Category: Asperger’s Syndrome

Please Say Mistletoe is Fake!

It’s the Christmas season………..the time of lights and joy and warmth and presents……..and Aaron trying to figure out Christmas carols.  In Aaron’s  literal world and in his world of showing minimal emotion, Christmas songs seen through his eyes can be very interesting.

Comments from Aaron can range from the style of singing:  “Hmmpf!  Why is she singing like opera?” ……..to all the unfettered emotion of a particular song:  “Hmmpf!  Why did he say that?  That was dumb!” 

For instance, there is the strange subject of mistletoe.  We heard a Christmas song one day in the van and the benefits of standing under the mistletoe were being gleefully proclaimed.  Aaron does not share this glee.  To Aaron, mistletoe is weird and kissing is positively unthinkable.  As the song progressed, Aaron blurted, “Oh brother!!  They’re talking about love again!!”

I chuckled and just remained quiet.  Aaron did not.  “Is that thing about mistletoe true?”   So I tried to explain mistletoe to Aaron, briefly. 

He responded, “I thought it was a religion or a myth or fake!”

I am sure that he hoped beyond all hope that it was fake.  I offered to hang us some mistletoe at our house but he was not at all in favor of that idea. 

Of course, he’s on the Christmas countdown.  He will be talking to me and then as he walks away he will blandly update me by saying, “It’s 19 days til Christmas.”  Yesterday as we listened to the 12 Days of Christmas song,  he had some commentary on how silly that song is.  He continued his conversation with Gary at supper.
“Dad, there was that song about the first day of Christmas.  Then they made it to the end of it at 12! “

Gary assured him that he knew that song as Aaron continued, “So what’s the point of it?  Is it so we can count?”  And before Gary could really begin to straighten this out, Aaron said, “And who would know how to wear five rings?  No one needs five rings!!!” 

I had earlier tried to tell him that it was based on other cultures who celebrate Christmas for 12 days.  Not remembering which culture does that, as I racked my brain for this piece of trivia, I said that it might be Russian culture……..to which Aaron replied, “Russian TORTURE?!” 

Torture might actually be an apt description for how some of these familiar songs affect Aaron.  We just sing along happily while Aaron is over there dissecting each song and trying to figure out the meaning to these crazy phrases………….and vowing to avoid mistletoe! 

Relax, Aaron!  And Merry Christmas!
 
I’ll get back to you on that thing about the partridge in a pear tree. 

The Keyboard and The Cold

Today is Monday, and I am fairly certain that I know how this day is going to go.  It has nothing to do with my plans for the day, which include a hair appointment and the exterminator making his two-month visit and a way too long to-do list.  It has everything to do with the fact that Aaron has a cold and is staying home today, which makes him very happy.  But there is one thing that would make him happier and so this one thing will consume his thoughts, which will in turn shape my day.  This one thing, this huge thing, is his keyboard.

Aaron’s computer took its last breath over a week ago.  Aaron even demonstrated to us several times the unusual noise that his computer made as it breathed its last.  His rendition was quite hilarious, as Aaron would say.  So Gary, our computer pro (thank the Lord!), diagnosed Aaron’s computer as dead…….very dead, of unknown causes.  Aaron took the news well, especially when he heard his dad say that he would fix it – one way or another.  After all, we have to live with Aaron.   It turned out that Gary had to order a new computer and many parts and pieces, which he somehow knew how to put together (thank the Lord again…….and Gary!).  I have no idea how Gary has this knowledge, but I do believe he was just born with this innate ability to be able to put almost anything together.  I walked downstairs one night after the parts arrived in the mail and found Gary with multiple screws, most very small, and lots of computer-looking things laying around………….and I wondered how this was all going to turn out.  But he did it and now Aaron has a new computer. 

We remove Aaron’s keyboard from his room every night because if he has his keyboard in the morning he is very grouchy.  This routine works  well and Aaron has come to expect it.  He knows that if he has a good morning, then when he returns from his group, his keyboard will be on his desk – just waiting for him!  And now with his new computer, and having been without a computer for many days, he is totally enjoying  his games again. 

This past Friday,  Aaron woke up with a mild sore throat.  On Saturday, the sore throat was worse and now he has a bad cold.  He has still been playing his Lego Star Wars game, but has also been sleeping more and coughing more, and of course, snorting more………….snorting a lot.  And telling us over and over again that he doesn’t feel well.  He has to be sure that we don’t lose sight of that fact.

On Friday night, after gorging on popcorn at the movie with his group that afternoon, and then gorging again when he was invited to Elijah’s house for the evening, he burped.  He burped and then he informed me, “Mom, hot acid just came through that place where my throat is sore.” 

Well, that’s just gross, Aaron!  But he is puzzled at my reaction.  Facts are facts, Mom.

Last night he said, “I hate my breath.”  I was about to say that I do, too………..but I refrained.  He then explained, after I asked, that he doesn’t like how it feels to breathe when he has this cold……….all stopped up and then coughing, too.  So he hates his breath.  Only Aaron would say it in such a way, and I smile.

I told him that he could stay home today since he is feeling so poorly and having breath issues.  This news made Aaron very happy.  He loves his group but he does love being at home, especially when he doesn’t feel so well.  However, the main thing on Aaron’s mind is his keyboard………..his keyboard which is laying on my dresser and not on his desk. 

He lumbered downstairs early this morning and sat at the kitchen table with me.  “I don’t feel so well, Mom.”   I totally expected this.  I almost said it for him.  He brightened when I told him that I was aware of how he feels and that he was staying home today.  And he replied, “I’m not going to ask for my keyboard today.  Am I?”
  
We had a little stare-down.  I was totally resigning myself to my future for this day, and Aaron was completely unaware.   He continued by asking, “What do you think?” 

Believe me Aaron, you do not want to know what I am thinking. 

I assured him that he could have the keyboard later in the day, knowing very well that I have not heard the end of his keyboard comments.  This is my lot for today.  And sure enough, as I folded a load of laundry he said, “Mom, can I have the keyboard later?  I’m not making you!”   This, and various other keyboard references, have already been a part of my morning.  He also said, “Mom, I like my new keyboard box.  It has a cute light where I turn on my keyboard.” 

A keyboard box.  This is what he calls his new computer.  I could never make up the words that he uses to describe things, and I smile even as I tuck that description away so that I can share it with Gary later.

Aaron decided to go out to the mulch awhile ago.  “Mom, I’m going outside.  Can I have my keyboard later?”  And just now, when I heard him come in, he was soon asking, “Mom, I’m going upstairs.  Can you put my keyboard up?”

Aaron is tenacious, that’s for sure.  He holds on to his ideas and desires until we let go.  He may change his approach, as he just said, “Mom?  How ’bout you do it after your shower?”  I know he works better if he has a definite time frame to work with.  He doesn’t allow us the freedom to be vague. 

Here he comes again.  Like I said, this is my day.  Gotta love Aaron!  And I better get something concrete set in place regarding his keyboard, real quick! 

So goes my day.

Grandma Einstein

The other night I went into Aaron’s room to tell him goodnight.  There he was, all propped up in bed with his special fuzzy black pillow behind his back and all his other items around him in the particular order that he likes.  I walked around his bed to get to the side on which he sat so that I could hug him……..and as always, he never looked up from his reading to acknowledge that I was there.  I hugged him anyway as he continued to read and I said, “Goodnight, Aaron.  I hope you sleep well.  Love you.”  To which he replied, “Hmmm – OK.” 

And as so often happens, when I started to walk away he perked up and said, “Mom!”   Which means that I must stop and turn to face him while I wait for him to continue.  And wait.  And wait.  And finally he said, “Mom, I bit my lip while I was eating nuts.  See?  Is there a bite point?”   He poked his bottom lip out so that I could perhaps better see the bite point.  I leaned down and looked at his lip as he pulled it downward, hoping that surely I would see the bite point and have some empathy for his pain.  All I was seeing was the rather gross view of the inside of his lip, even as I wondered where he had stashed his peanuts.  Well, I did see a little something on his lip so I told him that yes, I think I saw the bite point……….and he was satisfied. 

He immediately held out the book he was reading – his Handy Answer Science Book – and said, “Mom, look!  I’m reading about that scientist.  You know…..the one named Einstein.” 

Yes, Aaron, Einstein was very smart.

Aaron responded, “But he had really funny hair.  Einstein looks like a girl!  He looks like a Grandma!”

I apologize to you Grandmas out there.
I tried to explain a little about Einstein to Aaron, but he was totally immersed in the thoughts of Einstein’s wayward hair and how much he looked like a girl……..a Grandma girl, to be precise.

Aaron has a very inquisitive mind and we often tell him that he is very smart because of his curiosity………..like Einstein.  A few days after our Grandma Einstein conversation, I again told Aaron that he is very curious and smart……to which he replied, “Like when I know that if you drink lots of water, your pee is clear?”

Good grief.  He sometimes leaves me speechless.  He stood there, very proud of the fact that he knows this scientific information concerning the relationship between the volume of water one has drunk………..well, never mind.

Speaking of which, Aaron has always had a certain fear of toilets.  He is absolutely terrified of a toilet overflowing.  He is also scientific enough to know that when the water volume is very low, then the toilet is probably stopped up.  In addition, he is also scientific enough to know that this probability is directly related to the amount of toilet paper that he sometimes tries to get the toilet to accept without overflowing.  He has learned that toilets have limits.  Small amounts of water in said toilets usually mean that these toilets have reached their limits, and the next flush may be disastrous.  His worst fear is then realized.

In his bathroom, there is a fairly new toilet that has a low water volume.  Aaron does not trust this toilet……..at all.  The other night he said, “Mom, I used your and Dad’s bathroom.”  Now this is nothing new and I wondered why he felt the need to share that information.  I told him once again that he should use his bathroom…….his nice, new bathroom that is all his now.  I asked him, “Aaron, why don’t you like to use your toilet?”   And he matter of factly answered, “Because the water is quite low, actually.”

I laughed.  He sounded so much like a professor…….an Einstein without the Grandma hair, reading his Handy Science Answer Book and sharing with his mother some of the things he has learned.  He is curious, and he is literal.  The other night it was,  “Mom, I was reading about the periodic table.  That’s a funny name for a table.”   I guess he thought of this fact because we were playing Skip-Bo at our kitchen table, which reminded him of that strange table he had read about………the periodic table.    I assured him that the periodic table was not a table at all, like our kitchen table, but was a chart. 

“A chart?” he asked.   Yes, Aaron, a kind of chart…….you know, a chart…….on paper.   He thought for a few seconds and then said, “It’s not a normal kind of table.” 

Ah, literal Aaron.  A table is a table is a table…………so a periodic table is some kind of strange table, not a normal table.  Forget the chart idea, silly mom!  So I didn’t press the issue or try to explain it further, as I have in the past.  Explaining the elements and their symbols to Aaron was a bit much that time, I remember.  It made me want to pull my hair, but then he’d say I was looking like Einstein.  I mean, I am a girl…………old enough to be a Grandma girl.
 
Let’s talk about toilets, Aaron.

No One Likes Me

Last night I walked into Aaron’s room to say goodnight because, as some of you may remember from previous blogs, Aaron much prefers that I say goodnight to him IN his room……….not in the hall, not in our bedroom, not in the bathroom as he brushes his teeth……….but IN his room.  Some of the fastest walking that you’ll see Aaron do is when he’s ready to say goodnight and is afraid that I’ll attempt to do that outside of his room.  He walks at a fast clip down the hall so that he can get IN his room and then turn to say goodnight.  Ah, the mysteries of autism!

Aaron was sitting in his desk chair as I walked into his bedroom.  His computer was shut down, but there he sat……….looking down at the floor.  I sat on the bed and he looked up at me, so I asked him if he was ready for bed.  He told me that he was and then he said, “Mom, no one likes me.”  I was puzzled at this statement and sad, too, at both his verbal expression and then also what was
 written on his face.

I responded, “Well, Aaron, that’s not true at all.  Lots of people like you.  We like you!  And you have lots of friends at Paradigm.”

He  quickly answered, “A girl doesn’t like me.”

So this was the problem…….this was why he was pensive and quiet.  As we have watched him develop a special friendship with Rosie, we have tried to discourage romantic feelings while we instead encourage the friendship side of their relationship.  Rosie’s mother agrees.  Romance, in whatever form that might take with Aaron and Rosie, is fraught with concerns.  As I sat there wondering where this conversation would lead, he continued by telling me of an incident where someone at Paradigm had told him that he doesn’t have a girlfriend. 

Aaron is struggling with this notion of not having a girlfriend, and of wondering where Rosie fits into this situation.  I urged him last night to be thankful for the wonderful friendship that he and Rosie have………that she doesn’t have to be called his girlfriend for them to be close friends……..that nothing anyone says can change the special bond that he and Rosie have. 

I watched him as he sat there listening to me.  And I knew that I was in some trouble when he looked up and said, “Were you and Dad friends?”  I paused…….and took a breath………..and prayed for wisdom, even as I told him that Dad and I were indeed friends in college.  Then Aaron, as he was connecting the dots and I was wishing for an eraser, continued, “So you and Dad became boyfriend and girlfriend.  What’s up with that?”

Why did I, once again but more now than ever, feel trapped?  Why was I feeling guilty that my friendship with Gary went into this boyfriend/girlfriend realm?  Was it because now Aaron was figuring out my hypocrisy?  I could tell him to remain friends with Rosie but Dad and I didn’t do the same? 

I had to answer his question that was hanging there between us – “What’s up with that?”  So I smiled and said, “Well, Aaron, we fell in love.” 

He thought for a few seconds and then said, “Hmmmm……..so that’s what it is?”
I wanted to say, “What WHAT is??!!”   But I calmly said yes, that’s what it is.  Dad and I fell in love. 

With that, the conversation was over.  Aaron got up, we hugged and said our goodnights, and I gladly closed the door.  I wasn’t in our bedroom more than a minute when I heard Aaron’s door open and heard him knock on our bedroom door.  Gary asked him what he wanted and Aaron said, for me to hear, “Mom, so you say Rosie doesn’t have to be my girlfriend?”

Oh, Aaron.  I repeated that no, she doesn’t need to be called his girlfriend in order for them to be good and special friends.  He said OK and thumped back up the hall to his room, closed his door, and ended the conversation.  But I know it’s not the end of this issue.  Aaron is thinking and his heart is confused.  He’s a 28 year old man with the thoughts of a confused adolescent.  We would not deny Aaron any happiness in the world that was of no harm to him.  Yet this issue of love is tricky ground for our special needs children……..our children who are actually adults.

I have to give it to him…………he is putting two and two together, and realizing that for Dad and I it equaled four………so why can’t it equal four for him and Rosie, also?  And while we don’t mind if Aaron and Rosie are called boyfriend and girlfriend, we know what the next natural step is and we can’t even go there in our minds.   Marriage may be the farthest thing from Aaron’s mind, but at one time so was the thought of having a girlfriend. 

Aaron feels……..deeply.  Aaron thinks…..also deeply.  And we all know that Aaron talks……a lot.  I know that he will talk about this subject again, and I know that Gary and I will need wisdom to say the right things and to not brush away his feelings and his longings. 

Maybe the next time he brings it up, I’ll give him the best answer I can think of…….go talk to your dad!!

PIG ON!

Aaron came home on Tuesday from his group, carrying a bag full of treasures…….. with some in his pocket, too. “Mom!”  he yelled as he burst in the door.  “Mom!”  I was upstairs cleaning and soon he found me.  “Mom!”

Well my goodness, Aaron.  What is it?

That morning I had stopped with him at Dillons on our way to his group.  He had wanted some peanuts – normal nuts, as he calls them – and so the first thing that he pulled out of his bag was the jar of peanuts………..only half eaten.

“Mom!  Look!  I didn’t pig on my peanuts!!”

He was quite proud of this accomplishment since normally he DOES  most definitely pig on his peanuts……….and many other snacks as well. 

He continued.  “Is it good that I didn’t pig on my peanuts?” 

Yes, Aaron!  It’s very good that you didn’t pig on your peanuts!  It was funny to adopt his phrasing and I had to smile, even as he enthusiastically continued to look in his plastic bag that was still heavy with his treasures.
 
Gary had come home early and Aaron had stopped to show him one particular find of his.  Out of his bag he pulled a screwdriver as he told me that Brandy and Barb had taken him and Rosie with them to run some errands.  “Mom, we went to Ace Hardware.  That’s a dumb store!”  Aaron thinks it’s a dumb store because it’s full of things that are of little interest to him………although he does enjoy looking at all the unusual varieties of toilets.  What can I say?

Anyway, Aaron told me, “Mom, I found this screwdriver outside on the sidewalk.”  I looked at it and could tell it wasn’t new as I worried that he may have snuck a new one in his pocket from the store shelf.  He went on.  “Dad said that you could have the screwdriver and you could put it on a high kitchen shelf.  Do you have a high kitchen shelf?”  I knew the reason that Gary suggested a high kitchen shelf.  A high shelf would discourage Aaron from putting the screwdriver in his pocket again and using it for some unwelcome experimenting. 

He hardly paused before he reached into his bag again.  “Mom, we went to another store and look what Brandy bought me!”  He pulled out a full can of mixed nuts, which are not normal nuts.  Aaron loves these nuts, as demonstrated later when he told us about the nuts with wrappers (skins) and the wrinkled nuts (pecans).  I knew he would enjoy this special treat over the holiday.

But he wasn’t through.  “And Mom, Brandy bought something for me to give to you.   Do you like Gummy Bears?”   He handed me a bag of colorful Gummy Bears even as I assured him that I liked Gummy Bears……….knowing that they aren’t my favorite, as Aaron says, but relishing the fact that Aaron wanted to get me a special treat.  The screwdriver was nice, but the Gummy Bears were very special.  They were more a symbol from Aaron’s heart of something personal for Mom…….Gummy Bears!

From his pocket he pulled some money that Brandy had said he could have……….money that he found in her van.  I did check later with Brandy to confirm that story.  What an exciting day Aaron had!  He was showing it, too, in his happy voice and his animated demeanor.  But there was one more thing.

The bag was sagging downward as he reached inside and pulled out a rather large, odd…….rock.  Somewhere Aaron had spied this rock and had grabbed it up to bring home and show Mom and Dad.  “Mom, look at what I found!!” he said as he held the rock aloft for me to see.  “Can I keep this rock in my room?”

Oh brother!  We have had so many rocks in Aaron’s room, collecting dust on top of his dresser or bookcase, or ending up under his bed.  I’ve been trying to keep his room decluttered with all these finds of his.  But Aaron had found another special rock, different from any others.  They all are.   And then it came to me!

“Aaron, let’s put this rock out in the flower bed, in the mulch!”

He thought that this was a grand idea, so I left my scrubbing to go outside with him.  He carried the rock, not sure that he could trust me yet to not toss it away.  We found a place to situate the rock, but first I asked Aaron if I could take a picture of him with his special rock.  He was happy to do so, and he held the rock up joyfully as I snapped a picture.  You can see the delight on his face and the joy of this simple find………….a rock. 


And I realized that once again, Aaron has given me a moment to pause and think of life’s simple pleasures that are too often overlooked.  Especially during this season of thanksgiving, I hope that I will realize that life is about more than sitting down at a table full of food to “pig on!”  I also need to slow down and to notice the mundane and the routine………..and to thank God for each one.  Each normal nut and each wrapped nut and each wrinkled nut………….each screwdriver…………each bag of Gummy Bears………….and each rock. 

God has put them all in my life for a reason – a very special reason.  Just like he’s put Aaron in my life for a reason.

Very special, indeed!

The Songs That Girls Sing

Aaron sure was in a great mood this morning.  He’s excited about Thanksgiving, and has been in his usual countdown mode, reminding us about how many days it is until the big turkey day!  He’s excited about having Andrea and Andrew home for a visit, and about getting to meet Andrea’s new dog, Darcy. 

I heard Aaron in the shower while I was still getting ready, and without having to be told.  That’s unusual!  I wondered if the mirror in his bathroom would be steamed over, knowing that it probably would be.  He refuses to turn the exhaust fan on because he’s always had a fear of those fans from the time that he was a young child.  Plus he loves to sometimes write in the steam that’s on the mirror, and then to see those words reappear every time the mirror steams over…….which is every time that Aaron takes a shower!  He usually writes something like “Aaron is cool.”   He thinks that this is funny and doesn’t mind at all that I fuss at him about writing on the mirror. 

The other day he said, “Mom, the bathroom window gets fuzzy when I shower.  I wrote ‘battleship’ on it!”  So sure enough, the next time I was able to go in the bathroom right after he showered to see the still-fuzzy mirror, there was the word ‘battleship’ written on the fuzzy mirror.  Why battleship?  I have no idea.  Sometime I may ask, but that morning I didn’t have time for what I knew would be a lengthy answer and then a run-down of that movie………..the one that I still haven’t quite recovered from.
As I met Aaron in the hall after his shower this morning, he said, “Mom, it’s only two more days until Thanksgiving!  Today is the 20th and Thanksgiving is the  22nd!”  I don’t really need calendars as long as I have Aaron around!

Aaron wondered if we could leave early and stop by Dillons for some peanuts, so I hurried and got ready.  Soon we headed down to Dillons on our way to meet his group, where he bought a flavored water and a jar of peanuts……….after trying to pick up the largest container of peanuts that he could find and having that choice vetoed by mom.
 
There is no hurrying with Aaron, and I was trying hard not to be late to meet his Paradigm group.  Aaron plunders along very slowly, and before I knew it he was way behind me…………cradling his drink and his peanuts in his arms, and saying hello to nearly everyone who came his way.  This is a new behavior of his, this greeting he gives to people that he passes.  Or sometimes if he thinks he’s in the way, he’ll say “I’m sorry” over and over again to various people in the aisles.   I smile even as I tell him to hurry or tell him that he doesn’t have to apologize for merely passing people in the aisles. 

Finally we were in the car, heading to his group meeting place, with Aaron continuing to talk.   “Mom, is that legend of the weeping willow tree true?  You know, the legend that says the tree looks like it’s crying because it’s all bent over.”  We talked about the weeping willow tree legend while we listened to a song……..a song which suddenly captured Aaron’s attention.

“Mom, is that Alabama?”

I told him that it is not the group Alabama.  “Oh, I wondered because I didn’t think they had a girl in their group.”

So I told him that this was a group that had two girls.   For some reason, he could not figure this fact out. 

“I didn’t know that girls sang in these songs.  I thought they only sang about love.”
I was trying to figure this out and to explain that girls sing lots of different songs, when we pulled up to the car that was driven by Cody.  Aaron always opens his window when we drive up, and Cody opens his window………..and they have a little conversation before Aaron leaves our van and joins the group. 

This morning Aaron said, “Cody!  Mom was listening to a song that had girls singing in it.  I thought they only sang in love group songs!”  Cody laughed as Aaron continued to talk about what songs girls sing.  Aaron never asks Cody how he is doing but instead launches right in to whatever is on his mind, or whatever he and I have been discussing.  I wonder if he continued to talk about girl songs as he and Cody drove away?

I think I’ll go clean the bathroom mirror now………or maybe I’ll leave it so that when Andrea and Andrew see the fuzzy mirror after their showers, they’ll smile at the sight of Aaron’s writing on the mirror.  Some things never change, especially with Aaron.

I guess that’s why he was surprised that girls would sing something other than love group songs.  Girls are so confusing!  

New and Improved

I’m trying to think of how to describe our evening yesterday with Aaron.  Was it…..interesting……entertaining…….frustrating…….funny…….or all of the above?  I would have to say it was all of the above, certainly – and that using the word “frustrating” for some of the evening is actually putting it mildly.  He came home in a very happy, chatty mood – anxious to talk to me about his day.  He hadn’t been very happy that morning so I wondered how his day had progressed, and was relieved to hear that he had gone to the mall and seemed to enjoy it. 

When I had dropped him off to meet Cody, Aaron had marched into Quik Trip first thing to get a snack.  Cody was in charge at that point, so I left……….and as Aaron talked to me when he got home, I asked him what he had gotten at Quik Trip.  He answered, “Nuts.” 

“What kind did you get?” I asked him.

He replied, “The normal kind.”   I supposed that I was expected to know what the normal kind is………..and I later heard him say he had eaten peanuts, so now this new information was locked away in my brain.  Normal nuts are peanuts.

Aaron continued talking.  “Katie asked what kind of clock I got for my birthday.  I said that new and improved.  Isn’t that right?  It’s that new and improved.”

I smiled at his description.  Yes, I guess you could say that your clock is new and improved, Aaron.  It certainly is bigger and nicer than your old clock……….and I guess that qualifies for being new and improved.  I felt like we were filming a commercial!

It wasn’t long before Aaron asked if he could have his keyboard.  We remove it every night in order to prevent conflict the next morning about getting off whatever game he is playing.  I took a breath and calmly told him that he could not have his keyboard because that morning he had been grouchy and had refused to take a shower.  No shower – no keyboard.  He was calm as he continued to ask me about it, hoping that either he had heard me wrong or that I would change my mind.  Soon, though, reality set in………especially when Gary got home and confirmed my decision.  Things quickly went downhill from there, with Aaron becoming more and more angry.  He would come downstairs to plead his case, and then stomp back upstairs to try to watch a video. 

And naturally, on the worst night ever, his DVD kept freezing.  Gary worked on it and couldn’t fix it, which certainly did not help Aaron’s mood.  All of this misfortune was our fault.  Aaron wanted this and wanted that………we were awful parents…………he had the most dreadful life in the world……….we didn’t care……..etc., etc., and etc.   Gary and I were firm but never raised our voices.  Finally, after Aaron had followed me up the stairs and continued to talk angrily, he went in defeat to his room and once again turned on his second-choice DVD.

I had told him that we could play Skip-Bo, and as he watched his DVD I heard his usual, “I’m coming!”  He says that over and over when I tell him that we can play Skip-Bo or whatever, as he waits for a point where he is willing to leave his game or his movie.  “I’m coming, Mom!”   And I knew it would be awhile before I heard him turn it off and thump down the stairs.  “Coming!”  

But amazingly enough, I then heard him say, “I’m sorry!”  I wondered if I had heard correctly, but soon there it was again,  “I’m coming!  I’m sorry!”  Gary had come upstairs to check on things and was as surprised as I was.  “Did he just say he was sorry?!”  Gary asked.  “What happened?”  And I had to say that I didn’t know.  Just all of a sudden, Aaron was sorry……….and we were cautiously optimistic that the worst of his angry outburst was over.

He thumped happily down the stairs as I shuffled our Skip-Bo cards, and he proceeded to get his Chex Mix snack and his bowl in which he puts the little Chex Mix Melba toast pieces that he refuses to eat…….plus his paper towels and his regular towel that he carries around.   I was breathing easier, more convinced now that he was really over his defiance. 

He still had a lot to tell me about his day at the mall as we started our game.  “Mom, I started to pick a leaf in a big plant in the mall.”  I am not surprised by this.  Aaron always wants to pick leaves from plants, both outside and inside of buildings.  I told him that he wasn’t supposed to pick the leaves from the mall plants, and he asked, “You mean the mall would make me in trouble?”
 
No, Aaron, you would make yourself in trouble………….which you do quite well.

He went on…..”Mom, I wanted to buy you some make-up today.”  As I questioned him I realized that he was in a nice store with some of the staff, a pretty store,  and he said, “They said I could buy some make-up, but it was too expensive.  So can I have a sword from the sword section?”

No, Aaron, you cannot have a sword.  They have a sword section?

Then he told me about the client who wanted to hug him as they were getting in the van.  “I had to move her arm away from me.  I told her she’s not my mom!!”

And I thought how sweet it is that he associates hugs with Mom, especially after the way our evening had just gone.  He’s still so innocent in many ways……….still so much like a little boy. 

He then said something that I found to be very insightful.  He loves his day group, Paradigm, and they love him.  We have no doubt of that, so it was interesting to hear him say, “Sometimes I don’t feel like I’m welcome at Paradigm.”  I was surprised and asked him why.  He said, “It’s because of those things I do.”  So we talked about those things………..behaviors such as hitting, or being too loud – even in fun……….and then I asked him why he did those things.  And he answered, “Because I don’t think before I act.”

He’s right about this, but it was very surprising to hear him say it.  He has the typical autistic traits of being impulsive……….of not being able to control his outbursts and his rages………of being unaware of social cues, and do’s and don’ts that we take for granted…………and then later being sorry – maybe.  It’s both sad and encouraging to hear him voice his thoughts and his struggles.  We talked about it as we played our final game of Skip-Bo before bed, and I was thankful for his new calmness and hoping that some of what we talked about would take root and show up in more mature behavior.

This morning he was very happy, very obedient, and very clean after his nice shower.  After awhile, I thought it was very quiet.  I looked out the window and saw him sitting under the tree, playing in the mulch.  This is his way to relax and to process…………to wind down and think his thoughts.  There he sat, in what he calls his “silver” jacket……..content and relaxed.

And I thought of this “new and improved” Aaron from the night before.  He was so mellow today, so calm and compliant.  However, just as God loves me in all of my ups and downs, my good and my bad…………..so we love Aaron.  We love him when he’s the “new and improved” and we love him when he’s the “old and impaired.” 

Isn’t this just like the old nature and the new nature that Paul talked about?  Sometimes the old crops up when we least expect it or when we’re not being careful.  But God is patient with us……….and so we try to be patient with Aaron.  We never know what to expect from one day to the next, sometimes one hour to the next.  But he’s our boy and we love him. 

I think I’ll see if he’ll let me hug him today when he comes home.  

Food, Food, and More Food

Aaron loves not only the act of eating, but he loves to talk about food……..what he ate, what he will eat, what he wants to eat, how much he did eat, how much he would like to eat………you get the idea.  Nearly every day when he returns from his day group, he’ll eventually give me a run-down of his food consumption for that day.  I like to know so I can figure out if he ate at least one healthy item……….or to redirect him in making wiser choices……….perhaps to see if he wants to eat supper with Gary and me…………or to be forewarned of what I might expect later concerning various stomach issues (if you know what I mean). 

He came home one day and said, “Mom!  We went to Target and I was in the super part!  That Combo Pizza Meal was $2.19 but then it became $7.24!”    Uh-huh.  I never did get an adequate answer about the price jump, but I knew that either he added more food or he spent his money on something else there.  Who can tell? 

Then there was the time that he informed me, “Mom!  I got a #10 menu item for lunch.  You know what came with that menu?!  A LOT of food!!”   Which of course made Aaron very happy.  He continued, “Mom, what are Tater Tots?  Are they potatoes?  And there were cheese sticks!  They have cheese inside!”   Really, Aaron?  What a surprise!

He doesn’t get my humor and just continues with his rundown of his meal, oblivious to my sarcasm, which makes me laugh and then makes him think that Mom is enjoying this meal recitation…………and around and around we go.  He has no idea how entertaining he is, really.

One day he called me from his day group.  When I asked him how he was doing, he answered, “Fine I’m full.”  No pause…..no breath……just all together – “Fine I’m full.”  This could probably be said by him nearly every day of his life.  The day that he said to me, “I’m full!  Can you imagine that is true?” – was one of those days that I had to almost literally bite my tongue from saying what I so wanted to say.  But again, sarcasm is wasted on Aaron so I decided to just keep my thoughts to myself.

I try to control his eating at home, although he certainly is sneaky about hiding food in his room……or in his pockets………..under his bed………….in his desk drawers…….under his blanket.  We’ve gotten proficient at hiding food from Aaron, too…….but I have to always hope that I’ll remember where I put it.  Aaron went through a phase of wanting to drink Gatorade that he found out in our garage refrigerator.  I told him it was not for casual drinking, but was for us if we were sick or were working outside and getting dehydrated.  He just couldn’t believe that, and so asked, “You mean I can’t have them even though they’re drinking things?!”

Aaron also loves, loves, loves to feed our Great Dane.  And Jackson loves, loves, loves to eat anything (nearly) that Aaron gives him.  Aaron will purposely drop food on the floor during dinner in the hopes that Jackson will come in after we eat and find it.  We quit buying any rawhide bones because every time we turned around, Jacks would have a bone hanging out of his mouth, courtesy of Aaron.  And after Aaron eats, he likes to go up to Jackson and blow in his face.  We always tell Aaron to stop doing that, and one day he asked, “Don’t you want him to know our food?”  Oh good grief, Aaron!

He does actually think about his weight, believe it or not.  He often asks if we think he’s losing weight, or at least half-way losing weight.  He was eating candy one day and asked, “Is that candy gaining me weight?” 
It wouldn’t if YOU didn’t put it in your mouth, Aaron!

He likes fruits and veggies, so I try to encourage him to snack on those as well as eat them at his meals.  One day I was heating him up some leftovers for lunch and I told him that we had some spinach from supper a few days earlier.  I asked him if he wanted me to heat it for him.  He’s picky about his food touching, though, so he said, “Yes, but put it in a bowl – not beside my other stuff.”  I did that, knowing that his food placement is as important to him as his food choices……….and also as important as the multiple number of forks and spoons and at least one knife that he always brings to the table for each meal.  Some issues are just not worth fighting.

As he sat there that day and ate his spinach, his always curious mind was thinking about how spinach grows…….so he asked me about that.  “Does it grow on the ground?  Isn’t that strange that it’s from the ground?”  I reminded him that all the plants that grow are from the ground, but he quickly corrected me.
“No, it’s not!  Some things are pointed up, like corn!”
 
That boy keeps me on my toes!  Or should I say that he keeps me grounded?  

Aaron’s Clock

I was talking to my sister, Kathryn, last night.  She wanted to know if Aaron got his clock that he wanted for his birthday.  I realized that I had perhaps left some of you hanging on that issue, so I am happy to say that yes, Aaron got a clock for his birthday.  
It’s bigger than his old clock that he broke, and he won’t be carrying it around.  I looked and looked, and couldn’t find one like his old one.  He likes this new one, though.  It’s just like the one that Gary got me and that I keep on top of our refrigerator. 

Maybe I’ll keep looking for a smaller one that has the time and temperature……..one that he can carry around with him in order to always know not only the time, but the ever important temperature………..indoor AND outdoor!  These details are important to Aaron! 

His new one shows the humidity.  Aaron has asked me several times to explain the humidity as he informs me that the humidity is high.  No matter what I say, he seems to need more explaining………..and why on earth he doesn’t google these things is a mystery to me.  I wish I had a dollar for every time I tell Aaron to google something!

Kathryn also asked about how Aaron handles the recent time change.  I thought I’d leave you with his comment to Cody, who picks him up for Paradigm.  Gary and I had been over to Pittsburg to see Andrew on the Saturday that the time changed.  I had told Aaron that on that night, after we got home and before we went to bed, we would change our clocks.  This is very interesting and important to Aaron.  I have to stand in his room with my cell phone ready as he punches his digital clocks and gets the time just right.
 
So when I dropped Aaron off on that Monday morning, he gave Cody his usual monotone, expressionless  “Hey.”  And then Aaron brightened up as he said, “Cody!  The time……..it went by backwards when Mom was coming home!!”

Only Aaron.  It sure felt good to laugh on that Monday morning about our backward time.

The Very Special Birthday Gift

This past Thursday, Nov. 8, was Aaron’s birthday………number 28, amazingly enough!  When I went into his room to check on him and make sure he was up, I found him watching a video.  I said, “Aaron!  Today’s your birthday!”  And he replied, in his rather flat voice, “Yeah.”  But he had a smile and he rubbed his hands together, and I knew he was happy with the fact that today was finally THE day.  The countdown was over and he could now enjoy this special, once-a-year day that belonged only to him.
 
I returned to his room later to urge him to shower and get ready.  He was immersed in his video, watching…………the credits.  Yes, when Aaron watches a movie he watches every single part of it, from the very beginning to the bitter end.  This includes those credits that we usually pass up or watch briefly, at best.  Not Aaron!  He watches until the very last tiny word passes off the screen; and then when the black, blank screen appears, he is finished.  He held up his finger as I spoke to him, a sign that he is engrossed in what he is doing and that I needed to be quiet and wait my turn.  Rolling my eyes, I walked away.  His shower would have to wait until the important credits were finished.

 
I also noticed that on his desk next to him was a dinner plate full of some sort of crumbs.  I soon learned that the “crumbs” were actually pieces of peanuts.  He reached down and picked up the jar of peanuts that Dan and Wendy had bought him the night before……….and it was empty.  Yep, he was starting his day off with a bang by eating an entire jar of peanuts!  
  
Finally, he was clean and ready to begin his wonderful day.  He let me take his picture under our old family Happy Birthday banner that we hang up on each birthday, even though having his picture taken is not his favorite thing to do.  He then followed me around the house, talking as usual about whatever popped into his ever active mind.  Such as:   “Mom, something last night was so much funny!  I was reading my Handy Answer Science book.  Have you ever seen a picture of Isaac Newton?”
  
Yes, Aaron, I’ve seen a picture of Isaac Newton.  With that, Aaron laughed and then continued, “He looked like he was wearing a wig.  Did people back then not have real hair?!”   So we conversed about the fact that people have always had real hair and why they wore wigs, and on and on about hair and wigs and people “back then.”

As we drove to meet his group at Quik Trip, Aaron talked about things that he always talks about…………the funny shaped house, the bulls in the field, and the candy-cane striped cement dividers in the dentist’s parking lot.  And cappuccino.  “Mom, what is cappuccino?”  I answered that question briefly, and he said, “Last night I saw some at Braums.  It looked like a greenish dark color.  That’s nasty!”  So I assured him that it was his color blindness that caused cappuccino to be a greenish dark color, that it was really not greenish dark, and that yes………he would like cappuccino if he ever tasted it, greenish dark color and all. 

After Aaron returned from Paradigm, we picked Gary up at work on our way to Cracker Barrel, where we met Aaron’s special friend, Rosie, and her mother, Louise.  This was the first time that Rosie had joined us for Aaron’s birthday dinner.  Aaron had been so excited that she was coming and had talked about it for days.  I had told Louise not to get Aaron a gift, but several days earlier she had told me that Rosie really wanted to get something for Aaron.  So  Rosie brought a gift for Aaron………a spiral notebook, some ball point pens, and some Mike and Ikes.  And a birthday card, signed by Rosie.   So sweet………so simple………….so special.  I wasn’t sure what to expect with the two of them together, but it was so funny to see them sitting right beside each other, yet not talking.  Aaron spent the majority of the evening talking to Gary, while Rosie talked mostly to her mother and me.  Rosie likes to wear caps and to pull them over her eyes, but occasionally she would push the cap back and show her pretty, dark eyes.  On this night she had on a bright and sparkly pink hat. It was a nice evening and it was good to have the opportunity to get to know Louise better, and for us to see our special adult children together.  Their friendship is something that we are both learning to treasure and to understand.

Soon the night was over, we were home, and Aaron’s gifts were all opened.  He ends these birthdays much like he ends a movie.  The plot has been planned and carried out, the action has all taken place with the major characters involved, the credits are finished, and off he goes to his room…………carrying his gifts and moving on to the next event.  He never seems greatly  excited about most of it, though we know that he is by the way that he plans it and the way that he talks about it for weeks beforehand.  We had to urge him to thank Rosie for the gift that she gave him.  If you go by his outward reaction, he didn’t seem to be very thrilled with it.


But don’t be fooled.  Last night, when he came down to play Skip-Bo with me, he was carrying one of the pens that Rosie had given him.  He reached over and removed the usual pen from his notebook in which he records our Skip-Bo wins.  “Mom, I want to start using Rosie’s pen now in my Skip-Bo notebook.”  I told him that this was fine and he said, “Well, that old pen was almost out of ink anyway.”

I knew it wasn’t almost out of ink, but I didn’t say a word.  I left Rosie’s pen laying on the notebook.  Beside her pen was my discarded wrapper from a fruit bar that I had just eaten.  And without saying a word, Aaron reached over and moved the wrapper away from Rosie’s pen.  Then he said, “Don’t put trash near Rosie’s pen.”

And there you have it.  Rosie’s pen is a very special pen, because Rosie is very special.  You don’t put trash near Rosie’s pen.  There was a small glimpse into Aaron’s heart.  I won’t read too much into it, but I do know that Aaron has never cared about any other pen to that extent.  I value this little look into how he feels about his special friend, Rosie, and how much he treasured the gift that she gave him.  He won’t express it verbally like you and I would, or be able to write it in a pretty poem or story.  With Aaron you must be alert to these simple, brief moments in which you see into his heart and his thoughts.  It passes in a moment, and I know better than to ask probing questions or to seek more explanation from him.  I am satisfied with that moment, brief but profound.

I am thankful that Aaron has a special friend, a girl, with whom he has formed a unique connection for some unexplained reason.  Can any of us explain these things?  There is so much that Aaron will never be able to experience in this life, so having this friendship now is indeed a warm spot for him.  It’s a touch of normalcy in a world in which Aaron is usually anything but normal.  I’m glad that we invited Louise and her sweet daughter, Rosie.  I’m glad that Louise had the wisdom to let Rosie buy Aaron that gift.  I’m glad for what the little pen showed me about Aaron and his connection to Rosie. 
  
And I’m glad that now I know to keep my trash away from Rosie’s pen!