Cue The Music, Aaron…Or Not

Aaron and I were hurrying out the door a couple mornings ago so I could take him to Paradigm, his day group.  I kept feeling like we were forgetting something.  We were three miles from the house when I remembered what we forgot.

Aaron’s wallet!  

He absolutely loves his almost daily excursion to Quik Trip, where with his seven dollars he has his pick of foods…mostly of the junk variety.  Forgetting his wallet would not do!  I could have given Aaron some money, but all I had was a $20 bill, and believe me when I say that Aaron would have spent $19.99 on that junk variety food.

I reassured a panicked Aaron that we would go back to get the wallet as I headed for the next exit.  He was very relieved.

Immediately he reached over and turned off the music that was playing.  I knew why he did that, but just to test my theory…or more like a confirmed fact based on years of solid experience…I slyly reached down after a few seconds and turned on the music.

He didn’t miss a beat and neither did Whitney Houston as his arm shot out and pushed that off button once more.

“I’ll turn the music back on after we get my wallet,” he informed me, not knowing that I could have told him that about himself. 

This little episode is just one of the many ways that autism affects Aaron’s life.  He lives by a strict set of rules that sometimes only he understands but that we must obey if his life…and therefore, ours…is to be happy.

He does this same thing as we go to Meals on Wheels every Thursday.  He won’t play his music until we have picked up our food at the Senior Center and are actually beginning our route.

The wallet episode may have been a different situation, but the same rule applies.  Our diversion to go back home for his wallet had interrupted our trip to Paradigm.  This interruption was not a part of the actual drive.  Since his music is to be played on the actual drive, that music must not be played on the non-actual drive.

Are you following?

If you lived with Aaron, you better be!

It’s a matter of principle with Aaron.  

He follows this principle when we are watching a program.  Aaron will have his snack ready.  The bag or jar will be open.  The plate of food will be placed on his ottoman or his lap.  His napkins are nearby in their holder and his multiple pieces of silverware are ready to go.  His drink and straw are within easy reach.

But nothing is touched until the first scene of the show…and most critical, the opening credits…are completed and the real honest-to-goodness show has begun.

I have sat nervously by as his ice cream started melting before he will pick up his spoon and start to eat.

It does no good for me to try to make Aaron hurry up and eat, or turn his music back on, or change any other scenario of his life in which this principle applies.

Not even my deep sighing has any effect on Aaron.  He probably just thinks Mom is old and weird.

I love seeing these intricacies of the autistic mind that Aaron has.  Even when his internal rules drive us crazy, they are still very fascinating to observe.  And understanding those rules and allowing them when we can, makes Aaron’s life… and ours…much easier to navigate.

He not only follows the beat of a different drummer, but he also tells the drummer when he can beat his drum and when he can’t!  

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Author: Patty hesaidwhatks

I'm Patty and I write about our adult son who has Epilepsy and Autism, who still lives with my husband and me, and who is a package full of many surprises and joys and challenges and TALK! Lots of talking, which creates laughter and some other reactions as well. I also write about how God shows Himself to me in everyday life.

17 thoughts on “Cue The Music, Aaron…Or Not”

  1. You may be fascinated by having a front row seat while witnessing the strict habits of Aaron’s autistic mind, but just reading about his behavior captivates me. Thank you, Patty, for sharing your dear son with your followers. 🙂

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  2. Patty, I love when you open our understanding through your years of insight and experience with Aaron. It provides a new perspective about others on the Autism spectrum who have similar traits. Thank you for your kindness in sharing and thus educating us. God bless you for being a peacemaker with Aaron.

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  3. Oh yes if it’s all according to these special guys’ plans then it’s all okay BUT if not you better look out!! Not everyone can handle Jeffery when he’s on his own agenda and I’m sure you can attest to the same with Aaron!!

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    1. Oh yes, if you had seen me this morning you would know that sometimes even I struggle with Aaron’s way of seeing the world. It’s a game of Connect the Dots and man, sometimes I can’t even find the dots, much less the numbers!! 🙂

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