimes, he also makes us laugh – a lot!

In closing I want to post a piece that has always spoken deeply to me and I hope it will to you, as well.

The Skies From My Window

Many of you know that I love taking pictures of our pretty Kansas sky. My favorite place to take those pictures is from the window in one of our upstairs bedrooms. This bedroom will always be, to us, Andrea’s room – even though she moved from home several years ago. When I see a particularly pretty sky I will run upstairs, open the window and lift the screen, and fire away with my phone camera.

As I look back on these pictures, I find that no two are the same. Absolutely every shot of our sky, on every day that I took those shots, is entirely different……if there are clouds involved, that is. I don’t usually take pictures of a totally blue sky, though blue skies are nice. But after a while, completely blue skies would be a little boring.

Sometimes the pictures are simply beautiful, like the one I snapped last night. Isn’t this just breathtaking?

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Some inspire awe, like this one.

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Sometimes I see life.

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Other times the seasons show themselves.

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This one view, from the same windows…..the same vantage point……is anything from being the same, day by day.

It’s a lot like my circumstances in life……like yours, too, I’m sure. Our circumstances change, sometimes often and other times less frequently. At times the changes are dramatic. Other times the changes come subtly, but they come regardless.

Our circumstances may be pleasant, and some of the changes we go through can be happy and pleasant as well.

But other circumstances are painful or shocking, involving deep hurt……fear……dread.

Last week I found out about two friends who were just diagnosed with cancer. And I took another friend for some testing after an X-Ray showed something suspicious. We are still awaiting her results. Some have already received disturbing news…..others are still waiting, with dread, on what may be.

My circumstances……my surroundings……can on one day fill me with peace and on the next day fill me with worry. It’s like my view of our sky from the upstairs windows. Sometimes peaceful…..

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Sometimes stormy……

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I’ve been reading through the book of Exodus. Moses certainly experienced a variety of circumstances in his life……plenty of high’s and low’s. From a basket in the bulrushes to the palace. From the palace to the desert. From shepherding sheep to leading a nation. From the parting of the Red Sea to the grumbling of that unhappy nation. From speaking to God on the mountain to confronting idol worship at the foot of the mountain. From obedience to anger.

After the Israelites had given up on Moses and turned to worshipping the golden calf, Moses and God both were pretty angry. Moses went back to God after things settled down a bit and he prayed. He said, “God, let me know your ways that I may know you….”

God’s answer? “And He said, My presence shall go with you, and I will give you rest.”

God’s presence is all that His people needed……and it’s all that you and I need. He’s promised to be with us, and He’s promised to give His children rest.

Two things I’ve learned in the years that I have lived. First, don’t look to my surroundings for rest…..even in the good times. When life is going well, with sunny skies and soothing views ahead, those things should not be the source of my rest and peace. I’m thankful when life is pleasant, but pleasantness is not the source of rest. Only God is to be my strength and my peace. Knowing Him and depending on Him, following Him and trusting Him, is still the number one thing I need to do when the skies are sunny and beautiful.

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Second, I’ve learned to also not let my surroundings…..my circumstances……pull me down and rob me of rest. This happens so easily when skies are stormy and life is stressful. Bad news…..stressful relationships……more bills than we have money……wayward children…… We all know what it’s like. Life is full of the hard times, unfortunately, and they often happen suddenly. At other times we live under the stresses day after day as they gradually take their toll. But still, the rough times are to be a time of rest……..and they can be if we know the same God that Moses knew.

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For God’s promise to Moses is our promise as well: “My presence shall go with you and I will give you rest.” (Exodus 33:14)

Remember I said that pictures of blue skies would get boring? I love blue skies, but honestly the best pictures occur when clouds are present.

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So it is with us. I believe the best lessons are learned when we have some clouds in our lives. Deeper trust and greater joy have been my experience during the stormier times of life.

Those clouds also bring a more intimate walk with God, full of so much beauty. Hopefully I can reflect Him more as I walk closer beside Him.

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And I can rest. I don’t know today how God will give me rest, but He has said He will and I believe Him.

Rest, and enjoy the view, because with God life is stunning.

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Did Someone Say, “Time CHANGE?!”

I am 99.9% certain that whoever thought up all this time change business did not have a child living with them who had autism. Specifically, a child with autism who has as one of their obsessions the desire for living life with precision timing.

Such is our Aaron.

Aaron wears a watch every day of his life. If his watch breaks, time for him stands still…and time for us is nearly unbearable until the broken watch can be replaced. Trust me, we take as little time as possible in finding him a new watch. It must be a specific watch, one with numbers all around…a second hand…and the day and date feature.

Heaven help us when the day and date feature needs to be adjusted! Aaron doesn’t have time to wait for that, either, and when I mess it up…which I so often do…then the world is off balance for Aaron until Dad is able to come to the rescue.

Many of you have heard lots of stories about Aaron’s precision with time. For instance, on the weekends Aaron wants to eat lunch at 12:00 noon. This often happens:

Me: Aaron, do you want to eat lunch?

Aaron: Yes.

Me: What do you want to eat?

Aaron: Can I have pizza?

Me: Sure. I’ll fix it now.

Aaron: I want to eat at 12:00.

Me: Well, it’s almost 12:00.

Aaron (pushing his sleeve up to look at his watch which is worn halfway up his arm): No, Mom! It’s 11:56!!

I sigh, exercising my lungs as I so often do with Aaron, and make sure we wait until 12:00 on the dot to start the lunch process.

Here’s another familiar scene:

Aaron: Mom, I woke up at 7:58.

Me: So, you woke up around 8:00?

Aaron (looking at me as if I had three eyes but no brain): No! I woke up at 7:58!

I began preparing Aaron for the dreaded time change on Saturday afternoon. When we finished watching our DVD before bed, he glanced up at the clock in the family room.

“Mom,” he began. “It’s 10:47, but it’s really 9:47, right?”

I assured him he was correct as he followed me into the kitchen. He carefully watched me change the stove clock, the microwave clock, and the coffee pot clock. Things were progressing smoothly.

Little did I know.

The bedtime routine was moving along normally when Aaron sat on his bed to write the time in his logbook. This logbook in which Aaron records…precisely records…his time to bed and his time to get up. Every. Single. Day.

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Aaron stared at his complex weather station clock beside his bed…the one that needs a person with an engineering AND rocket science degree to change the time.

“MOM!!!! My clock says 11:02, but it should say 10:02!!!”

WHY DIDN’T I REMEMBER AARON’S CLOCK?????!!!!!

But outwardly I was the picture of calmness. I told Aaron that I really thought it would set automatically by satellite. Aaron sat on his bed with his logbook open, very still, staring at the clock as if he could will it to change. I stood beside the bed, staring at Aaron as if I could will him to change.

Silly Mom.

He scooted off the bed and headed for the door.

“I’m getting Dad!” he informed me as he left his room.

Thump, thump, thump down one set of stairs.

Thump, thump, thump down the second set of stairs.

Soon I heard Aaron pounding up both sets of stairs. Seriously, he takes stairs like a bull elephant.

And there followed Gary, much slower than Aaron, who was full of purpose.

“Dad, can you set my clock?!” he asked anxiously.

Gary set the clock, Aaron sat once again on his bed with his logbook open, and I stood there waiting hopefully for the time to be entered, precisely.

Aaron stared at his weather station clock. Then he pushed his sleeve up and looked at his watch. He stared again at the blue numbers on his very difficult weather station clock.

“MOM!!!! It says 12:10!!!! It should be 10:10!!!!!”

Oh. My. Word.

Dear Gary, in his tiredness, had set the clock AHEAD an hour. Instead of falling back, we had gone full speed AHEAD…and Aaron was full speed DONE with this crazy time change!!

SO WAS I!!!!!!!!

“Aaron,” I kindly said (despite how UNKIND I felt), “can’t you just lay down, close your eyes, and go to sleep?”

It would have made more sense to tell him to climb Mt. Kilimanjaro…barefoot…in the dark…with no guides…and no supplies.

I wonder what time it was in Tanzania?

Aaron informed me that he could do none of those things. Lay down, close his eyes, or go to sleep.

“Aaron,” I continued (my lips drawn tighter than they had been), “can’t you just wear your watch to bed?”

With that, Aaron once again pushed his sleeve way up his arm and stared down at his watch.

“MOM!!!!” he said, “we need to change the time on my watch!!!”

AAAAAAHHHHHHHHH!!!!!!!!!!!!!

Anyway, I prohibited Aaron from going back to get Gary. I changed the dumb time on his watch. I then sat down on his bed, praying as I started pushing buttons, and somehow someway I was able to change the stupid time from 12:10 to 10:10.

Can you tell I was done? I needed a time out!!!

Oh, but we weren’t done!

Aaron was, once again, sitting on his bed while staring at his ridiculous weather station clock. Whose idea was it to get him this clock anyway??!!

All the bases had to have been finally covered, I thought. Aaron’s just waiting for the minute to change, as he usually does, before he will write down the time.

The EXACT time, for crying out loud!!!

“MOM!!!!” he nearly yelled, “it’s FLASHING!!!!!”

“WHAT????!!!!” I nearly yelled in disbelief. “What’s FLASHING????!!!!”

And sure enough, under the very current and precise time, there was flashing the words, “NO WI-FI.”

“It says, no wifey,” Aaron told me.

“You’re about to hear, no mother,” I wanted to say, but didn’t.

“Here, Aaron,” I said now through almost gritted teeth, “you can just turn your weather station clock around like this and then go to sleep.”

But I may as well have told him to climb….

You get it.

No, Aaron could NOT just simply turn the clock around like this or just go to sleep like that. Not with “NO WIFEY” flashing under the very perfect and totally precise time!!!!

I guess Aaron was spent…or knew that I was…because he finally got under his covers and let me escape to my room.

But soon I heard him thump, thump, thumping downstairs…where he told Gary about the flashing “NO WIFEY.”

Then came the thump, thump, thumping upstairs…and the elephant stomps to my closed bedroom door.

“Mom?” he said. “I’m tired of this day.”

“I know, Aaron,” I told him. “I am, too.”

Never were truer words spoken!!

He walked back to his bed.

He was soon back at my door.

“Mom? Do you think I should just wear my watch to bed?”

“I think that would be a good idea,” I replied (hopefully!).

Again, he was under his covers.

“MOM!!!!” I heard from the monitor in our room, “it quit flashing!!!”

Thank you, Lord!!! I really did thank the Lord!

But if you ask me, it’s high time to change the time change!!

At least it is in OUR house!! WHEW!!

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The Trumpet

This story is written by a dear friend from college, who gave me permission to share. Her husband was a pilot, air traffic controller, and professor – among many other things – for years before a devastating stroke changed his life…THEIR lives…completely.

The professor began learning to play the trumpet on a borrowed instrument when he was in the 4th grade. His parents gave him a brand new trumpet, one that would be his very own, as a grade school graduation gift. He played his way through middle school and high school, as well as some in college. He must have studied some too though as he did manage to graduate. 😊

After college the trumpet rested on a closet shelf, only coming out occasionally. Like the time the professor called the cows home with it. And of course, it had to come out to play for that reunion with Old Green. But it pretty much spent the last oh-however-many-years it has been tucked away.

Due to a number of factors, the professor has not been able to play it since his stroke. We considered giving it away before making this latest move, but the professor wasn’t ready to part with it yet. So, the traveling trumpet’s case was plastered with another sticker of places it has been. Figuratively speaking.

It took up residence in the back of the guest room closet, coming out last winter so a snowbird could use it to play in the Winter Orchestra. When the snowbird went home the trumpet went back to the closet.

The Village has a cable channel for announcements, reminders, etc. Village residents are able to advertise things for sale on the channel, as well as things they might be ISO. We do not look at the channel as frequently as we should, sometimes even forgetting about it for weeks. Shame on us.

But “for some reason” we decided to look at it prior to going to church on Sunday evening. On one of the slides we saw that a friend who had arrived at the Village about the same time we did was looking for a used trumpet! We about jumped out of our seats! Looking at each other, we both knew this was why the trumpet was still hanging around.

On Monday afternoon the professor put the trumpet in his bike basket and happily pedaled over to deliver the horn.

Later that day the new owner came over to thank us again and shared the rest of the story . . .

That ad had been on the Village channel for some time and he had decided to remove it if he didn’t get a response soon. In the meantime, he had been looking at trumpets online. He had given his trumpet to his grandson before moving down here. It was going to cost him about $350 to get one to replace it. He realized Sunday morning that he really hadn’t prayed much about it. So, on Sunday morning he prayed, “Lord, if You want me to spend the $350 to get another trumpet, that’s okay, but if You want me to get one another way will You please show me?”

It was that day, after weeks of not looking at the Village channel, we “happened” to turn it on and see his ad. The professor was so happy and excited to be able to give the trumpet to his friend.

And would you believe the professor’s trumpet is exactly like the trumpet our friend used to have? It even has the same mouthpiece.

God, You are so amazing.

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I love how God showed Himself to my friends, and to their friend, in this very personal way. This is just a tiny snippet of their lives that our friends have shared over many years via her emailed stories, all full of God’s faithfulness and blessings, even in the very hard times. Thank you for letting me share this, my friend!

A Sweet Touch from God

Aaron saw the commercial for Pumpkins at the Park, and soon after he was telling Gary and me all about it. I had already seen posts about the event on Facebook and had told Gary that we should take Aaron, so with Aaron’s excitement already abounding I knew it was a match made in heaven. Tickets were ordered and plans were made to drive the mere mile and a half up the road to Tanganyika Wildlife Park on the following Saturday night to experience some pumpkin Halloween fun.

Aaron, who must plan multiple details before any occasion that he will attend, began to ask questions and to get his mind organized for our fun night. His list included:

Will I need a coat?
Will I need gloves?
Will I need a hat?
Will there be lots of people there?
Will there be food to eat?
Will the animals be out?
What time will we leave?
What time will we get home?
Do we have tickets?
Where are the tickets?
Mom, why are you sighing?

I answered all but the last question…multiple times. Which is why I was sighing, but Aaron doesn’t know that. It wouldn’t matter if he did. He just knows Mom’s weird that way and by the way, “Will I need a coat?”

Sigh.

But this is Aaron, and we totally expect the repetitive questions and ultra-planning. His comfort level depends on it, and trust me, we want his comfort level to be high…especially since our comfort level is so closely tied to his. Like, totally tied to his. COMPLETELY TIED!!

OK. Moving on.

As Gary and I climbed into bed on Friday night, the monitor beside us on my nightstand turned on to listen for Aaron, I told Gary that I sure hoped Aaron wouldn’t have a seizure during the night. You see, a nighttime seizure nearly always means a daytime seizure or more the following day. I didn’t want Aaron’s much anticipated Pumpkins at the Park to be ruined.

Wouldn’t you know that at 11:58 I heard a seizure. My heart dropped more than it usually does. Why on this night of all nights must he have a seizure? I was so sad for Aaron as I went to help him, and then returned to my own bed when the seizure was over, and Aaron was safe.

Surprisingly, there were no more seizures that night. But in the morning, Aaron’s eyes and actions showed that he was still feeling the effects of just that one seizure. I feared more would certainly come. He couldn’t even stay awake for his coffee, and later slept on the couch for awhile.

Still, no seizure.

When he napped in his bed later that afternoon, I thought for sure he would have one because that is what’s typical. I listened closely as I carried the monitor with me around the house.

And still, no seizure.

All day long, as we worked outside and as Aaron hung out with our little neighbor’s boys next door, no seizures.

And that evening, there we were at Pumpkins at the Park.

Aaron was totally ecstatic, and that’s no exaggeration. He didn’t stop smiling the entire evening.

We went from this:

To this:

Look at his smile!! Isn’t that just awesome?!

He loved every single part of the park that evening. The scary:

The spooky:

And the sweetness:

Speaking of sweet, I especially love this sweet picture of Gary and Aaron walking on the path.

And I love the sweet touch from God we all felt on that day. It was sweet to spend that time together and not have it ruined by seizures.

Sweet to have this special memory tucked away in our hearts.

Thank you, God, for such a sweet touch from You!

Keeping Everything in A Row

Aaron was busily preparing his little corner of the world one recent night as we got ready to watch an episode of Dr. Quinn. His typical preparations include his snack or snacks of choice, often placed in a bowl; his drink; his hand towel that is always with him; his blanket that is always over him as if he is a nursing home resident; his Nintendo DS beside him even if not played; his video remote; and his chair and ottoman placed just so.

It’s exhausting, unless you’re Aaron. If you’re Aaron, this is standard procedure and no big deal.

On this particular night, Aaron had chosen his rather new bag of Jolly Ranchers to sit on the end table beside him…the end table that bears the scars of being placed right beside Aaron.

“MOM!!” Aaron excitedly said before he sat down. “Here! I want you to have these!”

He handed me way-too-many Jolly Ranchers, his face full of delight because he loves to share. I hadn’t planned to eat Jolly Ranchers, but I wouldn’t disappoint his giving spirit for the world, so I cupped my hands and took his sweet gift.

He was getting situated under his blanket when he remembered something.

“Wait!!” he exclaimed. “I need to get my trash can!”

Having lived with Aaron for so long, I didn’t need to ask what he was doing. There are times that Aaron will use his trash can…and ONLY his trash can…for certain jobs. For instance, every Christmas Aaron must have his trash can with him for whatever he deems it must hold, despite the large trash bags that the rest of us use.

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For whatever reason is in his mind, he knows when his trash can is the one that is needed for certain trash, and obviously our Jolly Rancher wrappers fit that mold on that night.

Soon we were watching Dr. Quinn, relishing our candy as we happily tossed our wrappers in the correct trash can perched between us…and all was right in Aaron’s world.

Like the Bible verse that says there is a way that seems right to a man, there is most assuredly a way that seems right to Aaron…and he will not veer from it, if at all possible. Pity you if you try to make him do so!

Yesterday, Aaron and I piled in the van for our ride to his day group. Aaron loves listening to music and as we are still in dinosaur mode, we use CDs. Aaron looks at each song’s number as he picks up the CD and checks the back for the song number and name. He rubs his hands together with great enjoyment, laughs, and listens very carefully to each song.

Aaron often sings one phrase from the last song he has heard on his rides. He will sing that phrase over and over, usually at home, while he is on his computer. Never will I forget the time that we stopped to shop at Wal-Mart. The last song he had heard was Shania Twain’s “Man! I Feel Like a Woman!” It was very interesting hearing Aaron walk through Wal-Mart and in his monotone voice saying more than singing…over and over – “Man! I Feel Like a Woman!”

The word “interesting” really doesn’t do it justice. Though I’m sure that he and I were VERY interesting to more than one person on that trip.

Anyway, Aaron had chosen to listen to Brad Paisley. We have several Brad Paisley CDs. Something else that Aaron will do is listen to CDs by the same artist in order of their production date, written in microscopic print on the back of each CD. Print that is seen only by Aaron. We cannot listen out of order. Nope.

We jumped in the van, with Aaron immediately reaching down to find the first CD in order, of course. And of course, he knows that the first Brad Paisley CD in the correct order carries the date of 2003. And the 2003 CD was not in the van.

We were still in the driveway, both of us looking for the 2003 CD, even getting out of the van to check behind our seats. I ended up running back into the house and finding three CDs in the cabinet that he had missed.

“YES!!” he said, “there’s the 2003!!”

His joy was contagious as we drove down the road, his hands rubbing together quickly and his laugh filling the van. What a difference it makes when Aaron can have things this seemingly unimportant set right in his world!

Last night, Aaron sat in his chair in his usual fashion as we watched TV. I noticed that he was pulling loose threads from his ever-present hand towel and rolling the threads up into little balls. Later, as we were on our way upstairs for bed, this is what I saw on the end table.

I just smiled and shook my head. How like Aaron and his life are these little thread balls, all rolled up and placed in a precise order according to Aaron’s plan!

And how important I felt it was for me to just leave them there. I could have told Aaron to come back down and clean up his mess! But this really isn’t a mess. This is Aaron’s order, done Aaron’s way.

It’s really a beautiful picture of Aaron’s mind.

And a reminder to me that there are many times when I must understand Aaron’s way of living…a way unlike my own but of no less value. Not try to brush it off as unimportant or messy or inconvenient, but to remember that Aaron is far happier if he is allowed to keep not only his ducks in a row, but also his CDs and his trash can and his candy…

And his thread balls!

Of course!

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