Author: Patty hesaidwhatks

I'm Patty and I write about our adult son who has Epilepsy and Autism, who still lives with my husband and me, and who is a package full of many surprises and joys and challenges and TALK! Lots of talking, which creates laughter and some other reactions as well. I also write about how God shows Himself to me in everyday life.

Hurry and Wait!

I’ve written before about how hard it is for Aaron to wait…for anything!  It doesn’t matter if he’s waiting to go to his day group in the mornings, or to Meals on Wheels on Thursdays, or to go shopping, or to watch a program with me, or to eat a favorite meal I’m fixing…waiting is not his strength.

As an example, one night Aaron didn’t want to go to sleep until I came up to bed so that we could do his nighttime routine.  

“Mom!” he said, “when are you coming to bed?”

“I don’t know,” I replied.  “I need to get done with some things, and it’s still early.”

“Well,” he responded, “when you’re done with doing things and it’s done being early, when will that be?”

Oh Aaron.  

He is not easily deterred.

This past Friday night, Aaron was in a tizzy as he was both excited and anxious that his friend Barb, along with her two daughters and a good friend, were coming to take him out for his birthday lunch.  

He wanted to know what time they were coming and then re-affirmed the time over and over.  He talked about where they would eat, what he would order, who was coming, what time should he get up in the morning, etc., etc., etc.

As I was drifting off to sleep, thinking that maybe, just maybe, I would soon hear his steady SLEEPING breaths on the baby monitor on my nightstand, instead it was:

“So first I’ll take my shower in the morning and then I’ll drink my coffee.  Then will I have time to watch a movie, Mom?”

“Mom?”

“Mom?”

 I sure do get plenty of deep breathing exercises.

The next morning, Aaron did take a shower, and he did drink his coffee, but he did NOT watch much of a movie.  Instead, he followed me around the house and then outside as I did some straightening on the porch and in the yard.

He finally got some of his energy out by rocking on the porch, but he is able to multitask, as in talking about waiting while he rocks.

“I just want Barb to come real quick,” he said.  “But she won’t be able to come real quick, right?”

“That’s right,” I replied.

“She just needs to take time, right?” he added.

“That’s right,” I numbly answered.

It was quite for a hopeful minute.

“Does she know how to get here?” he questioned.

I assured him that she did.

He dug in his pocket for his pocket watch.

“It’s 10:43,” he informed me.  “That means it won’t be long till she’s here, right?”

I wanted to tell him that it would be longer than I wanted it to be, but I didn’t.

More deep breathing exercises.

He finally went to sit under the maple tree and crunch mulch in his trash can.  This helps him relax and unwind.  

You have no idea how tempted I was to join him and see if it might do the same for me!

Ahhhh!  Blissful quiet!    

“Mom!  What’s the car of Barb look like?!”

Dear Aaron!

He was beside himself with excitement when the car of Barb pulled into our driveway.  

And he was every bit as excited when the car of Barb brought him home.  He bounded in the house with lots to tell of what they ate and of shopping and of all the goodies he had been given.

We love that these sweet friends gave Aaron a very happy day.

It truly was worth the wait, and not only for Aaron.  

No Water! No Deal!

Wednesday morning seemed just like any other morning until my husband stepped out onto our back patio and discovered water bubbling up into our back yard and between our bricks on the walkway.  Oh boy!

Gary was able to cut the water off at the meter and line up a plumbing company.  They came, did a lot of looking and some digging and some poking and some figuring.  Then we did some questioning and some signing and some down payment paying…only to be told that they couldn’t get to the job until the following Tuesday.  What?!  

That’s a LONG time without water!

So, we did some calling and some discussing and some cancelling and some finding of new plumbers.  

We also did some filling of large water containers that Gary wisely has had on hand for just such emergencies, turning on the water just long enough to get the job done.

The new plumbers came the next day and got right to work.  They worked late, digging and examining in a trench that starts in our back yard, wraps around the side of our house, and ends near the street in our front yard.

There were bumps along the way, like damaging a sewer line that thankfully was an easy repair but meant no flushing all day Friday.  TMI, I know, but I’m just being real.  And it was getting real bad!  

Location services had to come out more than once to correct mistakes they made in locating the cable and other lines.  That’s comforting, right?

The workers were so nice and a pleasure to have around.  They worked very late Friday night and were able to get our water back on!  You can guess the first thing I did.  Actually, it was the first three things I did…flush our three toilets!!  And clean like a mad woman!

The plumbers were coming back on Saturday to hopefully finish the job, but heavy rains during the night and all day Saturday put a stop to that.  Now the trench is full of water and the continuing rains leave us unsure of when the work will be completed.

But we have water!!  And more importantly, Kansas has gotten some MUCH needed rain.  We are not complaining!

As this all progressed, we were concerned about how Aaron would handle it.  Having no water is a huge deal, and huge deals are often a no-deal to Aaron.  He surprised us, though, with how well he did.  He was intrigued with the digging and getting to see the pipes under the ground.  The workers were so kind to him.  They got a kick out of his excitement.  The supervisor even saved the ruptured piece of pipe to show it to Aaron and explain what had happened.  

But by Friday morning Aaron was close to being done with all the no water business.  I knew we were near a boiling point with him when he told me that he was NOT letting me have any of his Halloween candy like he had promised the night before.  

And to finalize his decision, he added:  “I am NOT making a deal with you, MOM!!”

Imagine my surprise when later he walked in the room and laid this on the desk in front of me.  

He chuckled and rubbed his hands together.  

“We don’t need a deal,” he said.  

“You want me to have this?” I asked.

“Yes!” he answered.  “Eat it!” 

He understood when I told him I would wait…that candy first thing in the morning is too much for me.  

All this situation with having no water, though, has made me think about something that has been on my mind a lot since the horrible hurricane damage in the southeast.  I have thought and thought about the impact of such terrible personal destruction on those with special needs.  

How on earth are they surviving?

How are families handling the upheaval and its effects on their special family members whose whole world has been turned upside down, destroyed, and perhaps forever gone?

My friend in western North Carolina talked to me about her daughter who has autism, how she stepped up to the plate at the beginning and was so helpful at home and with neighbors.  But as time went on it was getting harder and harder to handle the constant pressure and stress of routines being completely disrupted and of doing things not normal for her.  Then come meltdowns and anger, which are terribly difficult for the family already dealing with more difficulties than imaginable.  

I have wondered what Aaron would be like in a situation like this, where everything he knows and expects and demands is gone.  I can’t even fathom it.  A couple days without water and he was approaching the done point.  Imagine everything being gone for weeks and weeks, forever even, and what that would do to him.

Imagine the untold number of families in these areas whose special children or other family members are enduring just that, a million times worse than our small inconvenience.  

So many special needs individuals with so many needs that are special to them.  Needs they can’t control but that must be met as much as possible.  

How they need our prayers!  

Let’s not forget them.  

The Form of Our Fears

I remember as a child how my mother would ask me to run down to the basement to get something for her.  Maybe it was food she needed out of the freezer or a jar of beans she had canned.  I dreaded those basement trips because of the fear that would often grip me.  There were too many hiding places down there and my imagination would go wild.  I especially disliked going back up the stairs as I imagined someone following me from behind or a hand reaching out and grabbing my ankle.  I ran up those stairs as fast as I could, breathing in huge relief as I entered the door to our kitchen where I found warmth and safety.  

The early nation of Israel faced a great fear as they fought their enemies in the land God had promised them.  The last group that is mentioned in Joshua 11 are the Anakim. These were the giants who had terrorized the spies 40 years earlier.  Ten of the twelve spies had said nope to the idea of entering the land, saying that those horrible giants made them look like grasshoppers.  

Now all those years later, here was Israel facing their giants again.  Joshua 11:21-22 succinctly states that in the last battle for the land, the Anakim were cut off and there were no Anakim left.  God gave Israel the final victory over this enemy that they greatly feared.  God would have won that battle forty years earlier, but Israel chose to live in fear and unbelief instead.

We all have those giants in our lives…things or situations that we fear.  The state of our nation and the world today can easily cause us to fear for our future.  But usually, our fears are much more personal.  Reality can barrel into our happy lives and knock us off our feet with no warning.  

As a follower of Christ, though, we have Him behind us.  We don’t need to run up the stairs in fear.  

I love what Dale Davis said in his commentary on the book of Joshua.

“God’s power is adequate to meet our most dreadful fears.  Our situation is both different from and similar to Israel’s.  The form of our fears is different; the adequacy of our God is the same.”

Scripture tells us that God is the same yesterday, today, and forever.  We serve the same God of endless power today that Israel knew way back in the day.  

Same God.  Same power.  Same love and plan for each of our lives.

God is more than able to defeat your giants, no matter how scary they are.  

I don’t want to keep running up the stairs in fear of what might attack me.  With God by my side, I can take each step calmly and in full faith that He is with me to fight for me.  

This old hymn expresses it well:

Leaning on the Everlasting Arms

What have I to dread,
What have I to fear,
Leaning on the everlasting arms;
I have blessed peace
With my Lord so near,
Leaning on the everlasting arms.


Leaning, leaning,
Safe and secure from all alarms;
Leaning, leaning,
Leaning on the everlasting arms.

A Big Small Kindness

We were on our way to our daughter and son-in-law’s house one recent evening.  Andrea is struggling with pregnancy nausea.  I asked her if there was something that sounded good to her that we could pick up for supper.  She thought a Burger King Whopper like she had successfully eaten a couple days earlier would work.  

Aaron was going with us and was super excited at Andrea’s choice because a whopper always sounds great to him.  Including him in the supper plans was Aaron’s idea of a perfect plan!  

We went inside to pick up Andrea and Kyle’s order and to place our own.  Aaron was beyond excited, rubbing his hands together and rapidly placing his order before the attendant even had time to ask if he could help us.  

Now, in this moment I can gauge the mindset of workers in restaurants or stores as they encounter an exuberant Aaron.  Some are wary and curious about Aaron, unsure of how to interact with such unusual behavior from an almost 40-year-old balding grown man.  Others are calm and very friendly, with understanding exuding from their demeanor.

This young man behind the counter was the latter.  He was completely relaxed with Aaron, smiling and engaging him in friendly banter.  Aaron recognizes this attitude as well, though he could never sit down and explain it to us.  He just knew that this person was being nice to him, and he reacted with even more talking as he bent over and rubbed his hands together rapidly.  Someday I would not be too surprised to see smoke rising from his hands!

Then Aaron saw the paper Burger King crowns laying on the counter.

“Mom, can I get a crown for Ryker?” he loudly asked.

I said yes as I glanced at the worker.  

“Of course you can,” the young man happily said.  

“Can I have one, too?” Aaron asked.

“You bet!” our new friend replied.

Aaron placed the crown on his head.  Of course, it was too small.

“Here,” the young man said, “let me adjust that for you.”

He reached over the counter, took the crown, made it bigger and then placed it back on Aaron’s head.  

By this time, Aaron was doing his little happy hop, and I thought the kind worker might just join him.

Here was this guy with skull tattoos all up and down his arms, showing love to our Aaron, and I wanted to hug him, skulls and all.

He filled Andrea’s order for a slushy drink.  Aaron’s big eyes lit on that, and he wanted one as well.  I agreed, so our happy worker filled a cup for Aaron.

“Put your card away,” he said as I took out my debit card.  

He wouldn’t hear of me paying for Aaron’s drink.  

I looked into the eyes of our skull tattooed, rather rough looking worker, and saw kindness.

“You have a very kind heart,” I told him.  “Thank you so much.”

“Well, I try,” he replied.

Kindness certainly comes in all shapes, sizes and forms, doesn’t it? 

Aaron pretty much makes an impression everywhere he goes.  But so do those who reach out to him with love and acceptance.  Those people touch our lives more than they know.  

I am so grateful for the love these kind ones share with us as they interact with Aaron.  It’s a love that grows both in our hearts and with others.  

I have experienced great love shown to Aaron from some of the most surprising people.  Some of our Meals on Wheels clients, for instance, live in very difficult circumstances yet they show Aaron a sweet love that is beautiful to see every week.  

Our skull tattooed Burger King worker is not one who would necessarily be the person I would have picked to be such a blessing to us on that day, but he certainly was.  

It’s a huge reminder to me to not assume a person will behave in a certain way based on their looks.  

Sometimes those who may seem like the least according to the world’s standards end up being the ones who really do the most in the ways that count the most.

There’s no such thing as a small kindness in God’s eyes.  He sees each one as big.

And I’m so thankful for those big, small kindnesses in our life with Aaron!

Uncle “Awa” Update

Once again, it is way past time for a family update.  Lack of time and often no lack of tiredness sure make it hard to write like I want.  Or like I used to long ago.  Anyway, here I am at last.

Can you tell from my title what sweet news we have about Uncle Aaron?  This past Saturday evening at supper, Ryker started pointing to Aaron and saying, “Awa.”  He did it over and over and was so happy at our reaction.  Aaron was his typical unemotional self, but Ryker didn’t care.  He kept pointing at Uncle Aaron and saying “Awa.”  And he didn’t want Aaron to leave the table.  

We could tell, though, that Aaron was pleased and later he told me that it made him happy.  He told his staff at his day group, too…a sure sign that it makes him feel special.  It was such a sweet and heartwarming moment to see Ryker saying Aaron’s name in his own precious little way.  

Aaron still likes to share with Ryker, and is playing more with him, too.  It’s mostly playing in small ways but it’s a good start and shows that Aaron is getting more comfortable with his little nephew.

Aaron claps quite often, and often those claps are ear splitting.  I’m sure he could win a clapping contest, hands down!  (Sorry.  That was corny.) Ryker watches Aaron closely and has now started copying Aaron when he claps.  First comes Aaron’s super loud claps, followed by Ryker’s little baby claps.  And then come lots of smiles from all of us.

One day Aaron let out his deep “Ho Ho Ho” laugh and Ryker suddenly copied it perfectly.  It was hilarious!

Last week we went over to Andrea and Kyle’s, stopping on the way to pick up some burgers.  Aaron saw the BK crowns on the counter and asked the worker if he could have one for Ryker.  This young man happily said yes and then offered one to Aaron.  It was another sweet gesture from Aaron to Ryker.  

Aaron still has his moments of uncertainty and jealousy, evident in the statement we hear the most when Ryker is here:  “You don’t say that to me.”  

Or:  “You don’t bounce with me.”  

And here’s one, said after I commented that Ryker is adorable:  “Do you think I’m adorable?”

We always assure Aaron of our love and call to his attention the ways that we show him that love in an adult way.  There are times we are still walking on eggs with him when Ryker is here.  Aaron does love our full attention and to share with anyone else, not just Ryker, often goes against his grain, especially if that sharing interferes with Aaron’s sacred schedule.

But all in all, we see huge improvement and it’s truly a cause for praise to the Lord as well as being sure to praise Aaron for ways that he is being nice to Ryker.

And we have one more bit of great news.  Andrea gave us this picture a couple weeks ago.

Ryker will be a big brother next May!!

We are thrilled and so very thankful!

Aaron is not quite as thrilled, but he isn’t totally against the idea, either.  He has told people that he doesn’t want Andrea to have another baby but then he tells others about the coming baby in an excited way.

Typical Aaron, up and down, depending on the moment.

Typical me and Gary, depending on the Lord for patience and wisdom, which we do not always show.  

But remembering to be thankful for every victory and every bit of good news.

Uncle Awa.  

That’s some very sweet news right there, times two!

Lean On Me, Aaron

Yesterday Aaron and I went to his annual PCSP meeting.  How many years have we had these meetings?  More than I can nearly remember.  

His case manager and I decided several years ago to hold our meeting at one of Aaron’s favorite restaurants, Carlos O’Kelly’s.  Aaron really doesn’t like meetings that discuss him unless we’re letting him do all the talking about really important stuff.  You know – matters like whether Pluto is a planet or not, what solar flares are, and are black holes really sucking in stars?!  But mulling over matters of his likes and dislikes, what he is or is not allowed to do at his day group, what his goals are, and so on and so forth…well, Aaron would rather leave the room and find someone who IS wanting to hear him talk about planets, flares, and black holes.  But put a plate of enchiladas, chips and salsa in front of him and he’ll endure our needless talk.

Aaron had gotten out of bed super early the past two mornings.  Space videos on YouTube were calling to him, I guess.  As we sat in our booth munching on chips and salsa, he started leaning and leaning until finally he was resting against me like a little child.  

I eased him over and he sat straight for a couple minutes, but then he began leaning into me again.  I knew that he was sleepy from his very early mornings and from his meds, but still I kept propping him up so he could eat and participate in the meeting if needed.

Later, as I drove us home, I looked over at him sleeping soundly in his seat.

  

He is sometimes showing that age is creeping up on him.  He even seems a little feeble at times, like he did as he leaned on me during lunch.  I know that seizures are taking a toll.  He has memory loss, tremors, drooling sometimes, and other effects of both seizures and medicines.  

My heart is stirred with so much love for him.  So much concern for his life now, and for what the future will hold for him.

Yet there are those other moments, too…more and more, it seems.  Moments when Aaron is frustrated when things are not going his way at his time.  He is becoming more impatient with waiting, more set in his routine, and more expressive when those frustrations mount.

Therefore, Gary and I are finding ourselves more stretched on some days.  Our own frustrations mount along with Aaron’s.  Stress seeps through every crack in our strong armor.

I look at Aaron leaning on me, and I know that he needs me when he is struggling, both physically and emotionally.  His reactions are often beyond his control.  Sometimes that fact is hard to remember.

So, who do I lean upon?  

God.

Yes, Gary and I support each other.  I have amazing friends who walk a similar journey to ours.  I have great family on both sides.

But it is God Who leans down to me as He did the other night and fills me with deep peace even as the storm swirls around me…Who understands my struggles…Who speaks comfort to me…Who assures me with these words:

“Trust in the Lord and do good; dwell in the land and cultivate (feed on) faithfulness.”   (Psalm 37:3)

I can feed on so many things like anger, comparisons to others, resentment…the list goes on.  

Or I can obey God and lean into Him.  He understands my need.  And I must understand my need to trust Him and do good.

To feed on faithfulness even when I just want to walk away.

Faithfulness to God, and faithfulness to our Aaron.

Knowing that this is also true:

“Commit your way to the Lord, trust also in Him and He will do it.”  (Psalm 37:5)

Commit.  Lay on God’s shoulders the heavy burden.  

He is strong enough for all my burdens and He is there for me to lean upon when I am tired and done.

And oh, I cannot express enough about the grace that God gives me to continue putting one foot in front of the other, day after day with Aaron.

It’s not one bit about how strong I am or that God gave Aaron to such an amazing parent.

But it IS all about how God meets me in my most down moments with His sweet peace and His words that speak such joy and comfort to me.

And as I learn to lean on God, I can be there for Aaron when he needs to lean on me. 

God holds me up so that I can do the same for Aaron.  

That’s even more amazing than all the black holes in the universe!

My Cross As A Crutch

Yesterday evening I was feeling particularly burdened over several things.  I felt the weight of the loads of life more than usual.

Harsh angry words from Aaron earlier in the day still reverberated in my mind.  Even worse were my own angry words thrown out to him in response.  

Then heavy on my heart was my conversation with the husband of my dear friend of many years.  Her disease is ravaging her mind, and my mind can’t wrap around the reality of that.  Emotions that I have kept in check spilled from my eyes.

I took my old Streams in the Desert devotional book and sat on the patio, soaking in the fresh air and the beginning of dusk.  I turned to the day’s date and saw this verse:  “Whosoever will come after me, let him deny himself, and take up his cross, and follow me.”  (Mark 8:34)

I began to read the words of Alexander Smellie, a Scottish preacher who died 100 years ago.  

“The cross which my Lord bids me take up and carry may assume different shapes.  There are many crosses, and every one of them is sore and heavy.  But never is Jesus so near me as when I lift my cross, and lay it submissively on my shoulder, and give it the welcome of a patient and unmurmuring spirit.  He draws close, to ripen my wisdom, to deepen my peace, to increase my courage, to augment my power to be of use to others, through the very experience which is so grievous and distressing, and then…I grow under the load.”

Then the author added this:

“Use your cross as a crutch to help you on, and not as a stumbling block to cast you down.”

I know there are several meanings that carrying our cross conveys, yet all of them indicate a difficult load in life.  Every person I know is carrying a burden today, some more than others.

But Jesus also promised that if we come to Him with our burdens, He will give us rest:  “For My yoke is easy and My burden is light.”  (Matthew 11:30)

The word “easy” means “tailor made.”  God knows exactly what is best for me, for my dear friends, for you.  He is not cruel.  Read again what the old Scottish preacher said.  

God is near in our burdens, giving us wisdom and filling us with purpose and peace we can learn no other way.

Oh, may I…may you…use our crosses as a crutch to help us walk through this life in a way that honors our Heavenly Father and grows us more like Him.

My Home Is God

Gary and I spent six years in Germany thanks to the U.S. Army.  Our youngest son was born there.  It was a wonderful time for us in many ways in that beautiful country.  But I will admit that when we came home to the States on visits, and then finally to stay, we felt a huge sense of relief.  We had a home in Germany but back in America we were HOME.  We knew the language, we understood the culture, and our family was near.

I’ve been reading in the book of Hosea about how Israel kept rejecting God’s best for them.  They kept looking to the nations around them as examples they should follow.  Therefore, they participated in gross false worship and many other sins against God.

In Hosea 8:9, God said they had gone up to Assyria like a wild donkey wandering alone.  Like the donkeys, Israel was restless in her sad and useless search for a god to worship and for a life of meaning. They kept rejecting the answer that was there for them all along…God Himself.

Don’t we see this attitude all around us today?  So many are searching for meaning in life but not wanting to turn to the only One Who can give them purpose and meaning.  

We all know how sad our world is today.  So many are devoid of hope and peace so they turn to whatever their Assyria is.  Abortion.  Drugs.  Sexual perversions.  Gender dysfunction.  

Or maybe our wandering hearts turn to more benign diversions, ones that seem ok.  A good job.  Money.  Getting ahead.  Sports.  Entertainment.

But still, deep in our hearts, we are unsettled.  We know there is more.  And after this life…what then?

God has put this desire for peace in our hearts for a reason.  That reason is so we will search for Him.  

“You will seek me and find me, when you seek me with all your heart.”   (Jeremiah 29:13)

God loves us.  God loves YOU.  

“For God so loved the world that He gave His only begotten son, that whoever believes in Him shall not perish, but have eternal life.”  (John 3:16)

Believe in Him and accept His gift of salvation through Christ alone.

            My Home is God Himself; Christ brought me there.

            I laid me down within His mighty arms;

            He bore me where no foot but His has trod,

            Within the holiest at home with God,

            And bade me dwell in Him, rejoicing there.

            O Holy Place!  O Home divinely fair!

            And we, God’s little ones, abiding there.

            My Home is God Himself; it was not so!

            A long, long road I traveled night and day,

            And sought to find within myself some way,

            Aught I could do, or feel to bring me near;

            And then I found Christ was the only way,

            That I must come to Him and in Him stay,

            And God had told me so.

            And now my Home is God, and sheltered there,

            God meets the trials of my earthly life,

            God compasses me round from storm and strife,

            God takes the burdens of my daily care.

            O Wondrous Place!  O Home divinely fair!

            And I, God’s little one, safe hidden there.

            Lord, as I dwell in Thee and Thou in me,

            So make me dead to everything but Thee;

            That as I rest within my Home so fair;

            My soul may evermore and only see

            My God in everything and everywhere;

            My Home is God.    (Author unknown)

God is waiting for you.

Come home today.  

Important Uncle Aaron

It’s been way too long since I’ve given an update on Aaron in his life role of being Uncle Aaron.  All in all, Aaron has made great progress.  But our road with Aaron is never without some bumps…or sometimes potholes!

Ryker is now 19 months old.  He is talking and showing more of his cute personality.  Aaron is fascinated with this and is showing more interest in Ryker, which we all thought he would do once Ryker had a few more months under his belt.  Aaron sees him more now as a little fellow human and not just a strange little baby. 

Aaron loves giving Ryker food or toys, and Ryker is very happy to receive them.

Yet when he tries to get Uncle Aaron’s attention to get a response from him, Aaron doesn’t know what to do, so he doesn’t do anything.

 Aaron’s lack of response to Ryker is very similar to how Aaron reacts so often to us when we get a little too close for comfort, like wanting a hug from him or a confirming verbal response.  Aaron will often back away from anything that makes him show too much emotion, especially if it’s on our terms and not his.  

Aaron likes to show Ryker his special items, like these rocks that he wanted Ryker to see.

Ryker especially loves Uncle Aaron’s room because it’s full of all sorts of cool things to touch and pick up and pull or throw…sometimes to Uncle Aaron’s delight and sometimes to Uncle Aaron’s dismay.  But it really makes Aaron feel special to see how much Ryker loves his bedroom.  

However, despite all the progress Aaron has made, this little fellow human can still sometimes make Aaron feel like he has been displaced in our home and our lives.   

“Ryker takes away my importance with Mom,” he said to a friend one day.

It’s a very telling and heart-rending statement from Aaron.  He truly has had so many adjustments to make as he learns to share his life…our lives…with this new little member of our family.  

We all assure Aaron that his place in our family has not changed one bit.  I have told him that love isn’t divided; it’s multiplied many times as God brings new people into our lives.  A friend told me that her family has talked about how our hearts grow bigger as we have more people to love.  We don’t push anyone out, we just grow bigger hearts to make room for more people to love.

Aaron listens to these words, but he still struggles with wanting to be the center of attention.  When Ryker gets more attention, then Aaron feels like Ryker is more important in our lives.  It’s a fine balancing act for all of us.

Kyle, Andrea, and Ryker came over a few days after Kyle had returned from being at sea for 3 months.  For two solid hours, they both gave as much of their full attention to Aaron as they could.  This included getting on the floor to put stickers in Aaron’s sticker book with him.  And listening to Aaron talk literally non-stop about all his interests.

Their understanding and patience with Aaron mean the world to us. 

We all see that Ryker, even at his young age, is looking at his Uncle Aaron in a way that shows he is already trying to figure out what makes him tick.  He’s trying to say Aaron’s name and the other night, after Uncle Aaron gave one of his loud claps, Ryker did the same with his sweet pudgy hands.  

We all gave each other knowing smiles.

Ryker will have a front row seat to Aaron’s world and with it will come the invaluable knowledge that special Uncle Aaron is really a very extraordinary gift from God.  

Despite the potholes in our family road, I believe Ryker will be all the richer for having his special…and important…Uncle Aaron in his life.  

And I also believe that Aaron’s heart will continue to grow and grow because of his little nephew that made him Uncle Aaron.

Aaron and The Violinist

A couple months ago, Aaron found a CD in our van that he had not listened to before.  I saw that it was an instrumental CD produced by Chelley Graves.  Chelley is an accomplished violinist who taught our daughter violin for quite a few years. 

Now, Aaron only likes to listen to music that has people singing. Instrumental music is not his interest. He will even skip songs on his CD’s that have no singing, which is very telling since Aaron goes from #1 to the last song without ever skipping a song because one does NOT skip numbers. 

He popped the CD in and sat back to listen as he examined the CD case. It didn’t take long for understanding to sink in.

Aaron: Mom, doesn’t Chelley sing?! (He pronounced her name with the hard CH sound, as in check)

Me: No, Chelley (soft CH) is a violinist. She doesn’t sing on this CD.

I figured that was the end of listening to this CD. But no, Aaron kept listening to song #1, #2, #3, #4. Since you’re not Aaron, I don’t need to keep counting but you get the picture.

I was very pleasantly surprised!

The next morning, as we left the house for his day group, Aaron pushed the rewind button, and we went from #8 all the way down to #1. He wanted to listen to the whole CD again!!

This was AMAZING for Aaron on so many levels!!!!!

This was AMAZING for me on so many levels!!!! 

No more wobbly voiced Elvis, either!!!!

Chelley’s beautiful music was filling our van and making us both very happy!

Aaron was intrigued with the fact that I know Chelley.  One day he told me that he wanted to send her a card to tell her that he liked her music.  I messaged Chelley for her address and Aaron wrote her these precious words.

And then a few days later, Chelley messaged Aaron.  I printed her message and handed it to Aaron.  

I wondered how his face could hold his enormous smile.  

Aaron placed Chelley’s message on his bed with his collection of special items that he carefully arranges on his bed every night, surrounding him while he reads and listens to music before he goes to sleep.  Her letter is also on Aaron’s desk every day, a testament to how special it is for him to be acknowledged.

Chelley has recently been playing her violin at an Italian restaurant in our city one or two nights a week.  So, last night Gary and I took Aaron to this restaurant as a special treat, but also for a very fun surprise.

Chelley knew we were coming.  As we sat in our booth, she came to our table and spoke to Aaron.  He was puzzled at first but when I told him who she was, there was that huge smile again. He told her that he liked her music, and of course then he had to show her his sticker book that he had brought with him. Chelley was so gracious and kind.  

All during our dinner, he would look over at her as he listened to her play so beautifully, and his happiness was once again on his face and in his eyes. 

 

Kindness shown to Aaron means the world to us.  So does the opportunity for Aaron to show kindness to others as he did to Chelley when he wrote her that note.  

We came full circle in a sense, all of us sharing in the joy that Aaron brings in his own unique and uninhibited way.

And here’s hoping for less Elvis and more Chelley!