Aaron grew and thrived normally, never giving us pause for alarm in any way. He was bright and curious, and as cute as he could possibly be. Aaron knew all of his letters, randomly, before he was two years old. Gary was so shocked one day as he held Aaron on his lap before his second birthday. Gary was reading a magazine and suddenly Aaron started pointing to the letters on the page that Gary was reading. Aaron was telling what each letter was and in his amazement, Gary called urgently for me to come. I thought that Aaron must have hurt himself, so I ran downstairs to find Aaron safe………..and calling out letters as Gary would point to them. We laughed and cheered for Aaron, and Aaron was delighted……..though he wasn’t quite sure why.
As Aaron grew, we noticed that he was sometimes a little different from other children. Still we weren’t alarmed. His funny clapping seemed like an appropriate behavior for a young child, and was something that we knew he would outgrow. He didn’t like the feel of certain clothes or the tags on shirts, but sometimes other kids didn’t like those things either. He was very hard to potty train, but aren’t boys often that way? Then came his first seizure in the winter of 1992 while we were stationed in Germany. We were terrified at this unexpected and awful event. Aaron spent nearly a week in the German children’s hospital in Mannheim and was diagnosed with Epilepsy. I cried one night at home until I felt that I had no more tears, and then Gary and I faced the future with faith in God and love for our Aaron.
There have been many ups and downs in our journey………..many hard times and hard decisions………many moments when we thought our hearts would break……….and many times when we just wanted to walk away in our frustration during a particular behavior. But Aaron is our son and we love him deeply. With time comes acceptance and knowledge and understanding. With God all things are possible.
God allowed Aaron to be the young man that he is today. Aaron has redefined our parenting……he has reshaped our family……..he has refreshed my world on so many levels with his unique view of the world around him. Would I have designed Aaron to be this way? Probably not. But I have a God Whom I can totally trust and Who wove Aaron in my inward parts. Even though I don’t know the answers to the “why” questions, I do know the Who of creation. I trust my sovereign God with all my unanswered questions. He is an awesome God.
Here we go again. I heard it from upstairs…….the sound of the plastic containers full of coffee hitting the floor and then the thump. My heart sank as I hurried downstairs to check on Aaron. He was fine, although sprawled on the floor with spilled coffee all around him. He jerked and dropped his coffee yet again………lukewarm coffee, thankfully. And thankfully he didn’t throw his coffee containers as he has been known to do when he’s in a rage. This was a true accident, but messy and discouraging none the less.
I was frustrated with Aaron this morning over a couple things already and this didn’t help, believe me. My compassion for him still hasn’t quite kicked in yet. He has cleaned up and showered, and seems to be fine. I hope he’s not bruised.
I just stood and looked at this mess………coffee all over the floor, the cabinets, on and under the frig. UGH! And I thought of how many times I’ve just felt like throwing in the towel. We all do, don’t we, whether we are parents or not. But we can’t quit. God doesn’t and we can’t. Especially as parents……….these children are given to us by God and He wants us to hang in there despite how tough it sometimes is.
So instead of throwing IN the towel, we throw ON a towel. We clean the messes up step by step, bit by bit. We’ll see progress one day, even if it’s slow to come…………even when we just stand there and don’t know where to start. God gives patience; and God gives us the same grace toward our children or others that He has extended to us. We clean up the messes, whatever they may be, and we push forward.
The rest of the day is before us. It’s up to me now not to mess up my reactions and my attitudes. I’ll need to grab another towel if I’m not careful!
I remember being pregnant with Aaron and hearing the term “nesting.” I wondered if that phenomenon was really true, and later discovered that it certainly was. I had the rush of energy and the desire to get our nest in order before Aaron’s birth – and he was three weeks early! Interesting!
I find myself considering our nest again, but now on the other end of the spectrum. Goodness, how time flies! And now I sound old even in just saying those timeless words about time. I don’t really feel old, but soon our nest will be a little emptier, and I know that the years have rushed by much faster than I ever dreamed they would when I was knee high in diapers and runny noses.
Tomorrow, barring any delay, Andrea will officially be moving to her new apartment. She’ll only be an hour away but the distance isn’t what matters. This marks the beginning of her independent life. She’s worked since she graduated from college, but has patiently still lived at home as she waited for the wisest opportunity to launch out on her own. That time has come for her, and no one could be any happier for her than Gary and I are. Yes, we’ll have the normal sadness as we watch her go, but the sadness is tempered by the happiness we feel for her. She has a job that she’s wanted and that God put into her lap, so it seems, and now her own place. Her patience has paid off and we believe that God has honored her.
When Aaron found out that Andrea would be moving, he was very surprised. He blurted out, “NO MORE ANDREA??!!” Well, kind of, Aaron………….she’ll still come to visit but no, she won’t be living here anymore. He’ll miss her a lot, as we all will. And she’ll miss him, too – in some ways more than others, for sure.
The nests I’ve seen around our yard, up in the trees, are all empty. It’s the time of year for empty nests. When I think of our nest, the Moore nest, I know that we have a different nest than many other people have. We’re not alone in our uniqueness, certainly, but we are in the minority. At our age, Gary and I should have an empty nest…………but when you have a child, or an adult, with special needs – sometimes the nest won’t be empty for a long time, and maybe never.
This fact hit me at some point when Aaron was entering adulthood. Some of our friends were anticipating their own empty nests, or celebrating that fact when it occurred. None of us dislike our children, but when the time of life comes that our children move on and we’re still young and healthy enough to be alone again – well, it’s just fun! But as Gary and I dealt with the reality of Aaron’s needs, part of that reality that hit us square in the face was that Aaron may not leave home for a long time.
I’m not complaining and I sure hope I don’t sound whiny. When we were first exploring what options we had for Aaron’s services, we chose an agency that would provide Aaron with a group home. We were definitely headed in that direction…………..until one of the staff physically and verbally abused Aaron. Gary and I considered that door shut, and so have kept Aaron at home with us. Some day we will have to cross that bridge again, but we don’t know when that will happen. His day group is a blessing to all of us, with an awesome staff. But honestly, I can hardly imagine someone being able to love and understand Aaron enough to live with him, to care for him during his seizures, to know how to defuse him when he’s angry, to read his body language, and on and on.
There are some lessons that I have learned over the years in regards to our lack of an empty nest at this point in our lives. I don’t always practice what I preach, but I have learned:
1. Do not compare myself to others!
This is a trap that I think we women fall into so easily. I remember in our early years of marriage how I would listen when other wives told me that Gary and I should do this or go here or experience that. I had to learn not to compare our lives with their lives. Now as I think of Aaron being home I must also not compare our lives to those who are “free.” God has given us this life with this situation, in His sovereignty, and to live any other way than in freedom would be defeating.
2. Do not covet the life that others have!
This goes along with not comparing ourselves to others, but coveting takes it one step further down that slope of sinful behaviors. Other couples may have more time alone, more opportunity for travel, more peace and quiet, more time for their own hobbies or pursuits……..but I should never covet these things. Coveting is purely sin!
3. Be content!
Paul had a lot to say about being content………….”Godliness with contentment is great gain;” and “I have learned in whatsoever state I am, therewith to be content.” Being content is an act of my will and an act of obedience to God.
4. Count my blessings!
I have so many reasons to be thankful and so many blessings to count, every single day! And counting my blessings keeps my mind on positive attitudes and focuses me once again on being content.
As Andrea and I worked in her apartment the other day, we noticed the pretty tree out the front window. It’s a Redbud and this spring it promises to provide lots of beauty for her to enjoy. As I was working on something, Andrea said, “Look, there’s a nest in the tree.” And sure enough, there sits a nest up in the branches of the Redbud. What a perfect reminder that now Andrea is starting her own nest! Her first nest is not like my first nest, but it’s a nest and will be blessed by God as she honors Him.
And I want to continue to honor God with the nest that God has given to Gary and me. Our last bird may be here for a long time, but that’s OK. What a privilege to mother our special bird!
Besides, what would I write about if not for Aaron?
Aaron is now 27 years old. I know that he is a man, a grown man, and that fact is very hard to imagine. 28 years ago Gary and I were anxiously awaiting the birth of our first child. I had made all the yellow gingham nursery curtains, bumper pads, changing table covers, and decorated with yellow, fluffy duck decorations. Everything was as I wanted it. And even though I went into labor 3 weeks early and Gary had just changed out of his flight suit when he rushed me to the hospital, we were really ready – for the most part – or so we thought. What new parents can ever be really ready for the responsibility that awaits them? And what new parents can ever comprehend the depth of love that washes over you when you first hold that little part of both of you? Aaron was so little and perfect and beautiful. And my radar screen was still showing sunny weather with not a storm in sight.
When Aaron had his first seizure and was diagnosed with Epilepsy, and then years later was diagnosed with Autism, we were completely unprepared. We never, ever expected such a thing to happen to us. To someone else, yes. Someone we would read about in a magazine, or hear about from a friend, or receive a prayer request for at church. The reality of this event in our lives with our Aaron was just so unexpected and unwelcome. And as I said earlier, when I got home from the hospital after his Epilepsy diagnosis, I cried my heart out with tears for Aaron, for us, and with pleas to God for His grace and strength.
I had a choice to make and I chose to focus on what I KNOW. And what I know is that God is sovereign. God is in control and none of these events surprised Him or confused Him. God loves me and God loves Gary, and God certainly loves Aaron. I cannot and will not ever try to explain the ways of God. There is no unfairness with God, I do know that. So instead of wasting time and energy trying to explain the why of our situation, my choice was to trust the Who in our lives. And that would be God. I know from my walk with Him for all these years and from reading His Word, Who He is. I know that His sovereign plan is best even when He doesn’t choose to reveal it all to me. I trust Him and I love Him and I have found Him always faithful. Those things I know.
While in Leavenworth, God gave me Psalm 18:29: “For by You I can run upon a troop; And by my God I can leap over a wall.” I just love this verse! It’s my theme verse in so many ways. Oh, the walls that I’ve run into in our life with Aaron! I’ve shared many of them in the past few posts. So many times I’ve run into walls, beat my head against walls, beat my fists on the walls, tried to climb walls with my own strength – but by my God, I can LEAP over the walls. What a promise, fulfilled in so many different ways in so many different situations. So I also know that with God, I’m a wall leaper!
But there are also some things I feel, and feel deeply. These feelings come from within my mother heart. I think of my heart as having various doors that open when needed. Doors of love, of wisdom, of encouragement, of laughter, and on and on. But there is a door that I rarely open because it is too painful. That is the door of my regrets and wishes for Aaron. I do not live in regret or in unfulfilled wishes for Aaron, but occasionally those thoughts slip in or that reality hits me in my heart. Once after Aaron started going to the job skills school, he came home one day and said, “Mom, I’ve noticed something. All the kids at that school have problems. What are my problems?” I struggled not to cry as I tried to talk to him about Epilepsy and Autism. He was satisfied and seemingly unconcerned, but I knew he was pondering these issues very personally now. And it broke my heart. I remember when Andrew got his license and later came home with his used truck. We had purposely not made this a big deal because Aaron was often jealous of Andrew’s life. But Aaron looked outside and saw the truck, so he asked if that was Andrew’s. I said yes and Aaron said, “I wish I could drive.” Little glimpses like that into his heart made that door of my heart start coming open. There are times for tears, but not time to wonder about what could have been or might have been. Living in defeat is not God’s plan for me or for Aaron.
And there are so many reasons to be thankful. Gary led Aaron to the Lord when he was 6 years old. Aaron has that understanding. He can walk, and run, and see, and talk (can he ever!). Things could be so much worse. He can read and understand, and even though he can be sooooooo irritating sometimes, he also makes us laugh – a lot!
In closing I want to post a piece that has always spoken deeply to me and I hope it will to you, as well.