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The Scary Place
Gary and I looked at lots of homes when we were house hunting here in the Wichita area over 17 years ago. Has it been that long?! The house we are in now was the second house we looked at during those rushed few days. We at first dismissed it because the inside of the house needed lots of work. No other houses were right, though, and so we were pulled back to this house for a second look. I remember standing in the upstairs window in what became Aaron’s bedroom, looking out over the back yard. At that time there was a large, beautiful pool in the back as well as the big yard. I was so surprised when I was told that the whole area out back was part of the house’s yard. And for me, that was largely what sold me on this house. That yard……
That yard has offered us room for running young children; for walking and playing with our dogs; for endless hours of swimming with family and friends before we covered up the pool; for our vegetable garden; for parties and fireworks; for ball throwing and bean bags and even boomerangs (we ended that idea pretty quickly!); for enjoying wildlife; and for a measure of privacy that we have enjoyed.
The look of the yard has changed with time, just as we have. The pool is gone; dozens of dead pines and other trees have had to be cut; fences are not there now; and once young trees are now tall and strong. But our back yard, despite the changes, is still a place that is home to us. That yard beckons us, whether it is to work or to play; to sit or to walk……our yard is home and is a place of comfort to us.

There are two big evergreens at the back of our yard, visible from our house but not too near. I sometimes think of our yard as ending there because you can’t really see around those big trees. You must walk around them to see what lies out there in the very back part of our back yard.

There is simply a small area out there that is our property, where Gary mows and where more trees grow to both sides. And it is there where a finger of the neighborhood lake weaves in a curve. This part of the lake is dry for a good part of the year, but is full of water when the rains come.

It is this section of our yard that is, to me, fairly creepy. There are some trees there, one especially, that is wild and untamed. Its branches are tangled in a mass of knotted wood and long thorns that threaten if you get too close. It’s a dark place, especially in the summer when leaves and underbrush are growing. I feel cold in this area, even though this is still our yard. It isn’t warm and welcoming like the rest of our yard, but is a little ominous and foreboding. I like to walk back around those large evergreens where I can see our house and the rest of our yard, safe and welcoming.

I was standing in this area of our yard a few days ago while Aaron and I took our Great Dane, Jackson, for a walk. Aaron was having fun exploring the dry creek bed, and Jackson was sniffing everywhere and everything. I still didn’t want to linger long here, but as I did stand there I was reminded of one of our favorite Psalms and of the very wonderful lesson we learn from it.

We often think of Psalm 23 as the one we read at funerals. But David wrote this Psalm from his life as a shepherd, before he became a king. He compared our God to a shepherd, a life that David knew well. Our Shepherd makes us lie down in green pastures and leads us beside still waters. But…..He also is with us during those times that we must walk through dark valleys.
“Even though I walk through the valley of the shadow of death, I fear no evil, for You are with me. Your rod and Your staff, they comfort me.”
Often shepherds in Bible times found themselves in desert areas, where there were deep valleys. Those valleys were full of danger. Danger could come from bandits, from sudden raging floods, or from wild animals. The valleys were frightful…..a place of threat to the sheep. But the good shepherd kept a close watch, using his rod to beat off wild animals and his staff to gently guide the sheep away from danger. Sometimes there was no other way to go but through the desert valley, but the sheep knew that they could trust their shepherd to guide them through the dangers.
So it is with you and I as we live this life. Honestly, if left up to me, I would have chosen some different paths than those that God has chosen for me. But God knew best for me, and He continues to know where I need to be and what circumstances need to be around me. He has proven Himself undeniably faithful and loving to me, even…..and especially…..in the very hard times. He has a reason, a purpose, for every dark valley and every unwelcome event in my life. He may choose to let me know the reason now, and He may not. That’s where trust comes in…..the trust of me, a sheep, for my loving Shepherd.
I have dear family and friends who have been in, or are still in, one of those dark valleys. To each of you I say that God, your great Shepherd, is with you. He will protect you and He will comfort you as only He can.
To Paul and Goldie whose daughter, Jennifer, went to heaven only a month ago after such suffering. To Janet, my dear friend who is fighting cancer. To Nancy, whose sweet father was just put on hospice. To Steve and Dona, whose lives have been radically changed when Steve suffered a massive stroke over a year ago. To Dan and Wendy, who face untold stress and grief as they watch their precious Elijah suffer from severe seizures. To Sarah, Anna, and Kyle, who have had more loss this year than I can fathom. To Linda and Laura, who will always grieve the tragic death of their son and brother. To Kurt and Jill, whose son Nicholas just endured yet another infection and brain surgery. To my sister, Mary Beth, who somehow goes through each day with a smile as she struggles with a muscle disease. To Karen and Bill, who have heartache that just can’t be told.
And to so many more of you, each with your own battles……your own valleys…..your own dangers and fears. Let God be your Shepherd. Know Him and trust Him. Know that He has a reason for every path that you take, and His reason is one that is born out of deep love for you. Someday we will understand. And in the meantime, we need to trust our Shepherd to have our good nearest to His heart. For he truly does.
“Surely goodness and mercy (lovingkindness) will follow me all the days of my life, and I will dwell in the house of the Lord forever.”

Be My Valentine
Aaron climbed in the van this afternoon when I picked him up from his day group. I talked to Katie, his staff, about his day…..which she said was excellent, with Aaron being kind and funny. What awesome news!!
Aaron was settling into his seat and buckling his seat belt as Katie and I finished talking. I had noticed that he walked to the van carrying two things in his hand, so before I drove away I looked down at the two items that he had placed between our seats.
“What are those things?” I asked him.
“Well,” he replied as he held up a cup. “K asked if I would be her Valentine, so she gave me this.”

K is a client, one that Aaron doesn’t see a lot, I don’t believe. But I guess she wants to be Aaron’s Valentine, so she hopefully sealed the deal with this gift. It made me smile. But it was the next thing that I saw that had me laughing.
The list. She wrote a list for her new Valentine. You know, just to give him a few gift ideas so he could seal his end of the deal.

This girl has been schooled, let me tell you!! HaHaHa!!
And good old Aaron, who loves to give and to share, asked if he could give those gifts to K. I explained, as we drove home, why these gifts were out of the question. Aaron was disappointed, and surprised, that he couldn’t buy K what she wanted.
At supper, Aaron showed Gary his gift from K, which made him smile. And then he showed Gary the gift list, which made Gary laugh out loud just as I did. Aaron was stoic, still disappointed at our reactions.
“You mean I can’t get her those gifts?” Aaron asked with a straight face.
“No, Aaron,” Gary replied. “You don’t have that kind of money for all those expensive gifts. Why, even your mother wouldn’t expect to get those kinds of gifts.”
Wait.
What did Gary say?!!
Why is he laughing?!!
🙂 🙂
I’m Trying to Go HAPPY!!
Aaron and I sat down to play Skip-Bo the other night. It’s a familiar nighttime routine for us on many days, this game of Skip-Bo. As Aaron came to the table, I saw that he was carrying two bowls. One was empty, and the other was full of Tootsie Rolls. These Tootsie Rolls had been a sweet surprise from our friends, Jim and Joyce, this past Sunday. Aaron was very happy to have been given such a huge bag of Tootsie Rolls, trust me!

As we sat down to play Skip-Bo, while I was shuffling the cards, Aaron began unwrapping a Tootsie Roll. He carefully took off the wrapper, and I then learned the purpose of his second bowl, the empty one. He placed the Tootsie Roll wrapper into the empty bowl. Soon he was ready for his second piece of candy, so he once again pulled on the wrapped Tootsie Roll, removed the paper, and carefully placed it alongside the first wrapper in the proper bowl.
If there was ever a picture of how Aaron organizes his life, it would be in his use of multiple bowls. I have blogged about this in the past, especially this piece from a few years ago. It so fully explains Aaron’s use of bowls. Put That in a Bowl!!
So as I watched him eat his Tootsie Rolls while we played Skip-Bo, I was once again reminded of how Aaron wants……no, he needs……his life to be just a certain way. We all do that to some extent, but for an individual with autism, those needs are ever more acute. The smallest disruption in routine and expectations can totally pull the rug out from under Aaron.
Providing some fluctuations in his day and in his life can actually be very good for Aaron. Finding the balance, though, is tricky. Giving him consistency while also guiding him through changes can be very challenging for him, and definitely so for all of us who are a part of his life.
The staff at Paradigm can most assuredly attest to this fact. They endure changing Aaron more than anyone. Aaron can be very up and he can be very down at his day group. Sometimes we see and know the triggers, and sometimes we don’t. They have seen the good, the bad, and the ugly from Aaron during his nearly 11 years there.
Aaron has been home this week with a bad cold. He totally loves staying at home and would do so every day if we let him. But like I said, Aaron needs to be away from routine and predictability in order to grow and to thrive. He has friends at his day group and staff that he loves, but the atmosphere there is active and sometimes loud. He can’t totally control his environment there……what people say or do……what activity he will participate in that day……how he will feel. So for Aaron, staying home is much more preferred, but is not at all what he needs to do every day.
He was well enough to return to Paradigm yesterday, on Friday. I could tell he didn’t really want to go……didn’t want to think of leaving home for the day. I was encouraging Aaron to keep a good attitude as I poured his morning coffee under his watchful eye. He watches to make sure I do the coffee job JUST RIGHT!
“Mom,” he finally said. “I’m not trying to go MAD! I’m trying to go HAPPY!”
Wow! His insights floor me sometimes.
He really wants to process life correctly. Sometimes, however, it’s just a huge stretch for him to be able to do that.
For Aaron, it’s Tootsie Rolls in one bowl and Tootsie Roll wrappers in another bowl.

He can control this business of candy and candy wrappers. He can’t control, though, his atmosphere at his day group. Some days it’s just too much. But we must gently push……must keep trying……must understand how hard it can be for him.
He had a great day yesterday at Paradigm. They went to watch Rogue One at the theater. Well, I’m not sure if it was a “great” day, but Katie told me that it was a good day……and to me, that’s great.
Gary and I had Aaron with us at Sam’s on Monday. I was checking out the asparagus when Aaron walked up to me with a bouquet of flowers, his face all smiles while Gary watched in the background. Gary had pointed out the bin of flowers to Aaron, and Aaron instantly wanted to buy me some. We’ve watched those Iris’s this week, some blooms falling off as they wilt while other buds burst into bloom.
Again, just like Aaron. We wait for him to grow……hopefully to bloom……and in the mean time we enjoy him and his unique, colorful life that we see every day.
Candy and wrappers…….buds and blooms……it’s all part of what makes life with Aaron both challenging and beautiful.

Put That in a Bowl!!
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New Year, Old Ways
A new year is upon us!! Welcome, 2017!
A fresh start can be so nice. New everything. Out with the old, right? Well, not always, as I have seen on the past two days. We all know that to be true.
I ended my old year on a most familiar note…..playing SkipBo with Aaron right before bed. I guess that’s our version of a party, which suits Aaron perfectly as he really does NOT like parties. Parties have too much noise and emotion for him, thank you very much. But SkipBo with Mom is orderly, predictable, with nice piles of sequential numbers, and plenty of opportunity to cheat. Yes, cheat, of which Aaron is a master if not watched closely.

The next morning, our New Year morning, saw Aaron blandly staring at me as I very happily wished him a Happy New Year!! His lack of expression at these moments is often hilarious, but I can’t always laugh because he finds that emotional expression irritating or he thinks I am laughing at him. Which at times I am, but in a good way that he just wouldn’t understand.
Anyway, Aaron’s main concerns on our New Year morning were:
1) Can I have FOUR cups of coffee? (Don’t worry. The cups are half full).
2) Are there coupons in the newspaper for me to cut?
3) What time are we going to Chili’s for lunch?
Aaron had opened a gift during our family Christmas Bingo game. The gift was a Chili’s gift card that was burning a hole in…..well, in my wallet because I don’t dare give Aaron gift cards to keep. They won’t keep with him. They will be lost or given away.
I told Aaron that we would go to Chili’s after church. He wanted to know the exact time, so I gave him my usual ball park figure and he was happy. He was not so happy with the coupons in the paper for some reason. Still slow from his cluster of seizures on Friday night, the coupons did not make him show his usual sense of purpose. However, he settled in on the floor with his coupon trash cans as he sat on his coupon pillow with his coupon scissors…..and his FOUR cups of coffee on the bench nearby…..and he began to clip the coupons, very slowly.
I was in the bathroom later when Aaron came to the door. “Mom,” he slowly began. “I was cutting coupons but there were too much.”
Pause.
“OK,” I responded.
Pause.
“There were too much,” he repeated.
“Yes, there were a lot today,” I replied.
Pause.
“There were too much coupons,” he said again.
Pause.
“There were too much,” he once again asserted when he got no Mom reply.
Pause. Sigh from me.
“Aaron, just take a break. You can finish them later,” foolish Mom said.
Pause.
“I ripped them,” Aaron flatly replied.
Pause. Another sigh from me.
I was following Aaron’s train of thought, one all too familiar. He didn’t want me to cut those coupons.
“Because you don’t do them right,” he continued. “You don’t cut them straight on the line like I do.”
He made his exit on that note. No surprise from me. It might be a New Year, but we are still living in our old ways…..always, always.
And sure enough, there on the family room floor lay his unfinished little stack of coupons……ripped, just like he said. Aaron’s thinking has always been this…..that if he can’t cut the coupons, NO ONE will cut the coupons. Especially Mom, who is a dismal failure at coupon cutting.

Those ripped coupons were a stark reminder to me that just under the surface with Aaron there is always that issue of how he handles stress in his life. He reacts, and often his reactions are very inappropriate. His behaviors are a huge concern to us. So I stood there being reminded that we were on our first day of a brand New Year, brand new beginnings, brand new opportunities……and here we were, being slapped into our old reality of life with Aaron.
Some things just never change. We know that.
But there were other reminders of wonderful things that never change, either. Gary and I finally got to church on time. Yes, we were one of THOSE people who totally didn’t see the memo on the changed time for church……one of THOSE people who didn’t give New Year’s Day a second thought…..and so on this New Year’s morning we drove to church TWICE. And we laughed at ourselves. We’re HOW old?!
Anyway, we walked into church to the hugs and handshakes of sweet friends. And there was Joyce, who handed me a bag containing a huge bag full of Tootsie Rolls…..for Aaron, because of my recent Tootsie Roll blog. How unexpected and sweet, in more ways than one! Later, Aaron was also surprised and full of smiles at this kind gift.

The care of friends is unchanging in our lives. Such a blessing!
The worship and the message on our New Year’s morning was encouraging and challenging. And we sang one of my most favorite songs – Great is Thy Faithfulness. What a wonderful reminder of God’s unchanging faithfulness in our lives!
And later, as we sat with Aaron at Chili’s, Gary and I watched him ever so slowly eat his enchilada lunch and his salad. His joy at eating out was very evident. Never changing, his love of restaurant food! And seeing that joy is always fun for us, despite our constant reminders to him that he doesn’t need to take 17 toothpicks…..don’t stare at the other people and their food……don’t make noises…..don’t clap…..please don’t loudly stretch when you get out of the booth.
Never changing.
I was able to salvage a few coupons later from the ripped pages. I didn’t let Aaron see me as I quickly cut them out behind his back. And I know that we will continue to try to salvage good out of the bad days that Aaron will surely have this year. It’s our reality with Aaron, New Year or not.
But through it all I know, like that favorite old hymn says, that God will remain the same, too. Faithful to us, as always.
Great is Thy faithfulness, O God my Father,
There is no shadow of turning with Thee;
Thou changest not, Thy compassions they fail not;
As Thou hast been, Thou forever wilt be.
Great is Thy faithfulness! Great is Thy faithfulness!
Morning by morning new mercies I see.
All I have needed, Thy hand hath provided.
Great is Thy faithfulness, Lord unto me.

Some Special Heroes
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My Priceless New Year’s Gift
I was sitting by our Christmas tree this morning, knowing this is the last time I’ll be enjoying its soft beauty this year. And it hit me. Everything I do today will be the last time I do “that” this year, because tomorrow is a whole new year! My brain, fuzzy from another long seizure night with Aaron and waiting for my first cup of coffee to kick in, tried to wrap itself around that fact. 2017 is almost here!
I’m not really as excited as that exclamation point may indicate. I mean, a new year is always pretty cool to think about. But life has a way of pulling us back to reality, especially as we get older, and for me my vision is narrowed to what I have on my plate right now. I know I need goals, but on days like today, today is about all I can handle.
Up four times with Aaron and once with the dog last night made my reality at that moment very narrow. It was the tree and the lights…..my coffee…..and the baby monitor beside me as I listened to Aaron after he returned to bed, my ears jumping into alert mode at each change in his breathing.
And one more thing……a word. The word “grace.” Sometimes that word may be overused, if that’s possible, and for me may lose its full meaning. But this morning that word kept going through my tired mind.
Two meanings of this word popped up on my handy phone dictionary app. They are:
1) The freely given, unmerited favor and love of God.
2) The influence or Spirit of God operating in humans to regenerate or strengthen them.
Perhaps my favorite grace passage in the Bible is 2 Corinthians 12:9-10. I was drawn to that this morning, and though I know it pretty well by heart, I made myself actually walk upstairs to get my Bible. Really, walking up the stairs took some effort this morning. I felt like I should copy Aaron, who earlier went up the stairs monkey fashion on all fours, as he often does.
Anyway, Bible in hand, I sat down and opened to these familiar verses. Paul had been given his “thorn in the flesh,” whatever that was…..and three times he implored God to take it away. Implored…..past tense. It seems that Paul was done with asking God to remove it, and was now able to say in the next verse that God “has said,” meaning that there was an ongoing result of God continuing to say these truths to Paul:
“And He has said to me, ‘My grace is sufficient for you, for my power is made perfect in weakness.’ Most gladly, therefore, I will rather boast about my weaknesses so that the power of Christ may dwell in me. Therefore, I am well content with weaknesses, with insults, with distresses, with persecutions, with difficulties, for Christ’s sake; for when I am weak, then I am strong.”
One thing I had written beside these verses in my Bible, my memorial stone, was simply: “Feb. ’92, Aaron.” That was the terrifying day in Germany, 25 years ago, when Aaron had his first big seizure. I’ll never forget that Sunday afternoon in our kitchen in military housing…..the terror of him falling backward into my arms…..blood coming from his mouth as he seized and I screamed for Gary……the frantic phone call……the ambulance……the German children’s hospital…..language barriers with doctors…..so much to absorb and to understand and to fear.
But God was there with us bringing His unmistakable peace and calm, due only to His grace. It had nothing to do with Gary and me being strong, or having a certain personality, or any of that “me” stuff. I was a momma wreck! It was totally God pouring out His strength…..His grace…..onto and into me.
So here I was this morning, 25 years later……TWENTY FIVE!!!!…….and God pulled me back to these memorial verses. Nothing has changed. Aaron had four hard seizures last night. God has not taken away this thorn, this reality, this sadness in Aaron’s life and in ours. But he has, over and over and over again, shown us His grace….His love……His favor…..His strength…..in the middle of our pain and our struggles.
So am I, like Paul, “well content” with this weakness that God has given our Aaron and us? That phrase means “to take pleasure in.” Well, no. I can’t honestly say that I take pleasure in Aaron’s seizures or in his autism. But I must look beyond all that list of things Paul mentions “taking pleasure in,” and look at those words, “for Christ’s sake.”
For my whole life, really, is to point to Christ. That’s what following Him is all about, after all. And if I could handle it all myself, I wouldn’t need Him. But I DO need Him!! And therefore, what Paul said is so true. “When I am weak, then I am strong.”
Strong because God makes me that way, and He makes me that way only because of His grace. Back to that word again…..grace……the outpouring of His favor and strength upon me.
So I just found my resolve for this new year. It’s to come back to the realization that I can’t change a thing, but I don’t need to change a thing. Recognizing my sorrow and my pain isn’t meant to point to me and to make me the focus. It’s to point to Christ and to talk about His grace through it all.
“So that the power of Christ may dwell in me,” Paul said. That word “dwell” means “to pitch a tent.” Christ’s power is here for the long term, for me, as I rely on Him and trust Him in the hard times and thank Him through all of it.
His grace is here for all of us who follow Him. What a priceless gift! So I close with the words of this old song written by Don Moen, perfect for this new year ahead.
He Giveth More Grace
He giveth more grace as our burdens grow greater,
He sendeth more strength as our labors increase;
To added afflictions He addeth His mercy,
To multiplied trials He multiplies peace.
When we have exhausted our store of endurance,
When our strength has failed ere the day is half done,
When we reach the end of our hoarded resources
Our Father’s full giving is only begun.
His love has no limits, His grace has no measure,
His power no boundary known unto men;
For out of His infinite riches in Jesus
He giveth, and giveth, and giveth again.
His grace is such a gift! And so is our Aaron.


The Darkness
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A Light In the Dark
It had been a dark day here. Clouds were thick with not one peek of sunshine all day. The outline of the bare trees was stark against the grey sky. The big oak tree out back looked dull, even though its leaves were still clinging to its branches. It was just a heavy day in the way that often happens at this time of year.

And then suddenly everything changed. I’m glad that I looked out the window when I did. The change, though stunning, was very brief.

Somehow the sun did shine through that thick layer of clouds. And what a difference its appearance made. Color returned to the world outside my window! Greens, golds, rusts, and even blacks were so beautiful in those few moments. And those moments showed me that the sun was there behind the clouds, still shining even when the clouds hid its brightness again.
I don’t know why sometimes God allows His children to endure prolonged periods of heavy, dark days. I do know that suffering makes us more like Christ. Suffering is the tool that God uses to form us into His likeness……to show us Who He is……to bring Him glory. Sometimes it just doesn’t make much sense, though. And it hurts, deeply hurts.
There is hope. God hasn’t gone anywhere, even when we can’t see His light. These few words that I read recently say it very well:
“Light arises in the darkness for the upright….” (Psalm 112:4a)
This is so much more than our human wisdom. This promise isn’t, “Just look at the bright side!” Sometimes there is totally no bright side to see anyway. Please don’t tell me to try to find one.
The light that arises in our darkness is the Light of the World. The baby that we celebrate this time of year is that Light. John called Him the true Light. But baby Jesus was born into a dark world in a dark manger. His life was hardship and ended in horrific pain….all because He was the Light.
His light shines into all my dark places today, not only to expose sin, but also to show me the way and to show me that He is there in the darkness. He is there to comfort……He is there to provide…….He is there to love.
I don’t have to “find” Him. He shows Himself to me in sudden ways, sometimes even brief ways, like my burst of sunshine on that heavy day. He brings sweet answers to prayer. He fills my heart with peace. He brings a friend to cheer me. He reminds me of my many blessings.
The dark days grow my trust.
The light that arises in that darkness reminds me of the One in whom I trust…..that He is there and He is faithful.
The light shines best in the dark. May I remember that truth on every dark day.
