Category: Friendship

The Signature

It was last December 13, a Sunday afternoon, when I heard my text notification buzz.  Reaching for my phone, I saw that the message was from our friend Dona in Texas.  My first thought was that maybe she and her husband Steve were coming up our way and wanted to stop in for a visit.  But I gasped when I read her text.  Then I read it again to be sure that I had understood it correctly while hurrying downstairs to tell Gary the news. 

“Please pray,” Dona texted.  “Steve has had a major stroke and is being airlifted to a hospital in Dallas.” 

How could this possibly be happening?  Steve is our age, healthy and very active.  He had recently completed his Master’s; taught in the aviation department at LeTourneau University; and was a Colonel in the Texas Civil Air Patrol. 

All that day, Gary and I prayed as we waited for more news.  And my mind went back over the years of our friendship.  Dona and I went to college together at Piedmont Bible College, where Gary later joined our ranks as a student and Steve came as an aviation instructor at the Missionary Aviation Institute there.  Steve and Dona fell in love at the same time that Gary and I were doing the same.  And on May 26, 1979, Gary and I were married……and so were Steve and Dona.  We even married at exactly the same time in the evening, though in different towns.

Our friendship grew during the time that Gary completed college, Steve continued to instruct missionary pilots, and Dona and I worked.  Life was simple and sweet.  One day Steve told Gary that he wanted to teach missionary pilots how to fly helicopters, but one thing needed to happen first……..Steve needed to learn how to fly them.  Steve decided to try to join the army, learn to fly the choppers, and then go back to training missionary pilots when his time was up.  Gary had been in the army during Vietnam, so Steve asked Gary to go with him to the recruiter’s office in order to keep an ear out for anything that wasn’t quite kosher. 

Gary and Steve went to several appointments together.  Some people would say as luck would have it, but the four of us knew that it was as the Lord would have it that Steve did not go into the military, but Gary did.  Steve and Dona ended up living in Tennessee, where Steve was an air traffic controller.  Gary and I lived in six different places during his time as a military pilot. 

Steve and Dona remained dear friends over those years.  We visited each other when we could, with Steve and Dona coming to see us at several places where we lived, including here in Wichita.  They moved to Texas several years ago, and Steve remained active in aviation both as an ATC instructor at LeTourneau University, and as a commander and pilot in the Civil Air Patrol. 

Then came December 13.  It was a cold, rainy Sunday in Texas.  Dona had stayed home from church with a cold.  And Steve was found after church, lying beside his vehicle in the rain, mostly unresponsive.  A major stroke.  Airlifted to Dallas, where he spent weeks in the hospital and in a rehab hospital.  Home now, facing continued extensive rehab.  God has been so gracious to Steve.  Much of his function has returned, though he is still profoundly affected by the stroke. 

His life has dramatically changed, as has Dona’s, in ways that most of us never consider until we are faced with the reality of something like this……something completely life changing.  Dona writes about their life and about their Lord, and sends it out as emails.  She’s written these devotional and inspirational pieces for years.  What a treasure they are!  And especially now, as she has allowed us to walk with her as she walks with Steve on this path full of twists and turns.  She and Steve have always been examples to us of steadfast faith, but never more so than now, when their faith has been tested as never before.

In November of last year, Steve and Dona sent Aaron a birthday card.  There at the bottom was their signature.  Steve signed his name.  Dona signed her name.  That’s how they always did it.

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Then in April another card came from Steve and Dona.  My dear friend, Atha, had died and I was still reeling from her unexpected death.  Dona knew how my heart was hurting, so she pushed aside her own pain and she sat down to write some very encouraging words to me and Gary.  And then as she ended her note, there it was.  The signatures.  Steve…..and Dona.  But look at Steve’s, written with his left hand when he is right handed……and written after having to learn how to write again. 

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I burst into tears when I saw it.  Dona’s words were uplifting and so sweet, but Steve’s signature is what really got me, because it showed volumes to me of where Steve was now.  What a difference from November to April!  What life changes he is having to adjust to! 

And so is Dona, who is with him every step of the way.  How her life has changed!  Steve walked out the door that Sunday morning, and their world as they knew it collapsed.  But I know they don’t really think of it that way.  They see God’s hand in it all……they trust Him completely……and they are putting into practice the rock solid faith that they have cultivated in our loving God all these years.  But it’s still hard.  It’s not without frustrations and fears and tears.

Back on May 26, 1979, Steve and Dona promised to be faithful to each other, too….for better or worse, richer or poorer, and in sickness or health.  So did Gary and I.  Steve and Dona’s promise has been put to the test, and they are passing…..with God’s grace…..with flying colors. 

Gary and I are very, very thankful that we have another year to celebrate our joint wedding anniversaries.  We are very, very thankful for the enduring friendship that we have shared with these dear friends.  We are very, very thankful for their example to us of steadfast love in the life changing hard times. 

And I’m very, very thankful for Steve’s signature that is so telling on many levels.  It tells of sadness, of strength, of progress, and of grace. 

Which means that Steve and Dona’s life really has God’s signature all over it. 

Happy Number 37, Steve and Dona!  Here’s to many more!

 

This Is My Friend

Years ago a visiting couple walked into a local church here in Wichita, sliding into a pew near the back. Having a long history of working with special needs, the husband was amused to see a young man sitting in front of them with his grandmother……a young man with special needs.

“They follow us everywhere,” Scott whispered to his wife, Atha. They chuckled, and after the service Atha struck up a conversation with this grandmother. Of course she did. That was classic Atha, friendly and warm. And this grandmother couldn’t wait to find me.

“Patty!” she said. “I met a couple who were visiting here for the first time. They have a background of ministry with special needs. I’ve got to introduce you!!”

So at the first opportunity, she did just that. Atha and I talked and talked the first Sunday that we met, making plans to get together soon for a coke and more conversation. We met at Spangles one afternoon soon after, and as they say……the rest is history. We clicked. We understood one another. We were on our way to a great friendship.

Over the next couple years, Atha achieved her life’s dream of being awarded her PhD. I was so proud of her, though I had gotten in on the action late in her life and late in her dream. It was only as the years went by that I learned more and more of the sacrifice and grit that went into Atha achieving this goal. She had put this part of her life on hold as she mothered their three children, but all along she was very active in the world of teaching special needs and writing Sunday School curriculum for special needs for the Southern Baptist Sunday School Board. She taught students; she taught teachers; and she taught me.

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Atha taught me lots about special needs as we worked together trying to establish that ministry in our church. She taught me lots about how to teach students with special needs. She taught me lots about my own son, Aaron, although she was always quick to point out that I was the expert when it came to Aaron.

But what Atha taught me the most was what it was like to have a friend who loved unconditionally…….who stuck with me through good and bad…….who was there for me no matter how busy and complicated her own life was.

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Her phone calls were regular and so welcomed, no matter what all she had on her to-do list. Our lunch dates were refreshing to me on so many levels. And every June we made sure that on our schedules we placed a very important lunch date……one at which we celebrated our birthdays. Atha’s birthday was June 15 and mine was June 18, so we would try to celebrate close to both of those dates. I would pay for Atha’s lunch, and Atha would pay for my lunch, and we would laugh and laugh.

 

Atha took my family as her own. Not only did she take Gary and our children into her heart, as did Scott, but she also grew to love our extended families. It didn’t matter that they were clear across the country in the mountains of West Virginia and North Carolina. She grew to know and love each one as if she had been a part of their lives forever.

Atha loved human beings and the stories that each person carried. She loved telling stories….she loved hearing my stories…..and she loved all the stories of the hundreds of people that she took the time to know and care for over the years.

A favorite quote from Atha tells so much about her: “Successful leadership begins with how you treat others. I challenge you to find time to be kind today.”

Atha definitely followed her own advice. No matter how busy she was as she worked to start her ADHD coaching business; taught college courses in multiple places; conducted seminars for teachers; and so many other activities……she still had time for those phone calls and visits. Time to keep in touch with me, to love me, and to be there for me no matter what. To teach me one of her most unforgettable lessons – to be established in my purpose.  https://hesaidwhatks.wordpress.com/2016/03/09/my-purpose-2/

Atha and I started going to different churches three years ago. We truly missed each other on Sundays. But I would often get a text from Atha on Sunday. “Are you worshipping?” she would ask. Or after church, she would ask what songs we sang. She and I would compare songs, and talk about what they had meant to us. Sometimes she would even text during her worship service to say, “We are singing Great is Thy Faithfulness!” That was our favorite song, one which encouraged each of us so much. We would talk about the sermons we had heard, and Atha would ask what I had learned. Ever the teacher. Ever concerned.

Atha began having some significant health issues last fall. On Dec. 26, I got a text from her son, Kyle, telling me that they were taking Atha to the ER. The day was very grey, cold, and icy…..just like my heart felt as I worried about her all that day. It was discovered that in addition to some other issues that had plagued Atha’s body, she had also recently suffered a stroke. I was shocked when I first saw her in the hospital. How sick and tired and old she looked!

On one of my visits to the hospital to see her, two CNAs came in the room to clean her. I sat behind the curtain as they worked. Soon, in typical Atha fashion, she looked at the young man and said, “Young man, what do you want to do with the rest of your life?” He stammered around for an answer, not expecting such a question from this little sick woman. I just smiled. He didn’t know my Atha. She then proceeded to instruct him on setting goals and achieving them. I bet he never forgets her.

Weeks went by, with Atha sometimes rebounding and giving hope that she would recover, only to be followed by a downward turn. She would fluctuate between rehab centers and the hospital. On some of my visits with her, she would talk in her special way….slowly and with difficulty, but still like her old self.

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“What do you know today, Patty?” she would ask. She didn’t want to talk about herself, but I felt guilty talking about me and my family and my issues, so small compared to hers. But that was Atha, always concerned for me above all of her own cares.

One day in the rehab center, she was very vacant. I was worried. I couldn’t get her to engage in conversation and she seemed far away. A therapist came over to her and asked Atha to tell her who I was. Atha looked up, brightened, and said, “This is my friend, Patty Moore.” Just like she always used to do.

On Monday, March 21, I sat by Atha’s bed at the hospital. She wasn’t doing well at all, but we still hoped for a full recovery. She kept her eyes closed, but she often did that. She didn’t talk. I opened my little Bible and held it up close as I read her some Psalms. Every little bit Atha would quietly say, “Amen.” That was all. Then she asked me to pray for Jesus to heal her, so I did. And before I left, I told her I loved her, my friend. And she said she loved me, too.

On Thursday, Sarah got the call about end of life issues and hospice. No one could believe it was happening. I spent part of that evening with them at the hospital. Before I left, I leaned down to my mostly unresponsive Atha. I said some things to her, and then I told her that she would always be my dear friend. Very softly, she spoke to me. One word.

“Friend,” she said.

Atha was moved to hospice late that night. I saw her on Friday and on Saturday, where a little twitch of her mouth was the only response she gave me. On Easter morning, a gloriously beautiful morning with a soft snow and bright sunlight, Atha went to heaven. How significant that her home going was on Easter! Atha always knew how to do things right.

This morning, a couple walked into a local church here in Wichita and slipped into a pew near the back. They were dreading this day. He put his arm around her as she fought the tears that were forming. Gary and I were here for Atha and for Scott, like they had always been present for us. But I just never dreamed it would be in this way. Never in a million years.

Many people were in that church this morning to honor Atha. As part of the service, people were given time to tell their stories of Atha…..of how they knew her…..of what she meant to them…..of how she had impacted their lives. She would have loved the stories, even though they were about her. She did love hearing and telling stories, after all. It was wonderful to hear just a small sample of how she had blessed and helped so many.

I’ll always treasure the many Atha stories I have tucked away in my memory and in my heart. Too many to tell here, that’s for sure. But suffice it to say that the best thing that Atha could ever have said to me is the last thing she ever said to me.

Friend.

And with that, I am beyond blessed.

This is my friend, Atha McNay.

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Pictures of Kindness

Aaron has a kind side to him that we love to see. He’s always liked to share things that he has, including money, which we discourage. Lately I’ve been sending him to his day group with baggies of baby carrot sticks, pepper strips, gum, or something else along that line. He then will sit with his friends and share his food, hopefully satisfying his sharing urge without also giving away his money.

Aaron was so sweet over the weekend here at home. He knew that my friend, Atha, was not expected to live long. He was concerned about that, more than we usually see over those things. He asked about it several times. Then after I returned from the hospital and we watched Wheel of Fortune on Saturday, he held his hand out to me on the couch and said, “Here!” I held out my hand, not showing him my reluctance, and he dropped two very sticky jelly beans onto my palm. Therein lay my reluctance……sticky, germy, well-handled jelly beans. But I didn’t think too long…..didn’t give myself time to chicken out. I just thrust that candy in my mouth and thanked him broadly. Gulp!!

Later he sincerely wanted to give me even more jelly beans, so he got out a bowl…..of course!…..and poured a few of his prized jelly beans in the huge bowl, handing it to me proudly. Such kindness once again! And at least this time the candy wasn’t man handled first, but came straight out of the bag. Relief!

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As I watched basketball soon after the jelly bean gift, Aaron came downstairs with his favorite soft blanket. He proceeded to offer it to me, and once again I didn’t refuse. I just sat still while he placed the blanket over my legs, pulling it just so and making sure that my feet were covered. Sweetness!

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Last night, again while I watched basketball, he gave Gary and I each a piece of his favorite Big Red gum.  He knew that Atha had gone to heaven that morning.  He had seen me earlier, with tears on my face, and instead of calling me a cry baby like he usually does in his discomfort with emotion, he instead gave me a piece of gum. Empathy…….rarely seen!

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This morning Aaron wasn’t too happy about going to his day group. Sometimes Mondays are that way for him, just like they are for many when it comes to ending a fun weekend. I was afraid of a real meltdown this morning when I heard Aaron’s back scratcher go sailing up the hall floor. Aaron had thrown it. Oh dear, I thought.

A little talk and a little time helped. I cleaned his glasses like usual as I listened to him complain one more time, but not as energetically as before. And once I told him that we could take Jackson with us, all doubt was gone. Happy Aaron was ready to go!

Once at Paradigm, Aaron ran inside while I got Jackson ready to be swamped by Aaron’s friends. His collar and leash in place, Jackson hopped out of the van and enjoyed all the petting and exclamations that usually happen when he’s being adored. But Aaron wasn’t totally happy until he made sure that his very special friend was able to be wheeled out in her chair. “S” was all smiles and even talked to me about big old Jackson as I made sure that Jackson was right where she could see and touch him.

Soon we were back in the van, Jackson and I, and Aaron’s group began walking the few blocks to the nearest Quik Trip. I looked as I drove away and what I saw warmed my heart, so I snuck into a parking lot and waited for the group to pass by. This first picture shows the main group.

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Look who came at the end. Sorry for the poor quality of these pictures.

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There was Aaron, walking with “S” and one of his favorite staff, Antoine. Aaron just loves “S” and another girl at his day group, both in wheel chairs. This act of kindness, Aaron walking slower so that he could stay with “S”, just made me very thankful and happy for the kind heart that Aaron really does have.

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Kindness. I just can’t say enough about the importance of that quality in any of us, but especially in big old blustery Aaron, who at times seldom shows concern for anyone other than himself. Emotion and thinking of others is a characteristic that hasn’t usually come easily to Aaron over the years. Expressing those traits is hard for one with autism.

God was good to give me these evidences of Aaron’s heart this past weekend. He was good to allow me to see Aaron, unaware of my presence, showing such kindness to his special friend.

We never know what a day with Aaron will hold. Kindness TO Aaron certainly helps make situations smoother.

Kindness FROM Aaron…..priceless!!

Simple is Good

I can hear our Kansas wind outside blowing like crazy. We’ve had several days in a row of very strong winds, typical for flat Kansas. I can also walk by a mirror and see that I’ve been out in the wind as I look at my fly-away hair!! The winds remind me of living with Aaron in many ways. He’s like shifting winds most days. We never know what we’ll wake up to find with Aaron as far as his mood or his physical state or his general attitude.

Lately, though, he’s been mostly very happy. I wrote about that a couple blogs ago. It’s been fun for us to experience, and definitely a relief for the staff at his day group, I’m sure.

But I should have known that on the very next day after posting my happy blog, Aaron woke up in a mostly grouchy mood. Why does that happen? Anyway, he kept coming into the bathroom where I was putting on my makeup, fixing my hair, and doing all my getting ready things that morning.

“Mom, can you hurry?” he impatiently asked.

“Mom, why are you taking so long?”

“Mom, did you clean my glasses?”

“Mom, why aren’t you ready?”

I know that when he’s like this it’s better to mostly ignore him instead of returning his impatience, so that’s what I did. But not before I made one observation.

“Aaron,” I said. “You were so happy yesterday. So why are you angry this morning? What happened during the night?”

He just stood there and stared at me. I continued with my face preparation as he stared. Then he simply turned and walked out of the bathroom.

Soon he was back, of course.

“Well, All Star is boring!” he informed me. “I found that out during the night.”

It was really hard not to laugh. So that’s what he found out during the night? That All Star Sports, their activity for that day, was boring? Since when?!

Aaron went on to his day group and he had a reasonable day, from what I was told. I went in to his day group with him to talk to Barb about whether Aaron and I could take supper over to one of their residential homes on Friday. Aaron’s best friends, all girls, live there and he had been wanting to go back there again as we have done in the past. It cheered him up to have that planned at last. This was on Wednesday.

The next night, Thursday, Aaron had two hard seizures during the night. He stayed home on Friday, feeling crummy, but wondering over and over if we could still go to “Shawna’s house,” as he calls it. He insisted on going to get a few groceries with me, walking like a zombie through the store. He slept off and on during the day, but had no more seizures. We did take chicken enchiladas and No Bake Cookies to his friend’s house. I was so thankful that it worked out for Aaron to do that. He slept all the way there and most of the way home, but he had a good time at their house as we sat around the table, eating and talking. The girls had missed him that day at Paradigm, and they were so sweet…..rubbing his back and asking him how he felt. Each of them has significant special needs, so it’s just very touching to see them worry about Aaron.

Aaron was in bed a little after 8:00 that night, totally exhausted. But he kept coming back downstairs to be sure that it was OK for him to go to bed so early. It was fine with us, but not so much for Aaron and his rigid schedule. Bedtime is 10:00 or later!! Not 8:00!! But he slept for 12 hours and woke up a new person.

A very new person!!

Look at what Aaron did with Gary and I on Saturday.

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Aaron, who resists most work…..and definitely yard or garden work….actually got outside with us and helped!!

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And he helped happily!!

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He gathered up the big Crepe Myrtle limbs that I pruned, and he pulled up old tomato stakes with Gary in our garden.

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And Jackson supervised all of us.

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It was a really a pleasant afternoon, and a surprising one for us as we watched Aaron willingly help.

Simple pleasures mean the most to us. The warm sunshine, the fresh air, trying to find the pecking woodpecker we heard, laughing at Jackson encounter our neighbor’s trying-to-be-brave cat, and ending the day with a simple supper…..Wheel of Fortune and Blue Bloods…..and a couple games of Skip-Bo.

The older we get, the more we know that simple is good. Simple is better for Aaron. And the things that make him happiest inevitably do the same for us as well.

Happy, Giving Aaron!

I wanted to write a quick blog tonight in order to test my new blog site. I have switched to WordPress now for blogging since I was having so much trouble with Blogspot. Gary couldn’t fix the problems, and if he can’t fix them they can’t be fixed.  That’s a mouthful, but it’s true. Anyway, more about all that in another blog. I just want to test my new site tonight. Bear with me as I work out the kinks. Who am I kidding?! Bear with me as Gary works out the kinks and I sit beside him wringing my hands. 🙂

I have to say something about Aaron, though, right? He has been so happy lately!! I’m almost afraid to say it! He’s just thriving in his friendships at Paradigm, his day group, and is enjoying doing what he loves to do the most…..giving. Here are some things he has recently taken from home, on three different days, to give to his friends.

His whale:

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His fluffy dog:

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His other stuffed dog:

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And today, along with the above dog, he took gum and green pepper slices that he shared. If he keeps up this giving, his room will be all clean!

He was also very happy that today was Shawna’s birthday, so with Barb’s help he made her a card at Paradigm and then signed it. That made him feel so good!

Today he also wore the necklace pen that Stephanie made for him last week. He loves it!

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If you want to have your day brightened, come with me sometime when I go to pick Aaron up from Paradigm at the end of the day. Today I just sat in the van watching the “kids” – who are really young adults – get in their various vans and cars as they left for the day. Many go to group homes and so ride together. In some ways, it’s heart breaking to see the van with wheelchair accommodations lifting some of Aaron’s friends up in the van for their ride home. It could also be sad to see the various special needs of the clients as they spill out of the building and mill around in the parking lot.

But if you get beyond that, you will see big smiles…..hear laughter…..and see friendships all over the place. Finally, out the door bounded Aaron. There was Yolanda coming behind him, holding her dog leash. I soon saw that the other end of the leash was around Aaron’s wrist and he was laughing up a storm. He came to the van with Yolanda following and holding the leash, opened the door, and just burst out laughing. Yolanda was laughing, too. She’s much older than Aaron but she had youthful delight on her face. Yolanda doesn’t hear, so in her difficult-to-understand speech she told Aaron goodbye and that she would see him tomorrow. He said, “OK!” and that was it. But he was, once again, so happy. It truly warmed my heart.

I remember when Aaron first went to a special needs school here in Wichita. After a few days there, he came home and said, “Mom? I notice something about that school. All the kids there have problems. What’s my problem?”

I didn’t know what to say as I tried to swallow the lump in my throat. But then I told him that he didn’t have problems. Yes, he had Epilepsy and Autism, I told him. But he didn’t have problems. He and all his friends were wonderful in their own right.

So that’s what I told myself today as I watched these amazing young adults with their limps and their unique looks and their wheelchairs and their……specialness! There are issues and there are concerns and there are so many things to think about with each one.

But each one is special and valuable. The problems they face put me to shame, but they live daily with their challenges.

I can learn a lot from them. I can learn a lot from Aaron.

As we drove away, Aaron started talking. Of course. And I listened, wondering what new thing he was about to teach me today.

A Winning Moment

Aaron has had a mostly good week, which means that there were ups and downs as always.  His recent staph infection returned, so I took him to the doctor on Monday.  Now he’s on another round of antibiotics, which isn’t what we like but it’s what he must do.  Tuesday was a very happy day, but Wednesday was not a good day at his day group.  Barb called me, put the phone on speaker, and I could definitely hear the frustration in Aaron’s voice.  We all wish we knew what leads him, in his mind, to the point of no return where he simply reacts without thought of the consequences. 

He was exhausted that night, so on Thursday morning I just let him sleep.  He slept for almost twelve hours, waking up too late for me to get him to Paradigm and also make it to an appointment that morning that I had.  So later that day we enjoyed some down time together.  I took him to Great Clips for a haircut, which you know he loves, and to Dillons for another favorite….a Cheddar Pasta Salad for lunch.  We took Jackson for a walk in the beautiful warm weather, too. 

Of course Aaron found the new chairs at Dillons and had to try one out!
Aaron was in a reflective mood on Thursday, which he often is after a rough day.  He was in a giving mood as well, wanting to buy some items at the store for his friends.  I try to steer him to smaller things, like pieces of gum, instead of large items. 

“Mom?” he asked.  “Natalie bought me a gift when my birthday came out.  Can I buy her a gift when her birthday comes out?”

Can you tell how often he talks about the date that a movie is coming out?  J

As we talked later that day, Aaron told me that he wanted to write a note to three of his friends who were very good to him when he was so angry the day before.  He’s never wanted to write a note for such an occasion that I can remember.  I think he had this idea because he had just written two thank you notes for some Christmas gifts. 

I gave him some note cards that I had and he proceeded to write his notes of thanks.  They were short and sweet, which is all that Aaron sees as being necessary.  It’s the sweet part that I love, and the fact that he thought of this all on his own was extra special. 

Don’t you love how he signs his name?  Years ago when we told him to sign his name on a note, he did just that. 

Signed, Aaron.

Except look at the way he spells “signed.”  He combines the word “sigh” and “sign.”  I think that’s pretty awesome.

He took the cards with him the next morning, slipping them under his jacket as he got out of the van at Paradigm.  I could tell he might be embarrassed about them.  Sure enough, when I asked him after he got home if he gave the girls his notes, he looked sheepish.  Apparently, he chickened out and left the notes on Barb’s desk.  I don’t know if he’ll get the nerve to give the notes to them or not.  I’ll gently encourage him to do that over the weekend, but I don’t know if he will.

Some victories with Aaron are partial, or come in pieces that are spread apart.  But a victory is a victory.  To see Aaron showing thankfulness and then expressing it in writing, on his own, is a huge victory.  The winning moment may not come in the actual giving of the cards, at least not this time. 

It’s his written heart that warmed mine.

And I’ll take it.

Getting Aaron

I ran into Great Clips this morning, taking Aaron for another haircut, shave, and beard trim, and who greeted us but Erin!  Erin has worked there for quite awhile.  Erin loves Aaron, if you follow me.  She’s a mom, and just a very sweet person who genuinely loves seeing our Aaron.  So it’s always nice when Erin cuts Aaron’s hair! 

Erin is one of these people who just gets Aaron.  She was genuinely happy to see Aaron as we walked through the door.  She talks to him while she cuts his hair, asking him questions and interacting so well with him.  I just love having people like that in Aaron’s life.

 
I can tell very quickly if someone gets Aaron or not.  You don’t have to totally understand Aaron to get him.  Is this making sense?  There are just some people who from the first moment they encounter Aaron, are relaxed and accepting of him.  And there are others who look at Aaron like he has an alien head or something…..although Aaron would think that having an alien head is pretty cool. 

For instance, Friday evening Aaron and I went to Little Caesar’s for pizza.  The line at the take-out window was long, so I decided that Aaron and I would go inside to grab our pizzas.  As I parked, I gave Aaron the usual directions…..wait for me, don’t barge in the door, if there’s a line then don’t push ahead, please don’t clap, and please talk SOFTLY!!  Of course, I was trailing behind him as I finished my instructions and he was barging in the door.  Oh well.

Thankfully, there was no line, so Aaron had free rein to walk up to the counter, lean way over and loudly say, “Can I have some breadsticks??!!”  I was tugging Aaron back while reminding him to talk softly and also reminding him that I already told him he could have breadsticks…..when I turned and saw the cashier’s face.  She was staring a hole through Aaron while she wore totally no expression on her face.  There was no emotion at all from her.  She looked at Aaron like he was perhaps an alien, but a very boring alien.  Like she was thinking, “Who are you and why are you in my store?”   

Aaron was very excited and happy, totally oblivious to this girl’s cold stare.  He continued to interrupt as he loudly asked if we could get TWO pizzas as well as breadsticks.  Her eyes went from me back to Aaron, with her impersonal cold stare once again.  At times like that, I’m very thankful that Aaron doesn’t get social cues.  This girl didn’t get Aaron, but Aaron didn’t get that she didn’t get him, so in that respect all was well. 

But all was not well in my spirit.  I wanted to give her nose a little pinch and then deliver a lecture, but of course I didn’t.  And I know that maybe she was having a bad day.  Yet really, deep down, I just know that some people get Aaron and some people don’t.

Tuesday for lunch, Aaron and I met his case manager at Applebee’s for his yearly PCSP meeting.  Barb, from Paradigm, was there as well.  Aaron is as comfortable with Barb as he is with me, so she understood Aaron’s whacks on her arm, his too tight squeeze of her hand, and how he helped himself to some of the chicken on her salad.  It was our server, though, whom I especially noticed.  She made eye contact with Aaron, smiled at him, listened to him, and was genuinely relaxed with him.  I even looked at Barb and whispered, “She gets Aaron.”  And Barb knew just what I meant. 

When someone understands Aaron, it’s as obvious as the nose on their face….like that little girl’s nose that I wanted to pinch.  J  But it’s very obvious to me when a person understands Aaron, and even accepts him just as he is.  Sometimes being in public with Aaron is embarrassing, honestly.  He’s large, and loud, and totally blind to the effect he has on others by being “out there” with some of his behaviors.  He might point at someone because of their hair or whatever.  He might turn around in the restaurant booth to see what the people behind him are eating or saying.  He might stop to stare at their plates as we walk out of the restaurant.  And if he goes to the bathroom by himself during our meal, it’s very interesting to watch people’s faces as he walks by, his head high and arms swinging, often making funny noises with his mouth.

So when someone gets Aaron, I find myself relaxing some.  It’s as if I don’t feel the need to explain, which I usually don’t do anyway.  I shouldn’t have to explain Aaron.  He is who he is, in all his boldness and uniqueness.  But I’m human and I feel my face getting red when Aaron does something a little crazy that draws attention to us.  It’s nice to see others understand him even if they don’t really understand…..to accept him…..and especially to enjoy him. 

Having Aaron in my life has taught me to try hard to show understanding to other families I see who are probably uncomfortable in public.  I remember when Gary and I ate dinner at a local restaurant with some friends.  Our table was near a mom and dad who were eating dinner with their special needs son.  I noticed their son immediately.  He was stimming in his unique way, and I just knew what they were feeling.  I could see it on their faces, especially the dad.  So I finally made eye contact with the mother, and I smiled at her.  I pointed to myself and shook my head yes.  She was a little confused, so I just stood up and walked over to their table.  I spoke to her and her husband, and told them who I was…..and that I had a son much like their wonderful son.  They both visibly softened and relaxed.  They were so happy that I understood and that I spoke to their adult son, and that I got it.  That’s what meant the most to them….the fact that I got their son. 

So when you’re out and about, and you see an Aaron…..or most likely, when you HEAR an Aaron…..just smile at the parents with genuine love.  Even when their Aaron might pull one of the lower boxes of cereal out of the huge cereal box display….and mom stands there with fallen cereal boxes all over the aisle….smile and maybe even offer to help pick them up.  Yes, that happened to me.  And the help of a sweet teenaged boy was such a blessing that day!

There are special people all around us who need us to get them.  There are families of special ones who will feel a huge weight lifted off their hearts if you are that person in their lives. 

I get it!  You can, too.

Aaron’s Notes

I saw this on Gary’s desk the other day.

 

This note was written by Aaron, and it made me smile.  He was obviously in a happy mood that day, particularly toward Gary, and so he expressed it as he often does with a little note.  Aaron’s not being disrespectful in calling his dad by his first name.  I mean, Gary is Gary’s name, right?  Aaron knows that we try to get him to call others by their first names instead of saying, “Hey, you!”  Or just saying, “Hey!”…..and then pointing, as he did often during our recent trip to see family.  So on this day of note making, Dad was Gary….and we smile at that.

Aaron keeps copious lists of many areas of his life.  He writes down the chapter that he just finished when he stops watching a movie.  He writes down his computer game notes and stopping points.  He keeps this list of his going to bed and getting up in the morning times:

 

And this list of our Skip-Bo wins:

 

Aaron also loves his Post-It notes.  He leaves various messages in various places, like the one that he left on Gary’s desk.  Some of his messages are not so nice, though.  Like this one a couple years ago that he left on his door during a very grouchy morning.  I got that message loud and clear……and I’ll admit that I thought it was pretty funny, although I didn’t share that sentiment with Aaron.

 

He sometimes leaves me reminder notes.

 

He has left sweet notes, and sometimes not so sweet notes, to the various staff at his day group.  Here is one that Barb sent me, a note that Aaron wrote on her desk calendar.

 

But by far my favorite note is this one that he left on my desk quite awhile ago, and that I still keep there.

 

I like looking at it on bad days, especially.  It always makes me smile.

I love you, too, Aaron……sweat and all. 

Tired of Love?

Some of you have been asking about how Aaron is doing.  We don’t really know how his sodium levels are holding right now.  We need to have more blood work done to find that out.  He’s drinking less water than he used to drink, but probably still more than the doctor would want him to have.  We’re just doing the best we can do there.  Let’s just say that he does NOT take kindly to having his fluids restricted.  Some days and moments are harder than others.  Much of it depends on his mood.  Much of everything depends on his mood, actually.

One day his friend at Paradigm gave Aaron some food.  I was a little leery of this idea, so I told Aaron that he probably shouldn’t be eating food offered to him like that. 

“You’re saying I can’t have WATER, and now you’re saying I can’t have – like – FOOD?!” he exclaimed.

He lives a tough life, let me tell you.  A very tough life.

Aaron loves listening to CDs when we drive to his day group, unless he’s having a grouchy day.  Then he punishes me by saying he doesn’t want to listen to any music.  Anyway, we had listened to an instrumental CD and I guess it wasn’t his favorite.  The next day he said, “Will you get a CD where they’re singing in WORDS?”  Ok, ok.  So we I picked out an Olivia Newton John CD, one where she’s singing her old songs.  Aaron listened quietly.

Finally he said, “Mom, I noticed something.  She just sings about love.”

“Is that OK?” I asked.

“Well, it’s weird,” he answered.  “Music companies today don’t just sing about love.”

He’s right about that.

The next day we turned on the same CD, and it began where we had turned it off the day before.  Again, Aaron listened quietly for a couple minutes.  Then he flatly said, “I’m getting tired of love.”

I did laugh out loud at that one.  Come on, Aaron.  We never get tired of love! 

So to finish this, I’ll just show you some pictures of Aaron and of how he loves, and IS loved, every day.  And of how he’s funny, too!

He found a turtle down in the grass in our back yard, so Gary helped him turn it loose in the lake behind our house.  Aaron was so happy with that turtle and didn’t want to give him up, but he was happy to know that the turtle was very happy to finally go to his home. 

 

We went to see The Minions with Rosa and her mom, Louise.  Rosa asked her mom if she could go to a movie with Aaron, which was so sweet.  And the loudest I heard Rosa laugh was when they were walking out through the lobby and Rosa took a drink of her Diet Coke.  Aaron loudly said, “Is that BEER??!!”  And they laughed and laughed, while Aaron rubbed his hands together. 
 

 

Aaron went with me to get dog food at the vet.  Aaron loves getting to see the resident cat, Kato.  Patient, patient Kato. 

 

Aaron has offered to help me clean garden veggies several times.

 

And he thinks it’s so funny to always do this at least once when he eats a peach.

 

I think it’s funny that he often wears his socks with the heel part on top, no matter how many times I tell him that the gray part belongs on his heel.  He totally doesn’t care.

 

He does care about testing plants when we go into different buildings.  He showed me this piece of a leaf after we left the doctor’s office.  He now knows that his test proved that the plant is real.  Sigh.

 

We have eaten out several times on doctor visit days, which is really why Aaron goes with me on doctor visit days.  He doesn’t care at all about seeing the doctor.  It’s his restaurant of choice that fills his thoughts. 

Aaron thought it was funny to be in a huge booth, far apart.
 

One of his friends gave him a Krispie Kreme hat, so Aaron proudly wore it for a short time.  Hats are not his favorite.  Neither are donuts.  Can you believe that?

 

Life with Aaron is never dull.  And he’s always loved, even when he’s tired of love.  

And when he’s not always easy to love.  That happens, too.  I have a picture of his broken watch, but that will be for another time.

Today we sing about love.

 

 

 

Unto The Least: A Man Named Richard

 

I remember him so well.  Richard……….nondescript, uneducated, stinky, and often unwelcome Richard.  Our paths crossed because Richard attended the same church where I grew up and where I worshipped.  Our paths also crossed because God ordained it to be so.  God ordained it to be so………so that I would learn a lesson.   It was a lesson best taught by the method that God loves to use – the weak things of the world confounding the mighty. 

 

Richard was a very short little man.  I often think that he was our version of Zaccheaus there in Princeton, West Virginia where I was raised.  Richard didn’t have much education and he was also very simple minded.  Today I’m sure he would be classified as being developmentally delayed, at the very least.  Yet he had served our country in World War 2, returning to Princeton when his time was up.  I remember hearing the story of how Richard wanted to help build the parsonage for our pastor at Johnston Chapel Baptist Church.  The men decided that Richard could dig the sidewalk, and so they used twine and little posts to outline the walkway that Richard should dig.  As Richard dug, his shovel cut the twine and it veered off to the side……..and Richard continued to follow the twine with his digging.  I’m not sure if the men let Richard dig anymore after that or if they found another safer job for him to do. 

 

I remember Mom and Dad loading us five kids into the old station wagon and then leaving for church.  We never missed a service unless we had a fever or were throwing up, or maybe if blood was involved.  This was in the day of services every Sunday morning, Sunday night, Wednesday night, and anything in between.  This was also in the day of revival services that lasted at least a week, and sometimes longer if the Spirit led.  There were mission conferences, too, as well as other special services thrown in here and there.  The Kings did not miss church.  If Dad was working, then Mom loaded the station wagon and off we went. 

 

I loved going to church, but I always dreaded that drive up Thorn Street because often we would see him………..Richard, standing on one of the corners of Thorn Street, not far from his house.  Richard, standing there waiting for a ride to church from one of the church members that he knew would drive by in our little town and see him, and offer him that ride.  Richard, whom I was sure never, ever, ever took a bath.   The smell was just awful!  We kids would strain our necks to look ahead to see if he was still standing there, hoping against hope that some other family had come by before us and picked Richard up.  If we saw him, we would beg Mom or Dad not to stop for him………..to let someone else have that privilege on this day. 

 

But no……..Mom and Dad would always stop for Richard.  He would hop in our already crowded car and immediately we would be assaulted by that odor.  We girls learned a trick.  We would take a small purse-size container of perfume and try to hide it in our hand as we held it up to our nose.  Or at least have some perfume on our wrists that we could sniff in the hopes of blocking out that smell.  I’m not sure what John did to combat the odor but at that point it was each King for himself.   If no one was able to give Richard a ride, then he would walk to church, regardless of the weather……and that was probably a five mile walk.

 

Richard would talk, talk, talk.  He had a very fast, clipped speech.  I can still hear him make a comment and then say, “Isn’t that right?  Huh?  Isn’t that right?”  Then he would laugh and launch into something else, and ask again if that was right.  If he wasn’t talking, he was making a clicking sound with his tongue, as if he was getting food out from between his teeth.  He probably was, since I also doubted that Richard ever, ever brushed his teeth……….which just added to his unique smell. 

 

At church, Richard would lean up on the pew in front of him and talk to whomever was sitting there.  His eyes would dart between the people as he rapidly talked, and clicked his tongue, and laughed, and said, “Isn’t that right?   Huh?  Isn’t that right?”  The large church helped to spread his odor out some and keep it from being as strong……….unless you were the fortunate ones who were sitting in front of him and with whom he decided to engage in his mostly one-sided conversation.   Needless to say, when I was older and had the opportunity to sit in front of Richard……….I tried to find another seat.

 

Richard, though, was good at math.  I remember how that always surprised me.  On Wednesday nights, four men would count certain sections of church and then give the number to the pastor out loud as they were called upon to do so.  Richard almost always added those numbers faster in his head than Preacher Jimmie could do on paper, and he was usually right.  Amazing indeed!  And also amazing was the fact that Richard loved the Lord in his own simple way and was one of the most faithful church members that I have ever known.    I don’t remember seeing Richard carry a Bible and don’t know if he could read, but he knew his Bible.

 

Time marched on.  We King kids grew up, went to college, married and had our own lives.  Mom and Dad both eventually retired from their jobs.  They continued to be active at Johnston Chapel, enjoying the freedom to spend more time visiting the sick and those who were shut-ins.  Among those that they cared for, none stood out more to me than their continued care of Richard.  He had aged, of course, and time had taken a toll.  Richard was not only feebler, but was also dealing with the ravages of cancer.

 

I know that others helped with Richard, too, but Mom and Dad did a great deal for him in his old age.  They helped him find a better house to move into, and then helped him move his meager belongings.  They were shocked at what they found as they cleaned his house.  Such filth was hard for them to imagine!  And there in his closets and throughout his house were stacks of Christmas presents that church friends had given him over the years, still wrapped and unopened.   Inside were clothes and toiletries that he surely could have used over the years, but when questioned about it Richard said that he didn’t open them because he didn’t need anything.  Mom and Dad bought him clean clothes and new things, but Richard still preferred his old belongings and his old way of living.  Mom would take him home-cooked food and encourage him to eat better than he was.  She and Dad bought him a small refrigerator to keep his food from spoiling, but Richard refused to plug it in because he didn’t want to waste electricity. 

 

Dad helped Richard obtain his VA benefits, and then made sure that Richard started going to the proper doctors at the VA hospital.  He took Richard for many of his doctor appointments.  This was no easy task in many ways, but none more so than just the pure embarrassment of being in a public waiting room and doctor’s office with poor smelly Richard.  Mom and Dad tried countless times to teach Richard and to urge Richard to use better hygiene, but I don’t know that Richard ever took it to heart.  Dad would explain things to the doctor, but the people around them that they encountered must have wondered about Richard and about Dad.  Eventually Richard’s cancer became more complicated than what the local VA hospital could handle, so Dad took him to the nearest major VA hospital………..in Richmond……….a six hour trip one way.  Twelve hours confined in a car with Richard, as well as the time at the doctor appointments.  The smell……..the constant talking……….the clicking tongue.   Yet Dad just smiled and did what he knew that God would want him to do………..to take care of this little unwanted and unwelcome man. 

 

When Dad tried to see if Richard qualified for any other assistance such as Medicaid, it was discovered that Richard had money.  In fact, he had too much money to qualify for any government help.  Richard never offered to give Mom and Dad, or anyone else, any money for the things they did for him.  They wouldn’t have taken the money anyway.   That was not the motive.  A brother that no one knew about showed up at Richard’s death, and Mom and Dad walked quietly away from any further involvement……..but not before they gave Richard one of their burial plots since he didn’t have anywhere to be buried.

 

Mom and Dad didn’t want any public acclaim for what they did for Richard.  They just loved the Lord and they let the Lord’s love fill their hearts and direct their actions.  I know at times their service to Richard was tiring, was frustrating, was annoying, and very thankless.  Yet Mom and Dad, and the others who served Richard, did so because they lived out their faith and they believed Jesus when He said, “When you do it unto the least of these, you do it unto me.” 

 

Dad is with Richard in heaven now.   I sometimes try to imagine it, the two of them together up there.  Both have new bodies and are totally equal physically and mentally.  Did they hug when they saw each other?  Are they ever beside each other as they sing and as they worship?  Richard doesn’t smell anymore and Dad doesn’t have to explain him to anybody, or be embarrassed.  I wonder if Richard still talks fast, and does Dad still smile patiently at him?  I doubt it, but it’s fun to think about. 

 

And we kids are left with not only memories, but more importantly, we are left with a real example of selflessness that my parents demonstrated.  They loved the unlovely in more than word…………they loved also in deed.  I know that each of us has taken this lesson to heart in our own lives in various ways.  But I doubt that anyone could be any more kind and any more patient than my sweet parents were to Richard.

 

I can’t wait to see Richard in heaven!  I’ll give him a hug……….and no perfume bottle needed!