I’m Trying to Go HAPPY!!

Aaron and I sat down to play Skip-Bo the other night.  It’s a familiar nighttime routine for us on many days, this game of Skip-Bo.  As Aaron came to the table, I saw that he was carrying two bowls.  One was empty, and the other was full of Tootsie Rolls.  These Tootsie Rolls had been a sweet surprise from our friends, Jim and Joyce, this past Sunday.  Aaron was very happy to have been given such a huge bag of Tootsie Rolls, trust me!

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As we sat down to play Skip-Bo, while I was shuffling the cards, Aaron began unwrapping a Tootsie Roll.  He carefully took off the wrapper, and I then learned the purpose of his second bowl, the empty one.  He placed the Tootsie Roll wrapper into the empty bowl.  Soon he was ready for his second piece of candy, so he once again pulled on the wrapped Tootsie Roll, removed the paper, and carefully placed it alongside the first wrapper in the proper bowl. 

If there was ever a picture of how Aaron organizes his life, it would be in his use of multiple bowls.  I have blogged about this in the past, especially this piece from a few years ago.  It so fully explains Aaron’s use of bowls.  Put That in a Bowl!!

So as I watched him eat his Tootsie Rolls while we played Skip-Bo, I was once again reminded of how Aaron wants……no, he needs……his life to be just a certain way.  We all do that to some extent, but for an individual with autism, those needs are ever more acute.  The smallest disruption in routine and expectations can totally pull the rug out from under Aaron. 

Providing some fluctuations in his day and in his life can actually be very good for Aaron.  Finding the balance, though, is tricky.  Giving him consistency while also guiding him through changes can be very challenging for him, and definitely so for all of us who are a part of his life.

The staff at Paradigm can most assuredly attest to this fact.  They endure changing Aaron more than anyone.  Aaron can be very up and he can be very down at his day group.  Sometimes we see and know the triggers, and sometimes we don’t.  They have seen the good, the bad, and the ugly from Aaron during his nearly 11 years there. 

Aaron has been home this week with a bad cold.  He totally loves staying at home and would do so every day if we let him.  But like I said, Aaron needs to be away from routine and predictability in order to grow and to thrive.  He has friends at his day group and staff that he loves, but the atmosphere there is active and sometimes loud.  He can’t totally control his environment there……what people say or do……what activity he will participate in that day……how he will feel.  So for Aaron, staying home is much more preferred, but is not at all what he needs to do every day. 

He was well enough to return to Paradigm yesterday, on Friday.  I could tell he didn’t really want to go……didn’t want to think of leaving home for the day.  I was encouraging Aaron to keep a good attitude as I poured his morning coffee under his watchful eye.  He watches to make sure I do the coffee job JUST RIGHT!

“Mom,” he finally said.  “I’m not trying to go MAD!  I’m trying to go HAPPY!”

Wow!  His insights floor me sometimes.

He really wants to process life correctly.  Sometimes, however, it’s just a huge stretch for him to be able to do that. 

For Aaron, it’s Tootsie Rolls in one bowl and Tootsie Roll wrappers in another bowl.

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He can control this business of candy and candy wrappers.  He can’t control, though, his atmosphere at his day group.  Some days it’s just too much.  But we must gently push……must keep trying……must understand how hard it can be for him.

He had a great day yesterday at Paradigm.  They went to watch Rogue One at the theater.  Well, I’m not sure if it was a “great” day, but Katie told me that it was a good day……and to me, that’s great. 

Gary and I had Aaron with us at Sam’s on Monday.  I was checking out the asparagus when Aaron walked up to me with a bouquet of flowers, his face all smiles while Gary watched in the background.  Gary had pointed out the bin of flowers to Aaron, and Aaron instantly wanted to buy me some.  We’ve watched those Iris’s this week, some blooms falling off as they wilt while other buds burst into bloom.

Again, just like Aaron.  We wait for him to grow……hopefully to bloom……and in the mean time we enjoy him and his unique, colorful life that we see every day. 

Candy and wrappers…….buds and blooms……it’s all part of what makes life with Aaron both challenging and beautiful.   

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Put That in a Bowl!!

He Said What?!


Just a few minutes ago I waved goodbye to Aaron, went in the house, closed the door, and breathed a huge sigh of relief.  He did it!!  What did he do?  He agreed to the reality of me not being able to drive him to meet his day group because our van is in the shop.  He agreed to let the Paradigm van pick him up at our house.  He agreed to go in early.  EARLY!  It wasn’t without some angst from Aaron…….some anger…….some rude words……some refusals.  But he did get in the van when Katie pulled up in our driveway and he did go.  Success!  At least for now……for today.
Yesterday my van’s air conditioner wasn’t blowing cool air as I drove home in the afternoon from a nice visit with my friend, Jennifer.  Since it was time for an oil change and tire rotation anyway, I just called…

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New Year, Old Ways

A new year is upon us!!  Welcome, 2017!

A fresh start can be so nice.  New everything.  Out with the old, right?  Well, not always, as I have seen on the past two days.  We all know that to be true.

I ended my old year on a most familiar note…..playing SkipBo with Aaron right before bed.  I guess that’s our version of a party, which suits Aaron perfectly as he really does NOT like parties.  Parties have too much noise and emotion for him, thank you very much.  But SkipBo with Mom is orderly, predictable, with nice piles of sequential numbers, and plenty of opportunity to cheat.  Yes, cheat, of which Aaron is a master if not watched closely.

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The next morning, our New Year morning, saw Aaron blandly staring at me as I very happily wished him a Happy New Year!!  His lack of expression at these moments is often hilarious, but I can’t always laugh because he finds that emotional expression irritating or he thinks I am laughing at him.  Which at times I am, but in a good way that he just wouldn’t understand.

Anyway, Aaron’s main concerns on our New Year morning were:

1)      Can I have FOUR cups of coffee?  (Don’t worry.  The cups are half full).

2)      Are there coupons in the newspaper for me to cut?

3)      What time are we going to Chili’s for lunch?

Aaron had opened a gift during our family Christmas Bingo game.  The gift was a Chili’s gift card that was burning a hole in…..well, in my wallet because I don’t dare give Aaron gift cards to keep.  They won’t keep with him.  They will be lost or given away.

I told Aaron that we would go to Chili’s after church.  He wanted to know the exact time, so I gave him my usual ball park figure and he was happy.  He was not so happy with the coupons in the paper for some reason.  Still slow from his cluster of seizures on Friday night, the coupons did not make him show his usual sense of purpose.  However, he settled in on the floor with his coupon trash cans as he sat on his coupon pillow with his coupon scissors…..and his FOUR cups of coffee on the bench nearby…..and he began to clip the coupons, very slowly.

I was in the bathroom later when Aaron came to the door.  “Mom,” he slowly began.  “I was cutting coupons but there were too much.”

Pause.

“OK,” I responded.

Pause.

“There were too much,” he repeated.

“Yes, there were a lot today,” I replied.

Pause.

“There were too much coupons,” he said again.

Pause.

“There were too much,” he once again asserted when he got no Mom reply.

Pause.  Sigh from me.

“Aaron, just take a break.  You can finish them later,” foolish Mom said.

Pause.

“I ripped them,” Aaron flatly replied.

Pause.  Another sigh from me.

I was following Aaron’s train of thought, one all too familiar.  He didn’t want me to cut those coupons.

“Because you don’t do them right,” he continued.  “You don’t cut them straight on the line like I do.”

He made his exit on that note.  No surprise from me.  It might be a New Year, but we are still living in our old ways…..always, always.

And sure enough, there on the family room floor lay his unfinished little stack of coupons……ripped, just like he said.  Aaron’s thinking has always been this…..that if he can’t cut the coupons, NO ONE will cut the coupons.  Especially Mom, who is a dismal failure at coupon cutting.

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Those ripped coupons were a stark reminder to me that just under the surface with Aaron there is always that issue of how he handles stress in his life.  He reacts, and often his reactions are very inappropriate.  His behaviors are a huge concern to us.  So I stood there being reminded that we were on our first day of a brand New Year, brand new beginnings, brand new opportunities……and here we were, being slapped into our old reality of life with Aaron.

Some things just never change.  We know that.

But there were other reminders of wonderful things that never change, either.  Gary and I finally got to church on time.  Yes, we were one of THOSE people who totally didn’t see the memo on the changed time for church……one of THOSE people who didn’t give New Year’s Day a second thought…..and so on this New Year’s morning we drove to church TWICE.  And we laughed at ourselves.  We’re HOW old?!

Anyway, we walked into church to the hugs and handshakes of sweet friends.  And there was Joyce, who handed me a bag containing a huge bag full of Tootsie Rolls…..for Aaron, because of my recent Tootsie Roll blog.  How unexpected and sweet, in more ways than one!  Later, Aaron was also surprised and full of smiles at this kind gift.

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The care of friends is unchanging in our lives.  Such a blessing!

The worship and the message on our New Year’s morning was encouraging and challenging.  And we sang one of my most favorite songs – Great is Thy Faithfulness.  What a wonderful reminder of God’s unchanging faithfulness in our lives!

And later, as we sat with Aaron at Chili’s, Gary and I watched him ever so slowly eat his enchilada lunch and his salad.  His joy at eating out was very evident.  Never changing, his love of restaurant food!  And seeing that joy is always fun for us, despite our constant reminders to him that he doesn’t need to take 17 toothpicks…..don’t stare at the other people and their food……don’t make noises…..don’t clap…..please don’t loudly stretch when you get out of the booth.

Never changing.

I was able to salvage a few coupons later from the ripped pages.  I didn’t let Aaron see me as I quickly cut them out behind his back.  And I know that we will continue to try to salvage good out of the bad days that Aaron will surely have this year.  It’s our reality with Aaron, New Year or not.

But through it all I know, like that favorite old hymn says, that God will remain the same, too.  Faithful to us, as always.

 

            Great is Thy faithfulness, O God my Father,

            There is no shadow of turning with Thee;

            Thou changest not, Thy compassions they fail not;

            As Thou hast been, Thou forever wilt be.

 

            Great is Thy faithfulness!  Great is Thy faithfulness!

            Morning by morning new mercies I see.

            All I have needed, Thy hand hath provided.

            Great is Thy faithfulness, Lord unto me.

 

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Some Special Heroes

He Said What?!

Hero:  One endowed with great strength or ability; one that shows great courage. 

Don’t quit reading.  I promise I’m not going to launch off into my opinion of Hollywood’s latest hero worship fiasco.  Besides, those of you who know me know what I think about it….and I certainly don’t need to add my voice to the many voices who have so adequately expressed my views. 

I was going to write this blog anyway, someday, but now I have many reasons to do so.  And yes, a big reason is the messed up qualities that our culture is trying to cram down our throats…..not only the person this week but the people every day and every week that they try to convince us are worthy to be called heroes. 

Another reason I want to write about some heroes I know is because of…

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