It all started one recent night when our almost-broken DVD player became the totally-broken DVD player. Aaron and I were watching the next Blue Bloods show that was in Aaron’s rigid schedule for the evening. Aaron kindly paused the program while I went into the kitchen. Something about that pause became the something that pushed our ailing DVD player into its grave. Even Gary, our go-to he-can-fix-everything guy, came but could not fix. And as I watched Aaron’s frustrated reaction, I rightly guessed that he would also be very difficult to fix that night.
I was very correct on that one.
There are times when Aaron handles life’s interruptions of his routine with amazing calm and grace. That night was not one of those times.
I didn’t help, either. When Aaron became more belligerent, I became more frustrated. I don’t do end-of-the-day meltdowns very well, especially as I get older. I finally told Aaron not to be a bully. But I didn’t end there. I also told him not to be a bully brat. I thought it had a nice ring to it, you know.
Aaron did not think it had a nice anything.
Now we not only had to go to bed without finishing our Blue Bloods show, and knowing that the DVD player was dead, but we also had to walk up our stairs for our goodnight routine harboring anger. I could have made amends and gone right to bed with no problem.
Aaron could not.
And so began an age-old bedtime dance that we hadn’t done together in a long time. It basically consisted of Aaron refusing to do what is normally done and insisting on doing what is unacceptable.
His angry comments included:
“I am NOT helping put the oil in the diffuser!”
“I am NOT taking my medicine oil!”
“I am NOT saying goodnight to you!”
“I am NOT going to bed!”
“I am NOT letting you kiss me goodnight!”
“I am NOT a bully brat!”
I stayed as calm and flat as I could be in my reactions as I went about my own bedtime routine. Aaron continued his fuming by going into his room and closing his door, only to open it seconds later. He would stomp up the hall and come into my room, hurling another angry comment at me. One time he closed his door normally, but immediately reopened it so that he could slam it shut the second time. I had to smile at that one.
But I wasn’t smiling at any of the rest, for sure. I was sorry it had come to this…I was very tired…and I was totally aware that Aaron’s outrage could continue for some time. Therefore, I just went to bed, pulling my covers up and acting as if everything was normal. Gary had not come upstairs yet, so I left my door open.
Sure enough, Aaron clomped up the hall again and came into my bedroom. He didn’t even seem to blink as he saw me in bed and so changed his direction, standing on Gary’s side of the bed. He glared down at me under the covers and continued his verbal barrage. Then he was off, slamming his bedroom door before soon reopening it, and repeating the same action again and again. In my bedroom, hovering over the bed as he angrily talked, and off again. I don’t even know how many times this occurred.
Then all of a sudden, the next time Aaron hurried to my room to glower at me, he didn’t. He didn’t hover and glower, but instead he sat on the bed beside me. He started rubbing his hands together and then he said, “Mom, do you know what Nanomites are?”
Really. Nanomites.
And just as seriously as I possibly could, with no hint of surprise or laughter or tiredness, I told him that I did not know what Nanomites are. There we were, in the dim light, talking ever so diligently about Nanomites. We didn’t talk about our anger…our hurt…our frustration with each other…our disappointment in the dead DVD player…or our needed apologies. We talked about Nanomites.
And all was well.
Aaron went back to his bedroom. I stayed in bed, waiting. Soon he was headed back up the hall, but this time he came around to my side of the bed.
“Here Mom,” he said. “I want you to have this.”
A couple days earlier, I had taken Aaron to Dollar Tree. You would have thought I had let him enter heaven for a few minutes. He bounced from aisle to aisle, SO excited by his many finds, but definitely the MOST excited by this big, plastic, long-tailed, red-eyed rat!

I rolled over in bed that night, and there on my night stand was that long-tailed, red-eyed rat. I knew as sure as ever, then, that things were right with me and Aaron. He had given me what at that moment was most precious to him…his black, plastic rat.

He laughed and bent over as he rubbed his hands together…a sign of his pure joy. And I thanked him. I thanked him as sincerely as if he had placed a huge vase of roses on my night stand.
Aaron wanted me to come and say goodnight in the way we always do, so I did. Then as I was in my bathroom right after that, I heard Aaron once again walk up the hall. He knocked on the bathroom door, and when I answered he said, “Mom, I’m sorry.”
“I’m sorry, too, Aaron,” I replied. “I love you.”
“I love you,” he mumbled as he hurried off and back to bed.
I kept that ugly plastic rat on my night stand for a couple days. It reminded me of so much. It was an unusual picture of my relationship not only with Aaron, but also with God.
How many times have I been angry with God over a problem or a situation in my life? Maybe not even full-blown anger but frustrated and not trusting Him totally. How many times have I held onto hurt, or worry, or fear, or whatever else it may be that I want to harbor close to me. Things or people or events that I don’t want to relinquish to God?
All the going back and forth with God doesn’t accomplish a single thing. It’s only when I yield to Him and to His control in my life, tell Him I’m sorry if I need to do so, and then give Him my thing that to me is precious…that I want to keep and coddle…only then will I have true peace. Also, only then will I have open communication and sweet fellowship with God again. Only then will I see what’s on the new path upon which He has set my feet.
Who knew what that silly red-eyed black plastic rat would teach me?
Leave it to Aaron…and to God…to take the bad times and make them full of good.
Aaron notices much more than we sometimes give him credit for. I love how he will point something out to us, often something that we never paid attention to at all, and then offer his comments on it…..of course……whether we want to hear them or not. We usually DO want to hear what Aaron has to say, but trust me – there are times when we do NOT want to hear what comes out of Aaron’s mouth.
Aaron rarely gives any thought to whether we want to hear his observations or not. His insights may be new, or they may be ones that we have heard over and over and over and over…..and over……again. It doesn’t matter one whit to Aaron. He would probably implode if he didn’t talk, so talk he does……and we listen, regardless.
He shares things with perfect strangers, too. I took Aaron to Wal-Mart with me after I picked him up from Paradigm on Friday. Aaron was happy that I had found a soft fuzzy blanket on sale and that I had put it in our cart.
“Is it for ME?” he hopefully asked. But when I told him it was for our aging Great Dane, Jackson, Aaron was not at all disappointed. He loves Jackson.
Aaron sat on the bench near the register as I checked out. I loved the look on his face as I looked at him and smiled. Inside I was hoping not to hear him blessing us all with his ear splitting loud clapping…..or a silly ‘meow’……..or a fox whistle……or a very embarrassing farting noise.

But Aaron didn’t stay on the bench for very long. No. He saw the cashier ring up the soft fuzzy blanket, which reminded him that he had something important to share with her. He didn’t care one bit that he didn’t know our nice Wal-Mart associate. He did know, though, that she needed to know something.
So he got up from the bench and purposefully marched over to where she and I were finishing my transaction. He pointed to the soft fuzzy blanket.
“That’s for our dog. He’s nine years old and he has weakening in his muscles.”
She thought that was so nice to be buying our dog such a nice soft fuzzy blanket. She and I were starting to have a dog conversation when we heard Aaron again.
“LOOK!!” he blurted out. And there he stood, lifting up his right arm and showing the poor unsuspecting soul his yucky yellow and purple bruise on his arm.
“Aaron…..” I started, but he barreled right over me.
“My desk chair fell on top of me when I was reaching for apples and peanut butter, and I got a bruise!!” he explained.
She showed him his desired amount of shock and sympathy while I tried to hurry up my payment. Knowing smiles were exchanged between us as I readied to leave. Well, knowing smiles shared quickly between her and me. Aaron was already off in search of his next victim, so I had to run.
So back to what Aaron notices, and then shares all too fully with us…..or anyone else who is fortunate enough to be nearby.
On Thursday I wore this blouse.

Aaron came into the kitchen, looked at me with his head tilted to the side, and then offered his opinion.
“That shirt looks like it should be colored,” he commented.
This forced me to look with new eyes at my shirt.
“Aaron,” I asked. “Does this remind you of the adult coloring books that you and I have seen?”
“YES!!!” he replied, so excited that I had gotten what he was trying to convey. “It looks like it should be colored!”
“Do you like this shirt?” I asked. And he told me that he did like my coloring shirt, very much.
So on that day I was fun.
The next day I wore this blouse.

Aaron had come in the bedroom and seen me wearing it, before I added a sweater.
“WOW!!” he said, in awe. “You look like a princess!”
I just laughed. A princess? But there was something about this blouse that he loved, and so he saw me as someone very special as I wore it.
On Sunday, as I was getting ready for church, Aaron came in the bathroom and saw me wearing this blouse.

“Ewwww,” he said in a measure of disgust.
“What’s wrong?” I asked him.
“What you have on,” he answered.
“Don’t you like it?” I asked.
“NO!” he replied. “It’s ugly.”
There was something about it that wasn’t fun like my coloring blouse and wasn’t special like my princess blouse. This blouse, to Aaron, was ugly……ugly enough to him that he reacted instantly to it. He wasn’t trying to be mean. He was just being honest. The design; the colors that he saw since he’s color blind, perhaps; or maybe the style – whatever it was, he didn’t like it one bit.
I’ve thought about all this since our morning yesterday. Aaron was not one bit happy to be going back to Paradigm after enjoying his weekend. I’ve learned to just let him work through it, to not force the issue, but to let him make the decision. He knows the consequences of going and of not going, so it’s good to let him be the one to choose.
But yesterday, on this Monday, he was extra unhappy and extra grouchy. Downright hateful a couple times.
“I want a break!!” he angrily told me.
“You just had a break,” I told him back, but not angrily. I know better.
“When was my break?!” he wanted to know.
“Saturday and Sunday,” I answered as I fixed my hair.
“Don’t say that Saturday and Sunday were my break!!” he told me.
“OK,” I said.
So I’m fairly certain he came in the bathroom a dozen times, each time saying with more and more anger, “Don’t say that Saturday and Sunday were my break!!”
He continued on down his anger path. I didn’t react……I breathed deeply……I prayed…..and I looked forward to Aaron making up his angry mind about what he wanted to do.
He finally came in the bathroom, bent over while he rubbed his hands together, and said, “I don’t love you anymore!!!!”
Then he was spent. I was, too. He walked away, calmed down, went to Paradigm while he happily listened to music, and the storm passed.
What I wear, in a sense……what I display to Aaron when he is so angry…..makes a huge difference in the outcome. It’s much like my blouses that caused a reaction in Aaron. If I show anger when he is angry, the result is explosive and nothing is accomplished. If I show patience, then he sees that his anger isn’t accomplishing what he hoped it would. If I ignore him totally for awhile, he becomes uncomfortable and realizes that he has crossed a line.
I can choose what I wear during these episodes just as much as I chose those three different blouses on three different days. Will I be fun, or special, or ugly? Every situation with Aaron is different, too, so I need wisdom…..which is a big reason that I pray.
Oh, I get upset, too. I mutter under my breath……think not-so-kind thoughts……and if Gary’s here, he is at times my sounding board, as I am his.
But still, what I wear in front of Aaron is so important. Above all, I must wear unconditional love. It’s hard sometimes to do that, especially when he tells me he doesn’t love me anymore. Thankfully, that doesn’t happen often, but when he does go that far, I struggle.
When I picked Aaron up from Paradigm that afternoon, he acted as if nothing had happened between us at all. And last night, as we watched Wheel of Fortune, Aaron starting rubbing his hands together wildly.
“MOM??!!” he loudly said, “I LOVE YOU!!”
Which is Aaron’s way of saying that he is sorry, and that he does love me for real.
I slipped on some forgiveness right then.
“I love you, too, Aaron.”
It felt very nice, maybe like the princess blouse. And fun, like the coloring blouse.
I’m thankful the ugly was gone, at least for now.
I was in TJ Maxx with my elderly friend, Nora, last Wednesday when I got a call from Paradigm, Aaron’s day group. I was tempted not to answer it, figuring it was Aaron just wanting to tell me about his day. That could wait. But I wasn’t sure, so I did answer and I immediately knew that the news was not good. Aaron was on the other end, his voice thick and choked with anger and tears. Here we go, yet again, I thought. How I wish that Aaron could stay happy!
I picked him up as soon as I got Nora settled back at her apartment. Aaron was asleep, so I had time to talk to the staff, all of us scratching our heads as to what caused his angry outburst that morning……and what the solution could be. I found out from Aaron later what happened. He tried to give his good friend two McDonald’s coupons and she didn’t want them. She wasn’t being mean to Aaron, just honest, but Aaron felt rejected and very hurt, so he just had a total meltdown.
Thursday was a better day for Aaron. Then came Friday…..
I told Aaron that we would go out to eat when I picked him up at the end of his day. His choice. So he chose Denny’s, of course. He does love Denny’s. On the way to Paradigm, I talked to him about being nice…..being kind with both his words and his hands. About talking to someone if he was angry or hurt. He agreed with everything I said……until he walked into Paradigm.
I was waiting in the van after I dropped him off, waiting for him to come and tell me if they were going to a movie. But instead, out the door came one of his staff. She told me that Aaron had become verbal instantly with another client when he walked in the door. Then out came Aaron, yelling at this staff as he stood on the sidewalk. He eventually got in the van and off we drove. My anger and disappointment and great frustration spilled out in harsh words as we drove toward home. I was so mad at Aaron and mad at myself for being mad, and it just all boiled over.
I pulled into Denny’s, deciding that it might do us both good to be in a neutral place. Aaron sat on the curb before going in, saying that maybe he just shouldn’t go in to eat. I told him to come on and he did, but for most of the meal I just sat silent. I was exhausted and defeated and still battling my anger. Aaron was scared……scared because of all the people from whom he fears rejection, he fears it the most from me. He kept telling me that he loved me……kept trying to share his salad with me…..his crackers, French fries, chicken strips……even reached over, took my hand, and kissed the back of my hand. Yes, he really did that. I wonder who saw it, and what they thought of my lack of emotion?
We ran into WalMart after our meal, where I picked up food for Thanksgiving bags for church, and Aaron tried to help. I still felt numb, tired. After I checked out, I looked toward the bench where Aaron was sitting, and this is what I saw.

Then my heart did stir with sorrow for Aaron as this picture of him was a picture of dejection, and his own tiredness. Oh Aaron, how I wish your life wasn’t so difficult and hard! And how I wish you could understand that you so often make it that way, and yet so often you can’t control the impulses you have that make you make it that way. It’s so complicated!
Aaron went right to bed when we got home. I went to the patio, baby monitor and my Bible in hand. I could listen for seizures while I spent some time unwinding and processing……reading my Bible and praying. I could hear Aaron’s steady breathing on the monitor as I breathed out my prayer to God, asking Him for wisdom to know how to deal with these constant ups and downs from Aaron.
I called my friend, Wendy, who walks this road that I walk. She understands and doesn’t judge. She offers counsel and advice, empathy and understanding. And I know that she prays for us, for Aaron……prays with love and care.
Aaron was awake then, coming outside to test the waters……to see if Mom was still distant and angry. He relaxed some when he could tell that I was better. He smiled when I said that we could take Jackson for a walk around the yard.

We walked down to the back of our yard, around the huge evergreens that hide the very back loop of our property. It’s an area that is hidden from view as you stand on our patio or look out our windows. You would never know it’s there until you walk behind the thick trees that keep it hidden.

I stood looking at the eerie sight. Branches of the old trees there hang low, gnarled together as they bend toward the ground. A finger of the neighborhood lake curls around under the limbs, still holding water since we’ve had such a wet summer. It’s a shadowy and dark place, a little creepy even. It’s interesting, but not warm and welcoming……not a place I want to linger for long.

As we stood there, Aaron talking and Jackson sniffing the bushes and tall grass, it hit me that this is so much like our life with Aaron. Anyone who lives with a person who has autism…..or multiple seizures…..and takes tons of meds to help them…..knows what I mean.
Aaron is funny and smart and often kind. But he is also prone to angry outbursts where he is hurtful and unreasonable. For days we may mostly see the pleasant side of Aaron, but we know that hidden inside him is still the anger and the frustration that he feels, and sometimes releases. It is not a fun place, and it is not a place where we desire to linger. Yet sometimes Aaron makes us linger there as his brain is going through whatever his brain goes through at those times.
I know that mentally and emotionally I must walk away from the shadows that threaten to engulf me when I am overwhelmed by Aaron’s behaviors. He needs me, for one thing. And I need to stay whole and strong, loving and forgiving. It’s not easy, but I must. Friends and family help. A good staff at Paradigm helps. Gary is my biggest help, taking over when I can’t. And definitely, crying out to God helps the most.
Aaron and I turned from that scene, finally, and went back out into the open yard…..to the sunshine and grass……to the full view of our welcoming house. Likewise, given a little time, he and I returned to our normal relationship. I love him dearly. I know he needs me. He needed me when he had three hard seizures during the night on Friday. But he also needed me even more when he was out of control emotionally that day. He needed me to believe in him…..to discipline him……to try to help him even when he pushes me away……to care for him and to love him.
Behaviors are perhaps the hardest part of Aaron’s disability. They are frustrating, embarrassing, and exhausting at times. Families who deal with this need extra love and prayer. Staff who deal with this need the same, as well as frequent thank-you’s for what they endure.
Aaron’s behaviors hold him back in many ways…..and could easily hold us hostage in many ways, as well. But Gary and I know that we can’t let the dark times be our focus. Like the staff at Paradigm says, today is a new day and we start all over.
We don’t always get to choose our view on any given day, but we don’t have to stay forever where the view is scary and dark.
“Today is the day that the Lord has made! Let us rejoice and be glad in it!” (Psalm 118:24)

Yesterday after supper, Gary and Aaron took a walk out in our back yard with Jackson. I looked outside and felt warmed by the sight of the two of them walking together. What a picture of reconciliation! The restoring of relationship is something we do fairly often with Aaron. We must….because we love him and because it’s right. All of us have these family moments and life moments where we have to come together again with those who have angered or hurt us. Gary and I have to be the adults in these situations with Aaron.