Category: Uncategorized
The Chips Mystery is Solved!
A few weeks ago, when we returned home after our trip with Andrea to Fort Worth, she was getting ready to leave for McPherson, where she lives and works now. Before she left, Aaron asked her if she wanted the Sour Cream and Onion Pringles that he had bought while we were gone. We were surprised at that offer because Aaron loves Sour Cream and Onion Pringles. It would be unusual for him to give them away………or very generous. Very, very generous in Aaron’s case. When he returned with the chips, she asked him why he was giving them away and he admitted that he didn’t like them. What?! But he assured us that he didn’t like them and so he was happy to give them to Andrea.
He hasn’t really been able to describe to us why he all of a sudden doesn’t like Sour Cream and Onion Pringles………..until today. I was outside watering our new growing grass when Aaron got home. He came across the yard, swinging a Wal-Mart bag. He told me about his day………the number 52 Slushie and only one box of candy from Quik Trip………..and then the Pringles from Wal-Mart. He reached into his Wal-Mart bag and took out one of the two canisters of Pringles that were in the bag.
“See Mom? I got some Sour Cream and Onion Pringles.” And I said, “But Aaron, I didn’t think you liked Sour Cream and Onion Pringles anymore.”
“Mom! I found out why I didn’t like the other Sour Cream and Onion Pringles. It’s because they were the bursting flavor!”
Oh, I see……….bursting flavor, huh?
“Yes! I don’t like the bursting flavor ones, but I like these.”
And these that he likes are Multi-Grain Sour Cream and Onion Pringles…………..which are obviously very different from the bursting flavor Sour Cream and Onion Pringles.
Soon after this conversation, I was in the kitchen getting supper ready when Aaron came in and held the Multi-Grain Pringles up for me to see. “Mom, these multi-grain Sour Cream and Onion Pringles are better. They’re better than the bursting flavor ones.”
He must have seen my confusion because he continued, “The bursting flavor means it has a higher flavor.”
Well, of course. A higher flavor……..and that’s just not so tasty, is it?
“No, the bursting flavor is more spicy. I’m glad they’re not like that bursting flavor!”
Absolutely! Bursting flavor is just too much!
After supper, Gary and I were working in the yard and garden. I was watering more grass when Aaron came outside and walked over to the garden to talk to Gary………….and of course, he wanted to tell Dad all about the multi-grain chips compared to the bursting flavor chips. That accomplished, he walked over to me and said, “Mom, I really like those Multi-Grain Sour Cream and Onion Pringles. They’re better than the bursting flavor.”
Yes, Aaron, I know.
“And Mom, the multi-grain ones are green and they have black dots! The bursting flavor ones are clear!”
Well, now, there’s a clever marketing ploy! So I tried to explain what the black dots are, but I realized that his descriptions are much more interesting than mine are and so I just hushed. Aaron went inside for awhile, but returned one more time. This time, he strode purposefully up to Gary in the garden…………and he was carrying a canister of the Multi-Grain Sour Cream and Onion Pringles. He once again explained to Gary the difference in the multi-grain ones and the bursting flavor ones, and concluded by saying, “And the multi-grain Pringles have polka dots!”
Maybe I’ll have time to play a game of Skip-Bo tonight with Aaron………..and maybe, just maybe, I’ll get to eat some of those green polka-dotted multi-grain Sour Cream and Onion Pringles. Who needs plain old bursting flavor ones anyway? These new ones sound like way more fun!
In Aaron’s world they sure are!
Mother’s Day and Cavemen
I got the best surprise for Mother’s Day. We had been helping at a friend’s 50th wedding anniversary party, working in the kitchen. Well, Gary was fishing but Andrea came in from McPherson and came out to the party, where she worked and worked with us in the kitchen. My sweet, beautiful daughter didn’t mind a bit to be washing dishes and doing whatever else needed doing for several hours. What a blessing! Then later, when we pulled into our driveway, there was Andrew’s truck! That was my big surprise that everyone knew about except me. We hadn’t seen him for several months, so it was wonderful to give him a big hug and cry on his shoulder. To top it off, there were beautiful pink roses and funny cards…………and Andrea even made sure that Aaron signed a card.
We talked until late that night, catching up, and then they wanted me to decide about what to do the next day. I chose to grill steaks……..well, Gary would do the grilling and then Andrea and I would do the rest. After church, Gary and I went to Sam’s for the steaks and other groceries. On the way home, my cell phone rang and I saw that it was our home number, which means one thing……….Aaron. So I answered my phone – “Hi, Aaron.”
“Mom, when are you coming home?” I told him that we were on our way. I knew exactly what his next comment would be………..and it wouldn’t be to wish me a Happy Mother’s Day. I actually knew that it would be a question and sure enough, he asked, “So, what are we eating?”
I told him that we were having steaks with Potato Casserole, Bean Salad, Tossed Salad, Ciabatta Bread, and Strawberry Shortcake. He seemed fairly unimpressed, but I knew he was happy about this menu because I know Aaron. I also knew his next comment/question and of course, he delivered: “Mom, when are we eating?”
I answered that question and there was a very brief pause. Would he just maybe say something about Mother’s Day?
“Mom, I was watching the Science channel. Do you believe there was such a thing as cavemen?”
Cavemen. That doesn’t even remotely have anything to do with Mother’s Day……at least that I’m aware of………maybe a little to do with eating steak……….
Oh, Aaron. I really wasn’t too surprised at this random turn in the conversation, but it did make me chuckle. And as I talked to Aaron about my belief or unbelief in cavemen, Gary was smiling, too.
“Mom, the cavemen lived in caves and wrote on the walls, and they wore fur animal skins.”
Well, Aaron, I believe that people lived in caves and did all those things, yes.
“And they killed a deer. It was an elk, and they used the antlers for things!”
Aaron, let’s talk when I get home.
But he would not hang up because he had more to say about the cavemen. Oh dear. Finally, I just had to tell him that I was hanging up and would see him soon………….knowing full well what the majority of the rest of the day would entail. Cavemen facts……..cavemen stories………cavemen ideas………….cavemen theories………..cavemen anything and everything.
And yes, we did get our ears full of his talking about cavemen. He talked about cavemen while Andrea and I fixed dinner, in between snatching a strawberry or asking about what food we were fixing. He went out to the grill and talked to Gary and Andrew about cavemen. He talked about cavemen while we ate, whenever he could get a caveman word in here and there. He talked about cavemen while we sat on the patio and ate our Strawberry Shortcake.
The caveman chatter did come to an end, though. That’s because as he finished cutting some coupons, he watched another program on the Science Channel. Steven Hawking was interviewed and Aaron was intrigued by him. Therefore, the evening was all about Steven Hawking……….his brilliance, his sad beliefs about God, his computer, the disease he has. Steven Hawking was the last thing Aaron was talking about last night, and was what he talked about this morning. I have seen pictures of Steven Hawking and watched a video of Steven Hawking. Anyway, you know the routine by now.
I guess cavemen have gone the way of the dinosaur……….at least for now. And as I said good night to Aaron last night, I thanked him for helping to give me a happy Mother’s Day. He just gave a little grunt. Then I said, “After all, Aaron, you helped to make me a mother.”
He gave a laugh at my funny little joke. I didn’t tell him, but he’s helped to make me a very interesting and random mother. A day full of cavemen and Hawking………..I can never predict the way a day with Aaron will go.
Our Priceless Mother
A Thank-You!
Sometimes Aaron jerks, as in possible myoclonic jerk seizures. No, I didn’t say that Aaron IS a jerk…….at least not out loud. OK – just kidding! But really, he has dropped coffee or other drinks as well as food and whatever else may be in his hand when he has a jerk. It doesn’t seem to happen often, thankfully.
He came home today from his day group and was telling me about his day, about the movie they went to see and about going to the park afterwards. He’s calm and mellow today. Our conversation was more adult feeling and pleasant. I love days like this.
He told me that he got popcorn……a large, as always. Now Paradigm staff may need to correct this, but the story Aaron told me is this:
“Mom, I was carrying my bucket of popcorn. It was before the movie started. We were out in the hall……..you know, outside that theater place. And I had a jerk and I dropped my popcorn.”
He was very matter-of-fact about it as he continued: “You know, we weren’t inside the place where we watch the movie. We were at that pay aisle place.”
Bless his heart – it was very important to him that he set the stage and that I understood exactly where he was. I assured him that I knew where he meant, and so he went on: “Well, that theater lady came and she said she would sweep it up. I told her that I would sweep it up but she said that she would do it.”
Aw, Aaron. He was embarrassed by all this and it makes my heart go out to him. He felt bad for the theater lady to sweep up his mess that he had made. Hearing him express that fact just really warmed my heart, and made me also feel sad for Aaron…….sad that he has to deal with all these public issues.
And I want to say thank you to this nice theater lady for sweeping up Aaron’s mess………….and thank you to the guys who refilled Aaron’s popcorn bucket (large, of course!)…………and a huge thank you to all the Paradigm staff who work so patiently and kindly with not only Aaron, but with many other young special needs adults. I know it can’t be easy to keep it all straight and keep yourselves from getting irritated, but we think you do a fabulous job!
Good people need to be recognized, and we’re very thankful that God has brought so many into Aaron’s life.
Mouthwash and Mattresses
For some time now, Aaron has used mouthwash every night before bed. His dental hygienist suggested this for Aaron, telling us that it would help prevent tartar buildup. Aaron’s dental habits could use some tweaking, let’s just say………….so could his showering habits, for that matter. Anyway, I was skeptical that Aaron would come anywhere near a bottle of mouthwash, let alone actually put it in his mouth…………but lo and behold, he has used it faithfully for months. Amazing!
When I got him the first bottle, I stood beside him and instructed him on the mechanics of using mouthwash. He was full of trepidation as he took his first tiny sip of the suspicious substance. I encouraged him onward and finally he had the entire amount in his mouth. The look on his face was priceless! He was adjusting himself to the minty taste of this weird colored liquid. I really thought that this first swishing would be his last……….but it wasn’t. He has decided that this miracle mouthwash will keep the hygienist from delivering bad news to Mom at each dental visit, so swish he will!
He has told me when his bottle of mouthwash was running low so that I could buy another one. He has commented on the shapes of the bottles, the brand of the mouthwash, the taste of the mouthwash…………and even confided in me that one night when he had a cold, he got out of bed and swallowed some mouthwash, thinking that it would help his cold……………so we had another instructional session of the pros and cons of swallowing mouthwash……..heavy on the con side………..and I don’t believe he has ever drunk mouthwash again.
Last night we were going through our getting-ready-for-bed routine. Aaron was in his bathroom brushing and swishing. He had a brand new bottle of mouthwash and I was soon to hear about it. He charged into our bedroom. “Mom!! That new mouthwash is blue!”
Yes, Aaron, it is. Did you like it?
“Well, it’s called Blue Mint.”
And?…………….
“It was different!”
I know it’s different. Did you like it? And he told me that, yes, he liked it…………..and he thumped on down the hall to his room.
But not for long. Into the room he burst again. “Mom, it’s just that this new mouthwash is a weird blue color.”
It is blue, Aaron.
“But my other mouthwash was green.”
Yes, Aaron……….green mint and blue mint. Crazy, huh?
Off he went again, satisfied, I hoped. I was almost done with my own brushing of teeth when he barreled in again. “Mom! Can you come in my room and do something?”
Aaron, what is it? I really want to go to bed.
“There’s something wrong with my bed! I noticed it today.”
Aaron had a couple seizures earlier in the day and so I wondered if his covers were messed up. I went to his room and he said, “It’s this part of the bed….over here, on the lamp side.” So I went to the lamp side of the bed and stood there looking down to see whatever it was I was supposed to see. Aaron was quiet, waiting for me to correct the very obvious problem that wasn’t at all very obvious to me.
So, Aaron, what is it? What’s wrong with the bed? And he leaned down a little and pointed to the end of the mattress, at the rounded corner. OK. And the problem is?
“See, Mom? It’s halfway messed up. The mattress needs to come over this way.”
It looked totally fine to me, but I knew better than to try to dissuade him of his firm conviction that the mattress was halfway messed up, so I reached down and gently moved the mattress over………….maybe an eighth of an inch………..maybe. Aaron was very happy to see this improvement in the position of his halfway messed up mattress. So was I, believe me. Simple solutions to Aaron’s halfway messed up issues don’t always happen!
We hugged good night and I started up the hall, only to have Aaron follow me. I turned around to nip this in the bud and he said, “Mom, that mouthwash was different.”
OK, Aaron………..I know the mouthwash was different but the Blue Mint is good, right? He agreed. And your halfway messed up mattress is fixed, right? He agreed. So let’s go to bed.
Another hug and we parted ways…………me holding my breath as I fully expected him to return with one more mouthwash update. But he stayed in his room and settled in his bed to read before closing his book, recording his going-to-sleep time in his notebook by his bed, turning off his light and getting his covers just so-so on his no longer halfway messed up mattress.
And it hit me…………he didn’t even ask if it was going to rain tonight. Wow! Must be the mouthwash!
Do Not Pass!
Watching Grass Grow
We have some shady areas in our front yard where we have a very hard time getting grass to grow. Over the weekend, Gary spread some grass seed mix there. Of course, this did not escape the attention of our ever observant Aaron. This morning Aaron slipped out the front door to see if the mulch was wet, and to see what the temperature was on this cloudy, windy day.
Soon I heard the familiar thump, thump, thump as he hurried up the stairs. Into my room he strode as he said, “Mom! I opened the front door to see if the grass has grown! It’s still white dots.”
I guess it does look like white dots, Aaron. It takes awhile for it go grow.
“Well, when will it grow?” And I told him again that it would take some time for us to see the grass grow from little white dots. The seed has to be watered, and so forth.
And he asked, “What will it look like? Will it be huge grass?” So I asked him what he meant by “huge grass” as I envisioned living on a grassy African plain.
And he answered, “Will it be huge grass or normal grass?”
I assured him that we would have normal grass………still wondering exactly what huge grass is, but Aaron had moved on.
He went back outside one more time to check the temperature. I guess the first time he was distracted by the white dots in the dirt that haven’t grown into huge grass yet, or even normal grass.
Back upstairs he thumped. “Mom! I looked up close at the grass seed. It looks like oatmeal! Is that oatmeal seeds?”
No, Aaron, I am sure that your dad did not plant oatmeal seeds. Interesting concept………..except imagine the mess of oatmeal when it rained.
Later, when I came home after dropping Aaron off and running some errands, there I was peering down at the white dots on the ground. You know, that mixture really does resemble oatmeal! I smile and just shake my head once more at Aaron’s fascinating descriptions.
Nope, life is not dull with Aaron around. He causes us to pause and take a second look at so many things…….things that normally we would just hurry by and not notice. And I have a feeling that we’ll be having more grass seed/white dot/oatmeal-in-the-front-yard discussions as we wait and watch the grass grow.
The Super Moon!
I had been telling Aaron for several days about the Super Moon that was coming. He was matter-of-fact about it, but not excited. Now if I had wanted to talk about Transformers 4…………there would have been great enthusiasm on his part. Not so much the Super Moon, though. You never know with Aaron.
Andrea was home for the night. After supper, she and I sat on the front porch and talked for a long time. It was nearly dark when we decided to go inside, but first we checked the sky for that Super Moon. There it was, peeking through the trees. It looked bright and large, and, well…….super! So we decided to hop in her car and drive down the road for a better view. And we also decided to let Aaron in on our plan and see if he wanted to go, too.
I went up to his bedroom, where he was immersed in a computer game. “Aaron, do you want to go on a drive with us? We’re going to see the Super Moon!”
“OK!” he answered. He always wants to go for a ride. He got on his socks and shoes, and climbed in the back of Andrea’s car. It didn’t take us long to see the unimpeded view of this beautiful moon. I exclaimed, “Hey, Aaron, look! There’s the Super Moon!”
“Uh-huh,” he said. That’s all? Just “uh-huh?”
We drove on down the road for about a mile, then pulled into a parking lot where we could sit for a minute and enjoy the gorgeous view. Andrea and I were both making comments about this pretty sight, but Aaron was very uninvolved and seemingly uninterested. On the other hand, I knew that if we said something about going to Sonic, then he would have been very alert and happy.
We drove on home, taking time to drive around our circle for one more view of this unique Super Moon. All the while, I was making comments about it’s beauty and it’s size and how special this was. When we got home, Aaron hopped out of the car and hurried back inside the house and up to his room. Gary, Andrea, and I stood out in the driveway enjoying the moon as it rose higher in the night sky. Honestly, it looked like a pretty normal full moon to us at this point, but it still was so pretty and we were happy to have a clear sky so that we could enjoy it. But not Aaron. He was done.
We’ve learned over the years that sometimes Aaron doesn’t show great interest in or enthusiasm for some of the events we plan or the things we show him. It can be a little disappointing to us, but we know Aaron and we know that his flat voice and seeming disinterest is just a part of who he is. Only a couple of days earlier, he had been thrilled to find the toad outside. But tonight, it seemed that the Super Moon was a let down.
It wasn’t long, however, before he came charging into the kitchen and exclaimed, “Mom! That Super Moon was neat!”
Really, Aaron? You liked the Super Moon?
“Yeah! And I think the sun was behind the moon.”
So why do you think the sun was behind the moon?
“Well, it was bright and the moon was green!”
Green. The moon was green.
We talked about why the sun wasn’t behind the moon, but I didn’t want to damper his enthusiasm by saying much about the green moon. I have no idea why he thought the moon was green. But Aaron was now very excited about the Super Moon, maybe because it looked green to him. Who knows?
Aaron is always processing what he sees and what he hears and what he experiences. He takes mental pictures and then likes to recount what he has seen or done or tasted or read or…….. His brain is never still and he is rarely without an opinion or an observation. Even when he shows a flat affect to something, he may later talk and talk about it……..surprisingly so, at times. Maybe he can’t express himself quite like we do, but he has recorded so much in that brain of his! Always measuring and calculating and wondering and reasoning.
So now he has recorded his night of seeing the Super Moon………..the neat Super Moon……….the neat GREEN Super Moon!
The Smoothing Milkshake
When Aaron comes home from his day group, around the time I’m fixing supper, he usually spends some time telling me about his day. Today his group went to the zoo and he was all abuzz over the crowds of kids there. “Mom, were they on a vacation from school? Is that why they were at the zoo?” He told me about the long lines as they waited to get in the zoo, and all the kids, and all the teachers and parents……..as well as talk of monkeys and giraffes and the bears that played with a ball and so forth and so on.
I usually try to find out what Aaron has spent his money on, and instruct him on how to make better food choices, and encourage him not to give all his leftover money to his good friend, Rosie. “Aaron, did you give Rosie any money today?” And he recently answered, “No, I didn’t give Rosie any money. I bought her a drink.” Then I tell him that this is nearly the same as giving her money, and that Rosie’s mother doesn’t want Aaron giving her money or buying her food, and all the while I know that he’ll be doing it all over again tomorrow. But we still try to get the point across, hoping that someday it will register. Today he said, “Mom, I didn’t want to give Rosie any money today…………so I told her that I didn’t have any money, but I really did.” Therefore, the lesson today was on lying. Even with good intentions, Aaron, you really told a lie. And he asked, “So what did you want me to do?” And I told him I wanted him to tell the truth, but still not give Rosie money. Tomorrow is another day, another opportunity for Aaron to be honest but firm as he handles this dilemma he created with Rosie, and another day for us to be highly surprised if he remembers the lesson……or cares to remember the lesson.
As we talk about what Aaron spent his money on during his day, we nearly always talk about the food he has purchased or the food that was given to him at a day group party, etc. On Tuesdays his group often goes to Wal-Mart. Aaron likes Cheddar Pasta Salad, or sometimes he’ll get a sub. That’s a much better choice than boxes of candy or boxes of rolls, so we try to reinforce those positive decisions. Remember when I wrote about him going to Subway and asking for white mustard? Yesterday he told me about his Cheddar Pasta Salad (which has a mayonnaise dressing) and he said, “I tried to eat that Cheddar Pasta Salad out in the sun and it became nasty. You know – that mustard. Mustard shouldn’t be in the sun.” I agreed, but told him that it was mayonnaise………and he agreed……….even as I knew that for some reason, his brain has decided that mayonnaise is really white mustard. Whatever.
He told Gary and I, “You know at Wal-Mart, where I get the Cheddar Pasta Salad…………..they know me.” We gave each other that knowing and somewhat fearful look as Aaron kept on talking, and we were stuck back there on the fact that they know Aaron at the Wal-Mart deli counter. We hope that it’s a knowledge based on the frequency of his visits there……….not knowledge based on his actions. But Aaron is – well- unique…….and so we are sure that part of the deli employee’s knowledge of Aaron is based on that uniqueness. We can only imagine.
Aaron told us that when he walked up to the counter, before he could say anything, the worker asked him if he wanted a Cheddar Pasta Salad. Then Aaron added: “If they keep trying to know me, maybe they’ll try to give me my stuff for free!” And he laughed at that thought, but I fully expect him to someday ask the worker at the deli counter if, since they are trying to know him, he can have his Cheddar Pasta Salad for free! I hope they have a sense of humor and laugh. And don’t call security.
Today after going to zoo, his group went to Sonic. Aaron got some chocolate milk shake concoction, to hear him tell it, and I do believe he did because half of it looked like it was on his shorts and shirt. He pointed it out to me (like he had to?) and said, “Mom, look at where I spilled milkshake on me. Every time the van turned at those turn sites, the milkshake smoothed out of the cup onto my pants!”
Hmmmm………OK. A milkshake smoothing out of your cup really does cause a mess, huh? Nothing worse than a milkshake smoothing out of a cup, let me tell you! And those turn sites…….just plain dangerous for milkshake drinkers!
We’re always telling him to be careful about how he eats and drips and spills………so I have to wonder if he just told me a smooth story.
Tomorrow, by the way, is popcorn at the theater. Full of butter that we tell him not to get because he doesn’t need it but he always does get it………..and he shares with Rosie or gives her the second bucket, his refill.
See how well I know Aaron……..without even trying!





















