Home Again, Home Again
Gary and I had a little get-away this past weekend. We took a quick overnight trip up to Topeka to see our son, Andrew, at the NHRA Summer Nationals at Heartland Park. He works on the pit crew for Scott Palmer whenever he has the opportunity between college and other responsibilities. It was fun and interesting to go and watch him work on the top fuel dragster. Andrea came home for the night on Friday to stay with Aaron. Aaron was very excited about this. He loves it when Gary and I are gone for awhile, and someone else is there with him. I think he sees it as a new opportunity for the things he loves……….which would be food and talking. Surely this new person will have new food ideas. And surely this new person will LOVE hearing about all the things that Aaron LOVES talking about.
Of course, Andrea isn’t a new person. She knows Aaron every bit as well as we do…………and she came anyway. Way to go, Andrea! She and I were texting while I was in Topeka, and we talked once. Aaron kept trying to call me or Gary, but it’s very hard to hear anything at the race track. Plus I knew what he wanted to talk about and I knew that it could wait. Our catching up time would come soon enough………..and it did! Andrea told me to be ready. You see, Aaron went to the movies Friday with his group and saw the new movie, Battleship. It doesn’t matter that the review I read was dismal and that the movie had a rating of only 1 1/2 stars. To Aaron, Battleship is an epic movie…………and when Aaron watches an epic movie, we are all treated to a seemingly endless rerun of all its epicness…………over and over and over again.
Gary and I pulled into the driveway on Saturday evening and before I was out of the van, Aaron came through the garage door. Of course, as always, there was no “Hi, Mom!”………or “Did you have a good trip?”………….or any other personal comments such as you would expect. Of course, we don’t expect that from Aaron so it’s no shock or disappointment to us. We would actually be shocked if he DID say one of those personal things to us! So Aaron walked to the van and said, “Mom! I went to see Battleship!” Well, let’s not waste any time. We may as well get to the point at hand right away. After all, Aaron had been saving up his words and I had been saving up my ears. There was no running away from it now.
As we unloaded the van, greeted big old Great Dane Jackson, and tried to put things away………Aaron was right there, and the commentary was in full swing. “Mom, Battleship was a good movie!” And I asked, “So you liked it, Aaron?” Of course he answered…….”Yeah! It was a big navy ship! There were lots of weapons!” On and on and on Aaron talked, following me as I put things away in the kitchen. We hadn’t been home more than 15 minutes before I was upstairs staring at his computer screen as he showed me two clips from the Battleship movie on YouTube. He loved the scene where they took the helmet off the alien and shined a light in his eye, only to find that he wasn’t really dead, and he raised up off the table, and he grabbed the man by the throat, and everyone was yelling…………..including Aaron…………..and leaning over rubbing his hands together………….Aaron was, not the alien. Oh my. How soon would Monday come and Aaron would be going to his group?
We have talked………….actually, Aaron has talked and we have mostly listened…………to all sorts of rehashing of the Battleship movie. Are the creatures aliens? Or are the creatures Martians? What is an alien? What is a Martian? Does an alien look like a bear? Are those soldier guys in the Army or in the Navy or in the Marines? Why would an alien want sharp teeth? Would I want to watch Battleship? When will Battleship be out on DVD?
And then there’s the soldier with the leg prosthesis…………both legs…………..and as Aaron talked about him, I told Aaron that he was a real-life soldier who really had lost his legs in battle. Aaron doesn’t show much politeness, let’s say, when he talks about things such as this, so I mean no disrespect when I repeat what Aaron had to say. He was very intrigued by this soldier who had lost his legs and he was especially interested in him after I told Aaron that he was a real soldier. Aaron paused in thought for a second and then asked, “So, are those REAL fake legs?” I answered yes, using the term prosthesis, but Aaron clomped downstairs quickly to tell Gary this amazing news. He soon clomped right back up the steps to continue his movie review with me and said, “I told Dad that was a REAL man with the FAKE legs!”
Last night at supper, as Aaron chowed down on his second helping of Potato Salad and a chicken thigh……….boneless, the way he likes them………….he lowered his voice and in an almost hushed tone, he said, “Do you know what Andrea said?” He paused and waited for an answer, so I told him no, that I didn’t know what Andrea had said………..and he continued, “Before she left, Andrea told me that it was nice to spend time with me.” He is so touched by these words…………and so are we. Aaron does know when he is loved and these words touch a chord in his heart. How precious that Andrea said those words to him……..and how profound that his heart was touched. We just never know all that goes on inside our Aaron.
But he does love to talk, and I think Aaron has caught us up on all the news there is to know………and most of it we really didn’t want to know, but I didn’t tell Aaron that. Last night he and I played two games of Skip-Bo and he talked some more about Battleship…………..and the genetically altered Rats movie that he’s watching now and that I had to go watch a clip of (another story)…………….and many, many other issues that are of interest to Aaron. Believe me, only to Aaron. As I finished cleaning up the table and getting ready to fix the coffee pot for the next morning, Aaron sat on the ottoman in the family room……………talking………..even after I had told him to go on up and get ready for bed.
He asked, “Do you want me to just sit here and talk?” I had to laugh. He was so serious and so oblivious to my NOT wanting him to just sit there and talk. It was after 10:00 and I was all talked out, believe me! So I told him that even though that would be nice, it really was time to go to bed, for all of us………….and so finally he made his way upstairs to his toothbrush and minty mouthwash and his bed with the covers just the way he likes them in the proper order and his Handy Answer Book that he’ll read before he turns his lamp off and writes his going-to-sleep time in his notebook just right and then turns his monitor on for me to hear all night and settles down under his mound of covers with his head on his pillow that he makes sure has the zipper on the correct side……………yes, it’s nice to spend time with Aaron.
A little quiet time is nice, too. Good night, Aaron. Morning and more talking will come soon enough.
The Insecticides
Aaron once again burst in the house today when he came home from his group, and soon I heard him tromping up the stairs to find me. With Aaron there is never a “hello” or a “hi” and definitely not a “how are you, Mom?”
This is Aaron, as he barges into my bedroom, “Mom! I went to the mall today!”
And I say, “Hi, Aaron? How are you?”
To which he mumbles a quick mumbled “Hi,” and then hurriedly continues with what he was trying to tell me before I so rudely interrupted him with that very unnecessary “Hi and how are you?”
“Mom, I decided to go to the mall with everyone. And I got pizza for lunch.”
Good, Aaron. I’m glad you went and glad you got pizza. Was it good?
“Yes, it was good. I got a supreme……and it came with a drink and with bread sticks!”
He then told me that he got a Root Beer and that it said it did not have caffeine, so we had a long discussion about caffeine. But what he was most excited about was this: “Mom, the lady at the pizza place told me that I could have a free refill!” And of course, Aaron got the free refill………..do cats have a climbing gear, as Gary’s sister, Sandra, would say?
“And Mom, I got a knife and fork to eat the bread sticks with.” I asked him why he needed a knife and fork for bread sticks, since we always pick those up with our hands………….and in talking to Aaron I realized the reason. His fingers had pizza on them, and he will not mix up his foods, if at all possible. I know he really doesn’t like his foods touching on his plate, and today he didn’t want his pizza fingers to touch his clean, garlic bread sticks.
Oh, Aaron, you are so interesting sometimes. Many times!
Aaron started to leave the room, but he remembered that I had told him this morning that the exterminators were coming today. We found a black widow outside last week and I told Aaron about it so that he would be careful. He’s been wanting those bug sprayers to get here! He turned around before he left the room and said, “Mom! Did those insecticides come today?”
The insecticides did come, Aaron…………except we call them exterminators.
Clean bread sticks because of his knife and fork………….clean bug-free house because of those insecticides that came today. Life is good! A little weird, but good!
Lessons From the Storm Clouds
The Chips Mystery is Solved!
A few weeks ago, when we returned home after our trip with Andrea to Fort Worth, she was getting ready to leave for McPherson, where she lives and works now. Before she left, Aaron asked her if she wanted the Sour Cream and Onion Pringles that he had bought while we were gone. We were surprised at that offer because Aaron loves Sour Cream and Onion Pringles. It would be unusual for him to give them away………or very generous. Very, very generous in Aaron’s case. When he returned with the chips, she asked him why he was giving them away and he admitted that he didn’t like them. What?! But he assured us that he didn’t like them and so he was happy to give them to Andrea.
He hasn’t really been able to describe to us why he all of a sudden doesn’t like Sour Cream and Onion Pringles………..until today. I was outside watering our new growing grass when Aaron got home. He came across the yard, swinging a Wal-Mart bag. He told me about his day………the number 52 Slushie and only one box of candy from Quik Trip………..and then the Pringles from Wal-Mart. He reached into his Wal-Mart bag and took out one of the two canisters of Pringles that were in the bag.
“See Mom? I got some Sour Cream and Onion Pringles.” And I said, “But Aaron, I didn’t think you liked Sour Cream and Onion Pringles anymore.”
“Mom! I found out why I didn’t like the other Sour Cream and Onion Pringles. It’s because they were the bursting flavor!”
Oh, I see……….bursting flavor, huh?
“Yes! I don’t like the bursting flavor ones, but I like these.”
And these that he likes are Multi-Grain Sour Cream and Onion Pringles…………..which are obviously very different from the bursting flavor Sour Cream and Onion Pringles.
Soon after this conversation, I was in the kitchen getting supper ready when Aaron came in and held the Multi-Grain Pringles up for me to see. “Mom, these multi-grain Sour Cream and Onion Pringles are better. They’re better than the bursting flavor ones.”
He must have seen my confusion because he continued, “The bursting flavor means it has a higher flavor.”
Well, of course. A higher flavor……..and that’s just not so tasty, is it?
“No, the bursting flavor is more spicy. I’m glad they’re not like that bursting flavor!”
Absolutely! Bursting flavor is just too much!
After supper, Gary and I were working in the yard and garden. I was watering more grass when Aaron came outside and walked over to the garden to talk to Gary………….and of course, he wanted to tell Dad all about the multi-grain chips compared to the bursting flavor chips. That accomplished, he walked over to me and said, “Mom, I really like those Multi-Grain Sour Cream and Onion Pringles. They’re better than the bursting flavor.”
Yes, Aaron, I know.
“And Mom, the multi-grain ones are green and they have black dots! The bursting flavor ones are clear!”
Well, now, there’s a clever marketing ploy! So I tried to explain what the black dots are, but I realized that his descriptions are much more interesting than mine are and so I just hushed. Aaron went inside for awhile, but returned one more time. This time, he strode purposefully up to Gary in the garden…………and he was carrying a canister of the Multi-Grain Sour Cream and Onion Pringles. He once again explained to Gary the difference in the multi-grain ones and the bursting flavor ones, and concluded by saying, “And the multi-grain Pringles have polka dots!”
Maybe I’ll have time to play a game of Skip-Bo tonight with Aaron………..and maybe, just maybe, I’ll get to eat some of those green polka-dotted multi-grain Sour Cream and Onion Pringles. Who needs plain old bursting flavor ones anyway? These new ones sound like way more fun!
In Aaron’s world they sure are!
Mother’s Day and Cavemen
I got the best surprise for Mother’s Day. We had been helping at a friend’s 50th wedding anniversary party, working in the kitchen. Well, Gary was fishing but Andrea came in from McPherson and came out to the party, where she worked and worked with us in the kitchen. My sweet, beautiful daughter didn’t mind a bit to be washing dishes and doing whatever else needed doing for several hours. What a blessing! Then later, when we pulled into our driveway, there was Andrew’s truck! That was my big surprise that everyone knew about except me. We hadn’t seen him for several months, so it was wonderful to give him a big hug and cry on his shoulder. To top it off, there were beautiful pink roses and funny cards…………and Andrea even made sure that Aaron signed a card.
We talked until late that night, catching up, and then they wanted me to decide about what to do the next day. I chose to grill steaks……..well, Gary would do the grilling and then Andrea and I would do the rest. After church, Gary and I went to Sam’s for the steaks and other groceries. On the way home, my cell phone rang and I saw that it was our home number, which means one thing……….Aaron. So I answered my phone – “Hi, Aaron.”
“Mom, when are you coming home?” I told him that we were on our way. I knew exactly what his next comment would be………..and it wouldn’t be to wish me a Happy Mother’s Day. I actually knew that it would be a question and sure enough, he asked, “So, what are we eating?”
I told him that we were having steaks with Potato Casserole, Bean Salad, Tossed Salad, Ciabatta Bread, and Strawberry Shortcake. He seemed fairly unimpressed, but I knew he was happy about this menu because I know Aaron. I also knew his next comment/question and of course, he delivered: “Mom, when are we eating?”
I answered that question and there was a very brief pause. Would he just maybe say something about Mother’s Day?
“Mom, I was watching the Science channel. Do you believe there was such a thing as cavemen?”
Cavemen. That doesn’t even remotely have anything to do with Mother’s Day……at least that I’m aware of………maybe a little to do with eating steak……….
Oh, Aaron. I really wasn’t too surprised at this random turn in the conversation, but it did make me chuckle. And as I talked to Aaron about my belief or unbelief in cavemen, Gary was smiling, too.
“Mom, the cavemen lived in caves and wrote on the walls, and they wore fur animal skins.”
Well, Aaron, I believe that people lived in caves and did all those things, yes.
“And they killed a deer. It was an elk, and they used the antlers for things!”
Aaron, let’s talk when I get home.
But he would not hang up because he had more to say about the cavemen. Oh dear. Finally, I just had to tell him that I was hanging up and would see him soon………….knowing full well what the majority of the rest of the day would entail. Cavemen facts……..cavemen stories………cavemen ideas………….cavemen theories………..cavemen anything and everything.
And yes, we did get our ears full of his talking about cavemen. He talked about cavemen while Andrea and I fixed dinner, in between snatching a strawberry or asking about what food we were fixing. He went out to the grill and talked to Gary and Andrew about cavemen. He talked about cavemen while we ate, whenever he could get a caveman word in here and there. He talked about cavemen while we sat on the patio and ate our Strawberry Shortcake.
The caveman chatter did come to an end, though. That’s because as he finished cutting some coupons, he watched another program on the Science Channel. Steven Hawking was interviewed and Aaron was intrigued by him. Therefore, the evening was all about Steven Hawking……….his brilliance, his sad beliefs about God, his computer, the disease he has. Steven Hawking was the last thing Aaron was talking about last night, and was what he talked about this morning. I have seen pictures of Steven Hawking and watched a video of Steven Hawking. Anyway, you know the routine by now.
I guess cavemen have gone the way of the dinosaur……….at least for now. And as I said good night to Aaron last night, I thanked him for helping to give me a happy Mother’s Day. He just gave a little grunt. Then I said, “After all, Aaron, you helped to make me a mother.”
He gave a laugh at my funny little joke. I didn’t tell him, but he’s helped to make me a very interesting and random mother. A day full of cavemen and Hawking………..I can never predict the way a day with Aaron will go.
Our Priceless Mother
A Thank-You!
Sometimes Aaron jerks, as in possible myoclonic jerk seizures. No, I didn’t say that Aaron IS a jerk…….at least not out loud. OK – just kidding! But really, he has dropped coffee or other drinks as well as food and whatever else may be in his hand when he has a jerk. It doesn’t seem to happen often, thankfully.
He came home today from his day group and was telling me about his day, about the movie they went to see and about going to the park afterwards. He’s calm and mellow today. Our conversation was more adult feeling and pleasant. I love days like this.
He told me that he got popcorn……a large, as always. Now Paradigm staff may need to correct this, but the story Aaron told me is this:
“Mom, I was carrying my bucket of popcorn. It was before the movie started. We were out in the hall……..you know, outside that theater place. And I had a jerk and I dropped my popcorn.”
He was very matter-of-fact about it as he continued: “You know, we weren’t inside the place where we watch the movie. We were at that pay aisle place.”
Bless his heart – it was very important to him that he set the stage and that I understood exactly where he was. I assured him that I knew where he meant, and so he went on: “Well, that theater lady came and she said she would sweep it up. I told her that I would sweep it up but she said that she would do it.”
Aw, Aaron. He was embarrassed by all this and it makes my heart go out to him. He felt bad for the theater lady to sweep up his mess that he had made. Hearing him express that fact just really warmed my heart, and made me also feel sad for Aaron…….sad that he has to deal with all these public issues.
And I want to say thank you to this nice theater lady for sweeping up Aaron’s mess………….and thank you to the guys who refilled Aaron’s popcorn bucket (large, of course!)…………and a huge thank you to all the Paradigm staff who work so patiently and kindly with not only Aaron, but with many other young special needs adults. I know it can’t be easy to keep it all straight and keep yourselves from getting irritated, but we think you do a fabulous job!
Good people need to be recognized, and we’re very thankful that God has brought so many into Aaron’s life.
Mouthwash and Mattresses
For some time now, Aaron has used mouthwash every night before bed. His dental hygienist suggested this for Aaron, telling us that it would help prevent tartar buildup. Aaron’s dental habits could use some tweaking, let’s just say………….so could his showering habits, for that matter. Anyway, I was skeptical that Aaron would come anywhere near a bottle of mouthwash, let alone actually put it in his mouth…………but lo and behold, he has used it faithfully for months. Amazing!
When I got him the first bottle, I stood beside him and instructed him on the mechanics of using mouthwash. He was full of trepidation as he took his first tiny sip of the suspicious substance. I encouraged him onward and finally he had the entire amount in his mouth. The look on his face was priceless! He was adjusting himself to the minty taste of this weird colored liquid. I really thought that this first swishing would be his last……….but it wasn’t. He has decided that this miracle mouthwash will keep the hygienist from delivering bad news to Mom at each dental visit, so swish he will!
He has told me when his bottle of mouthwash was running low so that I could buy another one. He has commented on the shapes of the bottles, the brand of the mouthwash, the taste of the mouthwash…………and even confided in me that one night when he had a cold, he got out of bed and swallowed some mouthwash, thinking that it would help his cold……………so we had another instructional session of the pros and cons of swallowing mouthwash……..heavy on the con side………..and I don’t believe he has ever drunk mouthwash again.
Last night we were going through our getting-ready-for-bed routine. Aaron was in his bathroom brushing and swishing. He had a brand new bottle of mouthwash and I was soon to hear about it. He charged into our bedroom. “Mom!! That new mouthwash is blue!”
Yes, Aaron, it is. Did you like it?
“Well, it’s called Blue Mint.”
And?…………….
“It was different!”
I know it’s different. Did you like it? And he told me that, yes, he liked it…………..and he thumped on down the hall to his room.
But not for long. Into the room he burst again. “Mom, it’s just that this new mouthwash is a weird blue color.”
It is blue, Aaron.
“But my other mouthwash was green.”
Yes, Aaron……….green mint and blue mint. Crazy, huh?
Off he went again, satisfied, I hoped. I was almost done with my own brushing of teeth when he barreled in again. “Mom! Can you come in my room and do something?”
Aaron, what is it? I really want to go to bed.
“There’s something wrong with my bed! I noticed it today.”
Aaron had a couple seizures earlier in the day and so I wondered if his covers were messed up. I went to his room and he said, “It’s this part of the bed….over here, on the lamp side.” So I went to the lamp side of the bed and stood there looking down to see whatever it was I was supposed to see. Aaron was quiet, waiting for me to correct the very obvious problem that wasn’t at all very obvious to me.
So, Aaron, what is it? What’s wrong with the bed? And he leaned down a little and pointed to the end of the mattress, at the rounded corner. OK. And the problem is?
“See, Mom? It’s halfway messed up. The mattress needs to come over this way.”
It looked totally fine to me, but I knew better than to try to dissuade him of his firm conviction that the mattress was halfway messed up, so I reached down and gently moved the mattress over………….maybe an eighth of an inch………..maybe. Aaron was very happy to see this improvement in the position of his halfway messed up mattress. So was I, believe me. Simple solutions to Aaron’s halfway messed up issues don’t always happen!
We hugged good night and I started up the hall, only to have Aaron follow me. I turned around to nip this in the bud and he said, “Mom, that mouthwash was different.”
OK, Aaron………..I know the mouthwash was different but the Blue Mint is good, right? He agreed. And your halfway messed up mattress is fixed, right? He agreed. So let’s go to bed.
Another hug and we parted ways…………me holding my breath as I fully expected him to return with one more mouthwash update. But he stayed in his room and settled in his bed to read before closing his book, recording his going-to-sleep time in his notebook by his bed, turning off his light and getting his covers just so-so on his no longer halfway messed up mattress.
And it hit me…………he didn’t even ask if it was going to rain tonight. Wow! Must be the mouthwash!




















