Category: Seizures

My Adornment

It was Christmas Eve morning, and I was preparing for a day full of cooking and family fun.  The day before, I had pulled off my plan for an “Aaron day” without a hitch.  I wanted him to have time doing what he loves before all the commotion of Christmas wreaked havoc with his routine and therefore with his behaviors.  Our son and his girlfriend, just in for the holiday, joined us at All Star Sports for some Aaron-style fun.  Afterwards, we ate at Old Chicago, a favorite of Aaron’s.  It was a great time!

But early the next morning I heard Aaron having a big seizure.  This was a bed wetting one.  So mixed in with my cooking and all the other Christmas prep, I found myself hauling loads of bedding to the laundry room.  My main emotion was sadness for Aaron that day as he had two more big seizures over the next several hours.  

Yet these moments also drive home to me the fact that caregiving is my life.  It’s a life I never envisioned for myself when I contemplated marriage and motherhood as a young starry-eyed woman.

Every mother lives a life of self-sacrifice in many ways but having a child with special needs of whatever kind increases that role in ways she never knew.  Any caregiving role is the same.

That is why I was so impacted by some verses I read one morning.  Paul was talking to Titus about practical ways that we as believers are to live out the gospel.  In chapter two of Titus, Paul gave instructions to older men and women as well as to the younger men.  

He ended that section by urging slaves to conduct their lives in a way that they would “…adorn the doctrine of God.”

In that culture, slaves were nothing.  They were the lowest of the low.  Yet Paul told Titus to encourage them to adorn the doctrine of God, the gospel.

This is a high calling for such a lowly people!

The word “adorn” carries the meaning of arranging jewels in a setting that displays their beauty.  

I love what John Stott said about these verses:  “…the gospel is a jewel, while a consistent Christian life is like the setting in which the gospel-jewel is displayed; it can add lustre to it.”  

Our human tendency is to equate importance with the “big things.”  Red carpets, book signings, conference speakers, a record contract.  

Not with wet bedding, doctor visits, behavior issues.  

Not with dementia, hospice, hospitals, infusions, cancer…

But the gospel shines brightest in the darkest places.  This is where God is especially honored and given great glory.

How?  By our faith being seen in our service to the ones we are caring for.  By yielding to God’s plan for our lives with trust and peace, even through tears or anger or resentment that inevitably comes at those vulnerable moments.  

It’s a matter of my heart, not my surroundings.  

“Slaves, in all things obey those who are your masters on earth, not with external service, as those who merely please men, but with sincerity of heart, fearing the Lord. WHATEVER YOU DO, DO YOUR WORK HEARTILY, AS FOR THE LORD RATHER THAN MEN.”   (Colossians 3:22-23)

Where do you find yourself today?  

Remember that the seemingly lowest place is the place of high calling in your life as a believer.  

Even if we feel like no one notices our service, God still urges us to shine with the beauty of the gospel.  God notices and that is all that really matters. 

 

Lean On Me, Aaron

Yesterday Aaron and I went to his annual PCSP meeting.  How many years have we had these meetings?  More than I can nearly remember.  

His case manager and I decided several years ago to hold our meeting at one of Aaron’s favorite restaurants, Carlos O’Kelly’s.  Aaron really doesn’t like meetings that discuss him unless we’re letting him do all the talking about really important stuff.  You know – matters like whether Pluto is a planet or not, what solar flares are, and are black holes really sucking in stars?!  But mulling over matters of his likes and dislikes, what he is or is not allowed to do at his day group, what his goals are, and so on and so forth…well, Aaron would rather leave the room and find someone who IS wanting to hear him talk about planets, flares, and black holes.  But put a plate of enchiladas, chips and salsa in front of him and he’ll endure our needless talk.

Aaron had gotten out of bed super early the past two mornings.  Space videos on YouTube were calling to him, I guess.  As we sat in our booth munching on chips and salsa, he started leaning and leaning until finally he was resting against me like a little child.  

I eased him over and he sat straight for a couple minutes, but then he began leaning into me again.  I knew that he was sleepy from his very early mornings and from his meds, but still I kept propping him up so he could eat and participate in the meeting if needed.

Later, as I drove us home, I looked over at him sleeping soundly in his seat.

  

He is sometimes showing that age is creeping up on him.  He even seems a little feeble at times, like he did as he leaned on me during lunch.  I know that seizures are taking a toll.  He has memory loss, tremors, drooling sometimes, and other effects of both seizures and medicines.  

My heart is stirred with so much love for him.  So much concern for his life now, and for what the future will hold for him.

Yet there are those other moments, too…more and more, it seems.  Moments when Aaron is frustrated when things are not going his way at his time.  He is becoming more impatient with waiting, more set in his routine, and more expressive when those frustrations mount.

Therefore, Gary and I are finding ourselves more stretched on some days.  Our own frustrations mount along with Aaron’s.  Stress seeps through every crack in our strong armor.

I look at Aaron leaning on me, and I know that he needs me when he is struggling, both physically and emotionally.  His reactions are often beyond his control.  Sometimes that fact is hard to remember.

So, who do I lean upon?  

God.

Yes, Gary and I support each other.  I have amazing friends who walk a similar journey to ours.  I have great family on both sides.

But it is God Who leans down to me as He did the other night and fills me with deep peace even as the storm swirls around me…Who understands my struggles…Who speaks comfort to me…Who assures me with these words:

“Trust in the Lord and do good; dwell in the land and cultivate (feed on) faithfulness.”   (Psalm 37:3)

I can feed on so many things like anger, comparisons to others, resentment…the list goes on.  

Or I can obey God and lean into Him.  He understands my need.  And I must understand my need to trust Him and do good.

To feed on faithfulness even when I just want to walk away.

Faithfulness to God, and faithfulness to our Aaron.

Knowing that this is also true:

“Commit your way to the Lord, trust also in Him and He will do it.”  (Psalm 37:5)

Commit.  Lay on God’s shoulders the heavy burden.  

He is strong enough for all my burdens and He is there for me to lean upon when I am tired and done.

And oh, I cannot express enough about the grace that God gives me to continue putting one foot in front of the other, day after day with Aaron.

It’s not one bit about how strong I am or that God gave Aaron to such an amazing parent.

But it IS all about how God meets me in my most down moments with His sweet peace and His words that speak such joy and comfort to me.

And as I learn to lean on God, I can be there for Aaron when he needs to lean on me. 

God holds me up so that I can do the same for Aaron.  

That’s even more amazing than all the black holes in the universe!

Stepping Into the Mist

Several years ago, I turned onto a road near our house, and this was the scene that met my eyes.

I couldn’t see very far ahead.  And even though I knew the road, I didn’t know what might be on the road out of my sight.  The fog hid what was there, beyond my vision, but I knew I needed to go forward.

If you know Jesus as your Savior and are following Him, you know that there are certain times that He puts you on a road that is shrouded in the unknown.  I see it around me all the time, either with family and friends, or those that I don’t personally know.  And I have experienced it in my own life.

I will never forget the day that Aaron had his sudden first big seizure.  We were living in Germany where Gary was stationed in the military.  Aaron’s seizure was completely unexpected and terrifying.  I remember the cold fear that squeezed my heart.  Then came the ambulance ride, the days in the German children’s hospital, the language barrier, the exhaustion, and the shocking diagnosis of Epilepsy.  

But I also remember our first night back home, when I could finally sit at my desk and cry the tears I had held back all week.  And there it was…God’s amazing peace filled my hurting heart.  He reminded me that He had not gone anywhere…that He was with me and with Aaron…and that He was the same God whose character I had known for many years.  He had not changed one bit.  He had a reason for this unexpected bend in the road…this fog that I could not see through still held Him there with me.  

I could freeze in fear or be angry with God or be bitter about why He allowed such a thing to happen to our little Aaron.

Or I could step out in faith and trust in my heavenly Father.

I love what F. B. Meyer said: “There is nothing, indeed, which God will not do for a man who dares to step out upon what seems to be the mist; though as he puts down his foot he finds a rock beneath him.”

Moses knew this about God when he spoke to the assembly of Israel:

“For I proclaim the name of the Lord; ascribe greatness to our God!

The ROCK!  His work is perfect, for all His ways are just.

A God of faithfulness and without injustice, righteous and upright is He.

(Deuteronomy 32:3-4)

Whatever you are going through today, know that if you are following God, He will be your firm rock in the mists of fear and uncertainty.  

You will find a rock beneath your feet and that rock is God Himself.

And some day you will see that same road clearly, in all its purposes, as the best plan that God could ever have for you.

But We Need the Rain

It sure has been stormy over a large part of the country this spring.  We have had our share of strong storms here in Kansas as well.  After several years of drought, the comment I hear over and over after another storm…and have many times said myself…is, “But we need the rain!” 

Storms certainly can be beneficial, and beautiful, too.  

But they can be hard as well, and scary.

I woke up this morning to another storm passing through.  But I also had the thought of life’s storms on my mind.  That’s because Aaron had five hard seizures during the night.  I finally had to give him a rescue med.  These times with Aaron leave me in an emotional frame of mind, vulnerable in my spirit.  It’s important that I corral my thoughts and there is no better way to do that than to spend time with the Lord.

I opened my old devotional book, Streams in the Desert, to today’s date.  The scripture today was from Mark 4.  It’s the story of Jesus getting in the boat with His disciples on the Sea of Galilee.  The first sentence on the page was this:

“Even when we go forth at Christ’s command, we need not expect to escape storms…”

The storm outside my window matched the storm in my heart, and so God had a special storm story for me.  I love His love for me!  I love how He gives to me exactly what I need, exactly when I need it.

Jesus knew that His disciples would encounter a strong storm out on the lake. After all, He created the storm!  The disciples, terrified, cried out to Jesus as the storm tossed the boat.  Jesus, asleep, was awakened by their frantic voices asking Him if He didn’t even care that they were perishing.

Jesus calmed the storm and then gently rebuked them.

“Why are you afraid?” he asked them.  “Do you still have no faith?”

Jesus put His followers in a place of testing.  In their storm, He showed His power and in so doing, He used it to increase their faith.  

I have learned, especially in our life with Aaron, that God has put me in a boat and said, “Let’s go over to the other side.”  

But getting there involves hard times.  I don’t like the storms, but how they increase my faith and my love for Him!

Just like realizing how much we need the rain that our storms have brought, so I realize that the sufferings of my life bring me what God knows I need.

And this lesson is huge:  God hasn’t commanded me to understand.  He HAS commanded me to trust.  

If I had all the answers as to the why’s of suffering, I would have no need to trust.  In learning to trust, my walk with God is sweeter and deeper than I would ever have known otherwise.

“We never know how much real faith we have until it is put to the test in some fierce storm; and that is the reason why the Savior is on board.”   (Streams in the Desert)

God in His kindness ended this day with a gorgeous sky, a perfect picture of the beauty of knowing and trusting Him.

Good in My Nazareth?

Tis the season for the Christmas story to be at the forefront of people’s lives.  And in the forefront of that story is the little town of Nazareth.  Gabriel was sent there to tell Mary that she was the one whom God had called to bear and give birth to His Son, Jesus.  

Nazareth…a very small dusty town.  Pretty much a place one would pass by rather than linger there for any reason other than to perhaps get a drink of water.  Larger, more exciting towns were nearby.  

Years later, when Jesus was calling His disciples, Philip went to find Nathanael.  He told Nathanael that they had found the One foretold by Moses…Jesus, of Nazareth.

Nathanael’s response?

“Can any good thing come out of Nazareth?”

That seems to be the reputation of Nazareth in a nutshell.

But Mary lived there, and her betrothed, Joseph.  Two unknown people in an unknown town…a town nowhere mentioned in the Old Testament or early Jewish literature.  

But the angel said that Mary had found favor with God.

How?  How do you make a name for yourself in Nazareth, of all places?

But that’s just it.  Mary didn’t set about to be noticed by God.  She wasn’t trying to do great things.  She simply lived her life for the glory of God in every mundane daily task that was a natural part of living in Nazareth.

Less than an hour ago I stood by Aaron as he had his third seizure in four hours.  This one was very hard.  My heart hurts.

Afterward, I sat by our Christmas tree and pondered this life that God has given me.  In many ways, I can say that this is my Nazareth.

I have had a taste of the “other” side of life.  Awards, travel, lots of ministry, etc., etc.  

But as time has gone by, my world has narrowed a lot.  The life of a long-term caregiving parent is not exciting.  It is not a life that others point to as they wish they had MY life.  

And all of my fellow caregiving friends know “the look.”  It’s the look that crosses a person’s face when they ask what you do or if you can join in this or that, and you tell them your situation.  So often there is no real understanding.  Sympathy, perhaps.  Compassion, sometimes.

But it’s like they don’t know what to do with you.  

Kind of like being from Nazareth.

But God has a purpose for each of His children in His kingdom.  Even us Nazareth folk.

For God says that He works all things for good in the lives of His followers.  

I have good purpose, right here in my Nazareth.

For every piece of wet bedding washed, every meal cooked, every bathroom cleaned, every doctor appointment, favorite show watched and game played, every story listened to for the 500th time – is just what God has for me to do where He has put me.

He put Aaron with us.  I can look at my life with him as my ministry or as a misery.

Human nature makes us feel that we’re not really being of value unless our calendars are full of events and we are free to come and go as we choose our opportunities.  And this is wonderful for many people.

But for my other Nazareth people…whatever your Nazareth is…know that there ARE good things that come out of Nazareth.

Claim your purpose where God has placed you!

Be faithful there in the messy and the mundane.

In so doing, you are bringing delight to God…and there is no higher calling.

Even in Nazareth.

After The Storm

Two nights ago, I awoke to bright lightning flashing outside our window.  Then came the crashing thunder.  Two hours later, we had a repeat as another storm roared through.

A few hours later, the sun was shining as I looked out my favorite window.  The view was so beautiful.  The leaves on our huge oak tree looked crisp, the grass was so green, and the sky was beautiful with unthreatening clouds.

Even though the storms earlier were loud and a little scary, the benefits were well worth the dark experience of the night.  We need the rain.  And I was so blessed by the very pretty view that morning.

So often, the aftermath of a storm carries with it refreshment and joy.

The same is true in the life of a believer.

We don’t often understand this side of heaven just why we go through trials of life.  But what we do know and understand is this:

“…I am the Lord and there is no other, the One forming light and creating darkness, causing well-being and creating calamity; I am the Lord who does all these.”   (Isaiah 45:6-7)

These promises to Israel continue:

“For thus says the Lord, just as I brought all this great disaster on this people, so I am going to bring on them all the good that I am promising them.”   (Jeremiah 32:42)

The God of Old Testament Israel is our God today, and His character and purposes have not changed.  He has a reason for every circumstance and event in the life of those who know and follow Him.

“And we know that God causes all things to work together for good to those who love God, to those who are called according to His purpose.”   (Romans 8:28)

There is so much work that God wants to do in us.  Even Jesus learned obedience through the things which He suffered.  (Hebrews 5:8).  How much more do I need to learn the same?

Let me close with sharing one recent experience.  We were having a particularly rough behavior evening with Aaron.  We couldn’t understand why.  Then after supper, while I was at the kitchen sink and Aaron was a few feet away, he suddenly went into a seizure.  These drop seizures are both terrifying and dangerous.  He falls like a tree and has been injured several times over the years…staples, stitches, a lost tooth, CAT scans to check for concussions, and so forth.

Because I was so near and heard the seizure start, I was able to turn to him and grab him as I yelled for Gary.  I lowered Aaron to the ground as he fell while Gary ran in and was able to help.

Later, feeling depleted and very emotional, I sat in a chair near Aaron as he slept and recovered.  And I prayed.  I was able to practice what God has taught me over the years.

“Let the peace of Christ rule in your hearts, to which indeed you were called in one body; and be thankful.”   (Colossians 3:15)

I was able to be thankful…thankful that I was near Aaron when the seizure started…that Gary was able to help…that Aaron was not injured…and that later he was his happy self again.

Honestly, I don’t say, “I’m so happy that Aaron has seizures!”

No.  But I can, because of what I know about God, be thankful for both the ways that God takes care of Aaron and for all that God has taught me over the years as I have learned to completely trust Him with this son whom we love so much.

It’s like looking out that window after the storm and seeing that the storm has brought to me another layer of growth and beauty despite the fear and struggles.

I pray the same for each of you today as you gaze out the windows of your life at the works that God has done because of, and after, the storms.  

I Can’t Wait!

Waiting patiently for anything is not a strong suit of Aaron’s.  Whether he is waiting for me to get off the phone or waiting on a huge surprise, it doesn’t matter.  Patient waiting is a foreign concept to him.

This is why we often don’t tell Aaron of an upcoming event until shortly before it actually occurs.  Too bad he knows when his birthday is because he is in planning mode for months before the big day. 

Earlier this year, a big dinosaur exhibit was coming to town.  Gary and I decided to take Aaron and to make it a surprise, more for our sake than anything.  The big day came…tickets were bought…plans were in place…and finally I told Aaron that we were taking him on a surprise adventure. 

It wasn’t THAT long before we were leaving that I broke the exciting news to him, but oh my goodness!  I quickly realized that I should have waited until we were in the van and on our way before uttering a word about our surprise trip.

Aaron can hover better than any hummingbird or helicopter.  He hovered outside my door as I got ready.  He knocked and knocked on the door, asking if it was time to go yet.  He lingered outside the bathroom door as I dried my hair.  He stood right beside me as I brushed my teeth, asking questions and wanting me to answer even with a mouthful of toothpaste. 

“Aaron!!” I finally said, “quit being so impatient!!  Leave me alone and let me get ready.”

I enjoyed a few moments of blissful quiet…until he once again knocked loudly on my door.

“But MOM!!”  he exclaimed, “I don’t have anything to DO while I’m being impatient!!”

Let me say, I am so much like Aaron when God has me wait for something, especially something that I have prayed about for a long time.

Look at Isaac and Rebekah.  Isaac married Rebekah when he was 40 years old.  No children came, however, because Rebekah was barren.  In Genesis 25 we read that Isaac prayed on behalf of Rebekah and she conceived.

But guess how long it was before that happened?

20 years!

YEARS!!

Can you imagine the disappointment, over and over and over?

The sadness?

The comparing themselves to others who had HOW many children during the time that they waited…and waited…and waited on God to keep His promise.

As Dale Davis points out in God’s Rascal, The Jacob Narrative, Isaac’s non-chosen brother Ishmael had 12 sons.  What’s up with that?!

But Isaac didn’t just idly or impatiently wait.  We’re told that he prayed on behalf of his wife. 

The Hebrew term used there means that Isaac didn’t just pray FOR his wife.  It indicated that he prayed in front of her…in her presence.

I found Isaac’s action in prayer to not only be very encouraging but also very precious.  He led Rebekah and he joined her in her pain…in their pain…as they waited for God’s answer.

Sometimes things seem so hopeless.  We don’t see answers coming.  It’s so easy to lose heart, especially when we have prayed and prayed and prayed.

I love this verse.

Right now, Aaron is laying on our couch downstairs.  He had three seizures this morning.  He is almost 38 years old and has had seizures since he was 7 years old.

I look at him as he ages, and I see the effect of all these years of seizures…of the toll they have taken on his body and on his mental abilities. 

But I know that as much as I love Aaron, God loves him even more.  And God loves me. 

He loves us and He has a reason that I will probably never know on this earth for all that Aaron has suffered.

So, I cry out to God.

And I know that God’s inclination is to lean down and hear my cry. 

Isn’t that a precious picture?

He joins me in my pain and in my waiting.

Am I always patient as I wait on God?

No!

But unlike Aaron, there IS something I can do while I’m being impatient and that is to pray.

And to praise, as David continues in Psalm 40.  Sing a new song of praise, which will be a testimony to others.

After all, “How blessed is the man (or woman) who has made the Lord his trust.”  (Psalm 40:4)

Gotta run.  Aaron is awake now and is planning our evening already.  😊 

Secret Things

If there is ever a time that it’s OK to keep secrets from each other, it’s now, at Christmas.  We buy gifts and then try to find the best hiding places around the house so that little…or big…snoops don’t find them.  We rush to grab that delivered box off the porch before our husband or child grabs it first.  It’s fun and exciting and perfectly allowed.

Then we must wrap the gift when prying eyes won’t see what it is.  I used to love stacking our children’s wrapped gifts in their individual piles and having them put their own gifts under the tree.  There was lots of shaking and guessing going on while they worked.  It was so much fun!  I knew the answers to their many questions, but I kept it to myself as I watched them wonder what was in each box. 

Last year, as Gary and I sat by our tree, Aaron joined us.  It wasn’t long before he was on his knees in front of the tree, taking out boxes to see which ones were for him.  He went through that ageless process of trying to guess the content of the gifts that bore his name.  And I went through the same ageless process of telling him that he must wait for the answer.

You know, God has secrets, too.  I just read about that fact this morning.  Deuteronomy 29:29 says, “The secret things belong to the Lord our God…”

There are things that God keeps to Himself, things about my life and about His doings in my life.  I don’t always understand why God orders my life in the ways that He does.  I don’t always know what’s in each box that ends up on the front porch of my life.  

And perhaps more importantly, I don’t often understand the “why” of some of the gifts that God gives.  In fact, there are things that I wouldn’t even classify as a gift in many ways.  A gift should be fun and wanted and needed, right?

I think of Aaron, of what a gift it was when after five years of marriage God allowed me to finally be pregnant.  Of the immense joy I felt as I held my little baby son 37 years ago, feeling like the most blessed woman in the history of the world.  Of watching him grow, smart as a whip and cute as a button.  Then the sudden huge seizure when he was in the first grade, the years of medicines and tests and doctors and still seizures.  The unexplained behaviors that manifested more and more as he got older, that set him apart from his siblings and his peers.  The diagnosis of autism, the challenges of his anger and his very particular way of conducting his life.  The forever care that he needs and the way that this impacts Gary and me now in our older years.  The questions about his future, and ours.

But on the hard days, in the sadness of seizures and the frustrations of autism, I have a choice to make about this gift that God has given me.  I can question it, I can resent it, I can let it make me bitter.

Or I can look beyond the gift into the heart of the Giver and know that He only has my good…and Aaron’s good…in His loving heart.  God has some secrets that only He knows about concerning Aaron and his life, and therefore mine.  I don’t need to know God’s reasons before I exercise trust in Him.  I just need to know Him.  Period.

When I grasp that concept…and so often I don’t…then I can experience some other gifts that God has given me. 

Peace.

Joy.

Contentment.

Those attitudes, those gifts, come and go with me. 

“What IS this, God?” I can imagine me asking Him as I shake the box.

“Go ahead and open it,” He responds.

“But I didn’t ask for this,” I tell Him as I see what’s inside.

“No,” he lovingly says.  “But I know that you need this very thing.”

“Why?!” I ask through my tears.

“Oh,” he answers, “that is a secret for only Me to know right now.  Someday I will let you in on the secret, but not today.”

“But…” I so often begin.

And God answers:

“Every good thing given and every perfect gift is from above, coming down from the Father of lights, with whom there is no variation or shifting shadow.”  (James 1:17)

Like the old hymn writer said:

And we wonder why the test when we try to do our best, but we’ll understand it better by and by. 

By and by, when the morning comes,

When the saints of God are gathered home,

We’ll tell the story how we’ve overcome

For we’ll understand it better by and by.

My Body, My Choice…and Aaron

This past week, the Supreme Court voted not to block Texas’ heartbeat bill.  This, in effect, has made abortion in Texas illegal after the first heartbeat of the baby in the womb is heard…usually around the 6th week of pregnancy.

Against the backdrop of yelling protestors –

I was looking at my own backdrop at home, which consisted of all Aaron’s bedding after his seizures earlier Friday morning.

And dear Aaron recovering from those seizures as he slept on the couch.

My mother’s heart was drawn to Aaron in his struggles.

But my mother’s heart was also drawn to all the many babies who have not had the chance to live, no matter how difficult their lives may have been.

There is a choice that is seldom addressed when most people talk about “choice” as it is defined today.

It’s the choice that Joshua talked about when Israel was going into the land that God had given them.  He told Israel to choose that day whom they would serve – the one true God, or one of the false gods worshipped by the peoples in the land around them.

Either way, they would choose a deity to worship.  They would worship God, or they would worship a non-god…a pagan god. 

“Joshua calls Israel to ‘serve Yahweh’ (Joshua 24:14).  But if Israel will not serve Yahweh, they must at least serve some god(s).  He presses Israel to the wall; they must come down somewhere.  If not Yahweh, the real historical God, then they must choose either the ancestral Mesopotamian gods or the contemporary Amorite ones.  The conservatives who were fond of tradition, of what had stood the test of time, who yearned for the ‘faith of our fathers’, might vote for Mesopotamia.  The liberals with their yen for relevance, for being in step with the times, might prefer to identify (as an act of goodwill) with the current social milieu and enter into dialogue and worship with the Amorites.  But you must choose; if not Yahweh, then take your pick from ‘these dunghill deities’ (Matthew Henry).”   (Dale Ralph Davis)

Do you see the issue here? 

Do you see the issue for our culture today?

My choice!

My choice which god I will serve.

For in making the choice to reject Jehovah God, you ARE making a choice to serve whatever pagan god fits your lifestyle.

We all serve and worship someone or something.

My choice to worship God will then dictate my other choices in life.

My choices FOR life.

For no matter how many silly arguments are made condoning abortion, we all know that something inside that woman is alive and growing.

And if nothing else, modern technology has shown us that what is growing in her womb is a human baby with a functioning heart at only several weeks old. 

Psalm 139 tells us that God has woven that baby together in his mother’s womb.  She is fearfully – reverently – and wonderfully made by God Himself!

So how do I explain our Aaron, born with special needs? 

I can’t.

But I can explain that as for me and Gary, we have chosen to serve the Lord. 

With all my body and soul and heart, I have chosen to trust almighty God to make the right decisions for me and for my son.

My body is not mine.

My choice is not mine.

I belong to God and His choice is all that matters.

And because I know Him and trust Him, I know that our Aaron whom he created is made just the way that God allowed and designed.

I walk in peace.  I don’t need all the answers to do that.

I only need to choose…GOD!

Photo taken by Karlea Tanner

Tough Trust

Yesterday as I ate my lunch, I saw a picture on my computer that started my mind turning toward some issues that make me sad.  As I wrote in my last blog (Listening Carefully), I know better than to let my thoughts stay on certain matters that will pull me down.  I am consciously practicing, more and more, immediately turning my heart to God and affirming to Him…and to me…that I trust Him totally.

As I sat at my table, thinking on these things and praying, these words came to me.  I shared them right away on Facebook.

It was around 1:30, and soon I was to go pick Aaron up at his day group.  He had a seizure early that morning, around 4:30, but felt fine and so was able to go on and spend the day with his friends. 

When we got home, as we talked about many things…because with Aaron there are always many things that he wants to talk about…I mentioned to him that I saw his empty deodorant in his bathroom trash can. 

“Yes!” he said, “I put some on this one but not on this one!”

I turned to see him holding up one arm at a time as he showed me which arm pit had gotten deodorant and which one had not.  😊

I left him in his bathroom to remedy the arm pit situation.  I had just sat at my desk in my bedroom nearby when I heard the awful crash and the sounds of a big seizure. 

I yelled for Gary and ran in the bathroom to see Aaron laying in the tub.  He had fallen backward into the tub, taking with him the shower curtain and rod.  He was entangled in all that, plus in his shirt that he had been removing.  The first thing to do was to hold his head to keep him from continually banging it on the hard tub as he seized.  Gary had run upstairs, grabbing one of Aaron’s small pillows to put under Aaron’s head. 

These sudden and very dangerous seizures are just awful on many levels.  It’s a terrible feeling to hear that crash and then the seizure sounds…to run to him not knowing what you will find…to wonder how hard he hit his head or if there are other injuries.

We had untangled him from the shower curtain and from his twisted shirt that was all around both his arms and hands.  Gary put a sweater over him and then we just had to let him lay there in the tub until he was awake enough to be moved to his bed. 

I went back to my desk, still shaken, and cried.  I cried out of fear, yes, but mostly I cried because it makes me so incredibly sad to see my son go through all these physical hurts. 

But as I sat there, God softly spoke into my hurting heart…and He reminded me of those words that He had given me two hours earlier.  God gave me words I needed before I knew just how much I would soon need them.

Yes, my heart is so tender when I think of Aaron and all the years of his physical suffering.  But God really does take that mama hurt I feel and uses it to show me how to toughly trust in Him.

I have to be tough for Aaron, and really, I can only do that because of my trust in God.  Sometimes that sort of trust doesn’t come naturally.  It would be more natural for me to be mad at God for letting this happen to Aaron, over and over and over. 

But I know my heavenly Father, and I know that He has reasons far beyond what I will ever know on this earth for why He lets Aaron suffer. 

It’s a tough place for me to be and it calls for a tough trust.  If my life was only smooth and simple, no tough trust would be needed.  But then I would not know God as deeply.  I would not experience His peace and comfort.  My faith would stay simple and small. 

A verse also came to my mind as I sat there thinking of all these matters.  I want to leave that verse with you…that simple but profound word from God. 

There it is again…trust.  Even when it’s tough.

ESPECIALLY when it’s tough.