Category: Joy

Aaron’s Joy to The World

Today after I picked Aaron up from his day group, we went to our vision center to get Aaron’s bent glasses un-bent.  This will not be the last time we do this.

Aaron was super excited to show me the Christmas antler headband he had gotten at his day group.  Of course, he grabbed it as we left the car and put it on his head as we walked in the door to the vision center.

I saw three other people sitting in the glasses area and thought our wait would be too long so I told Aaron we should just try again tomorrow.

This Plan B of mine was not acceptable to Aaron.

The poor new-to-us receptionist that was headed around the corner to the waiting area was suddenly waylaid by Aaron before I could even grab one of his antlers.  

“HEY!” he loudly exclaimed to her.  “Can I stay and get my glasses adjusted?”

She stammered as I began to tug on Aaron’s coat while explaining to her that we would come back tomorrow because the wait might be too long.

“No,” Aaron said, “can I get my glasses fixed now?  They’re bent!”

“Well, sure,” she kindly responded, “you can get them fixed today.”

“But I think we should come tomorrow,” I began.

But Aaron was taking off his glasses and reached out to hand them to her.

“Here!!” he said, “can you fix them?”

I had to explain that she was not the glasses fixer as she went back to her chair and signed Aaron in and my fate was sealed.

“Wait!” Aaron blurted out as we sat down.  “Since we might have to wait, I need to get my sticker book out of the car.”

He was gone in a flash while I watched him from the window and hit the unlock button on my app.

The car would not unlock.

I tried again.  Aaron stood there staring at me in the window and shaking his head no.

So out the door I went, got the door unlocked, and Aaron grabbed his book before walking briskly back to the waiting room.

Just as we walked in, the technician who knows us smiled broadly as she called Aaron’s name.  

Actually, everyone knows us if I have Aaron with me.

This lady is the kindest person and she loves Aaron.  She complimented his green sparkly reindeer antlers and then asked to see his latest sticker book.  She took all the time in the world to talk to him, all the while with a huge grin on her face and true delight.  

He was already busily filling his sticker book page as she got up to go in the back and work on his glasses.  The page wouldn’t stay open, so he took the mirror on the table beside him and put it on the page to hold it open.  He acted perfectly at home to do that.  

I just relaxed in my chair.  It felt good to take a breath after our very hectic and loud entrance.  It was a big relief to be with someone who knows Aaron and who loves to talk to him.  

Aaron didn’t see anything at all amiss about his loudness.  He was totally unaware that all eyes were on him.

But me…even after all these years I still feel the eyes of the people around us and I struggle sometimes with embarrassment.

Yet I looked at Aaron sitting there, green antlers and all, with the mirror holding his book open and his eyes intent on each sticker being placed just right…

And I thought how to Aaron, everything in that moment was just right, too.  He was getting his glasses adjusted and he was talking to someone who truly was interested in his every word, and he finished the picture he had started.

I looked around and saw the other technicians smiling at Aaron and at me.  His comments were delighting them.

Aaron moved the mirror and gathered his book up after we were done.  He was up and off without even a goodbye as our friend just laughed with…joy.

That was it, I thought.  Joy.

I saw other patients smiling at us as we walked out, Aaron’s green antlers shining as he led the way to the door and the car.

There it was again as we passed them.  Joy.

It was on their faces.  I wondered what was on my face when we first came in the waiting room.  I can tell you it wasn’t joy.

There are plenty of times that Aaron exasperates me but today it did me lots of good to pause and see that Aaron does have his unique and uninhibited way of spreading his own brand of joy to others.  

I want to remember this day.

Green antlers and all.

My Occupied Heart

On a shelf in our family room is this picture taken in 1983 at Gary’s Flight School Graduation Banquet.  We were at Fort Rucker, Alabama, where Gary completed the Army’s helicopter training.  

Because of my dress, Aaron thinks this picture is from our wedding day.  He loves showing people this picture when they are at our house.

“This is my Mom and Dad getting married,” he begins.

“No, Aaron, this was not our wedding…” I try to interject.

“See?” Aaron interjects above my interjection.

“Mom was skinny,” he says too loudly.

The ensuing laughter only encourages him.

“She had long hair,” he continues.

My death stare matters nothing to him.

“And she was young,” he finishes with a flourish.

At this point Aaron is bent over, rubbing his hands together furiously…which indicates great excitement…and laughing as he relishes everyone’s reactions, especially mine.

It’s obvious that all these supposedly desirable traits are in the PAST tense, right?

You know, I have never let my age bother me much.  I am thankful to be healthy and able bodied.  I don’t have cataracts or glaucoma, and so far, I do have my original knees and hips…and most of my original teeth in one form or another.

But if I focus on what Aaron says about my former self, well, it can be downright depressing if I’m not careful.

Tomorrow I will celebrate another year of life.  And for some reason, this birthday has made me blink a few times.

Like…wait, what?!  I’m HOW old?

I’m not ashamed of my age, so I’ll just come out with it.

I am…ahem…about to turn 69 years old.  

You know what that means about next year.  

GULP!!!

Gary and I got a late start at marriage, an even later start at having children, and a very late start to have a grandchild.  That last one was out of our hands.  Somehow, it’s all made me feel like I’m not as…ahem…old as I really and truly am.

Yeah, I cover some of it with hair color but then there are the moments when I stand up and feel my hip give a twinge it didn’t used to give…that original hip.

Times I back into a chair and realize that’s exactly how my Grandma did it.

There’s the periodic catch in my back that makes me realize why some people walk bent over the shopping cart handle.

Why do I seem to need a little power nap more days than not?

And I am not even going to discuss the wrinkled neck!!

I’ve been studying through the book of Ecclesiastes, and I had to laugh at the verse I read just two days ago.  At the end of chapter 5, Solomon talks about how God desires that mankind enjoy God’s gifts, whether the person is poor or wealthy.  It’s foolish to moan over being poor or to hoard your wealth. 

Then comes this jewel in verse 20:

“For he will not often consider the years of his life, because God keeps him occupied with the gladness of his heart.”

God gave me my birthday verse!!

There is NO reason for me to be consumed with the wear and tear of my body parts, to worry about my not-as-sharp mind, and all the rest of it.

I am instead to live with a heart that is occupied with the joy promised to me by the giver of real joy…God Himself!

“You have put gladness in my heart, more than when their grain and new wine abound.  In peace I will both lie down and sleep, for You alone, O Lord, make me to dwell in safety.”   (Psalm 4:7-8)

What will occupy my heart in year 69?  

The choice is mine.

The ability is God’s.

Sticker Shock

Last week in Walmart, Aaron was excited to show me a sticker book he had found.  He wanted to give it to Ryker, his nephew, and if you know the history there then you know that this was a very sweet gesture.  But I told Aaron the sticker book was way too advanced for Ryker but added that I thought he should try to do it.

Now Aaron isn’t very keen on most craft-type projects.  As I showed him how you match the lettered and numbered stickers to the spaces on each picture, he became more interested.  So, we bought the book and home we went.

To my great surprise, the first time that Aaron and I worked on the first dog picture, he was hooked.  He absolutely loves finding the correct sticker and matching it to the right place on the picture.  Aaron is a little shaky because of his seizures and seizure meds, but he is really doing great with putting the pieces in each space as carefully as he can.  After I sat with him for that one time, he has finished each picture mostly on his own with only a little help from me here and there. 

He is SO excited about this accomplishment!  He wanted me to take a picture to send to everyone.

Aaron is very happy with this sticker book and with how well he is doing with it.  It’s great fun to see.  And he wants everyone else to see as well!

He took it to his Epilepsy doctor, who was so nice to take the time to let Aaron show it to him.  

His office staff and the nurse were also kind enough to look at it and let Aaron explain all about the stickers.

Aaron took it with him, along with a new cat sticker book we bought, as we went to visit our friend Speedy for his birthday.  He showed them all about it and Speedy’s mom ordered him some right there on the spot.  Aaron was thrilled!

That morning as I was having my quiet time, I heard Aaron rolling his chair up the hallway.  In the room he came, sitting in the chair as he guided it with his feet, and rolled up to the bed.  He proceeded to open his sticker book and get to work.  

“Um, Aaron,” I said, “this is my quiet time, so you need to run on and do your stickers in your room.”

“But Mom,” he replied, “I can have my quiet time here, too.  I can be quiet!”

Aaron being quiet is a miracle that God has not granted yet.  

Off he rolled, back to his room.

I was out for a bit yesterday morning and when I drove back to the house, there was Aaron sitting at the end of our neighbor’s driveway…talking, of course, and showing our two very sweet neighbors his sticker books.

Today he showed all our Meals on Wheels clients his dog sticker book, letting one find the correct sticker and helping her put it on the right spot.  Then he took the book into Pizza Hut and worked on it while we waited on our lunch.

You might wonder why I am writing about all this.  It’s because Aaron has never really enjoyed painting or coloring or drawing or most other art projects.  He will do them reluctantly, with lots of our help, but his heart is never in it.

But this sticker book has captured his attention enough that he was willing to try it on his own.  It’s a huge victory for him and for me!

I’m as thrilled as I was when he learned his alphabet before he was 2, and taught himself cursive, and how to read and do math.  

That was so long ago, and over the years we see regression in some areas as well as frustration on Aaron’s part about what he CAN’T do.

But this sticker adventure has been a huge shot in the arm for Aaron.  He is delighted with himself, and he is so happy that he has something he can share with others…something that HE did on his own!

At this time of graduations and awards and all the pride that parents feel, it’s just sweet that we can praise Aaron for a job well done and see the joy on his face.  

And then to see the understanding and the shared excitement that others share with Aaron is just the cherry on top.  

It may “only” be stickers, but oh, it is SO much more to Aaron!

My Choice

Well, I can tell you right now that this blog subject won’t be what some people think it’s going to be.  I just realized how this title sounds as I typed it.  Hmmmm…

Anyway, let me pop some bubbles right at the beginning by sharing this sign that is hanging directly above my quiet time/study desk where I sit nearly every morning, coffee in hand and Bible open.

It reminds me that every day I have a choice to make.  Throughout my day I can choose how I will allow the events of the day to affect me. 

And no single person creates more events in my life than Aaron.

In one sole day you might very well find me laughing, crying, yelling, sighing, worrying, cringing, thanking, guessing….

That’s just the condensed version.

 Last week on our Wal-Mart shopping trip, Aaron took off at a fast trot to go check out the candy and nut aisle.  

“Don’t run!” was all I managed to remind him before he was out of earshot.  

I hurriedly completed my shopping.  I then took off at my own fast trot to see what was occurring on aisle 20.

I rounded the corner to this scene.

Add blushing to the list above.

There sat Aaron cross-legged on the floor as he searched the very bottom shelf for something.  Red Hots, I soon learned.  Beside him he had stashed jelly beans, peanuts, and cashews that he hoped I would buy for him.  Also beside him was a very kind associate named, very appropriately, Joy.  

Joy had found Aaron sitting on the floor.  Being concerned, she walked to Aaron and asked if he needed help.  Boy, was Aaron glad to see her!  Usually when he needs (or just thinks he needs) help, he barges toward an associate and pretty much yells, “HEY!!”  

I’m usually found nearby, or a few steps behind, hissing, “AARON!  Don’t say HEY!!  It’s rude!”

By this time, said associate is typically a mix of alarmed and annoyed which soon is replaced by amused. Maybe more amused by the look on my face rather than by Aaron’s?  Very likely.

Back to the candy aisle.  Joy soon found Red Hots up on the very top shelf, which gave Aaron much joy.

Me too.  Oh, my joy didn’t come from the Red Hots.  My joy came from Aaron being so unabashedly Aaron. Aaron’s going to do what Aaron’s going to do, no matter how many times I correct and redirect and follow him around hissing out instructions that he mostly ignores.  

I thought it was just the most perfect thing that this very sweet associate’s name is Joy.  I do believe that God was smiling.  

And again, I was too.  Others around us were very understanding as they waited or turned around.  Aaron has lots of lessons to teach everyone around him, like it or not.

I posted a little piece about this on Facebook and our neighbor across the street sent me this picture.

Here’s what she said:  “Seeing your Facebook post about Aaron sitting on the floor in Wal-Mart reminded me that I took this the other day.  He was excited to come tell me something.  He really does bring joy.  It’s always fun to hear what he’s going to say!”

Aren’t we very blessed?  Our neighbors all around us are great with Aaron.  

I thanked Gina for being so good to listen to Aaron.  I also reminded her that because of this, Aaron will just keep going over.  HaHa!

Well, we had lots of joy going on and it was really sweet.  I was reminded of this verse:

            “A joyful heart is good medicine…”.  (Proverbs 17:22)

And that’s a very good thing because I know my blood pressure was getting somewhat high on Aisle 20.    

A Rose…A Friend

Sometimes when I pick Aaron up from his day group, while I wait for him to come to the car, I just sit and watch the various clients as they come and go.  There are times that tears fill my eyes.  Their needs are various, some more severely impacted by their conditions than others.  But each of them live challenging lives.  I am always humbled and amazed at their tenacity as they carry in their minds and bodies burdens that I have never faced.

This year, once again, our Dillon’s grocery store donated roses for Aaron to take to Paradigm on Valentine’s Day.   Jody, our sweet friend that we have come to know there, has made that happen for several years. 

Aaron is hesitant about all the hoopla of holidays.  He loves giving things to people but still he was nervous about taking the roses in to Paradigm. 

But oh my, it was a precious thing to see.  Barb and I had to remind Aaron to give a few to some of his less-favorite people, and their reactions warmed my heart. Just so you know, none of those persons is pictured here.

Just watching each client smile with delight was the highlight of my day. 

My flowers from Gary were a close second, but nothing beats just seeing the joy that a simple flower brings to these very special ones. 

I think more people would have a different outlook on life if they would go visit a special-needs day group…maybe take some things and bring some smiles and love to those who often need it the most.

I’ll leave you with these pictures.  Prepare to smile yourself.

        

“A single rose can be my garden… 

 A single friend…my world.”   (Leo Buscaglia)

The Special Quarter

I had taken Aaron in for his physical at the air base, which in itself is full of interesting Aaron moments. 

Here’s one:  He was very worried that he would need to give a urine sample, which he completely does not want to do.  We walked up to the counter at the Immunization Clinic to sign him in for a TB test.  I always try hard to be the first one at these windows in order to spare the poor airmen from Aaron’s loudly blurted and random comments or questions.  I indeed was in front of Aaron but this in no way deters Aaron.  As I signed him in and explained what we needed, Aaron pushed his head around the side of the window.

“DO I NEED TO PEE HERE??!!” he loudly and nervously asked.

I have to say that the look on the faces of the two airmen in the clinic was priceless.  I have no idea about the look on my face, but on Aaron’s was a look of panic.  I explained to the airmen as best I could while I tried to calm Aaron and sign him in on the clipboard.  And Aaron continued to ask his question over and over, bless him. 

Most people who encounter Aaron are treated to an impromptu lesson in special needs.  Like the lady yesterday at Wal-Mart in the produce section…the one that Aaron followed as he asked her if she liked cabbage because we were buying cabbage and he just HAD to know if she liked cabbage and why did she like cabbage…  All while I was calling to Aaron to come with me and trying to distract him from his quest to discover if this woman liked cabbage like we like cabbage.

And the dear cashier, who had to answer lots of questions from Aaron and listen to his commentary.  Do you like chocolate cake?  Do you like chocolate icing on your chocolate cake?  Guess what we’re having for supper?  Steak!  Do you like steak?  What kind of steak do you like?  I like boneless.  Do you like boneless?  Mom, what kind of steak are we having…….

Outings with Aaron, of whatever kind, often leave me with a variety of emotions.  Humor.  Embarrassment.  Frustration.  Joy.  Relief…when it’s over!  But mostly, I really do love my times with Aaron, stressful as some situations are. 

After his physical, we went to Jose’ Pepper’s to eat.  His favorite thing to do in all the world is to eat out.  And when he has gotten to know a server, like Emily at Jose’ Pepper’s, then his fun is doubled.  He walked in the door laughing and rubbing his hands together, oblivious to any stares from others.  He immediately spied Emily and he was off, trying to talk to her as the hostess was trying to figure all this out and get us seated, and I was trying to calm and quieten Aaron, and Emily was smiling broadly. 

We do make an entrance.

We were nearly through with our meals when Aaron spied something on the floor beside us.  I followed his gaze as he leaned out of our booth for a closer look.  There on the cement floor was a quarter.  Aaron was out of the booth in a flash!  He picked up his great find and proceeded to examine it closely.

“MOM!!” he very excitedly said, “it’s a state quarter!!  It’s HAWAII!!”

He was beyond happy at this treasure that had been laying right there on the floor for who knows how long.  Look at his wonderful smile.

He did not have a Hawaii quarter.  It is now safely in its place in his state quarter folder. 

For that day, for that moment, Aaron had found a priceless gem.

And I thought, as I watched him so full of delight at something that would be less than impressive to most of us, how this moment is so like my life with Aaron.

Do I focus on the routine life we have?  Do I see him through eyes of frustration or embarrassment?  Yes, I often do.

But I CAN make the choice to view him as a real gem, full of his uniqueness and spontaneity.  Sure, he can be aggravating and especially embarrassing in public, but how funny he is!  How refreshing…sometimes.  😊 

How full of lessons for Gary and for me, and hopefully for many others who encounter him. 

So, when we are walking to our car after our excursions, and I take a deep breath in order to settle my mind and calm my nerves, may I also use that same breath to thank God for the special treasure that He has given me right beside me in this life. 

And may others who bump into Aaron in the produce aisle, the check-in counter, the check-out lane, the restaurant…wherever we are…realize that there are many walking among us who are very special indeed!

What a gift it is to find them!

Glamorless Glory

“Mom,” Aaron quietly said as he was getting ready for bed, “my toilet is stopped up.”

Aaron dreaded telling me this.  It was the third time in a few days that he had managed to stop up one of our toilets.

And this third time was NOT a charm, but instead was a huge mess.  I could have gotten Gary to do the dirty clean-up. 

“No,” I thought, “I can do this…yet again.”

I did think a few times that I really should have called Gary.  UGH!!

This was an opportunity for me to practice the patience that God is trying to teach me.  And to…once again…school Aaron on the proper treatment of our toilets. 

Why do these things happen so often at night when I am most tired?!

You know, being a caregiver of any sort can be exhausting.  Being a mom…a homemaker…the one responsible for the needs of whomever is under our care…has its many moments of humbling work.

Special needs or other health issues certainly add to the mix a new level of care.

And a new level of seemingly lowly service. 

Because face it, cleaning stopped-up toilets or throw up or wet bedding is not exactly something to write home about.

Even as Christ followers, we envision that the far-away mission field is more glorious and honoring than the dirty work we often do within the walls of our own home.

Not long after this third toilet episode, as I lay in bed reading, I felt compelled to check the FB page of my favorite author, Dale Davis.

His son had posted this piece.  I hope you will read it slowly and fully.

“When Mary was not nursing her son, she placed Him in an unused feeding trough (of wood or stone) right next to her…But a feeding trough! Let us never be surprised at the humility of God. The Westminster Shorter Catechism asks (Question 27) Wherein did Christ’s humiliation consist? Its answer begins: ‘Christ’s humiliation consisted in his being born, and that in a low condition…’ Its scriptural proof text for that ‘low condition’ is Luke 2:7. In a feeding trough, needing a mother’s breast and a change of diaper. How very incarnate the incarnation is! And yet what encouragement is here. For if Christ stoops so low, to such a ‘common’ level, does this not sanctify all that seems common and ordinary and unimpressive in the lives of His people? To be quaint and go back a few years–the weaver laboring at his loom, the farmer putting up hay, the mother cleaning her oven, or the teacher tutoring her ‘slower’ student in reading, the accountant preparing tax returns, the pastor reading in his study, the doctor diagnosing a perplexed patient. Jesus’ feeding trough suffuses all the glamorlessness of our callings with a touch of His humble glory.” (Dale Ralph Davis, “Luke 1-13: The Year of the Lord’s Favor”, pp. 46-47)

Tears slid down my cheeks.  For Christ, who stooped so low to be born in a dirty animal cave, and laid in a feeding trough, does sanctify and will honor the grimy and the mundane work that I do…even if I do not see the results of it.

God has always chosen to use the less than exciting places and people and moments in order to draw attention to His glory.

Jesus’ mother, Mary, was a very young teenager in a town that was looked down upon by everyone.  She and Joseph were poor and unknown.  They were no doubt the subject of malicious gossip because of Mary’s pregnancy.  Then Jesus was born in the humblest of places with no great fanfare.  Mary and Joseph had to escape to Egypt in order to survive Herod’s wrath. 

And all through Jesus’ ministry we see Him using the most common people in the simplest of places in order to proclaim His message.

How can I wonder if He is doing the same with and through me? 

I have no doubt that many of you are feeling like me so many times – like I am in a rut of caregiving and for WHAT?

But may we not allow the allure of the world’s values concerning glamor to be ours.

May the touch of God’s humble glory turn our glamorless callings into moments of praise and joy.

And may we be grateful for every stopped-up toilet as we see it through God’s eyes…an opportunity to share in His humility and to give Him glory. 

Our Utopia

One recent night, after Aaron and I had watched an episode of The Waltons, I had a brilliant idea.  Now you must understand that after the program we are watching is over, Aaron wants the television off.  No watching ANYTHING else when our show is over.

Don’t ask me why.  Don’t ask me to explain many of Aaron’s quirks.  He has his own rules in his own way, and he expects us to abide by those rules.  If we don’t…well, it’s not utopia around here.

Back to my brilliant idea.  During our last visit to see our daughter and son-in-law, Andrea had shared a fun song with us.  She played it on YouTube, on their big screen TV, and I LOVED it.  The song is Sea Shanty Medley by Home Free. 

Fast forward to our house on this particular night as Aaron and I finished watching The Waltons.  I wisely decided that while Aaron cleaned up the multiple snacks he carries to the family room to tide him over during our show, and while I finished my before-bed chores, that I would turn to YouTube on our new big television and listen to Sea Shanty Medley.

So, I did just that. 

And Aaron became unglued. 

Watching something…ANYTHING…after our show is not allowed. 

“MOM!!!  Turn that OFF!!” he exclaimed.

And I…being the kind mother that I am…turned the volume up a tad.

Aaron also turned his volume up more than a tad.

So I…remember my kindness…played the song a second time.

Let’s just say that it was quite a relief when Aaron finally fell asleep later.

The next night, after watching the next Waltons episode, Aaron’s head jerked around to me as soon as the last Walton’s goodnight and musical note was over.  He was checking to see if I clicked on YouTube again.

“MOM!!” he loudly said, “don’t listen to that UTOPIA music like you did last night!!”

Oh my goodness, how he can make me want to laugh in the middle of my frustration!

I wanted to correct him.

“It’s YouTube, Aaron, NOT utopia!!  Believe me, this is not utopia around here!”

But I didn’t. 

However, his comment has made me think a lot about our version of utopia.

Utopia – defined as a place of ideal perfection especially in laws, government, and social conditions.

Aaron’s version of utopia centers around his desire to have his life ordered in those rather eccentric ways that matter to him.  We do it this way every time, people!  If we cooperate, then his life is a place of ideal perfection.  Never mind that ours is not.

But life doesn’t work that way and therefore Aaron’s utopia gets all jumbled up…as does ours.

Yet even more important is our attitude concerning this utopia idea.  Gary and I do get tired of Aaron’s ups and downs…of how verbal he can be when he is angry…of how tiring it can be to try to meet his utopia demands while keeping our own in mind. 

One evening, Gary and I were particularly spent.  We snuck out to our front porch and sat in our rocking chairs, breathing at last without Aaron’s interruptions.

But then this happened.

It was another moment when our attitude was tested.  And we have learned that it’s best to adapt to each of these moments with as much kindness and laughter as we possibly can.  Easier said than done some days.

Back to our utopia.  We have changed our own personal definition of utopia as we have parented Aaron over the years.  Our satisfaction and joy must be centered in trusting God.  In knowing that where He has placed us is where He will give us what we need. 

Let me share with you some beautiful pictures of our utopia.

The pure delight of bubbles:

The sweetness of sharing a beetle with Mollie next door:

The delight he finds in animals:

The fun he creates out of the mundane:

The happiness found in a simple game:

The rapture of all that cheese on his pizza:

Our attitude is of utmost importance.  Our attitude determines our joy.  We can always be looking at that other definition of utopia…an imaginary and remote place of perfection.

Or we can resolve to look at our utopia in the face of our special son.