Category: Blessings

A Big Small Kindness

We were on our way to our daughter and son-in-law’s house one recent evening.  Andrea is struggling with pregnancy nausea.  I asked her if there was something that sounded good to her that we could pick up for supper.  She thought a Burger King Whopper like she had successfully eaten a couple days earlier would work.  

Aaron was going with us and was super excited at Andrea’s choice because a whopper always sounds great to him.  Including him in the supper plans was Aaron’s idea of a perfect plan!  

We went inside to pick up Andrea and Kyle’s order and to place our own.  Aaron was beyond excited, rubbing his hands together and rapidly placing his order before the attendant even had time to ask if he could help us.  

Now, in this moment I can gauge the mindset of workers in restaurants or stores as they encounter an exuberant Aaron.  Some are wary and curious about Aaron, unsure of how to interact with such unusual behavior from an almost 40-year-old balding grown man.  Others are calm and very friendly, with understanding exuding from their demeanor.

This young man behind the counter was the latter.  He was completely relaxed with Aaron, smiling and engaging him in friendly banter.  Aaron recognizes this attitude as well, though he could never sit down and explain it to us.  He just knew that this person was being nice to him, and he reacted with even more talking as he bent over and rubbed his hands together rapidly.  Someday I would not be too surprised to see smoke rising from his hands!

Then Aaron saw the paper Burger King crowns laying on the counter.

“Mom, can I get a crown for Ryker?” he loudly asked.

I said yes as I glanced at the worker.  

“Of course you can,” the young man happily said.  

“Can I have one, too?” Aaron asked.

“You bet!” our new friend replied.

Aaron placed the crown on his head.  Of course, it was too small.

“Here,” the young man said, “let me adjust that for you.”

He reached over the counter, took the crown, made it bigger and then placed it back on Aaron’s head.  

By this time, Aaron was doing his little happy hop, and I thought the kind worker might just join him.

Here was this guy with skull tattoos all up and down his arms, showing love to our Aaron, and I wanted to hug him, skulls and all.

He filled Andrea’s order for a slushy drink.  Aaron’s big eyes lit on that, and he wanted one as well.  I agreed, so our happy worker filled a cup for Aaron.

“Put your card away,” he said as I took out my debit card.  

He wouldn’t hear of me paying for Aaron’s drink.  

I looked into the eyes of our skull tattooed, rather rough looking worker, and saw kindness.

“You have a very kind heart,” I told him.  “Thank you so much.”

“Well, I try,” he replied.

Kindness certainly comes in all shapes, sizes and forms, doesn’t it? 

Aaron pretty much makes an impression everywhere he goes.  But so do those who reach out to him with love and acceptance.  Those people touch our lives more than they know.  

I am so grateful for the love these kind ones share with us as they interact with Aaron.  It’s a love that grows both in our hearts and with others.  

I have experienced great love shown to Aaron from some of the most surprising people.  Some of our Meals on Wheels clients, for instance, live in very difficult circumstances yet they show Aaron a sweet love that is beautiful to see every week.  

Our skull tattooed Burger King worker is not one who would necessarily be the person I would have picked to be such a blessing to us on that day, but he certainly was.  

It’s a huge reminder to me to not assume a person will behave in a certain way based on their looks.  

Sometimes those who may seem like the least according to the world’s standards end up being the ones who really do the most in the ways that count the most.

There’s no such thing as a small kindness in God’s eyes.  He sees each one as big.

And I’m so thankful for those big, small kindnesses in our life with Aaron!

Uncle “Awa” Update

Once again, it is way past time for a family update.  Lack of time and often no lack of tiredness sure make it hard to write like I want.  Or like I used to long ago.  Anyway, here I am at last.

Can you tell from my title what sweet news we have about Uncle Aaron?  This past Saturday evening at supper, Ryker started pointing to Aaron and saying, “Awa.”  He did it over and over and was so happy at our reaction.  Aaron was his typical unemotional self, but Ryker didn’t care.  He kept pointing at Uncle Aaron and saying “Awa.”  And he didn’t want Aaron to leave the table.  

We could tell, though, that Aaron was pleased and later he told me that it made him happy.  He told his staff at his day group, too…a sure sign that it makes him feel special.  It was such a sweet and heartwarming moment to see Ryker saying Aaron’s name in his own precious little way.  

Aaron still likes to share with Ryker, and is playing more with him, too.  It’s mostly playing in small ways but it’s a good start and shows that Aaron is getting more comfortable with his little nephew.

Aaron claps quite often, and often those claps are ear splitting.  I’m sure he could win a clapping contest, hands down!  (Sorry.  That was corny.) Ryker watches Aaron closely and has now started copying Aaron when he claps.  First comes Aaron’s super loud claps, followed by Ryker’s little baby claps.  And then come lots of smiles from all of us.

One day Aaron let out his deep “Ho Ho Ho” laugh and Ryker suddenly copied it perfectly.  It was hilarious!

Last week we went over to Andrea and Kyle’s, stopping on the way to pick up some burgers.  Aaron saw the BK crowns on the counter and asked the worker if he could have one for Ryker.  This young man happily said yes and then offered one to Aaron.  It was another sweet gesture from Aaron to Ryker.  

Aaron still has his moments of uncertainty and jealousy, evident in the statement we hear the most when Ryker is here:  “You don’t say that to me.”  

Or:  “You don’t bounce with me.”  

And here’s one, said after I commented that Ryker is adorable:  “Do you think I’m adorable?”

We always assure Aaron of our love and call to his attention the ways that we show him that love in an adult way.  There are times we are still walking on eggs with him when Ryker is here.  Aaron does love our full attention and to share with anyone else, not just Ryker, often goes against his grain, especially if that sharing interferes with Aaron’s sacred schedule.

But all in all, we see huge improvement and it’s truly a cause for praise to the Lord as well as being sure to praise Aaron for ways that he is being nice to Ryker.

And we have one more bit of great news.  Andrea gave us this picture a couple weeks ago.

Ryker will be a big brother next May!!

We are thrilled and so very thankful!

Aaron is not quite as thrilled, but he isn’t totally against the idea, either.  He has told people that he doesn’t want Andrea to have another baby but then he tells others about the coming baby in an excited way.

Typical Aaron, up and down, depending on the moment.

Typical me and Gary, depending on the Lord for patience and wisdom, which we do not always show.  

But remembering to be thankful for every victory and every bit of good news.

Uncle Awa.  

That’s some very sweet news right there, times two!

Aaron and The Violinist

A couple months ago, Aaron found a CD in our van that he had not listened to before.  I saw that it was an instrumental CD produced by Chelley Graves.  Chelley is an accomplished violinist who taught our daughter violin for quite a few years. 

Now, Aaron only likes to listen to music that has people singing. Instrumental music is not his interest. He will even skip songs on his CD’s that have no singing, which is very telling since Aaron goes from #1 to the last song without ever skipping a song because one does NOT skip numbers. 

He popped the CD in and sat back to listen as he examined the CD case. It didn’t take long for understanding to sink in.

Aaron: Mom, doesn’t Chelley sing?! (He pronounced her name with the hard CH sound, as in check)

Me: No, Chelley (soft CH) is a violinist. She doesn’t sing on this CD.

I figured that was the end of listening to this CD. But no, Aaron kept listening to song #1, #2, #3, #4. Since you’re not Aaron, I don’t need to keep counting but you get the picture.

I was very pleasantly surprised!

The next morning, as we left the house for his day group, Aaron pushed the rewind button, and we went from #8 all the way down to #1. He wanted to listen to the whole CD again!!

This was AMAZING for Aaron on so many levels!!!!!

This was AMAZING for me on so many levels!!!! 

No more wobbly voiced Elvis, either!!!!

Chelley’s beautiful music was filling our van and making us both very happy!

Aaron was intrigued with the fact that I know Chelley.  One day he told me that he wanted to send her a card to tell her that he liked her music.  I messaged Chelley for her address and Aaron wrote her these precious words.

And then a few days later, Chelley messaged Aaron.  I printed her message and handed it to Aaron.  

I wondered how his face could hold his enormous smile.  

Aaron placed Chelley’s message on his bed with his collection of special items that he carefully arranges on his bed every night, surrounding him while he reads and listens to music before he goes to sleep.  Her letter is also on Aaron’s desk every day, a testament to how special it is for him to be acknowledged.

Chelley has recently been playing her violin at an Italian restaurant in our city one or two nights a week.  So, last night Gary and I took Aaron to this restaurant as a special treat, but also for a very fun surprise.

Chelley knew we were coming.  As we sat in our booth, she came to our table and spoke to Aaron.  He was puzzled at first but when I told him who she was, there was that huge smile again. He told her that he liked her music, and of course then he had to show her his sticker book that he had brought with him. Chelley was so gracious and kind.  

All during our dinner, he would look over at her as he listened to her play so beautifully, and his happiness was once again on his face and in his eyes. 

 

Kindness shown to Aaron means the world to us.  So does the opportunity for Aaron to show kindness to others as he did to Chelley when he wrote her that note.  

We came full circle in a sense, all of us sharing in the joy that Aaron brings in his own unique and uninhibited way.

And here’s hoping for less Elvis and more Chelley!  

Skittles and A Super Bowl Ring

Nearly every day that Aaron is at his day group, one of the staff will take him the short distance down the road to the nearby Quik Trip.  This little outing is the highlight of Aaron’s day.  He loves picking out what food and drink he will buy.  

Aaron especially loves Skittles, but his picky mom (ME!) has told him that he does not need to buy Skittles every day…and he definitely does NOT need to spend the majority of his money on the big bag of Skittles.  A small bag of Skittles a couple times a week is OK.

Aaron has made this rule of Mom’s a big deal.  A very big deal.  He has talked it to death with me…teased relentlessly about buying Skittles when he didn’t buy them…told the staff over and over and over again about how “Mom said NOT to by Skittles!!…and I am quite sure, has talked loudly and clearly to the Quik Trip staff about how his Mom said not to buy Skittles.  

During Christmas, Aaron was taken on his regular trip to Quik Trip.  And guess what?  He was given a special gift from the workers there.

You can probably guess what it was.  

A very BIG container of yummy Skittles!!

Just look at Aaron’s face and you won’t need me to tell you how happy he was.

How I laughed when I saw these pictures!

But more than laughter, I was so touched by the kindness of the Quik Trip workers who obviously have gotten a kick out of talkative Aaron’s Skittles stories. 

What a very nice thing for them to do!

Fast forward now to last week.  Aaron and I had run into our nearby Dillon’s, where he hightailed it to the deli counter as soon as we walked in the door.  I finally caught up to him, only to see him bent over rubbing his hands together and talking loudly in great delight.

“MOM!!” he nearly yelled, “they have Cheddar Pasta Salad today!!!”

Aaron’s love of Cheddar Pasta Salad is well known among the deli staff.  Actually, it’s well known among many of the Dillon’s staff in other departments as well because Aaron makes sure that everybody is at the receiving end of his talking.  

So, on this day I agreed to let him buy a Cheddar Pasta Salad…a LARGE!!…of course!

The very nice woman behind the counter has been getting to know me and Aaron.  She is very patient with Aaron no matter how busy she is.  She has experience with autism because of her own young son.

She happily filled the large container to the brim with the salad while Aaron excitedly oversaw her every move, all the while eagerly talking to her about the upcoming super bowl game.  She told us how busy the deli was as they were preparing platters for the game, and then asked if we would like to see one of the deli trays she had just made.

She showed us the pretty tray and pointed out the super bowl ring that was part of the decoration on the side.  

“Hey Aaron,” she said, “would you like a super bowl ring?”

“Yeah!!” he eagerly answered.

She handed him a ring and he put it right on his finger, a smile spread across his face.  

At Meals on Wheels a couple days later, he wore that ring and showed it to everyone on our route.  

There it was on his finger while we ate our burgers later.  

And I was impressed with how the kindnesses shown to Aaron in these two experiences also show the caring hearts in so many people that cross our paths.  Kindness doesn’t have to come in the form of giving Aaron things, either.

Kindness is also shown by a smile.

Or by not staring at Aaron like he is some sort of oddity.

And certainly, by being willing to listen to Aaron if he happily corners you somewhere with talk of his latest game or book or movie or SKITTLES!!

Being kind to our special son is a huge gift to not only Aaron, but to those of us who love him so much as well.

All our special people will thrive under the sunlight of love and kindness that shines down on them from those we encounter every day.

I am very thankful for those that know this and practice it in our lives. 

Pass the Skittles, Aaron!

Uncle Aaron, The Nephew, and The Bear

Our crowd from Texas all arrived safely in three different stages on Monday night.  What a relief to have them all here at last!

Except relief is not the word that Aaron would use to describe his feelings about this situation.  

His word choice would have been “dread.”  Dread mixed in with a little anger.

But Aaron reacts this way to any situation that threatens to up-end his ordered, predictable world.

Even on the day the family was to arrive, Aaron was still letting us know that he did not want to be Uncle Aaron and he did not want to have a nephew. 

He was asleep when the last travelers arrived at 10:30, with Ryker (the nephew) in tow.  Poor little Ryker was tired of traveling and scared of all the sudden new surroundings until he was able to finally stretch his legs and do some exploring.  Then there was no stopping him!

Ryker was awake early the next morning, and so was Aaron.  Aaron walked in the room where Ryker was staying.  Andrea had just changed his diaper.  I saw Aaron’s eyes dart to Ryker but then quickly look away.

“There’s Ryker, Aaron,” I softly said.

But Aaron was very nervous, and I knew not to push.  Aaron focused solely on Andrea.  He began talking about and showing her the box for his new Batman game.  He was in his comfort zone, and it was best to leave him there.

Andrea and I went downstairs with Ryker, where Aaron soon followed, still focusing only on Andrea as he talked about games and movies…anything but “The Nephew.”  Ryker just looked at Aaron, certainly intrigued, but Aaron still refused to acknowledge his presence.

After some time, Aaron thumped back up two flights of stairs to his bedroom.  Soon we heard him coming down again.  I thought that Aaron would have a new game box to show Andrea.  

But no.  Instead, he was carrying a stuffed bear.

This wasn’t just any stuffed bear.  34 years ago, while we lived in Germany, our third child was born…Andrew.  Aaron was five years old, and he did not welcome his tiny little brother into the world.  Instead, he was uncomfortable around baby Andrew and kept his sullen distance when they visited us in the hospital.  We attributed it to normal adjustments that many children have with a new sibling.  

When we brought Andrew home from the hospital, we were concerned about how Aaron would react to his brother actually living with us.  As soon as we walked inside, Aaron looked at us and then ran back to his room.  Soon he returned carrying his favorite stuffed bear, given to him when he was born. 

“Here,” he said as he held his bear out to us.  “Andrew can have this.”

That was his way of accepting his new brother.  And for the rest of his years at home, that bear was Andrew’s bear. 

Andrew grew up and moved away.  The bear was in his closet.  One day, Aaron saw the bear and asked if he could have it.  Andrew, of course, said yes.  So, for all these years that special bear has been Aaron’s bear again.

Over this past year we have watched 39-year-old Uncle Aaron exhibit the same unaccepting behavior toward his new baby nephew as he had shown toward his new brother.  

But then…

Aaron held the bear out toward Ryker.

“Here,” he said to Andrea, “Ryker can have this.”

I was blown away as my mind wrapped around the significance of this moment.

I was taken back all those years ago to our military quarters in Germany, little Aaron handing his favorite bear to Andrew.  And now handing that very significant bear to The Nephew.  To Ryker.

I could never have orchestrated a sweeter, more meaningful way for Aaron to show his acceptance of Ryker.

Oh, thank you Lord!  

And thanks to all of you have prayed over this past year for Aaron to accept and love Ryker.  All of you have a part in the miracle we have seen over the past three days.  

Aaron has been sharing food and toys and stuffed animals with his nephew. 

But nothing he shares can surpass that first thing he shared…the little brown stuffed bear with such a story to tell of love and acceptance.

My Choice

Well, I can tell you right now that this blog subject won’t be what some people think it’s going to be.  I just realized how this title sounds as I typed it.  Hmmmm…

Anyway, let me pop some bubbles right at the beginning by sharing this sign that is hanging directly above my quiet time/study desk where I sit nearly every morning, coffee in hand and Bible open.

It reminds me that every day I have a choice to make.  Throughout my day I can choose how I will allow the events of the day to affect me. 

And no single person creates more events in my life than Aaron.

In one sole day you might very well find me laughing, crying, yelling, sighing, worrying, cringing, thanking, guessing….

That’s just the condensed version.

 Last week on our Wal-Mart shopping trip, Aaron took off at a fast trot to go check out the candy and nut aisle.  

“Don’t run!” was all I managed to remind him before he was out of earshot.  

I hurriedly completed my shopping.  I then took off at my own fast trot to see what was occurring on aisle 20.

I rounded the corner to this scene.

Add blushing to the list above.

There sat Aaron cross-legged on the floor as he searched the very bottom shelf for something.  Red Hots, I soon learned.  Beside him he had stashed jelly beans, peanuts, and cashews that he hoped I would buy for him.  Also beside him was a very kind associate named, very appropriately, Joy.  

Joy had found Aaron sitting on the floor.  Being concerned, she walked to Aaron and asked if he needed help.  Boy, was Aaron glad to see her!  Usually when he needs (or just thinks he needs) help, he barges toward an associate and pretty much yells, “HEY!!”  

I’m usually found nearby, or a few steps behind, hissing, “AARON!  Don’t say HEY!!  It’s rude!”

By this time, said associate is typically a mix of alarmed and annoyed which soon is replaced by amused. Maybe more amused by the look on my face rather than by Aaron’s?  Very likely.

Back to the candy aisle.  Joy soon found Red Hots up on the very top shelf, which gave Aaron much joy.

Me too.  Oh, my joy didn’t come from the Red Hots.  My joy came from Aaron being so unabashedly Aaron. Aaron’s going to do what Aaron’s going to do, no matter how many times I correct and redirect and follow him around hissing out instructions that he mostly ignores.  

I thought it was just the most perfect thing that this very sweet associate’s name is Joy.  I do believe that God was smiling.  

And again, I was too.  Others around us were very understanding as they waited or turned around.  Aaron has lots of lessons to teach everyone around him, like it or not.

I posted a little piece about this on Facebook and our neighbor across the street sent me this picture.

Here’s what she said:  “Seeing your Facebook post about Aaron sitting on the floor in Wal-Mart reminded me that I took this the other day.  He was excited to come tell me something.  He really does bring joy.  It’s always fun to hear what he’s going to say!”

Aren’t we very blessed?  Our neighbors all around us are great with Aaron.  

I thanked Gina for being so good to listen to Aaron.  I also reminded her that because of this, Aaron will just keep going over.  HaHa!

Well, we had lots of joy going on and it was really sweet.  I was reminded of this verse:

            “A joyful heart is good medicine…”.  (Proverbs 17:22)

And that’s a very good thing because I know my blood pressure was getting somewhat high on Aisle 20.    

It’s Aaron

After being out of town for several days, Gary and I returned on Monday afternoon.  Aaron was happy, happy to have us home.  But by Tuesday morning he was wishing that we were gone again, and our friends were back at the house watching him.  Re-entry to real life is often difficult for Aaron.  

And he is not the only one who finds it difficult!

Aaron was belligerent on Tuesday when faced with the reality of returning to his day group.  He was very verbal and confrontational.  It’s the side of Aaron that tests my mettle to the core.

It’s hard not to respond in kind to him.  Sometimes I do say more than I want to say, sadly.  As we drove to his day group, I really laid into him.  Not in a damaging or harmful way, but in a truthful way about how his words hurt us and why.  There are concepts that he needs to hear about how to love us even when he is angry.  How to recognize and acknowledge all we do for him instead of thinking only of himself. 

The night before, I had watched a video with him about a triangle UFO.  It’s the last thing I wanted to do.   He had called us repeatedly while we were gone, talking about this UFO video he wanted me to watch with him.

“MOM!!” he exclaimed, “it’s a triangle UFO video that’s 44:42.  Would you watch 44:42?”

Those are the minutes and seconds that he memorizes on each YouTube video that he watches, by the way.

He was ecstatic that I agreed to look it up and then to actually sit through 44:42.

So, on that next morning full of anger, he was full of remorse as I spoke truthfully to him.  As we neared his day group, he spoke softly.

“I’m glad you looked up the triangle UFO video.”

I was quiet.

“I’m glad you looked it up,” he repeated several more times before getting out of the van.

It was Aaron’s way of trying to say he was sorry.

A few hours apart worked wonders for both of us.  He was very happy when I picked him up and I was responsive once more.  I took him to the lab for some bloodwork, where he had to be poked in each arm and he flinched…something he rarely does.  My heart went out to him.  He deals with so much, even more internally in that brain of his than outwardly sometimes.

The technician gave him the plastic tourniquet to keep.  He was delighted.  I watched him walk around WalMart later, both arms with band aids and the tourniquet dangling from his fingers as if it was a prized possession.

I thought of how those small gestures…those items insignificant to us…bring him such joy. 

And it hit me that there are countless times that the seemingly insignificant, daily actions of Aaron bring us such joy…of how much I need to focus on those moments rather than the outbursts that bring hurt.

It’s Aaron at Walmart trying to hide from me because he has BOTH crescent rolls and biscuits in his hand that he wants me to buy.

It’s Aaron sitting on the floor of the store, totally oblivious to anyone around him as he checks out the peanuts on the bottom shelf.

It’s Aaron hardly able to wait until he could show me how much his sunflowers had grown while we were gone.

It’s Aaron helping clean under the kitchen table after supper.

It’s Aaron telling me he took his snacks to the snack drawer before bed.

It’s Aaron thrilled to pieces that I let him buy TWO boxes of Texas Toast.

It’s Aaron loving to do science experiments.

It’s Aaron super excited about his new volcano lamp.

It’s Aaron overjoyed because he won this light-up bouncy ball in Bingo, which he took today to show all our Meals on Wheels clients.  

It’s Aaron sitting alone in the mulch, breaking pieces into a container the same way he has done since he was a little boy.  There goes my heart.

It’s Aaron’s unique sense of style, unaffected by current trends or other’s opinions.

It’s Aaron’s unique impact on my life that I want to treasure and relish each day, even despite the hard times.  

After The Storm

Two nights ago, I awoke to bright lightning flashing outside our window.  Then came the crashing thunder.  Two hours later, we had a repeat as another storm roared through.

A few hours later, the sun was shining as I looked out my favorite window.  The view was so beautiful.  The leaves on our huge oak tree looked crisp, the grass was so green, and the sky was beautiful with unthreatening clouds.

Even though the storms earlier were loud and a little scary, the benefits were well worth the dark experience of the night.  We need the rain.  And I was so blessed by the very pretty view that morning.

So often, the aftermath of a storm carries with it refreshment and joy.

The same is true in the life of a believer.

We don’t often understand this side of heaven just why we go through trials of life.  But what we do know and understand is this:

“…I am the Lord and there is no other, the One forming light and creating darkness, causing well-being and creating calamity; I am the Lord who does all these.”   (Isaiah 45:6-7)

These promises to Israel continue:

“For thus says the Lord, just as I brought all this great disaster on this people, so I am going to bring on them all the good that I am promising them.”   (Jeremiah 32:42)

The God of Old Testament Israel is our God today, and His character and purposes have not changed.  He has a reason for every circumstance and event in the life of those who know and follow Him.

“And we know that God causes all things to work together for good to those who love God, to those who are called according to His purpose.”   (Romans 8:28)

There is so much work that God wants to do in us.  Even Jesus learned obedience through the things which He suffered.  (Hebrews 5:8).  How much more do I need to learn the same?

Let me close with sharing one recent experience.  We were having a particularly rough behavior evening with Aaron.  We couldn’t understand why.  Then after supper, while I was at the kitchen sink and Aaron was a few feet away, he suddenly went into a seizure.  These drop seizures are both terrifying and dangerous.  He falls like a tree and has been injured several times over the years…staples, stitches, a lost tooth, CAT scans to check for concussions, and so forth.

Because I was so near and heard the seizure start, I was able to turn to him and grab him as I yelled for Gary.  I lowered Aaron to the ground as he fell while Gary ran in and was able to help.

Later, feeling depleted and very emotional, I sat in a chair near Aaron as he slept and recovered.  And I prayed.  I was able to practice what God has taught me over the years.

“Let the peace of Christ rule in your hearts, to which indeed you were called in one body; and be thankful.”   (Colossians 3:15)

I was able to be thankful…thankful that I was near Aaron when the seizure started…that Gary was able to help…that Aaron was not injured…and that later he was his happy self again.

Honestly, I don’t say, “I’m so happy that Aaron has seizures!”

No.  But I can, because of what I know about God, be thankful for both the ways that God takes care of Aaron and for all that God has taught me over the years as I have learned to completely trust Him with this son whom we love so much.

It’s like looking out that window after the storm and seeing that the storm has brought to me another layer of growth and beauty despite the fear and struggles.

I pray the same for each of you today as you gaze out the windows of your life at the works that God has done because of, and after, the storms.  

Love, With a Little Sad

Recently, Aaron has been listening to the Phantom of the Opera movie soundtrack.  He has seen the movie and heard the music before, especially listening to the CD over and over.  But time has gone by, and Aaron doesn’t remember what the story is about.

During lunch a couple days ago, as he asked questions and I told him the story, I realized once again the sadness wrapped up in the Phantom’s life.  I couldn’t hide it from Aaron if I was going to tell the story correctly.

“You know, Aaron,” I finally said, “it’s really in many ways a sad story.”

Aaron thought for a minute.

“You have to see it as love,” he said.  “Love with a little bit of sad.”

His comment blew me away.  I was legitimately speechless.

I’ve thought a lot about what Aaron said.  I realize that he, in those few words, so perfectly described our life with him.

This life of parenting a special needs child is not a cake walk.  Yet we know that what God has allowed in our life is for a reason…and God’s reasons are always good.  Maybe His reasoning doesn’t make sense all the time, but God is good in all that He does and allows.

Gary and I have choices to make every day as we parent Aaron.  Yet no matter what moments we face each day, we love Aaron fiercely.

What is our focus?  Is it love, or is it sad?

We can’t ignore the sad.  That would be denial.

We’re sad when Aaron has seizures.

Sad when sometimes those seizures cause serious injuries.

Sad when his seizure meds make him so sleepy and tired.

Sad when he must be poked with needles so often.

We’re sad when his behaviors break his own heart.

Sad that he still refuses to travel to meet his new nephew.

But wait.  I need to remember what Aaron said.

Love, with a little bit of sad.

We want our life to be lived with a major on love and a minor on sad.

Like the love we felt for him last night as we stood outside watching the beautiful lightning to the west, hearing the distant thunder along with Aaron’s deep happy chuckle.  

Seeing the love he has for animals of all sorts.

The way he takes huge delight in the unusual.

We love the joy he shows in sharing.

And the big smile he gives when I pick him up from his day group.

I love how he looked on the exam table at his last doctor’s visit, reading his UFO book that he couldn’t wait to show his doctor.

I love how he leans way over to listen to the music that comes out of the self-checkout register at Dillon’s, oblivious to all the stares.

I love his random love notes. 

 

And that he’s willing to take an occasional picture with Mom.

I love looking out the window and seeing this scene.

I love that behind every hard, frustrating, stressful, and sad moment…I can hold on to this fact – that God has given us our special Aaron to love and care for.

We have to see it as love…love with a little bit of sad.

Aaron’s Smiles For Others

Yesterday Aaron and I ran into our Dillon’s on the way home from his day group.  I was picking up a few groceries, and Aaron was on the prowl for two things:  candy, and someone to talk to.

He found his candy while I was finding a package of meat.  He sure is a pro at slipping away behind my back.  I’m sure there are dozens of security videos in Dillon’s that show me walking past all the aisles, straining my neck to look down each one as I search for Aaron.

If he’s not loading up his arms with random snacks that he hopes I will buy, he is finding some of the employees there that he knows.  He bounds over to where they are working, oblivious to the fact that they are busy, and loudly greets them and begins talking as if he’s taking right up where they left off three minutes ago. 

With Aaron’s Good and Plenty’s safely in our cart, Aaron followed me across the store toward the cheese aisle.  I could see that, as usual, his eyes were darting right and left as he searched for someone…anyone…that he even vaguely knew so that more than his eyes would dart straight toward them.

And sure enough, he did.

Or at least thought he did…know this particular man, that is.

Thankfully I still have my peripheral vision.  I saw Aaron detour down the self-checkout aisle.  I was doing a U-turn but wasn’t fast enough to intercept Aaron.

Aaron was headed straight toward a man whom he thought was Harold.  But this man was not Harold.  Harold often works in self-checkout.  He is so nice to Aaron, engaging him in conversation every time they see each other. 

“Hi!!” Aaron blurted out as he headed to Harold who wasn’t Harold.

Aaron was rubbing his hands together in delight and he did his little hop of excitement, his left leg extending out.

Harold who wasn’t Harold had a mixed look on his face…a look of moderate shock, confusion, and…was that fear I saw?

But thankfully understanding dawned on this sweet man’s face and he smiled right back at Aaron just as I was beginning the rescue.

The smiling man followed Aaron back toward me as I explained to him that he looked very much like someone else that we know. 

His smile was huge as he patted Aaron on the back and said that it was just fine. 

Bless him!

“I’m embarrassed,” Aaron softly said as we walked once again toward the cheese.

“Oh, Aaron, it’s OK,” I told him.   “That man looked a lot like Harold.  He understood and he was just fine.”

“Well,” Aaron responded, “I can smile at other people, too.”

The coolness of the cheese aisle couldn’t take away the warm glow in my heart that came from Aaron’s words.

“You absolutely can smile at others, Aaron,” I told him.  “Smiling at others is wonderful!”

Aaron deals with so much.  He came home and had a seizure soon after all those smiles.

But smile he will! 

And I can’t think of a better was to start our New Year than to remember Aaron’s words.

We can smile at other people, too.  People we don’t know but people who probably need a kind smile as they walk down the store aisles. 

While I scanned my meat, Aaron’s Good and Plenty’s, and my cheese I finally found, I realized that Aaron wasn’t with me.

You guessed it.

He found the real Harold who was very busy at a nearby register, with Aaron close beside him…Aaron, rubbing his hands together…smiling and talking.

“Oh dear,” I thought.  “I need to rescue Harold.  And the poor puzzled customers.”

“Well, hi there!” Harold said.  “UNCLE!!”

Aaron’s smile was bigger than ever and so was my heart.

Bless Harold and everyone who has a heart for the Aarons of the world.

Let’s all try to share our smiles and to be kind to all the “other people” that we encounter.

Have a Smiling Happy New Year!!