Month: July 2024

Aaron and The Violinist

A couple months ago, Aaron found a CD in our van that he had not listened to before.  I saw that it was an instrumental CD produced by Chelley Graves.  Chelley is an accomplished violinist who taught our daughter violin for quite a few years. 

Now, Aaron only likes to listen to music that has people singing. Instrumental music is not his interest. He will even skip songs on his CD’s that have no singing, which is very telling since Aaron goes from #1 to the last song without ever skipping a song because one does NOT skip numbers. 

He popped the CD in and sat back to listen as he examined the CD case. It didn’t take long for understanding to sink in.

Aaron: Mom, doesn’t Chelley sing?! (He pronounced her name with the hard CH sound, as in check)

Me: No, Chelley (soft CH) is a violinist. She doesn’t sing on this CD.

I figured that was the end of listening to this CD. But no, Aaron kept listening to song #1, #2, #3, #4. Since you’re not Aaron, I don’t need to keep counting but you get the picture.

I was very pleasantly surprised!

The next morning, as we left the house for his day group, Aaron pushed the rewind button, and we went from #8 all the way down to #1. He wanted to listen to the whole CD again!!

This was AMAZING for Aaron on so many levels!!!!!

This was AMAZING for me on so many levels!!!! 

No more wobbly voiced Elvis, either!!!!

Chelley’s beautiful music was filling our van and making us both very happy!

Aaron was intrigued with the fact that I know Chelley.  One day he told me that he wanted to send her a card to tell her that he liked her music.  I messaged Chelley for her address and Aaron wrote her these precious words.

And then a few days later, Chelley messaged Aaron.  I printed her message and handed it to Aaron.  

I wondered how his face could hold his enormous smile.  

Aaron placed Chelley’s message on his bed with his collection of special items that he carefully arranges on his bed every night, surrounding him while he reads and listens to music before he goes to sleep.  Her letter is also on Aaron’s desk every day, a testament to how special it is for him to be acknowledged.

Chelley has recently been playing her violin at an Italian restaurant in our city one or two nights a week.  So, last night Gary and I took Aaron to this restaurant as a special treat, but also for a very fun surprise.

Chelley knew we were coming.  As we sat in our booth, she came to our table and spoke to Aaron.  He was puzzled at first but when I told him who she was, there was that huge smile again. He told her that he liked her music, and of course then he had to show her his sticker book that he had brought with him. Chelley was so gracious and kind.  

All during our dinner, he would look over at her as he listened to her play so beautifully, and his happiness was once again on his face and in his eyes. 

 

Kindness shown to Aaron means the world to us.  So does the opportunity for Aaron to show kindness to others as he did to Chelley when he wrote her that note.  

We came full circle in a sense, all of us sharing in the joy that Aaron brings in his own unique and uninhibited way.

And here’s hoping for less Elvis and more Chelley!  

Stepping Into the Mist

Several years ago, I turned onto a road near our house, and this was the scene that met my eyes.

I couldn’t see very far ahead.  And even though I knew the road, I didn’t know what might be on the road out of my sight.  The fog hid what was there, beyond my vision, but I knew I needed to go forward.

If you know Jesus as your Savior and are following Him, you know that there are certain times that He puts you on a road that is shrouded in the unknown.  I see it around me all the time, either with family and friends, or those that I don’t personally know.  And I have experienced it in my own life.

I will never forget the day that Aaron had his sudden first big seizure.  We were living in Germany where Gary was stationed in the military.  Aaron’s seizure was completely unexpected and terrifying.  I remember the cold fear that squeezed my heart.  Then came the ambulance ride, the days in the German children’s hospital, the language barrier, the exhaustion, and the shocking diagnosis of Epilepsy.  

But I also remember our first night back home, when I could finally sit at my desk and cry the tears I had held back all week.  And there it was…God’s amazing peace filled my hurting heart.  He reminded me that He had not gone anywhere…that He was with me and with Aaron…and that He was the same God whose character I had known for many years.  He had not changed one bit.  He had a reason for this unexpected bend in the road…this fog that I could not see through still held Him there with me.  

I could freeze in fear or be angry with God or be bitter about why He allowed such a thing to happen to our little Aaron.

Or I could step out in faith and trust in my heavenly Father.

I love what F. B. Meyer said: “There is nothing, indeed, which God will not do for a man who dares to step out upon what seems to be the mist; though as he puts down his foot he finds a rock beneath him.”

Moses knew this about God when he spoke to the assembly of Israel:

“For I proclaim the name of the Lord; ascribe greatness to our God!

The ROCK!  His work is perfect, for all His ways are just.

A God of faithfulness and without injustice, righteous and upright is He.

(Deuteronomy 32:3-4)

Whatever you are going through today, know that if you are following God, He will be your firm rock in the mists of fear and uncertainty.  

You will find a rock beneath your feet and that rock is God Himself.

And some day you will see that same road clearly, in all its purposes, as the best plan that God could ever have for you.

Cue The Music, Aaron…Or Not

Aaron and I were hurrying out the door a couple mornings ago so I could take him to Paradigm, his day group.  I kept feeling like we were forgetting something.  We were three miles from the house when I remembered what we forgot.

Aaron’s wallet!  

He absolutely loves his almost daily excursion to Quik Trip, where with his seven dollars he has his pick of foods…mostly of the junk variety.  Forgetting his wallet would not do!  I could have given Aaron some money, but all I had was a $20 bill, and believe me when I say that Aaron would have spent $19.99 on that junk variety food.

I reassured a panicked Aaron that we would go back to get the wallet as I headed for the next exit.  He was very relieved.

Immediately he reached over and turned off the music that was playing.  I knew why he did that, but just to test my theory…or more like a confirmed fact based on years of solid experience…I slyly reached down after a few seconds and turned on the music.

He didn’t miss a beat and neither did Whitney Houston as his arm shot out and pushed that off button once more.

“I’ll turn the music back on after we get my wallet,” he informed me, not knowing that I could have told him that about himself. 

This little episode is just one of the many ways that autism affects Aaron’s life.  He lives by a strict set of rules that sometimes only he understands but that we must obey if his life…and therefore, ours…is to be happy.

He does this same thing as we go to Meals on Wheels every Thursday.  He won’t play his music until we have picked up our food at the Senior Center and are actually beginning our route.

The wallet episode may have been a different situation, but the same rule applies.  Our diversion to go back home for his wallet had interrupted our trip to Paradigm.  This interruption was not a part of the actual drive.  Since his music is to be played on the actual drive, that music must not be played on the non-actual drive.

Are you following?

If you lived with Aaron, you better be!

It’s a matter of principle with Aaron.  

He follows this principle when we are watching a program.  Aaron will have his snack ready.  The bag or jar will be open.  The plate of food will be placed on his ottoman or his lap.  His napkins are nearby in their holder and his multiple pieces of silverware are ready to go.  His drink and straw are within easy reach.

But nothing is touched until the first scene of the show…and most critical, the opening credits…are completed and the real honest-to-goodness show has begun.

I have sat nervously by as his ice cream started melting before he will pick up his spoon and start to eat.

It does no good for me to try to make Aaron hurry up and eat, or turn his music back on, or change any other scenario of his life in which this principle applies.

Not even my deep sighing has any effect on Aaron.  He probably just thinks Mom is old and weird.

I love seeing these intricacies of the autistic mind that Aaron has.  Even when his internal rules drive us crazy, they are still very fascinating to observe.  And understanding those rules and allowing them when we can, makes Aaron’s life… and ours…much easier to navigate.

He not only follows the beat of a different drummer, but he also tells the drummer when he can beat his drum and when he can’t!  

Fearing God Openly

I remember years ago, when I was old enough to sit in church without being right beside my parents, that sometimes the temptation to misbehave was more than I could bear.  Maybe I was sitting with my sisters or with friends when a fit of laughter would overcome us, or we would pass those infamous notes back and forth between us.  Suddenly I would hear it…the sound of a man clearing his throat.  But this wasn’t just any man.  This was my dad, and that familiar clearing of his throat carried a clear message to me. 

He was telling me that I better turn from my wicked ways, so to speak, and straighten up and listen to the preacher!  If I didn’t, I knew that I would answer to Dad when we got home.  And that my accounting would not be pleasant was guaranteed!

Did I fear my dad?  You bet I did in that moment!  But it wasn’t a fear born of any hatred from…or for…my dad.  Instead, it was a fear that came from my dad’s love for me, and my deep love and respect for him.  He loved me enough to teach me to do right, even if it meant he had to discipline me when I disobeyed.  

I have been studying through the book of Ecclesiastes.  Solomon spent much time pondering life’s puzzling questions.  There was so much he didn’t understand about how the wicked seemed to prosper or how unfair life sometimes was. 

But there was a truth that Solomon held onto by conviction and strong faith.  He stated it in Ecclesiastes 8:12-13:

“Although a sinner does evil a hundred times and may lengthen his life, still I know that it will be well for those who fear God, who fear Him openly.  But it will not be well for the evil man and he will not lengthen his days like a shadow, because he does not fear God.”

What does it mean for me to fear God?  How does that look in my daily life?  

I love what William Barrick says:  “A true God-fearer lives with a full awareness of the omnipresence of the omniscient and omnipotent God.  He or she goes through life more conscious of what God thinks or knows, rather than of what people might think or know.”

We are bombarded today with what many people think or know…or think they know, as is often the case.  

Sometimes the pressure to conform to our culture is strong, and at other times it’s quietly insidious.  I know some wonderful people who are living lifestyles that are directly opposed to what God says.  It’s easy to condone them because I love them, or I am drawn in by their sincerity and kindness.  

But I, as a follower of Christ, must be conscious of what God thinks…of what He clearly says in scripture as to what is right or wrong.

Peer pressure is as sharp in my life today as it was when I was a teenager.  I don’t want to appear mean in any way.  And I shouldn’t be.  

But sometimes today we are told we are hateful if we don’t fully embrace lifestyles or actions that God clearly defines as sin.  Yet God says that those who do live in sin are living that way because they do not fear God.

I believe this is what it means to “fear God openly.”  It means to stand strong for truth…GOD’S truth…even if all around us are those who do otherwise.  We stand for God because we fear Him out of our love and respect for Him.

But more importantly, because of His great and eternal love for us who are His children.

Sometimes I think of God clearing His throat when I start misbehaving…when I stray into thoughts or activities that He knows are wrong.  I need to straighten up at His urging and turn from what He is telling me is wrong.  

God loves me even more than my dad did all those years ago.  

And that’s a lot!