Category: Peace

Fixing My Broken

 

I sit here at the kitchen table, one ear on the washing machine and the other on the baby monitor. Our washing machine was having some trouble two nights ago, so yesterday when Gary got home from work he opened up the back and got it all fixed. At least we hope it’s all fixed. That’s why I’m listening as it washes a second load this morning, wanting to be sure it’s working as it should.   A broken washing machine is no fun!

And my other ear is on the baby monitor because Aaron had two hard seizures last night. He’s been out of bed this morning, drinking his requisite three cups of coffee and then back to bed. He will sleep off and on today as he recovers. I’ll continue to listen for further seizures, which he often has during the day following his night episodes. Poor Aaron. He and I are still hoping to take supper over to Shawna and Aaron’s other friends at the house in which they live. He keeps asking if we can still go and I keep hoping that we can. Why do seizures have to so often mess up his fun times? It makes me sad for him. So in a sense a broken Aaron is no fun, either…..for him, certainly.

I don’t look at Aaron as broken, but I look at his seizures that way. They interrupt his life so often and so it breaks my heart for him. They break into his routine and into his plans, mess up his sleep and his following day, make his bitten tongue so sore, his head hurt, and all the rest that goes along with these awful things.

It makes me think about how we live among so much brokenness. There are so many broken issues and broken people all around us. Just this week I visited my dear friend, Atha, who is still struggling as she recovers from a stroke. Our friends in Texas, Steve and Dona, are working hard on his stroke recovery. Another friend’s son died from cancer early this morning. A friend is undergoing heart tests this morning. Our own daughter will soon have more medical tests run as her body continues to show a problem as yet unfound. Scrolling through Facebook…..looking at my prayer list……visiting with others on the phone or at lunch only confirms the deep hurts and problems that many are facing.

Our broken world is marred by sin, fractured back in the garden as Adam and Eve willfully disobeyed God. We and our world continue to bear the consequences of that sin in a universe imperfect now, not as God planned. But it’s not hopeless. Not at all. God made a way for each of us to come back to Him through His own Son. Jesus paid the price of sin, and for all who are called and respond to God through Jesus, there is life and hope.

God fixes our broken.

But we still have this life here, lived in broken bodies and in a broken world.

I watched Aaron on Sunday morning as he cut the Sunday coupons for me. This is his Sunday routine, performed faithfully for me as only Aaron does. In fact, he won’t let me come near the coupons with a pair of scissors because I don’t cut them correctly. Aaron cuts on the dotted line as best he can. Not near it. Not beside it. Not close to it. He cuts ON the dotted line.

Then he takes the little strips of paper that he has cut off and he meticulously snips them into tiny pieces as he holds the strip over his special trash can that’s just for that purpose and no other. It takes lots more time than necessary, but he doesn’t care about that. He has always, and will always, clip coupons and paper strips in this fashion. It’s very fascinating to watch.

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After the coupon is cut, he slowly and methodically places it into the coupon box. He doesn’t just toss it in. He slowly and carefully puts each coupon in its position, all neat and orderly. Look at the coupon box from this past week.

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As I think of the brokenness of life and of our world this morning, I’m reminded that for believers God is much like Aaron as he clips my coupons. God is full of purpose and planning for my life. He carefully cuts, always ON the dotted line, and He puts events and people and order into my life in the exact way that He knows is best. He is structured and precise as He takes each individual element of my life and places it exactly where it needs to be. His timing is perfect. His placement is always on spot. I may not understand it all. I may not like it all. But I know the One Who is doing the clipping and the snipping and the placement of each single area of my life, and of those I love.

And I know that I can fully trust Him to do it right. It’s called sovereignty.

“The Lord will accomplish what concerns me; Your lovingkindness , O Lord, is everlasting. Do not forsake the works of Your hands.” Psalm 138:8

Someday, maybe not until heaven, I’ll be able to open that box that holds my life events. I’ll see it all together, clearly, and I know that I’ll see order. I’ll see the plan of God. I’ll see each piece of my life put down just where and how God wanted it, always for my good and for His praise.

Even when I mess it up, God brings order back into it as I allow Him to do that. He loves me that much, like the verse above says.

So I’ll let God do the clipping, even when I don’t understand it or even agree with all of it. Because I know I can depend on Him to do it right, every single part and piece.

He keeps His ear on us, and He fixes our broken. He’s the only One Who can.

Set Sail!

 

It’s a good thing that I looked in the cabinet this morning, checking on a key ingredient that I needed for my chicken dish that we’ll eat for tonight’s supper.  I thought I had plenty but I didn’t, so I quickly added it to my short grocery list and was able to stop at the store later to pick it up.  Being prepared is important!

 

This small episode fit perfectly with what I read this morning during my quiet time.  I actually learned a new word…..a Greek word.  Well, most Greek words are new to me, but this particular word made a huge impression on me.  I hope it will do the same for you.  The word?

 

Pleroma.

 

Impressed yet?  Hang on.

 

Pleroma was part of the ancient world’s shipping vocabulary.  It has to do with being complete or being full.  Here is what Raymond Brown says about pleroma in his book The Message of Nehemiah:

 

            Pleroma….described the ship’s complement.  Before leaving port the vessel was carefully checked to ensure that there was an adequate crew and that the cargo included sufficient food, drink, medical supplies, spare cloth to replace torn sails, ropes, in fact everything necessary for its journey.  That was the ship’s complement or completeness. 

 

A departing ship today, and especially in ancient times, definitely had to be careful to have all necessary supplies before sailing.  No ship would leave for a journey until it was filled with supplies….filled with all it needed for the time on the open sea.
OK, so why was this word such a blessing to me today?  And why do I pray that it’s a huge blessing to each of you reading this as well?

 

Because pleroma is the word that John uses in John 1:16.  “For of His fullness (pleroma) we have all received, and grace upon grace.”  Again, Raymond Brown says:

 

            John’s Gospel began by assuring its Christian readers that, however great the pressures of life, all their needs would be met out of the abundant completeness and inexhaustible sufficiency of Christ.

 

You see, God doesn’t push His children out on life’s voyage without preparation.  Just like a ship being loaded up in the dock before setting sail, so God loads us up with all that we need for the ride that is ahead of us.  We don’t even know that He’s doing all that work on us most of the time.  All the equipping and the completing comes as we live day by day, getting to know Him better through His Word and through the growth that comes with each new trusting time in our lives.

 

Then the waves come crashing in and the journey is long.  The ocean is big and scary.  Don’t think that when you’re slammed in the face with an unexpected trial, God didn’t know beforehand that it would come.  He knew.  He in His sovereignty ordained and allowed it.  But not before He prepared you for it.  God completed you, and is still completing you, with all that you need for the rough waters all around you.

 

Pleroma!!

 

Grace upon grace.  Unmerited favor from God, over and over again.

 

Blessing upon blessing as we sail through the waters and as we experience God’s complete provision for all we need, before we even knew we needed it.

 

God prepared you, and me, for every single event in our lives before we needed it.  And He then stacks grace upon grace as we live through the tough times…..blessing upon blessing…..growth upon growth.

 

God loves His children.  He’s a good God.  He would never leave us incomplete, lacking what we need.

 

He alone is really all we need.

 

So even when we don’t understand our situations….or don’t like them….or are hurting….afraid….turned upside down….

 

Pleroma!

 

You are complete.  You are filled.  You are ready to sail!

 

Trust your Captain.  He’s got your course all charted, and He’s got you more equipped than you realize.

 

Of His fullness we have all received.

 

The Scar

 

It’s been an interesting week.  I guess that’s one word to describe it.  Other words would apply as well.  Stressful…..demanding…..concerning…..worrying.  In case you’re wondering what I’m talking about, you can read about it in the blog I wrote.  Here’s the link:

 

 

It hasn’t just involved Aaron, though.  Yet he certainly does take center stage in our lives.  All the above descriptive words certainly can, and do, apply to him.  I’m reminded of our bad beginning to our week now every time I walk into his room and see this.

 

 

“This” being the place on his wall where a picture similar to the one hanging USED to hang.  Used to hang before he yanked it off the wall in a fit of anger on Tuesday….after fits of anger on Monday.  Anyway, read my last blog, like I said.  It explains more about what happened.

 

Now we’re left with the ugly reminder there on his wall.  A reminder of a bad day….of hurt….of anger….of events that led up to this ugly scene and this ugly spot on his wall.

 

A scar.

 

It would be easy to see this scar and to focus on the bad things that happened that day.  It would be easy to see this scar and to remember the awful feelings….the frustration….the anger…..the failures.  Both mine and Aaron’s, for sure.

 

However, there are other parts to this whole story, too.  There are other pictures that I can choose to focus upon if I just will.

 

And there it is.  It’s a matter of my will, of my choosing, as always.  I can choose to only conjure up the depressing thoughts of those two days, and of this past week generally, or I can instead choose to ponder also on the bright spots.

 

On Monday evening, after Aaron’s really bad day, he suddenly asked if he could write our friend Atha a note.  He knows Atha, and he has heard us talking about her stroke.  Aaron rarely offers on his own to write anything to anyone, unless it’s what he wanted to write on a sticky note about me on Monday.  It wasn’t nice, either.

 

So this idea of his to send Atha a get-well note in his own words was just a very special, unexpected warm moment in the midst of a terrible time for him and for us.  That made it a double blessing.  A very needed blessing, double at that!!

 

 

I can look at the scar on Aaron’s wall and I can remember this precious note.

 

Also to be remembered are the prayers of friends and family….the kindness shown when aware of our need….the time spent with friends and the encouragement of warm hugs.  There was Julie, an employee at our Dillon’s, who asked me out of the blue if I needed any more one dollar bills for Aaron.  It’s not easy to get the ones when I need them, and I had forgotten in my stress that I was running low, but Julie saw me and asked me….said she thought I might be running low….said she was looking out for me.  She has no idea, though I told her a little, of how much that meant to me this week.

 

The scar on Aaron’s wall can remind me of all those blessings.

 

And there is the recliner at Dillon’s – two recliners, actually – that Aaron sat in the first time he saw them.  They were something new.  Something fun!  But probably not something that Dillon’s wants everyone to sit in and enjoy like Aaron does.  J  So the next time we saw them, in front of the registers, each chair held a huge stuffed animal.  I laughed and told Aaron that now he couldn’t sit in them since they were already occupied.  I figured that Dillon’s had a motive for putting those animals there.

 

On Friday, Aaron and I were there after I picked him up from Paradigm.  We were ordering him his favorite Cheddar Pasta Salad when suddenly he took off walking briskly toward something.  I thought he was headed to the Chinese side of the deli.  He LOVES looking at the Chinese food, and having the workers ask him what he wants while he laughs and says he’s just looking.  Every time.  But on Friday, when I looked up to see him walking away, I soon saw where he was headed.

 

 

Yep.  He spied the recliner, moved to a new spot in the store.  The empty recliner….but not for long.  Look at his smile.  How could I not smile?

 

I see the scar on Aaron’s wall and I see the choice I have to make.  Aaron knows he did wrong and he knows he must wait for the wall to be repaired.  I don’t need to keep hammering that home to him.  But there are some issues that sometimes need hammering into my brain as I look at his scar.

 

What will I allow that scar to teach me?  What will I allow that scar to do to my heart and to my spirit?  Will I use that scar to remind me of the bad, or will I use that scar to let me remember the blessings in the midst of pain and the lessons learned in the hard times?

 

We all have them, those ugly scars of life.  We can wallow in anger and unforgiveness….regret and guilt…..pain and sadness.

 

Or we can choose to do what God said and forget those things that are behind, and press forward.  I know we can’t really forget, but we can forget in the sense of clinging on to them and letting the defeating thoughts control us.  What’s done is done.  Let God handle it as you pray and trust.

 

And as you forgive those that have hurt you, whether they know it or not.  Like Gary said on Monday night, our relationship with Aaron is much like God’s relationship with us.  It’s one of constant sin on my part and constant forgiveness on God’s part.  How can I do less?
I want my scars to be touch points for memories of God’s grace in my life, and then for me to extend that grace to others…..including….especially!….Aaron.

 

 

 

Holding My Hand

 

She called two nights ago, our beautiful daughter who lives too far away.  She and I had our usual silly “answering the phone” routine, with our familiar teasing and laughter.  Then she said, “Wellll…..” and I knew something was coming.  Moms know these things.  “I saw the cardiologist today and so I thought I’d call and tell you…..”

 

Then I heard words like echocardiogram….stress test…..enzyme levels……blood work….   Possible this and possible that.  I was calm, because I just am that way, usually.  And because she wants me to be that way.  We’ve faced the unknown before with her, and here it is again, lurking like an unwanted intruder in the background.  Actually, red flags were raised after her double pneumonia last July when symptoms and tests weren’t adding up just right.  Doctor visits, multiple tests, many vials of blood…..then a rheumotologist…..now a cardiologist.  An answer would be nice.  I think.

 

But all she has right now are positive results….negative results….symptoms….and no sure diagnosis.  So that leaves us with still more questions than answers.  Leaves her juggling a demanding genetics job with multiple doctor and testing appointments.

 

Leaves me with a choice to make as I feel those icy fingers of fear around my heart.

 

It’s no mistake that a couple weeks ago, as I looked through a notebook stuck on a shelf, I found an old note from a friend written three years ago.  She wrote it after I had surgery on my right shoulder.  She ended the note by saying, “It seems that God’s message is often personal.”  And then she wrote down this verse for me:

 

“For I am the Lord your God, Who takes hold of your right hand and says to you, Do not fear; I will help you.”  Isaiah 41:13

 

I remember being a little girl at Knob Elementary School.  Every Friday, one of us King kids would get to spend the night with Grandmother and Granddaddy.  It was a super wonderful Friday when it was my turn to spend the night with them.  I thought the day would never end!  Finally, it was time to leave the school!  I would run outside and look up the hill.  Sure enough, there would stand Granddaddy, waiting for me patiently.  Up the hill I would run to his big smile and warm hug.  Then he would take my hand and we would walk to their house a few blocks away.  I felt totally safe and secure as we walked along with my little hand held securely in Granddaddy’s big, worn hand.  I had no fear…..just total trust.

 

How I need to be that way now with God!  God, Who takes hold of my right hand and speaks to me as a child.

 

“Do not fear,” He says.  “I will help you.”

 

He promises that to my girl, too, in a way that even I as her mother cannot do.  My words of comfort sometimes ring hollow compared to those of our God.

 

“Do not fear.  I will help you,” he says.

 

All around me are friends and family who are going through deep valleys.  Doctors, tests, dismal scenarios, dark diagnoses, uncertainty.  Exhaustion, worry, fear, guilt…..

 

Steve, our age, recovering from a sudden major stroke.  Atha, in the hospital and now rehab for nearly a month.  Scott, her husband, going through testing.  Nicholas, with ongoing life threatening infection and other issues.  A father and son, both with serious cancer.  So many others with cancer.  Parents with the daily heartbreak of children who have strayed from God’s way and are making bad, life changing decisions.  I could go on and on.

 

But like my friend said, God’s message is often personal.  Just for me, and for my Andrea, and for all of you who are struggling right now.

 

“Do not fear,” again God says.

 

No matter what happens, God tells me not to fear.  I don’t need to fear, because He is holding my right hand.  He is leading me.  He is leading you.  He loves us and He desires our best, even if we must walk through the painful times.

 

“I will help you,” He continues.

 

I won’t be left alone to figure it out and to handle it.  Never did God say, “Just handle it!”

 

No.  He said He would be there to hold my hand and to help me.  I don’t know in what form that help will come, but I do know that He has promised it.  He is right beside me.  He can’t be far away and be holding my hand.  He is near.

 

The battle is the Lord’s, and the battle is won through prayer.  I talked and talked to Granddaddy as we walked along after school, telling him about my day.  God wants me to do the same as we walk along, my hand in His.  He wants me to talk to him with familiarity and with the certainty that He loves me…..He desires my best…..He desires my daughter’s best…..He will be with both of us.

 

He will be with you, too.  Take His hand.  Trust Him to be right there, helping you every step of your uncertain way.

 

When you know Him, He is the Lord your God Who waits for you and Who takes your right hand, and Who says, “Do not fear, I will help you.”

 

What better words can I impart to my daughter than these?

 

What better words can I take to heart myself?

 

I’m letting God take my hand today.  I hope you are, too.

 

 

Disappointments

Disappointments.  Not a very catchy, interesting title, is it?  Not even encouraging!  But disappointments are universal.  We all have them in one form or another, nearly every day.  At my age, I’ve had enough serious disappointments that I now count my blessings when my disappointments are more along the line of a bad hair day, getting a cold, missing a fun day with friends, or not getting in on a great sale. 

Disappointments related to Aaron usually come in two varieties.  We are either disappointed IN Aaron for some reason, or we are disappointed FOR Aaron.  We are usually disappointed IN Aaron because of his behaviors.  We are usually disappointed FOR Aaron because of something that hurts his heart, and therefore ours as well.

On November 6, two days before his birthday, I was going to take Aaron to one of Paradigm’s residential homes so that we could celebrate with some of his friends.  We were going to take pizzas and have fun.  Aaron was so looking forward to it!  But he came down with a stomach virus and was unable to go.  How disappointing!  We were disappointed for Aaron, very much.

So a week later, this past Friday, we made the same plans again.  But on Friday afternoon, the plans were canceled once again.  One of Aaron’s friends was having a very rough day and it wouldn’t have been a good situation for us to be in the home that night, no matter how much pizza we brought.  It was going to take time for this person to calm down.  In fact, this client had some words for Aaron during the situation, much like Aaron does when he has a meltdown, and it really hurt Aaron’s heart.  And it hurt and disappointed us, too, for Aaron.

All of this made Aaron act out.  He banged on the car that brings him home, making a small dent in the front of the car.  He yelled at me when he got home, escalating as I tried to talk to him.  He looked in his Friday goodie bag that sat on the kitchen table, and then knocked it on to the floor.  This is Aaron’s way of handling his own disappointments.  Instead of talking about his hurt, he becomes angry.  Talking only makes him angrier, especially my talking to him. 

I had two disappointments going on that evening.  I had my disappointment for Aaron as I was hurt for him in his hurt.  And I had my disappointment in Aaron…..in his behaviors that can’t be allowed, but sometimes can’t be stopped.  His defiance was understandable but unacceptable.  I hid his goodie bag from him as a tangible sign that his behavior was wrong…..and I wished with all my heart that he could just verbalize his disappointment instead of acting it out with harsh words and defiant behavior. 

He finally settled down enough to show an interest in going out to eat dinner instead of yelling, “NO!” as he had earlier.  So before long we met Gary at Outback, where we enjoyed dinner together and especially enjoyed seeing happy Aaron return.  In fact, before we left the house to meet Gary, Aaron said, “I’m just disappointed.”  Wow!!  Victory in three little words!  Aaron expressed his disappointment verbally and I praised him for that as I told him that I understood, and that I shared his disappointment.  I shared it so much that I even watched The Blob movie with him that night.  That movie brought me to a whole other level of disappointment, trust me.  It was painful!!  But Aaron was happy!

He had a rough morning yesterday, Monday, as he returned to Paradigm.  But the afternoon was much better.  Today he got up very early, and at 6:11 I was in the kitchen listening to him talk about The Blob movie that we had watched.  I’m sorry, but 6:11 is a little early to be handling talk about The Blob.  I’m still not over that movie.

Our morning went well, and I was happy for Aaron to be so happy as I dropped him off at Paradigm.  But shortly before 2:30 I got a call.  Aaron was having a seizure.  I had just gotten home from spending the day with my elderly friend, so I was thankful that I was free as I drove to pick Aaron up at his day group.  Poor Aaron!  Another disappointment, this time more for me.  Disappointment for Aaron as he faces these awful seizures……his badly bitten tongue…..his headache…..the interruption in what should have been a good day.  He handles it so well, thankfully unaware of how sad I am for him.

This morning, as I had my quiet time, I did what I sometimes feel compelled to do.  I asked the Lord, as I turned the pages in my Bible, to give me a special word…..something He knew I needed on this day.  Today I flipped from Romans, where I have been reading, back to the first place my turned pages led….to Malachi.  And there in Malachi 3:6 I read these words:  “For I, the Lord, do not change.” 

Simple words, but I knew they were somehow for me today.  As I drove home with Aaron beside me, his breathing having that certain post-seizure sound, I looked up at the sky as very dark clouds rolled in.  There was a mix of bright blue, but coming in were the dark stormy clouds that promised rain.  Our day was changing from bright sunshine to dark cloudiness, just like my day with Aaron had gone from bright happiness to dark seizure concerns. 
 
Disappointments.  Changes.  We face so many of those, don’t we?  And I didn’t wonder anymore why God gave me that random verse this morning in the little book of Malachi.  “For I, the Lord, do not change.”  So in the middle of disappointments, whatever they may be…..and in the middle of the changes that those disappointments often bring…..we can as God’s children stand firm in God’s promise that He does not change.  Ever.

Just stop and think about what that promise means.  God never changes.  He is always the same, loving us and instructing us and being there for us.  No amount of world changes, of family changes, of my own changes….and the disappointments they bring….will ever change God. 

I’m very, very thankful for that promise today.  I’m very thankful that God gave it to me…..humbled, really, as I always am when God speaks to me so kindly and specifically. 

One more thing.  I’m never disappointed in God.  Never.  And I know that He will see us through all of our disappointments, including the ones IN and FOR our Aaron.     

From God’s Heart to My Lips

Was it just last weekend that I flew home from a wonderful vacation week in Alabama?  It seems much longer than a week.  There are reasons for that.  But first, I did enjoy a great time of relaxing with my dear friend Glenda in her beautiful home.  Bruce and Glenda are friends of ours from way back.  Gary and I met them at Gary’s first assignment following his graduation from flight school in 1983.  We did lots of life together in Colorado Springs while stationed at Fort Carson, and then later as we both lived in Germany.  It had been 23 years since we last saw each other.  Bruce and Glenda very kindly flew me to Alabama for several days of rest and relaxation.  We took up right where we left off, too, not missing a beat.  Glenda and I talked a blue streak last week, and I think we pretty well caught up on everything.  It was really a refreshing time for me.

In the airports and on the planes, I finally finished reading Ann Voskamp’s book, One Thousand Gifts.  What a challenging book this has been for me!  Challenging me to be thankful….grateful…..in all situations.  Our friends, Kurt and Jill Grier, gave me this book while Aaron was in the hospital last June.  What a perfect setting for this insightful book to be given! 

So flying home last Saturday, I finally finished this book.  At the very end, Ann wrote this:  “Every breath’s a battle between grudgery and gratitude and we must keep thanks on the lips so we can sip from the holy grail of joy.”  There is a reason that God let me read that line on that day…..the day I was flying home…..to life at our house.

I heard him before I saw him.  I was near the escalator in our beautiful new Eisenhower Airport here in Wichita.  Home at last.  I was focused on that down escalator when I heard, “MOM!!!” 

I looked over to my left, and there was Aaron.  He had just bounded off of the comfy chair where he was sitting near Gary as they waited for me to round the corner.  How appropriate that the very first word I heard when I reached home was that word that Aaron says the most.  Mom!

His smile was huge as he came toward me, rubbing his hands together in great delight.  Delight to see me?  Yes, in his own way.  But more delight, I believe, in the fact that he could finally tell me in person what he was anxiously waiting to say.  “MOM!!!  I finished watching…..”  And he was off, words tumbling over each other as he told me about the latest movie he had just completed.  Aliens and battles and robots and laser vision…..all of it, coming out in a loud rush. 

He had no interest in my trip home.  He only cared that I WAS home.  He did give me a hug as I reached out to him, but he didn’t stop talking.  Gary and I hugged and kissed to our typical background music of Aaron’s constant talking.  We’ve learned to jump in quickly between his words in order to say our own to each other. 

There is no slow re-entry into life with Aaron.  He blows in with no interruptions allowed, words and hands flying, expecting us to show great interest.  And we opened the door at our house to our large dog, to Aaron following and talking, to trick-or-treaters, to the time change, and to me coming down with a stomach bug that evening.  Interesting.  What was that quote I had just read?

It gets better.  And let me again quote dear Alice Zwemke:  “I’m not complaining.  I’m just reporting.”  This week….

On Monday I took Aaron to the dentist for a cleaning.  A small cavity was found.  On Tuesday, I took him back to the dentist for a filling.  He was a little sullen and quiet (thankful for the quiet part!) on Monday, but on Tuesday he was full of smiles and talk.  He even carried in his Happy Spider from Hawaii that Glenda had sent him, and kept Happy Spider on his lap while he got his tooth repaired. 

 
By that evening, Aaron still had a crooked smile from his tooth procedure.  The dentist said not to worry, and sure enough by that night he had returned to normal.  So on Wednesday he was able to finally return to Paradigm, his day group, even though he complained of not feeling well.  That afternoon he had a big seizure there, so I went to pick him up, carrying clean clothes since he was incontinent during this seizure.  He had another seizure shortly after going to bed that night. 

On Thursday, he woke up with my stomach virus that I was kind enough to share.  Between bathroom visits, he slept nearly all day.  No Paradigm.

Yesterday, Friday, he still wasn’t feeling great so he stayed home again.  No Paradigm.  By the evening he was more himself, so I foolishly let him enjoy his pizza night.  I felt sorry for him because we had planned to have a pizza party at one of Paradigm’s residential homes with several of his friends on Friday, and we had to cancel it.  It was an early birthday celebration for him.  So pizza it was, at home……which he later threw up as he sat in his chair in the family room.  Poor Aaron.

And I now have a chest cold.

So here we are.  Life at its best, right?  That quote again….we must keep thanks on the lips.  I’ve been practicing that attitude this week as best I can, failing at times but also so aware of the power of gratitude that is so dear to God’s heart.  From God’s heart to my lips.

I’m thankful for our washing machine and our dryer; for bleach; for hot water; for Aaron’s excellent waterproof mattress pad; for Gary’s hard work in providing for us so that I don’t have to work; for our gorgeous fall colors to enjoy as I look out the windows or drive around town; for our large kitchen trash can last night during the throwing up episode; for not being in the hospital like some I know and love; for all of this happening while I am home and not out of town; for God’s forgiveness when I fail; for the love of friends and family…..and for so much more.

For Aaron, who just rolls with the flow….which is a pretty yucky saying right now, actually.  Sorry.  Anyway, he handles things better than most.  He’s more concerned with his routine than with his disappointments.  I’m carrying the disappointments.  He carries the changes to his routine.

“Mom, I’m going to bed now,” he said on Wednesday night.  “I’m not going to bed at 10:00.”  It was 8:23 when he laid down and I turned off his light.  But soon I saw the light from under his bedroom door.  I asked if he was ok.  He told me that he was fine…..that he was just writing down what time he went to bed in his log book.  Well, of course.

Aaron showers at 8:00 or a little later every night. He showered in the late afternoon on Thursday.  “Mom?” he asked.  “Because I just showered, does that mean I have to shower by 8:00 tonight?” 

Wheel of Fortune is still being turned on at 6:28, not 6:27, though….so that’s a good thing.  And Mom must be reminded to wait on the coffee maker to perk more coffee in order to fill that third cup before carrying them up to Aaron’s room.  One doesn’t take TWO cups of coffee to Aaron’s room.  It must be THREE cups, for crying out loud. 

Sometimes Aaron weighs us down on many levels.  But I’m thankful for the blessings that are many, the smiles that are frequent, and the laughter that comes unexpectedly. 

“Mom!!” he said the other morning as he stared down into his empty coffee cup.  “Why is there coffee bean powder in my cup?”

See what I mean?

 

 

The Answered Prayer

When Gary and I travel without Aaron, we must find a caregiver for him.  Plus we have Jackson, our 185 pound Great Dane.  We’ve had some wonderful caregivers over the years for both of them, but of course Aaron is our main concern.  Those that have cared for Aaron usually move on to their very busy college lives, their full time jobs after college, or to marriage with families of their own, so keeping caregivers is no easy task. 

A couple weeks ago, Gary mentioned that he sure wished it was easier for us to just pick up and go visit our other two children.  Andrea lives in Houston and Andrew lives near Indianapolis.  I realized that I hadn’t been making our caregiver issue a matter of prayer lately, so on that evening that Gary made his comment, I began praying about it again.  There are times that we can, and do, take Aaron on our trips.  But there are other occasions when it’s best for just Gary and me to go. 

The day after Gary made his comment, and I started praying, I shared my prayer concern with a friend in Texas.  I also shared it with Andrea on the phone that evening as she and I talked.  While Andrea and I were on the phone, I heard my text message notice buzzing in my ear.  I waited until Andrea and I were off the phone before checking my message.  I pretty well stared down at it in disbelief and praise.  You see, it was from our friend, Holly.  Holly watched Aaron some last spring.  She’s an excellent caregiver, but I thought that she was too busy with college and work to be able to watch Aaron anymore.  I hadn’t contacted her at all, or even said anything to her mother who is a good friend of mine.  So what did her text say?

She said that she just wanted me to know that if Gary and I ever wanted to get away, and if we needed someone to watch Aaron, that she would be glad to do that.  Wow!  I just stood there and thanked God for that very quick answer to my prayer.  It was such a direct, almost immediate answer to my prayer that it left me humbled and amazed.  Gary and I both recognized God’s hand.  So now what were we to do?

Andrew works for an NHRA race team.  They were having a race in less than two weeks in Dallas.  Last year we went to Houston to see Andrea, and then she went with us up to Dallas for the last day of racing.  Was God wanting us to do that again?  Would it even work out?  We checked with Andrea and she was excited at the prospect of us coming.  Andrew was as well, so we lined everything up with Holly and off we went to Texas.  God had answered and provided, and we felt confident that this trip was for a purpose.

That’s when things started happening.  Maybe I should make a list.

·         Holly lost her phone on the morning that we left and had to get a replacement.

·         Andrea hasn’t quite recovered from double pneumonia that she had in July.  She started feeling bad again just before we came, so she ended up not going to Dallas with us on Sunday.

·         On Friday night, Holly got a stomach virus.  She threw up seven times that night!  And she was trying to take care of Aaron.

·         On Saturday, Holly let her grandparents watch Aaron so that she could rest and recover.  Dennis and Freda are friends who know Aaron, and they did a great job. 

·         Holly did recover, but on Sunday Aaron had a seizure.  Holly knows seizures well because of her little brother who has seizures, but we felt terrible that she was having to go through this.

·         Gary and I went on to Dallas on Sunday, talking to Holly regularly and checking on Aaron.

·         Andrew’s driver, Cruz Pedregon, lost during the first run…..3.96 to 3.94.  That meant that the team would be cleaning and packing up to leave for Indy early Monday morning…..which meant that we wouldn’t really get to spend any time with Andrew.  So we decided to just head back to Wichita, feeling the need to check on Aaron anyway.

·         We ran into a huge traffic jam south of Ardmore, Oklahoma.  It put us an hour behind. 

·         My phone mysteriously died for a few hours.

·         And I even found a lone fire ant bite on my foot….a souvenir from Houston!  HA!

OK, now I know that none of these events are life changing, horrible things.  Why am I even writing about this?

I’m writing about it because the craziness of our weekend…..the stress that these happenings created for us….didn’t seem to match our amazing answer to prayer.  That answered prayer….the prayer for a caregiver….was the reason that we took this trip.  So if God provided answered prayer and the means for us to take this trip, why did so many things seem to fall apart?  Shouldn’t we have gone to Texas and just had the best time ever, with no worries?

I admit that I was scratching my head a few times, wondering why God seemed to push us out the door.  “Go, go!” he seemed to be saying.  And then to have so many things go wrong…..things that caused us some worry and kept our minds occupied on those worries to some degree. 

I have felt like God was trying to show me another element of trust.  I know I need to trust Him when He opens doors, but then allows some bad things to happen that make me question whether the open door was one through which I should have walked.  I needed to trust that God knew what He was doing when He led me to that open door.  God also knew what He was doing when He let so many things go haywire when we needed them to go smoothly.  Or we thought we needed them to go smoothly.

Answered prayer in the way that we want it doesn’t guarantee a trouble free life.  I may never know why God wanted Gary and me to take this trip.  I may never see all the connected dots that God sees….for me, for Gary, for Andrea, for Andrew, for Holly, for Aaron.

There were wonderful memories made.  Time with Andrea:
 

 

Time with our little granddogs:

 

 
 
Time with Andrew, though brief:
 

 

We had precious talks and laughter with Andrea.  We got to see the pit crew at the race form a circle and pray together right there in the pit area….and have Andrew tell us that he and Jay got that practice started.

And we had to laugh at Aaron as he tried to adjust to Holly being sick.  “Mom!” he exclaimed.  “I didn’t expect you to have someone here who is SICK!!” 

Let’s talk about the word “compassion,” dear Aaron.  He did go to Holly’s room three times on Saturday to say goodnight, and on the third time, instead of calling her crazy, he gave her a hug.  Very sweet!

Will I pray specifically again?  Absolutely!  God loves our specific prayers.  Next time though, when He answers, I might just say, “OK, God, are you 100% sure of this?!”  J 

 

Lessons From the Back Yard Walk

Sunday was a beautiful fall day here in Kansas.  We’ve enjoyed many gorgeous days recently.  Now the leaves are beginning to turn, the grass is browning in certain spots, and there’s just that autumn feel in the air despite the warm temperatures during the day. 

On Sunday afternoon, Aaron wanted to take a walk.  I thought about going to a nearby park, but I just didn’t feel like driving there.  I had things I needed to do at home, like wash Jackson’s bedding after bathing him outside…..and football, I’ll admit.  I was feeling a little guilty about not taking our walk in a park as Aaron and I set out to take a stroll around our back yard, Jackson trotting happily around us.  He loves taking walks, no matter where it is.  And our back yard is good for him with soft grass to pad his paws and to protect his aging joints.

Our back yard is large, so we have plenty of space to walk.  We can take our time….it’s rather secluded…..and we can sit on our picnic bench under the old oak tree as we relax near the end of our meandering.  Yet still I felt a little guilty for not getting out somewhere else.  It just seems more exciting to go to Swanson Park or Sedgwick County Park.  Staying at home feels a little dull…..a little common…..unfulfilling, in a way. 

Yet as Aaron and I walked, with Jackson sniffing all around and eating some of his favorite grass, I soon noticed some very pretty little lilac flowers growing near the area where our neighborhood lake backs into our property during the wet season.  It’s all dry now.  The frogs and turtles are not to be seen.  But these little lilac flowers were plentiful and pretty, grabbing my attention.  I stopped to admire them, pointing them out to Aaron. 

 

Then I saw these beautiful scarlet plants growing nearby, as we rounded the bend in the yard. 

 

And on the tree line were these berries, colored a soft blue, growing on our evergreens.

 

There were leaves turning a bright shade of yellow.

 

And red berries growing in abundance, reminding me of Christmas soon to come.

 

We worked our way up to the vegetable garden, which is normally gasping its last at this time of year.  And even though we were surrounded by brown ugliness, the remains of dead squash, and plentiful weeds, there were still signs of life and beauty when we took the time to pause and really look.

There was an okra bloom.

 

An eggplant still flowering.

 

Some tomatoes nestled away, ready for picking.

 

And the cutest little ladybug!

 

Aaron and I sat on the picnic bench for awhile, with Jackson still exploring and smelling everything of interest.  I loved the breeze, the smell of the air, and the time with Aaron.  As I sat there, I thought about how much beauty is in our old normal back yard.  We’re so used to it here that sometimes I don’t take the time to stop and really look around.  Time to really see what lovely blessings I have in our own plain back yard.  It’s really not necessary to think I must always go somewhere else for a fulfilling, beautiful walk when I can walk out my back door and see our own beauty right here.

Sometimes the mundane becomes just that……mundane.  I fail to look around and fully appreciate all the beauty that God has placed in my life.  I especially have those feelings during stressful times, or during times when I compare my life with others who seem to have it “better.”  We live in a world where we are bombarded with how the new and the different is what we need. 

Yet all around us, in our own lives, we can see wonderful things if we but pause and really look….if we look with open eyes and grateful hearts.  We don’t always need to have something bigger and better to be happy.  True contentment comes in being aware that we are just where God has placed us, for just this time in our lives, for the purpose of praising Him and showing others Who He is.  Pointing out God’s goodness and His grace as we walk in the mundane.

And the mundane will become a gorgeous display of God’s finest color in our lives!  For you see, nothing is mundane with God.  Even our lives, sometimes dreary and full of burdens, are a picture of the grace and beauty of God.  When we grasp that fact, then it’s easier to pause and see more of what’s in our own back yard.  There are simple, sweet pictures all around us of beauty and blessing if we but take the time to look…..to ponder…..to appreciate the usual as being the exception. 

I am truly a blessed and privileged person, every single day and in every single setting.  Home, hospital, doctor’s office…..alone or with others…..healthy or sick…..hungry or full……motivated or depressed. 

David said it perfectly in Psalm 34.  “O taste and see that the Lord is good!”  And again, “…they who seek the Lord shall not be in want of any good thing.”

Even in our own back yard!

 

It’s My Choice

“I am NOT going to Paradigm today!!” Aaron yelled at me. 

Here we go, I thought.  This will be one of those mornings.  And it was.  It all happened last Friday.  I’m not even sure what set Aaron on that anger path, but he was on it for sure with no apparent sign that he would exit anytime soon. 

“Go away from me!” he loudly said. 

Yet he kept coming into my room while I got ready, standing there telling me angrily that he wasn’t going to his day group.  But he knew the consequences of that decision without me uttering a word.  No Friday pizza.  He was in quite the dilemma as he stood there asserting himself, knowing that the further he dug his own hole, the further away he would be from his pizza supper.  Plus I wasn’t responding back to him the way he wanted.  He wanted anger from me, which would only feed his anger.  Aaron was ready for a verbal fight, and Mom wasn’t cooperating.  I stayed as calm as possible while still being firm, even though I wanted to yell every bit as loud as he was. 

Finally Aaron stomped away, walking up the hall to his room.  And then I heard it.  Aaron threw something up the hall, where it landed on the floor outside of my bedroom.  I knew what it was without looking.  It was his watch…..his broken wrist watch.  He had broken it at Paradigm almost two weeks earlier, although the details are still unclear. Nevertheless, it was broken and I didn’t replace it immediately.  So on this anger morning, Aaron decided to focus his anger on his broken watch….demanding a new one once again and complaining about how much he needed his watch. 

Aaron could tell that I was getting ready to leave the house, with or without him.  “OK!!  I’ll go, if you’re going to MAKE me!!” he said, dripping with frustration.  I silently went to the van, where he followed me and then stopped.

“Wait!” he said.  “I have to get my watch.”

He went back into the house and retrieved his broken watch, stuffing it in his pocket.  He couldn’t wear it on his arm, but every day he had put it in his pocket and taken it with him anyway.  Today was no different.  We were mostly silent on the way to Paradigm.  It was later than usual.  Aaron was sullen and still steaming.  I was deflated and tired. 

Earlier, as my friend Atha and I texted, I had said to her, “There are times I truly wish for a normal life.”  I always feel guilty after expressing myself that way, for I know that this life is what God has somehow allowed me to have.  I want to be like Esther, who came to realize that God in His sovereignty had put her in the place she was for that particular time.  Yet sometimes the place of us special needs moms seems to just be a place of frustration and dreary sameness.  We do get tired, especially on the angry days such as I was having with Aaron.

He got out of the van, still irate but somewhat calmer.  I just drove away, weary.  But I thought about Aaron with his broken watch in his pocket, carrying it with him all that day.  He also carries something else with him, something that often feels broken.  My heart and spirit.  A mother is a mother, forever changed by the children that carry part of her with them for the rest of their lives.  Aaron isn’t the broken one, but I often am.  I need God’s grace and strength so many times on this road, and He never fails me.  But I still feel the pain in my heart, my heart that Aaron unknowingly carries with him…..tucked away, just like his broken watch.

 
Later, I walked in the house and my eyes were drawn to a very little porcelain figure perched on top of our DVD player.  Aaron and I had set it there a couple weeks earlier.  I thought of the story told by that little figure, the love it represents.

Aaron had been to the zoo on Friday of that week.  He came home, excited to tell me about his favorite animals that he saw.  When I asked him if he had bought anything to eat, he told me that he had not bought any food but had instead bought something for me.  But with regret he told me that he had left it at Paradigm. 

“I can’t tell you what it is, Mom!” he exclaimed.  “It’s a surprise!!”

So when I took him to Paradigm after the weekend, on Monday, he was very excited for me to come inside with him so that he could hopefully locate his surprise for me.  He barreled into Barb’s office with me in tow, and Barb immediately pulled out of her desk a small brown bag from the zoo.  Aaron couldn’t wait for me to open it as he handed it to me.  And there inside the bag, wrapped in bubble wrap, was….well, what was it?  It was so tiny that I couldn’t exactly tell.  Aaron was rubbing his hands together as I gingerly pulled out a little porcelain zebra.  Why a zebra?  I have no idea.  But I loved it.  I loved the fact that Aaron had spent all of his money on Mom…..even though I worried that he went hungry.  What a special, loving gift from my son!

Now it sits on top of our DVD player, where it’s mostly safe from being broken.  You can hardly see it from across the room, it’s so little.  But the joy on Aaron’s face when I opened it was huge, and so was the joy in my heart. 

My heart, like all mom’s, holds at times great joy and then at times great hurt.  As with every situation in my life, then, I have a choice to make.  I can’t ignore the hurt forever and I can’t capture the joy forever.  We all experience both.  But I can choose which to dwell on the most. 

I can linger on the brokenness and carry it with me, like the watch in Aaron’s pocket as he carried it there day after day.  Or I can choose to see the beauty, hard as it may be, that does often surround me in my life with Aaron.  Brokenness or beauty…..it’s my choice.  In every area of life, that choice is mine to consciously make.  As I deal with Aaron, it’s also a decision I must choose. 

Will I see Aaron as a blessing?  Or will I see Aaron as a burden?  Will I allow my grumbles and sighing and my desire sometimes for a “normal” life rule my thoughts?  Or will I pull back, take a breath and pray to my heavenly Father, and then choose to see the blessings?  Even at the end of the day, if all I can say is, “Well, at least Aaron and I are both still alive.”  Hey, I’ll take it!  It’s a blessing!!

On that angry Friday, that tiny zebra reminded me that I do have many blessings and joys in this life with Aaron.  Sometimes they’re harder to see than at other times.  Sometimes my spirit is very frustrated and tired…..but so is everyone.  Really, we all experience plenty of both in our lives. 
 

What will it be? 

Brokenness…..or beauty?

Burden……or blessing?

A text from Atha this morning was perfect:  “Enter His gates with thanksgiving and His courts with praise; give thanks to Him and praise His name.  For the Lord is good and His love endures forever; His faithfulness continues through all generations.”

 

 

Lessons From the Weedy Crepe Myrtles

Gary and I were working in our garden, tending the vegetables and yanking out the unwanted weeds earlier this spring when I looked over and noticed another area that needed tending.  We have several tall Crepe Myrtles that are on the street side of the garden.  It was early spring, and I saw that all of them were crowded with weeds.  The weeds had become so thick that I knew if there was any hope of the Crepe Myrtles growing then I would need to pull those weeds…..sooner rather than later. 
 

After we finished the garden, I grabbed my little shears and I walked over to the row of Crepe Myrtles.  It seemed that there were only weeds growing until I bent over to take a closer look.  That’s when I saw that there were small new shoots of Crepe Myrtle poking through the thick weeds, trying hard to thrive but having to fight the persistent, fast growing weeds that threatened to crowd out their future growth. 

I began to do some snipping here and some cutting there, but I soon realized that I would need to slow down and take my work to a more personal level.  I got on my knees and slowly, carefully pulled more weeds from among the tender shoots of the bush that was trying so hard to grow.  I didn’t want to pull the small green and maroon Crepe Myrtle growth from the ground, so I had to carefully identify each weed and then gently pull it from the ground by its roots.  This was slow going, but it was worth it when I finally stood and looked down to see only pretty new Crepe Myrtle growth, unhindered now by the noxious weeds.

 
Over the next few weeks I was very pleased to see the Crepe Myrtles getting taller and taller, thriving in the rain and the sun.  They could grow now and show their beauty.  And just yesterday, as I pulled weeds from around our vegetables in the garden, I looked over to our little row of Crepe Myrtles and was so happy to see how tall they were.  How healthy they looked!  They will bloom now any day, a little late this year, but we will enjoy their blooms regardless.  I think I’ll enjoy those pretty fuchsia flowers even more this year as I think of how carefully I had to remove what was threatening to kill their beauty.

 
This has been a rather difficult summer for me…..for our family.  My mother passed away on May 4 and we buried her the Friday before Mother’s Day.  Then in June Aaron was in the hospital for a week with pneumonia and other complications, and had a long recovery when he came home.  I got sick a week after he got home, and am still finishing up my third round of antibiotics for that infection.  Last week Andrea, in Houston, got pneumonia in both her lungs. 

Those have been big things, like the big weeds in the Crepe Myrtles.  Sometimes the big things that bring exhaustion and discouragement are easier to deal with because they are so evident.  We expect to be tired and downhearted from issues like death and severe sickness, or prolonged illness.  We can identify the big problem and hopefully understand it as we deal with it, or as we ask others to pray for us over those matters.  It’s out there for all to see, including us, and so we can talk about it and handle it.

But deep in my heart, I’ve had another problem.  It’s not out there for all to see, and is even difficult for me to adequately identify and then deal with as I should.  I call it a spirit of discontentment.  It’s a gnawing unhappiness that I find creeping up in my soul, threatening to choke out my joy and my growth.  People can say, “Oh Patty, you’ve had such a hard time the last few months.  It’s just so much to handle.”  And while some of that may be true, I know better. 

I know better because I know my tendency to become discontent.  I’m like the Psalmist who said, “Why are you cast down, O my soul, and why are you in turmoil within me?”  (Psalm 42:5)  I know myself very well, but I don’t always want to admit the problem.  That’s when I need to get up close and personal, like I did when I was on my knees beside the Crepe Myrtles, pulling out each individual choking weed that was stunting needed growth.  Sometimes it’s painful to identify the issue and to then take care of it in the necessary way, but it’s the only avenue to becoming content and peaceful once more.

My discontentment begins when I take my eyes off of God and His sovereignty in my life.  It’s when I allow myself the “luxury” of a wandering thought life.  What if I had this?  What if life was like that?  Why don’t I do such and such?  Why am I a failure?  If only I did this or had that or accomplished something, then I would be happy.  And as a woman, especially, that ugly comparing game.  How often we do that, whether it’s about our house or our figure or our work or our children or our husbands…..

It’s all so defeating.  And the bottom line with me, the very damaging weed that I need to get rid of the most, is an attitude of unthankfulness.  Paul tells us to be thankful in everything.  That means EVERY THING!  Every situation, every day, every person in our life, every moment, can and should prompt us to be thankful.  Even when we don’t feel like being thankful, there is always a reason for which to give thanks.  We may have to look hard, but it’s a command to be thankful.  Even if I can’t find a reason, I am still to be thankful to God for what He has allowed.  For me, a thankful heart is like pulling out many weeds that are choking me.  A thankful word on my lips and a thankful thought in my brain often takes a very conscious effort, but it does so much to sweep away that discontentment that makes me so down and miserable.

After the Psalmist asked the question about his turmoil in Psalm 42:5, he finished by saying, “Hope in God!  For I shall again praise Him, my salvation and my God.”  Sounds simple, but we know it isn’t always so.  Down on my knees I will go again and again, I am sure, to weed out the attitudes that are causing my discontent.  Remembering to hope in God and not in my surroundings.  And then knowing that I SHALL again praise Him, even if it’s while I’m on my knees doing that weeding and I don’t really feel like praising.  But praise I should, for He is my salvation and He is my God.  What a gift!  There it is.  Something for which to be thankful!

I want to be growing into the beauty that God has for me, like my Crepe Myrtles are now growing.  But I know it takes effort on my part to be obedient to what God tells me to do…..to be on my knees pulling out those weeds that are trying to destroy my joy.   

Oh, there’s more to that verse.  More to help me when I mess up.  “My soul is cast down within me; therefore I remember You from the land of Jordan and of Hermon, from Mt. Mizar.”

In other words, when I am cast down again….and I will be…..then I can remember the God who has strengthened and enabled me in the past.  He is still here in my present situation, whatever it may be. 

Weeds always grow, but God is always faithful, too.  And for that I am…..very thankful!