Category: Adult Autism

The Legend of Aaron

Today was an Aaron day, meaning that I spent several hours of one-on-one time with Aaron.  It also means that my ears need a little rest, so while he’s upstairs on his computer I decided to write a few words about our time together.  Writing………not talking.  What bliss!

I first ran Aaron by the lab at our Eberly Farm clinic so he could have some blood drawn.  We’re still checking his medicine levels as well as being sure that his weight loss isn’t pointing to a significant problem.  Aaron enjoys the lab and that’s a blessing.  He especially enjoyed being shown to the seat in the lab that is right beside the telephone.  I usually stand near him, not because he is in any way scared, but because he loves to pick up the empty vials or some of the other items that are conveniently located right beside his chair.  Today, though, it was the telephone that held his interest.   All those buttons were calling his name!  He finally laughed as I over and over told him to NOT touch the phone.  It becomes a game to him……..one that he is sure to win if I even once turn my back.

Not long after we left the lab, we were at the dentist.  The staff at Baxter Dental Associates are so good with Aaron.  He is comfortable there, so much so that I don’t even go back with him like I used to do for many years.  I just hope that he’s compliant and not stubborn, and since nothing has been said otherwise, I’ll continue to happily assume that this is true.  But once the cleaning is complete, Aaron is more than in a hurry to go………because he knows that we are going to eat lunch out somewhere.  He does start getting grouchy if I linger over making his follow-up appointment or stand there chatting too long.  He knows his mother’s propensity for lingering chats!

Soon, though, we were seated at On The Border.  Our nice waitress came to take our drink orders, and Aaron asked if they had tea.  He said yes to the tea, even when he found out that it was unsweetened tea.  I then ordered water and Aaron loudly asked, “OH!!!  Do you have water??!!”  He’s done this before, but it’s always funny……and thankfully our waitress laughed as well.  I could tell that she liked Aaron, and that set me at ease.  Aaron’s nearly always at ease since he doesn’t read people’s facial expressions or body language.  He just barges on ahead, being Aaron, and oblivious to any questioning looks or uncomfortable stares from others. 

We ordered our salads and tacos, sipped our water, and dipped our chips in the free Queso that we got today.  Aaron was busy talking between bites, of course.  “Mom, Dad said that he might work on my computer.  What does ‘might’ mean?” 

Might means might, Aaron. 

“So can I call Dad and ask him if he’s going to work on my computer?”

No, Aaron, you don’t need to call Dad at work. 

And I have no idea how many times this conversation was repeated.  Be glad that I’m not going to write it out.

Our salads came and Aaron was busy dumping every drop of his dressing on his salad.  I told him that he didn’t need every drop and he agreed……….putting down his little dressing container……..and immediately grabbing mine and holding it up high to drain my few remaining drops of dressing.  All the while he was talking about how hard it is to work at a restaurant, and how Dad has told him that it’s hard work because sometimes people are fussy.  “Is that true, Mom? ” he asked.  “Why are some people fussy?”

As we discussed this issue, I thought it was really insightful when Aaron said, “The restaurant people serve us.  We don’t need to be fussing at them.”  I was wishing that he had this same philosophy about me when the waitress returned to fill his glass of water………and Aaron repeated this conversation to her, oblivious to the fact that her tables were full and she was busy and Mom was telling him that she needed to go.  She was sweet, though, and patient with Aaron. 

Aaron had other insights, too……….like wondering what the little powder things were that were on top of the lettuce……..and then saying, “Mom, I noticed something.  This is a Mexican restaurant!”  Well, it isn’t Chinese, Aaron……..as we munched on our TACOS.

I was asking how his visit with the dentist went.  “Mom, I told the dentist that I’ve seen some people who are fat!  I’m not talking about you!”

He added that last sentence so quickly that I questioned him about it, and he assured me that he was not talking about me.  Then he asked, “Mom, do you think you’re fat?  What do you think about being fat?”  And immediately he added, “I’m not saying anything!!” 

You’ve already said enough, Aaron. 

He was intrigued with the parsley, which he held up in order to give it an examination.  He wondered if I have some dried parsley at home.  “Mom, do you have some of that in the cabinet where the pepper balls are?”  That would be Peppercorns to most of us, but pepper balls to Aaron.

He also had to hold up the dark tortilla chip that was on top of the refried beans, saying that he had never heard of a black chip.  And the beans made him remember something.  “Mom, have you ever heard the legend that if you eat beans, you fart?”  I was hoping that no one around us heard Aaron’s telling of this legend, even as I urged him to not use “that” word in public.  Of course, any discussion of this legend should not be made in public, but all of that was lost on Aaron.  He was already in a discussion with the waitress about whether we could take the chips home along with the Queso that we had left.  I was thankful that he wasn’t telling her about the legend.

She happily brought us our containers, and Aaron just had to ask her about slushies.  Yes, slushies.  Do those new pineapple slushies have pineapple in them?  Do the other slushies have fruit?  How are slushies made?  Do slushies have ice in them?  Do you like slushies? 

Sweet, patient waitress.  She had answers for Aaron and smiles for Aaron……..and she got an extra tip from me. 

Home again, home again……..where Aaron left me to carry in the Queso and the chips that he wanted so badly, as well as his dentist bag of goodies……….and where he left the garage door open so that Jackson could come out and the heat could go in………and where he zoomed downstairs to ask Andrew if he wanted to watch a DVD on his Blu-Ray player in his room………..

Have I told you about the legend of Aaron?  Sometimes he’s all about Aaron and sometimes he’s not…………sometimes he’s interesting and sometimes he’s frustrating.   

And he always keeps me on my toes.   

A Blessing or a Bother

I bought some eggplant the other day.  I knew that this would create quite a stir in our house, and that’s because Aaron loves the unusual.  To most of us, eggplant is mundane………..maybe a little odd in appearance, but certainly nothing that should cause excitement.  But most of us are not Aaron.  To him, eggplant is odd; and anything that is odd gives him pause and then becomes a matter of great curiosity…….and much conversation. 

He saw the eggplant sitting on the kitchen counter that evening.  Soon I heard, “Mom!  There’s an eggplant!”  It was as if he had seen one of his movie aliens sitting on our kitchen counter, legs dangling and eyes flashing.  Such was the level of Aaron’s excitement.  Later I went in the family room, where Aaron was nestled in his favorite chair with all of his necessary items around him and his new blanket covering him nursing home style.  There, perched in his lap, lay the eggplant.  Aaron held it up happily for me to see as if it was my first eggplant experience, and his as well.  I laughed and snapped a picture, and Aaron was very pleased to have this close encounter with an eggplant.

Yesterday morning I was once again reminded of how the usual becomes the unusual to Aaron.  Way, way out in a field behind our house there is a tall tower of some sort.  On top of this thin steel tower there is a flashing red light.  For years Aaron has talked about this flashing light, dim in the distance.  It’s certainly not a bright intrusion into our home in the dark of night, but Aaron notices it constantly none-the-less.  Of course, when Aaron notices anything he will then talk it to death…….which he has done concerning this tower over the years.  What kind of tower?  Who built the tower?  What is the tower made of?  Why does it have a flashing red light on top?  Who takes care of the tower?  Will the tower fall?  Will the tower get struck by lightning? 

Aaron has blinds on his bedroom windows, but he has never wanted to use them at night.  In fact, they were never even lowered at all…………until this past winter, when we had new siding put on our house and a new paint job.  When the workers were going to be right outside Aaron’s window early in the morning, we decided to lower and close his blinds the night before.  This gave him privacy the next morning.  I wasn’t sure how he would react to this change, but he didn’t mind it at all……..and I was surprised. 

Now the worker’s job has been completed and there is no need to close Aaron’s blinds at night.  However, he still wants them closed.  That’s no problem, of course, but is still somewhat unusual for Aaron.  Yesterday morning, Aaron brought this subject up once again, telling me that he had decided to keep his blinds closed because that flashing red light bothered him.  I expressed surprise at this announcement, and reminded him that for years he hadn’t been bothered by the far off red light. 

He quickly replied, “Well, I decided it’s bothering me now.” 


I’ve thought about these two scenarios since yesterday……….the eggplant and the flashing red light.  Aaron has chosen for one to be a blessing and for one to be a bother.   It’s clearly a conscious choice that he is making, even though with Aaron his autism does play a part.

How about me?  What am I choosing today, and every day?  Sometimes I allow situations or people or things to be a bother when they really don’t have to be that in my life at all.  Sometimes my own son is a bother!  It’s natural to get tired of the constant talking, or his quirky ways that impact every single day of my life, or his mood swings………and many other areas of Aaron.  The choice is mine, though.  I can decide that it’s bothering me……….or I can decide…….

…………..that these things are BLESSING me!  Just like the goofy eggplant……..a blessing instead of a bother.  I don’t always make the wise choice, but I know that I do HAVE a choice.  So despite the irritations……the flashing red light out in the distance………..I know that I need to choose instead to hold each situation just like Aaron held up the eggplant.  Hold it up with a smile and with at least some measure of joy……..and be able to see how unique and special each part of my life is. 


There’s Aaron again………teaching me lessons and he doesn’t even know it!  I would say that he’s a blessing!

Our Both Way

This morning when I walked into Aaron’s room to get him moving along on this beautiful day, I found him watching a movie.  I happily said, “Good Morning, Aaron!”  as I always happily say………and as usual, he very sadly replied, “I’m not feeling well.”  He speaks this in his softest, most flat and pathetic voice that he can muster.  It’s really laughable……….but I don’t dare laugh.  I remember the morning that I didn’t exactly laugh, but I somehow demonstrated to Aaron that I wasn’t buying his woeful tale of how bad he felt.  First he said, “You just don’t understand me!”  He waited for some effect from this statement and when there was none, he walked away as he very mournfully said, “Nobody listens to me in this house……….people don’t.”  I nearly cried – from laughter.  Certainly not from pity.  Sometimes he could be a candidate for an Oscar!

So today I just walked away, and then soon returned to urge Aaron once again to move upward and onward.  He then told me that his eye hurt and he was just sure that he had a black eye.  Of course, he didn’t have a black eye.  He had just rubbed it so much that it hurt some.  Too bad, Aaron.  Another hopeful ploy to stay home was foiled! 

I then told Aaron that I would fix some bacon and eggs, which we could eat out on the patio, but that he needed to shower and get ready.  He suddenly became much more animated as he said, “Yeah!  And can Jackson come out with us?”  I knew exactly what Aaron was anticipating……….the challenge of sneaking Jackson some food without Mom seeing him.  Oh, I can read Aaron like a book!  In so many ways he never changes, yet always amazes……..and frustrates!  In his sameness he still manages to be ever interesting!

This train of thought led me to think of some areas where Aaron hardly ever changes.  He shows us his personality and the intricate way that his brain functions in so many pieces of his life.  Here are a few from just the past several days:

FOOD:  Aaron does love to eat and to snack……….less now than he used to, but he does still enjoy food.  Every Friday, when Paradigm usually goes to see a movie, he asks if he can have a large buttered popcorn.  And every Friday, I tell him that he can have a large popcorn but to try it unbuttered………..which he never does.  The last movie day found him running in the house when he got home, and telling me all about his large buttered popcorn.  “Mom!  They make the butter into a water kind of way!”  This remark led us into a rather lengthy discussion of just what in world melted butter really is, etc., etc.

He loves peanuts, so while I was shopping at Dillon’s this past Friday I got him some peanuts.  However, these peanuts are not like the Planters peanuts that he has had recently.   The only difference is that they are the Dillon’s brand.  I should have known!  He won’t eat them!  AAHHHH!!!  But he took them to Paradigm today to either give away, or somehow to force some down himself.  Good grief!  They can’t be that different……….to anyone but Aaron!

Aaron excited about trying to feed Jackson

And he will always and forever have a spoon with every meal.  He will also have multiple forks and other utensils, even if he doesn’t intend to use them.  Notice this picture of him with his plate of eggs this morning……..and a spoon.


WRIST WATCH:  He likes a watch that has the day and the date on it.  Recently, that feature on his watch wasn’t quite working right.  The day was stuck.  Therefore, Aaron wouldn’t wear the watch.  It didn’t make any difference that I went on and on about the fact that the watch kept perfect time.  Nope. It was defective to Aaron and he would not let it touch his arm at all.  I bought him a new watch with a smaller band since he’s lost weight.  This is the other thing about Aaron and watches.  He wears his wrist watch nowhere near his wrist.  He pushes it halfway up his arm.  Since he’s lost weight, I thought a smaller band would encourage him to wear his WRIST watch where every other person on earth wears one……….on his wrist.  Look at this picture of him again this morning and closely observe where his watch is located.  I think if his arm turned blue from lack of blood he wouldn’t care.   Seriously.

JACKSON:  Aaron loves our Great Dane, Jackson.  He actually really loves to feed Jackson.  It doesn’t matter what it is……….a piece of popcorn, a Mike and Ike, a stick………….Aaron will hold it out for Jackson to sniff and examine, in the hopes that Jackson will scarf it down.  One reason we quit buying rawhides and other treats was because Aaron would inevitably find our hiding place, and then every time we turned around Jackson would have a rawhide dangling from his mouth like a giant cigar. 

Aaron asked the other day which was smarter – dogs or cats?  After my little lecture, Aaron summed it up succinctly by saying, “Both animals have their both way of being smart.”  He says it so much better than I do!  But I know that our Jackson is very smart when it comes to Aaron.  Look at him this morning, waiting in the wings behind Aaron.  Aaron had already very quickly scooted a chunk of egg off his plate when my eyes were averted for a mere split second, and Jackson just as quickly lunged under the table to gobble it down. 

MOVIE CREDITS:  When Aaron watches a movie, Aaron watches the entire movie.  ENTIRELY.  From the very beginning to the very, very ending…………down to the very last teeny tiny little print at the end of the credits.  The movie is not over until the screen is black.  I walked in his room the other night to find him intensely riveted on……….the credits. 

BED TIMES:  When I say bed times, I mean that Aaron keeps a list of the times that he turns his light out at night, and the times that he gets up in the morning.  He does this Every.  Single.  Day.  Here is but one page of his recorded bed times.  He has filled up multiple notebooks over the years. 


HANDY ANSWER BOOKS:  Aaron loves his Handy Answer Books.  They come in a wide variety of subjects.  He will, as with movies, read these books from the very first word to the very last word……….including the table of contents, the index, and the lists at the end of resources or web sites.  Last night he showed me this page that he had come to in his reading.  He didn’t think that this would be very interesting to him……….but this morning I saw his bookmark placed a couple pages over, showing that he had indeed read this part that he wasn’t very excited about reading.  I knew he would!  It’s got to be more exciting than the index!


TOILETS:  I wrote once about Aaron’s long-standing fear of toilets.  Here is a link to that blog post:  http://hesaidwhatks.blogspot.com/2012/01/toilets.html.  There are many facets of this fear.  We have three new toilets in our house and all of them have a much smaller amount of water in them than our old ones did. Aaron is sure that these toilets are stopped up……….a battle that he has yet to quiet overcome.  He pretty frequently will tell us that one of the toilets is stopped up, but it’s usually not.  He will not venture near it until he is sure that it’s in the clear.


This morning, as I was washing my hands, Aaron refused to come in my bathroom to talk.  Finally he said, “Mom, did you flush your toilet?” And I realized as I finished with my hands that no, I had in my haste not performed that task…………but Aaron had registered that oversight in his mind and he wasn’t stepping one foot in there until I flushed!!  He did not want to talk about it, either……….but I knew. 

Well, I must end this………..no pun intended concerning the above paragraph.  Aaron will be home soon with more stories of his day, and I may be physically or mentally taking notes so I won’t forget the unique way that he verbalizes so many things.  You know, if he asked who was smarter…………Aaron or Mom………….I might have a hard time answering that. 
We both have our both way, like Aaron says!  Glad I wrote that one down!!

Get Lost

I wondered how Aaron would do this morning with having to get up to go to his day group after three fun days off.  On his days off he was up early, in the shower without having to be told, and very happy first thing in the morning.  I dreaded what this morning would hold as he faced reality.  Aaron likes his day group, but if given the choice I do believe that he would stay home every day.

It didn’t help that Aaron had two seizures during the night.  I was surprised, therefore, to hear him get up on his own this morning and go to the bathroom.  However, he went back to his room and shut his door – which is not a good sign at all.  He was either feeling bad from the effects of the seizures, or he just didn’t want to leave the house.   I waited for awhile until it was finally time for him to really start getting out of bed and getting ready.

I softly knocked on his bedroom door, and then I opened it and stepped inside.   He was all snug under his multiple covers…………and he did not want to be bothered.  I spoke to him, and then left.  I repeated this action several times until I finally got a reaction from him.  “Leave me alone,” he muttered.  And so it went for a few more tries.  I decided not to say anything about his seizures that he never remembers.  I knew he would latch onto that as a reason to stay home.
 
I became a little more insistent as I continued to go in his room and tell him to get up.  I also tried to interest him in his coffee that was cooling downstairs in the mugs he likes, and also in the applesauce that I thought he would want.  Finally, as I turned once again to walk out of his room, he perked up and asked, “Mom?  Did you see what was on my door?”  And as I looked up on his door, there on his Star Wars poster was a pink post-it note on which Aaron had scrawled a note to Mom.  He has done this before, but his notes rarely say the same thing.  I peered up at the note and saw what he had written.

Get lost.  I just shook my head and smiled as Aaron watched me and tried to gauge my reaction.  He laughed then.  He was quite proud of himself and also thought that his little note was funny.  I walked up the hall as I said, “Very funny, Aaron.  Now I’m getting lost and I want you to get up!”

Oh, if Aaron only knew how many times I’ve wanted to do just that……..to get lost.  Saturday evening was one of those times.  Aaron’s heart was set on watching Wheel of Fortune with me.  I thought I had enough time to do just a little ironing before Aaron’s favorite game show came on, but I wasn’t quite finished when I went in to Aaron’s room and told him to go on down and turn the TV on.  He set aside what he was doing, and went downstairs…….only to find that I wasn’t there.  “Mom?  Mom?  MOM!!”  he yelled.  He barreled upstairs to find me finishing up a shirt I was ironing.  One little shirt.  But Aaron was very unhappy that I wasn’t downstairs getting ready to watch Wheel of Fortune with him.  I told him that I would be down in just a minute, but to Aaron this was totally unacceptable.  He quickly escalated into yelling……..and I was not in the mood for this behavior on this day that had previously been so pleasant. 

I then did the thing that never, ever works.  I yelled back.  But Aaron cannot be outdone in these battles………a fact that I know but that I disregarded in my complete frustration.  No more details are needed, but I will say that I just totally lost my temper.  For those of you who might see me as the most patient parent on planet earth………..your bubble has just been popped.  I can get angry with the best………..or the worst……….of them. 

I’m not proud of this incident and have even wondered if I should write about it.  But I want to be honest as I portray life with an autistic adult child.  I am imperfect.  I get tired and frustrated and angry.  Sometimes other concerns are weighing me down.  When Aaron has a breakdown over something so selfish as me not being there to watch Wheel of Fortune at the moment he wanted me to be there, then I just might cross that line that leads to my own breakdown. 

I took a little time to remove myself from Aaron and from the situation.  Talking to Gary helped, as did getting some fresh air and collecting my thoughts.  I also asked God to forgive me, as well as Aaron.  But Aaron is so matter-of-fact about an argument.  He can resume his life as if nothing even happened, while I am in an emotional heap.  I was fighting guilt while he just wanted to know if we could play Skip-Bo later or tickle our backs.  I wish I could pick up, dust off, and move on as quickly as Aaron can. 

I know this is part of life that any parent faces.  A parent of a child, adult or not, with special needs must also balance figuring out what it causing the emotional outburst of their child with trying to maintain some calm and discipline…………..for themselves as well as for their child.  Sometimes it’s just too much, especially when our minds are tired or overwhelmed with other issues as well.  I know not to let the guilt of my lack of control be something that I allow Satan to use in order to discourage me.  I accept God’s forgiveness, even as I know I must forgive myself and close that chapter.

Get lost, Aaron wrote this morning.  Ah, if only life was that simple!  When Aaron starts escalating into anger, I wish I could hold up a Get Lost sign that either would apply to him…….or would allow ME to get lost until he calms down.  But I can’t do that, so I buck up and deal with it………with God’s help and with lessons learned from years of experience. 

I’ll just leave Aaron’s Get Lost sign on his door for awhile to remind me that it’s best not to lose the lessons we learn and the growth we experience as we travel this journey together.  

Sleeping in a Wrong Direction

Aaron got up early on Saturday morning, headed straight to the shower……which is surprising…….and then came slowly downstairs to find me in the kitchen.  I told him good morning and he immediately answered, “My back is sore.”  I smile, not because Aaron’s back is sore but because he rarely returns our greetings in the appropriate way.  This morning his sore back is of utmost importance to him, so therefore he thinks that it should also be of utmost importance to Mom.

I assured Aaron that I was sorry about his back, which prompted him to continue.  “I was sleeping in a wrong direction……..kind of bent,” he said.  I expressed more concern, and he added, “I wasn’t in a normal kind of sleeping way.”  As he got ready to eat some cereal, we talked about why we don’t always lay in a normal kind of sleeping way and that this sometimes causes a bent back, and then a sore back.  Aaron wanted an answer to this dilemma, and he also wanted to talk it to death.  Typical Aaron. 

We later went outside, where Aaron relaxed in the mulch with his coffee and his mulch trash can.  I sat nearby on the porch glider, wondering how Aaron’s back felt as he sat there all bent over…………. but I was not wanting to bring up his back issues again.  He talked and talked about many other things as we drank our coffee, and as I wondered what the people in the passing cars were thinking about this grown young man hunched over under the tree in the mulch.   Aaron does make us a rather unique family, for sure.


When Aaron finally stood up from under the tree, he was a little stiff.  This reminded him of his aching back, so he said, “My back is sore.  I should not have slept bent.”  Here we go again, I thought.  I knew that Aaron was going to discuss his bent, sore back all day.  Later, when he decided to lay down for a quick nap, he told me that he was going to try not to sleep bent.  And then when he woke up, he was happy that he had slept in a straight way and not a bent way.

We went to Wal-Mart soon after his nap, and as we were in front of the store………….in the crosswalk, of course……….Aaron was continuing his sore, bent back story and decided right then and there to demonstrate just what he meant by sleeping bent.  “You know, Mom…..I was sleeping like this!”   And I looked over to see him bent sideways in the middle of the crosswalk, as if he was doing side bends for an exercise class.  I wondered if someone watching on the security camera was either laughing or sitting up straighter as they tried to figure out what this unusual young man was doing in the middle of the cross walk………..not to mention what all the people milling around thought.   Oh well.  I just walked on as I told Aaron to quit bending and to come in the store.  I’m pretty much a pro at this embarrassing business.

Yesterday morning Aaron got up and came downstairs once again.  “Mom!  Finally I slept straight!”    Yay, Aaron!  But he wasn’t totally cured, I found out, as he continued by telling me that his back still hurt some.  He launched right in to what it means to sleep straight as opposed to sleeping bent…………and why we sometimes sleep bent………..and how to make sure we sleep straight…………and why sleeping bent produces sore backs.   Every little detail of sleeping straight and sleeping bent had to be gone over and over with Aaron. 

He ended by saying, “I can’t make my back go away from hurting!”  I laughed and I assured him that with time his back would indeed go away from hurting.  It’s hard to tell with Aaron how much of this constant talk is a ploy for attention, and how much is just his usual way of talking about every issue of his life until there could not possibly be another word to say……….but with Aaron there are always more words to say, even if he’s already said them many times.  He took me seriously in home school as I told my kids that repetition is the key to learning.  Man, did he ever!

I can happily say that this morning I dared to ask him how his back was feeling.  He answered by saying that it felt better today.  It took him a few seconds to answer and I was holding my breath.  I think that perhaps we have moved beyond his bent back and that it has finally gone away from hurting.

I’m waiting for the next issue that he wants to talk about and to demonstrate.  I just hope it’s not in the middle of the Wal-Mart cross walk!

No Electricity??!!

This past Sunday was a pretty stressful day around here.  I’m not talking about the huge storm that moved into Wichita…….or the tornadoes that were just to the south of us…….or the hail…..or the sideways rain……….or the fierce winds.  I’m talking about spending this delightful day with Aaron – and no electricity for about 7 hours.  When his precious weekend schedule is disrupted, no matter the reason, then regimented Aaron can……and did……become most unhappy. 

Gary and I were watching the weather.  We knew that there was rotation in the huge clouds that were all around us.  When the tornado sirens started blaring, I went up to Aaron’s room and told him that it was time for us to head all the way downstairs to the basement.  Aaron resisted this at first because he was playing a computer game, but he finally walked into the kitchen carrying his supplies for our stay in the basement.  He was carrying his soft, black, fuzzy pillow; his favorite blanket; his two current favorite DVDs; and his watch, dangling from his fingers and for some reason not on his arm.  He was wearing his shoes and socks, so that was good.  Just before we headed down the stairs, the electricity went off.  This was the real storm threat to us in the long run, but we thought that surely the power would be back on soon and so we were not alarmed. 

Our basement is finished, with carpeting and couches – and lights and a nice television that we couldn’t use because of the lack of electricity.  Gary and I ventured upstairs a few times to check on how the storm was progressing, but Aaron stayed where he was.  He pet Jackson for awhile, and listened to the hail and the wind…….and talked a lot, of course.  Finally he put his fuzzy pillow on the couch, laid down and placed his blanket on himself, and went fast asleep.  Everything was going nicely, I thought.  Silly me.

The storm had calmed down and was nearly over when Gary and I went upstairs to look out once again.  I soon woke Aaron up, and he gathered all of his belongings together before thumping up the stairs.  It only took him a few seconds to realize that the electricity was still off.  He put his pillow and blanket and DVDs back up in his room, and checked the time on his watch that was now on his arm.  Then he asked when the electricity would be turned back on…….and of course we didn’t know for sure.

For awhile, everything was fine and happy.  We looked out the windows as we surveyed for possible damage.  The sun came out, and we walked out on the driveway to look around.  Then I decided to do a few things that I could do without electricity.  Aaron followed me around as I folded some sheets, got Andrew’s bed ready for his arrival in a couple days, put away some laundry, and worked on a grocery list.  Aaron was talking and talking as usual, but soon his voice took on a different tone.  Electricity deprivation was setting in.  We were in trouble.

Aaron has just a set way of doing things.  His world functions the way that Aaron wants it to function, day after day.  We suggested that Aaron sit down and read a book.  But no……..Aaron will ONLY read his Handy Answer Books at night before bed.  At no other time will he read a book.  Believe me, we have tried to encourage reading at other times of the day or night.  But in Aaron’s world, reading is for just before bed……….propped up in his bed with his pillows around him in just the right order, along with his faithful back scratcher placed just so-so……and maybe a snack hidden from Mom under his covers.  Reading is not for the daytime with the sun shining and while sitting on a couch.  That’s crazy!  And Mom and Dad are crazy for even suggesting such a thing!

We also knew that Aaron would not go out to “do the mulch,” as he says.  He likes to sit out in or by some of our flower beds, or under our trees, and then break little pieces of mulch into his special mulch trash can.  But when the mulch is wet, as it was on this day, it won’t break like he wants it to and so he will NOT “do the mulch.”  Aaron realized that mulch was not an option on this increasingly boring day.  And he had already cut out the Sunday coupons.  His options were narrowing………and his frustration was rising.

Gary and I could see another storm coming……….a storm called Angry Aaron………..and there wasn’t much we could do to prevent it.  These times are when we parents of autistic  children………..or adults, as Aaron is………..try to balance those issues of using this time as a teachable moment or a time of discipline, as compared to feeling like we give in or enable poor behavior in our children.  Yet all of our years with Aaron have taught us that once he starts down a track of great frustration it is nearly impossible to turn him around in the same way that we could another of our children.  The disconnect, if you will, in Aaron’s brain just won’t allow him to see things any other way but the way that he sees it. There are times when we have to see Aaron’s world through Aaron’s eyes, and then seek to re-route that train that’s headed down the track to a sure collision. 

Aaron began to blame Gary and I for the lack of electricity.  No amount of explaining kept him from blaming us.  And if it wasn’t exactly our fault that the power was out, it was certainly our fault that we didn’t know when it was coming back on.  And if it wasn’t our fault that we didn’t know when it would come back on, it was most definitely our fault that we didn’t have a plan of action that would give him something to do.  Never mind that nothing we suggested was  acceptable to him.  It was still our fault!!

Aaron’s anger was escalating.  When Aaron gets really angry, he will break something – and it’s usually something that he likes.  So strange, but true.  Therefore, I was very thankful when Gary suggested that we go for a drive to see if we could find out where the power problem was.  I fully expected Aaron to demand that if we did find the problem, then Gary should climb up the pole and fix it……….since after all, it was HIS fault!

The drive was nice.  Of course, Aaron had to have on his favorite music and he had to talk the whole time, but at least he was happier.  We finished by going to Taco Bell, where Aaron had to examine every single item on the drive-through menu………and I told Gary to just order Nachos Bell Grande for him……….and right after that was done, Aaron said he wanted tacos.  Sorry, Aaron.  He ate his Nachos at our kitchen table, in the dusky light, with his TWO spoons and his TWO forks that he got from the silverware drawer, and the napkin caddy, and his water with a straw – always.

Gary grilled turkey burgers and turkey hot dogs on the grill, and Aaron ate a couple hot dogs while trying to sneak some to Jackson – always.  Then he and I played Skip-Bo by lantern light, and he was very happy about that……even when I won!  And just as we finished our game, the power came back on!!  Before I could hardly blink, Aaron had vanished.  He was in his room in record time, turning his computer on and treasuring at least a short time to play his game.  He wasn’t even angry when it was time to get off and get ready for bed.  The storm had truly passed, at least for that day.

When I went in to his room to say good-night, he told me to wait a minute.  He sat on his bed and reached for his digital clock on his night stand, then told me to tell him what time it was so that he could set his clock.  I told him that it was 11:12.  Click, click, click.  He set the correct time, then stood up and looked at his satellite digital clock by his desk.  His eyes became large and almost wild as he said, “It’s 11:13!!”  Back to his bed he went, and quickly changed his night stand clock to 11:13.
 
Another crisis averted!  Dear Aaron.  He wants his life to run like clockwork, but sometimes that just doesn’t happen.  Yet trying to explain that to Aaron is NOT easy.  Sometimes it’s not at all possible.  Therefore, Gary and I are the ones that have to constantly adjust.  We have to reset our way of thinking and our way of disciplining and our way of living on those days and in those moments.  We do get frustrated and tired, and sometimes we feel guilty for getting frustrated and tired.

But God is faithful in these storms…….in the tornadoes and in the Aaron issues, God is there.  Whether it’s 11:12 or 11:13, God is with us.  And there is much He can teach us through this Aaron of ours.

Like today……….Wednesday……..Aaron’s least favorite day to go to his day group.  But that storm story is for another day.  

I’m Iknorin’ You!

Yesterday morning was one of those mornings with Aaron.  If there is a morning that Aaron stubs up and refuses to go to his day group, it’s usually on Wednesday.  The staff at Paradigm cooks on that day.  They fix very yummy meals, but Aaron wants nothing to do with it.  For several weeks, Aaron told me that the staff was just going to give them tuna sandwiches and that he doesn’t like tuna, and on and on.  Well, I checked with some of the staff and found out that they have never fixed tuna sandwiches and had no intention of fixing tuna sandwiches.  Aaron was caught and he knew it.  Therefore, he has changed his Wednesday tactic. 

He got up on his own yesterday.  Andrea was busy getting ready to head back to Texas.  I found Aaron sprawled out on her floor, petting her little dog, Darcy……..who was trying to hide under her desk because she doesn’t exactly trust Aaron.  Darcy is a perceptive little doggie.  She doesn’t like Aaron’s booming noises, or how he bursts through closed doors, or his clapping, or his loud talking.  She does like the fact that he slips her treats………treats like gummy worms, or peanuts, or pieces of meat under the dinner table.  Therefore, Darcy will timidly allow Aaron to pet her as she searches his outstretched hand for a little food nugget.  Aaron had no such treat in his hand as he laid there petting her, so she stayed under the desk, keeping her distance as best she could.  Smart little Darcy.

I spoke to Aaron and he slowly got up, coming into my bedroom as I was getting ready.  He began his Wednesday morning con job.  “Mom, I’m tired,” he flatly said.  I told him that I was sorry, and then told him that I had poured his coffee…….which would work wonders on his tiredness.  This was not the response he wanted.  He wanted me to quickly realize that there was absolutely no cure for such extreme tiredness as he was now experiencing.  So with as much feigned exhaustion as he could muster, he continued.  “No, I’m really tired.  I read until 11:32 and then at 2:00 I was still awake.”  His tone was one of utter fatigue and was definitely designed to prick my tender mother’s heart……….and to allow him to stay home. 

Inside I was smiling, and I was also dreading the way that this morning might progress.  Aaron can easily turn very hateful when his worn-out ploy doesn’t get the desired result……..which is that Mom will allow him to stay at home.  I expressed concern for his weariness even as I went about my business.  I once again reminded him of the coffee waiting downstairs and his morning pills.  Aaron was beginning to see that Mom had a rather hard heart in her chest on this morning.  Therefore, he deployed Plan Number 2.

“Mom, I’m iknorin’ you.”  Oh brother!  This is one of Aaron’s favorite games to play anymore………..except it’s not a fun game.  It’s almost always a sign that he is getting fed up with me.  So I just “iknored” what he said and kept getting my make-up on, even as he followed me into my bathroom.   He stood there staring at me, hoping for some result that would come from his statement.  There was none.  He repeated, “I’m just iknorin’ you.”  Still no response from seemingly calm Mom.  “So I’m iknorin’ you.”  I shook my head but made no comment.  “I’m going to iknore you.” 

It was so hard not to laugh.  In his effort to ignore me, he was totally NOT ignoring me!  I don’t know how many times he repeated that he was “iknorin’ ” me, but I just sat there going about  my business………which in reality meant that I was the one doing the “iknorin’ “………….not Aaron.  He never seemed to come to that reality, however.

Finally, he walked out of the bathroom and made one more verbal fling.  “You can’t make me stop iknorin’ you!!!!”

At last he was out of sight and I could fully smile, and even chuckle.  He actually drank his coffee and took his pills, and then I heard him taking his shower.  Progress!  A good sign indeed!

He ended up sitting at his desk, watching his new GI Joe movie.  I realized that we might be able to leave early enough for me to take Aaron to either Dillon’s or Quik Trip to get a drink.  Knowing that the very sound of my voice might stir up his anger again, I decided to try a different tactic to ease him beyond his frustration on this morning.  I wrote him a note, and then quietly walked into his room.  I handed him the note over his shoulder, laying it on the desk in front of him.  He read it quickly before I could leave the room, and then he happily replied, “OK!”  And he immediately added, very softly, “Sorry.”  I patted his shoulder and left the room, where soon he joined me to say that he wanted to go to Dillon’s.  I breathed a sigh of relief.  He didn’t write me back on that little piece of paper.  Instead, he was willing to communicate.  More progress!

We had overcome that hurdle, but the rest of the morning was crazy, thanks to Aaron.  He said something to Andrea and me about opening the front door, so we rushed downstairs……….where we looked outside and saw Darcy running through our neighbor’s yard.  We ran outside and yelled, not knowing how far Darcy would run, but thankfully she came back to Andrea right away.  I was fussing at Aaron, who seemed oblivious to what he had done, and soon I hustled him into the van.  I was trying not to be late to meet his day group ride. 

We backed out of the driveway, and Aaron suddenly opened the van door and hopped out, not caring that we were in the middle of the street.  He said that he forgot something, and I yelled at him to close the van door.  I pulled back into the driveway as he scurried (as fast as Aaron can scurry) back to the garage, where he opened the door and went inside the house.  He came back carrying his container of peanuts, and off we hurried to Dillon’s.

I walked quickly into the store, with Aaron lagging behind.  He finally chose his flavored water and then had to have more peanuts, and finally we were done and on our way to meet his group, and of course he talked non-stop the whole way, and I was frustrated at being late…………  

But at least he wasn’t “iknorin’ ” me, right?  We pulled up to the day group van, where Aaron opened his window so that Craig would open his window…….and Aaron continued to talk.  I nudged him out as he grabbed his Dillon’s bag that held his peanuts and flavored water, and then he grabbed his other peanuts……all the while happily talking to Craig while he juggled his TWO containers of peanuts and his water.  Aaron was asking Craig about the barbecue that they were going to have that day, and informing Craig that he would NOT go to the barbecue in the park, water balloons or not.  

I had moved beyond being “iknored” and the whole dog incident and the tiredness of Aaron and rushing through Dillon’s by the time Aaron barged in the door at 4:30.  He rushed upstairs to find me as he yelled, “Mom!  Mom!”  He burst into my bedroom and proceeded to excitedly tell me about the barbecue in the park……..the barbecue that he had no intention of attending………and of the hamburger and chips he ate……….and the water balloons that he avoided………and the geese that he fed and the goose poop that he scraped off of his shoes. 

He dug in his pocket and pulled out some very dirty coins that I had him promptly throw away.   He continued to dig in his pocket and then pulled out a very ragged feather.  He held it toward me as he said, “Here, Mom!  This is for you.  It’s a goose feather.  Here, take it!”  I came very close to telling him that this feather was very dirty and that he should throw it away as he did the filthy coins, but the look on his face stopped me.  To Aaron this gift was as valuable as a gold and diamond necklace.  How could I say no?


So I reached out and took the possible goose feather, and I thanked him as warmly as if it was that beautiful necklace.  He hardly reacted, though I knew he was pleased as he thumped up the hall to his bedroom……..where he checked to be sure I had plugged in his keyboard, and then changed his clothes……..with his door open.  And he loudly reminded me to tell him when Wheel of Fortune came on, the way he does every single night.

That ragged possible goose feather with who-knows-what on it is still sitting on my desk……….a reminder that Aaron cared enough for Mom to bring me a treasure.  I never know what to expect from Aaron from day to day, from hour to hour…..even though at times he is so predictable.  His mind is amazing and multi-layered, that’s for sure.

I went from being “iknored” to being the recipient of a valued feather of unknown origins.  All in all, I’d say it was a pretty good day.

Be Quiet!

I have often referred to an old article that I have had for years when I talk about the traits of persons with Asperger’s Syndrome.  The article is from the Online Asperger Syndrome Information and Support website, known as O.A.S.I.S.  Karen Williams wrote a good article there entitled, “Understanding the Student With Asperger’s Syndrome:  Guidelines for Teachers.”  But this article is also an excellent resource for parents, siblings, or friends of those with many forms of autism.  I remember that when I first read this article, I thought Ms. Williams must surely have met our Aaron.  She was describing him so well!

In this article, as she writes about impairment in social interaction, Ms. Williams says that the individual with Asperger’s is insensitive and lacks tact.  She goes on to say, “When they have been unintentionally tactless or insensitive, it must be explained to them why the response was inappropriate and what response would have been correct.  Individuals with AS must learn social skills intellectually. They lack social instinct and intuition.”

And I say: “Yes! Yes! Yes!”  I don’t know how many times I have said to someone, “I don’t know how many times we’ve told Aaron not to say……”  Or, “I don’t know how many times we’ve told Aaron not to do…….”  Just fill in the blank.  Almost anything would fit.  Gary and I continue to correct, reinforce, admonish, explain, redirect……and pray a lot…….and get red faces a lot……..over some of the things that Aaron says and does.

Aaron will call it like he sees it.  For instance, someone in his day group has buck teeth.  One day Aaron was very excited to tell me about this person.  “Mom!  ______ has bucket teeth!”  As if that wasn’t bad enough, he proceeded to demonstrate what the bucket teeth looked like.  Somehow I held it together and explained to Aaron that this person couldn’t help what kind of teeth he had, and that he shouldn’t mock him. 
Aaron was totally confused.  He didn’t understand why his actions were wrong, so I rehearsed our lesson about not talking about people’s physical characteristics.  I knew where Aaron would someday go with this fascination about the “bucket teeth.”  Sure enough, not long ago Aaron said, “Mom!  I told _____ that he looks like a rabbit!” 
I knew this would happen……..so again I talked to him about how very wrong this was, and how would he feel if someone told him that he looked like a rabbit?  And Aaron’s response?  “But Mom!  He DOES look like a rabbit!”

It’s a good thing that I have a hard head, because I sure do beat it against the proverbial wall a LOT!!

The other morning, Aaron decided to play a little game with me.  I went in to wake him up.  He lay there perfectly still under his always-present pile of covers.  I spoke to him a few times as I opened his blinds.  Finally as I walked toward his bedroom door, he flatly said, “I’m iknorin’ you.”  I love how he pronounces the word “ignoring.”  So I chuckled and told him to get out of bed.  Later that evening, I went to his room to tell him that his favorite Wheel of Fortune was getting ready to come on the television.  As I walked out of his room, he said, “I’m still iknorin’ you.”  And as I went down the stairs, he continued, “You fell for it.  You’re weird!” 

Now he shouldn’t tell people that they are weird, especially not Mom, so once again I reinforced this fact when he came downstairs.  And of course, he affirmed, “But you ARE weird, Mom!”  Sigh.

I never like for Aaron to answer the phone, but Aaron LOVES answering the phone.  A few days ago, as I was getting ready to take him to meet his group, our phone rang.  Aaron made a beeline for it, so I told him not to answer it because I couldn’t talk.  He saw on the caller ID the last name of Travis……..a name he knows well.  He was very excited as he pushed the talk button and blurted out, “Mom can’t talk now!!”  Not even a hello from Aaron! I could hear Jennifer laughing heartily and then Aaron laughed.  He thought that this was so much fun!  And I was very glad it was my good friend who totally gets Aaron.

Aaron calls Jackson’s dog food “pebbles” because the pieces are little round balls.  Yesterday we went into Papa Murphy’s to get Aaron a pizza for supper.  Aaron wanted to look at the topping selections, so he looked down through the window at the containers of toppings.  Instantly he spied the little Italian sausage balls that looked like Jackson’s dog food pebbles and very loudly exclaimed, “That looks like DOG FOOD!!” 
And there I stood, explaining to the puzzled young man behind the counter, that our dog’s food is round like that sausage is round……….not wanting him to think that Aaron has just insulted the pizza toppings or Papa Murphy’s……….and Aaron was off inspecting the buckets of cookie dough and wondering where on earth the bread sticks were.

I remember years ago sitting in church, where we had a guest preaching on this particular Sunday morning.  Gary and I were sitting in the back, where we always sat with Aaron for obvious reasons.  This preacher was a little louder and moved around more than our pastor did……..our pastor that Aaron was used to and with whom he was very comfortable.  We could tell that Aaron was becoming frustrated with this moving, louder preacher.  And our Aaron, who doesn’t know how to really whisper, said rather loudly, “Can someone tell him to be quiet?!” 

At those moments, Gary and I look like we’ve practiced synchronized parenting as we both bent towards Aaron, who was sitting between us, and as we both clamped down on his legs and hissed at him to HUSH!!!  I’m sure that we could take gold in the synchronized parenting category.  And in the red-faced, we think we’re going to have a stroke, category as well.

Oh my goodness, how many times have we wished that we could just tell Aaron to be quiet!  But in retrospect, we can look back with much laughter over so many of the things that Aaron has said and done. 

And I guess embarrassment is part of building strong character in us as Aaron’s parents……….or just shows what a character Aaron is!

I may as well say it – keep talking, Aaron!  He’s going to anyway. 

When Is It TOTAL Morning?

Aaron got up half-heartedly this morning, saying he was very tired and that he didn’t sleep well and that his stomach hurt and do I have to go to Paradigm……….and I just walked back up the hall.  Slowly he got out of bed and slowly he came around to a measure of cooperation as I poured his coffee and fixed him a bowl of his favorite leftover potato dish for breakfast.  I barely listened as he talked about how tired he was.  This is a favorite ploy of Aaron’s……..trying to convince me that he is SOOOO tired.

The other morning he told me this same tired story about being tired, telling me that he had not gone to sleep until after midnight.  This reminded him of a question that he had been mulling for some time, to hear him tell it.  “Mom, I’ve always wondered.  Is midnight like half morning?”  And before I could formulate my answer to his always interesting question, he continued.  “So if midnight is half morning, when is it total morning?” 

I tell you, sometimes his questions and his comments just leave me:

A.  Speechless
B.  Amazed
C.  Doubled over in laughter
D.  All of the above

You can’t pull much over on Aaron, either.  He usually begins each day with asking me this question that I have heard thousands of times:  “Mom, can we do something tonight?”  He  pauses and then adds, “Like play Skip-Bo or do our backs?”  And I have told him thousands of times that I don’t know and that I’ll see and that I’ll let him know.  I never say yes, because if something unforeseen happens that prevents me from doing something with him, I have entered the category of being a liar………and I’ve written even recently about the ramifications of Aaron thinking that I have lied. 

The other morning, when asked this familiar question about whether I could do something that night, I told Aaron once again that I wasn’t sure.  And he asked, “So why don’t you know?  Are you doing something tonight?”  I said, “Well, Aaron, sometimes I just want to relax at night.”  And Aaron wisely answered, “Relaxing means we could do something.” 

Not in my book, Aaron.  You have no idea.

Sometimes Aaron and I take Jackson on a walk around our circle in the evening.  Aaron, of course, talks the entire way.  Every step is filled with conversation………..mostly one sided.  You can guess which side.  Jackson doesn’t talk……..and I usually can’t fit a word in……….so there is only Aaron left.  The other evening, Aaron pointed to some one’s yard and asked, “What are those yellow flowers?”

I answered, “Quit pointing, Aaron.”  I say this repeatedly as we walk past people’s homes……..people who are probably wondering why Aaron is always pointing at their homes.  Sigh.  Then I reminded Aaron that those yellow flowers are dandelions……and that dandelions are a weed, because I know that question is next.  “So dandelions are a weed?” he asks anyway.  “Yes,” I repeat.  About that time we walked past a pretty budding Bradford Pear and Aaron asked, “What kind of tree is that?  Is that a weed tree?”

And while I was laughing at the thought of a weed tree, there he was – pointing at another house and asking, “Is that the house that was hit by a fire?” 

Aaron, houses aren’t hit by fires, exactly……….not like they’re hit by lightning……..which could actually cause a fire so I guess you could say…………    

Aaron, quit pointing!

Aaron talks about all the animals we see and hear as we walk………the dogs and cats and birds and squirrels.  He stops and talks to anyone and everyone that may be out in their yard.  Lucky people!  Aaron won’t let them go, either.  I smile and try to ease Aaron away while making sure that Jackson is behaving, and I never know who is alarming our neighbors the most………..our huge Great Dane or our Aaron who will NOT quit talking!!

People should learn what to do when they see us coming, and especially if they see Aaron pointing at them!   Go inside.

Speaking of animals, one day as we were driving, Aaron and I smelled a skunk.  He sniffed and then wrinkled up his nose and proclaimed that something smelled like a skunk………and then added, “I’m not talking about you, Mom!”   So glad he cleared that up.

Not long after that conversation, he came home from his group and was describing the road on which they were driving.  “Mom!  You know that road?  There was a dead skunk there!  It was freshly dead and it smelled bad!”

I was very glad he didn’t reference me again.

And how Aaron loves cows…….and bulls.  We pass a field of each of those particular bovines on our way to meet his group.  First the cows.  He always looks for them and wonders where they are if he can’t see them, as was the case the other morning.  “Mom!  Where are the cows?  Are they in that farm den?”

He means the barn.  But doesn’t “farm den” have such a warm and homey ring to it?

Then we later pass the pasture that is the home to some bulls.  This morning………. as Aaron had the window rolled down and tried to sit so as to block Mom’s hair from blowing wildly…….he saw some bulls.  They aren’t often out when we drive by, so he was happy to see them.  He talked about the baby bull and the big bull………..and by the time I dropped him off at Quik Trip to meet his ride, he was talking about how bees dance.  Yes, how bees dance.


He just cracks me up and he has no idea why.  He came in the kitchen the other night and told us, “Hey!  I saw a commercial about that restaurant that I like.  You know……CAROL’S O’Kelly!!” 

Which restaurant, Aaron?  “CAROL’S O’Kelly!” he repeated.

And this morning……….”Mom!  Did you read The Wizard of Is today?”
 
“Read WHAT, Aaron?”

“The Wizard of IS?!”

He thought I was laughing because I had read the Wizard of Is.

Oh, Aaron.  Life is so much more interesting with you in it to make the mundane and the usual most interesting and unusual!

He’ll be home soon.  And I’ll have a new blog idea, I’m sure.

A Flower For Mom

I’m sitting here at the computer, taking a little breather from Aaron and his incessant talking, and trying to decide how to convey Aaron in my writing.  He is so interesting, yet so exhausting; so funny, yet so frustrating;  so predictable, yet so surprising.  Sometimes I just can’t fully explain or project the complexities and the simplicities of Aaron.

He often majors on such minor aspects of life.  He will focus on something and talk about it until Gary and I are mentally numb.  For instance,  the other day he bought a Cheddar Pasta Salad for his lunch while out with his day group.  He came home carrying the empty shopping bag, but inside was the receipt for the pasta salad.  He wanted me to see it and to be as disturbed as he was by the fact that his pasta salad rang up as potato salad.  I have since, including this morning, explained to him that the two salads cost the same.   It doesn’t really matter that Cheddar Pasta Salad was rung up as Potato Salad.  Both are in the deli and both cost the same.  I have assured and reassured Aaron that this matter is really no big deal…….yet I know that to Aaron it IS a big deal.  Simply put, Potato Salad is not Cheddar Pasta Salad.  This fact and this incident upsets Aaron’s world.  Mom and Dad need to get this, and need to discuss this with as much fervor as Aaron.  After days of discussion, our flat voices and vacant stares do not make sense to Aaron.  He hardly notices.  Like he said this morning, “Mom, should I fuss at those scanner people?  That was weird!”

I sigh and think of what and who is really weird, but I just assure Aaron that he should not fuss at those scanner people…….and I hope that soon he’ll just GET OVER IT!!!  Just like I’m longing for him to get over the new PC game he saw at Wal-Mart that he is wanting to buy.  Alien……which is right down Aaron’s alley because it’s full of growling, slimy aliens that your character must kill.  Gary and I want to research this game before we say yes or no.  Aaron isn’t into research………..he’s into talking us down to a level of no resistance. 

He was discussing this game while I was getting ready the other morning.  He asked repeatedly if and when we could go to Wal-Mart to check it out…….which to Aaron means to buy it.  And he says what he often says when making these requests – “Mom, I’m not making you!”  As he talked on and on the other morning, he tried a new tactic as he asked if we could probably go to Wal-Mart.  “Mom, I said probably!  Does that mean making you?”  Clever, Aaron – very clever.

That night I saw predictable Aaron as he came down to the kitchen.  It was time for bed, and he took his pills.  He then headed for the guest bathroom, because he prefers it more than his bathroom upstairs.  Aaron must always say goodnight, and he very much prefers to say goodnight in his room.  I reached out to give him a goodnight hug in the family room and he backed away.  He knew I wasn’t going to wait on him to use the bathroom, so he thumped up the stairs and walked into his room.  I followed obediently, knowing exactly what was happening.  He stepped into his room, turned and gave me a goodnight hug, and then went back downstairs to use the bathroom.  Yes, predictable Aaron. 
The next day he told me that he was tired because he stayed up reading too late.  Aaron will only read at night before bed, all propped up just so-so in his bed as he reads one of his Handy Answer books.  As he told me that he was tired, he began discussing Latin names of animals.  Last night I discovered why he was talking about Latin animal names and why he had been tired that morning.  Aaron, who reads EVERY word of his Handy Answer books, had read this long list of English/Latin animal names, along with the animal’s  expected life span.  He showed me the list that was on several pages, and also pointed out how he had read across the list…………every name…….every single name.  I just shook my head in disbelief while he was again unaware of how amazing he is. 

Sometimes Aaron is even sweet.  A couple evenings ago, he and Gary were on a walk out in the yard.  Later Aaron came in the house and with great purpose he marched over to where I sat.  He held out a “flower” as he said, “Here, Mom!  I picked you a flower!”  He thrust it toward me as he continued, “Put it in a pot of water and save it, OK?” 

I took the “flower” that was handed to me and saw that it was Chickweed.  And even though I didn’t really want a Chickweed flower, I shrugged off my resistance and accepted it gratefully.  Aaron was very pleased with the “flower” he had given to Mom, and I was so touched by his earnest show of love.  I put the “flower” in a glass of water, where it is thriving.  Aaron loves the little blue flowers that are really purple………..but Aaron is color blind and so to him this pretty “flower” is indeed blue.  And I am relieved that at least he didn’t pick this “flower” from the neighbor’s flower bed, which he has been known to do.

These incidents are just the tip of the iceberg that is Aaron.  And just as with a real iceberg, the majority of which is underwater, so it is with Aaron.  There is so much more to him than meets the eye.  It takes some time to understand him, and just when you think you do, he does something that catches you by surprise.

That’s what I think of when I look at my pretty Chickweed “flower.”  I’m glad I saved it and didn’t toss it in the trash.  And I’m always glad when I take the time to understand Aaron, and not just toss him aside in frustration. 


But I do roll my eyes a lot!