Category: Blessings

I Almost Missed It

A little after 6:00 yesterday morning, I heard a loud thump coming from Aaron’s room.  I opened his door to find him lying on the floor beside his bed.  He had obviously fallen out of bed, but why?  I didn’t hear a seizure, so I assumed that he had just been too close to the edge of his bed and ended up tumbling out onto the floor.  But he wasn’t waking up and I was wondering what had happened.  He’s too big for Gary and me to lift, so I had to leave him there after checking him for injuries and hope that he woke up soon.

He did awaken and climb back into bed.  Later, when he got out of bed and had taken his shower, he came into my bathroom where I was readying for the day.  “Mom,” he said in a low voice.  “I don’t feel well.  My head hurts.”

I looked at him and saw a red mark on his forehead where he had hit his head on the lower shelf of his nightstand when he fell out of bed.  Poor Aaron.  Sometimes it seems that if something’s going to happen, it’s going to happen to Aaron.

After talking to him for a few minutes, I decided to let him stay home for the day.  I was mentally shifting gears then as I rearranged my schedule somewhat, knowing that Aaron would be home.  It’s really not a life changing big deal, usually, to keep Aaron at home on days that I don’t plan on him being home.  But I do have to shuffle some things around that are on my list for that day.  Like I said, not a big deal on most days……but it can be an inconvenience. 

There’s another element, too, in keeping Aaron at home.  I’ll be honest…..I enjoy my alone time and am refreshed during my breaks from Aaron.  I feel selfish to say that, but all parents understand what I mean.  As I make a decision to keep Aaron with me all day, I know that I might end up frustrated as the day progresses.  He likes to shadow me all day between his times on his computer, talking constantly about things that either don’t interest me or that I have heard over and over and over. 

It’s at those times that I know I have a decision to make…..basically, be content or be miserable.  Be understanding or be irritated.

I was thinking about these things this morning as I heard a man on the radio talking about his unplanned health issues that have severely impacted his life.  He said that he has learned not to let his joy be dictated by his circumstances.

On a much, much smaller scale, that is the decision I faced yesterday.  And it’s the decision that I face on many days, not just concerning Aaron, but concerning every aspect of my life. 

Do I allow my circumstances to dictate my joy……or do I let God dictate my joy even IN my less than ideal circumstances?

God tells me to be content in every situation, with thankfulness to boot.  I don’t even want to tell you how many times I mess that up!

I thought back on yesterday with Aaron and was struck by what I would have missed had I not kept Aaron at home…….other than tons of talk about the movie Battle Los Angeles; his new delight in playing Battleship on his computer as he expounds on EVERY. SINGLE. WEAPON.; and whether Charlie Daniels is from the north, the south, or the west, and is he a cowboy singer or a country singer; and so much more.  Really.  Much, much more.

So what would I have missed?

I would have missed his heartfelt hug, so rare on most days from Aaron.

I would have missed him at lunch, saying, “I’ll wait for you to eat with me, Mom, so we can pray.”  Then holding his hand and listening to HIM pray his simple, sweet prayer.

I would have missed him asking if he could do the watering of my porch plants.  Look at his tongue!  🙂

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I would have missed him going with me to Dillon’s, where he asked if he could buy two thank-you cards for Barb and Brandy at Paradigm.

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I would have missed watching him prepare those cards, and ask if he could include a Papa Murphy’s coupon in each one.

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I would have missed the opportunity for God to once again speak through these simple things to my sometimes stubborn, selfish heart.  I am living the life that God planned for me.  It’s not a bad life at all, but not necessarily the path of life that I would have chosen if I had been given the option to plan it all myself.  I mean, I’m the age where I should be an empty nester and have freedom…..right?

Nope.  Not at this point, and maybe never.  But there is so much joy, even in the frustrations, because I have learned that God is good and His plan is good.  HIS plan……not mine, always. 

So yeah, my circumstances should not dictate my joy.  My joy is dictated by God IN my circumstances. 

Being thankful is a huge part of my joy.  It’s really the key that opens the door to joy, but it’s the hardest thing to do sometimes.  It’s pretty cool that Aaron wanted to buy those thank-you cards yesterday.  I need one to continually hand to God, every day, many times.

I bet Aaron could help me with that.

Oh wait……he already has.   

 

The Skies From My Window

Many of you know that I love taking pictures of our pretty Kansas sky.  My favorite place to take those pictures is from the window in one of our upstairs bedrooms.  This bedroom will always be, to us, Andrea’s room – even though she moved from home several years ago.  When I see a particularly pretty sky I will run upstairs, open the window and lift the screen, and fire away with my phone camera.   

As I look back on these pictures, I find that no two are the same.  Absolutely every shot of our sky, on every day that I took those shots, is entirely different……if there are clouds involved, that is.  I don’t usually take pictures of a totally blue sky, though blue skies are nice.  But after a while, completely blue skies would be a little boring. 

Sometimes the pictures are simply beautiful, like the one I snapped last night.  Isn’t this just breathtaking?

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Some inspire awe, like this one.

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Sometimes I see life.

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Other times the seasons show themselves.

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This one view, from the same windows…..the same vantage point……is anything from being the same, day by day. 

It’s a lot like my circumstances in life……like yours, too, I’m sure.  Our circumstances change, sometimes often and other times less frequently.  At times the changes are dramatic.  Other times the changes come subtly, but they come regardless.

Our circumstances may be pleasant, and some of the changes we go through can be happy and pleasant as well.

But other circumstances are painful or shocking, involving deep hurt……fear……dread. 

Last week I found out about two friends who were just diagnosed with cancer.  And I took another friend for some testing after an X-Ray showed something suspicious.  We are still awaiting her results.  Some have already received disturbing news…..others are still waiting, with dread, on what may be.

My circumstances……my surroundings……can on one day fill me with peace and on the next day fill me with worry.  It’s like my view of our sky from the upstairs windows.  Sometimes peaceful…..

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Sometimes stormy……

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I’ve been reading through the book of Exodus.  Moses certainly experienced a variety of circumstances in his life……plenty of high’s and low’s.  From a basket in the bulrushes to the palace.  From the palace to the desert.  From shepherding sheep to leading a nation.  From the parting of the Red Sea to the grumbling of that unhappy nation.  From speaking to God on the mountain to confronting idol worship at the foot of the mountain.  From obedience to anger. 

After the Israelites had given up on Moses and turned to worshipping the golden calf, Moses and God both were pretty angry.  Moses went back to God after things settled down a bit and he prayed.  He said, “God, let me know your ways that I may know you….” 

God’s answer? “And He said, My presence shall go with you, and I will give you rest.” 

God’s presence is all that His people needed……and it’s all that you and I need.  He’s promised to be with us, and He’s promised to give His children rest. 

Two things I’ve learned in the years that I have lived.  First, don’t look to my surroundings for rest…..even in the good times.  When life is going well, with sunny skies and soothing views ahead, those things should not be the source of my rest and peace.  I’m thankful when life is pleasant, but pleasantness is not the source of rest.  Only God is to be my strength and my peace.  Knowing Him and depending on Him, following Him and trusting Him, is still the number one thing I need to do when the skies are sunny and beautiful.

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Second, I’ve learned to also not let my surroundings…..my circumstances……pull me down and rob me of rest.  This happens so easily when skies are stormy and life is stressful.  Bad news…..stressful relationships……more bills than we have money……wayward children……    We all know what it’s like.  Life is full of the hard times, unfortunately, and they often happen suddenly.  At other times we live under the stresses day after day as they gradually take their toll.  But still, the rough times are to be a time of rest……..and they can be if we know the same God that Moses knew. 

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For God’s promise to Moses is our promise as well:  “My presence shall go with you and I will give you rest.”  (Exodus 33:14)

Remember I said that pictures of blue skies would get boring?  I love blue skies, but honestly the best pictures occur when clouds are present. 

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So it is with us.  I believe the best lessons are learned when we have some clouds in our lives.  Deeper trust and greater joy have been my experience during the stormier times of life. 

Those clouds also bring a more intimate walk with God, full of so much beauty.  Hopefully I can reflect Him more as I walk closer beside Him. 

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And I can rest.  I don’t know today how God will give me rest, but He has said He will and I believe Him. 

Rest, and enjoy the view, because with God life is stunning.

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Another “Sorry Card”

I pulled up in front of Aaron’s day group today, waiting for him to come outside and wondering as I always do in what mood I would find him.  He wasn’t very happy to go this morning.  Mondays are often difficult for Aaron, like they are for many who must return to work or school.  Problem is, Aaron isn’t always able to filter his frustrations, so he may be angry and rude as he expresses his Monday morning blues.  But he did go this morning, carrying his bag as he got out of the van…….his bag holding two bottles of water from the house, two sausage biscuits and two boxes of Hot Tamales from Quik Trip, and two cucumbers from our garden.  The water and the food was for Aaron.  The cucumbers were for whomever he decided to give them to today.

Aaron’s language of love toward others is definitely sharing.  I have to watch him or he might try to sneak things out of the house that I don’t want him to share.  Or he might bring a smile, as he did a couple weeks ago, when he put a few okra from our garden into his pocket…..and gave several of the staff at his day group AN okra.  One okra.  I’ve wondered if they think me a bit stingy.

Anyway, I sat in front of Paradigm today trying to prepare myself for whatever form of Aaron would soon be climbing in the van beside me.  Happy Aaron?  Sad Aaron?  Tired Aaron?  Angry Aaron?  It’s so much like still having a kindergartner in school, going to pick them up and waiting for their stories of the day, and seeing what frame of mind they are in.  Except that all the clients at Paradigm are adults, not young children.  My Aaron is nearly 32 years old and weighs 225 pounds!  He is grown up, but sometimes still his issues are not. 

He walked out today with Barb, his very loving staff, holding Piper the resident therapy dog.  Along with Aaron and Barb walked one of Aaron’s friends who often comes to the van with Aaron to see if I have brought our big Jackson.  I could tell that Aaron looked like he had been crying at some point, and I was right.  As the van door opened, Aaron’s mouth also opened as he told me that he had gotten mad at J for telling him to be quiet so that another client could sleep…..and Aaron thought that J was being bossy…..and Aaron didn’t like a hand motion that he said J made (nothing bad – Aaron just really doesn’t like other’s hand motions)…..and so Aaron hit J in the back…..really hard. 

Oh dear.  Children’s issues but in adult bodies.  Barb was kind and supportive as Aaron declared that he did not want to come to Paradigm tomorrow, telling him that she hoped he would come, but not pushing the issue.  I said a little but not much, knowing it’s best to let the dust settle first.  More soft words from Barb and then she mentioned that he gave his two cucumbers away…..and his little friend standing behind Barb brightened, opened her purse, and pulled out one of the large cucumbers.  Aaron brightened, too, and my heart softened for this man/boy who has so many conflicted emotions in any given day, today included.  The moment suddenly turned sweet and funny, his little friend happily holding up her cucumber with a big smile on her face.  These special adults can touch me so deeply if I just pause to soak it all in.

Reality hit again as Aaron and I drove away.  He told me once more that he didn’t want to go back tomorrow.  I was seeing a long evening ahead of anger and sadness, with Gary getting hit with it as soon as he unknowingly walked in the door.  So I calmly talked to Aaron for probably the zillionth time about not hitting people, about how that holds him down in life, and how someday he might get hurt. 

He turned on the CD of Zac Brown.  “Don’t talk, Mom,” he instructed.  “Let’s just listen.”

This suited me fine.  We hit the three lane and rode in silence in rush hour traffic.  Finally, he reached over and turned off Zac Brown.

“Mom?” he asked.  “Can we go to Dillon’s and let me get a sorry card?”

What?!  Aaron’s mood had dramatically changed.  As he has in the past, he wanted to once again get a “sorry card” for someone he had hurt.  But this change had happened quickly.  He was sincere and quiet as we talked about it.  I told him that we had cards at home he could use, and he was satisfied with that. 

“And can I bring Barb an okra?” he continued.  I suggested a green pepper instead, and he was excited at that idea.

“Mom?” he asked again.  “I’d like to bring S a stuffed animal.  That’s why I wanted to bring her my spider.”  But I reminded him that his cute stuffed spider was a special gift from Bruce and Glenda, from Hawaii, and he shouldn’t give that away.  I told him we would look for something else to give S…..his very special friend who is wheelchair bound, all bent over, and the girl with whom Aaron loves to share his food and his conversation. 

I can’t explain the positive change in Aaron’s mood, but I sure have been praying lately about his hitting and his anger at times.  Praying, too, as Gary and I get so tired some days.  So I may not be able to explain Aaron’s happiness tonight, but I can say thank-you to God for allowing it. 

I ended up finding an ancient little “sorry card” that I had saved in my ancient container of cards……two “sorry cards,” in fact……so Aaron chose the one he wanted to give J.  Later, he saw the Burger King coupons from yesterday’s paper that he had cut out.  He asked if he could give one to J, so we chose one to cut out and include with the “sorry card.”

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Then I showed him one of the green peppers from our garden that he could give to Barb, and it met his approval. 

Finding something for S was a little more difficult, but I remembered a very soft pillow stuffed with tiny microbeads, a pillow that Aaron never uses.  He set it aside in his room, ready to take to S tomorrow. 

I was happy that I had started supper early because Aaron wanted me to play the Frog in the Pond game on the Atari system that Gary hooked up to Aaron’s computer.  We laughed and laughed and laughed at me trying to get the frog to catch the bugs.

Aaron offered to set the table for supper.  He fed Jackson a piece of asparagus stalk.  He didn’t dump bad news on Gary when he came home from work.  He told Gary all about our Atari game and all about his sharing plans for tomorrow, but barely was mention made of his rough spot today and why he needed to give J a “sorry card.”  We watched Wheel of Fortune, and we laughed ourselves silly at the Nexium commercial with the man who was made into a burrito.

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I pray that tomorrow morning, when Aaron wakes up and is tired, that he doesn’t change his mind about all that he has planned for tomorrow.  I pray that he is excited about all the things he plans to take to give away, especially the “sorry card.”  That’s the most important of all. 

I’m grateful for this happy evening, and I know that it is one to which I can direct Aaron as an example of how to handle life’s rough patches.  I can honestly tell Aaron that he was a wonderful example to ME of how to overcome anger and frustration. 

Sharing touches a loving chord in Aaron’s soul.  It always has.  I need to work with that more, and get creative.

I can see a trip to Dollar Tree in our future.  We need to restock Aaron’s “give away” items, or I may be missing some dishes…..towels…..jewelry……

 

 

 

 

The Hanging Sunflowers

It’s a little hard to believe that after 17……..yes, that’s 17!!!…….years of living in Kansas, this is the first year that we have planted sunflowers.  I have no idea why we waited so long, but maybe that long wait is one reason that I am enjoying them so much.  And as always, I’m learning more from our sunflowers than just the mechanics of how they grow.  God speaks to me through my growing things, including through my own growing…..which is often a little painful, I’ll admit.

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Did you know that sunflowers follow the sun?  Maybe that’s a “duh” comment to most of you, but I noticed how our sunflowers………while they were beginning to bloom and before the big flowers opened…….were leaning one way in the morning and then leaning another way in the evening.  In my reading about sunflowers, I discovered that they literally do follow the sun during this “beginning to bloom” phase.  It’s called the Sunflower Dance.  They are the only flower, from what I read, that engage in this dance.  How amazing!

I was super excited when our first sunflower actually bloomed.  And boy, it was a huge one!!  We really planted these sunflowers for Aaron, but he didn’t really get nearly as animated about that first flower as I did.  Of course, Aaron rarely gets as animated about everyday things as most of us do.  Now, if it was an alien standing in our garden……

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Anyway, this huge first sunflower was just gorgeous.  So tall…..so erect……so bright!!!

But after a period of time, I noticed that the stunning head of our sunflower was drooping.  Being the sunflower novice that I am, I wasn’t quite sure what was happening.  I WAS quite sure, though, that as our sunflower head hung lower and lower, I was very disappointed.

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I thought sunflowers were supposed to be all tall and amazing for their whole blooming life.  I surmised, in all my “wisdom,” that this particular sunflower must have just been too large for its own good.  The stalk must not have been able to support that weight, and so it just could bear it no longer and it sank down in defeat.

But if you look at this recent picture I took of Aaron with the sunflowers, you’ll see that nearly ALL of them are now bending over.  And now I understand why!

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The sunflower hangs its head when it’s producing fruit!  Sunflower seeds are now ripening in each of those gorgeous blooms, and soon can be harvested.  On the actual sunflower, there are many individual flowers……and behind each flower, there is a seed.  But the seed doesn’t ripen until the head is lowered.

This was a very meaningful discovery to me, and it’s for more reason than just no longer being worried about my droopy sunflowers.  It’s meaningful to me because of ME.  I’ve been a little droopy lately……weighed down by this and by that, as all of us are sometimes prone to be in this life.  I haven’t been sleeping well, and not sleeping at night is when my concerns escalate into giants……giants that like to follow me around all day.

Have you ever been there?  Bothered by both small and large issues in life?  Questioning why things are what they are?  Sad?  Lonely?  Exhausted?  Just weighed down, like my sunflowers……bending low under the weight of stress and worry.

Yesterday morning, I did what I often do when I am feeling overwhelmed……I asked God to meet with me.  Not that He needs an invitation, but there are times that I really know I need to reach out to Him and ask Him to have a talk with me.  I opened my Bible, looked down, and found myself staring at Psalm 77.  Wow!!!  How perfect!!!  Read a few portions of this Psalm:

“In the day of my trouble I sought the Lord; In the night my hand was stretched out without weariness; my soul refused to be comforted. When I remember God, then I am disturbed; When I sigh, then my spirit grows faint.  You have held my eyelids open; I am so troubled that I cannot speak.”

Sounds a little depressing, doesn’t it?  That’s why this Psalm is called a Psalm of Lament.  But that’s pretty much how I’ve been feeling.  Keep reading:

“I will meditate with my heart, and my spirit ponders.  Will the Lord reject forever?  And will He never be favorable again?  Has His lovingkindness ceased forever?  Has His promise come to an end forever?  Has God forgotten to be gracious, or has He in anger withdrawn His compassion?”

We wonder sometimes, don’t we, if God has just quit caring….or if maybe we don’t feel Him so much anymore because the deeper we hang low, the farther away He becomes?  Which then means that I’m responsible for God pulling away, and that’s really depressing!  But listen to what comes next:

“I will appeal to this, to the years of the right hand of the Most High.  I shall remember the deeds of the Lord; surely I will remember Your wonders of old.  I will meditate on all Your work, and muse on Your deeds.  Your way, O God, is holy; what god is great like our God?  You are the God Who works wonders; You have made known Your strength among the peoples.”

It’s what I think about that can make a huge difference in my emotional well being.  Using my mind to remember God’s past goodness, His sovereignty, His Word, His hand in my life……all these things are what I need to ponder in the darkness of the night and in the light of my busy days.  God has, and He does, make His strength known to me when I need it most.  And sometimes His plan does include the burdens that pile on to me and bend me low.

BUT……and this a huge “but”……..when I am burdened and bending low is when God is producing fruit in my life.  Just like my hanging sunflowers out in the garden producing their fruit, God uses the low times in my life……if I LET Him……to produce some needed fruit.

And so my thoughts turn to Romans 5 and I am once again reminded that:

“……we rejoice in our sufferings, knowing that suffering produces endurance, and endurance produces character, and character produces hope, and hope does not put us to shame, because God’s love has been poured into our hearts through the Holy Spirit who has been given to us.”

Delicious seeds are growing out in my garden among my once dancing and then erect blooming sunflowers.  Birds…..and maybe Gary, Aaron, and me……will one day enjoy those mature seeds.  But right now, the sunflowers look a little weary as they sag and droop.  Yet if I kept the tall, bright sunflowers all the time, there would be no fruit.

And so it is with me.  If things were always fun and wonderful, I would miss so much that God wants to teach me.  I wouldn’t be a partaker in the fellowship of His sufferings that He tells us is the only way to grow and learn and be more like Him.  I would have no substantial fruit…….only outward beauty that matters nothing.

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My little issues are really just that……small and not such a big deal.  But they are a big deal to me in many ways, and it’s what God seems to want to use at this point in my life to draw me to Him.  And that pull toward God is best accomplished when I am bowed down, hanging low, and thus producing the fruit that He best grows in the drooping times.

So may I patiently let God do His growing work in my life, praying that I produce the fruit He desires.  And maybe…..just maybe, if I obey……that fruit will also be used to honor God, and bless and encourage others.

It can be your story, too, this time of hanging low and producing fruit.  May we all remember the hanging sunflowers!

 

 

 

Who Is Aaron Supposed to Be?

I love this picture I found on FB this morning. 

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Aaron certainly has opened our eyes to a whole unique and special way of viewing his world…..which becomes our world as Aaron pulls us in, willing or not.  It doesn’t matter to Aaron if I am busy or tired or embarrassed or if I’ve heard or seen the same thing a zillion times.  To him, each experience seems refreshingly new and fun and definitely shared.

Like yesterday at the grocery store.  I decided to run back to the produce section after I saw the pretty cantaloupes in a fellow shopper’s cart.  Aaron loves everything about the grocery store, except maybe for the aisle with toothpaste and body wash.  If you lived with him awhile, you would see that those items are not a priority or an interest of his.  Unfortunately.

Anyway, I was examining big round cantaloupes while Aaron was pointing out the cool, spritzing water that was spraying over the vegetables nearby.  You would think that this was the first time he had ever seen this gentle spray, but it isn’t.  It’s probably the 753rd time I’ve told him what it is, but he was as excited as if he was seeing it for the first time. 

I turned and headed for the registers after deciding against any cantaloupes.  I knew that Aaron was lagging behind.  I was already in the florist section when I turned to look for Aaron.  There he stood, large and loud Aaron, holding up an artichoke.  His face was just a huge smile as he held his prize up for me to see.  I had to smile, too, standing there among the sunflowers and daisies.  What is it about artichokes that always, always grabs Aaron’s attention?  We have examined them, cooked them, and researched them…..but still Aaron will find those artichokes and hold one up for me to see as if it’s the very first artichoke that we have EVER encountered. 

I smiled and then shook my head no as several surrounding people were turning their heads to see who Aaron was showing his artichoke to.  I could see them making the connection……wondering, I’m sure, about Aaron. 

Maybe if we all saw our world through Aaron eyes, we would smile more and laugh louder and keep our curiosity sharper, even as we age. 

So let me share with you a few snapshots of Aaron in his world.

Making a funny face while we played Skip-Bo, trying hard not to laugh:

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Putting a clothes pin on his earlobe, which is totally nothing new…..but you wouldn’t know that if you looked at how intense and serious he was on this night.

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Playing Skip-Bo, knowing that Mom is looking out with eagle eyes for his cheating attempts.

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Waiting for me to go through the Wal-Mart line, and smiling like this when I looked up and saw WHERE he decided to wait……the chair at the bank desk. 

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Noticing after he got his teeth cleaned that the digital clock on the counter was flashing.  “Your clock is destroyed!” he exclaimed as he pushed by his hygienist and tried to fix the clock.  Incorrect time is intolerable!

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Recovering from three strong night seizures.  We had to cancel his therapy appointment, which to Aaron meant cancelling our lunch plans.  I was nervous about taking him into a restaurant, fearing another seizure, so instead we went through the drive-through window at Little Caesar’s and got him pizza AND breadsticks.  He was happy.  I was happy.

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And finally, sunflowers.  Aaron has wanted sunflowers for such a long time, so this summer while I was in Houston to see Andrea, he and Gary planted sunflowers around our garden.  He has watched them grow and grow and grow, until now they are much taller than he is.  Now he can’t wait for them to bloom.  He was looking at the sunflowers one day when they were much smaller.  “When are they supposed to be the size they’re supposed to be?” he asked.

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I smile at the way he phrases things.  His unique way of expressing himself is a big reason I started this blog.  I can remember wondering, when Aaron was much younger, how he would turn out.  In a sense, I wondered when Aaron was supposed to be the Aaron he’s supposed to be – to borrow Aaron’s wording. 

Well, Gary and I pretty well know that Aaron is now the Aaron he is supposed to be.  Some days that can be discouraging, I’ll admit……on the seizure days or on the hard behavior days or on the days when we are tired and really don’t want to see another artichoke.  Yet Aaron is who he is supposed to be because he is who God created him to be. 

But God gives grace when we need it the most.  He really does.  I don’t think I even realize sometimes in just what forms His grace comes to me.  Yet I do know, often in retrospect, that making it through the frustrations……the fears……the failures…..is the hand and the grace of God upon us. 

And I am so thankful that God gives me pause more times that I can count……moments to pause and enjoy Aaron’s world through Aaron’s eyes.

So you see that the sunflower in the above picture is just too perfect.  Aaron is waiting for his sunflowers to be the size they’re supposed to be and to bloom.  Gary and I see that Aaron is who he is supposed to be, and that every day he blooms in our lives, teaching us to see the world through different eyes. 

I pretty well know, too, what Aaron would say if he looked at this sunflower picture.  “What?!” he would probably say.  “That sunflower is wearing shades!!”

Better to see you with, Aaron.  Better to see you with. 

 

 

 

 

My Mom is Weird!

I haven’t done much writing lately for various reasons, a big one being that I had thumb surgery recently.  This clunky splint makes typing a little difficult.  My immobile, fat wrapped thumb keeps wanting to hit the space bar, so now you will understand if you see unnecessary spaces here and there that I don’t catch.   The backspace key is my friend!

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Gary has been taking excellent care of me, and taking up the slack in areas that I still can’t manage.  Even faithful Jackson seems to have been concerned for me at first.  I think now he’s just used to the new me. 

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But Aaron…..dear Aaron……has mostly been worried about……Aaron.  Oh, he’s shown a little empathy.   That’s not really the right word.  He’s shown a little interest in my condition, but showing a great deal of care doesn’t come naturally to Aaron.  But the times that he does express care are special indeed.

He was very happy that he got to stay home on the day of my surgery.  “When you go to take your surgery,” he had asked the day before, “do I have to go to Paradigm?”  Gary and I were at the surgery center very early, so neither of us could drive him to Paradigm.  He loves staying home for whatever reason, so I think he was secretly happy that I had surgery because it did benefit him on that day.

He eyed my left hand suspiciously when I got home.  I knew he was uncomfortable so I just tried to act normal and put him at ease.  But when I laid down in bed in the middle of the morning, he was very uncertain.  He understood, of course, that I had surgery.  But he did not  know how my surgery would affect our normal routine……and therefore affect him, greatly.

I kept the bedroom door open as I rested in bed.  It wasn’t long before I heard Aaron walking up  the hall from his room to my room.  I just kept my eyes closed.  Aaron just stood at the bedroom door, not speaking, but I could feel him staring at me.  He stood there and stared for awhile before he turned and walked back to his bedroom.  He was exhibiting his uncertainty.

It wasn’t very long before I heard his familiar steps once again in the hallway.  He stood once more at my bedroom door for a few seconds.

“What’s for supper?” he finally asked.

I told him there was plenty of food in the frig to choose from so he could have his pick.  It wasn’t really the answer he had hoped for, I knew.  He thought something along the line of pizza or a sub would be far better.  My hand surgery wasn’t working to his advantage as much as he had hoped!

But he was very happy that Gary brought him a cheddar pasta salad when he went to pick up my prescriptions from Dillon’s.  This surgery might work out after all, Aaron thought.

And soon I heard him walking heavily up the hall again.  No need to walk softly when there are matters to address that are very important.  I just waited quietly while he stared at me. 

“Are you watching Wheel of Fortune?” he asked.

No asking how I was feeling.  No wanting to know if he could bring me something.  No queries about my surgery.  And no surprise from me.  Aaron was uncomfortable and he wanted Mom to be Mom again, surgery or not.

I told him that I imagined I could watch Wheel of Fortune.  Later that afternoon, I went down to sit on the couch.  Aaron sighed when I asked him to carry my pillows.  He was seeing that this surgery would take a toll on him and his routine after all. 

We watched Wheel of Fortune that evening, and Aaron was happy.  He didn’t seem to notice my pain pill drowsiness.  He was just very happy that we could have this normal part of our day restored.  He was not so happy, though, to hear that playing Skip-Bo was going to be questionable for a day or two. 

Later that night, Aaron walked with purpose into the kitchen where I was standing.  “Mom!  Here!” he said.  “I brought you something since you had surgery.”

Surprised, I looked in his outstretched hand and saw that he held two yellow gumballs.  He had gotten them from his jar of gumballs in his room.  Usually he tells me I can have one gumball, and on a rare occasion I can have two.  This gift of TWO gumballs, then, was a true gift from his heart. 

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I thanked him and then put them on the counter.  “No, Mom!” he said.  “Hurry and eat it before it becomes tomorrow!”

So I had to smile and I had to “eat” the gumballs immediately.  I didn’t exactly feel like it, but I did chew those gumballs until all the taste was gone as I relished the kindness that Aaron had shown in his own Aaron way.

Life returned to a measure of normalcy fairly quickly.  A couple days after my surgery I even drove Aaron down to Great Clips for a much needed haircut.  As we sat in our chairs waiting for his name to be called, I showed him how I was to exercise my fingers that were protruding from my splint.  I tried to be funny as I bent my fingers, saying “Up, down, out, in!” as I bent them back and forth.  I should have known that Aaron wouldn’t appreciate my humor.

“You’re weird, Mom!” he said.  And then he looked toward the hairdressers and very loudly said, “My Mom is weird!!  She had surgery and she’s weird!!”  What do you do when all eyes turn to you and your son?  Laugh!  And hope they don’t agree with Aaron!

Aaron has done really well with this whole “Mom had surgery and she’s weird and I want things back to normal” business.  He has actually been helping with carrying and setting the table and bringing in trash cans and other things, much more that I thought he would.  He had a very grouchy week at his day group last week, though, and I don’t know if all this was part of why that happened or not.  Sometimes we just don’t know with Aaron.

And we have been playing Skip-Bo again.  Gary shuffles the cards for us and off we go!  Aaron sometimes acts like his silly self.  See the clothes pin on his ear?

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But he plays with the intent to win, realizing that Mom still can watch for cheating even with a splint on her hand!

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The other night he once again strode downstairs to find me on my computer.  “Here, Mom!” he said.  “I saved this for you.”

I looked at his bowl that he held toward me and saw it.  One lone little fruit gummy for me to eat. 

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It’s not the size of the gift that matters, but the heart behind it.  It’s true not just for Aaron, but for all of us.  Sometimes I have to look hard for Aaron’s gifts, but they are there, sweet and honest.

Brutally honest sometimes (weird Mom!)………but that’s Aaron!

 

 

 

 

 

Simple Kindnesses

I was at Aldi the other day, having finished my grocery shopping and unloading my groceries from the cart to the back of my van.  Now, if you know anything about Aldi you know that in order to get a shopping cart you must insert a quarter into the cart slot.  Your quarter releases the cart chain and you then have your shopping cart.  When you’re all done, you simply return your cart to the cart holding area, insert the chain, and out pops a quarter for you to take.  You never see random shopping carts littering the parking lot, and you never see an employee pushing a load of carts back to the cart area.  That’s because everyone returns their cart in order to retrieve their quarter.

So there I was, empty cart in hand, when I saw a woman walking in my direction.  She was on her way to do her shopping, her quarter in her hand.  I offered her my cart and she then offered me her quarter, but I did what many other shoppers do…….I told her to just keep her quarter and she was welcome to the cart.  Now you would have thought I had offered to save her $25.00 rather than just $.25.  She was so appreciative, and she said that she would pay it forward to someone else.  I know that Aldi shoppers do this all the time, giving fellow shoppers their empty carts without taking their quarter.  As I got in my van I was all smiles, just like the woman was who now had my cart and still held her quarter.  I thought of what a simple deed that was and yet how very happy it made that woman, and also how very happy it made me.

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Showing kindness can be such a simple act, yet can have such profound effects on the person to whom the kindness is given.  Most simple acts of kindness take no pre-planning or preparation at all.  They simply take an open heart and an eye for opportunities that come our way.

I’m always so thankful for those who show extra kindness to Aaron.  It means so much to me as I’m out with Aaron to see those who show patience and respect for him, even if he’s standing there talking to them about aliens or a computer game or whatever else is in his head……while he might be rubbing his hands together in excitement……or scratching himself inappropriately…..or laughing loudly.  Most people don’t know what to do in that situation but there are those who seem to just be gifted with a special understanding of our special son.

There’s the manager of our nearby Subway, whom I noticed has a knack for focusing on Aaron as if he’s all that matters to her at that moment.  She is completely relaxed with Aaron, and when she told me that her mother worked with special needs and she grew up with those individuals in her home, then I understood.  She asks Aaron what he wants to eat, not asking ME what Aaron wants.  She was on her break one day, sitting in a booth trying to eat her supper, when Aaron spied her and remembered that she paid attention to him.  He stood there talking about the latest movie he had seen, and she just looked up at him and listened as if he was discussing the very most interesting and important thing in the world.  She answered him when he asked her questions.  She made him feel that what he said was valuable.  I wanted to kiss her!!!  But I knew that might be taking it a bit too far!  🙂

There’s Shelly, the hygienist at our dentist’s office who cleans Aaron’s teeth.  We have Aaron’s teeth cleaned every two months.  Shelly should get a medal.  She is very patient with Aaron and knows just how to handle his desire to talk or to stretch or to push the instruments out of his mouth.  Look what she let Aaron hold at his last visit.

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This kept Aaron’s hand occupied and gave him something to think about other than what was going on inside his mouth.  Perfect!!

There was the girl at the theater snack counter this past Sunday.  I thought Aaron was right behind me as I bought our tickets, but I turned and he wasn’t there.  I went to one side of the snack area, but there was no Aaron.  I finally found him on the other side, and by this time he was not in a line but was right up at the counter where a young woman was waiting to take his order.  Aaron saw me and yelled, “MOM!!” as I hurried over to where he was.  The first thing I did was to ask the young woman if Aaron had pushed ahead in line and she assured me that he had not.  I knew instantly that she understood.  A mom just knows.  Relief washed over me as she asked Aaron what he wanted, looking him in the eye, and smiling at him with kindness and not with uncertainty.  She just had a wonderful way about her with Aaron, treating him with calmness and with great ease.  I wanted to quickly thank her specifically for her kindness to Aaron and maybe ask her about her background, but by then Aaron had moved on and was trying to stuff a huge wad of napkins in his pocket and locate a handful of toothpicks, so I had to run.  I’m sure she got that, too.

This encapsulates exactly what I’m trying to say:

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I just love it when somebody treats Aaron like he’s a somebody……because he certainly is a somebody.  He’s special in his own right, and not just a person with special needs.

It doesn’t take someone doing some huge thing for Aaron, like taking him on a two month vacation trip…….although if you want to do that, I might say yes.   No, just like my Aldi cart and the quarter, the kindnesses that mean the most in my everyday life and in Aaron’s everyday life are the “small” kindnesses.  These acts in their everyday hues are really enormous bursts of color to me and to Gary and to Aaron.

Each of us can do the same for everyone that we encounter.  The littlest gesture can lighten a load in others that we don’t even see or know about.  It’s never a small thing to be kind.  We have no idea of the lasting impact a word, an action, or a smile can have on those random people that come across our paths every day.

There’s another aspect to kindness that we have with Aaron as well.  It’s about our efforts to teach Aaron to be kind.  On some days he acts as if he’s never heard the word, but on other days he amazes us and others.  I’ll save that for the next blog.

Aaron does give me plenty of material to write about, after all!

Lessons From the New Roof

When we moved into this house, it had a shake roof. An old shake roof, weathered and beaten. At least it looked weathered and beaten, but it passed the house inspection. Gary kept a close eye on it for the following years, especially after every hail storm. He patched a place here and a spot there. The roof held, though, so we were thankful for that and went on with life under our shake roof.

One day, though, we saw an ugly spot on our bedroom ceiling. It was a water mark, without doubt, so we had no doubt that our shake roof finally had succumbed to the latest hail or wind storm and needed to be replaced. The insurance adjustor came out and looked everything over, including the water mark on our ceiling. However, he said that the roof generally looked fine so he would recommend that the insurance pay to repair some individual spots that needed new shake shingles. We were disappointed, but what could we do except leave the decision in the hands of our insurance company.

On a Saturday morning as Gary and I worked outside, the phone rang and so Gary stood in the garage talking. I could tell that it was our insurance company, and I could also tell that Gary was happy about whatever it was they were saying. He hung up and told me the good news. Our insurance company had decided to just replace our entire roof! And not only to replace it, but their policy was to give the owner the price it would cost to replace the roof with the same kind of roof. Now a shake roof is expensive. Gary and I had decided that we wanted, someday, a composite roof, for many reasons other than price. Gary told our insurance man that we weren’t getting a shake roof, but he said it didn’t matter. Policy was policy, so we were given more money than we needed for our new composite roof. Wow! The extra money went toward a much needed bathroom remodel. We were so thankful for this extra blessing! We got a new roof and a new bathroom to boot!

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I’ve been slowly reading through the book of Nehemiah. This morning as I started the last chapter of this wonderful book, a phrase just jumped out at me. The people of Israel were reading aloud to the assembly from the book of Moses. They were reminded of how the Ammonites and Moabites, many years ago when the Israelites were in the wilderness, had treated God’s people so badly. In fact, the king of Moab had paid their prophet Balaam to speak a curse against the Israelites. Perhaps the best known part of this story is about Balaam’s donkey, whom God spoke through to Balaam. It’s an interesting and funny story from Numbers 22. But what was so meaningful to me today was that little phrase in Nehemiah 13, at the end of verse 2, as the people were reminded of the story of Balaam.

“HOWEVER, OUR GOD TURNED THE CURSE INTO A BLESSING.”

What a precious reminder these few words were to me today! So many times we have things happen to us that seem to be a curse, in a sense. Hard things……difficult to understand on many levels. Things out of our control, like the hail and the wind that beat on our old roof. And even when we might see some reason or make some sense of it, the answers still don’t fully come. We may get a small amount of partial relief here and there, but not really be able to escape the pain and the mess that we find ourselves confronting.

Paul reminded us that “all things work together for good,” though. He didn’t say that good things happen all the time. They don’t. But whatever does happen to us as believers is under the sovereign allowance of God, and we can be sure that it WILL all work together for good. We may not even see the good this side of heaven, or feel like any of it is working out for good at all. But God has His policies, so to speak……just like our insurance company. And His policies are clearly stated: He WILL turn a curse into a blessing!! He WILL work all the things in our lives out for GOOD!!

Someday, even if it’s not until heaven, we WILL be able to look at all the stuff that has happened in our lives and then voice that big “HOWEVER!”

HOWEVER, OUR GOD TURNED THE CURSE INTO A BLESSING!

Don’t lose hope! Don’t lose focus!

God comes through on our side, for our good, every single time!!

 

 

Glittery Moments

 

My day yesterday, Sunday, began at 4:12….to be precise, like Aaron.  Aaron had a seizure for the second early Sunday in a row.  Then he had another at 5:45, so I just stayed up then, knowing that I wouldn’t be able to go back to sleep.  This is a very busy, tiring time for everyone.  To start my day off so physically tired wasn’t what I had planned, but as usual my thoughts went to Aaron and how awful he was going to feel when he woke up.

 

I heard him upstairs through the baby monitor later in the morning, stirring and stretching and then getting out of bed.  I knew that he was marking his wake-up time in his notebook that he uses to record all that important information about his life.  Later he slowly made his way down the stairs.  I noticed that he had on a different pair of pajamas than he had worn to bed, and I knew right away what had happened.  I went up to his room after he and I talked for a minute to gather up his wet linens…..all of them, including his waterproof mattress pad.  Poor Aaron.  Such hard seizures take a toll on him, and can be embarrassing as well.

 

So the day began in earnest with mounds of laundry and mounds of Christmas preparations and plans to accomplish.  I was thankful for the time that day to prep and plan, but as the day wore on I was very aware of my fatigue…..fatigue that was probably only going to increase as the week continued.

 

That evening, as I finally cleaned off the kitchen table to some degree, I was looking forward to a little time to chill out.  Catch up on Facebook, look at emails, read the news…..   But of course, I wasn’t downstairs very long before Aaron came thumping down the stairs.  First he talked to Gary about the movie he had finished watching today, and then the current movie he was now watching.  Soon he came to me at my computer, and began the same recitation.  Gary and I finally had to tell him that movie talk needed to stop.  We were depleted when it came to his long movie reviews and endless questions.

 

I had told Aaron earlier that maybe we could play a game of SkipBo……emphasis on MAYBE.  As Aaron left me at my computer, the last thing I really wanted to do was to drag myself back upstairs and play a game of cards with Aaron.  I was tired.  And I was very weary of listening to all the movie talk.  But we hadn’t played SkipBo in a while.  This time of year takes much of the fun time away.  I felt badly for Aaron, who asks me every single night of his life to let him know if we can “do something, like SkipBo …..”

 

It was around 9:30 when I went upstairs and asked Aaron if he wanted to play a game of SkipBo.  He was very happy to hear me ask that question, so while he took his pills I shuffled the cards.  We had a normal game, with me having to monitor Aaron’s every move in case he cheated and with Aaron thinking he had to monitor my texting with Andrea.  I could feel my nerves getting a little more worn.  Of all nights to have a slow game, this was not the night!  But was it ever a slow game!  Where were all the 3’s?!  I was getting irritated for sure.

 

Finally the game was over!  I wasn’t nearly as happy about winning as I was happy that I could go to bed at last……after turning off all the Christmas lights, fixing the coffee pot, helping Aaron get his bed all perfectly ready, and listening to his non-stop chatter.  Ugh!  All these thoughts were going through my mind as I put the cards back in their box.  I looked up then to see Aaron sitting very still across the table from me, peering down at something on the table.

 

“Mom?” he asked.  “What’s this?”  I thought he was pointing to a little indention on our distressed kitchen table that’s become much more distressed under Aaron’s attention.  I brushed him off with a quick “I don’t know.  It’s just a little dot.   A little mark.”

 

Aaron wasn’t deterred.  “No,” he said.  “It’s sparkling.”

 

And I knew then what “it” was.  “It” was a tiny little piece of glitter from all the wrapping paper and glittery tissue paper I had used that day.  Of course, Aaron noticed this miniscule piece of glitter that to most of us would have gone totally unseen.  Or seen, but not cared about.

 

Not so with Aaron.  He was intrigued by the tiny sparkle that caught his eye.  He knew that it was worth exploring, so he did.  Furthermore, he hoped that I would do the same.  I was headed to the coffee pot when I stopped and turned around.  There sat Aaron, pointing to the itty bitty glitter, and I was drawn to that scene as I stood there for a few seconds.  I smiled as I realized that I should not miss this moment.  So I walked back over to the table, and I bent over the little glitter particle with Aaron.  We both smiled as we noticed the glitter’s tiny shimmer.  I realized that this glitter wasn’t round, but that it had definite sides.  I counted six sides, and so Aaron and I talked about the fact that this glitter piece was in reality a hexagon.  It was pretty and sparkly and more complex than either of us realized until we took the time to look at it carefully.

 

All day today I’ve been thinking about that glitter moment with Aaron, and what I would have missed had I dismissed his interest in favor of a coffee pot to fix and Christmas lights to unplug.  I would have missed a sweet moment with Aaron……a time of simple sharing…….a smile……a discovery.

 

At this time of year, especially, but at any time of year, I need to often remind myself to stop my fussing and flittering……and to take some time to see what Aaron sees.  Take some time to see who Aaron IS.  See the world through his eyes, with all its complexity and its beauty.

 

And to apply this lesson to so many other areas of my life as well.  Stop to see what’s around me that’s not so obvious, lest I miss out on some real beauty and some sweet moments.  Don’t let my schedule or my tiredness rob me of discovering some sweet moments with those I love…..or with those whom I need to know better…..or with those that I can help.

 

Coffee pots and other chores will always be there.  Glitter has a way of blowing in the wind and never being seen again.  I need to treasure it while I can……with Aaron, of course.

 

I Held A Butterfly

 

I’ve had a bit of an up-and-down weekend for several reasons – finding myself sometimes nostalgic as I think of Gary’s and my role as parents to our three wonderful children.  It’s been the most fulfilling calling of our lives, that’s for sure.  Sometimes challenging, too, as it is for every parent.  Now Andrea and Andrew have moved to other states as they pursue their own callings at this point in their lives………..Andrea in grad school studying genetics, and Andrew living his dream of working for a professional NHRA drag race team. 

 

And we have life with our special Aaron, still living at home and treating us to his unique view of life every single day………whether we totally relish his unique view or not.  For at times his unique take on life may be funny……..or it may be interesting………..or eye-opening………..or tiring……….or maddening.   But never dull.  Never, ever dull.

 

This morning Aaron followed me outside where I was picking up some small branches and sticks that had blown out of our trees.  Aaron was happy that Jackson was out with us, too, as we said goodbye to Gary when he left for work and I continued to look around the yard for more sticks.  Soon I heard Aaron say, “Mom!  There’s a butterfly!”  I turned around to look and there I saw Aaron holding the butterfly in his hand.  He was looking at this beautiful butterfly with awe, just as a small child would do.  Therefore, I did the same………bending over Aaron’s outstretched hand as we both admired the intricate markings and brilliant colorings of this special little creature.  It’s something I probably would not have been doing on this pretty morning had it not been for Aaron.

 

I’ve been thinking about that a lot today.  Last night Gary and I talked to Andrea for a long time about her thesis research……..about the rapid sequencing machine that she is privileged to be using………about her research being presented to the DOD……….about her research being published…………about where she might apply for her PhD studies in genetics……….and so much more.  Andrea’s very interesting studies have opened up a whole new world to Gary and me.

 

With Andrew, it’s been so much fun to experience the world of professional NHRA racing.  It’s been pretty amazing to get an inside view of this life through visiting him as he worked at the race in Texas and then to talk to him about his new life……….the traveling………the drivers and their crews……the inside stories and insights……….the new things he’s experiencing and learning………watching him on television…….and for us to stand in the winner’s circle in Texas while I got to hold the winning trophy, a Wally, for real!

 

And just this morning, I held a butterfly, for real!   I got to stand in our driveway and have Aaron show me his wonderful butterfly, and then let him gently slide the butterfly into my hand so that I could experience holding him myself.  Aaron was as thrilled with this experience as Andrea is with her research and as Andrew is with his job in the NHRA.  Once again, I am reminded of the importance of perspective in these matters, and of how true this perspective is in so many areas of life.  My attitude, my perspective, makes a huge difference in how I view these matters. 

 

In sharing life with Aaron, the seemingly small things become big and important.  Sometimes that’s a good thing………and sometimes not so good.  But just like I am excited about Andrea’s and Andrew’s accomplishments and their lives, I want to also be excited about Aaron’s……….or at least appreciative of Aaron’s life, and often downright awed……..I hope.

 

This wonder that is Aaron……….it’s in a butterfly in the driveway.

 

It’s in him putting his plastic Halloween rat on the dashboard last night as we drove to Sonic for his milkshake………and him hoping that the cashier would surely notice it!

 

It’s in exuberantly asking if the Buffaloes beat the Chiefs in football.  The Buffaloes?

 

It’s in being very excited to be in Papa Murphy’s as we ordered pizza on Saturday……and instantly picking up the container of red pepper, telling me that he put red pepper on his Target pizza the day before.   “It was full of hotness, Mom!!”

 

It’s in the joy of playing a simple game of Skip-Bo.

 

It’s in him sleeping with Mr. Snake that he took from Andrea’s room.

 

It’s in him meticulously writing down the times that he goes to bed every night and the times that he gets up every morning in his special notebook………even when he’s groggy from a seizure.

 

It’s in the necklace that he made for me and that he loved seeing me wear.

 

It’s in plopping on the floor in the middle of the vet’s office to pet Kato, the resident cat.

 

It’s in wearing his slipper socks AND slippers, even with shorts, and not caring one whit how he looks.

 

It’s in happily buying Gary a treat at the grocery store.

 

It’s in watching Wheel of Fortune………and yes, even with his VERY loud clapping and yelling.

 

It’s in his childish excitement about his upcoming birthday.

 

It’s in his pure delight with anything and everything that is even one iota out of the norm…………and him not knowing that he is just that…..out of the norm – unique and amazing.

 

It’s in his final good night hug……either because it’s so sweet……..or it’s because I’m so tired that the hug makes me that much closer to quiet sleep.

 

It’s that last knock on our bedroom door to check for one last time on the weather………and the outdoor temperature………..and whether it’s going to rain during the night…………..and will there be lightening……….and thunder……….and should he leave his blinds up………and he might not read before bed……..

 

It’s one of many reasons that we lock our bedroom door.

 

But not our hearts.  I hope we never lock our hearts to Aaron and to all that he teaches us and opens our eyes to every single day.