Month: September 2024

Lean On Me, Aaron

Yesterday Aaron and I went to his annual PCSP meeting.  How many years have we had these meetings?  More than I can nearly remember.  

His case manager and I decided several years ago to hold our meeting at one of Aaron’s favorite restaurants, Carlos O’Kelly’s.  Aaron really doesn’t like meetings that discuss him unless we’re letting him do all the talking about really important stuff.  You know – matters like whether Pluto is a planet or not, what solar flares are, and are black holes really sucking in stars?!  But mulling over matters of his likes and dislikes, what he is or is not allowed to do at his day group, what his goals are, and so on and so forth…well, Aaron would rather leave the room and find someone who IS wanting to hear him talk about planets, flares, and black holes.  But put a plate of enchiladas, chips and salsa in front of him and he’ll endure our needless talk.

Aaron had gotten out of bed super early the past two mornings.  Space videos on YouTube were calling to him, I guess.  As we sat in our booth munching on chips and salsa, he started leaning and leaning until finally he was resting against me like a little child.  

I eased him over and he sat straight for a couple minutes, but then he began leaning into me again.  I knew that he was sleepy from his very early mornings and from his meds, but still I kept propping him up so he could eat and participate in the meeting if needed.

Later, as I drove us home, I looked over at him sleeping soundly in his seat.

  

He is sometimes showing that age is creeping up on him.  He even seems a little feeble at times, like he did as he leaned on me during lunch.  I know that seizures are taking a toll.  He has memory loss, tremors, drooling sometimes, and other effects of both seizures and medicines.  

My heart is stirred with so much love for him.  So much concern for his life now, and for what the future will hold for him.

Yet there are those other moments, too…more and more, it seems.  Moments when Aaron is frustrated when things are not going his way at his time.  He is becoming more impatient with waiting, more set in his routine, and more expressive when those frustrations mount.

Therefore, Gary and I are finding ourselves more stretched on some days.  Our own frustrations mount along with Aaron’s.  Stress seeps through every crack in our strong armor.

I look at Aaron leaning on me, and I know that he needs me when he is struggling, both physically and emotionally.  His reactions are often beyond his control.  Sometimes that fact is hard to remember.

So, who do I lean upon?  

God.

Yes, Gary and I support each other.  I have amazing friends who walk a similar journey to ours.  I have great family on both sides.

But it is God Who leans down to me as He did the other night and fills me with deep peace even as the storm swirls around me…Who understands my struggles…Who speaks comfort to me…Who assures me with these words:

“Trust in the Lord and do good; dwell in the land and cultivate (feed on) faithfulness.”   (Psalm 37:3)

I can feed on so many things like anger, comparisons to others, resentment…the list goes on.  

Or I can obey God and lean into Him.  He understands my need.  And I must understand my need to trust Him and do good.

To feed on faithfulness even when I just want to walk away.

Faithfulness to God, and faithfulness to our Aaron.

Knowing that this is also true:

“Commit your way to the Lord, trust also in Him and He will do it.”  (Psalm 37:5)

Commit.  Lay on God’s shoulders the heavy burden.  

He is strong enough for all my burdens and He is there for me to lean upon when I am tired and done.

And oh, I cannot express enough about the grace that God gives me to continue putting one foot in front of the other, day after day with Aaron.

It’s not one bit about how strong I am or that God gave Aaron to such an amazing parent.

But it IS all about how God meets me in my most down moments with His sweet peace and His words that speak such joy and comfort to me.

And as I learn to lean on God, I can be there for Aaron when he needs to lean on me. 

God holds me up so that I can do the same for Aaron.  

That’s even more amazing than all the black holes in the universe!

My Cross As A Crutch

Yesterday evening I was feeling particularly burdened over several things.  I felt the weight of the loads of life more than usual.

Harsh angry words from Aaron earlier in the day still reverberated in my mind.  Even worse were my own angry words thrown out to him in response.  

Then heavy on my heart was my conversation with the husband of my dear friend of many years.  Her disease is ravaging her mind, and my mind can’t wrap around the reality of that.  Emotions that I have kept in check spilled from my eyes.

I took my old Streams in the Desert devotional book and sat on the patio, soaking in the fresh air and the beginning of dusk.  I turned to the day’s date and saw this verse:  “Whosoever will come after me, let him deny himself, and take up his cross, and follow me.”  (Mark 8:34)

I began to read the words of Alexander Smellie, a Scottish preacher who died 100 years ago.  

“The cross which my Lord bids me take up and carry may assume different shapes.  There are many crosses, and every one of them is sore and heavy.  But never is Jesus so near me as when I lift my cross, and lay it submissively on my shoulder, and give it the welcome of a patient and unmurmuring spirit.  He draws close, to ripen my wisdom, to deepen my peace, to increase my courage, to augment my power to be of use to others, through the very experience which is so grievous and distressing, and then…I grow under the load.”

Then the author added this:

“Use your cross as a crutch to help you on, and not as a stumbling block to cast you down.”

I know there are several meanings that carrying our cross conveys, yet all of them indicate a difficult load in life.  Every person I know is carrying a burden today, some more than others.

But Jesus also promised that if we come to Him with our burdens, He will give us rest:  “For My yoke is easy and My burden is light.”  (Matthew 11:30)

The word “easy” means “tailor made.”  God knows exactly what is best for me, for my dear friends, for you.  He is not cruel.  Read again what the old Scottish preacher said.  

God is near in our burdens, giving us wisdom and filling us with purpose and peace we can learn no other way.

Oh, may I…may you…use our crosses as a crutch to help us walk through this life in a way that honors our Heavenly Father and grows us more like Him.